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In a message dated 4/7/02 9:20:27 AM Pacific Daylight Time, writes:

> roups.com

Hi I am new to this group but i have had autoimmune hep. for 6 yrs. and have felt very alone. I am the only one I know about in my part of the state.

When I originally took ill I thought I had the flu but then I turned yellow. The doctors here couldn't figure out what was wrong but luckly they were in touch withUPMC and they aked to see me where I was finally diagnosed. Since then I have had many ups and downs and it seems that I have more quetions everyday . Well I don't mean to bore any of you , i just wanted to say hello and introduce myself a little..

At this point I am on pred. ,immuran,synthroid,morphine and other meds. I have to walk with a cane and all my bones and muscles are deteriorating.

They say that I will be in a wheelchair befor long but I am fighting that.

Thankyou for listening

brenda

Hello, . I'm sorry you're having so much trouble. What's causing your bones and muscles to deteriorate? Are you receiving treatment for this problem?

Harper

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  • 5 years later...

Welcome!!! You're in a good place. Ask away!!!!!! Some cities have support groups for "spectrum" issues through a school. I'd ask around. Also,,,,,maybe a local behavioral health doctors office may know of a group locally. Robinravynposey <ravynposey@...> wrote: Yesterday my son was finally diagnosed with Asperger's and AD/HD. He is 8 years old. We have been working on this since he was 3 when he got diagnosed with Autism. Due to his father being in the military, we

moved right after he was diagnosed (1 week). When we relocated, the doctors reversed the diagnosis saying he was a normal high active boy. Then he started school. We were working with the school to figure out why he behaved the way he did. Then we moved again. His dad and I desided to divorce. I have been working with his new school and with his new doctors. I have never heard of Asperger's prior to 3 months ago when the doctors listed off what they were testing him for. Now reading through all the information I am finding, it fits him well. Everywhere I look the descriptions seem to be a biography about my son. Now I am just trying to a support group to help with understanding and information. Also for different ideas to help him and myself deal and learn to live with and better our lives as well as give info on anything that I figure out that may help someone

else.

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used to go to a play group therapy to learn social skills. She really liked it a lot! They did role playing, learned to play games (taking turns, encouraging each other), talk about their feelings. Maybe there is something like that near you!

Deb

( ) Hello,

Yesterday my son was finally diagnosed with Asperger's and AD/HD. He

is 8 years old. We have been working on this since he was 3 when he got

diagnosed with Autism. Due to his father being in the military, we

moved right after he was diagnosed (1 week). When we relocated, the

doctors reversed the diagnosis saying he was a normal high active boy.

Then he started school. We were working with the school to figure out

why he behaved the way he did. Then we moved again. His dad and I

desided to divorce. I have been working with his new school and with

his new doctors. I have never heard of Asperger's prior to 3 months ago

when the doctors listed off what they were testing him for. Now reading

through all the information I am finding, it fits him well. Everywhere

I look the descriptions seem to be a biography about my son. Now I am

just trying to a support group to help with understanding and

information. Also for different ideas to help him and myself deal and

learn to live with and better our lives as well as give info on

anything that I figure out that may help someone else.

Email and AIM finally together. You've gotta check out free AOL Mail!

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Hi, It sounds like your off to a good start. you got a dx that fits and you joined an awsome support group with great people here. welcome to the group. How do you like the school your son is in? are they familiar with aspergers? Roseravynposey <ravynposey@...> wrote: Yesterday my son was finally diagnosed with Asperger's and AD/HD. He is 8 years old. We have been working on this since he was 3 when he got diagnosed with Autism. Due to his father being in the

military, we moved right after he was diagnosed (1 week). When we relocated, the doctors reversed the diagnosis saying he was a normal high active boy. Then he started school. We were working with the school to figure out why he behaved the way he did. Then we moved again. His dad and I desided to divorce. I have been working with his new school and with his new doctors. I have never heard of Asperger's prior to 3 months ago when the doctors listed off what they were testing him for. Now reading through all the information I am finding, it fits him well. Everywhere I look the descriptions seem to be a biography about my son. Now I am just trying to a support group to help with understanding and information. Also for different ideas to help him and myself deal and learn to live with and better our lives as well as give info on anything that I figure out that may help someone

else.

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Thank you for the welcome. I am eager to be able to focus on getting

him on the right track now that I have an idea about how to do it.

The school my son is in is decent. His teacher is real understanding

and knows how to teach children of different capasities. I am looking

at calling the local board of MR/DD and Autism society to apply for

the scholarships and possibly sending him to Imm. next year.

Imm. is a school that is specifically designed to work with

autism and the autism spectrum including AD/HD. But then I was also

thinking about home schooling him. Not sure yet which of the 3

options would be best for him. I don't want to make any mid year

transits. As for being familure with asperger's, I guess I am a

little more familure with it than I knew. I found out today from my

mom that my brother was diagnosed asperger's. I knew he was ad/hd but

not asperger's. So I have dealt with it before but not exactly the

same as I will with my son. I have been reading up as much as I can

on the subject when I have time. (I have 3 children to tend to which

he is the oldest). Any additional information that I might not pick

up as easily off a web site is more than appriciated. I will soak up

everything I can to help him and his siblings. Thank you again for

the warm welcome.

> Yesterday my son was finally diagnosed with Asperger's

and AD/HD. He

> is 8 years old. We have been working on this since he was 3 when he

got

> diagnosed with Autism. Due to his father being in the military, we

> moved right after he was diagnosed (1 week). When we relocated, the

> doctors reversed the diagnosis saying he was a normal high active

boy.

> Then he started school. We were working with the school to figure

out

> why he behaved the way he did. Then we moved again. His dad and I

> desided to divorce. I have been working with his new school and

with

> his new doctors. I have never heard of Asperger's prior to 3 months

ago

> when the doctors listed off what they were testing him for. Now

reading

> through all the information I am finding, it fits him well.

Everywhere

> I look the descriptions seem to be a biography about my son. Now I

am

> just trying to a support group to help with understanding and

> information. Also for different ideas to help him and myself deal

and

> learn to live with and better our lives as well as give info on

> anything that I figure out that may help someone else.

>

>

>

>

>

>

> ---------------------------------

> Tonight's top picks. What will you watch tonight? Preview the

hottest shows on TV.

>

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  • 2 years later...

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