Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 I've been on Humira since summer. It has really helped me. I have also experienced the burning you described. I inject into my upper thigh - I've heard that the stomach area is a lot less sensitive, but I just can't get used to that idea!!! Anyway, I try to find an area that has more " fat " , rather than muscle. I've noticed that the burning is a lot less this way. I inject very slowly, stopping momentarily when it begins to burn, waiting until the burning subsides, then starting again. After the injection, I don't move my leg for about 5 minutes. You can find LOTS of information at www.humira.com , and also from other people in this group. There is also an 800# in the literature inside the box that you can call. They ask you a million questions, then are VERY helpful to explain anything you don't understand. I would recommend you call them to report the burning. Good luck! Vikki [ ] Humira I am new to the group (female, 47) and am looking for information on Humira. I have been diagnosed with RA (almost two year ago) and have been through many different meds. I suspect I have had symptoms for years but when a friend was diagnosed with RA and Lupus and told me her symptoms, that is when I was also diagnosed. Without her I would probably have gone on several more years wondering what was wrong. I was just prescribed Humira a month ago. Thursday will be my third injection. It is VERY painful, burns really bad. I am now going to try a topical anesthetic to see if that will reduce some of the burning. The manufacturer said it was most probably the citric acid in the serum causing the burning. They suggest I also try numbing with ice before the injection. I have already seem some improvement in my hands (the next day after the first injection) and my right knee has improved. I know it can take several months to see if the drug will work so I am hopeful that seeing these small improvements so quickly is a positive sign. A friend recently told me the ice really helps her and that she gets her injection in the back, underside of her arm. She said that really is much better for her. Any suggestions would be greatly appreciated. Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 I'm with you, I just can't get used to the idea of getting the shot in the stomach, even though I have plenty of fat there! Can the shot be given in the back of the thigh or just in the front? Seems like there is more fat in the back whereas the front is muscle. Becky [ ] Humira I am new to the group (female, 47) and am looking for information on Humira. I have been diagnosed with RA (almost two year ago) and have been through many different meds. I suspect I have had symptoms for years but when a friend was diagnosed with RA and Lupus and told me her symptoms, that is when I was also diagnosed. Without her I would probably have gone on several more years wondering what was wrong. I was just prescribed Humira a month ago. Thursday will be my third injection. It is VERY painful, burns really bad. I am now going to try a topical anesthetic to see if that will reduce some of the burning. The manufacturer said it was most probably the citric acid in the serum causing the burning. They suggest I also try numbing with ice before the injection. I have already seem some improvement in my hands (the next day after the first injection) and my right knee has improved. I know it can take several months to see if the drug will work so I am hopeful that seeing these small improvements so quickly is a positive sign. A friend recently told me the ice really helps her and that she gets her injection in the back, underside of her arm. She said that really is much better for her. Any suggestions would be greatly appreciated. Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 I did notice that the last few days I had more pain in my knee. Today I was sitting on the floor and couldn't get up. I will try leaving it out for 1/2 hour tomorrow. I really want to try to give it to myself but I'm not ready for that yet. Were you able to give yourself the shot at the beginning or did it take a while? Do you take anything for the fatigue? I am taking Provigil and it really helps a lot. One day I forgot to take it and I was wondering what was wrong with me. It makes a huge difference for me. I am able to go right to sleep at night with no problem at all, it doesn't keep you from sleeping at night at all. My insurance would not pay for it and it's expensive ($175 a month) but I've been appealing it for quite a while. I finally was able to get it covered last month because the FDA expanded the labeling for it. Now I'm trying to get the appeal through from before so that the insurance company will reimburse me from the past 7 months. Becky [ ] Humira I have been on Humira since September 2003. I find that if I take the syringe out and let it sit at room tempature for about 30 minutes it really helps with the stinging problem. I am doing really well with