humira

[Guest guest]

Hi Jeanine,

I could be wrong, but I think you'll be the first in the group to start

it. Alan is planning on starting, but I don't think he has yet. I'm

really interested to hear how it goes for you, though. My rheumy wants

me on it, too, although I get the Remicade for free until summer and I'm

going to wait until then.

I'll say a prayer that it's your " wonder drug " .

Love and hugs,

Carol

[ ] Humira

Ok, saw the rheumy yesterday because things are so sore right now. We

are

dumping Arava and Enbrel and switching to Humira. I am still taking 5mg

of

pred a day, and hoping/needing to get off it. The Humria should be here

on

Monday. Is anyone else taking it? If so, what do you thing.

Jeanine in FL

[Guest guest]

Jeanine

I am taking part in a drug study testing something called an IL-1

trap. This isn't quite what Humira is, but it is the same

generation. If that makes any sense. my experience has been that

the drug takes a good week to take effect, and in my case I really

could stand to be taking it more than 1x week. It does work, but so

far the effects have been subtle. Mostly a decrease in the blahs, (

that horrible apathy that is sooo hard to describe. ) I have also

noticed a real decrease in the background pain. You know the

constant aches/pain that is just a fact of life? That has decreased

dramatically. Has it turned back the clock? No, 'fraid not, but I

do feel better, less pain overall, less redness and swelling, and my

mood is much better than it has been in a long, long time. It is

not the magic bullet that Kineret was, but it works far better than

Prednisone, and MTX alone.

I hope your experience is better than my mostly lukewarm

response...

--- In , " Jeanine Kinsey " <jckinsey@b...>

wrote:

> Ok, saw the rheumy yesterday because things are so sore right

now. We are

> dumping Arava and Enbrel and switching to Humira. I am still

taking 5mg of

> pred a day, and hoping/needing to get off it. The Humria should

be here on

> Monday. Is anyone else taking it? If so, what do you thing.

>

> Jeanine in FL

[Guest guest]

Sorry you've been having such a bad flare, Jeanine! I hope Humira works

very well for you.

[ ] Humira

> Ok, saw the rheumy yesterday because things are so sore right now. We

are

> dumping Arava and Enbrel and switching to Humira. I am still taking

5mg of

> pred a day, and hoping/needing to get off it. The Humria should be

here on

> Monday. Is anyone else taking it? If so, what do you thing.

>

> Jeanine in FL

[Guest guest]

Jeanne,

Good luck with the Humira. It comes from a good company, Abbott

Labs. Of course, I'm just a little biased since my husband worked

there 37 years and I worked there 15 years!

Judi

[Guest guest]

This is great Jeanine. I hope it helps you. I believe you are the first.

Let us know how it goes.

a

> Ok, saw the rheumy yesterday because things are so sore right now. We are

> dumping Arava and Enbrel and switching to Humira. I am still taking 5mg of

> pred a day, and hoping/needing to get off it. The Humria should be here on

> Monday. Is anyone else taking it? If so, what do you thing.

>

> Jeanine in FL

>

>

>

>

[Guest guest]

Good report, Jeanine. Did you like the design of the syringe? How was

the needle?

Hope you feel the difference soon.

[ ] Humira

> Well, I can't believe it was that easy! I got the Humira this

afternoon,

> and just used the first dose. The first advantage is that it is

pre-mixed,

> and already in the syringe! That save me lots of hassle already. The

one

> thing I did notice is that there is more medicine in each dose. It

burned

> more and I had to go a little slower. I am sure that the next one

won't be

> so bad, now that I know. I'll keep you all posted. Don't we just

love

> being guinea pigs?

>

> Jeanine

[Guest guest]

Jeanine,

Could you tell me how to get humira quickly? I called Abbot (I have doctor's

rx) but Abbot says I must go through approval...paperwork, etc.

any advice?

thanks

Joanne

[Guest guest]

Thanks for the info. I believe since I am on Medicare and meet the low income

limits, I can receive it for free....just waiting now

Joanne

[Guest guest]

Sorry Alan. I had hoped the Humira would be good since the Enbrel helped.

It may be a blessing that you can¹t take prednisone. The side effects are

just so bad.

