Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Dear Nuwee, I highly recommend the books by Burns, MD: Feeling good and The Feeling Good Handbook. They are very comprehensive and address a lot of different strategies for dealing with depression. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 I know how you feel; was a single parent for 18 years and it is scary. Work for me was very important in keeping self esteem. Can you still do makeup and do it sitting on a stool or using a wheelchair? My scooter has the ability to move the seat up and down easily while still sitting. How about doing makeup on your own at people's houses or your own for special occassions/weddings/proms/birthday parties or are your hands too weak to work with the makeup? You can still get SSI as long as you don't make over $800/month ( I believe, though Gretchen can confirm) At least this way you won't have to work for to long of a period of time and still supplement income. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 Hi, Nuwee - - Depression is understandable. I force myself to get out of bed and be out there (I still work - office job- at 72). But if I had to be on feet all day I could not work at all. And now my hands are somewhat affected so handwriting is getting horrible. I, too, am independent - widowed 20 years now - two grown kids - daughter tested positive for CMT1 at age 48. One of her 3 daughters definitely has all the signs but not tested yet. Son has some signs also but refuses testing at this point (he is now 40). Hang in there, I keep telling myself that (and sometimes it works). June from NE Pennsylvania Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2007 Report Share Posted June 29, 2007 I would think many people with conditions such as MS, ALS etc suffer from depression and many of those find LDN actually improves their depression, sometimes very significantly. DLPA can be used to prolong the LDN effect. Do we assume from what you're saying that you have trouble sleeping because the idea behind the timing is that the endorphin blockade should occur when you are asleep so you don't even know it happened. Elaine Baker wrote: > I've been lurking here for a few days. I am a SPMS'er who recently > began taking LDN (about 1 month). I began with 1.5 mg. and progressed > to 4.5, now settling at 3. It just seems to feel right. I have felt > some remarkable improvement on some days. It's enough that I will not > go back, even though I seem to hate all drugs in general. Are any of > you managing depressive issues as well? I have taken Prozac and many > other SRS's for some time. The thought of shutting down my endorphins > for ANY length of time is frightening to say the least. So far, I can > handle it but that 2:00 a.m. is a potential killer for me. Anyone else? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 Hello, I was diagnosed just this year. For the first time in my life I was not strong enough, emotionally to handle something on my own. My Onc suggested some anti-depressants. I am so glad he did. I have been on them just two months and cannot believe how much better I feel, mentally. I plan to stay on the about a year and then wean off. But, in the mean time, I am feeling so much better. Chris ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 basically a feeling of wellness. no other way to explain it. nothing i want to take for life, just to get over the hump. this has been really hard on me and needed a little help. ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 Hi, and welcome to our group. You're very lucky in that you've already won half of the battle and that's because you can recognize that you are depressed. Now what you need to do is talk to your doctor about it. There are a variety of medications out there that can help you feel more " normal " but you need to see your doctor to see which one would be right for you. Please call him/her soon because the sooner your depression is treated, the sooner you can get back to enjoying your life. All the best, Tracey > > I'm a 29 years old male, I was diagnosed on feb 3, 2006. I have been > in remission since October 2006 and i feel pretty bad. I do not know > what is going on, I feel a lot of mood changes, very sad and cry with > no reason. I don't feel like going to work. and I just want to stay > home watching TV. Our economic situation has deteriorated and I'm > scared if I lose my jib I will lose my insurance and I will not have > access to gleevec, and my oncologist. I feel scared and depressed. I > want to be normal. but it is hard to get out of this. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 The depression is part of the desease, not clinically related but I think we all battle it daily. It comes and goes and in my case seems to be brought on by the severity of the side-effects. I don't have a solution for you unfortunately. I've spent hours on my couch too, watching my 3 year old play and not having hte energy to play with him. For a while I would go shopping when I was sad...thereby exasberating the issue of financial worries and making the situation worse, not better. I did have some success by joining a gym and working out when sad. At my gym they have treadmills where you can watch TV while walking. I found this satisfied my couch potato, hate the world, this disease stinks, urges while also giving me some good endorphins and a little help with the weight gain. I have to get back on