RE: 1st Orencia Treatment (happy/sad)

[Guest guest]

Mine took 6

months to really be effective. If you felt great after the first one, that’s

super news!!!

B

karenbfromtennessee

at PaperBackSwap.com

From:

Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ]

On Behalf Of kathy_d87

Sent: Tuesday, September 28, 2010

1:51 PM

To:

Rheumatoid Arthritis

Subject:

1st Orencia Treatment (happy/sad)

Hi Everyone -

I've been laying low waiting for my first Orencia treatment. I did my IV iron

infusion and got my iron levels back close to normal so the hematologist

released me after one infusion. YAY! :-)

I had my first Orencia treatment last Friday. Thirty minutes in and out and I

felt wonderful. I couldn't believe how good I felt. Unfortunately the good

feeling only lasted 12 hours and then I was back to my old, achy, paining self

that I know and love. So, I will have two more infusions 2 weeks apart and

start the once a month kickoff.

Did anyone else's blood pressure drop after the infusion? Right after the

infusion I was 99/64 and that may be because----I wasn't hurting.

I've heard on the average it takes 3 - 6 infusions before Orencia really kicks

in, has this been the case with everyone else?

Thanks,

K

[Guest guest]

So the Orencia has worked for you so far? There are so many I think you really have to find the right one for your body. Do you lose your hair when on the infusion? I have been on Enbrel 1x weekly and MTX 1x weekly. My hair is falling out like crazy! It grows back but Enbrel is not helping at all, MTX seems to do a bit for me though. Good luck with your infusions:) Keep us posted on how it works on you! aLove~Light~PeaceFrom: " Beyke" <karenbeyke@...>Sender: Rheumatoid Arthritis Date: Tue, 28 Sep 2010 17:09:09 -0500<Rheumatoid Arthritis >Reply Rheumatoid Arthritis Subject: RE: 1st Orencia Treatment (happy/sad) Mine took 6months to really be effective. If you felt great after the first one, that’ssuper news!!! Bkarenbfromtennesseeat PaperBackSwap.com From:Rheumatoid Arthritis [mailto:Rheumatoid Arthritis ]On Behalf Of kathy_d87Sent: Tuesday, September 28, 20101:51 PMTo:Rheumatoid Arthritis Subject: 1st Orencia Treatment (happy/sad) Hi Everyone -I've been laying low waiting for my first Orencia treatment. I did my IV ironinfusion and got my iron levels back close to normal so the hematologistreleased me after one infusion. YAY! :-)I had my first Orencia treatment last Friday. Thirty minutes in and out and Ifelt wonderful. I couldn't believe how good I felt. Unfortunately the goodfeeling only lasted 12 hours and then I was back to my old, achy, paining selfthat I know and love. So, I will have two more infusions 2 weeks apart andstart the once a month kickoff.Did anyone else's blood pressure drop after the infusion? Right after theinfusion I was 99/64 and that may be because----I wasn't hurting.I've heard on the average it takes 3 - 6 infusions before Orencia really kicksin, has this been the case with everyone else?Thanks,K

[Guest guest]

Yes, the

Orencia/MTX combo seems to be the best so far. I can walk now (had problems

before that).

I didn’t

experience the hair loss that some do, but it’s definitely thinned. (I don’t

wash it every day like I used to and I don’t style it with heat. Instead, I keep

it longer and pull it back lightly now, though some say you should cut it

short. It seems that with all of these side effects, you just have to take the

time to see what works best.) I take 1 mg folic acid 3 times a day (helps with

anemia and with tolerating the meds).

Good luck,

a. The name of the game is patience and moving around so you don’t

stiffen up.

From: Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ] On

Behalf Of a

Sent: Sunday, October 03, 2010

9:27 AM

Rheumatoid arthritis group

Subject: Re:

1st Orencia Treatment (happy/sad)

So the

Orencia has worked for you so far? There are so many I think you really have to

find the right one for your body.

Do you lose your hair when on the infusion? I have been on Enbrel 1x weekly and

MTX 1x weekly. My hair is falling out like crazy! It grows back but Enbrel is

not helping at all, MTX seems to do a bit for me though.

