Fevers

[Guest guest]

I actually have low body temp--around 97.2F and that is supposed to be

hormone related. thyroid

<<

You know, this totally blows me away also. Every book I've ever read on RA

says that it is associated to low grade fevers. I get low grade fevers once

in awhile but not everytime I flare or herx. I can always tell when I have

one, as I get slightly chilled and my cheeks are flushed. It rarely goes

over 99.something. If I had not read this in all those books, I would of

been alarmed about the fevers because the drs. never once mentioned them.

Generally my main gripe is the awful fatigue and weakness. I have

absolutley no stamina anymore to do anything.

Carol

>>

[Guest guest]

Another thing to keep in mind about fevers--if you are taking NSAIDs, they

are lowering the fever, so what might be a low-grade 99.6 on the NSAID (or

Tylenol) could easily be 101 or 102 without it. I had the flu earlier this

winter, and found that Celebrex lowered my 102 fever to under 100.

I don't get fevers from arthritis anymore, but my rheumatologist confirmed

my observations a few years back.

Jean

> From: Carol <carscott@...>

> Date: Wed, 23 Feb 2000 11:48:41 -0800

> APsupport <rheumaticonelist>

> Subject: Re: rheumaticFevers

>

> From: Carol <carscott@...>

>

> You know, this totally blows me away also. Every book I've ever read on RA

> says that it is associated to low grade fevers. I get low grade fevers once

> in awhile but not everytime I flare or herx. I can always tell when I have

> one, as I get slightly chilled and my cheeks are flushed. It rarely goes

> over 99.something. If I had not read this in all those books, I would of

> been alarmed about the fevers because the drs. never once mentioned them.

> Generally my main gripe is the awful fatigue and weakness. I have

> absolutley no stamina anymore to do anything.

> Carol

>

[Guest guest]

Carol,

It is interesting that you get chilled and flushed cheeks with your fever

because with mine I just feel like a warm sensation in my upper body, mostly

face and chest and then it is gone. I am past menopause so I know it isn't

that. But my fevers, if that is what they are don't hang around long. I

sure don't mind them on a cold night, which is mostly when I get them. The

odd time I have a flush and my face is damp but not often. I have noticed

I don't get them nearly as much any more.

Carol, I have the weakness too but it seems to come and go. I can go a

long time, maybe months and be fine, then have a spell of weakness that

doesn't relate to any other symptom. I hope your doesn't last long. It

is a terrible feeling to not feel up to doing what you'd like. :>))

Bev

>

> You know, this totally blows me away also. Every book I've ever read on RA

> says that it is associated to low grade fevers. I get low grade fevers

once

> in awhile but not everytime I flare or herx. I can always tell when I have

> one, as I get slightly chilled and my cheeks are flushed. It rarely goes

> over 99.something. If I had not read this in all those books, I would of

> been alarmed about the fevers because the drs. never once mentioned them.

> Generally my main gripe is the awful fatigue and weakness. I have

> absolutley no stamina anymore to do anything.

> Carol

>

[Guest guest]

Hi Bev!!

Yours sound just like the hot flashes I get. Sometimes I get them that last

a hour or so. If I just get some place to cool off and can stay put long

enough they will go away. I don't think I have a fever during those. The

fevers are different, they feel more like coming down with the flu. The

weakness is worse at some times than others. Some days it is more than I

can do to walk through the house. Then other days I feel pretty good and

can go for a few hours before I need rest, and then it still isn't that

same weak, exhausted feeling. I just hate those days. The fevers don't seem

to last long either. I do know that in the stamina area, mine is pretty

bad. I can't do anything all day like I used to without resting but I think

that just goes with the RA. (Sad to say) They say that mine is not

menopause but I think they are nuts. I think my hormones fluxuate and when

they check them they are just okay. I've had hot flashes for over ten years

but according to the doctors I was too young for menopause. Yeah, right.

Going on the assumption that no one goes through menopause until they are

fifty I guess he would be right!

HUGS:)

Carol

At 04:51 PM 2/23/00 -0500, Briarwood wrote:

>Carol,

>It is interesting that you get chilled and flushed cheeks with your fever

>because with mine I just feel like a warm sensation in my upper body, mostly

>face and chest and then it is gone.

