Symptoms

[Guest guest]

well i have no energy, pain every day that moves all over. i get dizzy, run

fevers almost every day. sometimes i am all hunched over and walk with a

limp, and lately my stomach was affected from the ulcer. can't stay in one

place very long. need to move or be stuck.

kathy

[Guest guest]

I forgot to mention along with all the other problems. I am discovering my

memory has gone on vacation & forgot to leave a forwarding address. I can't

remember anything, If I don't write it down right away I forget less than 5

minutes later. Which is very bad at work since I do all the ordering I forget

as soon as they tell me what they need. Is this the meds affecting me or the

RA??

Ruby

[Guest guest]

Kathy,

Sounds like your are describing me. I, too, have all of your listed

symptoms alng with being very stiff in the mornings and after sitting, or

being in the car for any time at all. Anemia has bugged me off and on for

the last four years. I really hate the constant feeling of heaviness or

fatigue. Seems to shorten my day. I was always so full of energy and could

go day and night.

And, now, I'm about to whine; My baby sister, who lives in Arizona, has

been given a confirmation of a RA diagnoses. As a single parent for ten plus

years, I felt my Mom was my only support through this crap! But, now it is

all about the baby sister. I feel absolutely drowning in a deep hole with no

hands to hold on to.

Without this lifeline of a support group I'm sure I would have given up

and sunk to the bottom to stay! Thanks to all who are so kind and uplifting.

[Guest guest]

Kathy-

You have had such a miserable time of it - particularly

since last fall. Am praying that your disability goes

through and you will have less pressure. It would be

helpful if you had a doctor who was more supportive of

your application.

Hugs,

[Guest guest]

Ruby,

jesse's other symptoms besides the normal JRA/RA symptoms are that he is very

tiny. at age 12 he is 52 inches tall and weighs in at 60 pounds.

shelly

[Guest guest]

why do i always have to defend myself with this? i was feeling pretty good

for awhile, so i got some painting and yard work done. i knew when i did

this it was stupid because it would aggravte my symptopms.but i figured i had

to get them done before returning to work if that is the case. so of coarse

yesterday i felt kind bad. twisted spine. hunched over, dragging my leg,

knuckles swelling, even though it was a shot day. well of coarse i ran a

fever last night an my neighbor stops over to see if i wanted to walk. of

coarse you have a fever. it's 5:00, you always run a fever then. she was

being her normal sarcastic self. urgh!!!!

kathy

[Guest guest]

there are many hands here and we won't let you fall!!

kathy

[Guest guest]

Kathy,

I understand about having to defend yourself where your illness is concerned.

I have been doing that for jesse for a very long time. also runs a

fever almost daily at about 2pm. Some people will never understand unless

they walk in your shoes. Please remember that your neighbor stresses you out

and as with , stress makes him much worse. I have gotten to the point of

blocking phone numbers from kids who call jesse and then they go to other

peoples houses and call from there and do star 67 so now i pay out 20 extra

dollars a month for Privacy Director which means that the person calling has

to give their name and i have the choice to accept the call or ignore it. I

have even complained to the school cause the one child that does it is in

's class and she even lives in the same park as us so he gets it all the

way around. What iam saying is if your neighbor isn't gonna be helpful or

understanding then maybe you need to shut her off so to speak. Kathy, you

have been through so much i just don't want to see you suffer anymore.

good luck,

shelly

[Guest guest]

shelly, thanks for your kind words of advice. it was very peaceful without

her thats for sure. she is now fed up with her job and her life so she may

just be moving on anyway!!!

kathy

[Guest guest]

Dear Bill,

I felt like death might be preferable during my first month of AB treatment.

Eileen

[Guest guest]

Kathy,

Yes, like we just choose to feel this way!!!

[Guest guest]

Thanks, a. It is hardest at night when I have had to get up because it

hurts to lay down for too long. I often wake after an hour or two and can't

go back to sleep for hours. That is when I feel so alone. It has truly been

remarkable to be able to log on any time and read postings.

[Guest guest]

i almost forgot, i am going for my cystoscopy tomorrow

kathy

[Guest guest]

,

It sounds like me too. Sorry to hear that your sister also has RA. Since she

will know first hand what you are feeling, maybe she will become part of your

support group too. You always have all of us, so please don't sink into that

hole. It's much to dark and lonely there. When you feel like you're sinking,

just holler and someone here will throw you a line.

a

----- Original Message -----

From: Mhynes123@...

