Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 In a message dated 3/25/2005 11:56:03 AM Central Standard Time, ggriffith@... writes: I just had an appointment with my neuro and brought up LDN. His response was that he had not heard of it. I am a little reluctant to try under that response. He has just upgrade my MS from rrms to secondary ppms. His is stopping my Betaseron and putting on Novantrone. My first enfussion is next week. I see so many people using LDN and with the success that they are having. I have fax all the info I cound find to my neuro and see what he says. 5 days after my getting my first Novantrone I will see him again. Would like as my info that I can get to take to him. G, It is no surprise that your Neuro has not heard of LDN. Most likely, after you send him/her the info, you won't be urged to try LDN. More than likely you will be discouraged from it. There are no perks in it for doctors. There is no profit in it for pharmaceuticals. The patent ran out a long time ago, and it is CHEAP! You are probably on your own where LDN is concerned. Research it. It's completely safe with little to no side effects. (Despite what the doc may say.) My neuro, too, recommended Novantrone. I took the info knowing that most likely I would not do it. I have visited with a couple of people who have tried it, and their comments convinced me for sure that I did NOT want to try it. They and myself are progressed to a point that the self-induction of sickness from chemo (Novantrone) did and would make taking care of ourselves too difficult. There is no guarantee that it will help anyway. I wish you the best whatever you decide! Research, research, and research LDN! It's the only thing to help me at all. Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 , Visit this site and you`ll get lots of testimonials. Lorna http://www.remedyfind.com/rem.asp?id=4393 -- [low dose naltrexone] Low Dose Naltrexone I just had an appointment with my neuro and brought up LDN. His response was that he had not heard of it. I am a little reluctant to try under that response. He has just upgrade my MS from rrms to secondary ppms. His is stopping my Betaseron and putting on Novantrone. My first enfussion is next week. I see so many people using LDN and with the success that they are having. I have fax all the info I cound find to my neuro and see what he says. 5 days after my getting my first Novantrone I will see him again. Would like as my info that I can get to take to him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 > > I just had an appointment with my neuro and brought up LDN. His > response was that he had not heard of it. I am a little reluctant > to try under that response. He has just upgrade my MS from rrms to > secondary ppms. His is stopping my Betaseron and putting on > Novantrone. My first enfussion is next week. I see so many people > using LDN and with the success that they are having. I have fax all > the info I cound find to my neuro and see what he says. 5 days > after my getting my first Novantrone I will see him again. Would > like as my info that I can get to take to him. ============= Novantrone cancels out all the effects of LDN. LDN is MUCH more safe than Novantrone. I'm sure you've read all about Novantrone. I would try to talk neuro into letting you try LDN before you try Novantrone. Novantrone will most likely not even be neccessary once you start LDN. Good luck, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Check these out : [low dose naltrexone] Low Dose Naltrexone I just had an appointment with my neuro and brought up LDN. His response was that he had not heard of it. I am a little reluctant to try under that response. He has just upgrade my MS from rrms to secondary ppms. His is stopping my Betaseron and putting on Novantrone. My first enfussion is next week. I see so many people using LDN and with the success that they are having. I have fax all the info I cound find to my neuro and see what he says. 5 days after my getting my first Novantrone I will see him again. Would like as my info that I can get to take to him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Very few doctors, let alone Nero's will prescribe LDN. Many of us have had the same experience. We decide to take control ourselves and boy am I glad that we did. We did the phone consult with Dr. Bihari, but you might be able to call someone else. Dr. Bihari is $500 for the 1st appt. then $250 for follow-ups. Dr. Weeks stated that he charges $300. for the first appt. and I don't know what his follow up fees are. Personally I would rather utilize LDN with a doctor that is already utilizing LDN and knows the ins-and-outs. My best Aletha [low dose naltrexone] Low Dose Naltrexone > > > I just had an appointment with my neuro and brought up LDN. His > response was that he had not heard of it. I am a little reluctant > to try under that response. He has just upgrade my MS from rrms to > secondary ppms. His is stopping my Betaseron and putting on > Novantrone. My first enfussion is next week. I see so many people > using LDN and with the success that they are having. I have fax all > the info I cound find to my neuro and see what he says. 5 days > after my getting my first Novantrone I will see him again. Would > like as my info that I can get to take to him. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 What? I'm shocked. Wow , why haven't we heard of this before? What is it exactly? How do you think it works? HOW does it boost the immune system, while at the same time relieve so many illnesses? How did this doc discover this? Why aren't these questions answered on the website? Here's a couple of links to sites with posts from people who've been doing it. http://www.friendswithms.com/low_dose_naltrexone.htm http://neuro-mancer.mgh.harvard.edu/ubb/Forum249/HTML/007271.html And here's a checklist of the illnesses it supposedly is beneficial for. http://www.digitalnaturopath.com/treat/T74481.html I tried to find some kind of quack watch info on Dr. Bihari, but didn't find anything. Nothing other than they seemed to have turned their research attention to using LDN for AIDS. I don't understand, the website explains nothing about how it works, or why it works for so many symptoms. ON the other hand, people seem to report good results, and I can't see how there's any money being made. The website simply says to ask your doc to prescribe it for you, and it sounds fairly reasonably priced compared to a lot of drugs. Sounds like quite a few MS patients have been put on it. I'm completely flummoxed by this. Maybe we need to look into both this doctor and this LDN stuff a little more? penny > Yo, anyone hear of pulsing this opioid antagonist overnight as an > immunomodulator? It came up at CFSexp. > > http://www.low dose naltrexone.org/ldn_and_ai.htm > > Definitely has that familiar > too-good-to-be-true-and-underground-at-once feel, but I'm interested > in learning more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Sure. Theres no reason a discovery presenting itself as this one does *couldnt* be for real. However, my standards for accepting this stuff at face value are going to be pretty high. The first thing I would want to know is: what are the plans for formal research and publication, and is there some reason they arent underway already? I know of one very legitimate medical discoverer who (last I checked anyway) was more interested in getting the word out thru channels other than formal research. But only one. Actually probably two. This drug, which you take at night and which should be mostly eliminated by the time you wake up, blocks opioid receptors. Ie, it binds to them without activating them, and prevents endogenous (meaning " from within " ie natural) opioid molecules from binding and activating them. One of the things opioids do via binding to their receptors is exert negative feedback on their own production. (This is the case with one zillion important biomolecules). Therefore this drug would be expected to cause levels of endogenous opioids to rise. Opioid signalling would be therefore be increased during the day, but would be decreased at night while the drug was present. What this would do to the IS, I do not know, tho some leucocytes express opioid receptors I think. Leucocytes are also suceptible to influences coming from the nervous system via various soluble molecules, and opioids can certainly change affairs in the nervous system. If this really does have merit in AIDS, that would be most interesting, because I think viral counts are commonly taken during AIDS monitoring. It would be interesting to see data especially if compared to data for people of comparable age and general health addressing HIV thru HAART (hihgly active anti-retroviral therapy) alone. So yeah, lets take a scientific look at it. I may be too busy tho for a while yet. <pennyhoule@y...> wrote: > What? I'm shocked. Wow , why haven't we heard of this before? > > What is it exactly? How do you think it works? HOW does it boost the > immune system, while at the same time relieve so many illnesses? How > did this doc discover this? Why aren't these questions answered on > the website? > > Here's a couple of links to sites with posts from people who've been > doing it. > > http://www.friendswithms.com/low_dose_naltrexone.htm > > http://neuro-mancer.mgh.harvard.edu/ubb/Forum249/HTML/007271.html > > And here's a checklist of the illnesses it supposedly is beneficial > for. > > http://www.digitalnaturopath.com/treat/T74481.html > > I tried to find some kind of quack watch info on Dr. Bihari, but > didn't find anything. Nothing other than they seemed to have turned > their research attention