Re: 2nd Orencia treatment a bust --- notreatment, problems with veins

[Guest guest]

My daughter had one and it was much better than IV. She was poked 27 times then dr. decided to do it. We were thankful for it!Good luck,aLove~Light~PeaceFrom: "dianna batchelor" <desmodia@...>Sender: Rheumatoid Arthritis Date: Mon, 11 Oct 2010 15:42:52 -0500<Rheumatoid Arthritis >Reply Rheumatoid Arthritis Subject: Re: 2nd Orencia treatment a bust --- notreatment, problems with veins I am a nurse, and I can tell you this: I have not had one placed, but I have taken care of dozens of pts who have. They will be sore for awhile and tender while it heals. You will have a needle stick thru your skin into the port when it needs to accessed. that is it. ONE STICK. NO digging, gouging, hunting for veins, Minimal bruising if any, and just a brief stick of pain. If i ever needed one, i would RUN to get one!!!! just my opinion!!Dianna----- Original Message -----From: "kathy_d87" Rheumatoid Arthritis Subject: 2nd Orencia treatment a bust --- no treatment, problems with veinsDate: Mon, 11 Oct 2010 12:56:08 -0000 Good Morning all -Well, my second Orencia treatment was a bust, the nurse couldn't give it to me because he couldn't get my veins to stay still to start the IV line. He stuck me 7 times and left 2 large bruises. I've always had bad veins. He says me can stick them with the needle but when tries to run the IV line, my veins close off and when pulls the needle back out blood goes everywhere. After the 3rd stick, I knew he wasn't going to be able to get my veins to work. It's weird my body just shuts down when any technician or nurse tries to put a needle in my veins. I've been this ways since I was a little girl.Anyway, I'm rescheduled for next Friday, which has thrown all my treatments off by a week. The nurse told me to drink plenty of water, especially Thursday before my Friday appointment. The only problem with that is my cardiologist has limited my water intake and has me on diaretics because I retain fluid especially around my heart and in my lungs. So I'm in a catch 22.Years ago when my rheumatologist first talked about starting me on IV drugs, he mentioned putting a port in my arm or neck so the nurses wouldn't have to fight with my veins. Has anyone had one before? Is it painful, what are the side effects or cons of having one? A friend of my had one while on chemotherapy and she said it was lifesaver.Thanks,Kdianna

[Guest guest]

Thanks na and Dianna for your advice. I am definitely going to ask my

rheumy about a portacath. Being a pincushion is no fun. If I take off my

jacket, people will think I've been in a fight or been abused.

--- In Rheumatoid Arthritis , " a " <bluecat012001@...>

wrote:

>

> My daughter had one and it was much better than IV. She was poked 27 times

then dr. decided to do it. We were thankful for it!

> Good luck,

> a

> Love~Light~Peace

>

> -----Original Message-----

> From: " dianna batchelor " <desmodia@...>

> Sender: Rheumatoid Arthritis

> Date: Mon, 11 Oct 2010 15:42:52

> <Rheumatoid Arthritis >

> Reply-Rheumatoid Arthritis

> Subject: Re: 2nd Orencia treatment a bust --- no

> treatment, problems with veins

>

> I am a nurse, and I can tell you this:  I have not had one placed, but I

> have taken care of dozens of pts who have.  They will be sore for awhile

> and tender while it heals. You will have a needle stick thru your skin

> into the port when it needs to accessed. that is it. ONE STICK. NO

> digging, gouging, hunting for veins, Minimal bruising if any, and just a

> brief stick of pain.   If i ever needed one, i would RUN to get one!!!!

> just my opinion!!Dianna

>

> ----- Original Message -----

> From: " kathy_d87 "

> Rheumatoid Arthritis

> Subject: 2nd Orencia treatment a bust --- no

> treatment, problems with veins

> Date: Mon, 11 Oct 2010 12:56:08 -0000

>

>  

>

> Good Morning all -

>

> Well, my second Orencia treatment was a bust, the nurse couldn't give

> it to me because he couldn't get my veins to stay still to start the

> IV line. He stuck me 7 times and left 2 large bruises. I've always

> had bad veins. He says me can stick them with the needle but when

> tries to run the IV line, my veins close off and when pulls the

> needle back out blood goes everywhere.

