Shoes

[Guest guest]

Before I was diagnosed with PA I visited my oldest sister and she asked

me to go walking with her one evening. My feet really HURT, I was

miserable and I didn't know why. She went looking for tennis shoes the

next day and I bought a name brand pair of shoes for myself. I'm not

into name brands but was so miserable I gave in and went for it this one

time. Oh, they felt so good!!! Supprt and padding just where I needed

it. Instead of " Shoe City " or " Payless " I had gotten (and still have)

Rockport's Prowalkers. They were almost $100.00 but were/are worth every

penny.

Take care,

Pat B

[Guest guest]

Hi all --

I wish I could wear Birkenstocks! The post below has

resonance for me as I was diagnosed with PA by a

podiatrist. My regular Dr. did not figure out what

the problem was, and the orthopedist he referred me

too could not either. When my feet got so bad I could

hardly walk on them he sent me to a podiatrist who

picked out the PA right off. He also measured me for

orthodic inserts which I wear in my boots, and they

have made all the difference. I'm sure that in some

cases, as below, buying a better make of shoe will

turn the trick, but in some cases you might be better

off seeing a podiatrist.

RA, new listmember

--- Bias <PBias@...> wrote:

> From: PBias@... ( Bias)

>

> Before I was diagnosed with PA I visited my oldest

> sister and she asked

> me to go walking with her one evening. My feet

> really HURT, I was

> miserable and I didn't know why. She went looking

> for tennis shoes the

> next day and I bought a name brand pair of shoes for

> myself. I'm not

> into name brands but was so miserable I gave in and

> went for it this one

> time. Oh, they felt so good!!! Supprt and padding

> just where I needed

> it. Instead of " Shoe City " or " Payless " I had

> gotten (and still have)

> Rockport's Prowalkers. They were almost $100.00 but

> were/are worth every

> penny.

>

> Take care,

> Pat B

>

>

>

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>

> Join the ONElist Weekly Survey. Go to homepage for

> details.

>

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[Guest guest]

JC PENNEY has a dyeable shoes in their bridal catalogue

whims

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[Guest guest]

For me I found the most comfortable sandles were called Okabashi, they have pressure points in them and they are the only shoes that will keep my feet and legs from beginning to hurt after Ive been on my feet for longer than an hour or so. I bought mine at Eckerd's drugstore, they were about $8.00. I have tendonitis in the arch of my right foot and it get's very painful at times. I have a pair of $100 New Balance tennis shoes and after 30 minutes of walking my foot is killing me, but with the sandals Im fine. I also have some knots across my ankle and on the top of my foot, these happened early on in the disease, when they were unable to stop the joint destruction. After starting mtx, the knots went down some but they are still there and sometimes they will hurt also.

[Guest guest]

Mike & Steve,

I've updated your information in the Clothing Department at the DwarfStore.

I added your URL, email, and comments about custom shoes. Thanks for

contacting me with this info.

In Love And Service,

 

 

D. Kline, aka DwarfStar

http://www.dwarfism.org

> re:shoes

>

>

> Dear ;

> I would like to thank you for listing us on your web page for

> dwarfs. We

> do have a web page which is Orthoshoe.com. We at Neufeld Orthopedic shoe

> Clinic can custom make any type of shoe, if we cannot fit some

> one with our

> large in-stock department.

> Thank you,

> Steve Esposito

> Mike McKenna

>

[Guest guest]

Schroeder wrote:

> Donna Conklin asked about what kind of shoes some of us wore that

> did not kill our feet. I live in Birkenstocks now. I have some

> other shoes that are also quite comfortable made by and

> Aerosoles. None of these are dress shoes.

Should have said in my earlier post what type shoes I found that work for me.

(thx for reminder !) I have sandals by Ecco, clogs by

Haflinger, and some _real_ sturdy walking shoes by Ariat. , since you're in

Poulsbo maybe you'll appreciate this; I call the Ariat shoes my

" Seattle " shoes. Well that's where I got them -- I lived up there for 18 months

till this fall -- and folks in Seattle seem to wear a lot of that

type. The heels are about an inch thick and ought to last me about 25 years,

from the looks of them. I wear the clogs most, though. Now that I'm in

Arizona, I miss my Seattle wardrobe -- I'm one of the nuts who actually liked

the rain and cooler weather.

--Louise

[Guest guest]

I am getting rain as I read your e-mails...and we have high winds tonight. Have a Happy Easter...Donna

Gillian Rowe <roweg@...> wrote:

Hi Louise>Now that I'm in Arizona<A few years ago I recall seeing a Health Program on ARTHRITIS! From myrecollection, Arizona is HOT, a Desert, yet the Native people have theHIGHEST incident of Arthritis! They also pick leaves off a Native bush andmake tea, which is another anti-inflammatory! The program was looking at theeffect of climate on arthritis, so went to the hottest place known to man,expecting to find NO arthritis, boy did they get a shock!No problem, I can send you some rain, any idea of how much you want?Love and God BlessGillian------------------------------------------------------------------------High rates giving you headaches? The 0% APR Introductory Rate from Capital One. 9.9% Fixed thereafter!1/3010/2/_/494167/_/956283728/------------------------------------------------------------------------Please visit our new web page at:http://www.wpunj.edu/icip/paand attend our weekly chat on Dr Koop at7 PM EST on Monday evenings!!Go to the www.Dr.Koop.com website ahead of time and register as a user that way you can come right in on Monday nights. Hope to see you thereat the chat!!!

[Guest guest]

Thanks for the information on shoes...but what about dress shoes? I do some solo

work in the area and need something. I've been wearing some very low black flats

but they are beginning to hurt. Any suggestions? Last year I could also wear

some Dr. Scholls lace up shoe...now I can't get the right foot in them and when

I do force it, the shoe feels twisted. I don't think it's the shoe but the foot.

Some of us are sure blessed aren't we. Again thanks, I copied that list to start

looking...I need something closed up in the winter with the snow. so will look

for that Seattle shoe also..Donna

--------------------------------------

[Guest guest]

Well, I would wear boots, but I am active in my church and do some up front stuff like solos and promoting mission work, things like that. And I still like to wear a dress once in a while...So I need to at least try to find something for a little while longer. Donna

Gillian Rowe <roweg@...> wrote:

Hi I now work from the feet up! I own NO dress shoes, therefore no longer buydresses. Instead I will chose my shoes first, depending on how the arthritisis doing, and then add the rest of my attire. When we go out with MomsActive Retired Club, I sometimes get it wrong. Mom soon says, " You are goingto dance in BOOTS? " Well they felt the MOST comfortable, although I forgot Iwas dancing? OOPS!You think that is BAD? Today I said to the Manager at the local Supermarket " Hi , Merry Christmas! " Would not mind, but he was stood there with " Easter Eggs " in his hands! Well it was CLOSE!Love and God BlessGillian------------------------------------------------------------------------Enjoy the award-winning journalism of The New York Times with convenient home delivery. And for a limited time, get 50% off for thefirst 8 weeks by subscribing. Pay by credit card and receive an additional 4 weeks at this low introductory rate.1/3102/2/_/494167/_/956268550/------------------------------------------------------------------------Please visit our new web page at:http://www.wpunj.edu/icip/paand attend our weekly chat on Dr Koop at7 PM EST on Monday evenings!!Go to the www.Dr.Koop.com website ahead of time and register as a user that way you can come right in on Monday nights. Hope to see you thereat the chat!!!

[Guest guest]

donna conklin wrote:

> Thanks for the information on shoes...but what about dress shoes? I do some

solo work in the area and need something. I've been wearing some very low black

flats but they are beginning to hurt. Any suggestions? Last year I could also

wear some Dr. Scholls lace up shoe...now I can't get the right foot in them and

when I do force it, the shoe feels twisted. I don't think it's the shoe but the

foot.

Even without a hurting toe I've had trouble finding shoes to fit me comfortably

all my life (am 50; been a while!), even though I'm basically just an 8 C/

D/wide. I probably would be better off if this were the really old (OLD) days

when cobblers made shoes to fit each person (they did that once, didn't they?).

So I was especially pleased when I finally took a friend's advice and went to a

pedorthist

(usually there's one on staff in some of those stores that carry orthotics,

etc.). This was truly one of the best things I ever did for myself shoewise. I

finally knew which shoes to stop trying on because for a variety of reasons they

weren't right for me: a good pedorthist knows the characteristics of this shoe

brand versus that shoe brand. That simplification alone was worth my visit! Plus

they

can suggest a variety of other things to help hurting feet

As for dress shoes, they -- makers like Ecco, Dansko, Birkenstock, s,

Haflinger, Ariat, etc. -- are making more and more shoes than can pass for

" dress " . Also, SAS (San Shoe, based in Texas), SoftSpots or Hush

Puppies might have something to suit you; a Hush Puppies low 1-inch heel was

about the last dress shoe I could wear -- might still be able to if I could get

it extra wide. Lots of

these are advertised on the Internet, too, so you might check them out that way

beforehand to see what's available.

Hope this helps.

--Louise

[Guest guest]

Thanks for all your help...You are all a God send...to a person who seems to be all alone in this part of the world....I live in Amish Country of Buggys and horses...No I'm not an amish but have them for friends.

Happy Easter.

Donna

lodonald@... wrote:

donna conklin wrote:> Thanks for the information on shoes...but what about dress shoes? I do some solo work in the area and need something. I've been wearing some very low black flats but they are beginning to hurt. Any suggestions? Last year I could also wear some Dr. Scholls lace up shoe...now I can't get the right foot in them and when I do force it, the shoe feels twisted. I don't think it's the shoe but the foot.Even without a hurting toe I've had trouble finding shoes to fit me comfortably all my life (am 50; been a while!), even though I'm basically just an 8 C/ D/wide. I probably would be better off if this were the really old (OLD) days when cobblers made shoes to fit each person (they did that once, didn't they?). So I was especially pleased when I finally took a friend's advice and went to a pedorthist(usually there's one on staff in some of those stores that carry orthotics, etc.). This was truly one of the best things I ever did for myself shoewise. I finally knew which shoes to stop trying on because for a variety of reasons they weren't right for me: a good pedorthist knows the characteristics of this shoe brand versus that shoe brand. That simplification alone was worth my visit! Plus theycan suggest a variety of other things to help hurting feetAs for dress shoes, they -- makers like Ecco, Dansko, Birkenstock, s, Haflinger, Ariat, etc. -- are making more and more shoes than can pass for " dress " . Also, SAS (San Shoe, based in Texas), SoftSpots or Hush Puppies might have something to suit you; a Hush Puppies low 1-inch heel was about the last dress shoe I could wear -- might still be able to if I could get it extra wide. Lots ofthese are advertised on the Internet, too, so you might check them out that way beforehand to see what's available.Hope this helps.--Louise------------------------------------------------------------------------Good friends, school spirit, hair-dos you'd like to forget.Classmates.com has them all. And with 4.4 million alumni already registered, there's a good chance you'll find your friends here:1/2885/2/_/494167/_/956350596/------------------------------------------------------------------------Please visit our new web page at:http://www.wpunj.edu/icip/paand attend our weekly chat on Dr Koop at7 PM EST on Monday evenings!!Go to the www.Dr.Koop.com website ahead of time and register as a user that way you can come right in on Monday nights. Hope to see you thereat the chat!!!

[Guest guest]

Hi Donna,

My name is , My address is my last name just split up,I like close to

Detroit and we go to Michigan quit a bit.

I love this area because the winters a mild.

After reading your email about buying shoes at Wal-mart I went and purchased

a pair of Dr. Scholls dress shoes. They actuall don't hurt my feet. The

first pair of dress shoes in ages. Thank's for the tip.

.

----Original Message Follows----

From: donna conklin <rdconklin_2000@...>

Reply- egroups

egroups

Subject: Re: [ ] coping with pain

Date: Thu, 20 Apr 2000 21:48:24 -0700 (PDT)

Hi ,

I have a daughter named . We adopted her and her four siblings from

Costa Rica in 1981.

I have a great pair of sandles I bought last summer. The upper part is

leather suade...bottom is about 2-3'' of rubber...the color of an art

eraser. Well, I've lived in them for a year now...even in the winter if I

wasn't going out...Actually I got them at a Walmart and it was the best $20

I've spent in a long time. I need to look for another pair or something like

them. They even seemed to support my arch. I need to find something for

dress wear.

Ive been using a flat black shoe but that is getting hurtful. So for dress I

am back to square one. I also have a wide pair of tennis/athletic shoe put

out by Dr. Scholls that I wear for casual wear. But I live in those sandles.

Thanks for your imput...I may try some running shoes. Keep in touch...

Happy Easter...Donna

I just noticed your e-mail address...Are you Jan Brosic from Onterio

or is your name...just curious??

Ontario <jan_brosic@...> wrote:

Hi Donna,

Welcome,

I too am fairly new. I'm 37 and have had PA for over 20 yrs. I also have

the same problem feet. I have an awful time getting shoes. One of my

doctors sugested orthotics. They are great. I also get my shoes from

there. But most of the time I wear running shoes.

Even in the winter.

In the summer I wear wide sandals with adjustable straps.

I like to stick to leather and they are softer.

Best of luck finding shoes.

.

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first 8 weeks by subscribing. Pay by credit card and receive an

additional 4 weeks at this low introductory rate.

1/3102/2/_/494167/_/956251266/

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and attend our weekly chat on Dr Koop at

7 PM EST on Monday evenings!!

Go to the www.Dr.Koop.com website ahead of time and register as a user that

way you can come right in on Monday nights. Hope to see you there

at the chat!!!

---------------------------------

[Guest guest]

I agree with the message from some others about custom

orthotics. Because of some serious problems, my custom

orthotics were about $350 and my insurance paid ZERO. (there is

a specific exclusion in my policy for such things!)

Nevertheless, it was the best expediture of that kind I've made in a

while. Now, three years later, I still wear the same pair and they

look like they will last much longer. So overall, the cost per year

for daily wear is pretty inexpensive. I switch them to every pair of

shoes I own and wear them at all times. I can really tell the

difference, not only in the feet but in legs, hips, back, too.

As to shoes...I wear comfortable walking shoes, usually Rockports

or Reeboks. Expensive but worth it. I often take out the

shoestrings and replace them with different, jazzy colors and/or

" springy " laces I don't have to tie. Since I wear a lot of purple, the

laces are often purple and I look color coordinated. This takes

away from some of the looks of " sneakers " when I am more

dressed up. Another tip is to look for the low boots that are ankle

length. They look like the old fashioned boots for women in the

1800's. Mine lace up so they can open wide enough to

accommodate my orthotic inserts. They are black leather and I

polish them occasionally to keep them looking good. I got mine at

a Western wear shop but removed the little fringe thingy that was

laced in. I don't dress western so it was out of style for me. I find

that these boots go very well with dress slacks and longer dresses

and skirts, especially if I buy the " broom " skirts that have pleats

like the 1800's styles. My walking shoes and my boots are my

only shoes for the last 3-4 years. I would like to wear " regular "

shoes more but the discomfort is not worth it. I might mention that

my shoes and boots are usually over $100 a pair but I wear them

continuously for 3-5 years so I get my money's worth. It is hard to

remember that when I try to figure out how to get the original cost

out of the budget! So no closets of 100's of shoes for us! (I even

had a student remark that she noticed that I wore the same shoes

all semester--I taught college--no matter what outfit I wore!) She

wasn't as tired of those shoes as I was~!

Good luck to all. Keep sharing what works for you and we can all

learn something!

LaRita

[Guest guest]

GREAT, MARIA

I'm glad you found some shoes that will work for you. I am in search for another

pair of sandles and a dress pair of shoes that don't pinch this right foot of

mine. The left foot is still fairly good, but my right one does me in.

I am going to try some of the other shoes that have been mentioned by some of

the other PA people. Keep in touch...donna

[Guest guest]

Donna,

I too do a lot of solo work at church. I wear Birkenstock black clog style

shoes in the winter and sandals in the summer. If it's a funeral or

something more formal, I will wear flat pumps, but they have to come off

within an hour or so. My feet swell so much. I have found that only

Birkenstocks will do for me. And though they cost around $100, they last a

long time. The quality is excellent. Now, I live in California, so a lot of

people wear them here. I'm not sure where you are from.

Amy

[Guest guest]

Hi Amy,

I've been taking a poll as these e-mails come in. I think the majority of PA's

are wearing Birkenstock shoes. I'm gonna get me some. My feet and ankles have

been swelling something terrible lately. It's getting where a flat just kills

and like you, those babies have to come off in an hour or so. I found a pair of

earth shoes at Walmart here and have worn them for a year and they are still

good. I even wore them in the winter with a pair of sock.(sandles). I think I

may go shoe hunting this week. I do need something a little better looking than

the ones I have now. By the way, I am in Michigan. In the winter I would

probably have to wear the clog or something enclosed because of the snow.

Where in California are you? I have a neice in Valencia, and a couple of cousins

in San . I'm about 45 minutes North of Grand Rapids. Keep in touch...Donna

[Guest guest]

Hello!

About shoes, I've found that the Stegmann clogs are wonderful. They are very

warm in the winter because they are wool. They are more comfortable than my

Birkenstocks. I know of a Birk web site that has wonderful discounts on

closeouts. E-mail me if anyone wants to know what it is. They are usually

about $20 off the retail price.

Diane

[Guest guest]

Hi, I would like the address for the Birkies and where do you get the clogs you mentioned? Do you wear the clogs all year if they are wool?

Donna

Targa99@... wrote:

Hello!About shoes, I've found that the Stegmann clogs are wonderful. They are very warm in the winter because they are wool. They are more comfortable than my Birkenstocks. I know of a Birk web site that has wonderful discounts on closeouts. E-mail me if anyone wants to know what it is. They are usually about $20 off the retail price.Diane------------------------------------------------------------------------Good friends, school spirit, hair-dos you'd like to forget.Classmates.com has them all. And with 4.4 million alumni already registered, there's a good chance you'll find your friends here:1/2885/2/_/494167/_/956761904/------------------------------------------------------------------------Please visit our new web page at:http://www.wpunj.edu/icip/paand attend our weekly chat on Dr Koop at7 PM EST on Monday evenings!!Go to the www.Dr.Koop.com website ahead of time and register as a user that way you can come right in on Monday nights. Hope to see you thereat the chat!!!

[Guest guest]

Donna,

The clogs are great! Because I have such big feet, I was a bit nervous when

I first started wearing them. But now, I get lots of compliments, so I just

wear them and hardly ever think about my feet until I get home at night and

put my feet up.

I live in Fresno, which is in the middle of the state. South of Sacramento

and north of Bakersfield.

Amy

[Guest guest]

I'm going to start looking for some clogs and maybe some sandles..the ones I

have are still good but are looking a little beat up. I need a nicer pair of

sandles for dress. Thanks for the insight. Tonight my feet are so swollen it

hurts to walk..the ankle on the right foot is kind of throbbing. Such is

life...well life in our part of the world.

Keep in touch,

donna

[Guest guest]

Hi Diane,

Could you please tell me what SAS sandals are? I just bought

Birkenstocks and they are good, but after awhile.....they are hard and my

bones hurt! Thanks for any info!

Carole

>From: " Diane Kamperman " <dkamperman@...>

>Reply- egroups

> egroups

>Subject: [ ] Shoes

>Date: Thu, 18 May 2000 13:14:23 -0000

>

> -

> That is one of the reasons I prefer the SAS sandals to the

>Birkenstocks - they have a nice flexible sole with some cushioning.

>And even with the flexible sole they wear like iron. I have had some

>of them for 10+ years.

> Diane in Houston

>

>

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[Guest guest]

Hi there,

What store did you purchase the Stegmann's at? I'm having a hard time

getting access to certain brands.

Thank's for the advice.

.

----Original Message Follows----

From: Donnnygirl@...

Reply- egroups

egroups

Subject: [ ] Shoes

Date: Fri, 19 May 2000 04:05:38 -0000

When my feet hurt I uaually go barefoot (in the house) but if forced

to run errands I wear Stegmann's which are pretty ugly wool clogs but

they actually do keep your feet warm in the winter and somehow cool

in summer. I find any shoe with a back is bad. I like mules and

higher heels actually make my feet hurt less because my heel is not

slapping down on the pavement... My entire PA scenario started out

with heel pain and plantar fascitis which I thought came from walking

on marble floors all day in high heels. Little did I know...

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[Guest guest]

Hi all --

After two years in the equivalent of Army boots my

podiatrist recently gave me the OK to go with

sneakers.

It will feel good to take twenty pouds off my feet!

He recommended New Balance running shoes for the times

that I wear sneaks.

For what it is worth --

, North Jersey Highlands

__________________________________________________

[Guest guest]

,

I have always had wide feet, but since the PA, my left foot is almost as

wide as it is long. I didn't realize that New Balance carried wide

widths until recently. For my upcoming adventure, I purchased a pair of

New Balance s, they have the look of hiking boots but have a low

top. They are also waterproof. Very comfortable, I love them. The

$100 price tag wasn't to bad considering that I usually pay $60 to $80

for a pair of Nikes. A couple of years ago I found a pair of Nike

Basketball shoes on sale at a Penny's outlet store. They had very thick

cushioned soles, they were wonderful. They are probably similar to the

running shoes, you've mentioned. Made to absorb the impact. Believe

me, they are worth every penny. Becky

[Guest guest]

SAS has stores in Vero Beach, FL all around the Wash. DC, VA and MD area.

SAS shoes are also sold in other shoe stores, especially dept. stores. They

also come in slim width. I wore nothing but SAS shoes when I was Nursing in

the hosp. My feet are narrow sticks and the padding in the shoes are great.

I worked 13 hr. straight every wk. end and my feet never bothered me. Good

luck with SAS. Betty in VA