this medication. My doctor had previously tried Methotroxate and Embrel injects but I am allegic to both of them. When I took the third injection of Embrel, within an hour I had a large red welt on the injection site by late morning I also had the red welts at the other two injection site. I called that doctor and he wanted to see me immediately. They gave me an injection and told me to incease the predisone. Since then I've been on Humira, it is really working well the only thing is that the effects of it do not last the two weeks. Between the 11th and 14th day the fatigue and pain begins to increase daily until I take the next dose. Esther Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 I am on the Enbrel and that is given the same way as the Humira. In a subcutaneous injection. I rotate my sites with each dose. My plan is left thigh, then left side of stomach, left arm, then the same process on the right side. For doing my upper arms I place my uppper arm against a corner door frame or wall and this kind of pushes the side of the arm towards the front and kind of gathers it too. Then I inject. All places work out just fine, but I do have to say that the stomach is the better of the 3. Terri [ ] Humira > I just gave my 1st injection of my 4th month of Humira, which is my 7th injection. I think I'm on about the same schedule as Tess. It took almost 3 months before I noticed any improvement, but it's a definite improvement. My swelling is MUCH less, I have a range of motion with my hands and feet that I haven't had for almost a year. The pain I've had for months has subsided considerably. > Because my 29 yr. old son is an insulin dependent diabetic and recommended injecting into my abdomen, I tried that from the beginning. I also inject very slow, stop when it begins to burn, then begin again. I also pinch some skin between my fingers where I inject. I do not push the entire needle under the skin, probably about half of it. A couple of injections ago I decided to try another injection place, so I went to my thigh. That HURT!! Honestly, it was much more painful. I can remember when my son was in his teens and his doctor trying to get him to rotate injection sites from stomach to thighs to the back of his arms. If you could reach the back of your upper arm, that is suppose to be the second less painful next to the abdomen I understand now why he always rotated around his abdomen It isn't an issue with him now as he has an insulin pump and it isn't with me because I'm giving 2 shots a month and I change sides. Try it, you'll like it!! > I see my Rheumy tomorrow and I'm filling out forms for help from Abbott to pay for the Humira. My insurance pays $1500 per calendar year for prescription drugs, and I've already passed it. Costco is the best price on Humira, but it is still $1180.00 for 2 injections. Giant is $1689.00 but they will meet any other pharmacy price. I use Costco because I want to use a pharmacy that doesn't have the mark-up as great as most of them. I'll let you know anything I hear from Abbott. In order to apply for aid, you must go through your doctor. > God bless all of you, I don't post often, but I read post daily. Thanks for all the info, laughs, recipes, and most of all, your support!! Sending love out to all!! > Colleen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 I know I need to try my stomach but I guess it's just the thought of it that is making it very difficult. Tonight I will attempt that for my third shot, with the topical anesthetic for the first time. Becky [ ] Humira > I just gave my 1st injection of my 4th month of Humira, which is my 7th injection. I think I'm on about the same schedule as Tess. It took almost 3 months before I noticed any improvement, but it's a definite improvement. My swelling is MUCH less, I have a range of motion with my hands and feet that I haven't had for almost a year. The pain I've had for months has subsided considerably. > Because my 29 yr. old son is an insulin dependent diabetic and recommended injecting into my abdomen, I tried that from the beginning. I also inject very slow, stop when it begins to burn, then begin again. I also pinch some skin between my fingers where I inject. I do not push the entire needle under the skin, probably about half of it. A couple of injections ago I decided to try another injection place, so I went to my thigh. That HURT!! Honestly, it was much more painful. I can remember when my son was in his teens and his doctor trying to get him to rotate injection sites from stomach to thighs to the back of his arms. If you could reach the back of your upper arm, that is suppose to be the second less painful next to the abdomen I understand now why he always rotated around his abdomen It isn't an issue with him now as he has an insulin pump and it isn't with me because I'm giving 2 shots a month and I change sides. Try it, you'll like it!! > I see my Rheumy tomorrow and I'm filling out forms for help from Abbott to pay for the Humira. My insurance