Symptoms

[Guest guest]

I Lynn, I too am new to the group. I have several of your symptoms especially

the drop foot and burning and flinching. I have the drop foot from a previous

back surgery. I also have Ankylosing Spondilitis. My neuro put me on Neurotin

for the leg spasms and twitching and I have just gotten my special shoes and

brace for the tripping part. The fatigue sucks some days but I continue to

persevere. I have gotten from the group to not give up. We all have different

areas of this CMT to deal with. I have been told I am mild but that doesn't make

it any easier.

Lynn

[Guest guest]

> After visiting my doctor for ED concerns, blood tests showed what

he

> called " low-normal " testosterone. That is, first test 261, second

> test 304 (ref 241-827). Being only 26 years old, this concerns

me,

> particularly when I see the average man my age is above 600.

>

> I do have some of the symptoms associated with low testosterone,

> particularly ED, low libido, depression, difficulty concentrating,

> all fat is around my belly.

>

> But having read the AACE Hypogonadism Guidelines, it seems that

> other common physical symptoms are small testes and reduced

> pubic/body hair. I don't have these symptoms and the only hair

that

> is reduced is some thinning of my head hair. I always thought

> testosterone caused hairloss, but then I have much more hair than

my

> dad did at my age.

>

> I'm just curious if anyone has been diagnosed with hypogonadism

even

> though body hair and testes size were 'normal'. If so, was it

> primary or secondary hypogonadism?

>

> Thanks,

>

-----------------------

, the fat around the belly is more indicative of high

estrogen than it is low testosterone. I would get a blood test next

to include Estradiol or E2 to see if it is within " normal " male range

If it is, it could just as likely be too sugar/fat in your diet.

norton

[Guest guest]

Hi,

What part of the country are you in.

You need an endocrinologist that has some experience and not taking

his advice from pharmaceutical reps that just want you to use their

expensive products. Most doctors are now getting involved without

formal hormone training.

ernstnolan

> After visiting my doctor for ED concerns, blood tests showed what he

> called " low-normal " testosterone. That is, first test 261, second

> test 304 (ref 241-827). Being only 26 years old, this concerns me,

> particularly when I see the average man my age is above 600.

>

> I do have some of the symptoms associated with low testosterone,

> particularly ED, low libido, depression, difficulty concentrating,

> all fat is around my belly.

>

> But having read the AACE Hypogonadism Guidelines, it seems that

> other common physical symptoms are small testes and reduced

> pubic/body hair. I don't have these symptoms and the only hair that

> is reduced is some thinning of my head hair. I always thought

> testosterone caused hairloss, but then I have much more hair than my

> dad did at my age.

>

> I'm just curious if anyone has been diagnosed with hypogonadism even

> though body hair and testes size were 'normal'. If so, was it

> primary or secondary hypogonadism?

>

> Thanks,

>

[Guest guest]

--- I feel something simlar.

My neck and shoulders hurt like a burning pain and then lately my

neck feels like it is not going to be able to hold my heard up.

Almost like it is on a spring.

How did you get diagnosed with mercury toxcity?

What was your exposure?

I use to be a dental assistant but only have three old amalgams.

My father worked at Oak Ridge and helped build the atomic bomb he

would bring mercury home and we played with it as a kid.

Sandy

In , " seashell_555 " <seashell_555@y...> wrote:

>

>

> I seem to have alot of heaviness in my shoulders upper arms. My

> neck doesn't seem to move normally - hard to explain. Also, my

> joints all seem to be out of alignment and loose. I've been

> diagnosed with mercury toxicity but have not been tested for Lyme

yet.

>

> Does this sound like Lyme to anybody?

[Guest guest]

Yes but everyone is not the same.

Phil

Greg Kevorkian <grekkevork@...> wrote:

In the files section there is a sheet of Testosterone symptoms. I am

assuming this is for low Testosterone. Am I correct.

Thanks

Greg

---------------------------------

[Guest guest]

Keep doing the epsom salts it will add sulfur to your system and help

get rid of any mobilized metals.

