Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 When I try to turn Ben's head left to right it seems very stiff going to the right. He doesn't cry when I turn his head in the right direction but it seems as if he is uncomfortable. Should I just wait until the 4 month appt to ask about torticollis-or do I need to see someone as soon as possible? > Hi , > Welcome to the group and congrats on new baby boy Ben! We also had a vaccuum > sore (it was a large pop that I was not happy about either- but he was > severely stuck and at the point of no return). I felt bad too because we > didn't see it right away, and of course people holding him didn't understand > why he would cry, then we found the spot! This was not his main problem for > getting flat though, he developed torticollis inutero (tight neck muscle). > Does your son have full rotation, left and right (does he lay on your chest > and lay his head flat in both directions?). Sounds very plausible that he > was in pain and avoided that side of his head, causing the flatness on the > opposite side. Do you think this constant favoring may have tightened or > stiffened up the muscle on the opposite side from less use? Now that the > sore is healed, he may now have a preference that is working against him. In > any case, do your best to reposition as much as possible, there have been > success stories from repositioning alone, and the less time spent overrall on > the back of the head, the better. Encourage tummy time, make it fun by > putting colorful things close by, or put him on the bed while you look at him > from below. Your Doctor sounds very knowledgeable and helpful regarding > treating plagio, so at least your on the right track with a good medical > professional on your side. Check the progress of your repo efforts with a > weekly pic, wet hair, from the top (with a small baby you can lay them down > and do this). We also found that putting our fingers just barely in the ears > and looking from above will let you know if the ears are lined up or not. > Good luck and keep on top of repositioning now as much as possible! Please > keep us posted and feel free to ask all the questions you can think of! > > ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Hi, I wouldn't wait until 4 months old to start physical therapy if he does have tort. It is best to that resolved as soon as possible and that will help you with your repositioning efforts. One of the links I gave you shows how to stretch the baby. Maybe you can make an appointment with your pediatrician and mention your concerns about possible torticollis? > > Meg- > > Welcome to the group and congrats on the birth of your baby! > > You can get some great repositioning ideas at > > http://www.plagiocephaly.org/support/repotech.htm > > Sounds like your son may have torticollis (tight neck muscle) from > > the vacuum. Is he is Physical Therapy? My son had tort and it > does > > make repositioning challenging. > > The good news is that it seems that you have great doctors. Ben is > > at a great age for correction. > > Keep us posted! > > > > Dane's mom DOC Grad > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Thanks everyone, I am going to go ahead and give me ped. a call today. See what he thinks. I'll keep ya updated. Once again thanks to all of you for all the info. I'll be back! > Hi, > I wouldn't wait until 4 months old to start physical therapy if he > does have tort. It is best to that resolved as soon as possible and > that will help you with your repositioning efforts. One of the links > I gave you shows how to stretch the baby. Maybe you can make an > appointment with your pediatrician and mention your concerns about > possible torticollis? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 > When I try to turn Ben's head left to right it seems very stiff going > to the right. He doesn't cry when I turn his head in the right > direction but it seems as if he is uncomfortable. Should I just wait > until the 4 month appt to ask about torticollis-or do I need to see > someone as soon as possible? > - I would get him in PT ASAP. The younger start with tort the better. We tried repositioning Dane, but I believe the tort caused us to fail. Make sure you get a pediatric PT with tort experience. Dane's first PT discharged him twice when he obviously still had it. She didn't have a clue! Dane's mom DOC Grad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2003 Report Share Posted February 13, 2003 Welcome to the group, Niki! I have Raynaud's also. I'm in Illinois, and this winter has been so cold that I've had to be extra careful. Even so, I've had a couple of attacks. Unfortunately, not only are the routine lab tests in rheumatology not all that spectacular, very few things are standardized. The methods used for performing the tests and the way in which the results are reported vary from lab to lab. It's frustrating and can lead to a lot of confusion. Hope to learn more about you, [ ] hello > Hi > I saw your group on-line and decided to join. I suffer from > reynauds mostly everyday especially in the winter! I was curious > if any of you know, why lab tests differ from lab to lab. Isn't that > odd? For instance a 33 RF is neg in one lab and pos