Have you tried Kineret? I can understand the need to vent. Watching your

body

deteriorate is awful. Try to keep the faith that you will find something.

a

> Hi everyone,

>

> I have been on it now for 7 weeks and, unfortunately, it's not

> providing the miracle relief Enbrel did. I am experiencing fatigue,

> pain in my joints and my hands are cold and clammy. My index fingers

> are also starting to slowly bow towards my little finger. Luckily I

> have x-rays and gallium scans from year's ago to serve as a baseline.

> It's not dramatic to say the least but noticable.

>

> I have read that the affects of Humira can be realized as quickly as

> a week after the first injection. I don't know if I should remain

> patient or ask my rheumy to move on. I really cannot take Prednisone

> again and probably shouldn't risk Enbrel. I LOVE THIS DISEASE!!!

>

> Sorry, just felt the need to vent... It's a very frustrating

> experience.

>

> Hope everyone is doing well.

>

> Hugs,

>

> Alan

>

>

>

[Guest guest]

Hi a,

Thank you very much. I was kind of hoping as well. I am actually

happy that I can't take prednisone regularly anymore, as twisted as

that sounds. It helped my body but the price was too costly.

No, I have not tried Kineret. In fact, it has never been discussed as

an option. I'll talk to my rheumy about it thanks.

I will definitely keep the faith. Like everyone in this group, I am

in this for the long haul.

Take care a and thanks again!

Love and hugs,

Alan

> Sorry Alan. I had hoped the Humira would be good since the Enbrel

helped.

> It may be a blessing that you can¹t take prednisone. The side

effects are

> just so bad.

>

> Have you tried Kineret? I can understand the need to vent.

Watching your

> body

> deteriorate is awful. Try to keep the faith that you will find

something.

> a

>

>

>

>

> > Hi everyone,

> >

> > I have been on it now for 7 weeks and, unfortunately, it's not

> > providing the miracle relief Enbrel did. I am experiencing

fatigue,

> > pain in my joints and my hands are cold and clammy. My index

fingers

> > are also starting to slowly bow towards my little finger. Luckily

I

> > have x-rays and gallium scans from year's ago to serve as a

baseline.

> > It's not dramatic to say the least but noticable.

> >

> > I have read that the affects of Humira can be realized as quickly

as

> > a week after the first injection. I don't know if I should remain

> > patient or ask my rheumy to move on. I really cannot take

Prednisone

> > again and probably shouldn't risk Enbrel. I LOVE THIS DISEASE!!!

> >

> > Sorry, just felt the need to vent... It's a very frustrating

> > experience.

> >

> > Hope everyone is doing well.

> >

> > Hugs,

> >

> > Alan

> >

> >

> >

[Guest guest]

Hi ,

I have been on Humira for 7 weeks now. I have yet to feel the

positive affects of it but my Rhemy is hopeful it will kick in by 10

weeks. The only nagative for me is that it tends to give me mild

headaches, a common side effect.

I'll keep you updated about my progress with it.

Hope you are doing well.

Hugs,

Alan

--- In , " grannyfellx6 " <grannyfellx6@y...>

wrote:

> Hello Everyone! It has been months since I have posted and I have

> not been able to keep up with all the posts, I have a lot of

reading

> to do. I am back on dial-up and really miss DSL (, I don't get

to

> spend as much time online these days.

> I went to see a new rheumatologist yesterday and he wants me to

> try Humira, I really don't have a chose since I have tried

everything

> else and nothing but Methotrexate works and it is backing off. He

> said he has been impressed by Humira in the people who have tried

it,

> he also said it has only been approved since October. Has anyone

in

> the group tried this?

> I did read about Judi's triplets, congradulations. I also read

> that Tess is not feeling well, hope that changes soon.

> I hadn't planned to post until I had a chance to read more

> messages but was wondering about the Humira.

> We have moved into a duplex in Prineville, a nice new one and I

> love it, we miss Wenatchee, but love being close to our kids and

> grandkids. Next week is spring vacation for my Sherwood grandkids

so

> they are coming to visit (bringing mom along), next week will be

> crazy but we will love every minute of it.

> Hope this finds everyone well and painfree.

>

> in Central Oregon ( in WA)

[Guest guest]

> Hi ,

>

> I have been on Humira for 7 weeks now. I have yet to feel the

> positive affects of it but my Rhemy is hopeful it will kick in by

10

> weeks. The only nagative for me is that it tends to give me mild

> headaches, a common side effect.

>

> I'll keep you updated about my progress with it.

>

> Hope you are doing well.

