Hello

[Guest guest]

Re: [ ] hello

!! It is wonderful to hear from someone who has done well for 12 years.

Congratulations to you and it brings tremendous hope to all of us dealing with

it now. Thank you for your great success!

Sandie

--

---- stber2001 <beriatos@statistics .gr> wrote:

> I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS FROM

> 1996.

> STAVROS

> DXD 7/1996

> ON GLIVEC FROM 2002

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

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[Guest guest]

I'm so jelous linda wish it was warm here it's 15D here and have at least 2

feet of snow and still coming down yuck!! were are you in florida?

aliza

**************It's Tax Time! Get tips, forms, and advice on AOL Money &

Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

[Guest guest]

Hi Aliza - no I live in sunny hot Australia!

Regards,

From: [mailto: ] On Behalf Of

taina2044@...

Sent: Monday, 10 March 2008 12:37 AM

Subject: Re: [ ] hello

I'm so jelous linda wish it was warm here it's 15D here and have at least 2

feet of snow and still coming down yuck!! were are you in florida?

aliza

[Guest guest]

Hi Stavros,

I have just achieved 1-1/2 years on Gleevec, with remission finally

after more than a year. I am so encouraged to hear of your health

and well-being on Gleevec! We all have hope! Thank you for writing.

Vicki

Lynnwood, Washington

Dx'd in 09/06, Started Gleevec at 400

Saw Dr Druker, who recommended increase in dosage

Finally! Remission in October, 2007

Gleevec 600 mg/day

>

> I WANT TO SENT A HELOO FROM GREECE. I STILL ALIVE AFTER 12 YEARS

FROM

> 1996.

> STAVROS

> DXD 7/1996

> ON GLIVEC FROM 2002

>

[Guest guest]

Thanks Ed. , My dx was confirmed on March 12. I am still on 2 Hydrea, 1

Allopurinol and 400 mg Gleevec. I just can't miss anymore days off work. I had a

hot shower this morning with one of those shower massage things and it helped. I

am keeping my figures crossed and thinking good thoughts. Take care . Eva

From: Edgardo

Sent: Sunday, April 06, 2008 12:06 AM

Subject: [ ] Hello

Hello Eva,

I was diagnosed with cml this year the 9th of january. Took hydrea for one month

and then started on glivec on february. The symptoms I had are pretty much

similar to the ones you have now and I think everybody does to some extent at

the beginning with glivec. The meds for bone pain that I use is Ibuprofen, never

tylenol because it makes more work for my liver. Also taking a bath with hot

water helps ( told me that, I tried and it worked! ) For muscle pain I

used a muscle rub. Remember that rest is the best med, so do it as much as you

can.

You should keep writing if something bothers you, this is an excellent group and

we are here to help. Have a nice weekend.

Ed

Eva <evaob365@...> wrote:

Hi Everyone , It is day 3 on Gleevec and since Thursday afternoon , not even 24

hours after starting my Gleevec I have unbelievable muscle spasms in my left

shoulder blade up into my neck and aprox where my spleen is . I have been put on

Tylenol 3 and told it is just a side effect. I missed work on Friday and there

is no sign of this letting up . I am hoping for a miracle by Monday morning

because I cannot afford any more time off work. I just started my job 3 days

before dx, I am afraid they are going to fire me for too much time off. If any

one has experienced the same thing and can offer any suggestions no matter how

wild I am willing to try just about anything to stop the spasms and pain before

Monday. Thanks take care ; Eva

From: Terry Dailey

Sent: Saturday, April 05, 2008 1:01 PM

Subject: Re: [ ] Coping when relationships go wrong

I am so sorry for your son. I myself went through a similar situation when I

was first dxed in April of 04.

Long story short my wife left me shortly afterwards and I was very

devastated. In all honesty I will never be the same again. In fact I am now

in the process of getting divorced again, but this is by my choice and

another story.

I can tell you from experience how things may go with your son. First

thing....Be very leery and steer him clear from meeting anyone off the

internet. I had a few women that wanted to date me because they knew I get

monthly pain meds, been taken for over a grand in cash. This may not happen

to him once he decides to try and date again but just keep an eye out for

him. He will not see it, or will be in denial.

It will take him a while to get over this, but he will. Now I only have CML

so my condition does not sound as severe as your son's but he very well may

pull himself out of it. One thing he may do is kinda lose his judgement in

regards toward what sort of woman he will date. I am not sure of his

diagnoses, or the types of treatments he is receiving, so I really cannot

say in all honesty how long he will be down. In my case it was around 6

months, and then I put up personal ads. I tried different approaches as far

as when I would tell someone about my disease. Some I would tell right away,

and others I would wait to see if things turned into more than a couple of

dates. I have found it really did not make a difference in the long run.