> Its been about 1 1/2 months since I've got my amalgams removed. In

> the past 2 weeks my legs have been really achy, headaches, and more

> tired than usual. It usually starts up in the late afternoon-early

> evening. If I do an espom salt bath that seems to go away until the

> next day when it comes back around the same time again.

>

> Is this normal for this to happen? What does it mean? In about a

> week I will be starting MB12 shots and do those for a month and then

> add in tddmps.

>

> Carolyn

[Guest guest]

Epsom salts is a form of magnesium. You sound like you

could benifit by taking magnesium daily. Increase your magnesium

foods in your diet also. Usually taking a calcium/magnesium blend

is helpful. Some people need to realy increase just magnesium to make

a difference for awhile.

Liz D.

> [Original Message]

> From: carolynw4 <carolynw4@...>

> < >

> Date: 8/18/2005 6:22:10 PM

> Subject: [ ] Symptoms

>

> Its been about 1 1/2 months since I've got my amalgams removed. In

> the past 2 weeks my legs have been really achy, headaches, and more

> tired than usual. It usually starts up in the late afternoon-early

> evening. If I do an espom salt bath that seems to go away until the

> next day when it comes back around the same time again.

>

> Is this normal for this to happen? What does it mean? In about a

> week I will be starting MB12 shots and do those for a month and then

> add in tddmps.

>

> Carolyn

[Guest guest]

You may want to also add some folic Acid and Vit C too. Evening

Primrose oil helps with the pain some too, but may take a few weeks

before you notice it helping.

Taking Vit C in the afternoon, also can give you a little boost

of energy. The MB-12 shots will also help with the inflammation,

most likely what you have going on too.

In , " deverelementary " <kearneysix@a...>

wrote:

> Keep doing the epsom salts it will add sulfur to your system and help

> get rid of any mobilized metals.

> > Its been about 1 1/2 months since I've got my amalgams removed. In

> > the past 2 weeks my legs have been really achy, headaches, and more

> > tired than usual. It usually starts up in the late afternoon-early

> > evening. If I do an espom salt bath that seems to go away until

the

> > next day when it comes back around the same time again.

> >

> > Is this normal for this to happen? What does it mean? In about a

> > week I will be starting MB12 shots and do those for a month and

then

> > add in tddmps.

> >

> > Carolyn

[Guest guest]

> Its been about 1 1/2 months since I've got my amalgams removed. In

> the past 2 weeks my legs have been really achy, headaches, and more

> tired than usual. It usually starts up in the late afternoon-early

> evening. If I do an espom salt bath that seems to go away until the

> next day when it comes back around the same time again.

>

> Is this normal for this to happen? What does it mean? In about a

> week I will be starting MB12 shots and do those for a month and then

> add in tddmps.

If you actually want to get better I suggest you skip the B-12 and

start chelating - and if you just HAVE to be faddish and use TD-DMPS,

use it every 8 hours, not every other day.

> Carolyn

[Guest guest]

Sorry I'm not going to skip the mb12 shots. I believe you need to get

methization working before chelating and that's what I'll be doing.

I'm not using tddmps because I want to be faddish. I decided on using

tddmps based on doing my own research on the internet, talking to

others that have had experience chelating and using mb12. I don't

believe there is one right thing to do anything. I believe in

researching the possible treatments and choosing what I feel is best

for me. Oral dmps may be great for some people, but it may not be the

greatest for others. The same goes for the other way around. I plan

on getting better, but how does anyone know that mb12 shots may not be

the answer? I'm also interested in knowing how can you prove that

tddmps every other day is not safe and tddmps every 8 hours is safe?

I haven't turned down either way of doing tddmps its just I don't see

anything proving that tddmps every otherday can be harmful. I've seen

lots of good results from that actually.

Carolyn

[Guest guest]

> I haven't turned down either way of doing tddmps its just I don't see

> anything proving that tddmps every otherday can be harmful. I've seen

> lots of good results from that actually.

My suggestion is to pay a lot of attention to the bad results of any

protocol you're considering, what percentage do they comprise and what

kind of damage they report.