[Guest guest]

Hi Carol,

I had a girlfriend who started menopause at 38 and my sister in law started

hers at 43 so age after 35 doesn't seem to mean much at all. I think it

has to do with genetics because I started the same time as my mom had and it

lasted one year and was over with no fuss or bother at all. My RA started

about the same time. Carol, I hope you get over the fatigue soon. That

is one symptom I hate and am glad I rarely get it except during a flare or

herx. I have been feeling great since I cut my dose down. I didn't find

the flushes uncomfortable at all and seem to have them mostly in the winter.

Good deal eh!! Saves on heat. LOL I don't know if they are hormonal or

thyroid related but there must be an answer. I think they are RA related

for sure. When I was sitting yesterday, I had a flush episode and it just

came and went within seconds. It is so weird.

Bev

> Hi Bev!!

> Yours sound just like the hot flashes I get. Sometimes I get them that

last

> a hour or so. If I just get some place to cool off and can stay put long

> enough they will go away. I don't think I have a fever during those. The

> fevers are different, they feel more like coming down with the flu. The

> weakness is worse at some times than others. Some days it is more than I

> can do to walk through the house. Then other days I feel pretty good and

> can go for a few hours before I need rest, and then it still isn't that

> same weak, exhausted feeling. I just hate those days. The fevers don't

seem

> to last long either. I do know that in the stamina area, mine is pretty

> bad. I can't do anything all day like I used to without resting but I

think

> that just goes with the RA. (Sad to say) They say that mine is not

> menopause but I think they are nuts. I think my hormones fluxuate and when

> they check them they are just okay. I've had hot flashes for over ten

years

> but according to the doctors I was too young for menopause. Yeah, right.

> Going on the assumption that no one goes through menopause until they are

> fifty I guess he would be right!

> HUGS:)

> Carol

>

[Guest guest]

I've been talking about DHEA with Lisbeth. My worry is how much to take?

How much do you take and anyone else? I'm seeing my GP on Monday and

I'm going to ask him specifically what hormones were checked.

>I dont get the flushes anymore since I take the DHEA.

>

>

>

>--

[Guest guest]

My doc tests for DHEA and right now he recommends I take 25mg. I just

had labs done and he checked that and my thyroid and adreanls and will

tell me it I should take less.

Carol wrote:

>

> From: Carol <carscott@...>

>

> I've been talking about DHEA with Lisbeth. My worry is how much to take?

> How much do you take and anyone else? I'm seeing my GP on Monday and

> I'm going to ask him specifically what hormones were checked.

>

> >I dont get the flushes anymore since I take the DHEA.

> >

> >

> >

> >--

[Guest guest]

Ursula,

When we first took Kelsey to the doctor, one of the symptoms she was having

along with her joint pain and swelling was low grade fever (99-100) that

seemed to come and go, mostly in the late afternoons and evenings. Her

doctor told us that with jra (Kelsey has poly) this was normal. I can only

speak from our experiences with Kelsey, so hopefully you will get more info

from others in the group that can help you better.

Take care,

[Guest guest]

doesnt have a fever or we have not noticed one

she use to get the stress fevers years ago and it was unexplained

but i think some kids react differently

melissa had menigitis and only had a severe headache

Robbin

[Guest guest]

Robbin,

Did the menigitis bring out her jra? I've heard from several people that

they never had any arthritis until they had a bad infection or virus. Kelsey

had a severe case of the flu last year with a fever of 105.9... nearly had

pneumonia... and about a month later is when she started having problems with

her knee.

[Guest guest]

Robbin,

Did the meningitis bring out her jra? I've heard from several people that

they never had any arthritis until they had a bad infection or virus. Kelsey

had a severe case of the flu last year with a fever of 105.9... nearly had

pneumonia... and about a month later is when she started having problems with

her knee.

[Guest guest]

melissa had menigitis when she was 7 or 8 shes 13 now

but you know it could be right now anything is possible

but i do know her migraines resulted from this unless its the

jaw

Robbin

[Guest guest]

I also have low grade fevers from 99 to 100...rarely

normal. This just started happening along with the

arthritis.

