humira

[Guest guest]

Welcome to the group, Pat! When you describe your eyes as " weepy, " do

you mean that they are watery or do they seem infected?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: Humira

>

>

>

>

> > Welcome Pat. Thrush is a listed side effect of Humira. Vision

problems are

> > also listed:

> >

> > http://www.drugdigest.org/DD/DVH/Uses/

> 0,3915,551811%7CHumira,00.html

> >

> > I can understand why you would want to stop taking it. Have you

tried

> > Enbrel?

> >

> > a

> >

> > a, Thanks for the information. I printed it out and am going to

fax it to

> my doctor. I spoke with him today and he feels that the steroid that

I am taking

> for my eye allergy is the culprit in the appearance of Thrush. He

told me to

> keep taking the Humira.

> >

> > Pat

> > >

> > >

> > >

> > > Hi everyone, I'm new to this group and I have been reading all the

past

> posts.

> > > I have RA an Fibro but my question is about the RA. I have

started taking

> > > Humira and have had great results with my Ra. But, and there is

always a

> but.

> > > I have been having health problems because the Humira has

> compromised

> > > my immune system so much. First I have swollen and weepy eyes.

The

> Doc

> > > said it was seasonal allergies. I've never had it before. This

morning I

> > > woke

> > > up with Oral Thrush and have to take medicine for it. I told my

Doc that I

> am

> > > thinking of quiting Humira. She said that I should be patient

and see if

> > > these

> > > health problems become chronic. Has anyone had the same

experience

> with

> > > Humira? I would sure like to think I can get over this hurdle.

> > > Pat

[Guest guest]

Pat,

I take Humira and have not experienced that. I can't imagine going

off all drugs for 6 weeks. I hope you feel better soon.

Jennie

>

>

> Hi everyone,

>

> I started this thread because I developed a rash and what my family

doctor

> thought was Thrush. It turned out we were all wrong.

> After a month of going from doctor to doctor I found out that I had

Lichen

> Panus on my body, eyes and mouth. It was finally determined that

it was a

> reaction to the Humira. So I had to go off of it and all

medication for six

> weeks. The six weeks are over and i'm in bad shape. My rhuemy was

very

> surprised at the reaction and told me that Lichen Panus is an

autoimmune

> desease of the skin. Because of my sulph allergy I am limited in

what I can

> take. I have started taking the loading dose of Arava and will be

on a low

> dose of Arava with a low dose of Methotrexate to help with the

side effects.

> Has anyone had a similar experience with Humera and Lichen Panus?

Or

> Has anyone gotten the Lichen from other drugs ?

>

> Thanks for listening,

> Pat

[Guest guest]

Tracie,

Respiratory infections are a side effect of Humira. I've never taken

Humira, so I have no experience with it.

Here is a list of the reported side effects:

http://www.rxlist.com/cgi/generic3/humira_ad.htm

Please call your doctor and let him know about these symptoms.

a

On May 23, 2005, at 3:54 PM, tracierae143 wrote:

> Hi again,

>

> Has anyone who has tried Humira had side effects involving your upper

> respiratory tract?  For example, coughing, wheezing, sore throat, that

> sort of thing.  I am just wondering if this is a cold or an allergic

> reacation to the med.  Any personal experience anyone has had or any

> infomration would be greatly appreciated.  Thanks.

>

> Tracie

>

>

>

>

>

[Guest guest]

Hi Tracie,

You go girl!!! I'm so excited that Humira is working for you:) It

takes awhile to find a med that works, so hope this is the one for

you. That is good news the lab work came back good, so just enjoy.

Your always in my prayers, Tawny

--- In , " tracierae143 " <tracierae143@y...>

wrote:

> HI All,

>

> I am starting to get a little hopeful here. I think the Humira is

> working, shhhh, don't scare it away though. I am starting to feel

> slightly human again and my labs are better. All my inflammatory

> levels are coming down. I am trying not to get too excited, I have

> had four shots now, but what do you guys think, will this last???

