Enbrel

[Guest guest]

thanks, i just took my 2nd shot last night and today i feel like i have been

hit by amack truck lol

o

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[Guest guest]

I also get extremely tired, but the effects are weakening each week...

I take my shots 6pm on Tuesday nights...that way dinner is already

made and I don't have any obligations to uphold on these evenings...

Basically I give myself my shot and lay down the rest of the evening.

I was also getting very irritated in the injection site... very

swollen and itchy... My Doctor recommended that I take Benedryl a

half hour before my shots and now you can barely see where the

injection was...

Hope you feel better soon

Bonnie R.

>

> i just started enbrel last monday, it made so tired i could hardly

stay

> awake at work, I was wondering if i could change the day i take it

and take it

> today or would that be too soon so maybe i won't be as tired

tomorrow at work?

> Thanks O

>

>

>

> **************Wondering what's for Dinner Tonight? Get new twists on

family

> favorites at AOL Food.

> (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

>

>

>

[Guest guest]

Occasionally I get an injection site reaction, not a rash, but the

place where I injected turns red and itchy. It's no worse than a

mosquito bite. Usually after I inject, I rub some Sarna anti-itch

lotion on the site, and that helps.

I make sure that I let the solution get to room temperature before I

inject it. I also find that I'm more likely to get a reaction if I

inject to a shallow depth, so I usually try to just go in vertically

and not at a slant.

Sue

On Thursday, May 29, 2008, at 08:00 PM, bengal9 wrote:

> Has anyone experience d a rash around the injection site?

>

> O

[Guest guest]

Oh ok no mine is about the size of a lemon it doesn't itch just red araised

o

-- Re: [ ] Enbrel

Occasionally I get an injection site reaction, not a rash, but the

place where I injected turns red and itchy. It's no worse than a

mosquito bite. Usually after I inject, I rub some Sarna anti-itch

lotion on the site, and that helps.

I make sure that I let the solution get to room temperature before I

inject it. I also find that I'm more likely to get a reaction if I

inject to a shallow depth, so I usually try to just go in vertically

and not at a slant.

Sue

On Thursday, May 29, 2008, at 08:00 PM, bengal9 wrote:

> Has anyone experience d a rash around the injection site?

>

> O

[Guest guest]

I use to get the same reaction. My doctor advised me to take a

benedryl a 1/2 hour prior to giving myself the shot... It has

completely worked! No redness and its no longer itchy... Talk to

your Doc and see if he/she would recommend it as well...

Bonnie R.

>

> > Has anyone experience d a rash around the injection site?

> >

> > O

>

[Guest guest]

How long does it stay like that? Do you let the mixture get to room

temperature? Try rubbing some kind of anti-itch cream on the site as

soon as you inject, and see if that helps.

Sue

On Thursday, May 29, 2008, at 08:45 PM, bengal9 wrote:

> Oh ok no mine is about the size of a lemon it doesn't itch just red

> araised

>

> o

[Guest guest]

yes, same here. and then the red raised area often turns black and

blue .gentle hugs! Marcia

--- bengal9 <bengal9@...> wrote:

> Oh ok no mine is about the size of a lemon it doesn't itch just red

> araised

>

> o

>

>

>

> -- Re: [ ] Enbrel

>

>

>

> Occasionally I get an injection site reaction, not a rash, but the

>

> place where I injected turns red and itchy. It's no worse than a

>

> mosquito bite. Usually after I inject, I rub some Sarna anti-itch

>

> lotion on the site, and that helps.

>

>

>

> I make sure that I let the solution get to room temperature before I

>

> inject it. I also find that I'm more likely to get a reaction if I

>

> inject to a shallow depth, so I usually try to just go in vertically

>

> and not at a slant.

>

>

>

> Sue

>

>

>

> On Thursday, May 29, 2008, at 08:00 PM, bengal9 wrote:

>

>

>

> > Has anyone experience d a rash around the injection site?

>

> >

>

> > O

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

You can also take a Tagamet during the day and the benedryl at night.  That's

what I did and the hive cleared right up.

[ ] Re: Enbrel

I use to get the same reaction. My doctor advised me to take a

benedryl a 1/2 hour prior to giving myself the shot... It has

completely worked! No redness and its no longer itchy... Talk to

your Doc and see if he/she would recommend it as well...

Bonnie R.

>

> > Has anyone experience d a rash around the injection site?

> >

> > O

>

[Guest guest]

Thanks everyone for their input I will try that

-- Re: [ ] Re: Enbrel

You can also take a Tagamet during the day and the benedryl at night. That

s what I did and the hive cleared right up.

[ ] Re: Enbrel

I use to get the same reaction. My doctor advised me to take a

benedryl a 1/2 hour prior to giving myself the shot... It has

completely worked! No redness and its no longer itchy... Talk to

your Doc and see if he/she would recommend it as well...

Bonnie R.

>

> > Has anyone experience d a rash around the injection site?