Good luck with your infusions:) Keep us posted on how it works on you!

a

Love~Light~Peace

From: "

Beyke " <karenbeyke@...>

Sender: Rheumatoid Arthritis

Date: Tue, 28 Sep

2010 17:09:09 -0500

<Rheumatoid Arthritis >

ReplyRheumatoid Arthritis

Subject: RE:

1st Orencia Treatment (happy/sad)

Mine took 6 months to really be effective. If

you felt great after the first one, that’s super news!!!

B

karenbfromtennessee

at PaperBackSwap.com

From: Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ] On

Behalf Of kathy_d87

Sent: Tuesday, September 28, 2010

1:51 PM

To:

Rheumatoid Arthritis

Subject: 1st

Orencia Treatment (happy/sad)

Hi

Everyone -

I've been laying low waiting for my first Orencia treatment. I did my IV iron

infusion and got my iron levels back close to normal so the hematologist

released me after one infusion. YAY! :-)

I had my first Orencia treatment last Friday. Thirty minutes in and out and I

felt wonderful. I couldn't believe how good I felt. Unfortunately the good

feeling only lasted 12 hours and then I was back to my old, achy, paining self

that I know and love. So, I will have two more infusions 2 weeks apart and

start the once a month kickoff.

Did anyone else's blood pressure drop after the infusion? Right after the

infusion I was 99/64 and that may be because----I wasn't hurting.

I've heard on the average it takes 3 - 6 infusions before Orencia really kicks

in, has this been the case with everyone else?

Thanks,

K

[Guest guest]

I've now had 3 infusions and still can't say one way or another if it's

" working " per say. I haven't had any major flares since starting which is good

but I have my same old aches / swelling. My feet still hurt in the morning and

am a little stiff and slow to get going but I'm really hopefully that with a few

more infusions I'll get a full effect and some more relief. Humira worked like a

dream for me, but was sick all the time on it, was hoping this would work as

good without that. Only time will tell. So far so good though.

--- In Rheumatoid Arthritis , " a " <bluecat012001@...>

wrote:

>

> So the Orencia has worked for you so far? There are so many I think you really

have to find the right one for your body.

> Do you lose your hair when on the infusion? I have been on Enbrel 1x weekly

and MTX 1x weekly. My hair is falling out like crazy! It grows back but Enbrel

is not helping at all, MTX seems to do a bit for me though.

> Good luck with your infusions:) Keep us posted on how it works on you!

> a

> Love~Light~Peace

>

> -----Original Message-----

> From: " Beyke " <karenbeyke@...>

> Sender: Rheumatoid Arthritis

> Date: Tue, 28 Sep 2010 17:09:09

> <Rheumatoid Arthritis >

> Reply-Rheumatoid Arthritis

> Subject: RE: 1st Orencia Treatment (happy/sad)

>

> Mine took 6 months to really be effective. If you felt great after the

> first one, that's super news!!!

>

>

>

> <http://www.lifeisgood.com/>

>

> B

>

> karenbfromtennessee

> <http://www.paperbackswap.com/index.php?r_by=karenbeyke@...> at

> PaperBackSwap.com

>

> _____

>

> From: Rheumatoid Arthritis

> [mailto:Rheumatoid Arthritis ] On Behalf Of kathy_d87

> Sent: Tuesday, September 28, 2010 1:51 PM

> Rheumatoid Arthritis

> Subject: 1st Orencia Treatment (happy/sad)

>

>

>

>

>

> Hi Everyone -

>

> I've been laying low waiting for my first Orencia treatment. I did my IV

> iron infusion and got my iron levels back close to normal so the

> hematologist released me after one infusion. YAY! :-)

>

> I had my first Orencia treatment last Friday. Thirty minutes in and out and

> I felt wonderful. I couldn't believe how good I felt. Unfortunately the good

> feeling only lasted 12 hours and then I was back to my old, achy, paining

> self that I know and love. So, I will have two more infusions 2 weeks apart

> and start the once a month kickoff.

>

> Did anyone else's blood pressure drop after the infusion? Right after the

> infusion I was 99/64 and that may be because----I wasn't hurting.

>

> I've heard on the average it takes 3 - 6 infusions before Orencia really

> kicks in, has this been the case with everyone else?

>

> Thanks,

>

> K

>