> Unfortunately, I still have problems with the fibromyalgia and my

back

> issue, but if the RA were controlled that would be a lot more

> tolerable. I have never had a remission or break from a flare

before

> so I am really excited. I would love your feedback on this. I

don't

> want to get too excited, but I was beginning to think nothing would

> ever work. I am still on the Prednisone, folic acid, and MTX as

> well. The doctor does not want to mess with anything right now as

I

> am finally starting to improve. Let me know what you think. I

have

> appreciated all of your support.

>

> Tracie in Maine

[Guest guest]

Tracie, I'll be hoping along with you that it will last! Just enjoy the

pain-free time while you have it. Enbrel works the same way for me, and

I feel so lucky. I wish everyone here could get relief from their pain.

Sue

On Friday, July 8, 2005, at 09:32 AM, tracierae143 wrote:

>

> I am starting to get a little hopeful here. I think the Humira is

> working, shhhh, don't scare it away though. I am starting to feel

> slightly human again and my labs are better. All my inflammatory

> levels are coming down. I am trying not to get too excited, I have

> had four shots now, but what do you guys think, will this last???

[Guest guest]

Tracie,

Fabulous news! No one can say how long it will last, but I'd be

optimistic if I were you.

Enbrel has been working for me for 6 years now. Since being on Enbrel,

I have more trouble with the FM than I do with RA.

You deserve a break! I'm really happy for you.

a

On Jul 8, 2005, at 9:32 AM, tracierae143 wrote:

> HI All,

>

> I am starting to get a little hopeful here.  I think the Humira is

> working, shhhh, don't scare it away though.  I am starting to feel

> slightly human again and my labs are better.  All my inflammatory

> levels are coming down.  I am trying not to get too excited, I have

> had four shots now, but what do you guys think, will this last??? 

> Unfortunately, I still have problems with the fibromyalgia and my back

> issue, but if the RA were controlled that would be a lot more

> tolerable.  I have never had a remission or break from a flare before

> so I am really excited.  I would love your feedback on this.  I don't

> want to get too excited, but I was beginning to think nothing would

> ever work.  I am still on the Prednisone, folic acid, and MTX as

> well.  The doctor does not want to mess with anything right now as I

> am finally starting to improve.  Let me know what you think.  I have

> appreciated all of your support. 

>

> Tracie in Maine

>

>

>

>

>

[Guest guest]

Hey Tracie-I just started Humira-due for my second dose on MOnday. had a rough

time with the switch from Embril to Humira.,..OW!!!!! Am still on prednisone,.

but once the Humira takes effect,. I am gonna try and wean down.,.,.,good

luck!!! sherri

[ ] Re: HUMIRA

Hi Tracie,

You go girl!!! I'm so excited that Humira is working for you:) It

takes awhile to find a med that works, so hope this is the one for

you. That is good news the lab work came back good, so just enjoy.

Your always in my prayers, Tawny

> HI All,

>

> I am starting to get a little hopeful here. I think the Humira is

> working, shhhh, don't scare it away though. I am starting to feel

> slightly human again and my labs are better. All my inflammatory

> levels are coming down. I am trying not to get too excited, I have

> had four shots now, but what do you guys think, will this last???

> Unfortunately, I still have problems with the fibromyalgia and my

back

> issue, but if the RA were controlled that would be a lot more

> tolerable. I have never had a remission or break from a flare

before

> so I am really excited. I would love your feedback on this. I

don't

> want to get too excited, but I was beginning to think nothing would

> ever work. I am still on the Prednisone, folic acid, and MTX as

> well. The doctor does not want to mess with anything right now as

I

> am finally starting to improve. Let me know what you think. I

have

> appreciated all of your support.

>

> Tracie in Maine

[Guest guest]

I have been taking Humira for one year and have experienced no side

effects. I have been really pleased with it, it works for me. The

only negative thing I have experienced is the brief burning sensation

upon injection but it is momentary and tolerable. HOpe this helps.