>

> After the 3rd stick, I knew he wasn't going to be able to get my

> veins to work. It's weird my body just shuts down when any technician

> or nurse tries to put a needle in my veins. I've been this ways since

> I was a little girl.

>

> Anyway, I'm rescheduled for next Friday, which has thrown all my

> treatments off by a week.

>

> The nurse told me to drink plenty of water, especially Thursday

> before my Friday appointment. The only problem with that is my

> cardiologist has limited my water intake and has me on diaretics

> because I retain fluid especially around my heart and in my lungs. So

> I'm in a catch 22.

>

> Years ago when my rheumatologist first talked about starting me on IV

> drugs, he mentioned putting a port in my arm or neck so the nurses

> wouldn't have to fight with my veins. Has anyone had one before? Is

> it painful, what are the side effects or cons of having one? A friend

> of my had one while on chemotherapy and she said it was lifesaver.

>

> Thanks,

>

> K

>

>

>

>

>

> dianna

>

[Guest guest]

I am so sorry to find out the difficulties you have had. I have been getting

Orencia infusions for 2 years and have rarely had problems. I go to and infusion

center at a hospital and the nurses usually treat cancer patients. They are

extremely kind and gentle. I hope the portacath solves you problem.

Jane.

> >

> > My daughter had one and it was much better than IV. She was poked 27 times

then dr. decided to do it. We were thankful for it!

> > Good luck,

> > a

> > Love~Light~Peace

> >

> > -----Original Message-----

> > From: " dianna batchelor " <desmodia@>

> > Sender: Rheumatoid Arthritis

> > Date: Mon, 11 Oct 2010 15:42:52

> > <Rheumatoid Arthritis >

> > Reply-Rheumatoid Arthritis

> > Subject: Re: 2nd Orencia treatment a bust --- no

> > treatment, problems with veins

> >

> > I am a nurse, and I can tell you this:� I have not had one placed, but I

> > have taken care of dozens of pts who have.� They will be sore for awhile

> > and tender while it heals. You will have a needle stick thru your skin

> > into the port when it needs to accessed. that is it. ONE STICK. NO

> > digging, gouging, hunting for veins, Minimal bruising if any, and just a

> > brief stick of pain.�� If i ever needed one, i would RUN to get one!!!!

> > just my opinion!!Dianna

> >

> > ----- Original Message -----

> > From: " kathy_d87 "

> > Rheumatoid Arthritis

> > Subject: 2nd Orencia treatment a bust --- no

> > treatment, problems with veins

> > Date: Mon, 11 Oct 2010 12:56:08 -0000

> >

> > �

> >

> > Good Morning all -

> >

> > Well, my second Orencia treatment was a bust, the nurse couldn't give

> > it to me because he couldn't get my veins to stay still to start the

> > IV line. He stuck me 7 times and left 2 large bruises. I've always

> > had bad veins. He says me can stick them with the needle but when

> > tries to run the IV line, my veins close off and when pulls the

> > needle back out blood goes everywhere.

> >

> > After the 3rd stick, I knew he wasn't going to be able to get my

> > veins to work. It's weird my body just shuts down when any technician

> > or nurse tries to put a needle in my veins. I've been this ways since

> > I was a little girl.

> >

> > Anyway, I'm rescheduled for next Friday, which has thrown all my

> > treatments off by a week.

> >

> > The nurse told me to drink plenty of water, especially Thursday

> > before my Friday appointment. The only problem with that is my

> > cardiologist has limited my water intake and has me on diaretics

> > because I retain fluid especially around my heart and in my lungs. So

> > I'm in a catch 22.