Nell

[Guest guest]

How many did you have removed? Did they cross midline? Was the work done by a

mercury-free dentist? Did he or she use proper protocol? Did the dentist do

amalgameter readings and remove the quadrant with the highest negative reading

first? Do you have any gold in your mouth? What did they replace with? Are

you taking any supplements?

S S

In , " deverelementary " <kearneysix@a...> <BR>

wrote:<BR>

> Keep doing the epsom salts it will add sulfur to your system and help <BR>

> get rid of any mobilized metals. <BR>

> > Its been about 1 1/2 months since I've got my amalgams removed.  In <BR>

> > the past 2 weeks my legs have been really achy, headaches, and more <BR>

> > tired than usual.  It usually starts up in the late afternoon-early <BR>

> > evening.  If I do an espom salt bath that seems to go away until <BR>

the <BR>

> > next day when it comes back around the same time again.  <BR>

> > <BR>

> > Is this normal for this to happen?  What does it mean?  In about a <BR>

> > week I will be starting MB12 shots and do those for a month and <BR>

then <BR>

> > add in tddmps.  <BR>

> > <BR>

> > Carolyn<BR>

<BR>

<BR>

<BR>

</tt>

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[Guest guest]

I had 4 removed. They said they could do the 4 at once because 1 was

large, but the other 3 were all small. What do you mean by did they

cross midline? Yes he used proper protocol. The cleanup tool,

activated characol, gazz in the back of my mouth, and a central vac to

catch the vapors. The dentist did amalgameter readings and did remove

the quadrant with the highest negative reading first. I don't have

any gold in my mouth. They replaced them with white composites. For

supplements I'm taking: zinc, b6, magnesium, vitamin c, pantathione

acid, probiotics, digestive enzymes, calcium, vitamin e, multi

vitamin, b complex, and coQ10.

Carolyn

[Guest guest]

Forgot to add in that the removal was done by a mercury free dentist.

Carolyn

[Guest guest]

Midline means the middle of your body, in line with your nose, so crossing

midline would mean removing some from the left side of your mouth and some from

the right. Sounds like he just did a quadrant?

S S

<tt>

I had 4 removed.  They said they could do the 4 at once because 1 was <BR>

large, but the other 3 were all small.  What do you mean by did they <BR>

cross midline?  Yes he used proper protocol.  The cleanup tool, <BR>

activated characol, gazz in the back of my mouth, and a central vac to <BR>

catch the vapors.  The dentist did amalgameter readings and did remove <BR>

the quadrant with the highest negative reading first.  I don't have <BR>

any gold in my mouth.  They replaced them with white composites.  For <BR>

supplements I'm taking: zinc, b6, magnesium, vitamin c, pantathione <BR>

acid, probiotics, digestive enzymes, calcium, vitamin e, multi <BR>

vitamin, b complex, and coQ10.<BR>

<BR>

Carolyn<BR>

<BR>

<BR>

<BR>

</tt>

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<tt>

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[Guest guest]

Just make sure you have plenty of folinic acid! My son never

tolerates ANY b-12...come to find out he has very little folonic

acid.

> Sorry I'm not going to skip the mb12 shots. I believe you need to

get

> methization working before chelating and that's what I'll be

doing.

> I'm not using tddmps because I want to be faddish. I decided on

using

> tddmps based on doing my own research on the internet, talking to

> others that have had experience chelating and using mb12. I don't

> believe there is one right thing to do anything. I believe in

> researching the possible treatments and choosing what I feel is

best

> for me. Oral dmps may be great for some people, but it may not be

the

> greatest for others. The same goes for the other way around. I

plan

> on getting better, but how does anyone know that mb12 shots may

not be

> the answer? I'm also interested in knowing how can you prove that

> tddmps every other day is not safe and tddmps every 8 hours is

safe?

> I haven't turned down either way of doing tddmps its just I don't

see

> anything proving that tddmps every otherday can be harmful. I've

seen

> lots of good results from that actually.

>

> Carolyn

[Guest guest]

I don't know for sure. 3 of them were all on one side and the other 1

was on the other side.