in the > other. Anyway hope all is well > niki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2003 Report Share Posted February 14, 2003 Welcome to our group Niki. Different methods are used by different labs and the results are not always comparable. That is why you have to use the lab's reference range. Understanding your lab tests: http://labtestsonline.org/understanding/index.html a > Hi > I saw your group on-line and decided to join. I suffer from > reynauds mostly everyday especially in the winter! I was curious > if any of you know, why lab tests differ from lab to lab. Isn't that > odd? For instance a 33 RF is neg in one lab and pos in the > other. Anyway hope all is well > niki > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2003 Report Share Posted March 23, 2003 Welcome to our group! Sorry to hear that you have such a long history of illness, but I'm glad that you have a doctor you can trust. It's frustrating when those around you don't understand, but it is a very common problem. Come and talk to us whenever your need to. I'm glad that Minocin and water therapy are helping you and your RA. Hope to learn more about you soon. [ ] Hello > I am new to this group, although I have been reading threads for > awhile. > It is difficult to talk about RA around my house. People are not > aware of all the things I can't do. And, I don't understand it, since > they live with me. I have had it for 7 years and got RA after a > life and death drug reaction, to a NSAID. > As a drug sensitive person, I can't use a lot of the RA drugs out > there like Steroids, NSAIDS (except asprin). The RA doc didn't get > this..so, > I went to my family doctor and told him, if a doctor is going to take > me out, I want it to be you. I am so thankful to have a doctor who > knew me before this disease hit. > I was in school at the time and my family doctor watched how I > reacted to the drugs, by checking my report cards. It was a tough > couple years trying out new drugs and trying to study. > When you are in extreme pain or throwing up,or snapping tendons, > school suffers.. > I researched RA and found that trials were being done using minocin > (a tetracycline type drug). I have been on minocin for 6 years now > and while the RA progresses, the drugs did slow it down a lot. I have > flairs... > I got certified in Water aquatics so I would have use of a warm pool > (85 degrees minimum) > Pool therapy helps a lot! It has kept me standing and built muscles. > Every muscle helps :-) > Well, that's my story in a nutshell.... > Thanks for letting me share it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2003 Report Share Posted March 23, 2003 Just returned from an inspiring spiritual retreat. On Friday night we were asked to tell the group who we wanted to hold up in the prayer intentions for the weekend. I happily responded, " my new RA Support group friends. " So everyone, know you received lots of prayers this weekend, God's peace, Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 Welcome, in AR! Sorry to hear about your SLE and FMS diagnoses. What meds are you currently on? Looking forward to learning more about you. [ ] Hello > Hello everyone. I just joined this group and I am looking forward to > meeting you. A little about me. I am 28 and live in central > Arkansas. I was diagnosed with SLE and FMS a little over 2 years ago > following back surgery. I am anxious to here if any of ya'll have > found any meds that help. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 Hi , Welcome to the group. Hugs, Alan > Welcome, in AR! > > Sorry to hear about your SLE and FMS diagnoses. What meds are you > currently on? > > Looking forward to learning more about you. > > > > > [ ] Hello > > > > Hello everyone. I just joined this group and I am looking forward to > > meeting you. A little about me. I am 28 and live in central > > Arkansas. I was diagnosed with SLE and FMS a little over 2 years ago > > following back surgery. I am anxious to here if any of ya'll have > > found any meds that help. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Jan, This site has several ideas: http://loricase.com/faq.html Thanks for sharing your mom's prize recipes. It must be interesting to see the way they cooked many years ago. a > Hello everyone! > > I was up at 3:30 and was able to back to bed at 6:30 for another hour and a > half. But during that time, I got out my mother's old notebook with recipes > and other tidbits. It was fun going through it as it had been my mother's > prized possession and she rarely let anyone look at it (paranoia). When she > died 4 1/2 years ago, I just put it away for another time and I guess this > morning was the time. Does anyone have a secret they will share for > preserving old papers? It has begun to deteriate badly even though before I > put it away, it was put into a large ziploc bag to protect it. > > There are many, many recipes and songs from the late 20's plus dates and names > of quite a few of our family tree. All hand written. Some of the crazy > things stuck into were a couple of package wraps (flat) that you and I > probably would have thrown away. I don't know in what decade they were put > in, however it shows how times have changed. One