> >

> > Years ago when my rheumatologist first talked about starting me on IV

> > drugs, he mentioned putting a port in my arm or neck so the nurses

> > wouldn't have to fight with my veins. Has anyone had one before? Is

> > it painful, what are the side effects or cons of having one? A friend

> > of my had one while on chemotherapy and she said it was lifesaver.

> >

> > Thanks,

> >

> > K

> >

> >

> >

> >

> >

> > dianna

> >

>

[Guest guest]

Hi Everyone,I went to see my Rheumatoligist last week, and he has now started me on Quinoric, along side all my other meds, I'm sure people can here me rattling like a pill bottle when I walk. I've been in a lot of pain today, think it may be the cold weather here, but it's made me feel very weary, and down, so armed with my hot water bottle, i'm now away to bed. All my love carolynFrom: babajane50 <babajane50@...>Rheumatoid Arthritis Sent: Tue, 12 October, 2010 20:17:09Subject: Re: 2nd Orencia treatment a bust --- notreatment, problems with veins

I am so sorry to find out the difficulties you have had. I have been getting Orencia infusions for 2 years and have rarely had problems. I go to and infusion center at a hospital and the nurses usually treat cancer patients. They are extremely kind and gentle. I hope the portacath solves you problem.

Jane.

> >

> > My daughter had one and it was much better than IV. She was poked 27 times then dr. decided to do it. We were thankful for it!

> > Good luck,

> > a

> > Love~Light~Peace

> >

> > -----Original Message-----

> > From: "dianna batchelor" <desmodia@>

> > Sender: Rheumatoid Arthritis

> > Date: Mon, 11 Oct 2010 15:42:52

> > <Rheumatoid Arthritis >

> > Reply-Rheumatoid Arthritis

> > Subject: Re: 2nd Orencia treatment a bust --- no

> > treatment, problems with veins

> >

> > I am a nurse, and I can tell you this:� I have not had one placed, but I

> > have taken care of dozens of pts who have.� They will be sore for awhile

> > and tender while it heals. You will have a needle stick thru your skin

> > into the port when it needs to accessed. that is it. ONE STICK. NO

> > digging, gouging, hunting for veins, Minimal bruising if any, and just a

> > brief stick of pain.�� If i ever needed one, i would RUN to get one!!!!

> > just my opinion!!Dianna

> >

> > ----- Original Message -----

> > From: "kathy_d87"

> > Rheumatoid Arthritis

> > Subject: 2nd Orencia treatment a bust --- no

> > treatment, problems with veins

> > Date: Mon, 11 Oct 2010 12:56:08 -0000

> >

> > �

> >

> > Good Morning all -

> >

> > Well, my second Orencia treatment was a bust, the nurse couldn't give

> > it to me because he couldn't get my veins to stay still to start the

> > IV line. He stuck me 7 times and left 2 large bruises. I've always

> > had bad veins. He says me can stick them with the needle but when

> > tries to run the IV line, my veins close off and when pulls the

> > needle back out blood goes everywhere.

> >

> > After the 3rd stick, I knew he wasn't going to be able to get my

> > veins to work. It's weird my body just shuts down when any technician

> > or nurse tries to put a needle in my veins. I've been this ways since

> > I was a little girl.

> >

> > Anyway, I'm rescheduled for next Friday, which has thrown all my

> > treatments off by a week.

> >

> > The nurse told me to drink plenty of water, especially Thursday

> > before my Friday appointment. The only problem with that is my

> > cardiologist has limited my water intake and has me on diaretics

> > because I retain fluid especially around my heart and in my lungs. So

> > I'm in a catch 22.

> >

> > Years ago when my rheumatologist first talked about starting me on IV

> > drugs, he mentioned putting a port in my arm or neck so the nurses

> > wouldn't have to fight with my veins. Has anyone had one before? Is

> > it painful, what are the side effects or cons of having one? A friend

> > of my had one while on chemotherapy and she said it was lifesaver.

> >

> > Thanks,

> >

> > K

> >

> >

> >

> >

> >

> > dianna

> >

>