pays $1500 per calendar year for prescription drugs, and I've already passed it. Costco is the best price on Humira, but it is still $1180.00 for 2 injections. Giant is $1689.00 but they will meet any other pharmacy price. I use Costco because I want to use a pharmacy that doesn't have the mark-up as great as most of them. I'll let you know anything I hear from Abbott. In order to apply for aid, you must go through your doctor. > God bless all of you, I don't post often, but I read post daily. Thanks for all the info, laughs, recipes, and most of all, your support!! Sending love out to all!! > Colleen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Good luck with the application. Have you tried appealing it through your department of insurance in your state? They are great at assisting whenever possible. Becky [ ] Humira I just gave my 1st injection of my 4th month of Humira, which is my 7th injection. I think I'm on about the same schedule as Tess. It took almost 3 months before I noticed any improvement, but it's a definite improvement. My swelling is MUCH less, I have a range of motion with my hands and feet that I haven't had for almost a year. The pain I've had for months has subsided considerably. Because my 29 yr. old son is an insulin dependent diabetic and recommended injecting into my abdomen, I tried that from the beginning. I also inject very slow, stop when it begins to burn, then begin again. I also pinch some skin between my fingers where I inject. I do not push the entire needle under the skin, probably about half of it. A couple of injections ago I decided to try another injection place, so I went to my thigh. That HURT!! Honestly, it was much more painful. I can remember when my son was in his teens and his doctor trying to get him to rotate injection sites from stomach to thighs to the back of his arms. If you could reach the back of your upper arm, that is suppose to be the second less painful next to the abdomen I understand now why he always rotated around his abdomen It isn't an issue with him now as he has an insulin pump and it isn't with me because I'm giving 2 shots a month and I change sides. Try it, you'll like it!! I see my Rheumy tomorrow and I'm filling out forms for help from Abbott to pay for the Humira. My insurance pays $1500 per calendar year for prescription drugs, and I've already passed it. Costco is the best price on Humira, but it is still $1180.00 for 2 injections. Giant is $1689.00 but they will meet any other pharmacy price. I use Costco because I want to use a pharmacy that doesn't have the mark-up as great as most of them. I'll let you know anything I hear from Abbott. In order to apply for aid, you must go through your doctor. God bless all of you, I don't post often, but I read post daily. Thanks for all the info, laughs, recipes, and most of all, your support!! Sending love out to all!! Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Becky: I do give myself the Humira shots. The doctor's nurse told us how to give the injection. She recommended the thigh or the stomach and told us to alternate the sites. I give myself the injection in the thighs, I tried the stomach and find the thigh more comfortable for me. I think it is just a matter of personal preference. When I give myself the injection I sit on the edge of the bed with my legs hanging over. I pinch the thigh area together and insert the needle. I release the pinched area when I start to inject the medicine. I try not to sit, kneel or lay on the floor unless there is something to grab onto nearby to help me get up. In answer to your question about fatigue. When my rhmy doctor diagnosed me with RA he put me on 20 mg prednisone once a day, 50 mg tramadol 4 times per day and methoroxate pills. The swelling went down but the pain and fatigue continued. Nothing he gave me took the pain and fatigue away so my husband asked me to go see his doctor (an internist) and see what he thought (my husband had already told Dr. Santavanez about my problems). When I went to see the doctor he asked me how I was feeling and asked me to point out the areas that were giving me problems and asked me how much sleep I got. After examining me the told me that he thought I had fibromalga in addition to RA. He ordered more blood work and x-rays and when he got the results he told me that I did have fibro and that I also has osteoarthiritis. He prescribed calcium tablets, temazepan and amitriptyline at bedtime and 7.5 mg of hydrocodone in morning and afternoon. When I took the first dose of medicine I slept for almost 48 hours, I just couldn't stay awake. I called the doctor and he reduce the temazepan by half and that has worked fine. I had serveral follow-ups with dr. santavanez and I was doing much better and I was so fatigued all the time. When I went to see my rhmy he got his nose really out of joint when I told him how well I had been feeling. I told about dr. santavanez's diagnoses and the meds that he was prescribing and that I had been feeling much better