Re: Genetic mutation - urea cycle disorder

[Guest guest]

This is kind of a shot in the dark - but I'll tell you our experience

and see if anything here is helpful.

My daughter was biotin deficient - from antibiotics and accutane. No

one told us this - but I've found plenty of literature and opinions

which support that this is what can happen. And I have had it

confirmed in conversation with her doctor. A suboptimal level

doesn't always easily show up in some testing apparently - but a

suboptimal level can still do some damage with certain exposures -

and I suspect with exposures to excitotoxins.

Her bloodwork had always been normal before - but after

supplementation with glutamine to heal the gut while she was trying

to recover from IBS induced by the antibiotics and Accutane - her BUN

became low and ALB/GLOB high. And a few other things went haywire as

well as low LDL and high blood sugar. We had not seen the high blood

sugar and BUN, etc. like this ever before. She also had low

essential amino acids (tested for the first time). Biotin is

necessary for the metabolism of fats, sugars, proteins, and carbs -

and clearly she was malabsorbing and not having much success in this

area. Is low biotin in part why she was malabsorbing?

I eventually found out that low biotin can impair the enzyme that

converts glutamine to glutamate to GABA. So glutamate builds up.

From her behavior at the time it appeared that this is what was

happening.

Could this process have been a factor in the low BUN as well?

Nothing else was very different from what had transpired before

except that she'd been on glutamine for a while (with no B6).

i think even the experts say that not enough is known about biotin.

It seems to have a hand in a lot of things. So it might be worth

looking into - especially because in our case this low BUN did not

show up with deficiency alone - only with deficiency plus glutamine

supplementation.

Apparently things to do with biotin deficiency are reversible once

you start supplementing.

Is there any diabetes, type 2 diabetes or hypoglycemia in your

family - it's in mine - and that's another possible sign of

subclinical biotin deficiency apparently.

Newborn testing picks up biotidinase deficiency of 30% or below - but

doesn't pick up deficiency at the level between 30% and 100%. Fifty

percent of all mothers are biotin deficient in pregnancy apparently.

could that be one reason for the developement of postpartum

depression? One sign of biotin deficiency is cradle cap. So I think

more families need to be made aware of the possibility of their

newborns having some level of biotin deficiency - even if it is

subclinical - especially in today's world with the possibilities of

excitotoxins or antibiotics being thrown into the mix to make the

deficiency more serious.

http://www.emedicine.com/PED/topic238.htm

You could ask the geneticist to test biotinidase activity - or see if

they came up with a level with newborn screening which is suboptimal -

but above the level they consider to be a deficiency or partially

deficient.

And you could always try supplementation.

Hope this helps. As I said - it's a shot in the dark - this is based

on our experience and some of the things I'm just starting to think

about in our case.

E

> >

> > Hullo godardam. Vent anytime you feel like it! What is the

nature of

> your daughter's genetic mutation. Does it have a name? What have

you

> been trying to do for that condition, and how does it affect her?

Glad

> Day ~ Karla in IL

> >

>

[Guest guest]

Hullo . This is a very curious disease, so forgive me if I have questions you may or may not be able to answer. In this May, 2008 article, there is some revelation for new study and ongoing research, and also mention that Urea Cycle could be caused by a toxic drug, (which all vaccines are.) http://en.wikipedia.org/wiki/Urea_cycle_disorder It also mentions, that IF genetic, a parents would be carriers, the mother may have a milder case that might not show up until pregnancy or later in life, and could be very serious. Have ALL three of you been genetically tested for this? as an absolute??? I know I would want to Know ~ 100% Has your baby had second and third....or more Opinions? Especially since your dr. INSISTS that is what she has???? This is in the realm of encephalitis concerns, is

it not? How old is this child now? From the link, how do they fit into this scenario of expression of the symptoms mentioned? You said she did not manifestion the typical symptoms of this disorder. Has she/did she have a feed tube to dispense the medications?.Is she or has she been on the newest combo of Sodium phenylacetate and sodium benzoate? http://www.sciencedaily.com/releases/2007/05/070530182151.htm Is she on this diet of essentials mentioned? How did you come upon the coconut oil regime? Has she been ill often or in hospital because of this? How often do they test for the syndrome, or did they rule out other things? How affected is she, mentally and physically? How difficult is she to care her? Is it possible she may have

been misdiagnosed, such as Reys Syndrome? http://wrongdiagnosis.com/i/inborn_urea_cycle_disorder/intro.htm What is your worst fears about all this? Was she vaccinated, (besides the vit K shot) and/or is she still being urged to be vaccinated? If it is a mitocondrial disorder, I would think a medical exemption would be in order, automatically.......OR are they trying to dupe you into the AAP Think Tank that she needs them MORE, because of being at risk??? pppppppttttttttt Perhaps some of these researcher or their facilities mentioned, can be contacted for the most updated treatments, or to try to answer so many of your questions and wonder and worries, about vit K shot and aspartate connections., etc. Sometimes MOMs know best, when that maternal instinct takes over ~ when

they start to question authority. And that is a Good Thing. So if you can eliminate you and your husband as carriers or symptomatic, and can get somebody to confirm that there might be a toxin/vaccine cause, you may be very well be on the Hunt for a vaccine injury case! Vaccines do cause DNA changes!! Vit K can as well. As well as aspartame. Aspartame is also put into vaccines. Did your daughter get jaundice after the vit K shot? Vit K insert label. http://www.fda.gov/medwatch/SAFETY/2003/03Feb_PI/AquaMEPHYTON_PI.pdf Super good luck to all of you over there in beautiful Virginia. *+*+*+*+*+*+*+* Glad Day ~ Karla in IL http://www.ureacycle.com/diagnosis_differential.asp

[Guest guest]

Hi Karla,

Thanks for that post, this group is such a blessing for me, two years

alone in questioning the " experts " . We just got her blood test

results back from a couple of weeks ago and all of her levels are

normal except for the amino acid citrulline which is why they say she

has the disease.

I have considered getting a second opinion, but not sure who to talk

to, liver specialist, or another geneticist. I am thinking a liver

specialist since there are only a couple of geneticists in the area

and they all know each other. I did not see a link to the May 2008

article you referenced but am very interested in reading it if you

have time to post the link?

Her issue is with elevated citrulline levels. She was started on

another amino acid, Arginine to help her body eliminate the amonia

safely. Although her amonia levels never went above normal, we

started her on the medication at about 3 1/2 weeks of age, so it's

impossible to know if she would have had hyperammonia or not without

it. That was something we didn't want to risk, we wanted to avoid

brain damage, coma, death, etc. However, when we were advised around

3 months of age to significantly decrease her protein levels her next

blood test showed critically low levels of important amino

acids/proteins so we immediately increased the protein again.

Although they tell us we need to put her on a low protein diet, she

eats eggs, meats/fish (occasionally), cheese, whole grains (high in

protein) and she has never had any problems. In fact they also tried

to scare me into doing a CT scan on her when she was only 3 months

old! I was sick to my stomach because they scheduled to appointment

and had the office call me to prepare her and not feed her 8 hours

before, and they were going to fully sedate her with drugs and

everything. I told them NO!!!