I can very much relate to the sort of pain he is feeling right now. What

makes it worse I think is the fact that his fiancee at first was promising

him the world and then she dumps him, all the while he is asking her if she

is okay with everything, and I am sure she told him she was. It makes a

person feel broken in my opinion. In fact it does actually break you. So be

supportive of him dating but do not push things, he will have to do this

when he is ready. As I said before after a few months he may lose it a bit

in his standards, won't look for obvious warning signs. An example, I

continued to pursue a relationship with a woman despite the fact I knew in

she had spent 3 months in jail for selling drugs, was abusing her meds(She

had Crones Disease), and let's just leave it at she had allot of other

things in her past and present behavior that would have told a normal

thinking man DANGER, but I denied it all and things turned out bad.

I wish I could say everything will be okay but honestly no one can know what

is going to happen. With his age I am hoping he will bounce back and

honestly think he will. If his treatments have caused him to lose his hair,

then once it grows back that will hopefully help his self esteem a bit. He

very well may not find the " right " woman, but then again fate has a funny

way of doing things, so he could just as easy find someone very quickly. I

haven't personally found the right person, and at this point in my life I am

tired of looking.( I am 41) I have basically consigned myself to the fact

that I do not need someone in my life to be happy, and may never find any

sort of real love again. It makes it a bit easy for me because I was blessed

enough to have my son Nick. He is 14 and I can concentrate on raising him.

I honestly hurt for your son, I know how he is feeling right now. I wish

there was an easy answer. Everything effects everyone differently. He may

start spending allot more time on the net. I know this may sound silly but

what has gotten me through a very rough period was playing online PC games.

Any sort of human contact is good for him right now even if it is just

playing a game.

Has he withdrawn allot? I will do what I can or talk with you more as things

progress if you need me. There is a good chance he will have a another love

in his life, but as with everything nothing is certain. Please take care,

just be there for him when he wants to talk, but don't push him if he has

sort of become withdrawn. I am not a doctor or anything but perhaps short

term therapy might help? Anyway if there is anything I can so let me know. I

have all the hope in the world for your son to bounce back and find himself

a woman that is worthy of his love.

Terry

41 years old

Dxed April 04

On Sat, Apr 5, 2008 at 9:28 AM, <Sionito@...> wrote:

> Wow.? That is a tough blow to such a young life.

>

> ?

>

> There is always hope.? It may seem bleak, but you just never know what may

> happen.

>

> ?

>

> Your son and his ex are young, dispite disease, and you never know how

> things will end up.? Majo illnesses cause everyone to rethink their

> situations.? She may not have felt she could do this before, but now as

> things are more seriously moving forward (marriage) she may have really done

> some hard thinking and changed her mind.? No telling why, but people are

> nervous about forever even without the?burdens of disease.

>

> ?

>

> If all sounds fresh, so perhaps in time, your son will be more active and

> more open to the idea of meeting new people.? Seven years is a long time,

> but he has lots of days and years ahead for more adventures!? Perhaps he

> will want to just take some time to adjust to the new reality and then move

> forward.? It sound like a very emotional and stressful couple of years.? A

> vacation may be in order!!!

>

> ?

>

> Lots of single?folks on cruises these days.? Maybe a little sun and fun

> will bring back some hope.

>

> ?

>

> Good luck, and know that lots of us have to fight to maintain hope to find

> a life long love.

>

> Peace,

>

> Rhonda

>

> [ ] Coping when relationships go wrong

>

> I am a new member. Apologies for wading in with a heavy topic at the

>

> outset but i simply don't know where to turn. My son is 26 and

>

> diagnosed with CML and AML in 2006. STC in May 07. GvHD since sept 07

>

> but coping quite well. Until this week when his fiancee left him and

>

> called off their wedding scheduled for 2nd August. They were together

>

> for 7 years. She was fantastic throughout the early stages of illness

>

> and transplant. He proposed on Christmas eve and she seemed truly

>

> happy to be getting married. then the bombshell. My son is

>

> distraughtas he sees no future at all now where once he had some hope.

>

> I have only come across stories where love has seen couples through

>

> adversity and never ones where one of the couple cannot hack the new

>

> future. Has anyone one else had this happen to them or a loved one?

>

> Is there the possibility of a future for him or is he correct when he

>

> says how bleak it all is? The normal phrases about fish in the sea sre

>

> redundant - he is disabled now. he can't father children and his life

>

> span is truncated. That can't be it though can it? Can it? I'd love

>

> to hear from anyone who can offer a glimmer of a chance.. Many thanks

>

> for your time

>

>

[Guest guest]

Thanks Ed , Take care;Eva

From: Edgardo

Sent: Sunday, April 06, 2008 12:06 AM

Subject: [ ] Hello

Hello Eva,

I was diagnosed with cml this year the 9th of january. Took hydrea for one month

and then started on glivec on february. The symptoms I had are pretty much

similar to the ones you have now and I think everybody does to some extent at

the beginning with glivec. The meds for bone pain that I use is Ibuprofen, never

tylenol because it makes more work for my liver. Also taking a bath with hot

water helps ( told me that, I tried and it worked! ) For muscle pain I

used a muscle rub. Remember that rest is the best med, so do it as much as you

can.