since I went to see dr. santavanez. I was very obvious that he didn't like that at all because he told me that he was already treating me for fibro and he asked me what meds the other doctor had put me on. I have been back to see the rhmy since then. Esther > I did notice that the last few days I had more pain in my knee. Today I was sitting on the floor and couldn't get up. I will try leaving it out for 1/2 hour tomorrow. I really want to try to give it to myself but I'm not ready for that yet. Were you able to give yourself the shot at the beginning or did it take a while? Do you take anything for the fatigue? I am taking Provigil and it really helps a lot. One day I forgot to take it and I was wondering what was wrong with me. It makes a huge difference for me. I am able to go right to sleep at night with no problem at all, it doesn't keep you from sleeping at night at all. My insurance would not pay for it and it's expensive ($175 a month) but I've been appealing it for quite a while. I finally was able to get it covered last month because the FDA expanded the labeling for it. Now I'm trying to get the appeal through from before so that the insurance company will reimburse me from the past 7 months. > > Becky > [ ] Humira > > > I have been on Humira since September 2003. I find that if I take > the syringe out and let it sit at room tempature for about 30 > minutes it really helps with the stinging problem. I am doing > really well with this medication. My doctor had previously tried > Methotroxate and Embrel injects but I am allegic to both of them. > When I took the third injection of Embrel, within an hour I had a > large red welt on the injection site by late morning I also had the > red welts at the other two injection site. I called that doctor and > he wanted to see me immediately. They gave me an injection and told > me to incease the predisone. Since then I've been on Humira, it is > really working well the only thing is that the effects of it do not > last the two weeks. Between the 11th and 14th day the fatigue and > pain begins to increase daily until I take the next dose. > > Esther > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 Becky,....I too am on Humira, and haven't injected in my stomach yet. I might try on my next injection, I hope the anesthetic helps you, Tawny > I know I need to try my stomach but I guess it's just the thought of it that is making it very difficult. Tonight I will attempt that for my third shot, with the topical anesthetic for the first time. > > Becky > [ ] Humira > > > > I just gave my 1st injection of my 4th month of Humira, which is my 7th > injection. I think I'm on about the same schedule as Tess. It took almost 3 > months before I noticed any improvement, but it's a definite improvement. My > swelling is MUCH less, I have a range of motion with my hands and feet that > I haven't had for almost a year. The pain I've had for months has subsided > considerably. > > Because my 29 yr. old son is an insulin dependent diabetic and recommended > injecting into my abdomen, I tried that from the beginning. I also inject > very slow, stop when it begins to burn, then begin again. I also pinch some > skin between my fingers where I inject. I do not push the entire needle > under the skin, probably about half of it. A couple of injections ago I > decided to try another injection place, so I went to my thigh. That HURT!! > Honestly, it was much more painful. I can remember when my son was in his > teens and his doctor trying to get him to rotate injection sites from > stomach to thighs to the back of his arms. If you could reach the back of > your upper arm, that is suppose to be the second less painful next to the > abdomen I understand now why he always rotated around his abdomen It isn't > an issue with him now as he has an insulin pump and it isn't with me because > I'm giving 2 shots a month and I change sides. Try it, you'll like it!! > > I see my Rheumy tomorrow and I'm filling out forms for help from Abbott to > pay for the Humira. My insurance pays $1500 per calendar year for > prescription drugs, and I've already passed it. Costco is the best price on > Humira, but it is still $1180.00 for 2 injections. Giant is $1689.00 but > they will meet any other pharmacy price. I use Costco because I want to use > a pharmacy that doesn't have the mark-up as great as most of them. I'll let > you know anything I hear from Abbott. In order to apply for aid, you must go > through your doctor. > > God bless all of you, I don't post often, but I read post daily. Thanks > for all the info, laughs, recipes, and most of all, your support!! Sending > love out to all!! > > Colleen > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 I'll post after I get the shot and see if it helped any. Becky [ ] Humira > > > > I just gave my 1st injection of my 4th month of Humira, which is my 7th > injection. I think I'm on about the same schedule as Tess. It took almost 3 > months before I noticed any improvement, but