It was the geneticist who thought she saw an abnormal shape to her

skull. She scared me enough to do an x-ray then despite the

radioligist saying it looked quite normal, she told me that on the

phone he told her that there's a possibility that one of her sutures

closed early. We said we'd keep an eye on her head, but of course

over the next few months we were terrified that she had an abnormal

head and brain squeezing, etc. Finally, our doc said that her head

was fine.

I told the geneticist that I didn't appreciate her trying to sneek a

peak at her brain as I found out that many kids do a CT scan to see

the structure of the brain. The geneticist to this day denies doing

research on her but she tries to get a photograph at each visit

eventhough we told her no photographs. I told her I better never read

about her in some medical article online or I will send lawyers her

way.

Anyway, it's been a nightmare and she keeps trying to tell us to

vaccinate her because she is higher risk...NO again was my answer and

this last visit, she didn't bring it up.

We have not looked at our DNA but we are starting to consider it

because if we do not have a mutation then she obviously would not

have inherited it from us. Although they said it's possible to have a

hidden mutation and not be able to see it on genetic tests...sounds

like BS to me.

She was identified on the newborn screen done in the hospital at 24

hours of age. Her citrulline levels were high, and have continued to

go up until they reached a plateu that is much much lower than normal

cases but still very elevated compared to the average person. Her

other amino acid levels seem to be normal and she never had any

symptoms of any kind. In fact, I was told in some cases, no matter

what you do, they have hyperammonia, but she never has despite being

ill, and yes, we had her vaccinated through at 6 months thinking it

would help her until she went to the ER with a 102.5 fever and

vomitting about 3 weeks after the vaccine combo shots for 6 month

old. She also shook her head a little funny for a few months

uncontrollably so we never took her back and will not have her

vaccinated again.

But the question is now, do we have a mutation in our DNA, or did the

vitamin K shot (or aspartame) cause something I found in my research

called a salt bridge between the enzyme and expression of chemicals

needed to convert citrulline to arginine? She has always produced a

normal level of arginine, which is supposed to be deficient if she

had a true case of citrullinemia, but that has always been normal.

The problem again is that we supplement her diet with arginine orally

to ensure that she won't get a build up of ammonia.

It's hard, but I think you bring up a good point of rulling out DNA

damage from toxins, versus, inheritance.

Oh the coconut oil was a discovery based on some scientific studies

done on animals and humans and healing of liver diseases. The coconut

oil seems to help or heal some liver diseases and hinders the growth

of cancer. Also, we started using Chia seeds; just google chia seeds

and you'll see they are one of the most stable sources of omega 3,

and coconut oil has lots of omega 6 and 9.

Thanks again, and sorry for such a long post, but I feel like I can

BREATH to have found you all! Thank the Lord!

>

> Hullo . This is a very curious disease, so forgive me if I

have questions you may or may not be able to answer. In this May,

2008 article, there is some revelation for new study and ongoing

research, and also mention that Urea Cycle could be caused by a toxic

drug, (which all vaccines are.)

> http://en.wikipedia.org/wiki/Urea_cycle_disorder

> It also mentions, that IF genetic, a parents would be carriers,

the mother may have a milder case that might not show up until

pregnancy or later in life, and could be very serious. Have ALL

three of you been genetically tested for this? as an absolute??? I

know I would want to Know ~ 100%

> Has your baby had second and third....or more Opinions?

Especially since your dr. INSISTS that is what she has???? This is

in the realm of encephalitis concerns, is it not?

> How old is this child now? From the link, how do they fit into

this scenario of expression of the symptoms mentioned? You said she

did not manifestion the typical symptoms of this disorder. Has

she/did she have a feed tube to dispense the medications?.Is she or

has she been on the newest combo of Sodium phenylacetate and sodium

benzoate?

> http://www.sciencedaily.com/releases/2007/05/070530182151.htm

> Is she on this diet of essentials mentioned? How did you come

upon the coconut oil regime? Has she been ill often or in hospital

because of this?

> How often do they test for the syndrome, or did they rule out

other things? How affected is she, mentally and physically? How

difficult is she to care her?

> Is it possible she may have been misdiagnosed, such as Reys

Syndrome?

> http://wrongdiagnosis.com/i/inborn_urea_cycle_disorder/intro.htm

> What is your worst fears about all this? Was she vaccinated,

(besides the vit K shot) and/or is she still being urged to be

vaccinated? If it is a mitocondrial disorder, I would think a

medical exemption would be in order, automatically.......OR are they

trying to dupe you into the AAP Think Tank that she needs them MORE,

because of being at risk??? pppppppttttttttt

> Perhaps some of these researcher or their facilities mentioned,

can be contacted for the most updated treatments, or to try to answer

so many of your questions and wonder and worries, about vit K shot

and aspartate connections., etc. Sometimes MOMs know best, when that

maternal instinct takes over ~ when they start to question authority.

And that is a Good Thing.

> So if you can eliminate you and your husband as carriers or

symptomatic, and can get somebody to confirm that there might be a

toxin/vaccine cause, you may be very well be on the Hunt for a

vaccine injury case! Vaccines do cause DNA changes!! Vit K can as

well. As well as aspartame. Aspartame is also put into vaccines. Did

your daughter get jaundice after the vit K shot? Vit K insert label.

http://www.fda.gov/medwatch/SAFETY/2003/03Feb_PI/AquaMEPHYTON_PI.pdf

>

> Super good luck to all of you over there in beautiful

Virginia. *+*+*+*+*+*+*+*

> Glad Day ~ Karla in IL

>

> http://www.ureacycle.com/diagnosis_differential.asp

>

[Guest guest]

Hi Karla,

Thanks for that post, this group is such a blessing for me, two years

alone in questioning the " experts " . We just got her blood test

results back from a couple of weeks ago and all of her levels are

normal except for the amino acid citrulline which is why they say she

has the disease.

I have considered getting a second opinion, but not sure who to talk

to, liver specialist, or another geneticist. I am thinking a liver

specialist since there are only a couple of geneticists in the area

and they all know each other. I did not see a link to the May 2008

article you referenced but am very interested in reading it if you

have time to post the link?

Her issue is with elevated citrulline levels. She was started on

another amino acid, Arginine to help her body eliminate the amonia

safely. Although her amonia levels never went above normal, we

started her on the medication at about 3 1/2 weeks of age, so it's

impossible to know if she would have had hyperammonia or not without

it. That was something we didn't want to risk, we wanted to avoid

brain damage, coma, death, etc. However, when we were advised around

3 months of age to significantly decrease her protein levels her next

blood test showed critically low levels of important amino

acids/proteins so we immediately increased the protein again.

Although they tell us we need to put her on a low protein diet, she

eats eggs, meats/fish (occasionally), cheese, whole grains (high in

protein) and she has never had any problems. In fact they also tried

to scare me into doing a CT scan on her when she was only 3 months

old! I was sick to my stomach because they scheduled to appointment

and had the office call me to prepare her and not feed her 8 hours

before, and they were going to fully sedate her with drugs and

everything. I told them NO!!!

