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Good to hear from you! Finding a new doctor sounds like a good idea.

Hang in there.

S

> Hello all,

>

> I am so behind on my reading and just finally got caught up. I

went to see

> my rheummy on friday. He did the usual bloodwork, felt around on

my joints and

> sent me away. My neck was stiff for an entire week and friday I

was dizzy

> every time I moved to fast. Since I had no numbness or unsual

tingling he

> dismissed it. Didn't even give me a response as to what to do. I

told him my hands

> and arms are always numb and tingling at times so I really would

not be able

> to tell him if it was anything new.

>

> I also showed him a rash on my left elbow. Many months ago the

same thing

> appeared on my right elbow and he had no clue what it was or why.

This time he

> says he thinks it is how my body reacts to RA nodules developing.

The kicker

> is I have no bumps or knots anywhere near the rash....so I am still

wondering

> where these invisible nodules are?!

>

> I also discussed my increasing ankle pain..he stated no ideas

except surgical

> achilles tendon lengthening.

>

> I told him about my severe fatigue over the past month which he

gave me no

> feedback about. As well as my sleep issues returning. I really

think the

> strange rain and storms here in Texas have been the cause.

>

> He did give me a prescription for a 20mg of Bextra to take daily..I

have been

> taking the 10mgs daily for over two years now. Plus he gave me a

> prescription for water aerobics classes. I guess I will sign up

for the next session

> starting in september.

>

> He then told me to call back the end of this week to get the

results of my

> bloodwork and if my inflammation markers are up he will restart me

on MTX

> injections. NOT!!!! I refuse to take anymore of that garbage!!!!!

> My appnts with this rheummy are such a waste of time and energy. I

have a

> new internal med doc as my old one moved away. I am going to see

if he can

> manage my RA better than the rheummy can. If so I plan to never go

back to see

> the rheummy. Then again I many just not bother to see the rheummy

anyway.

> Sheeesh....the only thing keeping me going back is that he is the

man that fills

> out my disability papers.

>

> I am spending money on Enbrel that is not working..its just taking

up space

> in my frig!!!!

>

> My future plan is to stop the Enbrel when this supply runs out.

Say NO to

> mtx. I guess I will keep taking the Bextra as long as I can afford

too.

>

> Beyond that I am doing fine. My children when back to school

today. They

> are so excited to get the school year going. They have been at

summer marching

> band camp now for over 3 weeks and are ready for football season to

start. I

> am looking forward to fall coming as well.

>

> Toni

>

>

>

>

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Good to hear from you! Finding a new doctor sounds like a good idea.

Hang in there.

S

> Hello all,

>

> I am so behind on my reading and just finally got caught up. I

went to see

> my rheummy on friday. He did the usual bloodwork, felt around on

my joints and

> sent me away. My neck was stiff for an entire week and friday I

was dizzy

> every time I moved to fast. Since I had no numbness or unsual

tingling he

> dismissed it. Didn't even give me a response as to what to do. I

told him my hands

> and arms are always numb and tingling at times so I really would

not be able

> to tell him if it was anything new.

>

> I also showed him a rash on my left elbow. Many months ago the

same thing

> appeared on my right elbow and he had no clue what it was or why.

This time he

> says he thinks it is how my body reacts to RA nodules developing.

The kicker

> is I have no bumps or knots anywhere near the rash....so I am still

wondering

> where these invisible nodules are?!

>

> I also discussed my increasing ankle pain..he stated no ideas

except surgical

> achilles tendon lengthening.

>

> I told him about my severe fatigue over the past month which he

gave me no

> feedback about. As well as my sleep issues returning. I really

think the

> strange rain and storms here in Texas have been the cause.

>

> He did give me a prescription for a 20mg of Bextra to take daily..I

have been

> taking the 10mgs daily for over two years now. Plus he gave me a

> prescription for water aerobics classes. I guess I will sign up

for the next session

> starting in september.

>

> He then told me to call back the end of this week to get the

results of my

> bloodwork and if my inflammation markers are up he will restart me

on MTX

> injections. NOT!!!! I refuse to take anymore of that garbage!!!!!

> My appnts with this rheummy are such a waste of time and energy. I

have a

> new internal med doc as my old one moved away. I am going to see

if he can

> manage my RA better than the rheummy can. If so I plan to never go

back to see

> the rheummy. Then again I many just not bother to see the rheummy

anyway.

> Sheeesh....the only thing keeping me going back is that he is the

man that fills

> out my disability papers.

>

> I am spending money on Enbrel that is not working..its just taking

up space

> in my frig!!!!

>

> My future plan is to stop the Enbrel when this supply runs out.

Say NO to

> mtx. I guess I will keep taking the Bextra as long as I can afford

too.

>

> Beyond that I am doing fine. My children when back to school

today. They

> are so excited to get the school year going. They have been at

summer marching

> band camp now for over 3 weeks and are ready for football season to

start. I

> am looking forward to fall coming as well.

>

> Toni

>

>

>

>

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  • 5 years later...
Guest guest

Hello Family, I want to thank everyone that sent me prayers and healing energy. I am feeling much better, even with the  cramping pains on my back. I am taking some skullcaps pills (to work on my nerve endings), using florals (rescue medicine), and also a mix with cayenne pepper and hidrocortisone. I am also following the natural advise  using  echinecea, 500mg of Vit C (each two hours) vit D-3 and Zing 50mg a day.  The blisters are starting to dry, even  though the burning sensation still continues, but at least now, I am starting to breathe again, with ease.I am using  ubuprophen (over the counter) for  pain management(nit the best, but hey, at least will not compromise my ability to think.

Thank you all,Namaste,Liane

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