Stef

--- Rainy <rainysu@...> wrote:

> Hi Pat,

>

> It's so good to see you here! Anyway, I also have

> fevers. My normal temp is 99 and 100. When I ge

> tRemicade the nurse freaks out! It's funny. I tell

> her, that is *my* normal temp bcs the RA causes it.

> She freaked last time when my temp was 98.5. Geez!

> Overly cautious? Good, but sometimes frustrating. At

> least Iknow I will be healthy under her thumbs!

>

> The other thing, ever since I was little, I would

> run really hig temps. Just BOOM out of the blue it

> would shoot up to 103, but the'd be gone the next

> morning. It makes me wonder WHEN I got JRA. I may

> have had a mild case of it up until 13 but it may

> have been triggered full blown after strep throat

> and AB's. The timing fits.

>

> ~RainySu

>

>

> <<< I ran low grade fevers for many years and my

> doctors all attributed them to

> the RA. Once I was on the gold shots, the fevers

> stopped. That seems to

> indicate that there was a connection. I had had the

> low grade fever for

> over 20 years.

>

> Pat>>>

>

>

> " What you see in front of you is the result of your

> own decisions. "

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

[Guest guest]

At first I thought I wrote this cause it looks like my type and a question I posed. Since then did a little checking in the drug guides. Fever/chills can be a side effect, although it was mentioned as less common. I think it is probably a common one though, since I see this mentioned a lot. It happened to me as well. Low grade about 99.9. Some flushing too.

One thing I thought of since then ... is this, when we have any foreign invader be it metals, virus or bacteria the immune system will try to remove it/fight it. When it goes through this process it can result in a fever.

I think that these fevers could be a combination of both side effect and immune system alert.

In a message dated 4/19/2001 5:15:44 PM Eastern Daylight Time, lauragirl1@... writes:

My son has been having occasional transient fevers (101-103) with no sign of obvious infection (throat, ears, etc.). Could this have anything to do with cheating? Thanks for your answers.

[Guest guest]

thanks for your reply kelly. it makes sense.

when rereading my question, I noticed my mis-spelling of "chelating".....I typed "cheating". Hope that didnt confuse anyone.

[Guest guest]

In a message dated 4/19/01 5:15:54 PM Eastern Daylight Time, lauragirl1@... writes:

My son has been having occasional transient fevers (101-103) with no sign of obvious infection (throat, ears etc). Could this have anything to do with chelating? Thanks for your answers.

This happens to my son too. Not sure what its about. It just happend about 3 weeks ago. I was told that it could be due to being toxic....note sure if its from chelating.

Sal's mom

[Guest guest]

no they just write it off as inflammation. they usually don't go over 100.

just enough to make you feel like crap. felt a little better. went shopping

with my son and mother in law, then went to lunch. now i am paying with a

headache, my ears feel pressure, my feet hurt and 99.3. i do this elevated

temp almost every day.

[Guest guest]

a virus like the heat acts as a vasodilator and increases blood flow

to the brain.

> I find this conversation of kids doing better during and shortly

after

> running a fever very interesting. We have a home sauna and have

done sauna

> treatments in cycles during the past few years and I've always

wondered if part of the

> reason Curt does better after one of the sauna cycles could be due

to an

> " induced fever " that helped surpress the virus. We haven't done a

round since he

> began seeing Dr. G but I'm going to ask his opinion of it and

probably do

> another round soon if he doesn't think it would interfere with his

other

> treatment. Have any of you explored this issue directly with Dr. G?

> Gaylen

>

> ______________________________

> ``````````````````````````````

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

> ```````````````````````````````````````

[Guest guest]

In a message dated 8/11/03 10:15:59 AM Central Daylight Time,

jeffb@... writes:

<< a virus like the heat acts as a vasodilator and increases blood flow

to the brain. >>

Maybe I'm remembering incorrectly, but I thought Dr. G had talked about the

body possibly limiting blood flow to the brain as a self-protective measure. I

could be misunderstanding his comments on that though. Can you point me

towards any info to help better understand a virus acting like a vasodilator?