It was the geneticist who thought she saw an abnormal shape to her

skull. She scared me enough to do an x-ray then despite the

radioligist saying it looked quite normal, she told me that on the

phone he told her that there's a possibility that one of her sutures

closed early. We said we'd keep an eye on her head, but of course

over the next few months we were terrified that she had an abnormal

head and brain squeezing, etc. Finally, our doc said that her head

was fine.

I told the geneticist that I didn't appreciate her trying to sneek a

peak at her brain as I found out that many kids do a CT scan to see

the structure of the brain. The geneticist to this day denies doing

research on her but she tries to get a photograph at each visit

eventhough we told her no photographs. I told her I better never read

about her in some medical article online or I will send lawyers her

way.

Anyway, it's been a nightmare and she keeps trying to tell us to

vaccinate her because she is higher risk...NO again was my answer and

this last visit, she didn't bring it up.

We have not looked at our DNA but we are starting to consider it

because if we do not have a mutation then she obviously would not

have inherited it from us. Although they said it's possible to have a

hidden mutation and not be able to see it on genetic tests...sounds

like BS to me.

She was identified on the newborn screen done in the hospital at 24

hours of age. Her citrulline levels were high, and have continued to

go up until they reached a plateu that is much much lower than normal

cases but still very elevated compared to the average person. Her

other amino acid levels seem to be normal and she never had any

symptoms of any kind. In fact, I was told in some cases, no matter

what you do, they have hyperammonia, but she never has despite being

ill, and yes, we had her vaccinated through at 6 months thinking it

would help her until she went to the ER with a 102.5 fever and

vomitting about 3 weeks after the vaccine combo shots for 6 month

old. She also shook her head a little funny for a few months

uncontrollably so we never took her back and will not have her

vaccinated again.

But the question is now, do we have a mutation in our DNA, or did the

vitamin K shot (or aspartame) cause something I found in my research

called a salt bridge between the enzyme and expression of chemicals

needed to convert citrulline to arginine? She has always produced a

normal level of arginine, which is supposed to be deficient if she

had a true case of citrullinemia, but that has always been normal.

The problem again is that we supplement her diet with arginine orally

to ensure that she won't get a build up of ammonia.

It's hard, but I think you bring up a good point of rulling out DNA

damage from toxins, versus, inheritance.

Oh the coconut oil was a discovery based on some scientific studies

done on animals and humans and healing of liver diseases. The coconut

oil seems to help or heal some liver diseases and hinders the growth

of cancer. Also, we started using Chia seeds; just google chia seeds

and you'll see they are one of the most stable sources of omega 3,

and coconut oil has lots of omega 6 and 9.

Thanks again, and sorry for such a long post, but I feel like I can

BREATH to have found you all! Thank the Lord!

>

> Hullo . This is a very curious disease, so forgive me if I

have questions you may or may not be able to answer. In this May,

2008 article, there is some revelation for new study and ongoing

research, and also mention that Urea Cycle could be caused by a toxic

drug, (which all vaccines are.)

> http://en.wikipedia.org/wiki/Urea_cycle_disorder

> It also mentions, that IF genetic, a parents would be carriers,

the mother may have a milder case that might not show up until

pregnancy or later in life, and could be very serious. Have ALL

three of you been genetically tested for this? as an absolute??? I

know I would want to Know ~ 100%

> Has your baby had second and third....or more Opinions?

Especially since your dr. INSISTS that is what she has???? This is

in the realm of encephalitis concerns, is it not?

> How old is this child now? From the link, how do they fit into

this scenario of expression of the symptoms mentioned? You said she

did not manifestion the typical symptoms of this disorder. Has

she/did she have a feed tube to dispense the medications?.Is she or

has she been on the newest combo of Sodium phenylacetate and sodium

benzoate?

> http://www.sciencedaily.com/releases/2007/05/070530182151.htm

> Is she on this diet of essentials mentioned? How did you come

upon the coconut oil regime? Has she been ill often or in hospital

because of this?

> How often do they test for the syndrome, or did they rule out

other things? How affected is she, mentally and physically? How

difficult is she to care her?

> Is it possible she may have been misdiagnosed, such as Reys

Syndrome?

> http://wrongdiagnosis.com/i/inborn_urea_cycle_disorder/intro.htm

> What is your worst fears about all this? Was she vaccinated,

(besides the vit K shot) and/or is she still being urged to be

vaccinated? If it is a mitocondrial disorder, I would think a

medical exemption would be in order, automatically.......OR are they

trying to dupe you into the AAP Think Tank that she needs them MORE,

because of being at risk??? pppppppttttttttt

> Perhaps some of these researcher or their facilities mentioned,

can be contacted for the most updated treatments, or to try to answer

so many of your questions and wonder and worries, about vit K shot

and aspartate connections., etc. Sometimes MOMs know best, when that

maternal instinct takes over ~ when they start to question authority.

And that is a Good Thing.

> So if you can eliminate you and your husband as carriers or

symptomatic, and can get somebody to confirm that there might be a

toxin/vaccine cause, you may be very well be on the Hunt for a

vaccine injury case! Vaccines do cause DNA changes!! Vit K can as

well. As well as aspartame. Aspartame is also put into vaccines. Did

your daughter get jaundice after the vit K shot? Vit K insert label.

http://www.fda.gov/medwatch/SAFETY/2003/03Feb_PI/AquaMEPHYTON_PI.pdf

>

> Super good luck to all of you over there in beautiful

Virginia. *+*+*+*+*+*+*+*

> Glad Day ~ Karla in IL

>

> http://www.ureacycle.com/diagnosis_differential.asp

>

[Guest guest]

Hi Karla,

Thanks for that post, this group is such a blessing for me, two years

alone in questioning the " experts " . We just got her blood test

results back from a couple of weeks ago and all of her levels are

normal except for the amino acid citrulline which is why they say she

has the disease.

I have considered getting a second opinion, but not sure who to talk

to, liver specialist, or another geneticist. I am thinking a liver

specialist since there are only a couple of geneticists in the area

and they all know each other. I did not see a link to the May 2008

article you referenced but am very interested in reading it if you

have time to post the link?

Her issue is with elevated citrulline levels. She was started on

another amino acid, Arginine to help her body eliminate the amonia

safely. Although her amonia levels never went above normal, we

started her on the medication at about 3 1/2 weeks of age, so it's

impossible to know if she would have had hyperammonia or not without

it. That was something we didn't want to risk, we wanted to avoid

brain damage, coma, death, etc. However, when we were advised around

3 months of age to significantly decrease her protein levels her next

blood test showed critically low levels of important amino

acids/proteins so we immediately increased the protein again.

Although they tell us we need to put her on a low protein diet, she

eats eggs, meats/fish (occasionally), cheese, whole grains (high in

protein) and she has never had any problems. In fact they also tried

to scare me into doing a CT scan on her when she was only 3 months

old! I was sick to my stomach because they scheduled to appointment

and had the office call me to prepare her and not feed her 8 hours

before, and they were going to fully sedate her with drugs and

everything. I told them NO!!!