>

> Hugs,

>

> Alan

>

>

Thanks Alan, I hope that it kicks in for you. I am not sure what to

expect but I really haven't got a choice since nothing has worked and

the Methotrexate is backing off. I am hoping this might be the one

but so many haven't worked it is sorta scary. The doctor said it is

my immune system blocking them from working, I really don't have

trouble catching all the stuff that goes around, so my immune system

must be pretty strong.

I will keep an eye out for your posts, I am so far behind I will

never catch up.

Thanks again, in Central Oregon

[Guest guest]

! So good to hear from you again. It's great that you can be closer

to your children and grandchildren now. I'm glad to hear that you like

your new home.

Good luck with Humira. You will be one of our pioneers. It's definitely

worth a try to see if it will help. Sorry that the MTX seems to be

losing it's effectiveness.

Don't worry. Other things will be coming.

PS. Forget about trying to catch up, LOL!!!! Heidi's pregnant. Did you

see that?

[ ] Humira

> Hello Everyone! It has been months since I have posted and I have

> not been able to keep up with all the posts, I have a lot of reading

> to do. I am back on dial-up and really miss DSL (, I don't get to

> spend as much time online these days.

> I went to see a new rheumatologist yesterday and he wants me to

> try Humira, I really don't have a chose since I have tried everything

> else and nothing but Methotrexate works and it is backing off. He

> said he has been impressed by Humira in the people who have tried it,

> he also said it has only been approved since October. Has anyone in

> the group tried this?

> I did read about Judi's triplets, congradulations. I also read

> that Tess is not feeling well, hope that changes soon.

> I hadn't planned to post until I had a chance to read more

> messages but was wondering about the Humira.

> We have moved into a duplex in Prineville, a nice new one and I

> love it, we miss Wenatchee, but love being close to our kids and

> grandkids. Next week is spring vacation for my Sherwood grandkids so

> they are coming to visit (bringing mom along), next week will be

> crazy but we will love every minute of it.

> Hope this finds everyone well and painfree.

>

> in Central Oregon ( in WA)

[Guest guest]

Hi ,

I hope you find the relief you need and will definitely keep you

posted on my progress.

Take care.

Hugs,

Alan

--- In , " grannyfellx6 " <grannyfellx6@y...>

wrote:

> --- In , " Alan " <kb9vrq@y...>

wrote:

> > Hi ,

> >

> > I have been on Humira for 7 weeks now. I have yet to feel the

> > positive affects of it but my Rhemy is hopeful it will kick in by

> 10

> > weeks. The only nagative for me is that it tends to give me mild

> > headaches, a common side effect.

> >

> > I'll keep you updated about my progress with it.

> >

> > Hope you are doing well.

> >

> > Hugs,

> >

> > Alan

> >

> >

> Thanks Alan, I hope that it kicks in for you. I am not sure what

to

> expect but I really haven't got a choice since nothing has worked

and

> the Methotrexate is backing off. I am hoping this might be the one

> but so many haven't worked it is sorta scary. The doctor said it

is

> my immune system blocking them from working, I really don't have

> trouble catching all the stuff that goes around, so my immune

system

> must be pretty strong.

>

> I will keep an eye out for your posts, I am so far behind I will

> never catch up.

>

> Thanks again, in Central Oregon

[Guest guest]

Hi Alan,

Sorry to hear that you are not feeling as well as expected with this med. I

seem to be having the same prob with the Remicade. It just wears off too

soon for me. It is so frustrating. Especially now that the weather is

starting to change for the good. I find myself isolating and not wanting to

leave the house on many days. I hope that you and your drs. can find

something that works better for you.

By the way, I just loved the pic of you and the car.

Love ya

Stacey

[Guest guest]

(((((((((((((((((((((((STACEY!!!!!)))))))))))))))))))))))

How are you my dear? It's been way too long. Yeah, the Humira really

hasn't done much for me yet. I am still ever hopeful though. Sorry to

hear the Remicade is wearing off. I am glad to hear that your diet is

going well. That's wonderful!

Hopefully you will get the relief you so need and be able to run

around when the weather gets better (if it does...).

Thanks for the comment about me and my car. When are you going to

post a picture? It would be great to have a face to go with the name.

I think of you and Wyatt quite a bit and am so glad you wrote.