You should keep writing if something bothers you, this is an excellent group and

we are here to help. Have a nice weekend.

Ed

Eva <evaob365@...> wrote:

Hi Everyone , It is day 3 on Gleevec and since Thursday afternoon , not even 24

hours after starting my Gleevec I have unbelievable muscle spasms in my left

shoulder blade up into my neck and aprox where my spleen is . I have been put on

Tylenol 3 and told it is just a side effect. I missed work on Friday and there

is no sign of this letting up . I am hoping for a miracle by Monday morning

because I cannot afford any more time off work. I just started my job 3 days

before dx, I am afraid they are going to fire me for too much time off. If any

one has experienced the same thing and can offer any suggestions no matter how

wild I am willing to try just about anything to stop the spasms and pain before

Monday. Thanks take care ; Eva

From: Terry Dailey

Sent: Saturday, April 05, 2008 1:01 PM

Subject: Re: [ ] Coping when relationships go wrong

I am so sorry for your son. I myself went through a similar situation when I

was first dxed in April of 04.

Long story short my wife left me shortly afterwards and I was very

devastated. In all honesty I will never be the same again. In fact I am now

in the process of getting divorced again, but this is by my choice and

another story.

I can tell you from experience how things may go with your son. First

thing....Be very leery and steer him clear from meeting anyone off the

internet. I had a few women that wanted to date me because they knew I get

monthly pain meds, been taken for over a grand in cash. This may not happen

to him once he decides to try and date again but just keep an eye out for

him. He will not see it, or will be in denial.

It will take him a while to get over this, but he will. Now I only have CML

so my condition does not sound as severe as your son's but he very well may

pull himself out of it. One thing he may do is kinda lose his judgement in

regards toward what sort of woman he will date. I am not sure of his

diagnoses, or the types of treatments he is receiving, so I really cannot

say in all honesty how long he will be down. In my case it was around 6

months, and then I put up personal ads. I tried different approaches as far

as when I would tell someone about my disease. Some I would tell right away,

and others I would wait to see if things turned into more than a couple of

dates. I have found it really did not make a difference in the long run.

I can very much relate to the sort of pain he is feeling right now. What

makes it worse I think is the fact that his fiancee at first was promising

him the world and then she dumps him, all the while he is asking her if she

is okay with everything, and I am sure she told him she was. It makes a

person feel broken in my opinion. In fact it does actually break you. So be

supportive of him dating but do not push things, he will have to do this

when he is ready. As I said before after a few months he may lose it a bit

in his standards, won't look for obvious warning signs. An example, I

continued to pursue a relationship with a woman despite the fact I knew in

she had spent 3 months in jail for selling drugs, was abusing her meds(She

had Crones Disease), and let's just leave it at she had allot of other

things in her past and present behavior that would have told a normal

thinking man DANGER, but I denied it all and things turned out bad.

I wish I could say everything will be okay but honestly no one can know what

is going to happen. With his age I am hoping he will bounce back and

honestly think he will. If his treatments have caused him to lose his hair,

then once it grows back that will hopefully help his self esteem a bit. He

very well may not find the " right " woman, but then again fate has a funny

way of doing things, so he could just as easy find someone very quickly. I

haven't personally found the right person, and at this point in my life I am

tired of looking.( I am 41) I have basically consigned myself to the fact

that I do not need someone in my life to be happy, and may never find any

sort of real love again. It makes it a bit easy for me because I was blessed

enough to have my son Nick. He is 14 and I can concentrate on raising him.

I honestly hurt for your son, I know how he is feeling right now. I wish

there was an easy answer. Everything effects everyone differently. He may

start spending allot more time on the net. I know this may sound silly but

what has gotten me through a very rough period was playing online PC games.

Any sort of human contact is good for him right now even if it is just

playing a game.

Has he withdrawn allot? I will do what I can or talk with you more as things

progress if you need me. There is a good chance he will have a another love

in his life, but as with everything nothing is certain. Please take care,

just be there for him when he wants to talk, but don't push him if he has

sort of become withdrawn. I am not a doctor or anything but perhaps short

term therapy might help? Anyway if there is anything I can so let me know. I

have all the hope in the world for your son to bounce back and find himself

a woman that is worthy of his love.