the wagon with my exercise...I'd had some trouble with motivation over the past two weeks but when I did faithfully go to the gym it definately seemed to help my mood. I also tried Pilates which was great. Although it was a little strange to try to explain why in the middle of an exercise I would stop in excruciating pain (muscle/bone/joint pain) and then join back in later in the class with no problem, but all-in-all it was worth it as the end result was a great workout and not too much strain on my body. Hang in there...good luck and try to do something each day that makes you smile. :} [ ] Depression I'm a 29 years old male, I was diagnosed on feb 3, 2006. I have been in remission since October 2006 and i feel pretty bad. I do not know what is going on, I feel a lot of mood changes, very sad and cry with no reason. I don't feel like going to work. and I just want to stay home watching TV. Our economic situation has deteriorated and I'm scared if I lose my jib I will lose my insurance and I will not have access to gleevec, and my oncologist. I feel scared and depressed. I want to be normal. but it is hard to get out of this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 , I love the last line of your post try to do something each day that makes you smile. > :} > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 > > Hello, I was diagnosed just this year. For the first time in my life I was > not strong enough, emotionally to handle something on my own. My Onc > suggested some anti-depressants. I am so glad he did. I have been on them just two > months and cannot believe how much better I feel, mentally. I plan to stay > on the about a year and then wean off. But, in the mean time, I am feeling > so much better. > > Chris > > > > ************************************** Get a sneak peek of the all-new AOL at > http://discover.aol.com/memed/aolcom30tour > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 Thanks Tracey, It's about all you can do but if you try to do one thing each day it makes the day a bit brighter! :} Re: [ ] Depression , I love the last line of your post try to do something each day that makes you smile. > :} > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2007 Report Share Posted July 27, 2007 Hi all, On the depression issue, I was dxed in April of 04 and have suffered from it in one form or the other since. I am glad anti-depressants have worked for many of you. For me, I have been on four and they have not really did a thing. I also went to therapy and that really did not work. I have had to pull myself out of it. It is hard especially when your economical state takes a nose dive, among other things. Just remember your not alone and talk to somebody if not from this group, to anyone that you trust to listen. I know it is hard for those of us that have lost jobs and are unable to work but hang in there, things will get better. Terry On 7/26/07, lunaemica@... <lunaemica@...> wrote: > > Thanks Tracey, > It's about all you can do but if you try to do one thing each day it makes > the day a bit brighter! > :} > > > Re: [ ] Depression > > , I love the last line of your post > > > try to do something each day that makes you smile. > > :} > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2007 Report Share Posted July 27, 2007 I do have some mood swings some time too and I try to fight this by going out with family, meet my best friends and not stay alone think about my situation. I am taking 1 B-complex pill every day which seems to help. Go for a walk or listen to music sometime it helps to get your mind away from present problems. Due to the fact that you went to remission in such short time is a good news. Just hang in there and remember life is good. God Bless T dxd 1/2003 PCRU 400 mg Gleevec -------------- Original message -------------- From: " guillermobarthelmes " <guillermobarthelmes@...> I'm a 29 years old male, I was diagnosed on feb 3, 2006. I have been in remission since October 2006 and i feel pretty bad. I do not know what is going on, I feel a lot of mood changes, very sad and cry with no reason. I don't feel like going to work. and I just want to stay home watching TV. Our economic situation has deteriorated and I'm scared if I lose my jib I will lose my insurance and I will not have access to gleevec, and my oncologist. I feel scared and depressed. I want to be normal. but it is hard to get out of this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2007 Report Share Posted July 28, 2007 guillermobarthelmes, I understand completely what your going through, I lost my job and as of May of this year my former employer renigged on allowing me to keep my insurance so I am now having to rely on Medicare A & B here in the US. The sad thing is they say I make to much money with my disability to qualify for part D which would cover my prescriptions.(That angers me because it is like I am being punished for having a good job before I became disabled.) I am presently trying to go through the manufacturer to get my gleevec for free until I can figure out something. Right now I am looking into getting a medicare suppliment plan that covers prescriptions. I am very low on my meds and will be out in about 9 days or so. But that is neither here or there. I also as I stated previously still have bouts of depression that come and go, but when I first was dxed in April of 04 I lost it. It is hard I know...You may not appear sick but feel sick, and others do not understand because your not laying in a bed with tubes in you and no hair. One of the head Onco nurses at my docs office explained it best to me..She said that having a chronic disease like we do is sometimes worse than having the more immediate form because it is such a long and drawn out process, and we have to learn to deal with however it changes our lives. Some have little or no side effects and others have moderate to severe. I cannot work and I was a desk jockey. What I try to always keep in mind is there is someone always worse off than me. I know this may not help you right now but just hang in there my friend. If your married do not withdraw from your wife. If she is being supportive especially she is scared I am sure just as much as you are. So do your best to treat her well, the woman I was married to bolted. I am not saying you do not have the right to have what I call your own " pity party " because I sure as hell did and sometimes still do, and I am now married to a wonderful woman, have custody of my son back, and things are looking up.(Except for the lack of prescription coverage) I also even now sometimes cry for no reason myself. We did not ask for the cards we were dealt and I know it is just not fair at all, and sometimes you go through a gambit of emotions. I admit to being slightly envious of those that have little or no side effects and are able to still work, but I am also happy for them too. The main thing is stay on your gleevec and as long as it is working do not get off of it!! What I would also advise you to try to do is find something that interest you as a hobby and do it, be it video games, puzzles, whatever. Just remember we are here and even though we do not know each other and we not talking in person, that is what this group is for. If you need to vent go ahead and do so. If you even want to feel free to email me privately and vent. Sometimes it just might help. Do not be surprised to see me go on a rant here once in a while. In the mean time hang in there. Since your watching TV so much I am not sure what you like to watch but I personally like to watch a cartoon called " Family Guy " , and " Futurama " . I also watch allot of horror and sci-fi stuff, and the history channel. Anyway take care, Terry On 7/27/07, mtadros9@... <mtadros9@...> wrote: > > I do have some mood swings some time too and I try to fight this by going > out with family, meet my best friends and not stay alone think about my > situation. I am taking 1 B-complex pill every day which seems to help. Go > for a walk or listen to music sometime it helps to get your mind away from > present problems. > Due to the fact that you went to remission in such short time is a good > news. Just hang in there and remember life is good. God Bless > T > dxd 1/2003 > PCRU > 400 mg Gleevec > > > -------------- Original message -------------- > From: " guillermobarthelmes " <guillermobarthelmes@...> > > I'm a 29 years old male, I was diagnosed on feb 3, 2006. I have been > in remission since October 2006 and i feel pretty bad. I do not know > what is going on, I feel a lot of mood changes, very sad and cry with > no reason. I don't feel like going to work. and I just want to stay > home watching TV. Our economic situation has deteriorated and I'm > scared if I lose my jib I will lose my insurance and I will not have > access to gleevec, and my oncologist. I feel scared and depressed. I > want to be normal. but it is hard to get out of this. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2007 Report Share Posted July 29, 2007 i am disabled with suvire depression they wont give me any medicare until january of this year. they say the social security office wont give you medicaide anymore so i am having to apply for that doubt i will get it though. i also have heart problems and seizures am on meds for those as well, restless leg syndrom i have that out of my meds for depression and restless leg syndrom right now and cannot get em until i get my messlee check on the third! i am gettin worser and worser depressed sleeping more while my husband took his vacation which ends tomorrow night he has to work and we are raising our beautiful granson who is 14 months old! he sleeps when i do it is like i am his mama or something and when i feel bad it is like he does too, i have had him since he was in the incubator in the hospial his mother is mentally retarded and tried to kill him and herself when her boyfriend 20 years older than her got put in jail! she overdosed on her insulin she is diabetic and many other problems but doesnt get that from me i am her step mother. my kids all hate me and i do want to die but will not try to kill myself i do however scratch and cut myself when someone hurts me , i know i shouldnt but when someone hurts me i wanna hurt myself more becouse i feel like i deserve it, yeah i guess that i am crazy and i too had a great paying job i was an asistant manager at a wwalmart. lots and lts of money but didnt help my depression the managers go through being called into the store and co managers office everyday being threatened to get wrote up or fired just becouse they feel like they have the power to do it it is nothing but a power trip and when i go by and into that store becouse we live in the country see in just cry and cry the whole time people look at me and it is embarrassing. i have seven loads of laundry that i have done all week waiting to be folded and put up and