Love,

Alan

> Hi Alan,

> Sorry to hear that you are not feeling as well as expected with

this med. I

> seem to be having the same prob with the Remicade. It just wears

off too

> soon for me. It is so frustrating. Especially now that the

weather is

> starting to change for the good. I find myself isolating and not

wanting to

> leave the house on many days. I hope that you and your drs. can

find

> something that works better for you.

>

> By the way, I just loved the pic of you and the car.

>

> Love ya

> Stacey

>

>

>

[Guest guest]

Welcome back !!!!!!! I¹ve though about you and wondered how life is

treating you in your new home.

I haven¹t tried Humira, but I hope it helps you.

a

> Hello Everyone! It has been months since I have posted and I have

> not been able to keep up with all the posts, I have a lot of reading

> to do. I am back on dial-up and really miss DSL (, I don't get to

> spend as much time online these days.

> I went to see a new rheumatologist yesterday and he wants me to

> try Humira, I really don't have a chose since I have tried everything

> else and nothing but Methotrexate works and it is backing off. He

> said he has been impressed by Humira in the people who have tried it,

> he also said it has only been approved since October. Has anyone in

> the group tried this?

> I did read about Judi's triplets, congradulations. I also read

> that Tess is not feeling well, hope that changes soon.

> I hadn't planned to post until I had a chance to read more

> messages but was wondering about the Humira.

> We have moved into a duplex in Prineville, a nice new one and I

> love it, we miss Wenatchee, but love being close to our kids and

> grandkids. Next week is spring vacation for my Sherwood grandkids so

> they are coming to visit (bringing mom along), next week will be

> crazy but we will love every minute of it.

> Hope this finds everyone well and painfree.

>

> in Central Oregon ( in WA)

>

>

>

[Guest guest]

Great news, Laine!

[ ] Humira

> I have been on Humira for a few doses now. My Rheumatologist said it

would be about a month or so before I saw any measureable results.

>

> There is a long story behind this statement, but what I have noticed

is that I am no longer going 'downhill' and in fact am seeing some

positive signs....hands are better....wrists are a little better, etc.

>

> Good luck! Were you on any biologicals before Humira?

> Laine

[Guest guest]

Welcome, Pris!

We don't have too many people on Humira right now, but I hope it works

for you soon.

[ ] Humira

> I have just started Humira 3 weeks ago, but have have neither goof

effects

> or bad ones!

> Is anyone else taking it? How has it been?

> Pris

[Guest guest]

,

I'm so glad it went well and you had no reactions. I hope it is effective

for you. It's scary being at the end of the rope. I was that way when

Enbrel came out, but lucky for me it was effective. There are still more

meds in the making, so try not to stress.

How is Kobe doing?

a

> Finally took my first Humira injection, last Friday, it turned out to

> be easy, didn't burn, thank goodness. Now I am hoping it will work

> since they haven't got anything new out since Humira. I have been

> having a lot of trouble with my neck for the last week and a half so

> it is kinda scarey if it doesn't work.

>

> Thanks for the help with the Humira questions.

>

> Hope this finds everyone painfree, well it is worth a try anyway.

>

> in Central Oregon

[Guest guest]

Good luck, ! I hope Humira works for you and helps your neck.

Did you ever ask your doc about blood in the syringe?

[ ] Humira

> Finally took my first Humira injection, last Friday, it turned out to

> be easy, didn't burn, thank goodness. Now I am hoping it will work

> since they haven't got anything new out since Humira. I have been

> having a lot of trouble with my neck for the last week and a half so

> it is kinda scarey if it doesn't work.

>

> Thanks for the help with the Humira questions.

>

> Hope this finds everyone painfree, well it is worth a try anyway.

>

> in Central Oregon

[Guest guest]

Hi , I asked my doctors nurse if she would show me how to give

the injection, I have been trained on all the others. She was even

willing to come to my house to get me started. It was much easier

than I thought it would be. She had me pull back on the plunger ever

so slightly, the solution didn't sting me at all, now just hoping it

works.

Thanks, in Central Oregon

[Guest guest]

Good luck Tess,

I started Humira two months ago and it brought my sed rate down

from the 40's to normal at 10.

Mike

> Hi sweet people...I started Humira today. I pray it works.

>

> Love...

>

> Tess

[Guest guest]

good luck tess

[Guest guest]

I hope it works, too, Tess!

[ ] Humira

> Hi sweet people...I started Humira today. I pray it works.

>

> Love...

>

> Tess