Gaylen

______________________________

``````````````````````````````

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

```````````````````````````````````````

[Guest guest]

Kathy,

Roll up a towel. Place it inside the helmet so it is putting slight pressure on the inside. If you have a doc band close the velcro like you normally would and then put the towel inside the band. This "holds" its shape. Don't force it. You just want some light pressure like JT's head would provide.

HTH

Re: Fevers

Hi ,Jt has a fever, what do you mean put a towel in it? I am trying to figure it out now. Thanks for your post! Kathy (mom to JT DOC 10/30)> Hi All,> > Just wanted to post what our ortho told us on Monday about fevers. She said a lot of "her" babies were getting sick so she was trying to be proactive, even though I could call at any time.> > fever less than 101 (low grade) band can stay on with close monitoring> > fever over 101 band OFF and put a towel in the band so it holds its open shape as if it were on her head. This keeps it "stretched" out.> > HTH> > & naFor more plagio info

[Guest guest]

Hi ,

Jt has a fever, what do you mean put a towel in it? I am trying to

figure it out now. Thanks for your post! Kathy (mom to JT DOC 10/30)

--- In Plagiocephaly , " Filyaw " <filyaw@b...>

wrote:

> Hi All,

>

> Just wanted to post what our ortho told us on Monday about fevers.

She said a lot of " her " babies were getting sick so she was trying to

be proactive, even though I could call at any time.

>

> fever less than 101 (low grade) band can stay on with close

monitoring

>

> fever over 101 band OFF and put a towel in the band so it holds its

open shape as if it were on her head. This keeps it " stretched " out.

>

> HTH

>

> & na

[Guest guest]

, I'm glad your ortho is giving you precise instructions on

what to do when there is a fever involved.

Dustie

--- In Plagiocephaly , " Filyaw " <filyaw@b...>

wrote:

> Hi All,

>

> Just wanted to post what our ortho told us on Monday about fevers.

She said a lot of " her " babies were getting sick so she was trying to

be proactive, even though I could call at any time.

>

> fever less than 101 (low grade) band can stay on with close

monitoring

>

> fever over 101 band OFF and put a towel in the band so it holds its

open shape as if it were on her head. This keeps it " stretched " out.

>

> HTH

>

> & na

[Guest guest]

I had the same thing, it was the autoimmune disease.

Lynda

At 10:19 PM 6/13/2004, you wrote:

>Are the fevers your describing low grade temps or high? Fevers are a

>sign that your body is fighting something. The tests you mention

>about increased WBC and RBC counts are indicative of something going

>on infection wise,however those tests don't involve cultures

>necessarily, so a culture on the substance that was found in your

>body should have been performed. I would love to know more about your

>situation, like who did the surgery, and was it enbloc, with total

>capsulectomy etc. Also where are the implants now? Did they get

>analyzed? Are they being held somewhere in a proper storage container

>so that they can be further tested or did you take them home or did

>they get destroyed or what exactly did happen to them?

>I would in the meantime, eat lots of raw garlic to fight off any

>virul or fungal issues, and seek out a Dr willing to do further

>testing on your blood to see if your carrying some kind of virus or

>infection, then see about the possibility of antibiotic therapy.

>Possibly the long term type that several women on this site have been

>on.

>These are just a few ideas thrown out to help but I would need more

>information to give better advice.

>What were/are your other symptoms and have any of them improved since

>explant? Did you have any neurological stuff wrong with you?

>dizzyiness etc?

>keep us informed.

>We care

>Hugs

>

>

>

>

>

[Guest guest]

Lynda:

Exactly what autoimmune disease were you diagnosed with? Are you in

remition now? You mentioned the leaking silicone as being the cause

and I agree, that is why I am concerned that she did not have all the

capsule removed. Anyhow it is all variable. I know used to get

fevers all the time too, and I am not sure if they are all gone now

or not but I know she had them and never was really diagnosed with an

autoimmune disease. Anyhow,it can be so confusing. I never had any

fevers, but I did have the elevated ANA that I am sure had I waited

longer to remove the implants would have turned into something nasty.

thanks for your input

In , Lynda <coss@p...> wrote:

> I had the same thing, it was the autoimmune disease.