to using LDN for AIDS. > > I don't understand, the website explains nothing about how it works, > or why it works for so many symptoms. ON the other hand, people seem > to report good results, and I can't see how there's any money being > made. The website simply says to ask your doc to prescribe it for > you, and it sounds fairly reasonably priced compared to a lot of > drugs. Sounds like quite a few MS patients have been put on it. > > I'm completely flummoxed by this. > > Maybe we need to look into both this doctor and this LDN stuff a > little more? > > penny > > > > > > Yo, anyone hear of pulsing this opioid antagonist overnight as an > > immunomodulator? It came up at CFSexp. > > > > http://www.low dose naltrexone.org/ldn_and_ai.htm > > > > Definitely has that familiar > > too-good-to-be-true-and-underground-at-once feel, but I'm > interested > > in learning more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Dear All I tried naltrexone with no observable effect over several months Regards Windsor [infections] low dose naltrexone Yo, anyone hear of pulsing this opioid antagonist overnight as animmunomodulator? It came up at CFSexp.http://www.low dose naltrexone.org/ldn_and_ai.htmDefinitely has that familiartoo-good-to-be-true-and-underground-at-once feel, but I'm interestedin learning more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Penny, Not only have we heard of this before (LDN) but some of us have tried it (several times). Someone who used to be a member of this list and many others even had a page on his website on LDN . http://www.users.on.net/~julian.robinson/cfs/naltrexone.htm#results I tried it twice, once years ago and once for 3 weeks a couple of years ago but I had to stop as I experienced terrible headaches, vertigo, worsening of cognitive problems, heart malaise etc. I also felt sleepy (which was good, in a way, because I usually have trouble falling asleep, was sleeping very long hours on LDN). I am quite certain it was the LDN. I want to give it another try some time as all the symptoms I got on LDN are the same as the symptoms I get on abx that appear to "work" like Tinidazole but which get too much after a few days. Nelly [infections] Re: low dose naltrexone What? I'm shocked. Wow , why haven't we heard of this before? What is it exactly? How do you think it works? HOW does it boost the immune system, while at the same time relieve so many illnesses? How did this doc discover this? Why aren't these questions answered on the website?Here's a couple of links to sites with posts from people who've been doing it.http://www.friendswithms.com/low_dose_naltrexone.htmhttp://neuro-mancer.mgh.harvard.edu/ubb/Forum249/HTML/007271.htmlAnd here's a checklist of the illnesses it supposedly is beneficial for.http://www.digitalnaturopath.com/treat/T74481.htmlI tried to find some kind of quack watch info on Dr. Bihari, but didn't find anything. Nothing other than they seemed to have turned their research attention to using LDN for AIDS. I don't understand, the website explains nothing about how it works, or why it works for so many symptoms. ON the other hand, people seem to report good results, and I can't see how there's any money being made. The website simply says to ask your doc to prescribe it for you, and it sounds fairly reasonably priced compared to a lot of drugs. Sounds like quite a few MS patients have been put on it.I'm completely flummoxed by this.Maybe we need to look into both this doctor and this LDN stuff a little more?penny> Yo, anyone hear of pulsing this opioid antagonist overnight as an> immunomodulator? It came up at CFSexp.> > http://www.low dose naltrexone.org/ldn_and_ai.htm> > Definitely has that familiar> too-good-to-be-true-and-underground-at-once feel, but I'm interested> in learning more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 wow, Nelly. I'm still in shock. I don't know why I haven't heard of it. Maybe because I took quite a hiatus from the CFS forums. So, I read the list of side effects. They don't look so good, like the possibility of headaches like yours. But it seems people have had good results. Do you have any info on why? The website seems really sketchy. penny > > Yo, anyone hear of pulsing this opioid antagonist overnight as an > > immunomodulator? It came up at CFSexp. > > > > http://www.low dose naltrexone.org/ldn_and_ai.htm > > > > Definitely has that familiar > > too-good-to-be-true-and-underground-at-once feel, but I'm > interested > > in learning more. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 I have been on LDN for a few months. I originally started it for viral reactiviation symptoms (mononucleosis). It helped them a bit but hasn't done anything for my regular CFS symptoms. Speaking to pwMS they have told me that for them LDN doesn't usually cause an improvement of symptoms but rather just stops further decline. [infections] low dose naltrexone Yo, anyone hear of pulsing this opioid antagonist overnight as animmunomodulator? It came up at CFSexp.http://www.low dose naltrexone.org/ldn_and_ai.htmDefinitely has that familiartoo-good-to-be-true-and-underground-at-once feel, but I'm interestedin learning more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 I will be interested in what you find out about how and why it works. I have been taking low dose Naltrexone (compounded locally) for awhile now, and like it -- I miss it when I have run out. I tried it based on the reports of good response in MS patients. Trying to explain what it feels like it does is difficult. It seems mood-altering, such that I wake up cheerier than I would otherwise. Also I feel less " sleep drunk " when I wake up, not so heavy, off balance, and " out of it, " generally. It hasn't changed the numbness in my hands/feet, tinnitus, or other symptoms. Timing seems to be key. If I take it too early it doesn't seem to work. I'm a night owl, (typical I've heard of mercury/adrenally messed up people), and when I'm up past midnight and take it right before I go to sleep it works best. Anyway, there's my experience for FWIW. Jess > > > Yo, anyone hear of pulsing this opioid antagonist overnight as an > > > immunomodulator? It came up at CFSexp. > > > > > > http://www.low dose naltrexone.org/ldn_and_ai.htm > > > > > > Definitely has that familiar > > > too-good-to-be-true-and-underground-at-once feel, but I'm > > interested > > > in learning more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 LDN blocks the bodys production of endorphins for a few hours. Once the blockade wears off the body produces higher levels of endorphins and this stimulates the immune system particularly NK cells. [infections] Re: low dose naltrexone >I will be interested in what you find out about how and why it works. > > I have been taking low dose Naltrexone (compounded locally) for > awhile now, and like it -- I miss it when I have run out. I tried it > based on the reports of good response in MS patients. > > Trying to explain what it feels like it does is difficult. It seems > mood-altering, such that I wake up cheerier than I would otherwise. > Also I feel less " sleep drunk " when I wake up, not so heavy, off > balance, and " out of it, " generally. It hasn't changed the numbness > in my hands/feet, tinnitus, or other symptoms. > > Timing seems to be key. If I take it too early it doesn't seem to > work. I'm a night owl, (typical I've heard of mercury/adrenally > messed up people), and when I'm up past midnight and take it right > before I go to sleep it works best. > > Anyway, there's my experience for FWIW. > > Jess > > > > > > > >> > > Yo, anyone hear of pulsing this opioid antagonist overnight as > an >> > > immunomodulator? It came up at CFSexp. >> > > >> > > http://www.low dose naltrexone.org/ldn_and_ai.htm >> > > >> > > Definitely has that familiar >> > > too-good-to-be-true-and-underground-at-once feel, but I'm >> > interested >> > > in learning more. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 That's really interesting! I'd like to find some good info and take it to my doc. See what he thinks. He's so kind hearted and is always open to anything that could help his sicker patients improve their quality of life. He gets all the really desperate ones who've been written off by everybody else. That's why he was cool with the Benicar, and excited by the results (approx 50% responded well), although not impressed by the rigidity of the related protocol. I haven't seen him for a while to find out who's still on the Benicar besides me. penny > >> > > Yo, anyone hear of pulsing this opioid antagonist overnight as > > an > >> > > immunomodulator? It came up at CFSexp. > >> > > > >> > > http://www.low dose naltrexone.org/ldn_and_ai.htm > >> > > > >> > > Definitely has that familiar > >> > > too-good-to-be-true-and-underground-at-once feel, but I'm > >> > interested > >> > > in learning more. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2005 Report Share Posted May 24, 2005 Penny, maybe you missed my reply on CFSFMexperimental yesterday. There is a ton of information on LDN at this link: http://keephopealive.org.master.com/texis/master/search/?q=nal trexone & s=SS Dan > > >> > > Yo, anyone hear of pulsing this opioid antagonist overnight > as > > > an > > >> > > immunomodulator? It came up at CFSexp. > > >> > > > > >> > > http://www.low dose naltrexone.org/ldn_and_ai.htm > > >> > > > > >> > > Definitely has that familiar > > >> > > too-good-to-be-true-and-underground-at-once feel, but I'm > > >> > interested > > >> > > in learning more. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 Yes, I did get it. Thanks very much. I'm curious why you aren't doing it. Perhaps you answered there? I'll check later. penny > > > >> > > Yo, anyone hear of pulsing this opioid antagonist > overnight > > as > > > > an > > > >> > > immunomodulator? It came up at CFSexp. > > > >> > > > > > >> > > http://www.low dose naltrexone.org/ldn_and_ai.htm > > > >> > > > > > >> > > Definitely has that familiar > > > >> > > too-good-to-be-true-and-underground-at-once feel, > but I'm > > > >> > interested > > > >> > > in learning more. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2005 Report Share Posted May 25, 2005 I tried it during a very tumultuous time about 3 years ago. So many different things were going on (including my doctor moving away to Minnesota), plus I was trying so many other things, it was hard for me to tell if or what was helping. I didn't know about the effect on NK cells so if I can afford it at some time (and it is pretty cheap) I may try it again. d. > > > > >> > > Yo, anyone hear of pulsing this opioid antagonist > > overnight > > > as > > > > > an > > > > >> > > immunomodulator? It came up at CFSexp. > > > > >> > > > > > > >> > > http://www.low dose naltrexone.org/ldn_and_ai.htm > > > > >> > > > > > > >> > > Definitely has that familiar > > > > >> > > too-good-to-be-true-and-underground-at-once feel, > > but I'm > > > > >> > interested > > > > >> > > in learning more. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 We are also new to this group and are starting LDN tonight on our five and half year old PDD-NOS son tonight. We could also use any available info and insight possible. Thanks [low dose naltrexone] LOW DOSE NALTREXONE Hi everyone, I am new to this group. My dan dr is suggesting I try Low Dose Naltrexone with my 3 yr old daugher who has PDD-NOS. I know this is new for Autism but I was wondering if anyone has tried this with their young children (3-4) and what the positive/negative results were. I am told that the first 3-7 days there is more stimming,some screaming etc but it all wears off. I am wondering if anyone has had this experience. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 My heart goes out to you. I worked with Boy Scouts nearly 20 years, much of it during the time our boys were growing up. I had the occasion to have 2 families over the years involved with autistic children. I truly, truly wish the very best in your search. I will dig some things up for you, but here is a place to start. www.autisme.net/Autism%20and%20Nutrition.htm If this is not the very best article on the web about autism, it is then the second best. It is not short and sweet, but covers the whole field very well. I am sorry but it is 71 pages long. It is courtesy of a great friend and wonderful researcher White at the Brewer Science Library in Richland Center, Wisconsin who pulled this off the top of her head. If you need help understanding, please feel free to email me and I will help as best I can. Digging around in the back reaches of the mind, there was a doctor in Illinois who works at the Pheiffer (I think) foundation, who had over 500 children's blood samples tested who all had autism. In all but 5 or 6 of them, they found a problem with an enzyme that depended on zinc. I will think on this a while and put something to email when I do. Bruce Guilmette, Ph.D. Survive Cancer Foundation, Inc. http://www.survivecancer.net From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Petsos Sent: Thursday, July 21, 2005 8:37 PM low dose naltrexone Subject: RE: [low dose naltrexone] LOW DOSE NALTREXONE We are also new to this group and are starting LDN tonight on our five and half year old PDD-NOS son tonight. We could also use any available info and insight possible. Thanks [low dose naltrexone] LOW DOSE NALTREXONE Hi everyone, I am new to this group. My dan dr is suggesting I try Low Dose Naltrexone with my 3 yr old daugher who has PDD-NOS. I know this is new for Autism but I was wondering if anyone has tried this with their young children (3-4) and what the positive/negative results were. I am told that the first 3-7 days there is more stimming,some screaming etc but it all wears off. I am wondering if anyone has had this experience. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 In a message dated 7/21/2005 10:53:01 PM Central Daylight Time, bruce@... writes: My heart goes out to you. I worked with Boy Scouts nearly 20 years, much of it during the time our boys were growing up. I had the occasion to have 2 families over the years involved with autistic children. I truly, truly wish the very best in your search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2005 Report Share Posted July 22, 2005 Thanks Bruce for the information. We are both on LDN. It is 7:00 a.m. right now and our little guy is still sleeping; so far so good. We will see how his day goes on his first dose. I, on the other hand, took the full dose last night at 9:10 pm and got up at 2:15 a.m. and have been up ever since. My head is extremely “foggy/fuzzy” feeling, yet overall I do not fee exhausted. I heard that this is a normal reaction for some, right? In time, this will level off and I will be able to sleep through the night, correct? Just curious. [low dose naltrexone] LOW DOSE NALTREXONE Hi everyone, I am new to this group. My dan dr is suggesting I try Low Dose Naltrexone with my 3 yr old daugher who has PDD-NOS. I know this is new for Autism but I was wondering if anyone has tried this with their young children (3-4) and what the positive/negative results were. I am told that the first 3-7 days there is more stimming,some screaming etc but it all wears off. I am wondering if anyone has had this experience. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2005 Report Share Posted July 30, 2005 This board might be of interest to both of you. Autism_LDN/ dathejula > We are also new to this group and are starting LDN tonight on our five > and half year old PDD-NOS son tonight. We could also use any available > info and insight possible. Thanks > > > > [low dose naltrexone] LOW DOSE NALTREXONE > > Hi everyone, I am new to this group. My dan dr is suggesting I try Low > Dose Naltrexone with my 3 yr old daugher who has PDD-NOS. I know this > is new for Autism but I was wondering if anyone has tried this with > their young children (3-4) and what the positive/negative results were. > I am told that the first 3-7 days there is more stimming,some screaming > etc but it all wears off. I am wondering if anyone has had this > experience. Thanks! > > > > > > _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 > > Hello everybody. > My name is james and i am looking for a doctor who would give me a > prescription for ldn as my wife irene has been diagnosed with ALS > early stages and would be very thankfull if someone could let me know. > Not many i see that have tried ldn for als but would like contact off > them it their there. > I also was recently diagnosed as being in the early stages of ALS. I asked my neurologist about ldn, and he said that it's worth a try. I have only been on it for just over three weeks now, so I can't say a lot regarding it's effectiveness yet. However, I do feel as if I have more energy (despite having a side effect of difficulty in awakening in the morning). You and your wife are more than welcome to contact me privately if you would like. I know this can be a scary time for both of you. I can be contacted at bbddcat@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 An online friend with MS said it was the thing that reversed almost all of his symptoms -- except the fatigue... d. > > Is anyone on this list familiar with low dose naltrexone or using it? > > Thanks, > a Carnes > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2009 Report Share Posted May 24, 2009 I can so relate to those suffering with ankylosing spondylitis. I was diagnosed with it two years after I got the RA diagnosis. My rheumy said I was in more pain than he would expect with just the RA. Duh . .. . I had to go to another rheumy that dug deeper and found the Spondy, fibro, psoriasis as well. So I've tried nearly every pharmaceutical out there with poor results. Most of the time the reactions were worse than the disease. I was taking hydrocodone and hardly able to walk. Nothing worse than waking up every day with neck, back, hip, knees and foot pain. Started to look for natural medications. Started on bioidentical hormones and felt vastly better. BTW, they check men's hormone level and can prescribe what's missing. You would be amazed at how much better you can feel. Then I went to some vitamins and minerals which were missing - including Vit. D and omega fatty acids which help inflammation. The final piece for me was to start on low dose naltrexone. I was skeptical but when you've tried and failed with the BIG drugs, and given the hopelessness I felt, I went forward. It's taken me about two to three months to feel as good as I do. I unerstand it can take longer for others. I'm not taking any BIG drugs and I'm not on any pain meds except for an ibubro. occasionally. I have some food allergies and pay attention to that and I was full of yeast from all the drugs and antibiotics I had taken. Got that cleared out and things got better every day. Obviously many MD's won't prescribe it when they have an " understanding " with the pharmaceutical companies . . . but you can find them. I have an MD who is also a naturopath. Here is the link to the webpage http://www.low dose naltrexone.org/ and there are some groups on . Do a search through google and you can find other information. It's worth a look and maybe a try if you are as fed up as you sound and as I was. K Quote Link to comment Share on other sites More sharing options...
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