it's a definite improvement. My > swelling is MUCH less, I have a range of motion with my hands and feet that > I haven't had for almost a year. The pain I've had for months has subsided > considerably. > > Because my 29 yr. old son is an insulin dependent diabetic and recommended > injecting into my abdomen, I tried that from the beginning. I also inject > very slow, stop when it begins to burn, then begin again. I also pinch some > skin between my fingers where I inject. I do not push the entire needle > under the skin, probably about half of it. A couple of injections ago I > decided to try another injection place, so I went to my thigh. That HURT!! > Honestly, it was much more painful. I can remember when my son was in his > teens and his doctor trying to get him to rotate injection sites from > stomach to thighs to the back of his arms. If you could reach the back of > your upper arm, that is suppose to be the second less painful next to the > abdomen I understand now why he always rotated around his abdomen It isn't > an issue with him now as he has an insulin pump and it isn't with me because > I'm giving 2 shots a month and I change sides. Try it, you'll like it!! > > I see my Rheumy tomorrow and I'm filling out forms for help from Abbott to > pay for the Humira. My insurance pays $1500 per calendar year for > prescription drugs, and I've already passed it. Costco is the best price on > Humira, but it is still $1180.00 for 2 injections. Giant is $1689.00 but > they will meet any other pharmacy price. I use Costco because I want to use > a pharmacy that doesn't have the mark-up as great as most of them. I'll let > you know anything I hear from Abbott. In order to apply for aid, you must go > through your doctor. > > God bless all of you, I don't post often, but I read post daily. Thanks > for all the info, laughs, recipes, and most of all, your support!! Sending > love out to all!! > > Colleen > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 My cousin has fibromyalgia. I'm going to ask my doctor to check me for it. This group is great, I am getting so much information and help. Thank you! Becky [ ] Humira > > > I have been on Humira since September 2003. I find that if I take > the syringe out and let it sit at room tempature for about 30 > minutes it really helps with the stinging problem. I am doing > really well with this medication. My doctor had previously tried > Methotroxate and Embrel injects but I am allegic to both of them. > When I took the third injection of Embrel, within an hour I had a > large red welt on the injection site by late morning I also had the > red welts at the other two injection site. I called that doctor and > he wanted to see me immediately. They gave me an injection and told > me to incease the predisone. Since then I've been on Humira, it is > really working well the only thing is that the effects of it do not > last the two weeks. Between the 11th and 14th day the fatigue and > pain begins to increase daily until I take the next dose. > > Esther > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 I got my third shot of Humira last night, using the topical anesthetic. The anesthetic made no difference at all, I didn't feel the needle but the needle never bothered me before. It still burned really bad. I put it in the fatty part of my thigh. I wanted to do my stomach but really panicked at the time and couldn't do it. My husband ended up giving it to me in my leg. I know it burns and I was really worked up before even doing the shot. Somehow I have to get myself over the panic. Becky [ ] Humira > > > I have been on Humira since September 2003. I find that if I take > the syringe out and let it sit at room tempature for about 30 > minutes it really helps with the stinging problem. I am doing > really well with this medication. My doctor had previously tried > Methotroxate and Embrel injects but I am allegic to both of them. > When I took the third injection of Embrel, within an hour I had a > large red welt on the injection site by late morning I also had the > red welts at the other two injection site. I called that doctor and > he wanted to see me immediately. They gave me an injection and told > me to incease the predisone. Since then I've been on Humira, it is > really working well the only thing is that the effects of it do not > last the two weeks. Between the 11th and 14th day the fatigue and > pain begins to increase daily until I take the next dose. > > Esther > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Hi Becky! I am new to this group and saw your post about the burning of Humira injections. If I am repeating any advice you've already gotten, please forgive! I haven't had a chance to see all the postings yet. I took Humira for a year (with great results initially) and I hated the injections. They burned terribly! Even though the burning didn't last long, it was so severe! I hate needles anyway so I always dreaded the injection. Anyway, I tried an ice pack on the injection site BEFORE and after the injection and that helped some---I figure it just distracted me since it was numbing me LOL!! Also I found that taking my shot out of the 'fridge and letting it set at room temp for about an hour before injecting helped a lot. My dr said that it wouldn't hurt the medicine to be out of fridge for that amount of time. I hope this will help you some. Good luck! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 Thanks, I'm going to try numbing it next time with an ice pack. I think the ice will probably distract me as ice really hurts my skin! The anesthetic did not help. I hate needles too but believe it or not, it is not the needle that bothers me at all. I actually cannot feel the needle. Makes no sense to me! Why did you quit taking the Humira? Did it quit working for you? If so, did the manufacturer know why? I just assume if it works it will continue to work. But, many other meds that worked for me stopped working. I left it out for 15 minutes the first two times, 30 for the last time. I try longer next time. This is the first injection where I had no bruising. I asked the manufacturer (talked to customer service and safety) why this cannot be in pill for and they said the stomach enzymes will kill the medication or something like that. They are working on a new form of injections, something that will be easier like just pushing a button. I don't know what that means but they are working on it. I told them to work on the burning! She said it would not be this year before there were changes but it would happen eventually. In the meantime, they want everyone experiencing the severe burning to call them so they can document it. That is the best way to get changes as soon as possible. I told them to change their video. I don't know if you've seen it but it shows how easy it is to self inject. There is a woman who looks happy giving herself an injection in the right side of her stomach. She doesn't flinch or anything. I told the safety department that she is either not injecting Humira or maybe not even injecting herself at all! I would think that for any illegal drug addicts that use needles, if they would burn as bad as Humira does, there would be no drug abuse! Becky [ ] Re: Humira Hi Becky! I am new to this group and saw your post about the burning of Humira injections. If I am repeating any advice you've already gotten, please forgive! I haven't had a chance to see all the postings yet. I took Humira for a year (with great results initially) and I hated the injections. They burned terribly! Even though the burning didn't last long, it was so severe! I hate needles anyway so I always dreaded the injection. Anyway, I tried an ice pack on the injection site BEFORE and after the injection and that helped some---I figure it just distracted me since it was numbing me LOL!! Also I found that taking my shot out of the 'fridge and letting it set at room temp for about an hour before injecting helped a lot. My dr said that it wouldn't hurt the medicine to be out of fridge for that amount of time. I hope this will help you some. Good luck! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2004 Report Share Posted February 16, 2004 My husband gave it to me slow Thursday but I didn't realize to start and stop. I'm glad you told me it was 10 times! Maybe that will make a difference. How did they react when it started to burn? Did it seem unbearable pain or just a little sting? Becky [ ] Humira Hi all I have been busy making all the required appointments done before my cataract is removed on March 3. On Friday I was down at the hospital in the drug study section. Three ladies were there getting their Humira injections(Humira is still on study here in Canada), I found something of interest that may help the ones on this list that complain about the pain and burning. They inject the needle and start pushing in the drug in. As soon as the burning starts, they stop, wait a couple of seconds, then push in a little more and they keep doing this until finished. One of the patients is a friend of mine and she stopped and started 10 times, but as she said, no burning or pain. Hope this helps someone. Hugs June PS Make sure it is near room temperature before you start. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Hi Becky, all three said it hurt like he..l. My friend said it was much worse than the Anakinra that she used to take. Hugs June [ ] Humira Hi all I have been busy making all the required appointments done before my cataract is removed on March 3. On Friday I was down at the hospital in the drug study section. Three ladies were there getting their Humira injections(Humira is still on study here in Canada), I found something of interest that may help the ones on this list that complain about the pain and burning. They inject the needle and start pushing in the drug in. As soon as the burning starts, they stop, wait a couple of seconds, then push in a little more and they keep doing this until finished. One of the patients is a friend of mine and she stopped and started 10 times, but as she said, no burning or pain. Hope this helps someone. Hugs June PS Make sure it is near room temperature before you start. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2004 Report Share Posted February 17, 2004 Well, I'm not happy to hear that it hurt them, but, misery loves company! I'm anxious to hear about the changes they have in store for Humira for the future. I was told it probably won't be this year, though. Becky [ ] Humira Hi all I have been busy making all the required appointments done before my cataract is removed on March 3. On Friday I was down at the hospital in the drug study section. Three ladies were there getting their Humira injections(Humira is still on study here in Canada), I found something of interest that may help the ones on this list that complain about the pain and burning. They inject the needle and start pushing in the drug in. As soon as the burning starts, they stop, wait a couple of seconds, then push in a little more and they keep doing this until finished. One of the patients is a friend of mine and she stopped and started 10 times, but as she said, no burning or pain. Hope this helps someone. Hugs June PS Make sure it is near room temperature before you start. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2004 Report Share Posted October 3, 2004 Hi Pat, Would like to welcome you to the group. I take Humira, but I do not have any problems with it. Do you take Methotrexate also, I know sometimes you can get mouth sores with that med? I'm sure you will hear from other's taking the Humira. hugs Tawny > > > Hi everyone, I'm new to this group and I have been reading all the past posts. > I have RA an Fibro but my question is about the RA. I have started taking > Humira and have had great results with my Ra. But, and there is always a but. > I have been having health problems because the Humira has compromised > my immune system so much. First I have swollen and weepy eyes. The Doc > said it was seasonal allergies. I've never had it before. This morning I woke > up with Oral Thrush and have to take medicine for it. I told my Doc that I am > thinking of quiting Humira. She said that I should be patient and see if these > health problems become chronic. Has anyone had the same experience with > Humira? I would sure like to think I can get over this hurdle. > Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Hi Pat and welcome to the group. I take Humira, mtx, folic acid and I am almost done weaning off prednisone. I started the Humira in January and have not had any side effects other than slight injection site reaction. How long have you been taking Humira? Jennie > > > Hi everyone, I'm new to this group and I have been reading all the past posts. > I have RA an Fibro but my question is about the RA. I have started taking > Humira and have had great results with my Ra. But, and there is always a but. > I have been having health problems because the Humira has compromised > my immune system so much. First I have swollen and weepy eyes. The Doc > said it was seasonal allergies. I've never had it before. This morning I woke > up with Oral Thrush and have to take medicine for it. I told my Doc that I am > thinking of quiting Humira. She said that I should be patient and see if these > health problems become chronic. Has anyone had the same experience with > Humira? I would sure like to think I can get over this hurdle. > Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 > > Hi Jennie, I've only taken 4 shots. I was on MTX and that helped too but my liver numbers escalated so high the doc took me off of it. Now he thinks the RA is actually affecting my liver numbers. I'm limited in what I can take because of a sulph allergy that I just developed after trying Celebrex and Bextra. I use etodalac ER twice a day and Ultracet for really bad pain. I'm waiting for my Rheumy to call and tell me if I can take my injection today. I'm really glad to have found this group. Pat > > > > Hi everyone, I'm new to this group and I have been reading all the > past posts. > > I have RA an Fibro but my question is about the RA. I have > started taking > > Humira and have had great results with my Ra. But, and there is > always a but. > > I have been having health problems because the Humira has > compromised > > my immune system so much. First I have swollen and weepy eyes. > The Doc > > said it was seasonal allergies. I've never had it before. This > morning I woke > > up with Oral Thrush and have to take medicine for it. I told my > Doc that I am > > thinking of quiting Humira. She said that I should be patient and > see if these > > health problems become chronic. Has anyone had the same experience > with > > Humira? I would sure like to think I can get over this hurdle. > > Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 > > > > > > Hi everyone, I'm new to this group and I have been reading all the > past posts. > > I have RA an Fibro but my question is