> >

> > O

>

[Guest guest]

Ya I let it get room temp the rash got the size of a grapefruit, it doesn't

itch just red and swollen, starting to turn colors now looks a little blue.

o

-- Re: [ ] Enbrel

How long does it stay like that? Do you let the mixture get to room

temperature? Try rubbing some kind of anti-itch cream on the site as

soon as you inject, and see if that helps.

Sue

On Thursday, May 29, 2008, at 08:45 PM, bengal9 wrote:

> Oh ok no mine is about the size of a lemon it doesn't itch just red

> araised

>

> o

[Guest guest]

Hi, I'm new to the group. I have been on Enbrel for about 9 weeks, and

it has taken the inflammation back down to normal levels, but hasn't

done much

for the pain. Tammy

[Guest guest]

WELCOME TAMMY!! HOPE YOU FIND COMFORT IN THIS GROUP, I HAVE. GOD

BLESS,MELYNDAGAMEZ 6/3/08 7:40P.M.CENTRALTIME

[ ] re: Enbrel

Hi, I'm new to the group. I have been on Enbrel for about 9 weeks, and

it has taken the inflammation back down to normal levels, but hasn't

done much

for the pain.  Tammy

------------------------------------

[Guest guest]

Hi,

I have dry eyes which is a problem people with RA have according to what I've

read on-line. My eye doctor said to use eye drops to prevent the dryness that

can cause sudden blindness. Other than that, I haven't had any other problems

with my eyes since I've started Enbrel.

ez

[Guest guest]

Clora, where in the world did you read that? Please give the URL. I've

never read anything like that about Enbrel, and it's the oldest of the

biologic drugs, so the side effects are pretty well known. I've been on

it for over five years, and yes, I've had cancer, breast cancer, but I

had it before I ever started on Enbrel.

Sue

On Monday, July 21, 2008, at 09:33 PM, Clora May wrote:

> I am concerned about enbrel causing cancer cause I just read 50 per

> cent people taking it got cancer. No not taking it yet.

[Guest guest]

What in the world. I have been on and off enbrel for 2 years now and well never

heard this. Now I've heard it can cause issues with lymphnoma other than that

never heard it caused cancer.

Jenn

Re: [ ] Enbrel

Clora, where in the world did you read that? Please give the URL. I've

never read anything like that about Enbrel, and it's the oldest of the

biologic drugs, so the side effects are pretty well known. I've been on

it for over five years, and yes, I've had cancer, breast cancer, but I

had it before I ever started on Enbrel.

Sue

On Monday, July 21, 2008, at 09:33 PM, Clora May wrote:

> I am concerned about enbrel causing cancer cause I just read 50 per

> cent people taking it got cancer. No not taking it yet.

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[Guest guest]

I am going to start Enbrel as soon as my TB test is read, and my

rheumy told me that it can induce Lupus and MS, and that there has

been cases of lymphoma (a type of cancer). So I guess it is true. I

didn't read that anywhere...just from my Rheumy.

>

> > I am concerned about enbrel causing cancer cause I just read 50

per

> > cent people taking it got cancer. No not taking it yet.

>

[Guest guest]

I thought the jury was out as to whether antiTNFs increased the risk of

lymphoma, or whether RA disease increased the risk. Either way, personally, I'm

willing to risk it in exchange for health and mobility. Enbrel gave me my life

back, and I'd rather have a few good years, than many in pain and exhausted. As

for the lupuslike and MSlike syndromes, I just try not to think about the scary

side effects

[ ] Re: Enbrel

I am going to start Enbrel as soon as my TB test is read, and my

rheumy told me that it can induce Lupus and MS, and that there has

been cases of lymphoma (a type of cancer). So I guess it is true. I

didn't read that anywhere...just from my Rheumy.

>

> > I am concerned about enbrel causing cancer cause I just read 50

per

> > cent people taking it got cancer. No not taking it yet.

>

[Guest guest]

I've been on Enbrel for over five years, and so far, no adverse side

effects. Just let anyone try to pry it out of my hands, LOL.

Sue

On Tuesday, July 22, 2008, at 06:13 PM, Fair wrote:

> I thought the jury was out as to whether antiTNFs increased the risk

> of lymphoma, or whether RA disease increased the risk. Either way,

> personally, I'm willing to risk it in exchange for health and

> mobility. Enbrel gave me my life back, and I'd rather have a few good

> years, than many in pain and exhausted. As for the lupuslike and

> MSlike syndromes, I just try not to think about the scary side effects

>

>

[Guest guest]

Sue

Haaaaaaaaaaa. Don't worry I wouldn't dare try to pry the enbrel  out of your

hands.  I can go and get some for myself. haaaaaaaaaa. You're so funny. I can't

wait to see my rheumy next Tuesday and see what she gives me, and if it works,

no one better try to pry it out of my hands.. haaaaaa haaaa haaaaaa.

Clora

 

I've been on Enbrel for over five years, and so far, no adverse side

effects. Just let anyone try to pry it out of my hands, LOL.

Sue

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[Guest guest]

Hi All,

I have been on Enbrel since February. My RD discussed the side affects with me.

He said that they have to state that so many people came down with MS or

Lymphoma. These people may have already going to come down with these deseases

anyway.

If you read the insert that comes with the Enbrel. It give all that info in the

leaflet.

