Guest guest Posted December 6, 1999 Report Share Posted December 6, 1999 said: > I hope to be able to intertwine our programs for maximum language training. > The Lovaas format gives him the language, hopefully the S/P technique will > help him understand and use the language spontaneously/functionally. Dear and others, I recently watched a workshop of Dr. Carbone's and the family was telling him that they were unsure if the child was " comprehending " what was being taught. How Dr. Carbone responded really made since to me... He said: (not an exact quote!!) Do not view what we teach cognitively(in our heads) but view it behaviorally (skills we need in life). As a behavioralist, it is easier to view teaching as a set of behaviors that need to be taught to be successful in life, instead of seeing if the child is getting the cognitive understanding and concept meaning of a skill being taught. If you view things behaviorally, you need to think about how many skills you are required to do in a classroom at one time (listening, looking, doing, listening more, etc.). Cognitive problems can not be taught. But good behavior teaching will improve cognitive understanding. In all actuality, if the problem is in the cognitive understanding, it is the child's problem (behavioralist do not like to view things in this light). If it is viewed in a functional behavioral aspect, the problem can be solved in the teaching itself. I do not want to confuse the issue but I would like the listers here to understand that through our teaching and technique, cognitive abilities will improve. Trying to figure out what is going on in that little head will only confuse the issues. So try to look at your teaching in black and white. Either he has is or he does not. If he does not, take a look at how the skill is being taught, make sure you know the goal you are actually looking for, and then take a look at how the skill is being taught (not whether the child is getting it cognitively.) I hope this helps and I hope that I have not blotched up Dr. Carbone's explanation too much! Rhonda bbird098@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 << I have been considering ritalin. >> which promises permanent brain damage in return for temporary benefit - perhaps why it is so popular with the same MD's who shoot kids full of mercury. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 << We had the mercury blood test done last week and it was negative for mercury. >> this test is always negative. Then the people somehow magically all have a spontaneous remission after mercury detox. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 << Would it be wise now to have a hair test done from his first haircut (13 months)? Can you recommend a lab? Should I have it analyzed for something other than mercury? >> Doctor's data lab, either old or current hair, use the counting rules you can download to interpret it - the level of mercury itself is irrelevant. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 << Previous testing through the Great Plains Lab also showed low levels of glutathione. >> Testing through GP always shows that. Sometimes it is true. Sometimes it is the opposite. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Ok, so first I should do the hair test? and current hair would be sufficient? Can you tell me what you mean about the download thing. And where do I call? Do you recommend any other testing? Thank you so much for this information. Carol Goodson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Can someone give me some stats about how many people have done the treatments to remove the mercury and what kind of results they are seeing. Also, what regimen do you recommend following? Is this something I can just do, or do I need a doctor? Should I start my son on DMSA. He is already taking 5000 IU of cod liver oil a day, and melatonin at night. Thanks, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2000 Report Share Posted August 23, 2000 No I don't, but I suspect it may have something to do with a post I saw from Amy about counting how many results are above or below reference ranges. Re: [ ] introduction << Would it be wise now to have a hair test done from his first haircut (13 months)? Can you recommend a lab? Should I have it analyzed for something other than mercury? >> Doctor's data lab, either old or current hair, use the counting rules you can download to interpret it - the level of mercury itself is irrelevant. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2000 Report Share Posted August 23, 2000 Thanks for all the information all of you have given me. I plan to print out and give to my doctor. Sincerely, Carol Goodson Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2000 Report Share Posted August 23, 2000 Andy, Would you please explain what you mean by the counting rules? Neena Garza ngarza@... Re: [ ] introduction ><< Would it be wise now to have a hair test done from his first haircut (13 >months)? Can you recommend a lab? Should I have it analyzed for something >other than mercury? >> > >Doctor's data lab, either old or current hair, use the counting rules you >can download to interpret it - the level of mercury itself is irrelevant. > >Andy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2000 Report Share Posted August 23, 2000 Carol, A blood test for mercury NOW will not in any way tell you if you son was toxic during infancy when he would have been exposed if he recived