was paper that probably was > on a cookie sheet (like today) telling what you would get in this cookie sheet > if you bought it............the price was .72 cents. Another was from Cake > Mate that had 4 decorating tips and a flower nail for icing tubes.........36 > cents. > > There were usual recipes for making things we take for granted buying at the > store such as mayonaise, catsup, picnic buns, and mincemeat. > > I picked two to send you today. > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > Vegetable Casserole: > > Place in layers in greased baking dish.......2 cups cooked rice, 1 cup peas, 1 > cup corn, 2 tsps minced onion.......until casserole is filled. > Add 1 1/2 cups milk to which has been added 1/4 tsp paprika, 1 tsp salt. > Place 3 strips of bacon on top. > Bake until browned at 350 to 400 degrees. > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > Gumdrop Cookies > > 1 cup shortening 1 cup sugar > 1 eggs beaten 1 tsps cold water > 1 tsp vanilla 2 cups cake flour > 2 tsp baking powder 1 tsp baking soda > 2 cups rolled oats 1 cup shredded cocanut > > Cream shortening and sugar. > Add eggs, cold water, and vanilla. > Sift dry ingredients and add to creamed mixture. > Add rolled oat, cocanut and gumdrops. > Mix well. > Drop from spoon ont ungreased cookie sheet. > Bake at 350. 10 - 12 minutes. > Yield: apprx. 4 dozen. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 Thank you a. You have come through again when needed. I have accessed it but all of a sudden my printer isn't working. I'll have to fiddle with it or get my neighbor to come over. The site is full of information and I realize that plastic ziploc bag probably helped it deteriate even more in the nearly 5 years than all the nearly 70 years my mother had it in a kitchen drawer. My friend " Gabby Gut " that joined awhile back when I was ill and she emailed the group to let you know why I hadn't been there, has been having major computer problems as a virus has gotten into it. It's even a fairly new one but she is thinking the only way to really eradicate the virus is to replace the computer. She asked me to let you and all the others know that as soon as she is able, she will be back online. Also, her RA and psorasis has been giving her a bad time, so please keep her in your thoughts and prayers. Thanks again. (((hugs))) Jan T a <paula54@...> wrote: Jan, This site has several ideas: http://loricase.com/faq.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Thanks for checking in and letting us know you are ok. a > Just a quick note to say hello and let you all nothing's changed but > I'm still here > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Yes, Chelle, thanks for popping in. How is the methotrexate working? Re: [ ] Hello > Thanks for checking in and letting us know you are ok. > a > > > > Just a quick note to say hello and let you all nothing's changed but > > I'm still here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2003 Report Share Posted June 8, 2003 Lynn, I hope you get in to see the GI doctor soon and they agree to try the enzymes. I started taking them several months ago when I read that digestive enzymes help inflammation. Our Health Co-op has good prices on pancreatic enzymes, which is what I take: http://www.ourhealthcoop.com/ourhealth_pan.htm I'm curious to see what your doctor thinks of them. This weather is out of control. It is so depressing. It rained so hard here today that our property is flooded. I'm afraid my herb garden is going to die from root rot. I've had some pretty achy days but I keep saying summer is going to get here one day. I hope I don't mildew waiting for it to happen. Hugs, a > Hi a, > I talked to the doctor this morning about the enzymes. He agreed > that they may help but he wants me to talk to the GI doctor. I don't > think he wanted to step on anyone's toes. I told him all about what I > read, even said I would e-mail it to him. So I will have to wait until > I see her. At least he gave me something for the pain. The GI doc > didn't really want to. I can't wait until I see the pain management, > the pain is terrible. Maybe this drug will help enough so I don't have > to do pain management. > Isn't our weather terrible. I sat outside yesterday and just enjoyed > the sun on me, it felt so good. But here we are today back with the > rain. I think I saw on the news it will rain for the next couple of > days. I bet this weather is making your jaw ache. > You are in my thought, > Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 Hi Donna, Welcome to the group. I just wanted to share with you that I have a baby who was DOCbanded on the younger side as well. She was casted at 4 months and has been in her band for about 5 weeks now and has seen wonderful correction. You can see pictures of her correction in the first couple weeks in the " Hannah B " folder. Her plagio was considered severe and the ortho told us last week that she could be done in two more weeks! When they're so young it's amazing how fast their heads round out. Our insurance hasn't paid anything yet, but remember you can always appeal their decision. This group is wonderful and has been so helful for me. I'm glad you found it too! Good luck with everything. , mom