>

> Lynda

>

>

> At 10:19 PM 6/13/2004, you wrote:

> >Are the fevers your describing low grade temps or high? Fevers are

a

> >sign that your body is fighting something. The tests you mention

> >about increased WBC and RBC counts are indicative of something

going

> >on infection wise,however those tests don't involve cultures

> >necessarily, so a culture on the substance that was found in your

> >body should have been performed. I would love to know more about

your

> >situation, like who did the surgery, and was it enbloc, with total

> >capsulectomy etc. Also where are the implants now? Did they get

> >analyzed? Are they being held somewhere in a proper storage

container

> >so that they can be further tested or did you take them home or did

> >they get destroyed or what exactly did happen to them?

> >I would in the meantime, eat lots of raw garlic to fight off any

> >virul or fungal issues, and seek out a Dr willing to do further

> >testing on your blood to see if your carrying some kind of virus or

> >infection, then see about the possibility of antibiotic therapy.

> >Possibly the long term type that several women on this site have

been

> >on.

> >These are just a few ideas thrown out to help but I would need more

> >information to give better advice.

> >What were/are your other symptoms and have any of them improved

since

> >explant? Did you have any neurological stuff wrong with you?

> >dizzyiness etc?

> >keep us informed.

> >We care

> >Hugs

> >

> >

> >

> >

> >

[Guest guest]

The question would be which ones I have not been diagnosed with. I

really think that most of us have a lupus-like condition, but in 1994 I was

diagnosed with lupus. I have been diagnosed with mixed connective tissue

disease. I have been diagnosed with peripheral neuropathy. I have been

diagnosed with Raynaud's. I have been diagnosed with

Sjogren's. Fibromyalgia, Chronic Fatigue, etc. Take your pick. I do have

Fibromyalgia, and a lupus-like problem.

Lynda

At 10:36 PM 6/13/2004, you wrote:

>Lynda:

>Exactly what autoimmune disease were you diagnosed with? Are you in

>remition now? You mentioned the leaking silicone as being the cause

>and I agree, that is why I am concerned that she did not have all the

>capsule removed. Anyhow it is all variable. I know used to get

>fevers all the time too, and I am not sure if they are all gone now

>or not but I know she had them and never was really diagnosed with an

>autoimmune disease. Anyhow,it can be so confusing. I never had any

>fevers, but I did have the elevated ANA that I am sure had I waited

>longer to remove the implants would have turned into something nasty.

>thanks for your input

>

>

>

>

>

>

>In , Lynda <coss@p...> wrote:

> > I had the same thing, it was the autoimmune disease.

> >

> > Lynda

> >

> >

> > At 10:19 PM 6/13/2004, you wrote:

> > >Are the fevers your describing low grade temps or high? Fevers are

>a

> > >sign that your body is fighting something. The tests you mention

> > >about increased WBC and RBC counts are indicative of something

>going

> > >on infection wise,however those tests don't involve cultures

> > >necessarily, so a culture on the substance that was found in your

> > >body should have been performed. I would love to know more about

>your

> > >situation, like who did the surgery, and was it enbloc, with total

> > >capsulectomy etc. Also where are the implants now? Did they get

> > >analyzed? Are they being held somewhere in a proper storage

>container

> > >so that they can be further tested or did you take them home or did

> > >they get destroyed or what exactly did happen to them?

> > >I would in the meantime, eat lots of raw garlic to fight off any

> > >virul or fungal issues, and seek out a Dr willing to do further

> > >testing on your blood to see if your carrying some kind of virus or

> > >infection, then see about the possibility of antibiotic therapy.

> > >Possibly the long term type that several women on this site have

>been

> > >on.

> > >These are just a few ideas thrown out to help but I would need more

> > >information to give better advice.

> > >What were/are your other symptoms and have any of them improved

>since

> > >explant? Did you have any neurological stuff wrong with you?

> > >dizzyiness etc?

> > >keep us informed.

> > >We care

> > >Hugs

> > >

> > >

> > >

> > >

> > >