[Guest guest]

Jackie,

I've been on watching the posts on this board for a while but not really

participating. I've been getting Humira for the past month and a half. I've had

3 injections so far and haven't noticed any side effects except for feeling

achy for about a day. I was also told that I wouldn't feel the benefits of it

for maybe 3 months.

Thanks

and good luck

[Guest guest]

Thanks for the info . I'm just a little nervous about it.

> I have been taking Humira for one year and have experienced no side

> effects. I have been really pleased with it, it works for me. The

> only negative thing I have experienced is the brief burning

sensation

> upon injection but it is momentary and tolerable. HOpe this helps.

>

[Guest guest]

I started Humira 2 months ago and felt immediate relief. I have been pain free

since. In my opinion, it's a great drug.

jaykay1inhd <jaykay1inhd@...> wrote:Does anyone have info on Humira. A

friend of mine (with RA as well)

is going to participate in a study for 12 weeks. He has asked if I

would like to join as well since the dr. has put an ad in the paper.

I would like to know results, side effects, etc. Thanks for any info.

Jackie

[Guest guest]

I have often wondered about how we can tell what is going on with us

when we start having more pain, stiffness, etc. Is it a flare, or has

our medication become more ineffective for us, or is it a progression

of the RA? How do we tell? Sue

On Thursday, October 6, 2005, at 05:00 PM, Grammi B wrote:

> Hi I've been on Humira going on 2 years now with no problems. I am

> wondering if it somehow not working quite as well these days, but it

> may just be the flare. Up to now, it has worked wonderfully for me.

[Guest guest]

Be aware that this is *very* illegal and could result in both parties doing

heavy jail time. It's a nice offer, but I would not risk it if I were

you...

Kind Regards,

yanosz

HUMIRA

>

> I have crohns and osteoporosis and rheumatoid arthritis and had

> cataracts in both eyes - now only one since a new lens implant in one

> of them so far! I'm 51! YIKES!

>

> I discontinued HUMIRA because of persistent infections leading up to

> cataract surgery and those infections (3 months running) cleared up.

> I'm convinced that I personally should not be taking it. It's been a

> great asset for many - but not for me.

>

> I pay $1300 a month for a three month supply and have most of that

> supply left.........

>

> If anyone needs it -- and theri close to the chicago area I would be

> happy to work something out that's beneficial for all concerned......

>

> IAN

>

>

>

>

>

>

>

[Guest guest]

That's true with controlled substances. Humira isn't a controlled substance

or an abused substance --

Ian

HUMIRA

>>

>> I have crohns and osteoporosis and rheumatoid arthritis and had

>> cataracts in both eyes - now only one since a new lens implant in one

>> of them so far! I'm 51! YIKES!

>>

>> I discontinued HUMIRA because of persistent infections leading up to

>> cataract surgery and those infections (3 months running) cleared up.

>> I'm convinced that I personally should not be taking it. It's been a

>> great asset for many - but not for me.

>>

>> I pay $1300 a month for a three month supply and have most of that

>> supply left.........

>>

>> If anyone needs it -- and theri close to the chicago area I would be

>> happy to work something out that's beneficial for all concerned......

>>

>> IAN

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

Ian,

Controlled substance or not, it's illegal.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

HUMIRA

>>>

>>> I have crohns and osteoporosis and rheumatoid arthritis and had

>>> cataracts in both eyes - now only one since a new lens implant in one

>>> of them so far! I'm 51! YIKES!

>>>

>>> I discontinued HUMIRA because of persistent infections leading up to

>>> cataract surgery and those infections (3 months running) cleared up.

>>> I'm convinced that I personally should not be taking it. It's been a

>>> great asset for many - but not for me.

>>>

>>> I pay $1300 a month for a three month supply and have most of that

>>> supply left.........

>>>

>>> If anyone needs it -- and theri close to the chicago area I would be

>>> happy to work something out that's beneficial for all concerned......