Terry

41 years old

Dxed April 04

On Sat, Apr 5, 2008 at 9:28 AM, <Sionito@...> wrote:

> Wow.? That is a tough blow to such a young life.

>

> ?

>

> There is always hope.? It may seem bleak, but you just never know what may

> happen.

>

> ?

>

> Your son and his ex are young, dispite disease, and you never know how

> things will end up.? Majo illnesses cause everyone to rethink their

> situations.? She may not have felt she could do this before, but now as

> things are more seriously moving forward (marriage) she may have really done

> some hard thinking and changed her mind.? No telling why, but people are

> nervous about forever even without the?burdens of disease.

>

> ?

>

> If all sounds fresh, so perhaps in time, your son will be more active and

> more open to the idea of meeting new people.? Seven years is a long time,

> but he has lots of days and years ahead for more adventures!? Perhaps he

> will want to just take some time to adjust to the new reality and then move

> forward.? It sound like a very emotional and stressful couple of years.? A

> vacation may be in order!!!

>

> ?

>

> Lots of single?folks on cruises these days.? Maybe a little sun and fun

> will bring back some hope.

>

> ?

>

> Good luck, and know that lots of us have to fight to maintain hope to find

> a life long love.

>

> Peace,

>

> Rhonda

>

> [ ] Coping when relationships go wrong

>

> I am a new member. Apologies for wading in with a heavy topic at the

>

> outset but i simply don't know where to turn. My son is 26 and

>

> diagnosed with CML and AML in 2006. STC in May 07. GvHD since sept 07

>

> but coping quite well. Until this week when his fiancee left him and

>

> called off their wedding scheduled for 2nd August. They were together

>

> for 7 years. She was fantastic throughout the early stages of illness

>

> and transplant. He proposed on Christmas eve and she seemed truly

>

> happy to be getting married. then the bombshell. My son is

>

> distraughtas he sees no future at all now where once he had some hope.

>

> I have only come across stories where love has seen couples through

>

> adversity and never ones where one of the couple cannot hack the new

>

> future. Has anyone one else had this happen to them or a loved one?

>

> Is there the possibility of a future for him or is he correct when he

>

> says how bleak it all is? The normal phrases about fish in the sea sre

>

> redundant - he is disabled now. he can't father children and his life

>

> span is truncated. That can't be it though can it? Can it? I'd love

>

> to hear from anyone who can offer a glimmer of a chance.. Many thanks

>

> for your time

>

>

[Guest guest]

Hi ,

Welcome to the group. It is a great family here.

P.S. is number 667 in the Zero Club

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.5 log reduction Jan/08

3.6 log reduction Apr/08

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of

Sent: May 30, 2008 2:07 AM

Subject: [ ] Hello

Well I am new to this group but not new to CML. I was dx'ed five years

ago this October. I am not going to say much right now, I am tired and

it is late but I just wanted to say Hello. Lottie invited me in it

will be nice to talk to people again who are going thru the same thing

as myself. I havent done that in quite some time.

[Guest guest]

Hi , welcome to the family, I'm pretty new to it too, thanks to

Lottie...Bobby

<katybug45@...> wrote: Well I am new to this group but not

new to CML. I was dx'ed five years

ago this October. I am not going to say much right now, I am tired and

it is late but I just wanted to say Hello. Lottie invited me in it

will be nice to talk to people again who are going thru the same thing

as myself. I havent done that in quite some time.

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

04/29/08 - XL228 Trial/ U.of Michigan

[Guest guest]

Oops . is # 677

Zavie

_____

From: [mailto: ] On Behalf Of Zavie

miller

Sent: May 30, 2008 8:28 AM

Subject: RE: [ ] Hello

Hi ,

Welcome to the group. It is a great family here.

P.S. is number 667 in the Zero Club

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.5 log reduction Jan/08

3.6 log reduction Apr/08

e-mail: zmillersympatico (DOT) <mailto:zmiller%40sympatico.ca> ca

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf Of

Sent: May 30, 2008 2:07 AM

groups (DOT) <mailto:%40> com

Subject: [ ] Hello

Well I am new to this group but not new to CML. I was dx'ed five years

ago this October. I am not going to say much right now, I am tired and

it is late but I just wanted to say Hello. Lottie invited me in it

will be nice to talk to people again who are going thru the same thing

as myself. I havent done that in quite some time.

[Guest guest]

what is this??

Suzi

List Owner

health/

http://360./suziesgoats

What is a weed? A plant whose virtues have not yet been discovered.