Carolyn

>

> Midline means the middle of your body, in line with your nose, so

crossing midline would mean removing some from the left side of your

mouth and some from the right. Sounds like he just did a quadrant?

> S S

[Guest guest]

> Its been about 1 1/2 months since I've got my amalgams removed. In

> the past 2 weeks my legs have been really achy,

For me, this means magnesium and potassium deficiency.

>>headaches, and more

> tired than usual.

For me, this means phenol intolerance and/or yeast overgrowth

http://www.danasview.net/phenol.htm

http://www.danasview.net/yeast.htm

It usually starts up in the late afternoon-early

> evening. If I do an espom salt bath that seems to go away until the

> next day when it comes back around the same time again.

This would mean it is likely phenol intolerance.

Dana

[Guest guest]

> I'm also interested in knowing how can you prove that

> tddmps every other day is not safe and tddmps every 8 hours is safe?

> I haven't turned down either way of doing tddmps its just I don't see

> anything proving that tddmps every otherday can be harmful. I've

seen

> lots of good results from that actually.

>

> Carolyn

Hi Carolyn,

The premise is to use chelation agents frequently enough

to keep a fairly steady level in the bloodstream---

First, I want to say that it applies to ANY chelation agent.

It is not something special made up for TD-DMPS.

Just making sure that is clear.

Also, the timing that is " wrong " is ANYTHING longer than

every 8 hours (for DMPS). Again, this isn't something where

it was made up by comparing 8 hours to every other day.

Rather, there are MANY ways to dosing " wrong " and it has

been done " wrong " a lot of ways, and a lot of times.

I needed to clarify that, that it is a GENERAL PREMISE,

before I go on to the proof part.

So, what proof is there that " wrong " dose timing is

dangerous? I would be hard pressed to PROVE IT and

I probably would not try. I mean with the existing

data. If someone wanted to do research, it would be

possible to compare in ways that would highlight this

aspect of things.

Okay, so what EVIDENCE is there?

You can start with reading DMPS backfire,

http://www.dmpsbackfire.com/default.shtml

which is a site about severe negative consequences of

using IV DMPS.

I've read lots of posts on this list (and on adult lists)

that have convinced me. That is actually what HAS

convinced me -- reading writing by people who have

personally USED both " correct " and " incorrect " timing.

There are quite a few adults around who've done this,

and also quite a few parents who have tried it with

their kids. Oh, there is a POLL about it on this list too.

Reading LARGE amounts of writing by people using " correct "

timing also has lead me to think that it is GENERALLY safe.

By SAFE I do not mean " no irritating side effects " or

" no problems " . I mean no HORRIFIC problems, and few

SERIOUS problems.

Finally, as regards people with great results using

TD-DMPS every other day, I have 2 comments:

1. I personally believe the reports I've read about

LOTS of chelation methods that I would not recommend.

That is: people have had GREAT results from most everything

I know of, including TD-DMPS, and cilantro, and eating

cabbage (sulfur), and taking products, and IV DMPS, too.

2. the glutathione in TD-DMPS *may* be significant for

some (or many) users. I don't know, but it may be a

factor.

If you go back to your statement " I don't see

> anything proving that tddmps every otherday can be harmful "

I would say that that IS the issue to consider--- not just

whether it helps some people, but also whether it harms

some.

good wishes,

Moria

[Guest guest]

My Husband had the chronic fever/chill/body ache thing. I would feel like a

bad flu but never any fever and would come and go quickly. He did have some

times where it would last 2-3 days. He had this for years.

-- [ ] Symptoms

Hi:

I'm new to the group and have a question. Has anyone had this

symptom? It's happened twice this summer. I suddenly come down with

body aches, the first time I hurt so bad that I could hardly walk.

Then I get the chills. I usually go to bed and by morning everything

is gone. It's only goes on for 1 day. The first time was in early

June and then it happened last week. Could it be Lymes? Should I be

tested and will a doctor listen to me and do a test.

Steve

[Guest guest]

That is a symptom I have had for about 12 years now.