they are sitting right behind my husband who has sat his ass in that chair all week doing nothing but playing free online poker, my 15 year old son cusses me out (mental condition my sie of family) and does what he wants to basically. i cannot control him he is very very bad . been in hospitals and everything else. i have had to have a policeman go pik his but up and bring him home becouse he has taken off on me several times. only two cops in this town lol. we know them but it isnt my fault although i feel if i could keep my kids straight we wouldnt know them ya know. i have noone just have noone. thanks for emaileing tina Re: [ ] Depression guillermobarthelmes , I understand completely what your going through, I lost my job and as of May of this year my former employer renigged on allowing me to keep my insurance so I am now having to rely on Medicare A & B here in the US. The sad thing is they say I make to much money with my disability to qualify for part D which would cover my prescriptions. (That angers me because it is like I am being punished for having a good job before I became disabled.) I am presently trying to go through the manufacturer to get my gleevec for free until I can figure out something. Right now I am looking into getting a medicare suppliment plan that covers prescriptions. I am very low on my meds and will be out in about 9 days or so. But that is neither here or there. I also as I stated previously still have bouts of depression that come and go, but when I first was dxed in April of 04 I lost it. It is hard I know...You may not appear sick but feel sick, and others do not understand because your not laying in a bed with tubes in you and no hair. One of the head Onco nurses at my docs office explained it best to me..She said that having a chronic disease like we do is sometimes worse than having the more immediate form because it is such a long and drawn out process, and we have to learn to deal with however it changes our lives. Some have little or no side effects and others have moderate to severe. I cannot work and I was a desk jockey. What I try to always keep in mind is there is someone always worse off than me. I know this may not help you right now but just hang in there my friend. If your married do not withdraw from your wife. If she is being supportive especially she is scared I am sure just as much as you are. So do your best to treat her well, the woman I was married to bolted. I am not saying you do not have the right to have what I call your own " pity party " because I sure as hell did and sometimes still do, and I am now married to a wonderful woman, have custody of my son back, and things are looking up.(Except for the lack of prescription coverage) I also even now sometimes cry for no reason myself. We did not ask for the cards we were dealt and I know it is just not fair at all, and sometimes you go through a gambit of emotions. I admit to being slightly envious of those that have little or no side effects and are able to still work, but I am also happy for them too. The main thing is stay on your gleevec and as long as it is working do not get off of it!! What I would also advise you to try to do is find something that interest you as a hobby and do it, be it video games, puzzles, whatever. Just remember we are here and even though we do not know each other and we not talking in person, that is what this group is for. If you need to vent go ahead and do so. If you even want to feel free to email me privately and vent. Sometimes it just might help. Do not be surprised to see me go on a rant here once in a while. In the mean time hang in there. Since your watching TV so much I am not sure what you like to watch but I personally like to watch a cartoon called " Family Guy " , and " Futurama " . I also watch allot of horror and sci-fi stuff, and the history channel. Anyway take care, Terry On 7/27/07, mtadros9comcast (DOT) net <mtadros9comcast (DOT) net> wrote: > > I do have some mood swings some time too and I try to fight this by going > out with family, meet my best friends and not stay alone think about my > situation. I am taking 1 B-complex pill every day which seems to help. Go > for a walk or listen to music sometime it helps to get your mind away from > present problems. > Due to the fact that you went to remission in such short time is a good > news. Just hang in there and remember life is good. God Bless > T > dxd 1/2003 > PCRU > 400 mg Gleevec > > > ------------ -- Original message ------------ -- > From: " guillermobarthelme s " <guillermobarthelmes @hotmail. com> > > I'm a 29 years old male, I was diagnosed on feb 3, 2006. I have been > in remission since October 2006 and i feel pretty bad. I do not know > what is going on, I feel a lot of mood changes, very sad and cry with > no reason. I don't feel like going to work. and I just want to stay > home watching TV. Our economic situation has deteriorated and I'm > scared if I lose my jib I will lose my insurance and I will not have > access to gleevec, and my oncologist. I feel scared and depressed. I > want to be normal. but it is hard to get out of this. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 Tina, Big hugs to you! Please hang in there and stay strong. :{ Re: [ ] Depression guillermobarthelmes , I understand completely what your going through, I lost my job and as of May of this year my former employer renigged on allowing me to keep my insurance so I am now having to rely on Medicare A & B here in the US. The sad thing is they say I make to much money with my disability to qualify for part D which would cover my prescriptions. (That angers me because it is like I am being punished for having a good job before I became disabled.) I am presently trying to go through the manufacturer to get my gleevec for free until I can figure out something. Right now I am looking into getting a medicare suppliment plan that covers prescriptions. I am very low on my meds and will be out in about 9 days or so. But that is neither here or there. I also as I stated previously still have bouts of depression that come and go, but when I first was dxed in April of 04 I lost it. It is hard I know...You may not appear sick but feel sick, and others do not understand because your not laying in a bed with tubes in you and no hair. One of the head Onco nurses at my docs office explained it best to me..She said that having a chronic disease like we do is sometimes worse than having the more immediate form because it is such a long and drawn out process, and we have to learn to deal with however it changes our lives. Some have little or no side effects and others have moderate to severe. I cannot work and I was a desk jockey. What I try to always keep in mind is there is someone always worse off than me. I know this may not help you right now but just hang in there my friend. If your married do not withdraw from your wife. If she is being supportive especially she is scared I am sure just as much as you are. So do your best to treat her well, the woman I was married to bolted. I am not saying you do not have the right to have what I call your own " pity party " because I sure as hell did and sometimes still do, and I am now married to a wonderful woman, have custody of my son back, and things are looking up.(Except for the lack of prescription coverage) I also even now sometimes cry for no reason myself. We did not ask for the cards we were dealt and I know it is just not fair at all, and sometimes you go through a gambit of emotions. I admit to being slightly envious of those that have little or no side effects and are able to still work, but I am also happy for them too. The main thing is stay on your gleevec and as long as it is working do not get off of it!! What I would also advise you to try to do is find something that interest you as a hobby and do it, be it video games, puzzles, whatever. Just remember we are here and even though we do not know each other and we not talking in person, that is what this group is for. If you need to vent go ahead and do so. If you even want to feel free to email me privately and vent. Sometimes it just might help. Do not be surprised to see me go on a rant here once in a while. In the mean time hang in there. Since your watching TV so much I am not sure what you like to watch but I personally like to watch a cartoon called " Family Guy " , and " Futurama " . I also watch allot of horror and sci-fi stuff, and the history channel. Anyway take care, Terry On 7/27/07, mtadros9comcast (DOT) net <mtadros9comcast (DOT) net> wrote: > > I do have some mood swings some time too and I try to fight this by going > out with family, meet my best friends and not stay alone think about my > situation. I am taking 1 B-complex pill every day which seems to help. Go > for a walk or listen to music sometime it helps to get your mind away from > present problems. > Due to the fact that you went to remission in such short time is a good > news. Just hang in there and remember life is good. God Bless > T > dxd 1/2003 > PCRU > 400 mg Gleevec > > > ------------ -- Original message ------------ -- > From: " guillermobarthelme s " <guillermobarthelme s @hotmail. com> > > I'm a 29 years old male, I was diagnosed on feb 3, 2006. I have been > in remission since October 2006 and i feel pretty bad. I do not know > what is going on, I feel a lot of mood changes, very sad and cry with > no reason. I don't feel like going to work. and I just want to stay > home watching TV. Our economic situation has deteriorated and I'm > scared if I lose my jib I will lose my insurance and I will not have > access to gleevec, and my oncologist. I feel scared and depressed. I > want to be normal. but it is hard to get out of this. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 Hi Tina So sorry to hear you feel you have Noone..You have us. We are all here for you. It is good to let out your feelings with us here because we all understand. I myself have suffered from depression because of this illness and am on medication for it and it is helping. Keep in touch here and let us know how you are getting on. Best wishes and positive thoughts. Kind Regards Bil in the UK > > > Re: [ ] Depression > > guillermobarthelmes , > > I understand completely what your going through, I lost my job and as of May > of this year my former employer renigged on allowing me to keep my insurance > so I am now having to rely on Medicare A & B here in the US. The sad thing > is they say I make to much money with my disability to qualify for part D > which would cover my prescriptions. (That angers me because it is like I am > being punished for having a good job before I became disabled.) I am > presently trying to go through the manufacturer to get my gleevec for free > until I can figure out something. Right now I am looking into getting a > medicare suppliment plan that covers prescriptions. I am very low on my meds > and will be out in about 9 days or so. But that is neither here or there. > I also as I stated previously still have bouts of depression that come and > go, but when I first was dxed in April of 04 I lost it. It is hard I > know...You may not appear sick but feel sick, and others do not understand > because your not laying in a bed with tubes in you and no hair. One of the > head Onco nurses at my docs office explained it best to me..She said that > having a chronic disease like we do is sometimes worse than having the > more immediate form because it is such a long and drawn out process, and we > have to learn to deal with however it changes our lives. Some have little or > no side effects and others have moderate to severe. I cannot work and I was > a desk jockey. What I try to always keep in mind is there is someone always > worse off than me. I know this may not help you right now but just hang in > there my friend. If your married do not withdraw from your wife. If she is > being supportive especially she is scared I am sure just as much as you > are. So do your best to treat her well, the woman I was married to bolted. I > am not saying you do not have the right to have what I call your own " pity > party " because I sure as hell did and sometimes still do, and I am now > married to a wonderful woman, have custody of my son back, and things are > looking up.(Except for the lack of prescription coverage) I also even now > sometimes cry for no reason myself. We did not ask for the cards we were > dealt and I know it is just not fair at all, and sometimes you go through a > gambit of emotions. I admit to being slightly envious of those that have > little or no side effects and are able to still work, but I am also happy > for them too. The main thing is stay on your gleevec and as long as it is > working do not get off of it!! What I would also advise you to try to do is > find something that interest you as a hobby and do it, be it video games, > puzzles, whatever. Just remember we are here and even though we do not know > each other and we not talking in person, that is what this group is for. If > you need to vent go ahead and do so. If you even want to feel free to email > me privately and vent. Sometimes it just might help. Do not be surprised to > see me go on a rant here once in a while. In the mean time hang in there. > Since your watching TV so much I am not sure what you like to watch but I > personally like to watch a cartoon called " Family Guy " , and " Futurama " . I > also watch allot of horror and sci-fi stuff, and the history channel. Anyway > take care, > > Terry > > On 7/27/07, mtadros9comcast (DOT) net <mtadros9comcast (DOT) net> wrote: > > > > I do have some mood swings some time too and I try to fight this by going > > out with family, meet my best friends and not stay alone think about my > > situation. I am taking 1 B-complex pill every day which seems to help. Go > > for a walk or listen to music sometime it helps to get your mind away from > > present problems. > > Due to the fact that you went to remission in such short time is a good > > news. Just hang in there and remember life is good. God Bless > > T > > dxd 1/2003 > > PCRU > > 400 mg Gleevec > > > > > > ------------ -- Original message ------------ -- > > From: " guillermobarthelme s " <guillermobarthelme s @hotmail. com> > > > > I'm a 29 years old male, I was diagnosed on feb 3, 2006. I have been > > in remission since October 2006 and i feel pretty bad. I do not know > > what is going on, I feel a lot of mood changes, very sad and cry with > > no reason. I don't feel like going to work. and I just want to stay > > home watching TV. Our economic situation has deteriorated and I'm > > scared if I lose my jib I will lose my insurance and I will not have > > access to gleevec, and my oncologist. I feel scared and depressed. I > > want to be normal. but it is hard to get out of this. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 What is ECT?Liz Bohn <lbohn@...> wrote: I think I mentioned before that ds has been suffering from a major, major depression. He's had 10 sessions of ECT and is MUCH MUCH better. I can't believe how much better he is. We went Christmas shopping today for 2 hours, and he didn't complain once. This is such a miracle, you wouldn't believe it. Shopping with him has been torture ever since he was three. We actually had a good time. We stopped for food a couple of times, and stopped at Borders to chill out and read for a while. I didn't hear one "Can we leave now?" or one single complaint. Not one. I just wanted to share this with you all. I figured you'd understand.Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 Electroconvulsive therapy. In the olden days, it was referred to as "shock therapy." It's very humanely done, and ds's dose was started with very low pulses. He was at one of the best places in the country for ECT, and it's been a good experience. The results have been very good. I doubt they use it on children, though.LizOn Dec 22, 2007, at 6:43 PM, Essenfeld wrote:What is ECT?Liz Bohn <lbohn@...> wrote:I think I mentioned before that ds has been suffering from a major, major depression. He's had 10 sessions of ECT and is MUCH MUCH better. I can't believe how much better he is. We went Christmas shopping today for 2 hours, and he didn't complain once. This is such a miracle, you wouldn't believe it. Shopping with him has been torture ever since he was three. We actually had a good time. We stopped for food a couple of times, and stopped at Borders to chill out and read for a while. I didn't hear one "Can we leave now?" or one single complaint. Not one. I just wanted to share this with you all. I figured you'd understand.Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2007 Report Share Posted December 22, 2007 It must be a very different procedure now then it was years and years ago. When my brother had shock treatments , all his fillings flew out of his mouth and it was awful and they didn't help him at all. My hubby had them when he was about 14 and he remembers being awake and its the most frightening memory of his life. The must sedate people now ...thank God. hugs Wags! Wags! Wags! Lowry "There is no psychiatrist in the world like a puppy licking your face." Author Ben From: lessen@...Date: Sat, 22 Dec 2007 15:43:26 -0800Subject: Re: ( ) Depression What is ECT?Liz Bohn <lbohn@...> wrote: I think I mentioned before that ds has been suffering from a major, major depression. He's had 10 sessions of ECT and is MUCH MUCH better. I can't believe how much better he is. We went Christmas shopping today for 2 hours, and he didn't complain once. This is such a miracle, you wouldn't believe it. Shopping with him has been torture ever since he was three. We actually had a good time. We stopped for food a couple of times, and stopped at Borders to chill out and read for a while. I didn't hear one "Can we leave now?" or one single complaint. Not one. I just wanted to share this with you all. I figured you'd understand.Liz Your chance to win great prizes with TELUS and Windows Live Messenger for Mobile. Click here for more information! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2007 Report Share Posted December 23, 2007 I am so glad something has worked!! Is he still in school? RoxannaAutism Happens ( ) Depression I think I mentioned before that ds has been suffering from a major, major depression. He's had 10 sessions of ECT and is MUCH MUCH better. I can't believe how much better he is. We went Christmas shopping today for 2 hours, and he didn't complain once. This is such a miracle, you wouldn't believe it. Shopping with him has been torture ever since he was three. We actually had a good time. We stopped for food a couple of times, and stopped at Borders to chill out and read for a while. I didn't hear one "Can we leave now?" or one single complaint. Not one. I just wanted to share this with you all. I figured you'd understand.Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2007 Report Share Posted December 23, 2007 People are anesthetised and the amount of current is carefully controlled so that no fillings will pop out and no bones will break, etc. It's a very gentle process. It's been very helpful for ds.LizOn Dec 22, 2007, at 11:37 PM, Lowry wrote:It must be a very different procedure now then it was years and years ago. When my brother had shock treatments , all his fillings flew out of his mouth and it was awful and they didn't help him at all. My hubby had them when he was about 14 and he remembers being awake and its the most frightening memory of his life. The must sedate people now ...thank God. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2007 Report Share Posted December 23, 2007 He's not in school right now. I think we'll put him in a program in January that combines daily living skills with community college.LizOn Dec 23, 2007, at 8:35 AM, Roxanna wrote:I am so glad something has worked!! Is he still in school? RoxannaAutism Happens Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2007 Report Share Posted December 23, 2007 Thank God it has become a much more humane treatment and so glad it has helped. My heart breaks for all those who had these treatments years ago, and suffered horribly :-(( hugs brenda Wags! Wags! Wags! Lowry "There is no psychiatrist in the world like a puppy licking your face." Author Ben From: lbohn@...Date: Sun, 23 Dec 2007 14:06:16 -0500Subject: Re: ( ) Depression People are anesthetised and the amount of current is carefully controlled so that no fillings will pop out and no bones will break, etc. It's a very gentle process. It's been very helpful for ds. Liz On Dec 22, 2007, at 11:37 PM, Lowry wrote: It must be a very different procedure now then it was years and years ago. When my brother had shock treatments , all his fillings flew out of his mouth and it was awful and they didn't help him at all. My hubby had them when he was about 14 and he remembers being awake and its the most frightening memory of his life. The must sedate people now ...thank God. hugs HO HO HO, if you've been naughty this year, email Santa! Visit asksanta.ca to learn more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 Liz, I don't post terribly often, but I've been following your son's situation all along. (My son with AS is 16 now and only a few years behind your son in terms of the decisions we're facing with/for him.) I am *so* glad you've found something that helped him. I hope all of you have a wonderful holiday and that your plans for him in the coming year go well. Sue C. > > I think I mentioned before that ds has been suffering from a major, > major depression. He's had 10 sessions of ECT and is MUCH MUCH > better. I can't believe how much better he is. <snip> Quote Link to comment Share on other sites More sharing options...
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