to Hannah DOCbanded 5/12 Cape Cod, Ma > Hi My name is Donna and I live in Phoenix Arizona. I am a proud momma > of two wonderful boys, Jaxon 15 months, and Xavier 2.5 months. I > noticed Xavier's head shape when he was around 6 weeks old and his > ped referred me to cranial technologies. We have seen them twice now > and we all think his little head is getting worse. We go back in a > month to decide if we are going to get the band. I am on AHCCS so I > am not sure if they are going to cover any of it but we are willing > to make payments to get this done. I wanted to join this group to get > some info about plagiocephaly and meet parents that are going throuhg > the same thing we are. I am a member of another mother group on > and I absolutley love it. > Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 Hi there Donna!! Glad you found this group as well. There are a bunch of wonderful parents here, with lots of knowledge in plagio and cranial molding devices. Boy, you are on top of things and so is your ped!! Way to go mom and doc!!! You are very lucky to have a ped that even knows what it is. Please keep us updated on how Xavier is progressing and when/if he gets banded. Cranial Tech is truely wonderful. Dustie, mom to , DOC Grad '03 > Hi My name is Donna and I live in Phoenix Arizona. I am a proud momma > of two wonderful boys, Jaxon 15 months, and Xavier 2.5 months. I > noticed Xavier's head shape when he was around 6 weeks old and his > ped referred me to cranial technologies. We have seen them twice now > and we all think his little head is getting worse. We go back in a > month to decide if we are going to get the band. I am on AHCCS so I > am not sure if they are going to cover any of it but we are willing > to make payments to get this done. I wanted to join this group to get > some info about plagiocephaly and meet parents that are going throuhg > the same thing we are. I am a member of another mother group on > and I absolutley love it. > Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 Hello Donna and welcome! Wow - you must be one busy momma caring for two young boys! It's great that you have caught this problem early and are right on top of things. At 2.5 months you should have time to watch for another month or two and then decide whether or not to band. In the meanwhile I assume you are trying some aggressive repositioning and increased tummy time? If not I would suggest that. You can find some repositioning techniques at www.plagiocephaly.org/support. Increasing supervised tummy time is also a very good idea. Babies don't always like it at first, but they adjust over time and the benefits are well worth the struggle to begin with. Good luck to you and your boys and please be sure to keep us posted. Marci (Mom to ) Oklahoma > Hi My name is Donna and I live in Phoenix Arizona. I am a proud momma > of two wonderful boys, Jaxon 15 months, and Xavier 2.5 months. I > noticed Xavier's head shape when he was around 6 weeks old and his > ped referred me to cranial technologies. We have seen them twice now > and we all think his little head is getting worse. We go back in a > month to decide if we are going to get the band. I am on AHCCS so I > am not sure if they are going to cover any of it but we are willing > to make payments to get this done. I wanted to join this group to get > some info about plagiocephaly and meet parents that are going throuhg > the same thing we are. I am a member of another mother group on > and I absolutley love it. > Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 Nice to hear from you, Iris! I wish you were feeling better, but I was wondering what was up with you. You should come here to vent anytime. Your problems are serious - no fair comparing to others! It's against the rules, don't ya know? Your physician is concerned about your WBC since it is your white blood cells that help fight infection. When you are on drugs like MTX, the fear is that the immune system will be suppressed so much that it will be unable to adequately respond to an infection should one develop. MTX and other DMARDs can cause bone marrow toxicity. What surgery is your physician recommending? [ ] Hello > Hi and a and all you RA friends, > > I hope that you are all doing ok. I have been thinking of you often and praying for all. I have > finally managed to delete all of the email I have had stacked up from June. I am finished with my > part time temp job and I am grateful. It was so hard standing up 15 hours a week. I would have to > go to bed for a couple days after working 5 hours a day on Thursday-Saturday. > > I saw my rheumy yesterday and he upped my MTX from 6 to 8 and then called today and lowered it > down to 7.5 due to my liver enzymes being off. My WBC is still below 3 and the bas is low. For the > past 5 months he has said at every visit that he continues to be concerned about the WBC...what > does that mean. I am still flaring with lots of hand pain and now I am having a hard time walking > because my hip is hurting from the front. It has always hurt from the backside but never the > front. It is very hard to get up, stand up straight, and get going. I am so weary. I have been > extremely tired and sleeping more than normal. > > I am to the point that I am considering stopping the MTX. I am having intense pain anyway; so why > should I take it and have these other problems that it is causing. My insurance ends on the 18th > and I won't be able to see the rheumy anyway. After my MRI came back showing why I am having pain > down my leg my doc said that I have two choices...continue taking pain meds and living with it or > have surgery. It seems as though everyone that I know that has back surgery does not recommend it. > > I haven't heard anything about disability yet but I'll let you know. I am feeling pretty down in > the dumps trying to deal with all of this but yet when I think of the terrible trials that some of > us have gone through, I feel like I shouldn't be so self-absorbed. > > I have been following your pre-wedding festivities, Tess. I wish Gen many years of happiness. Stop > and smell the roses and give yourself a few minutes to take care of Tess. Has anyone heard from > Heidi? We definitely need a picture of Fabien. Kathi...are you doing better with your allergic > reaction? a...how are you feeling? Judi...sounds as though you have been busy as always. > ...I finally got to the articles you sent me on spondyloarapathies...thanks. Alan...did you > ever find out what was going on? Marge...how is it going? Joy...I was so sorry to hear of your job > loss. As one who is still dealing with that, I feel for you. ...I haven't seen your name > recently. Are doing ok? Elaine...I wish you were my advocate dealing with the SSI as your advice > was most excellent. Lynn...congrats on the new addition. Debs...I hope that you are with your boys > and feeling well. Jan...do people send you all of the inspirationals or do you find them? I hope > that you west coast gals are doing well and that the Elf in Georgia is behaving herself. Hi Kathy > and Stacey if you are out there. If I missed any of you, it is because your postings got lost in > the 600 I had to go through. Hi to all of you newbies, I'll get to know you as we go along. > > Carol got back the digital photos that we took during her visit here and she is going to post some > of them. You won't be able to use your imagination any more. It is so funny how we can picture > someone totally different than they turn out to be. > > Great big healing hugs to you all. Iris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 hi iris, glad you are working and i can believe it is hard to stand that long. i give you credit. my computer screen is looking really wierd. everything is really big and the colors on my desktop are kinda strange. hope this comes through ok. sorry the mtx isn't working. so far i am holding out pretty well on it after a very rocky start. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 Hi Amy, You're very welcome! How is your daughter adjusting to her band? What clinic are you going to? Welcome to the group. --- In Plagiocephaly , " Amy " <cartoondollyaddict@y...> wrote: > Hi all Im a new member my daughter just got her first band last > wendsday. At 8 months. i already got so much info from this group i > just wanted to say thank you theres not alot of info on the net > about doc bands it was pretty scary when we were told she had a flat > spot. this board really helped me see that getting the band was best > for her Thank you all! > > Amy & Laurel 11-30-02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 Hi Amy and welcome! This board has been *great* for me as well. I think you'll be very pleased with Laurel's DOC Band. My son started treatment at 7 months and he is done very soon! Good luck - Rhonda Mom to Collin - DOC Banded 4/30/03 (at 7 mos.) http://www.collingillespie.com http://www.preciousbambino.com -----Original Message-----From: Amy [mailto:cartoondollyaddict@...]Sent: Monday, August 04, 2003 4:22 PMPlagiocephaly Subject: HelloHi all Im a new member my daughter just got her first band lastwendsday. At 8 months. i already got so much info from this group ijust wanted to say thank you theres not alot of info on the netabout doc bands it was pretty scary when we were told she had a flatspot. this board really helped me see that getting the band was bestfor her Thank you all!Amy & Laurel 11-30-02For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2003 Report Share Posted August 4, 2003 Hi Amy and Welcome!! This board was great for me as well! I love this place and can't seem to leave! hehe.....Please keep us updated on your little wee one's progress. Hey, do you have any pictures you could post? We love to see banded babies around here. Dustie --- In Plagiocephaly , " Amy " <cartoondollyaddict@y...> wrote: > Hi all Im a new member my daughter just got her first band last > wendsday. At 8 months. i already got so much info from this group i > just wanted to say thank you theres not alot of info on the net > about doc bands it was pretty scary when we were told she had a flat > spot. this board really helped me see that getting the band was best > for her Thank you all! > > Amy & Laurel 11-30-02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2003 Report Share Posted August 5, 2003 Welcome Amy and Laurel to the group. We are so glad you found us. Please don't hesistate to ask lots of questions..The board is absolutely wonderful. They really help with the journay through wearing the band. Happy rounding and welcome again! Take care, Randi mom to Drew 8 months DOC grad 7/21/2003 --- In Plagiocephaly , " Amy " <cartoondollyaddict@y...