It was the geneticist who thought she saw an abnormal shape to her

skull. She scared me enough to do an x-ray then despite the

radioligist saying it looked quite normal, she told me that on the

phone he told her that there's a possibility that one of her sutures

closed early. We said we'd keep an eye on her head, but of course

over the next few months we were terrified that she had an abnormal

head and brain squeezing, etc. Finally, our doc said that her head

was fine.

I told the geneticist that I didn't appreciate her trying to sneek a

peak at her brain as I found out that many kids do a CT scan to see

the structure of the brain. The geneticist to this day denies doing

research on her but she tries to get a photograph at each visit

eventhough we told her no photographs. I told her I better never read

about her in some medical article online or I will send lawyers her

way.

Anyway, it's been a nightmare and she keeps trying to tell us to

vaccinate her because she is higher risk...NO again was my answer and

this last visit, she didn't bring it up.

We have not looked at our DNA but we are starting to consider it

because if we do not have a mutation then she obviously would not

have inherited it from us. Although they said it's possible to have a

hidden mutation and not be able to see it on genetic tests...sounds

like BS to me.

She was identified on the newborn screen done in the hospital at 24

hours of age. Her citrulline levels were high, and have continued to

go up until they reached a plateu that is much much lower than normal

cases but still very elevated compared to the average person. Her

other amino acid levels seem to be normal and she never had any

symptoms of any kind. In fact, I was told in some cases, no matter

what you do, they have hyperammonia, but she never has despite being

ill, and yes, we had her vaccinated through at 6 months thinking it

would help her until she went to the ER with a 102.5 fever and

vomitting about 3 weeks after the vaccine combo shots for 6 month

old. She also shook her head a little funny for a few months

uncontrollably so we never took her back and will not have her

vaccinated again.

But the question is now, do we have a mutation in our DNA, or did the

vitamin K shot (or aspartame) cause something I found in my research

called a salt bridge between the enzyme and expression of chemicals

needed to convert citrulline to arginine? She has always produced a

normal level of arginine, which is supposed to be deficient if she

had a true case of citrullinemia, but that has always been normal.

The problem again is that we supplement her diet with arginine orally

to ensure that she won't get a build up of ammonia.

It's hard, but I think you bring up a good point of rulling out DNA

damage from toxins, versus, inheritance.

Oh the coconut oil was a discovery based on some scientific studies

done on animals and humans and healing of liver diseases. The coconut

oil seems to help or heal some liver diseases and hinders the growth

of cancer. Also, we started using Chia seeds; just google chia seeds

and you'll see they are one of the most stable sources of omega 3,

and coconut oil has lots of omega 6 and 9.

Thanks again, and sorry for such a long post, but I feel like I can

BREATH to have found you all! Thank the Lord!

>

> Hullo . This is a very curious disease, so forgive me if I

have questions you may or may not be able to answer. In this May,

2008 article, there is some revelation for new study and ongoing

research, and also mention that Urea Cycle could be caused by a toxic

drug, (which all vaccines are.)

> http://en.wikipedia.org/wiki/Urea_cycle_disorder

> It also mentions, that IF genetic, a parents would be carriers,

the mother may have a milder case that might not show up until

pregnancy or later in life, and could be very serious. Have ALL

three of you been genetically tested for this? as an absolute??? I

know I would want to Know ~ 100%

> Has your baby had second and third....or more Opinions?

Especially since your dr. INSISTS that is what she has???? This is

in the realm of encephalitis concerns, is it not?

> How old is this child now? From the link, how do they fit into

this scenario of expression of the symptoms mentioned? You said she

did not manifestion the typical symptoms of this disorder. Has

she/did she have a feed tube to dispense the medications?.Is she or

has she been on the newest combo of Sodium phenylacetate and sodium

benzoate?

> http://www.sciencedaily.com/releases/2007/05/070530182151.htm

> Is she on this diet of essentials mentioned? How did you come

upon the coconut oil regime? Has she been ill often or in hospital

because of this?

> How often do they test for the syndrome, or did they rule out

other things? How affected is she, mentally and physically? How

difficult is she to care her?

> Is it possible she may have been misdiagnosed, such as Reys

Syndrome?

> http://wrongdiagnosis.com/i/inborn_urea_cycle_disorder/intro.htm

> What is your worst fears about all this? Was she vaccinated,

(besides the vit K shot) and/or is she still being urged to be

vaccinated? If it is a mitocondrial disorder, I would think a

medical exemption would be in order, automatically.......OR are they

trying to dupe you into the AAP Think Tank that she needs them MORE,

because of being at risk??? pppppppttttttttt

> Perhaps some of these researcher or their facilities mentioned,

can be contacted for the most updated treatments, or to try to answer

so many of your questions and wonder and worries, about vit K shot

and aspartate connections., etc. Sometimes MOMs know best, when that

maternal instinct takes over ~ when they start to question authority.

And that is a Good Thing.

> So if you can eliminate you and your husband as carriers or

symptomatic, and can get somebody to confirm that there might be a

toxin/vaccine cause, you may be very well be on the Hunt for a

vaccine injury case! Vaccines do cause DNA changes!! Vit K can as

well. As well as aspartame. Aspartame is also put into vaccines. Did

your daughter get jaundice after the vit K shot? Vit K insert label.

http://www.fda.gov/medwatch/SAFETY/2003/03Feb_PI/AquaMEPHYTON_PI.pdf

>

> Super good luck to all of you over there in beautiful

Virginia. *+*+*+*+*+*+*+*

> Glad Day ~ Karla in IL

>

> http://www.ureacycle.com/diagnosis_differential.asp

>

[Guest guest]

Hi Karla,

Thanks for that post, this group is such a blessing for me, two years

alone in questioning the " experts " . We just got her blood test

results back from a couple of weeks ago and all of her levels are

normal except for the amino acid citrulline which is why they say she

has the disease.

I have considered getting a second opinion, but not sure who to talk

to, liver specialist, or another geneticist. I am thinking a liver

specialist since there are only a couple of geneticists in the area

and they all know each other. I did not see a link to the May 2008

article you referenced but am very interested in reading it if you

have time to post the link?

Her issue is with elevated citrulline levels. She was started on

another amino acid, Arginine to help her body eliminate the amonia

safely. Although her amonia levels never went above normal, we

started her on the medication at about 3 1/2 weeks of age, so it's

impossible to know if she would have had hyperammonia or not without

it. That was something we didn't want to risk, we wanted to avoid

brain damage, coma, death, etc. However, when we were advised around

3 months of age to significantly decrease her protein levels her next

blood test showed critically low levels of important amino

acids/proteins so we immediately increased the protein again.

Although they tell us we need to put her on a low protein diet, she

eats eggs, meats/fish (occasionally), cheese, whole grains (high in

protein) and she has never had any problems. In fact they also tried

to scare me into doing a CT scan on her when she was only 3 months

old! I was sick to my stomach because they scheduled to appointment

and had the office call me to prepare her and not feed her 8 hours

before, and they were going to fully sedate her with drugs and

everything. I told them NO!!!

It was the geneticist who thought she saw an abnormal shape to her

skull. She scared me enough to do an x-ray then despite the

radioligist saying it looked quite normal, she told me that on the

phone he told her that there's a possibility that one of her sutures

closed early. We said we'd keep an eye on her head, but of course

over the next few months we were terrified that she had an abnormal

head and brain squeezing, etc. Finally, our doc said that her head

was fine.

I told the geneticist that I didn't appreciate her trying to sneek a

peak at her brain as I found out that many kids do a CT scan to see

the structure of the brain. The geneticist to this day denies doing

research on her but she tries to get a photograph at each visit

eventhough we told her no photographs. I told her I better never read

about her in some medical article online or I will send lawyers her

way.

Anyway, it's been a nightmare and she keeps trying to tell us to

vaccinate her because she is higher risk...NO again was my answer and

this last visit, she didn't bring it up.

We have not looked at our DNA but we are starting to consider it

because if we do not have a mutation then she obviously would not

have inherited it from us. Although they said it's possible to have a

hidden mutation and not be able to see it on genetic tests...sounds

like BS to me.

She was identified on the newborn screen done in the hospital at 24

hours of age. Her citrulline levels were high, and have continued to

go up until they reached a plateu that is much much lower than normal

cases but still very elevated compared to the average person. Her

other amino acid levels seem to be normal and she never had any

symptoms of any kind. In fact, I was told in some cases, no matter

what you do, they have hyperammonia, but she never has despite being

ill, and yes, we had her vaccinated through at 6 months thinking it

would help her until she went to the ER with a 102.5 fever and

vomitting about 3 weeks after the vaccine combo shots for 6 month

old. She also shook her head a little funny for a few months

uncontrollably so we never took her back and will not have her

vaccinated again.

But the question is now, do we have a mutation in our DNA, or did the

vitamin K shot (or aspartame) cause something I found in my research

called a salt bridge between the enzyme and expression of chemicals

needed to convert citrulline to arginine? She has always produced a

normal level of arginine, which is supposed to be deficient if she

had a true case of citrullinemia, but that has always been normal.

The problem again is that we supplement her diet with arginine orally

to ensure that she won't get a build up of ammonia.

It's hard, but I think you bring up a good point of rulling out DNA

damage from toxins, versus, inheritance.

Oh the coconut oil was a discovery based on some scientific studies

done on animals and humans and healing of liver diseases. The coconut

oil seems to help or heal some liver diseases and hinders the growth

of cancer. Also, we started using Chia seeds; just google chia seeds

and you'll see they are one of the most stable sources of omega 3,

and coconut oil has lots of omega 6 and 9.

Thanks again, and sorry for such a long post, but I feel like I can

BREATH to have found you all! Thank the Lord!

>

> Hullo . This is a very curious disease, so forgive me if I

have questions you may or may not be able to answer. In this May,

2008 article, there is some revelation for new study and ongoing

research, and also mention that Urea Cycle could be caused by a toxic

drug, (which all vaccines are.)

> http://en.wikipedia.org/wiki/Urea_cycle_disorder

> It also mentions, that IF genetic, a parents would be carriers,

the mother may have a milder case that might not show up until

pregnancy or later in life, and could be very serious. Have ALL

three of you been genetically tested for this? as an absolute??? I

know I would want to Know ~ 100%

> Has your baby had second and third....or more Opinions?

Especially since your dr. INSISTS that is what she has???? This is

in the realm of encephalitis concerns, is it not?

> How old is this child now? From the link, how do they fit into

this scenario of expression of the symptoms mentioned? You said she

did not manifestion the typical symptoms of this disorder. Has

she/did she have a feed tube to dispense the medications?.Is she or

has she been on the newest combo of Sodium phenylacetate and sodium

benzoate?

> http://www.sciencedaily.com/releases/2007/05/070530182151.htm

> Is she on this diet of essentials mentioned? How did you come

upon the coconut oil regime? Has she been ill often or in hospital

because of this?

> How often do they test for the syndrome, or did they rule out

other things? How affected is she, mentally and physically? How

difficult is she to care her?

> Is it possible she may have been misdiagnosed, such as Reys

Syndrome?

> http://wrongdiagnosis.com/i/inborn_urea_cycle_disorder/intro.htm

> What is your worst fears about all this? Was she vaccinated,

(besides the vit K shot) and/or is she still being urged to be

vaccinated? If it is a mitocondrial disorder, I would think a

medical exemption would be in order, automatically.......OR are they

trying to dupe you into the AAP Think Tank that she needs them MORE,

because of being at risk??? pppppppttttttttt

> Perhaps some of these researcher or their facilities mentioned,

can be contacted for the most updated treatments, or to try to answer

so many of your questions and wonder and worries, about vit K shot

and aspartate connections., etc. Sometimes MOMs know best, when that

maternal instinct takes over ~ when they start to question authority.

And that is a Good Thing.

> So if you can eliminate you and your husband as carriers or

symptomatic, and can get somebody to confirm that there might be a

toxin/vaccine cause, you may be very well be on the Hunt for a

vaccine injury case! Vaccines do cause DNA changes!! Vit K can as

well. As well as aspartame. Aspartame is also put into vaccines. Did

your daughter get jaundice after the vit K shot? Vit K insert label.

http://www.fda.gov/medwatch/SAFETY/2003/03Feb_PI/AquaMEPHYTON_PI.pdf

>

> Super good luck to all of you over there in beautiful

Virginia. *+*+*+*+*+*+*+*

> Glad Day ~ Karla in IL

>

> http://www.ureacycle.com/diagnosis_differential.asp

>

[Guest guest]

The biotin is an interesting thought to consider especially since it

affects amino acid metabolism. All of her levels were off as a

newborn, but I think most of them are since their bodies are just

learning how to function. For now, her only issue is one amino acid,

and her BUN levels and sugar metabolisms are normal, thank God for

that. I think it is so important that we question these rules in the

medical definitions because they don't even fully understand the

immune system and think that testing a vaccine for six months is

sufficiant.

Something I was talking with my husband about this morning was that

there is not a question of IF vaccines cause damage, but in HOW MANY

children. Really THAT is the question...and what is the

establishment's response? That there are more children helped than

harmed by HERD VACCINATION practices. Just think about that for a

minute, are we cattle in a herd to them? Their thoeries of

vaccination don't work without at least 90% inclusion, right? Well,

they're wrong and I think many folks here have done enough research

to know that they are not willing to rish their child being one of

the unfortunate sacrifices for the vaccine industry.

But, I do think that there is a toxic explanation to most genetic

mutations and can't blame EVERYTHING on vaccines. Her levels were

elevated before the vaccines, but we don't know if they were elevated

before the vitamin K shot in the hospital since they do the blood

test a day after the shot.

I appreciate your sharing your information and experiences and I'm

going to take a look at biotin relationship with citrulline.

> > >

> > > Hullo godardam. Vent anytime you feel like it! What is the

> nature of

> > your daughter's genetic mutation. Does it have a name? What have

> you

> > been trying to do for that condition, and how does it affect

her?

> Glad

> > Day ~ Karla in IL

> > >

> >

>

[Guest guest]

The biotin is an interesting thought to consider especially since it

affects amino acid metabolism. All of her levels were off as a

newborn, but I think most of them are since their bodies are just

learning how to function. For now, her only issue is one amino acid,

and her BUN levels and sugar metabolisms are normal, thank God for

that. I think it is so important that we question these rules in the

medical definitions because they don't even fully understand the

immune system and think that testing a vaccine for six months is

sufficiant.

Something I was talking with my husband about this morning was that

there is not a question of IF vaccines cause damage, but in HOW MANY

children. Really THAT is the question...and what is the

establishment's response? That there are more children helped than

harmed by HERD VACCINATION practices. Just think about that for a

minute, are we cattle in a herd to them? Their thoeries of

vaccination don't work without at least 90% inclusion, right? Well,

they're wrong and I think many folks here have done enough research

to know that they are not willing to rish their child being one of

the unfortunate sacrifices for the vaccine industry.

But, I do think that there is a toxic explanation to most genetic

mutations and can't blame EVERYTHING on vaccines. Her levels were

elevated before the vaccines, but we don't know if they were elevated

before the vitamin K shot in the hospital since they do the blood

test a day after the shot.

I appreciate your sharing your information and experiences and I'm

going to take a look at biotin relationship with citrulline.

> > >

> > > Hullo godardam. Vent anytime you feel like it! What is the

> nature of

> > your daughter's genetic mutation. Does it have a name? What have

> you

> > been trying to do for that condition, and how does it affect

her?

> Glad

> > Day ~ Karla in IL

> > >

> >

>

[Guest guest]

I agree , that it's often hard to realize that not everything that is wrong with us is due to vaccine. For example, my bottom seems to be a bit out of control, but I'm pretty sure it has more to do with my computer chair than the vaccines -- just trying to add some levity here, it's such a serious group of people!

Remember, even with all the crap in our food and corruption in our politics, we're still a pretty dang good country to live in!

Re: Genetic mutation - urea cycle disorder

The biotin is an interesting thought to consider especially since it affects amino acid metabolism. All of her levels were off as a newborn, but I think most of them are since their bodies are just learning how to function. For now, her only issue is one amino acid, and her BUN levels and sugar metabolisms are normal, thank God for that. I think it is so important that we question these rules in the medical definitions because they don't even fully understand the immune system and think that testing a vaccine for six months is sufficiant.Something I was talking with my husband about this morning was that there is not a question of IF vaccines cause damage, but in HOW MANY children. Really THAT is the question...and what is the establishment' s response? That there are more children helped than harmed by HERD VACCINATION practices. Just think about that for a minute, are we cattle in a herd to

them? Their thoeries of vaccination don't work without at least 90% inclusion, right? Well, they're wrong and I think many folks here have done enough research to know that they are not willing to rish their child being one of the unfortunate sacrifices for the vaccine industry.But, I do think that there is a toxic explanation to most genetic mutations and can't blame EVERYTHING on vaccines. Her levels were elevated before the vaccines, but we don't know if they were elevated before the vitamin K shot in the hospital since they do the blood test a day after the shot.I appreciate your sharing your information and experiences and I'm going to take a look at biotin relationship with citrulline.> > >> > > Hullo godardam. Vent anytime you feel like it! What is the > nature of > > your daughter's genetic mutation. Does it have a name? What have > you > > been trying to do for that condition, and how does it affect her? > Glad > > Day ~ Karla in IL> > >> >>

[Guest guest]

I agree , that it's often hard to realize that not everything that is wrong with us is due to vaccine. For example, my bottom seems to be a bit out of control, but I'm pretty sure it has more to do with my computer chair than the vaccines -- just trying to add some levity here, it's such a serious group of people!

Remember, even with all the crap in our food and corruption in our politics, we're still a pretty dang good country to live in!

Re: Genetic mutation - urea cycle disorder

The biotin is an interesting thought to consider especially since it affects amino acid metabolism. All of her levels were off as a newborn, but I think most of them are since their bodies are just learning how to function. For now, her only issue is one amino acid, and her BUN levels and sugar metabolisms are normal, thank God for that. I think it is so important that we question these rules in the medical definitions because they don't even fully understand the immune system and think that testing a vaccine for six months is sufficiant.Something I was talking with my husband about this morning was that there is not a question of IF vaccines cause damage, but in HOW MANY children. Really THAT is the question...and what is the establishment' s response? That there are more children helped than harmed by HERD VACCINATION practices. Just think about that for a minute, are we cattle in a herd to

them? Their thoeries of vaccination don't work without at least 90% inclusion, right? Well, they're wrong and I think many folks here have done enough research to know that they are not willing to rish their child being one of the unfortunate sacrifices for the vaccine industry.But, I do think that there is a toxic explanation to most genetic mutations and can't blame EVERYTHING on vaccines. Her levels were elevated before the vaccines, but we don't know if they were elevated before the vitamin K shot in the hospital since they do the blood test a day after the shot.I appreciate your sharing your information and experiences and I'm going to take a look at biotin relationship with citrulline.> > >> > > Hullo godardam. Vent anytime you feel like it! What is the > nature of > > your daughter's genetic mutation. Does it have a name? What have > you > > been trying to do for that condition, and how does it affect her? > Glad > > Day ~ Karla in IL> > >> >>

[Guest guest]

Hullo . It sounds like you are becoming quite the expert on Urea Cycle and your daughters care. How old is she now, to be eating so many foods? Krill oil is also a great source of omega3, better than cod or fishoil, but with any of them, they are more viable when taken in tandem with flaxseed oil, but normally should be taken every second or third day, with the coconut on the alternate day. Virgin Coconut has some pretty good known and unknow healthy properties, so good job on that Find. Part of the reason I was so interested in this inborn heredity disorder, is from alot of searching for my family's rare type of muscular dystrophy, so I have been around that DNA block. In the last post, was the wikipedia link, that was the most updated info on the Ureas, from May 2008, but will post it again. http://en.wikipedia.org/wiki/Urea_cycle_disorder Keep researching to learn all you can. Try the second opinion genetisist, See if they Rhyme. If you dont like it, try the liver guys next. There are DNA test for the Ureas' They know where to look, and which chromesomes each of the several types of Urea is at. So yes, that was some BS, and shame on them for calling themselves genetisist, if they dont do routine DNA testing to rule things in or out, or test the parents. It is your right to KNOW they are on the right path. It is also your to find out for sure what your daughter has or not, and if the drugs she is on are appropriate. That combo I sited is the best drug to date, if she indeed needs a drug for her disorder. Her's does appear suspicially more mild than some I am reading about. You can search engine DNA test for Urea Cycle, or

independant DNA test facilities, to see who does Urea testing, if your doctors wont sent your blood work out to them, or tells you they are arent worth it or good enuff tests, or insurance wont pay for them. That is crazy. You can contact these independant DNA testing facilities for more info and pricing. There is also the National Urea Cycle Disorders Foundation, if you are not familiar with that. Lots of resources and support there. http://www.nucdf.org/ucd_faqs.htm Good luck with what ever you do, or are able to find out. It is so hard feeling like you are in the dark, when you want the best answers you can find. Keep us updated. And yes, you should probably refrain from any further unneccesary X-rays and invasive tests and vaccines, no matter what They tell you about her *At Risk* factor. Bunch o' crap that! The people they

target as most at risk, are usually the sickest, or youngest or oldest, with compromised immune systems and diseases to begin with. Why be poisoned more? That is the Insanity that goes with the vaccination story territory. Glad Day ~ Karla in IL

[Guest guest]

Hullo . It sounds like you are becoming quite the expert on Urea Cycle and your daughters care. How old is she now, to be eating so many foods? Krill oil is also a great source of omega3, better than cod or fishoil, but with any of them, they are more viable when taken in tandem with flaxseed oil, but normally should be taken every second or third day, with the coconut on the alternate day. Virgin Coconut has some pretty good known and unknow healthy properties, so good job on that Find. Part of the reason I was so interested in this inborn heredity disorder, is from alot of searching for my family's rare type of muscular dystrophy, so I have been around that DNA block. In the last post, was the wikipedia link, that was the most updated info on the Ureas, from May 2008, but will post it again. http://en.wikipedia.org/wiki/Urea_cycle_disorder Keep researching to learn all you can. Try the second opinion genetisist, See if they Rhyme. If you dont like it, try the liver guys next. There are DNA test for the Ureas' They know where to look, and which chromesomes each of the several types of Urea is at. So yes, that was some BS, and shame on them for calling themselves genetisist, if they dont do routine DNA testing to rule things in or out, or test the parents. It is your right to KNOW they are on the right path. It is also your to find out for sure what your daughter has or not, and if the drugs she is on are appropriate. That combo I sited is the best drug to date, if she indeed needs a drug for her disorder. Her's does appear suspicially more mild than some I am reading about. You can search engine DNA test for Urea Cycle, or

independant DNA test facilities, to see who does Urea testing, if your doctors wont sent your blood work out to them, or tells you they are arent worth it or good enuff tests, or insurance wont pay for them. That is crazy. You can contact these independant DNA testing facilities for more info and pricing. There is also the National Urea Cycle Disorders Foundation, if you are not familiar with that. Lots of resources and support there. http://www.nucdf.org/ucd_faqs.htm Good luck with what ever you do, or are able to find out. It is so hard feeling like you are in the dark, when you want the best answers you can find. Keep us updated. And yes, you should probably refrain from any further unneccesary X-rays and invasive tests and vaccines, no matter what They tell you about her *At Risk* factor. Bunch o' crap that! The people they

target as most at risk, are usually the sickest, or youngest or oldest, with compromised immune systems and diseases to begin with. Why be poisoned more? That is the Insanity that goes with the vaccination story territory. Glad Day ~ Karla in IL

[Guest guest]

Yes - according to the system - we ARE a herd. Don't forget, for

future reference, you can refuse the K; although, I assume you may

have already made that decision for your newborn, given your older

child's medical history.

Best,

t

On Jun 10, 2008, at 3:04 PM, godardam wrote:

> The biotin is an interesting thought to consider especially since it

> affects amino acid metabolism. All of her levels were off as a

> newborn, but I think most of them are since their bodies are just

> learning how to function. For now, her only issue is one amino acid,

> and her BUN levels and sugar metabolisms are normal, thank God for

> that. I think it is so important that we question these rules in the

> medical definitions because they don't even fully understand the

> immune system and think that testing a vaccine for six months is

> sufficiant.

>

> Something I was talking with my husband about this morning was that

> there is not a question of IF vaccines cause damage, but in HOW MANY

> children. Really THAT is the question...and what is the

> establishment's response? That there are more children helped than

> harmed by HERD VACCINATION practices. Just think about that for a

> minute, are we cattle in a herd to them? Their thoeries of

> vaccination don't work without at least 90% inclusion, right? Well,

> they're wrong and I think many folks here have done enough research

> to know that they are not willing to rish their child being one of

> the unfortunate sacrifices for the vaccine industry.

>

> But, I do think that there is a toxic explanation to most genetic

> mutations and can't blame EVERYTHING on vaccines. Her levels were

> elevated before the vaccines, but we don't know if they were elevated

> before the vitamin K shot in the hospital since they do the blood

> test a day after the shot.

>

> I appreciate your sharing your information and experiences and I'm

> going to take a look at biotin relationship with citrulline.

>

>

>

>

> > > >

> > > > Hullo godardam. Vent anytime you feel like it! What is the

> > nature of

> > > your daughter's genetic mutation. Does it have a name? What have

> > you

> > > been trying to do for that condition, and how does it affect

> her?

> > Glad

> > > Day ~ Karla in IL

> > > >

> > >

> >

>

>

>

[Guest guest]

Yes - according to the system - we ARE a herd. Don't forget, for

future reference, you can refuse the K; although, I assume you may

have already made that decision for your newborn, given your older

child's medical history.

Best,

t

On Jun 10, 2008, at 3:04 PM, godardam wrote:

> The biotin is an interesting thought to consider especially since it

> affects amino acid metabolism. All of her levels were off as a

> newborn, but I think most of them are since their bodies are just

> learning how to function. For now, her only issue is one amino acid,

> and her BUN levels and sugar metabolisms are normal, thank God for

> that. I think it is so important that we question these rules in the

> medical definitions because they don't even fully understand the

> immune system and think that testing a vaccine for six months is

> sufficiant.

>

> Something I was talking with my husband about this morning was that

> there is not a question of IF vaccines cause damage, but in HOW MANY

> children. Really THAT is the question...and what is the

> establishment's response? That there are more children helped than

> harmed by HERD VACCINATION practices. Just think about that for a

> minute, are we cattle in a herd to them? Their thoeries of

> vaccination don't work without at least 90% inclusion, right? Well,

> they're wrong and I think many folks here have done enough research

> to know that they are not willing to rish their child being one of

> the unfortunate sacrifices for the vaccine industry.

>

> But, I do think that there is a toxic explanation to most genetic

> mutations and can't blame EVERYTHING on vaccines. Her levels were

> elevated before the vaccines, but we don't know if they were elevated

> before the vitamin K shot in the hospital since they do the blood

> test a day after the shot.

>

> I appreciate your sharing your information and experiences and I'm

> going to take a look at biotin relationship with citrulline.

>

>

>

>

> > > >

> > > > Hullo godardam. Vent anytime you feel like it! What is the

> > nature of

> > > your daughter's genetic mutation. Does it have a name? What have

> > you

> > > been trying to do for that condition, and how does it affect

> her?

> > Glad

> > > Day ~ Karla in IL

> > > >

> > >

> >

>

>

>

[Guest guest]

It was forced on me or they would NOT circumsize my son. I am still mad about it.

Re: Re: Genetic mutation - urea cycle disorder

Yes - according to the system - we ARE a herd. Don't forget, for future reference, you can refuse the K; although, I assume you may have already made that decision for your newborn, given your older child's medical history.Best,tOn Jun 10, 2008, at 3:04 PM, godardam wrote:> The biotin is an interesting thought to consider especially since it> affects amino acid metabolism. All of her levels were off as a> newborn, but I think most of them are since their bodies are just> learning how to function. For now, her only issue is one amino acid,> and her BUN levels and sugar metabolisms are normal, thank God for> that. I think it is so important that we question these rules in the> medical definitions because they don't even fully understand the> immune system and think that testing a vaccine for six months is> sufficiant.>> Something I was

talking with my husband about this morning was that> there is not a question of IF vaccines cause damage, but in HOW MANY> children. Really THAT is the question...and what is the> establishment' s response? That there are more children helped than> harmed by HERD VACCINATION practices. Just think about that for a> minute, are we cattle in a herd to them? Their thoeries of> vaccination don't work without at least 90% inclusion, right? Well,> they're wrong and I think many folks here have done enough research> to know that they are not willing to rish their child being one of> the unfortunate sacrifices for the vaccine industry.>> But, I do think that there is a toxic explanation to most genetic> mutations and can't blame EVERYTHING on vaccines. Her levels were> elevated before the vaccines, but we don't know if they were elevated> before the vitamin K shot

in the hospital since they do the blood> test a day after the shot.>> I appreciate your sharing your information and experiences and I'm> going to take a look at biotin relationship with citrulline.>> >> > > > >> > > > Hullo godardam. Vent anytime you feel like it! What is the> > nature of> > > your daughter's genetic mutation. Does it have a name? What have> > you> > > been trying to do for that condition, and how does it affect> her?> > Glad> > > Day ~ Karla in IL> > > >> >

>> >>>>

[Guest guest]

It was forced on me or they would NOT circumsize my son. I am still mad about it.

Re: Re: Genetic mutation - urea cycle disorder

Yes - according to the system - we ARE a herd. Don't forget, for future reference, you can refuse the K; although, I assume you may have already made that decision for your newborn, given your older child's medical history.Best,tOn Jun 10, 2008, at 3:04 PM, godardam wrote:> The biotin is an interesting thought to consider especially since it> affects amino acid metabolism. All of her levels were off as a> newborn, but I think most of them are since their bodies are just> learning how to function. For now, her only issue is one amino acid,> and her BUN levels and sugar metabolisms are normal, thank God for> that. I think it is so important that we question these rules in the> medical definitions because they don't even fully understand the> immune system and think that testing a vaccine for six months is> sufficiant.>> Something I was

talking with my husband about this morning was that> there is not a question of IF vaccines cause damage, but in HOW MANY> children. Really THAT is the question...and what is the> establishment' s response? That there are more children helped than> harmed by HERD VACCINATION practices. Just think about that for a> minute, are we cattle in a herd to them? Their thoeries of> vaccination don't work without at least 90% inclusion, right? Well,> they're wrong and I think many folks here have done enough research> to know that they are not willing to rish their child being one of> the unfortunate sacrifices for the vaccine industry.>> But, I do think that there is a toxic explanation to most genetic> mutations and can't blame EVERYTHING on vaccines. Her levels were> elevated before the vaccines, but we don't know if they were elevated> before the vitamin K shot

in the hospital since they do the blood> test a day after the shot.>> I appreciate your sharing your information and experiences and I'm> going to take a look at biotin relationship with citrulline.>> >> > > > >> > > > Hullo godardam. Vent anytime you feel like it! What is the> > nature of> > > your daughter's genetic mutation. Does it have a name? What have> > you> > > been trying to do for that condition, and how does it affect> her?> > Glad> > > Day ~ Karla in IL> > > >> >

>> >>>>

[Guest guest]

Hullo again . And what you may not have gone a bit futher to say or think about....What if vaccines affect almost all of us, our children, from obtaining the full potential of what we may have been? without vaccines ..........................Pregnant pause. Even the school systems are lowering their expectations and normal ranges in IQ to accomdate this fact, that has evolved over the last several decades or so. Doctors average IQ are much less than use to be expected. Great teachers are hard to find, being pressed out because of econocics and low pay, choosing more lucrative jobs, more often than not. Think about the instruction and schooling students, here and abroad, that were required of them, even back at the turn of the century, A much broader expanse of all the academias, and trades and skills, to be more self serving and self-surviving, even within the family

units. And the social skills too, We dont know all that much about how they lived, except from books and family traditions. They all had to pull their weight, with few free rides. And they had to be inventive and imaginative and resourceful. More lost knowledge in our day. Something is amiss in our schools and colleges today. We are losing so many of our values and goals and self respect, because of school systems, who are more concerned about putting poisons in our children, than teaching pride or edicute or manners.. Everything has to require a Specialists these days. We wouldnt be able to survive very long on our own. One has to wonder why we have a Mcs or Taco Bell every few blocks, Not too many people can grow a garden or chop off a chicken's head for soup. Mom and Pop businesses and free market is slipping away. And we seem to need specialist and authorities to do the things we cant, and think for

us . We are not very independant, really. And that is sad that we have become so needy and dependant on so many other sources and people, whom we will most likely, never see or meet. Enuff about that, I think you get my gist. Knowledge is power. The only real human power. So we have to keep searching for it, voraciously, And hope to find some beauty and truth along the Way. Glad Day ~ Karla in IL

[Guest guest]

Hullo again . And what you may not have gone a bit futher to say or think about....What if vaccines affect almost all of us, our children, from obtaining the full potential of what we may have been? without vaccines ..........................Pregnant pause. Even the school systems are lowering their expectations and normal ranges in IQ to accomdate this fact, that has evolved over the last several decades or so. Doctors average IQ are much less than use to be expected. Great teachers are hard to find, being pressed out because of econocics and low pay, choosing more lucrative jobs, more often than not. Think about the instruction and schooling students, here and abroad, that were required of them, even back at the turn of the century, A much broader expanse of all the academias, and trades and skills, to be more self serving and self-surviving, even within the family

units. And the social skills too, We dont know all that much about how they lived, except from books and family traditions. They all had to pull their weight, with few free rides. And they had to be inventive and imaginative and resourceful. More lost knowledge in our day. Something is amiss in our schools and colleges today. We are losing so many of our values and goals and self respect, because of school systems, who are more concerned about putting poisons in our children, than teaching pride or edicute or manners.. Everything has to require a Specialists these days. We wouldnt be able to survive very long on our own. One has to wonder why we have a Mcs or Taco Bell every few blocks, Not too many people can grow a garden or chop off a chicken's head for soup. Mom and Pop businesses and free market is slipping away. And we seem to need specialist and authorities to do the things we cant, and think for

us . We are not very independant, really. And that is sad that we have become so needy and dependant on so many other sources and people, whom we will most likely, never see or meet. Enuff about that, I think you get my gist. Knowledge is power. The only real human power. So we have to keep searching for it, voraciously, And hope to find some beauty and truth along the Way. Glad Day ~ Karla in IL