Sorry for butting into your conversation. Thought I might help.

My RD has about 400 patients and no one has come down with MS or lymphoma.

or any other horrible thing.

guzzie53

[ ] Re: Enbrel

I am going to start Enbrel as soon as my TB test is read, and my

rheumy told me that it can induce Lupus and MS, and that there has

been cases of lymphoma (a type of cancer). So I guess it is true. I

didn't read that anywhere...just from my Rheumy.

>

> > I am concerned about enbrel causing cancer cause I just read 50

per

> > cent people taking it got cancer. No not taking it yet.

>

[Guest guest]

I'm the same way. I tell my rheum that it's my crack cocaine. When I saw the

VA doc, he didn't like me being on Enbrel while pregnant, and at first I didn't

think he was going to give me a referral to rheumatology (where they actually

didn't care that I was pg, just told me to do what my OB said). I had tears in

my eyes and I nearly panicked thinking I might have to go without it.

It's a wonder drug. I just wish everyone got the same great results that some

of us have had .... and that everyone had equal access to antiTNFs.

Re: [ ] Re: Enbrel

Sue

Haaaaaaaaaaa. Don't worry I wouldn't dare try to pry the enbrel out of your

hands. I can go and get some for myself. haaaaaaaaaa. You're so funny. I can't

wait to see my rheumy next Tuesday and see what she gives me, and if it works,

no one better try to pry it out of my hands.. haaaaaa haaaa haaaaaa.

Clora

I've been on Enbrel for over five years, and so far, no adverse side

effects. Just let anyone try to pry it out of my hands, LOL.

Sue

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[Guest guest]

,

I have been on Enbrel for 4 months and it has changed my life completely. Before

Enbrel I was unable to walk and even feed myself.  I have had NO side effects at

all and along with my methotrexate I am almost able to function at 100%.  I have

gone from not walking at all to walking almost six miles a day.  I still need to

take my pain medication in order to help me through the day, but other than that

I am OK!!  I still have days where I am tired and sleep most of the day away,

but at least I am able to function and go outside.  I know if I were to stop

moving and just sit at home all day I would still be in a lot of pain.

Good Luck

ortizd73

Re: [ ] Re: Enbrel

Sue

Haaaaaaaaaaa. Don't worry I wouldn't dare try to pry the enbrel out of your

hands. I can go and get some for myself. haaaaaaaaaa. You're so funny. I can't

wait to see my rheumy next Tuesday and see what she gives me, and if it works,

no one better try to pry it out of my hands.. haaaaaa haaaa haaaaaa.

Clora

I've been on Enbrel for over five years, and so far, no adverse side

effects. Just let anyone try to pry it out of my hands, LOL.

Sue

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[Guest guest]

Hi :

What a wonderful post to read!! I am so happy for you that you have

your life back.

Imagine, no walking to walking 6 miles a day. You must feel so

joyous...... I love to walk, and miss it so much.

God Bless you, and have a walk for me!!!!

Hugs,

Barbara

>

> ,

> I have been on Enbrel for 4 months and it has changed my life

completely. Before Enbrel I was unable to walk and even feed myself. I

have had NO side effects at all and along with my methotrexate I am

almost able to function at 100%. I have gone from not walking at all to

walking almost six miles a day. I still need to take my pain medication

in order to help me through the day, but other than that I am OK!! I

still have days where I am tired and sleep most of the day away, but at

least I am able to function and go outside. I know if I were to stop

moving and just sit at home all day I would still be in a lot of pain.

> Good Luck

> ortizd73

>

>

>

>

>

>

[Guest guest]

> >

> > ,

> > I have been on Enbrel for 4 months and it has changed my life

> completely. Before Enbrel I was unable to walk and even feed

myself. I

> have had NO side effects at all and along with my methotrexate I am

> almost able to function at 100%. I have gone from not walking at

all to

> walking almost six miles a day. I still need to take my pain

medication

> in order to help me through the day, but other than that I am

OK!! I

> still have days where I am tired and sleep most of the day away,

but at

> least I am able to function and go outside. I know if I were to

stop

> moving and just sit at home all day I would still be in a lot of

pain.

> > Good Luck

> > ortizd73

> >

> >

> >

> >

> >

> >

[Guest guest]

I started out with mtx, plaquenil and enbrel were added on to this.

Most TNF's (enbrel, humera,... ) are used with mTX. yes.

> > >

> > > ,

> > > I have been on Enbrel for 4 months and it has changed my life

> > completely. Before Enbrel I was unable to walk and even feed

> myself. I

> > have had NO side effects at all and along with my methotrexate I

am

> > almost able to function at 100%. I have gone from not walking at

> all to

> > walking almost six miles a day. I still need to take my pain

> medication

> > in order to help me through the day, but other than that I am

> OK!! I

> > still have days where I am tired and sleep most of the day away,

> but at

> > least I am able to function and go outside. I know if I were to

> stop

> > moving and just sit at home all day I would still be in a lot of

> pain.

> > > Good Luck

> > > ortizd73

> > >

> > >

> > >

> > >

> > >

> > >