>>>

>>> IAN

[Guest guest]

It doesn't matter, it's still very illegal... And, believe me, I learned

the hard way and I didn't give someone a controled substance, only

antibiotics.

Yanosz

Re: [ ] Humira

> That's true with controlled substances. Humira isn't a controlled

substance

> or an abused substance --

>

> Ian

> -----

[Guest guest]

Just curious, Yan, how in the world did the law find out?

Sue

On Wednesday, April 5, 2006, at 02:26 PM, Yanosz Descouedresz wrote:

> It doesn't matter, it's still very illegal... And, believe me, I

> learned

> the hard way and I didn't give someone a controled substance, only

> antibiotics.

[Guest guest]

Yanosz,

I sincerely appreciate your advice...Check out freegaragesale.com, and click

on medical -- You'll be shocked !!

IAN

Re: [ ] Humira

>

>

>> That's true with controlled substances. Humira isn't a controlled

> substance

>> or an abused substance --

>>

>> Ian

>> -----

>

>

>

>

>

>

[Guest guest]

Hi Marlis,

I also just started Humira. Had my third injection last Sunday. The 2nd

injection burned/stung pretty bad but the 1st and third weren't bad at all. I

also take Arava. I think these Humira injections are helping, I'm definately

feeling less stiff and sore these days.

Marlis <marlisg@...> wrote:

I gave myself my first Humira injection yesterday. It wasn't too bad,

stung just a little going in. I am not taking MTX now, only Arava.

The liver couldn't handle both of them. I'm not able to take Celebrex

because of previous ulcers, so I sure hope the Humira starts working

quickly. Thanks for the helpful words.

My dr chose Humira for me because it was every other week injection

instead of every week (Enbrel). It didn't matter to me. Thank

goodness I have good insurance that will cover it, this could get

pricey very quick.

Marlis

[Guest guest]

In a message dated 4/25/2006 8:00:02 P.M. Central Daylight Time,

writes:

From: " Marlis Greenway " marlisg@...

Date: Tue Apr 25, 2006 4:00pm(PDT)

Subject: Re: Humira

Hi

Sounds like we're in the same boat with Humira and Arava! Next time I'm

going to leave my meds out to be room temperature before injecting, I think

someone here made that suggestion. The one yesterday I had to do at the dr

office and the nurse did not want it left out for longer than 10 mins.

I'm glad to hear that you are less stiff and sore. Do you have a problem

with fatique? I do, my dr is hoping that the Humira will help with that.

Marlis

Marlis,

I finally called the humira patient line and I was told not to leave the med

out for longer than 10 mins before using. That is enough time for it to

warm up. I asked my rheummy and the pharmacist and they both said the same

thing. So even though it makes it burn like acid I am trying to follow the

rules

until I have had enough...then it will go in trash! LOL

I have very severe fatigue for two days after Humira...then I have Lots of

energy for the next 2-4 days after that...then it wears off...and things are

just like I had never taken it.

Toni

[Guest guest]

Hi

Sounds like we're in the same boat with Humira and Arava! Next time I'm

going to leave my meds out to be room temperature before injecting, I think

someone here made that suggestion. The one yesterday I had to do at the dr

office and the nurse did not want it left out for longer than 10 mins.

I'm glad to hear that you are less stiff and sore. Do you have a problem

with fatique? I do, my dr is hoping that the Humira will help with that.

Marlis

Re: [ ] Humira

Hi Marlis,

I also just started Humira. Had my third injection last Sunday. The 2nd

injection burned/stung pretty bad but the 1st and third weren't bad at all.

I also take Arava. I think these Humira injections are helping, I'm

definately feeling less stiff and sore these days.

Marlis <marlisg@...> wrote:

I gave myself my first Humira injection yesterday. It wasn't too bad,

stung just a little going in. I am not taking MTX now, only Arava.

The liver couldn't handle both of them. I'm not able to take Celebrex

because of previous ulcers, so I sure hope the Humira starts working

quickly. Thanks for the helpful words.