thimerosal containing vaccines. It will only tell you current exposure, like if he had just eaten a tuna fish sandwitch. Half life of mercury in the blood is approximately 50 days, them it becomes bound to the fatty tissues in the body and will no longer be detected in the blood. The blood test was a total was of money and time, unless they gave your child a chelating agent before the test. Lyn [ ] introduction > Hi, > > I am new here. My son is 5.9 years old. His development seemed quite normal > up to around 18 months. He was at his worst around 3. We learned he had > severe milk allergy around 4. We had him tested also for gluten and casein > peptides -- negative. He started special ed at 4 with a diagnosis of > language disorder. He does have sensory issues and I would say mild autism > (whatever that means). He has a recent medical diagnosis of PDD. Although > other professional evaluators disagree, and say he is NOT PDD and that is a > mislabeling. I have kept these labels out of his school paperwork. He is > very intelligent. His language is now considered within normal range. At 5 > years old, he reads at a third grade level (completely self taught and with > comprehension). He no longer has an IEP and I am fearful of how he will > handle himself socially. He definitely has problems with attention and > focus, and I have been considering ritalin. > > We had the mercury blood test done last week and it was negative for mercury. > I refused his Kindergarten boosters with a religeous exemption. > > I am wondering what my next step should be. I have had little to no support > from doctors and insurance companies. But I plan to continue with testing. > I do not believe that my son was born with these issues. > > I also had an MRI done a couple of months ago, and was told it was normal. > > Would it be wise now to have a hair test done from his first haircut (13 > months)? Can you recommend a lab? Should I have it analyzed for something > other than mercury? > > In reading the article at the ARI site regarding mercury poisoning, I find > alot of my son there. Previous testing through the Great Plains Lab also > showed low levels of glutathione. > > Is there a class action suit going on against the manufacturer of the Hep B? > > Sorry for so many questions. Thanks. > > Carol Goodson > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2000 Report Share Posted August 23, 2000 > Andy, In your opinion, is the Great Smokies Hair test reliable? Do you read the numbers the same as with the Doctor's Data? Just curious as we just sent a sample to Great Smokies and have been hearing about Doctor's data. Mom to Josh in Iowa > > > Doctor's data lab, either old or current hair, use the counting rules you > can download to interpret it - the level of mercury itself is irrelevant. > > Andy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2000 Report Share Posted August 24, 2000 What part of Iowa are you in? Re: [ ] introduction > > > >> Andy, > >In your opinion, is the Great Smokies Hair test reliable? Do you read the >numbers the same as with the Doctor's Data? > >Just curious as we just sent a sample to Great Smokies and have been hearing >about Doctor's data. > > >Mom to Josh in Iowa > >> >> >> Doctor's data lab, either old or current hair, use the counting rules you >> can download to interpret it - the level of mercury itself is irrelevant. >> >> Andy >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2000 Report Share Posted August 24, 2000 << Would you please explain what you mean by the counting rules? >> Statistical rules to interpret the Doctor's Data or Great Smokies hair element analysis tests and decide if your kid is toxic. They can be downloaded from the same place as the FAQ's. They are straightforward enough you can sit down with the test results and the rules and decide what you think. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2000 Report Share Posted August 24, 2000 See message #5580 for counting rules for Great Smokies, and Andy's opinion of them (OK, but report not as understandable and it's more expensive) > > > > > Andy, > > In your opinion, is the Great Smokies Hair test reliable? Do you read the > numbers the same as with the Doctor's Data? > > Just curious as we just sent a sample to Great Smokies and have been hearing > about Doctor's data. > > > Mom to Josh in Iowa > > > > > > > Doctor's data lab, either old or current hair, use the counting rules you > > can download to interpret it - the level of mercury itself is irrelevant. > > > > Andy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2000 Report Share Posted August 24, 2000 << In your opinion, is the Great Smokies Hair test reliable? Do you read the numbers the same as with the Doctor's Data? >> I believe it is reliable. The way they report the data makes it much more difficult to interpret using the " counting rules " approach. Doctor's Data is also a bit cheaper. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2000 Report Share Posted August 30, 2000 June, I salute you for being an active supporter of your grandchild's progress! So nice to hear of a grandmother who cares enough about what her grandchild is going through that she joins this e-mail list . Many others could learn from you. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 > > >Hello. I am new to this list & new to the world of autism: dx of my >2 1/2 yo son in 4/00. We are setting up a behavioral program as I >type. I'm very excited. But after skimming some of the posts to >this list, I am learning how very much more there is for me to >learn. So lets start with an extrememly basic question (please don't >laugh). What is a mand? Is it a " communication event " from the >child? Also, I know about Lovaas & DTT. But I haven't learned a lot >about Dr. Carbone, S/P, . Is there a place (web site, etc.) >where I can get a good understanding of these people & theories? > Dear , I promise not to laugh at any of your questions, other than the one can you trust most school districts. Of course that is not fair, because this may not be the case in your area, and also it is too cynical for a parent of a newly diagnosed child. ;-) A mand is a request. It stems from the word, DEMAND or even perhaps, or also COMMAND. Certainly my son is into those kinds of requesting. ;-) It is a verbal behavior term which is a form or flavor of ABA. I like to say that ABA is like a country, potentially powerful, a great ally to its citizens and has many dialects. Verbal Behavior is a type of dialect in ABA teaching. It is a communication event, although we do not call it that in ABA, however for all practical purposes it starts a process or is an event that allows the listener to react and ideally meet the child's needs. Dr. Carbone is a professional in the field, a Ph.D., who specializes in the Verbal Behavior dialect of ABA and works mostly with children with autism, although addresses the needs of children and older individuals with developmental disabilities as well or has in the past. He is a consultant, so booked up, I would'nt bother, and works with a few schools and is involved in the Jericho School in Florida on some level. He also is a popular and highly in demand speaker, and is probably doing that more than anything else at this point. He is one of many, although a limited many who is a very dedicated professional in the field of autism who believes language is first and foremost and everything else is taught simultaneously and at a different pace and rate than most DTT and other kinds of ABA, but follows the principles of ABA. He also deviates a tiny bit from some of his colleagues in minor ways, but is knowledgable and intelligent. Most of the parents who are working with him directly have been pleased with his services. I would think he probably is way over extended at this point, but this is my little commentary I am famous for, and could be jealousy talking. Probably not. LOL Actually, S/P stands for Sundberg and Partington, VB professionals who have made the literature of this form of ABA understandable and implementable by the general public, IF well understood, ideally supported and supervised by somebody who is in the know and used judiously and I hope I spelled that right. They wrote a book that is a bible on this list and is immensely helpful. If you do not own it, buy it from DIFFERENT ROADS TO LEARNING. I do not have the number on me right this second, probably because I am in my nightgown, but she sells it and ships it out incredibly fast. I make no commission unfortunately, so that is not why I am saying use her. She is a fellow parent and a great person though, so feel free to purchase good ABA materials from her. And all is really is the form of ABA that utilizes DTT, both at the table or on the floor, trampoline, back yard, living room couch and anywhere, as long as you follow the steps and have a target in mind and get some where using the general definitions of DTT. NET stands for Natural Environment Teaching and it means generalizing and using the real world to either teach or more often expand and explore concepts you are introducing more formally, especially as language gets a bit stronger and you want to have some opportunities that you can not manage in your house at the table. Bringing a large wild animal to your house is tricky. And the clean up is awful. Don't bother, just drive on over to your local zoo. LOL I hope your preschool is of benefit. Please do read everything you can here. Depending on your families needs, supports, funding sources if any, ability to involve other tutor/therapists, etc., you may want to think hard about your glorified daycare. Some of the preschool places offer a nice balance of socialization, push without too much pressure. But too many offer a lack of structure and have low expectations for participation OR the readiness of the child and their receptive and expressive abilities. This may not be your problem, but do consider if his time can be better utilized. It might be a nice break for you though and it may allow you to have time to focus on other needs, so you can better focus on his program with ABA, etc., after and really work on that more intensely, so you have to consider yourself too. Good Luck. We are rooting for you. Jennie, mom of older kid by far... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 Hi , Any questions you have on here are very important. Never feel like others might laugh at you. I have learned so much from this list I can't tell you. Since ABA DTT is rather new to me too, only 3 months into it, I too have had questions and gotten great answers on here. I can add to what Jennie sent you in that I attended a workshop of Dr Mark Sundbergs in March of this year. That is how I met Krista,(Dr Sundberg recommended I talk with her) the therapist training me in ABA DTT. I have to tell you his workshop was one of the greatest things I have ever done. He too, like Dr Carbone, is totally committed to autism. I was fortunate enough to talk with Mark for a bit privately and realized what a compassionate, intelligent and committed man he is. That aside I do have his address, website URL and the names of books you should have. Mark L. Sunberg, Ph.D. Behavior Analysts, Inc 3329 road Pleasant Hill, CA 94523 www.corteks.com/stars Books to get The Assessment of Basic Language and learning skills (ABLLS) W. Partington, PH.D and Mark L. Sundberg, PH.D ( this is a must pair of books, packaged together, since this is how you track your child's progress) Teaching Language to Children with Autism or Other Developmental Disabilities Mark Sundberg and Partington Also make sure you get A Work in Progress Ron Leaf and McEachin, editors I can't imagine life using ABA without this book. Everyone at the Sundberg workshop told me this book was a must as also the ABLLS is. This book will explain to you different things about Autism, plans, ideas, and about everything you can imagine. Mark Sundberg travels a great deal all over,doing workshops. I am from Michigan and attended his workshop when my son had just been diagnosed. I recommend you find out where he is (I know he is in Kalamazoo MI in a few weeks)and try to go to his workshops. It will open your eyes to a great deal of things. As for school, please read all you can to prepare yourself on what may happen. I never dreamed we would have to fight for a good education for my 5 year old son in public school. But we are now in the throws of it. As Jennie said, preschool is nice for social interaction with " typical " peers, but a great deal of time in it is time you lose to work with him and make tremendous progress. Are you the one being trained to work with him using ABA? I hope some of this helped and look forward to hearing how things are going. [ ] Introduction > > Hello. I am new to this list & new to the world of autism: dx of my > 2 1/2 yo son in 4/00. We are setting up a behavioral program as I > type. I'm very excited. But after skimming some of the posts to > this list, I am learning how very much more there is for me to > learn. So lets start with an extrememly basic question (please don't > laugh). What is a mand? Is it a " communication event " from the > child? Also, I know about Lovaas & DTT. But I haven't learned a lot > about Dr. Carbone, S/P, . Is there a place (web site, etc.) > where I can get a good understanding of these people & theories? > > My son is verbal, and is starting a regular " preschool " (glorified > babysitting) on Monday w/ a shadow. I'm very excited about getting > our program started, but my head is spinning from the brief training > we did today. Thanks for your patience with a newcomer. > > > > > VISIT www./community/ for informative FILES, LINKS page, and ARCHIVE searches. You will need your password for egroups to use these services. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2000 Report Share Posted September 9, 2000 Are you a member of the me-list? http://www.addr.com/~me-list If you are, go to the me-list files page. http://people.sca.uqam.ca/~sqa/prive/ The user and passwords are availabe on me-list posts. If not, you should become a member to discuss setting up your program on the me-list too. > Date: Sat, 09 Sep 2000 02:11:16 -0000 > From: " " <JulsFish@...> >Subject: Introduction > >Hello. I am new to this list & new to the world of autism: dx of my >2 1/2 yo son in 4/00. We are setting up a behavioral program as I >type. I'm very excited. But after skimming some of the posts to >this list, I am learning how very much more there is for me to >learn. So lets start with an extrememly basic question (please don't >laugh). What is a mand? Is it a " communication event " from the >child? Also, I know about Lovaas & DTT. But I haven't learned a lot >about Dr. Carbone, S/P, . Is there a place (web site, etc.) >where I can get a good understanding of these people & theories? > -- ------------------------------------------------------------------------------ Zwack,Ph.D. Professor Professeur titulaire Department of Earth Departement des Sciences de la Terre and Atmospheric Sciences et de l'atmosphère University of Quebec at Montreal Universite du Quebec a Montreal P.O.Box 8888, Stn " Downtown " B.P. 8888, Succ. " Centre-ville " Montreal, Qc, Canada Montreal, Qc, Canada H3C 3P8 H3C 3P8 Courier: Messagerie: 201 President Kennedy 201, President Kennedy Room PK-6425 or PK-6151 Salle PK-6425 ou PK-6151 Montreal, Qc, Canada Montreal, Qc, Canada H3B 1B4 H3B 1B4 Office 514-987-3000 ext 3304# Bureau Fax 514-987-7749 Telecopieur E-Mail zwack.peter@... Addresse electronique Page Web Page http://www.phy.uqam.ca/~peter/peter_home.html ative | C | Centre Centre for | C | atif pour la Research in | R | Recherche en Mesometeorology | M | Mesometeorologie ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 welcome ruby, i'm kathy 41 in il . currently on enbrel, just gave up relefan and about to begin methotrexate. home on disability right now going on my 4th month, don't know how i will survive going back full time. also can't sit on the floor anymore. having alot of trouble with steps too. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Hi Ruby; I was also diagnosed with RA 2+ years ago. I am 33 mother of 2 beautiful daughters (like i'd actually say they were ugly lol). I too was to the point I couldn't walk up and down stairs, sit on the floor even going to the bathroom was a challenge. Please try to keep your spirits up even though it is difficult if not impossible at times. My advice is keep looking for that " perfect " doctor. They can really make a difference. I am currently on Methotrexate, celebrex and folic acid. I have had great results from the Methotrexate. I can walk and kinda run around with my kids and get up and down off the floor (although it's not really graceful). If you ever need to vent or talk just drop me a line. Tammy in Missouri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Kathy,Ruby, et. a., Sit on the floor-what a wonderful memory. Really, I've have gotten the impression that we were all very active, busy people-pre-RA. As I was laying in bed this morning after having managed a shower and washing my hair, changing my abdominal bandaging and waiting for the Excedrin to kick in for my fever, I was remembering just a few short years ago how I would be out at a PTO meeting or other-always on the board of everything till 11 PM, then couldn't go right to sleep and up again at 6:30, in the barn milking goats with my son. " Those were the days, my friend, we thought they'd never end! " Pardon me, I tend to think in song! Now I go to bed by 9 P.M., don't volunteer for anything, am a terrible wife and mother and let the rest of the family handle the early AM stuff. I hate it. My life was stolen as was yours. Temple Kuddle Kritters Farm 3 Fox Haven Way Chelmsford, MA 01824 dat2352@... http://www.homestead.com/kuddlekrittersfarm/index.html http://www.homestead.com/kuddlekraft/index.html http://www.homestead.com/kuddlekrittersdairygoats/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Hi Ruby, Welcome to this group. You will hear alot of great information and receive tons of support. I 37 with 2 great kids. I work full time and have experienced alot of pain in my hands, knees, feet, elbows and neck over the last few months. I was diagnosed with RA on Feb. 19th of this year. I went for my first Rheumy appointment on the 13th of March, he told me I definantly have RA and tested positive for Lupus and could possibly have Sjogrens. He put me on Relafen(750MG 3X a day) He took some more blood and I go back on the 27th to see what my prognosis is. I am praying that I dont have lupus or sjogrens, RA is difficult enough to deal with. He said that my RA is slow progression, but this past week i have been in pain every day. I was using Aleve before the Relafen, and was told it takes a while to build up in your system. Sometimes I am not even sure it is working or am i just having a really bad flare. My Rheumy said he would not put me on predisone, but probally MTX. I just want to feel better. I am so tired of hurting, but I feel like I am a major whimp, because most of the people on this list have been dealing with this for years. I guess i have no room to complain. I just dont want to give up the things i like to do like crocheting and quilting or my job. But i am afraid i will. Take care, a R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2001 Report Share Posted March 22, 2001 Welcome Ruby, I'm on enbrel & mtx also. I just started the mtx. I also take vioxx, trazadone, fosamax and vicodan along with a few supplements. I know the frustration of finding a good doctor. I have a web page for the group with lots of links to information on the net. Here are the ones for finding a doctor that is found on my page at: http://rheumatoid.arthritis.freehosting.net This link is at the bottom of each email for easy reference. I am planning on relocating to Stuart, which is very close to you, so I may ask you for references for a good doctor! a AMA Physician Select AMA Physician Select provides information on virtually every licensed physician in the United States and its possessions, including more than 650,000 doctors of medicine (MD) and doctors of osteopathy or osteopathic medicine (DO). American College of Rheumatology Physician finder The Right Doctor For You It's one of the most critical decisions we make. Our lives may even depend on it. Even so, choosing a doctor isn't usually met with any more attention than choosing a hairstylist or a plumber from the yellow pages. DocFinder Association of State Medical Board Executive Directors The Doctor Directory Find a physician anywhere in the U.S. ----- Original Message ----- From: petrapuma@... Sent: Wednesday, March 21, 2001 7:02 PM Subject: [ ] Introduction Im new to the list. I'm 30 years old I've had RA for 3 years now & getting worse. I have seen numerous rhuematologists & been on numerous drugs. I'm not happy with the doctors & right now my current mix is Enbrel, Prednisone, hydroxychloriquin, naproxen(been off it for a while) & arthrotec with makes me very sick to my stomach. So any advice is wanted & appreciated. First, if anybody lives in West Palm bch, Fl I need a new doctor, one I can trust. Any information anyone can give me about this disease is helpful as none of the 5 doctors I've been to over the years would take the time to explain what is going on with my body. I'm alittle better since I persuaded my last doctor to put me on Enbrel but I have terrible pain in my knees, the fill up with fluid so rapidly ( I can no longer walk up stairs or sit on the floor) & I still have flairups in my hands several times a week. I'm working part time because I can no longer handle a full day. I look forward to reading the list daily. Ruby Quote Link to comment Share on other sites More sharing options...
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