about the RA. I have > started taking > > Humira and have had great results with my Ra. But, and there is > always a but. > > I have been having health problems because the Humira has > compromised > > my immune system so much. First I have swollen and weepy eyes. > The Doc > > said it was seasonal allergies. I've never had it before. This > morning I woke > > up with Oral Thrush and have to take medicine for it. I told my > Doc that I am > > thinking of quiting Humira. She said that I should be patient and > see if these > > health problems become chronic. Has anyone had the same experience > with > > Humira? I would sure like to think I can get over this hurdle. > > Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 > > > > > > Hi everyone, I'm new to this group and I have been reading all the > past posts. > > I have RA an Fibro but my question is about the RA. I have > started taking > > Humira and have had great results with my Ra. But, and there is > always a but. > > I have been having health problems because the Humira has > compromised > > my immune system so much. First I have swollen and weepy eyes. > The Doc > > said it was seasonal allergies. I've never had it before. This > morning I woke > > up with Oral Thrush and have to take medicine for it. I told my > Doc that I am > > thinking of quiting Humira. She said that I should be patient and > see if these > > health problems become chronic. Has anyone had the same experience > with > > Humira? I would sure like to think I can get over this hurdle. > > Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 I'm limited in what I can take because of a > sulph allergy that I just developed after trying Celebrex and Bextra. Pat What is a sulph allergy? I dont take Humira so can't help you there - I do take MTX and Mobic and Foltx plus I get Remicade infusions once every 8 weeks. My liver count goes up and down... God bless, Althea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 Welcome Pat. Thrush is a listed side effect of Humira. Vision problems are also listed: http://www.drugdigest.org/DD/DVH/Uses/0,3915,551811%7CHumira,00.html I can understand why you would want to stop taking it. Have you tried Enbrel? a > > > > Hi everyone, I'm new to this group and I have been reading all the past posts. > I have RA an Fibro but my question is about the RA. I have started taking > Humira and have had great results with my Ra. But, and there is always a but. > I have been having health problems because the Humira has compromised > my immune system so much. First I have swollen and weepy eyes. The Doc > said it was seasonal allergies. I've never had it before. This morning I > woke > up with Oral Thrush and have to take medicine for it. I told my Doc that I am > thinking of quiting Humira. She said that I should be patient and see if > these > health problems become chronic. Has anyone had the same experience with > Humira? I would sure like to think I can get over this hurdle. > Pat > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 --- In , " blueroses11 " <bluerose11@e...> wrote: > > I'm limited in what I can take because of a > > sulph allergy that I just developed after trying Celebrex and > Bextra. > Pat > > What is a sulph allergy? > > I dont take Humira so can't help you there - I do take MTX and Mobic > and Foltx plus I get Remicade infusions once every 8 weeks. My > liver count goes up and down... > > God bless, > Althea Sorry Althea, I left out the a in Sulpha I'm not a great speller or typist for that matter. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 > Welcome Pat. Thrush is a listed side effect of Humira. Vision problems are > also listed: > > http://www.drugdigest.org/DD/DVH/Uses/ 0,3915,551811%7CHumira,00.html > > I can understand why you would want to stop taking it. Have you tried > Enbrel? > > a > > a, Thanks for the information. I printed it out and am going to fax it to my doctor. I spoke with him today and he feels that the steroid that I am taking for my eye allergy is the culprit in the appearance of Thrush. He told me to keep taking the Humira. > > Pat > > > > > > > > Hi everyone, I'm new to this group and I have been reading all the past posts. > > I have RA an Fibro but my question is about the RA. I have started taking > > Humira and have had great results with my Ra. But, and there is always a but. > > I have been having health problems because the Humira has compromised > > my immune system so much. First I have swollen and weepy eyes. The Doc > > said it was seasonal allergies. I've never had it before. This morning I > > woke > > up with Oral Thrush and have to take medicine for it. I told my Doc that I am > > thinking of quiting Humira. She said that I should be patient and see if > > these > > health problems become chronic. Has anyone had the same experience with > > Humira? I would sure like to think I can get over this hurdle. > > Pat > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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