From: <deuteronomy2929@...>Subject: Hello"Heidi Burke" <hburke76@...>, "carolG" <cgiambri@...>, "Connecting Colorado" <coloradoworkforcecenter@...>, deuteronomy2929@..., " Doerner" <ejdoerner@...>, " Doerner" <vecus28@...>, "Jon Gettings" <JGettings@...>, "Guido" <guido2008@...>, "Duane and Jacquee Hagans" <duanehagans@...>, , " Herren" <raherren@...>, " Hidalgo" <michael@...>, "Brittany Holzmann" <torreynerd@...>, "Luke Holzmann" <tomysky@...>, info@..., "Janet" <dragonhealing@...>, "Jen" <jc_angel77@...>, "" <deuteronomy2929@...>,

"Hazel " <hazelj@...>, "Josh" <e.corvis@...>, "Mandy Lester" <mandylester@...>, "a Lindstrom" <zzintheredvw@...>, "Marilyn" <mrsmimi2001@...>, "McKoy" <jesusrocks73@...>, "OnlyYbarras" <mrsmimi2001@...>, "Gayla " <aeranch@...>, "Suzi" <suziesgoats@...>, "" <freshtrav97@...>, "Virginia" <vidhagans@...>, " " <jamesindenver@...>, " Y" <greywolf52929@...>, " Ybarra" <johnybarra06@...>Date: Monday, June 30, 2008, 4:30 PMWELCOM TO BE THE MEMBER OF brandshop68.com

We are an electronic products wholesale .Our products are of high quality and

low price. If you want to do business , we can offer you the most reasonable

discount to make you get more profits. We are expecting for your business. Please visit our website: http://www.brandshop68.com MSN :brandshop998@...

E-mail : brandshop68@...

------------------------------------

[Guest guest]

This sucks! It appears that my email got infected yesterday. I didn't send it, sorry.

Once I saw it, I ran both Norton (was on the computer when I got it) and MacAfee (got it with ComCast bundled internet/phone/cable), neither found anything. Then ran AVG free antivirus, and there it was.

It doesn't appear harmful, just irritating as all heck!

From: <deuteronomy2929>Subject: [HAWK_Health_ Awareness] Hello"Heidi Burke" <hburke76gmail (DOT) com>, "carolG" <cgiambri (DOT) com>, "Connecting Colorado" <coloradoworkforcece ntercsd (DOT) net>, deuteronomy2929@ gmail.com, " Doerner" <ejdoerner (DOT) com>, " Doerner" <vecus28 (DOT) com>, "Jon Gettings" <JGettings@denrescue .org>, "Guido" <guido2008comcast (DOT) net>, "Duane and Jacquee Hagans" <duanehagans@ sbcglobal. net>, hawk_health_ awareness, " Herren" <raherrencox (DOT) net>, " Hidalgo" <michael@denverchurc h.org>, "Brittany Holzmann" <torreynerdgmail (DOT) com>, "Luke Holzmann" <tomyskygmail (DOT) com>, infodenverchurch (DOT) org, "Janet" <dragonhealing@ comcast.net>, "Jen" <jc_angel77 (DOT) com>, "" <deuteronomy2929>, "Hazel "

<hazeljsnowcrest (DOT) net>, "Josh" <e.corvisgmail (DOT) com>, "Mandy Lester" <mandylester@ hotmail.com>, "a Lindstrom" <zzintheredvw>, "Marilyn" <mrsmimi2001>, "McKoy" <jesusrocks73@ hotmail.com>, "OnlyYbarras" <mrsmimi2001@ comcast.net>, "Gayla " <aeranchgmail (DOT) com>, "Suzi" <suziesgoats>, "" <freshtrav97>, "Virginia" <vidhaganshotmail (DOT) com>, " " <jamesindenver@ gmail.com>, " Y" <greywolf52929>, " Ybarra" <johnybarra06@ comcast.net>Date: Monday, June 30, 2008, 4:30 PMWELCOM TO BE THE MEMBER OF brandshop68. com

We are an electronic products wholesale .Our products are of high quality and

low price. If you want to do business , we can offer you the most reasonable

discount to make you get more profits. We are expecting for your business. Please visit our website: http://www.brandsho p68.com MSN :brandshop998@ hotmail.com

E-mail : brandshop68@ .cn

------------ --------- --------- ------

[Guest guest]

Me, too! All I got from the link was a blank page. ???Ev

what is this??

Suzi

List Owner

health/

http://360./suziesgoats

What is a weed? A plant whose virtues have not yet been discovered.