> wrote: > Hi all Im a new member my daughter just got her first band last > wendsday. At 8 months. i already got so much info from this group i > just wanted to say thank you theres not alot of info on the net > about doc bands it was pretty scary when we were told she had a flat > spot. this board really helped me see that getting the band was best > for her Thank you all! > > Amy & Laurel 11-30-02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2003 Report Share Posted August 16, 2003 Hello Patty...Thank you for writing. Seems like the symptoms have subsided a bit. Get a little worse with the hunidity in San Diego, a bit drier up north in Morro Bay. Stomach pain has subsided. Seems to get worse if I am eatinng bad things...chips, etc. As far as medication, I was diagnosed as being hypo at 26, I am 36, been on meds for 10 years, currently on synthroid, 100 mcg, I was on a higher dosage that made me hyper for a little while toward last December. I had implants put in at 33, (saline), I am sure the implants have much to do with what is going on. I had them taken out at the end of June, some things have subsided, night sweats are gone. But as far as the hypothyroidism, it has always been enlarged from the time I was 13. Mom took me to the doctors and they said it was a puberty thing and I would probably out grow it. My grandmother was hypo, she had half removed in the 50's. Hopefully things will get regulated a bit better after I see the endocrinologist. Will try the muscle meds you suggested. We have some, my hubby takes it already, he runs 5 miles a day and can tell when he doesn't take it...take care....off to sight see, then Disneyland monday... S > > From: " *~Patty~* " <fdp@...> > Date: 2003/08/14 Thu PM 08:55:17 EDT > < > > Subject: Re: Re: hello > > , > For the muscle aches, have you tried magnesium supplements? They are supposed to help relax muscles and relieve pains. You could also do an epsom salt bath, taking the time to soak and relax in it. I hope that will be helpful. > > It sounds like the shortness of breath could very well be thyroid related....I am surprised how many women do have thyroid issues. As I was rereading Shomon's book on Hypothyroidism, she did have alot to say about the shortness of breath symptom. > > I am not sure what to say about the stomach pain. I hope someone else will have some experience with this and can give some tips on it. > > So glad you are on vacation and can take some time off to enjoy family. I wish you well, and really hope your symptoms settle down. Are you on any thyroid meds at all? > Patty > ----- Original Message ----- > From: julieyourrealtor@... > > Sent: Thursday, August 14, 2003 5:30 PM > Subject: Re: Re: hello > > > Hello ...Will let you know soon about those labbs I will see my PS the week of the 25th....I am currently on vacation up in Morro Bay with the family. Still having muscle aches in the legs and have to stop to catch my breathe every 20 steps (asthma meds are not helping) feels as though there is a tightness in my chest but I can take a deep breathe, just cannot catch it. When I lay down it feels like my windpipe is being choked off as well. Will let the Endocrinologist know everything on the 27t, pretty sure it is thyroid related. Also terrible upper stomache pain when I walk....ANyone have any ideas or suggestions...thanks .... S > > , For the muscle aches, have you tried magnesium supplements? They are supposed to help relax muscles and relieve pains. You could also do an epsom salt bath, taking the time to soak and relax in it. I hope that will be helpful. It sounds like the shortness of breath could very well be thyroid related....I am surprised how many women do have thyroid issues. As I was rereading Shomon's book on Hypothyroidism, she did have alot to say about the shortness of breath symptom. I am not sure what to say about the stomach pain. I hope someone else will have some experience with this and can give some tips on it. So glad you are on vacation and can take some time off to enjoy family. I wish you well, and really hope your symptoms settle down. Are you on any thyroid meds at all? Patty ----- Original Message ----- From: julieyourrealtor@... Sent: Thursday, August 14, 2003 5:30 PM Subject: Re: Re: hello Hello ...Will let you know soon about those labbs I will see my PS the week of the 25th....I am currently on vacation up in Morro Bay with the family. Still having muscle aches in the legs and have to stop to catch my breathe every 20 steps (asthma meds are not helping) feels as though there is a tightness in my chest but I can take a deep breathe, just cannot catch it. When I lay down it feels like my windpipe is being choked off as well. Will let the Endocrinologist know everything on the 27t, pretty sure it is thyroid related. Also terrible upper stomache pain when I walk....ANyone have any ideas or suggestions...thanks .... S Quote Link to comment Share on other sites More sharing options...
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