The answers to your questions are yes, yes, and no. If you have been exposed to

Lyme it could be Lyme disease and you should be tested but it is hard to find an

doctor who will listen to you and who will do the testing corectly. I would

sugest that you go to your doctor and explain your concerns. Make sure that you

have not had any antibiotic treatment before they run the test for Lyme because

that will cause it to come back negative. Even if you have been exposed to Lyme

the test may come back negative anyway. It is very unreliable.

I there is a chance you have Lyme make sure they don't give you the standard

" one month of antibiltics " . It takes a lot longer.

I hope you don't have Lyme. I wouldn't wish this on anyone. Good luck.

Mac

Steve <steve614@...> wrote:

Hi:

I'm new to the group and have a question. Has anyone had this

symptom? It's happened twice this summer. I suddenly come down with

body aches, the first time I hurt so bad that I could hardly walk.

Then I get the chills. I usually go to bed and by morning everything

is gone. It's only goes on for 1 day. The first time was in early

June and then it happened last week. Could it be Lymes? Should I be

tested and will a doctor listen to me and do a test.

Steve

Lyme Disease News continually updated from thousands of sources around the net:

http://www.topix.net/health/lyme-disease

Questions and/or comments can be directed to the list owner at

-Owner

[Guest guest]

yes, yes and yes. See a LLMD and don't waste your time w/other drs.

sarah

[ ] Symptoms

> Hi:

>

> I'm new to the group and have a question. Has anyone had this

> symptom? It's happened twice this summer. I suddenly come down with

> body aches, the first time I hurt so bad that I could hardly walk.

> Then I get the chills. I usually go to bed and by morning everything

> is gone. It's only goes on for 1 day. The first time was in early

> June and then it happened last week. Could it be Lymes? Should I be

> tested and will a doctor listen to me and do a test.

>

> Steve

>

>

>

>

>

>

>

>

>

>

> Lyme Disease News continually updated from thousands of sources around the

net:

> http://www.topix.net/health/lyme-disease

>

> Questions and/or comments can be directed to the list owner at

-Owner

>

[Guest guest]

> From: " fsmfarms " <fsmfarms@...>

> See a LLMD and don't waste your time w/other drs.

Steve,

I agree with this suggestion.

What you've described could easily be symptoms of Lyme. I've experienced

that sort of thing.

Unfortunately, most doctors don't know anything accurate about tickborne

illness. Unless you go to someone who is a specialist in Lyme (LLMD,Lyme

Literate M.D.) you will likely be misdiagnosed and/or mistreated.

You could ask on this list for the name of an LLMD in your state, or

anywhere near your state. Many of us travel great distances to see

specialists.

Good luck.

Deanna

[Guest guest]

Hi Alysia. Welcome, I'm a responder to treatment so I

can't really help on this but I'm very sorry your so

sick. I hoope you feel better soon. Have you tried

treatment for the HepC?

Sharon

--- Alysia Childs <abchilds@...> wrote:

> I've had Hep C for about 6 years. But I also have

> type 2 diabetes,

> sleep apnea, depression and I'm morbidly obese. I

> am sick just about

> all the time meaning tired, weak and recently 3

> weeks or so of a low

> grade fever and sore throat. I don't know which

> problem I need to be

> worried about the most.

>

> How are you feeling?

>

>

>

>

__________________________________________________

[Guest guest]

I did the interferon thing about 4 or so years ago but it didn't work out. It looked like my levels were going down but then they shot back up again.Sharon Zeis <szeis_1@...> wrote: Hi Alysia. Welcome, I'm a responder to treatment so Ican't really help on this but I'm very sorry your sosick. I hoope you feel better soon. Have you triedtreatment for the HepC?Sharon--- Alysia Childs <abchildssbcglobal (DOT) net> wrote:> I've had Hep C for about 6 years.

But I also have> type 2 diabetes, > sleep apnea, depression and I'm morbidly obese. I> am sick just about > all the time meaning tired, weak and recently 3> weeks or so of a low > grade fever and sore throat. I don't know which> problem I need to be > worried about the most.> > How are you feeling?> > > > __________________________________________________