From: <deuteronomy2929@...>Subject: Hello"Heidi Burke" <hburke76@...>, "carolG" <cgiambri@...>, "Connecting Colorado" <coloradoworkforcecenter@...>, deuteronomy2929@..., " Doerner" <ejdoerner@...>, " Doerner" <vecus28@...>, "Jon Gettings" <JGettings@...>, "Guido" <guido2008@...>, "Duane and Jacquee Hagans" <duanehagans@...>, , " Herren" <raherren@...>, " Hidalgo" <michael@...>, "Brittany Holzmann" <torreynerd@...>, "Luke Holzmann" <tomysky@...>, info@..., "Janet" <dragonhealing@...>, "Jen" <jc_angel77@...>, "" <deuteronomy2929@...>, "Hazel " <hazelj@...>, "Josh" <e.corvis@...>, "Mandy Lester" <mandylester@...>, "a Lindstrom" <zzintheredvw@...>, "Marilyn" <mrsmimi2001@...>, "McKoy" <jesusrocks73@...>, "OnlyYbarras" <mrsmimi2001@...>, "Gayla " <aeranch@...>, "Suzi" <suziesgoats@...>, "" <freshtrav97@...>, "Virginia" <vidhagans@...>, " " <jamesindenver@...>, " Y" <greywolf52929@...>, " Ybarra" <johnybarra06@...>Date: Monday, June 30, 2008, 4:30 PMWELCOM TO BE THE MEMBER OF brandshop68.com

We are an electronic products wholesale .Our products are of high quality and

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discount to make you get more profits. We are expecting for your business. Please visit our website: http://www.brandshop68.com MSN :brandshop998@...

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------------------------------------

[Guest guest]

, set AVG to scan all incoming and

outgoing mail automatically; you really don’t need Mac or Norton for

that.

Janet

From: health [mailto:health ] On Behalf Of

Sent: Tuesday, July 01, 2008 3:37

AM

health

Subject: Re:

Hello

This

sucks! It appears that my email got infected yesterday. I didn't send it,

sorry.

Once I

saw it, I ran both Norton (was on the computer when I got it) and MacAfee

(got it with ComCast bundled internet/phone/cable), neither found

anything. Then ran AVG free antivirus, and there it was.

It

doesn't appear harmful, just irritating as all heck!

--- On Mon, 6/30/08, Suzanne <suziesgoats >

wrote:

From: Suzanne

<suziesgoats >

Subject: Re: Hello

health

Date: Monday, June 30, 2008, 11:37 PM

what is this??

Suzi

List

Owner

http://health.

groups.. com/group/ HAWK_Health_ Awareness/

http://360.. com/suziesgoats

What is a weed? A plant whose virtues have

not yet been discovered.

--- On Mon, 6/30/08, <deuteronomy2929>

wrote:

From:

<deuteronomy2929>

Subject: [HAWK_Health_ Awareness] Hello

" Heidi Burke " <hburke76gmail (DOT) com>, " carolG "

<cgiambri (DOT) com>, " Connecting Colorado "

<coloradoworkforcece ntercsd (DOT) net>, deuteronomy2929@ gmail.com,

" Doerner " <ejdoerner (DOT) com>, "

Doerner " <vecus28 (DOT) com>, " Jon Gettings "

<JGettings@denrescue .org>, " Guido " <guido2008comcast (DOT)

net>, " Duane and Jacquee Hagans " <duanehagans@ sbcglobal.

net>, hawk_health_ awareness, "

Herren " <raherrencox (DOT) net>, " Hidalgo "

<michael@denverchurc h.org>, " Brittany Holzmann "

<torreynerdgmail (DOT) com>, " Luke Holzmann " <tomyskygmail (DOT)

com>, infodenverchurch (DOT) org, " Janet " <dragonhealing@

comcast.net>, " Jen " <jc_angel77 (DOT) com>,

" " <deuteronomy2929>, " Hazel

" <hazeljsnowcrest (DOT) net>, " Josh "

<e.corvisgmail (DOT) com>, " Mandy Lester " <mandylester@

hotmail.com>, " a Lindstrom " <zzintheredvw@

>, " Marilyn " <mrsmimi2001>,

" McKoy " <jesusrocks73@ hotmail.com>,

" OnlyYbarras " <mrsmimi2001@ comcast.net>, " Gayla "

<aeranchgmail (DOT) com>, " Suzi " <suziesgoats@

>, " " <freshtrav97>,

" Virginia " <vidhaganshotmail (DOT) com>, "

" <jamesindenver@ gmail.com>, " Y "

<greywolf52929>, " Ybarra " <johnybarra06@

comcast.net>

Date: Monday, June 30, 2008, 4:30 PM

WELCOM TO BE THE MEMBER OF brandshop68. com We are an electronic products wholesale .Our products are of high quality andlow price. If you want to do business , we can offer you the most reasonablediscount to make you get more profits. We are expecting for your business. Please visit our website: http://www.brandsho p68.com MSN :brandshop998@ hotmail.com E-mail : brandshop68@ .cn ------------ --------- --------- ------

[Guest guest]

Yup, that's what I did.

From: <deuteronomy2929>Subject: [HAWK_Health_ Awareness] Hello"Heidi Burke" <hburke76gmail (DOT) com>, "carolG" <cgiambri (DOT) com>, "Connecting Colorado" <coloradoworkforcece ntercsd (DOT) net>, deuteronomy2929@ gmail.com, " Doerner" <ejdoerner (DOT) com>, " Doerner" <vecus28 (DOT) com>, "Jon Gettings" <JGettings@denrescue .org>, "Guido" <guido2008comcast (DOT) net>, "Duane and Jacquee Hagans" <duanehagans@ sbcglobal. net>, hawk_health_ awareness, " Herren" <raherrencox (DOT) net>, " Hidalgo" <michael@denverchurc h.org>, "Brittany Holzmann" <torreynerdgmail (DOT) com>, "Luke Holzmann" <tomyskygmail (DOT) com>, infodenverchurch (DOT) org, "Janet" <dragonhealing@ comcast.net>, "Jen" <jc_angel77 (DOT) com>, "" <deuteronomy2929@

>, "Hazel " <hazeljsnowcrest (DOT) net>, "Josh" <e.corvisgmail (DOT) com>, "Mandy Lester" <mandylester@ hotmail.com>, "a Lindstrom" <zzintheredvw>, "Marilyn" <mrsmimi2001>, "McKoy" <jesusrocks73@ hotmail.com>, "OnlyYbarras" <mrsmimi2001@ comcast.net>, "Gayla " <aeranchgmail (DOT) com>, "Suzi" <suziesgoats>, "" <freshtrav97>, "Virginia" <vidhaganshotmail (DOT) com>, " " <jamesindenver@ gmail.com>, " Y" <greywolf52929>, " Ybarra" <johnybarra06@ comcast.net>Date: Monday, June 30, 2008, 4:30 PMWELCOM TO BE THE MEMBER OF brandshop68. com We are an electronic products wholesale .Our products are of

high quality andlow price. If you want to do business , we can offer you the most reasonablediscount to make you get more profits. We are expecting for your business. Please visit our website: http://www.brandsho p68.com MSN :brandshop998@

hotmail.com E-mail : brandshop68@ .cn ------------ --------- --------- ------

[Guest guest]

Welcome. This group is extremely supportive. I have RA/fibromyalgia

for the past 7 years. Just know you don't have to go through it alone.

>

> I am new to the group. I was diagnosed with rheumatoid athritis just

a

> few hours ago. I'm here to make friends who understand and offer

moral

> support.

>

[Guest guest]

Southernangel,

Welcome to the group. You are in the right place to get advice, have

questions answered, or just to vent. We are here for you, this group is

wonderful. I have learned so much since joining.

Heidi M

On Wed, Jul 16, 2008 at 6:38 PM, <man_u8@...> wrote:

> Welcome. This group is extremely supportive. I have RA/fibromyalgia

> for the past 7 years. Just know you don't have to go through it alone.

>

>

>

>

> >

> > I am new to the group. I was diagnosed with rheumatoid athritis just

> a

> > few hours ago. I'm here to make friends who understand and offer

> moral

> > support.

> >

>

>

>

[Guest guest]

Thank you guys. My biggest problem right now is dealing until the

medicine starts working and dealing with the shock of it. I have an

8 year old daughter and it scares me that I may become limited in

what I can do with her. Hopefully, this will progress slowly enough

that it won't be a problem. But then I think about grandchildren

and everything I'd want to do with them. I know I am thinking a

long time in the future. I suppose it's normal though?

> > >

> > > I am new to the group. I was diagnosed with rheumatoid

athritis just

> > a

> > > few hours ago. I'm here to make friends who understand and

offer

> > moral

> > > support.

> > >

> >

> >

> >

>

>

>

[Guest guest]

Once I was diagnosed and on meds (I had three sons that needed me at the time) I

was almost back to normal. I do everything, I even just started pilates to keep

limber, losing some weight would help alot though too, just so hard for me.

When I first went to my rheumy I could do nothing, now you wouldn't even know I

have RA. Yes, there is some joint that is a little painful every day but I just

look past it and take an over counter pain pill if it's really bad. Good luck

to you.

[ ] Re: Hello

Thank you guys. My biggest problem right now is dealing until the

medicine starts working and dealing with the shock of it. I have an

8 year old daughter and it scares me that I may become limited in

what I can do with her. Hopefully, this will progress slowly enough

that it won't be a problem. But then I think about grandchildren

and everything I'd want to do with them. I know I am thinking a

long time in the future. I suppose it's normal though?

> > >

> > > I am new to the group. I was diagnosed with rheumatoid

athritis just

> > a

> > > few hours ago. I'm here to make friends who understand and

offer

> > moral

> > > support.

> > >

> >

> >

> >

>

>

>

[Guest guest]

, would you mind saying what meds seemed to help you the most? I am still

floundering and now my doc wants me to do Remicade. Thanks a lot a

Re: [ ] Re: Hello

._,_.___

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[Guest guest]

a, I started out 9 years ago on 3 mtx a week, folic 2x a day, I added

Remicade last July because my doc said it was less toxic on the body. Well,

after each infustion (except 1) I got an infection that I needed a antibiotic

from the primary. So, after switching to a new rheumy (same practice, different

doc, long story) we are dropping the Remicade and I'm probably going to go to

Orencia with the plan to be able to drop the mtx if it works. I hope this hleps

you. in PA

Re: [ ] Re: Hello

._,_.___

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[Guest guest]

Thank you very much . Im going to research Orencia a

Re: [ ] Re: Hello

._,_.___

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[Guest guest]

WELCOME SOUTHERNANGELL, this ra group is awesome! gina is an angel herself. if

there's something we don't understand or don't know she tries to find the

answer. SHE'S AWESOME!! i have an 11 yr.old i know how u feel, but u know what

they learn to deal & my alyssa is an ANGEL in disguise!!! alyssa is a GREAT lil

helper & she is more compassionate,loving,caring, & considerate towards people

who r different. usally kids now a days r so ignorant!!!!!

when i was at orientation with alyssa,she's entering middle school the kids were

so rude. as i was walking down the ramp the boys were blocking it, i said excuse

me one boy replied, YOU'RE EXCUSED! i just turned around & looked at him then

walked away..

when i was getting into the car that same boy who was with the other boys, came

to me & to my dismay APOLOGIZED!!

so i believe it's up to the parents to teach thier kids about how everyone not

being the same!!

i to think every single day what if i get worse & i can't handle or care for

alyssa but then i STOP & THINK, alyssa will LOVE

me no matter how i am!!! yes i have limitations but where there's a will there's

a way & i live that MOTTO every day!!!

she is my " MIRACLE " BABY so i don't ever question god or anything else!! i leave

it up to god cuz he has a PLAN

for each & everyone of us... so try not to WORRY too much & take one day at a

time cuz that's all we can really do.

LIVE EACH DAY TO THE FULLEST!! god bless,melyndagamez 7/17/08

[ ] Re: Hello

  Thank you guys. My biggest problem right now is dealing until the

  medicine starts working and dealing with the shock of it. I have an

  8 year old daughter and it scares me that I may become limited in

  what I can do with her. Hopefully, this will progress slowly enough

  that it won't be a problem. But then I think about grandchildren

  and everything I'd want to do with them. I know I am thinking a

  long time in the future. I suppose it's normal though?

 

  > > >

  > > > I am new to the group. I was diagnosed with rheumatoid

  athritis just

  > > a

  > > > few hours ago. I'm here to make friends who understand and

  offer

  > > moral

  > > > support.

  > > >

  > >

  > >

  > >

  >

  >

  >

[Guest guest]

a, not everyone has a problem with Remicade, don't count it out because of

my experience.

Re: [ ] Re: Hello

._,_.___

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[Guest guest]

Southernangell,

I know its hard to hink you won't be able to do things with the grankids

but stop right now, put down things you want to do with them, and map out a

plan. If you want to take them swimming do it but be able to spend time with

them.

HeidiM

On Thu, Jul 17, 2008 at 1:44 PM, southernangell <southernangell@...>

wrote:

> Thank you guys. My biggest problem right now is dealing until the

> medicine starts working and dealing with the shock of it. I have an

> 8 year old daughter and it scares me that I may become limited in

> what I can do with her. Hopefully, this will progress slowly enough

> that it won't be a problem. But then I think about grandchildren

> and everything I'd want to do with them. I know I am thinking a

> long time in the future. I suppose it's normal though?

>

>

> > > >

> > > > I am new to the group. I was diagnosed with rheumatoid

> athritis just

> > > a

> > > > few hours ago. I'm here to make friends who understand and

> offer

> > > moral

> > > > support.

> > > >

> > >

> > >

> > >

> >

> >

> >

[Guest guest]

Hi Southernangell,

Sorry about your diagnosis. You are doing the right thing by arming

yourself with as much information as you can get. Life is not over

by any means. You will learn from many of the members that some

still work, run and do most anything that they enjoy. We just learn

to work around our RA. Everyone is different so no text book or case

study can cover that.

You most valuable weapon in this battle is optimism; don't loose it.

Hang in Lady, I promise it isn't the end.

Welcome to the group.

Shirley

> > >

> > > >

> > > > I am new to the group. I was diagnosed with rheumatoid

> athritis just

> > > a

> > > > few hours ago. I'm here to make friends who understand and

> offer

> > > moral

> > > > support.

> > > >

> > >

> > >

> > >

> >

> >

> >