Sent: Tuesday, April 10, 2001 1:35 AM

Subject: Re: [ ] symptoms

Kathy,

Sounds like your are describing me. I, too, have all of your listed

symptoms alng with being very stiff in the mornings and after sitting, or

being in the car for any time at all. Anemia has bugged me off and on for

the last four years. I really hate the constant feeling of heaviness or

fatigue. Seems to shorten my day. I was always so full of energy and could

go day and night.

And, now, I'm about to whine; My baby sister, who lives in Arizona, has

been given a confirmation of a RA diagnoses. As a single parent for ten plus

years, I felt my Mom was my only support through this crap! But, now it is

all about the baby sister. I feel absolutely drowning in a deep hole with no

hands to hold on to.

Without this lifeline of a support group I'm sure I would have given up

and sunk to the bottom to stay! Thanks to all who are so kind and uplifting.

[Guest guest]

Good luck Kathy.

a

----- Original Message -----

From: kringlemom@...

Sent: Tuesday, April 10, 2001 9:38 PM

Subject: Re: [ ] symptoms

i almost forgot, i am going for my cystoscopy tomorrow

kathy

[Guest guest]

Hi Everybody,

Thanks so much for the feedback. I'm going to make an

appointment tomorrow JUST to be on the safe side. I

sure hope it's just anxiety/panic attacks, because I

don't need ANOTHER darn thing to treat!!!

I really appreciate everyone responding so soon to my

concerns.. this is an awesome bunch of people!!

My best to all of you

Annette in Oregon

--- joeysala <joeysala@...> wrote:

> My sis said she had a friend who had panic attacks

> that were like this.. although, I've never had a

> problem with stuff like that!

> Any feedback would be appreciated!

> Thanks, Annette (ponygirl66)

>

>

--------------------------------------------------------------------------------

>

>

--------------------------------------------------------------------------------

>

>

> Hi Annette.........of course, if you're really

> worried, you should take your butt to the

> doctor......but it sure sounds like anxiety (some

> people think " anxiety " sounds like a better thing to

> have than " panic attacks " ) to me! And, as far as

> never having a problem with " stuff like that " ,

> neither did I, until the first time. You might want

> to try some serious relaxation techniques ---

>

>

>

>

>

__________________________________________________

[Guest guest]

,

My symptoms indeed began with persistent digestive problems. I had just about

every

gut problem you can imagine (I'll spare everyone the gory details!) after every

meal for about 6

months before the other problems started. In fact, doctors initially thought

I had Crohn's disease or celiac, though thoseeventually got ruled out.

I later learned through testing that I have a " leaky gut. "

After taking L-glutamine powder for almost a year, my digestive symptoms are

virtually gone, though

others have persisted (though greatly improved on AP).

Best,

Anne

Behcet's and relapsing polychondritis, AP two months

> just curious of how many peoples symptoms started out as

> stomach/colon problems before the pain/fatigue/or weakness? i was

> training as a gymnast and that was my first symptom. along with

> fatigue. i know the lining of the colon is very important for

> immunity. and i wonder if alot of the infection originates there.

> just curious. hope everyone is well.

>

> rachael

> dermatomyositis 10 years

> AP 5 weeks

[Guest guest]

Obviously you got my message but I got it back

saying that you couldn't get it because of a mail

loop. I have no idea what that means. I will look

up the other things that you mentioned but from

what I have been reading CMT symptoms fall right

in line with all the problems on my Mom's side of

the family. I think I have just been misdiagnosed

over and over because no one could really decide

what I had. The Mono and Tick borne diseases were

true as blood work was able to prove them but all

the others, or at least most of them, are just

best guesses based on symptoms or some signs in

some blood tests.I don't care what it really is

just so I can find out for the grandkids. I don't

want them to go through life like my Aunt Pearl.

She lost all ability to walk, use her hands, etc.

and never knew what would happen next. She always

had great difficulty walking and had the gait that

everyone seems to talk about. She would have been

a great candidate for braces if anyone had figured

it out. I guess I am getting discouraged too

because I find myself in more and more pain and

more and more often dealing with weakness in legs

and hands as well as pain. Is it typical for the

pain and weakness to come and go periodically and

get worse when it returns? You have been great to

answer so many questions. Thanks for taking the

time. I hope I don't repeat myself. I get tired

and forget what I have asked, I think.