My dr chose Humira for me because it was every other week injection

instead of every week (Enbrel). It didn't matter to me. Thank

goodness I have good insurance that will cover it, this could get

pricey very quick.

Marlis

[Guest guest]

Toni

Thanks for that information. I'm so new to this medicine that I haven't

contacted them about anything yet. One of my problems with the injection

according to the nurse was that I didn't poke the needle in fast enough.

Then it seemed to take forever for the medicine to go in. I'm hoping that

the next one won't sting as much.

I have fatigue everyday but did notice that i was more tired today. I hope

this goes away soon. I can't wait for the good 2-4 days, my house needs a

good cleaning.

Marlis

Marlis,

I finally called the humira patient line and I was told not to leave the

med

out for longer than 10 mins before using. That is enough time for it to

warm up. I asked my rheummy and the pharmacist and they both said the

same

thing. So even though it makes it burn like acid I am trying to follow

the rules

until I have had enough...then it will go in trash! LOL

I have very severe fatigue for two days after Humira...then I have Lots

of

energy for the next 2-4 days after that...then it wears off...and things

are

just like I had never taken it.

Toni

[Guest guest]

Hi Marlis,

Yes, I was really fatigued before I started the Humira. Now I'm not having any

fatique, I actually feel pretty good and I hope it stays that way. I was also

able to put my wedding ring back on yesterday, it fit! My fingers were really

swollen before the Humira.

Also, I leave my Humira sit out for 15 minutes. I think I read that somewhere,

maybe in this group.

I hope you get the results that I have had!

Marlis Greenway <marlisg@...> wrote:

Hi

Sounds like we're in the same boat with Humira and Arava! Next time I'm

going to leave my meds out to be room temperature before injecting, I think

someone here made that suggestion. The one yesterday I had to do at the dr

office and the nurse did not want it left out for longer than 10 mins.

I'm glad to hear that you are less stiff and sore. Do you have a problem

with fatique? I do, my dr is hoping that the Humira will help with that.

Marlis

Re: [ ] Humira

Hi Marlis,

I also just started Humira. Had my third injection last Sunday. The 2nd

injection burned/stung pretty bad but the 1st and third weren't bad at all.

I also take Arava. I think these Humira injections are helping, I'm

definately feeling less stiff and sore these days.

Marlis <marlisg@...> wrote:

I gave myself my first Humira injection yesterday. It wasn't too bad,

stung just a little going in. I am not taking MTX now, only Arava.

The liver couldn't handle both of them. I'm not able to take Celebrex

because of previous ulcers, so I sure hope the Humira starts working

quickly. Thanks for the helpful words.

My dr chose Humira for me because it was every other week injection

instead of every week (Enbrel). It didn't matter to me. Thank

goodness I have good insurance that will cover it, this could get

pricey very quick.

Marlis

[Guest guest]

yess do have your doc check into the humira patient assistance program. I

was able to get it delivered free of charge from the company itself. i am no

longer taking it, but it was a huge relief. HUGS

[Guest guest]

In a message dated 11/12/06 2:31:20 PM, foxybratgirlkm@... writes:

> HELLO, YES I WAS ON HUMIRA FOR ABOUT 3 MONTHS AND IT MADE ME REALLY SICK

> TWICE!! AND THE LAST TIME I SAID NO MORE!! AND ENBREL IS JUST THE SAME AS

> HUMIRA. NEXT STEP IS INFUSIONS.

> LOVE,

> KIM>>>>>>>>>

>

I have been on Humira since it first came out and take it every week.

I really believe it keeps me functioning as a normal human being!

The shots really hurt but it is a small price to pay.....I have NO side

effects, am on prednisone and Immuran (sp). The prednisone is a

lifesaver.....have

been on in 10 years with no (apparent) side effects! If I could take 20 mg

of prednisone, I would be a normal person....waaaa!

Hugs,

Pris