Helen

[Guest guest]

AMEN!! After 1.5 years of chelating our daughter's hair test finally

did NOT meet the 'counting rules.' Are these symptoms gone? some of

them. I know we have a long way to go. She's 19. Thank your lucky

stars for those years of youthful intervention that you have with

your little ones and please stay with it. Family, tons of family,

saw her at Christmas time and most were asking 'what happened to

her?' 'she's talking to me' etc. This from a group that doesn't want

to hear about the vaccine issue even though many definitely dot the

spectrum.

In a message dated 1/28/04 9:59:39 AM, jromkema@f... writes:

<< These are both symptoms of mercury poisoning. We called my son's

issues sensory integration dysfunction for a long time too, then

autism, and now, mercury poisoning. >>

[Guest guest]

I have or have had ALL of your symptoms from working in a moldy basement. As long as you subkect yourself the sicker you will det. I now have asthma and cant even handle the mold iin the wet ground. I have to wear a mask in old buildings. The shipyard put me out on disability. I used to have joint pain and muscle paiin even in my chest, so bad I could not turn over in bed. I have had so many sinus infections that my sinus xat scan looks like a train wreck. And if I am in a moldy building too long? I cant even put two words together. Below is where I worked.Its a year later and I am still sick. Better then when I worked there, but still sick.

God Bless

Janet

[Guest guest]

I have or have had ALL of your symptoms from working in a moldy basement. As long as you subkect yourself the sicker you will det. I now have asthma and cant even handle the mold iin the wet ground. I have to wear a mask in old buildings. The shipyard put me out on disability. I used to have joint pain and muscle paiin even in my chest, so bad I could not turn over in bed. I have had so many sinus infections that my sinus xat scan looks like a train wreck. And if I am in a moldy building too long? I cant even put two words together. Below is where I worked.Its a year later and I am still sick. Better then when I worked there, but still sick.

God Bless

Janet

[Guest guest]

No killer nosebleeds?

-

[Guest guest]

No killer nosebleeds?

-

[Guest guest]

What color is the mold on the tiles?

These symptoms are common for mold exposure. I had every one of them except the hives, but I had lung problems. Allergy meds will work for a little while, but then the toxic effects take over. Anything else you add to your body at this point will just add to the toxic load that your body has to get rid of.

Brad Marsh

-----Original Message-----From: KMDQTIE [mailto:kmdqtie@...]Sent: Friday, April 02, 2004 7:06 AM Subject: [] SymptomsI'm hoping someone out there can help me. In September, I started a job in a high school as a teacher's aid. In October I came down with a bad case of hives. I still have the hives. I also have unexplained fatigue, headaches, joint pain, problems concentrating, swollen hands and feet, multiple sinus infections, nose congestion, red burning itchy eyes. There is visible mold on the ceiling tiles of my classroom and visible water damage in the gym. Are any of these symptoms shared by anyone out there? I have another appointment with the allergist today. I've been on medication since October for the hives, but my symptoms are just getting worse. FAIR USE NOTICE:This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner.

[Guest guest]

What color is the mold on the tiles?

These symptoms are common for mold exposure. I had every one of them except the hives, but I had lung problems. Allergy meds will work for a little while, but then the toxic effects take over. Anything else you add to your body at this point will just add to the toxic load that your body has to get rid of.

Brad Marsh

-----Original Message-----From: KMDQTIE [mailto:kmdqtie@...]Sent: Friday, April 02, 2004 7:06 AM Subject: [] SymptomsI'm hoping someone out there can help me. In September, I started a job in a high school as a teacher's aid. In October I came down with a bad case of hives. I still have the hives. I also have unexplained fatigue, headaches, joint pain, problems concentrating, swollen hands and feet, multiple sinus infections, nose congestion, red burning itchy eyes. There is visible mold on the ceiling tiles of my classroom and visible water damage in the gym. Are any of these symptoms shared by anyone out there? I have another appointment with the allergist today. I've been on medication since October for the hives, but my symptoms are just getting worse. FAIR USE NOTICE:This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner.