Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Joyce, I noticed by your email that you had tendons rupture in both shoulders. I too have had both posterior tibial tendions of the feet rupture(due to RA) I have had one foot fused 2 separate places and the other foot needs it also. However I am experiencing pain from shoulder to wrist (deep pain on the inside of my arm just above my elbow)and just wonder if this tendon has snapped also. Would you mind telling me how you knew the tendon ruptured? I sure hope it has not but would not be surprised.... thanks so much. I am 51 and have had RA for 18 yrs. Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 I just wanted to say that and Dylan are adorable! Are they sleeping any better for you in their helmets? I'm sure somewhere in the Member's Kids File, you'll find a head shape (hopefully before and after shots) that is similar to either or Dylan's. Again, I wanted to say how cute your babies are, you've been twice blessed! Niki Kaylie & Danny (STAR grads) Phila., PA > > It sounds like your twins are voicing their opinion > > about the helmet. > > It is probably in their dispositions. I was lucky, > > my daughter slept in > > hers the first night and for the next three months > > she didn't care > > whether she had it on or not. My advice to you is > > not to stress over > > this too much! Take it slow and maybe as they get > > more used to it they > > will sleep in them. You can only do what you can > > do! The helmet is > > good for them but also is your happiness and theirs! > > Don't worry - it > > will work out! > > > > Paige > > Mother to Madison - recent Graduate - August 2001 > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 hey where can i find that body transplant?!?! i've been searching for awhile!!!!! my son goes back to the knee dr tomorrow. i went to the foot dr saturday. he said it looks better. still have the staples. i am doing exercises to stregthen my ankle so i can drive. they want you to go to therapy 3x's a week, i need someone to drive 45 minutes to take me?!?!so i have 2 appts this week, plus my sons and my foot dr saturday. i can't wait to drive again. work has requested my records. maybe because my parents had me call and get info on long term disability. oh well, i can't worry about it. whatever happens, happens. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Dear , Thanks - it's always nice to hear someone found a message fascinating! You have a lot ahead of you - it's easy to understand why you want to take it one at a time. It's wonderful you have an understanding spouse. Mine tries, but he gets very frustrated at seeing me trying to do things, and wants to help " fix " me, and of course he can't. So then he does things like the dusting, the laundry, loading the dishwasher - things I can do for the most part! You just gotta love him. My children are grown and all out of the house, but they still get scared if I have to go into the hospital, or the " s " word (surgery) is mentioned. That's party because my husband was dx with cancer last year - surgery was successful but so-o-o long, and while the treatment after was also successful, it left him incredibly tired and weak. Then their 25 yr. old cousin was extremely ill waiting for a kidney transplant, and as you say, it goes on and on. Have you ever felt you would like to have a body transplant? I do, but I not only want a healthier body, but I also want a taller and thinner body!! Anything new at the website? Or is that also yours and " on hold " - it's a great site, those baby goats are so cute! I hope tomorrow and each day after finds you closer to your goals, and the happiness you deserve, Jo Re: [ ] Depression/ Jo, Everything you have said is fascinating. I'm afraid that right now I am only dealing with 1 thing at a time-now my knee surgery, then finding a new rheumetologist and a psychiatrist, then my abdominal reconstruction etc.... I am scared and I do have a support system but only partly. My family is great but it's hard for the kids to see my needs above their own. My husband tries so hard and we both work very hard to keep normalcy. I have wonderful friends but the one who understands best is someone with great needs-bipolar and Multiple personality. My 19 year old son has left home and not living as I wish. Oh it goes on and on but I hope that the surgeries work and that I can find all the help I need. Thanks for everything. Temple 3 Fox Haven Way Chelmsford, MA 01824 dat2352@... http://www.homestead.com/kuddlekrittersfarm/index.html http://www.homestead.com/kuddlekrittersdairygoats/index.html http://www.homestead.com/kuddlekraft/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Jo, Yea the body transplant would be great. I've got the height just need less weight-ha, ha. Thanks for the comments on my sites- just changed some pictures -updated but that's it and took off some goats that have gone. At the moment, my floor is covered in muddy paws but I can't do anything-the dogs got caught in the sprinkler system. Temple 3 Fox Haven Way Chelmsford, MA 01824 --------------------------------------- LOL , how did they like being under the sprinkler? Mine can't stand water - they are not happy campers when it's bath time! Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Jo, Yea the body transplant would be great. I've got the height just need less weight-ha, ha. Thanks for the comments on my sites- just changed some pictures -updated but that's it and took off some goats that have gone. At the moment, my floor is covered in muddy paws but I can't do anything-the dogs got caught in the sprinkler system. Temple 3 Fox Haven Way Chelmsford, MA 01824 dat2352@... http://www.homestead.com/kuddlekrittersfarm/index.html http://www.homestead.com/kuddlekrittersdairygoats/index.html http://www.homestead.com/kuddlekraft/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 Welcome to the group ! It sounds like you are doing all the right things. With 's condition being mild the repositioning and the soft helmet may be all that you need to correct the problem. With little to no facial assymetry or ear misalignment you should have pretty good luck with the repositioning. It's probably a good idea to check with the ped and a CT scan is always a good move if there is ANY question whatsoever about cranio! I'm glad you have chimed in here and I am wishing you very good luck with the repositioning. It is good that you have an option for the helmet later if you find it to be necessary. Please keep us posted. Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2001 Report Share Posted September 20, 2001 HI Thanks , you are right...my quesrion is there any connection between the development of RA and sinus infections? And so true...which came first, the chicken or the egg? I can only speak for myself. Prior to RA I would get a sinus infection about 2 times a year...spring and fall(Yet, never had signs of allergies--it just went straight into a sinus infection.)I would be treated for 2 weeks and all was well UNTIL January 1984(a strange month for me to get one!) but I came down with the worst sinus infection..it lasted oveer a month and I was very sick...and along with it came very sore joints of both my hands and feet. And it was that time RA was diagnosed. What is intersting is since that time the sinus infections have gotten worse, more often and lasting longer.... If put on a DMARD within a week I have a sinus infection..so I do not know which way to turn as I desperately need the DMARD. Thanks again for all of the info....I read everything you send Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2001 Report Share Posted September 23, 2001 Thanks...the last site was really terrific....you are just a world book of information...You go girl!! Thank you so very very much for the help in understanding what has happened. It sure does not sound good from what I have read so far. Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2001 Report Share Posted September 27, 2001 Hooray - good job !!!! What a cutie-pie!! Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Way to go Em! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 well i feel silly, my surgery is not this thursday it is next thurday the 25th. now i have to call work again. oh well never make plans without the date!!!! kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 i just feel bad that the dr stayed late to get my pre op done in time, my mom in law cancelled something to take me to the hospital. i even went to check and go to make sure i had enough to cover the post op drugs. all for nothing!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Kathy, Don't feel silly I did the same thing with my surgery. My friend had to keep correcting me. It is just nerves from the surgery don't worry about it. Lynn ---------- > From: kringlemom@... > > Subject: Re: [ ] > Date: Tuesday, October 16, 2001 3:45 PM > > well i feel silly, my surgery is not this thursday it is next thurday the > 25th. now i have to call work again. oh well never make plans without the > date!!!! kathy in il > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 My grandaughter Rebekah is 5 and has ACC, Agenesis of the Corpos Callosum. A history also of Infantile Spasm epilepsy, minor microcephaly, and disorganization of brain cell formation over the area of speech motor. Also an Arachnoid cyst where the corpos callosum is supposed to be. She has just started walking unassisted in the last couple months. She knows colors, shapes, letters of her name and can find anything in a picture you ask for. But no speech. She originally had speech/feeding therapy(we refused a feeding tube). She has continued with Speech.My daughter had a difference of opinion with the therapist at A.I.DuPont hospital and he discontinued her therapy saying there was nothing he had to offer a 4 year old non verbal child.(sounds of pulling my hair out). He's head honcho there!!! We may have a chance of getting her back in there in the near future. Her original speech/feeding therapist is back after having 3 kids in 3 years. We will be going through the developmental ped to get her in again. I hope! In the meantime she has had ST in school. Bekah has said words but we hear them once and never again.She babbles with lots of sounds but uses MMMMMM for anting, replying, in general her multi purpose sound. We have had 80 dives of hyperbaric oxygen therapy for her with what we feel were outstanding results. We will be scheduling more. She can blow whistles and blows air out, even pushing on her belly to do it at times.This year at school we will soon be starting an AAC and starting hard on the sign. Sign has been off and on in the past. She is good at choosing pics. So that is who Bekah is. Thanks Judi(Bekah's Mom-mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 i've never heard about this, but it sounds like fun!!!! of coarse i am not supposed to drink anyway. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 HI All, I have been rather quiet lately ...mainly because not much to say ......but my incision finally closed 2 weeks ago Wed...and then I went back to my surgeon the following Mon...and my whole abd was red and warm......he asked me was I running fevers ? I didnt think I was...but I went from dumping about 2 tbsp of fluid before the hole closed to nothing...so he put me on 2000mgKflex....and then I went home and discovered I was running fevers (100+)and started having chills and aches ..so I called his office again and they sent me for a CT late Thurs and called me Fri early and told me to go back to hospital and they would put a drain in ..as fluid was collecting again.............. So I went back to surgeon Mon and I most likely need to get the small piece of mesh still not covered (about 2-3sq in)replaced as it has been contaminated from the last surgery..A month ago when I was draining thru open wound we did a culture and CT...everything was fine ...but he did say then that until it closed off totally would we know for sure there was colonization on the mesh. Thru all of this (it has been 7 months now since orig hernia repair) I have had no real infection......just a cyst and drainage needing to get out......but this last culture showed hi WBC so I guess I am trying to fight now...... So I went back to SpecProcedures at hospital yesterday and they cleaned the site and changed the bag.......and told me the surgeon needs to fix me soon...an2 0I tin probably in next week or so....I go back to him on MON. And then my medicare Hmo is changing its whole benefits schedule for next yr. I dont know how anyone is going to be able to handle it ....so I need to switch to another plan in Dec.....They all are changing things but mine is the worst......If I had a yr like this one in 2002 it would have cost me about 5000.out of my own pocket bynow....so I am getting the 6 other plans here in valley to send me info and shopping.......God, I hate it when I have to read the fine print....... So other than this stuff I am fine.......havent had much pain lately(amazing how when you are on 2000mg of ABs a day ...kinda cuts right thru it...)and got the yeasties back though......so sign me...with a tail again.......JUdy in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2001 Report Share Posted October 18, 2001 hey judy, so sorry to hear of your troubles still. unbelievable!!! i know the yeasty thing too. i've had them for years but i was on kflex and doxycycline for like 45 days. so i am still having problems too. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2001 Report Share Posted October 19, 2001 HI ...well when all this started I had a huge ventral hernia......lower right abd...took a 9x12in piece of mesh to fix.....and it drained more than avg cos it was so big....then the day (10 days after surgery ) they took out last of staples my incison popped open....{this is from below navel to top of pubis bone(same incision used to have my kids which when I had my dtr 20 yrs ago burst open on lower 3 -4inches when she was 6 days old from infection)and so when I had my son16 yrs ago they cleaned up adhesions and old scar from herand kept me in hospital 6days to let it " set " } and I went to ER where they wet packed me till next morning and the surgeon stitched me closed in his office.....and put me on ABs. Then I had the drain pulled on 14 days past surgery......and I was still dumping 60 cc of fluid a day (12 hrs).....within a few days I started having fevers, aches , chills, etc..sent me for a CT . Showed fluid was building up in there but had travelled up from original drain site to over the incision to upper rt abd where I had had 2 little hernias patched ......the Spec Proced ures dr at hospital put in new drain and got 600+cc of fluid out there ......then I had to go back and forth to get drain changed, sterile site cleaned and dressed ....and eventually discovered this pocket had become a cyst.......the SPdr tried to inject ABs and saline into it around Easter to get it to shrink...it did alil bit.....then my surgeon went in to take it out ......hence second surgery..........now before this I had like 3 drains put in over 6 weeks from SP Procedures...... That surgery went really well, things got sewn up -no staples- and nice suckee drain...5days after that surgery my drain clogged and I didnt realize it till Sunday ..started on a FRiday....so my surgeon yanked the drain , upped the ABs , and went in right away....loaded me up on IV ABs and the fluid had already reached the mesh but did not go through . I was on IV ABs for a month and was scheduled to have drain pulled on a Fri and it clogged THur PM....so I went on IV ABs for another 7 days..... Now , after pulling that drain, I had stitches out too.was 3wks past surgery ...I healed beautifully......then I had like a blister like thing under the fresh skin/ incision....the surgeon drained it with a needle in his office , and it drained all weekend...(4-6 4x4s every 4 hours......but this was good because it meant the fluid was trying to find it's own way out..........this has been sterile fluid from my body all this time.....so then it stops like on a Sun night . I had to go backl to surgeon following Fri.....I grew this big old blister like cigar shaped thing by then right on incision......again fluid finding own waty out. That was the day he re opened it to let it drain from inside out.... NOw as to why? My surgeon is one of a group of highly skilled surgeons...through all of this I have learned I am " special " ...they have lots of residents rotating with them...what has happened to me has never happened to my dr before...seen it when he was in school once ......and the rest of his associates know me now......and they had never had such a thing either...but in talking to my dad (who is 76)..who has had 11 hernia operations(heredity has a calling in here ) in past 50 yrs ...has also had similiar problems healing a couple of times.........My dad also has RA,OA,and lots of allergies ....I seem to have gotten alot of this from him... My surgeon told me a month ago when he was checking me and my wound was only inch long and inch deep that he thought the reason I was not healing faster was cause some colonization took place on mesh before 3rd operation...I had peritonitis before they got in there.......and figured it would close when ready....He also said with way things had been going with me that I would know for sure if it was contaminated after it closed.......and see ? it didnt take long..... You know since I have had my problems with this ......I have heard from several people a long the way that they had similar problems...one guy took a year to close up.......(he was one of guys delivering my gauze/montgomery straps.)..He and I got to be good acquaintances ...he would talk to me and tell me how much better I looked , etc...and commiserate with me. And I am still in counselling one on one......oh, last week was a beaut for me.....I just cried and cried ....so angry at myself , this bag, .....and I am just tired.... I am sorry if I seem to have rambled on here but you know I hear from friends all the time about how I should change drs. And why cant they just fix this? Well, it really has been fixed only way can be...there is nothing to be cut out (well, except for contaminated patch) and the surgery will be a smaller space that drainage should be much less this time....and well, let's all pray it does the trick..... As for the yeast ........I ate so much yogurt before ...I like yogurt ..but I cant hardly look at it. I think I will try to get some of those probiotics.........thanks for telling me....I know the Diflucan is wonderful but only when you are done with ABs.....and I have been drinking lots of water to flush my system, and cranberry juices.......Enough........I'm done......if I bored you all I am sorry ...sometimes I just get so frustrated.......Judy in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2001 Report Share Posted October 19, 2001 Hi Judy, I am so sorry to hear about the need for more surgery. I remember you telling me this opening had been there for months..very strange, especially when there is no infection (supposedly)As I told you I worked for surgeons for many, many years...and never had I heard of a wound draining that long...Gosh, isn't here any one else you could see for another opinion and maybe to do the much needed surgery and stop this for you? what is it about a surgery contaminating the mesh? Still do not understand the answers they are giving you...Please let me know if there is anything I can do...Hope this resolves soon Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2001 Report Share Posted October 19, 2001 Judy, After all this time it finally closes and now this. This is really awful. I feel so bad for you. What reason does your doctor give for this happening? Does he have any explanations? Are you taking probiotics for the yeast? It really will help you. Are you eating yogurt? If you don't like it, taking the probiotics such as acidophilus will help put the good bacteria back. It really is important to control that yeast. It can get into your joints and cause you more problems. Hang in there Judy. I know how frustrated you are. a 10/18/01 8:29:14 PM, JHend65291@... wrote: > > > > HI All, I have been rather quiet lately ...mainly because not much to say > .....but my incision finally closed 2 weeks ago Wed...and then I went back > to > my surgeon the following Mon...and my whole abd was red and warm......he > asked me was I running fevers ? I didnt think I was...but I went from > dumping > about 2 tbsp of fluid before the hole closed to nothing...so he put me on > 2000mgKflex....and then I went home and discovered I was running fevers > (100+)and started having chills and aches ..so I called his office again > and > they sent me for a CT late Thurs and called me Fri early and told me to go > > back to hospital and they would put a drain in ..as fluid was collecting > again.............. > > So I went back to surgeon Mon and I most likely need to get the small > piece > of mesh still not covered (about 2-3sq in)replaced as it has been > contaminated from the last surgery..A month ago when I was draining thru > open > wound we did a culture and CT...everything was fine ...but he did say > then > that until it closed off totally would we know for sure there was > colonization on the mesh. Thru all of this (it has been 7 months now since > > orig hernia repair) I have had no real infection......just a cyst and > drainage needing to get out......but this last culture showed hi WBC so I > guess I am trying to fight now...... > > So I went back to SpecProcedures at hospital yesterday and they cleaned > the > site and changed the bag.......and told me the surgeon needs to fix me > soon...an2 0I tin probably in next week or so....I go back to him on MON. > > And then my medicare Hmo is changing its whole benefits schedule for next > yr. > I dont know how anyone is going to be able to handle it ....so I need to > switch to another plan in Dec.....They all are changing things but mine is > > the worst......If I had a yr like this one in 2002 it would have cost me > about 5000.out of my own pocket bynow....so I am getting the 6 other plans > > here in valley to send me info and shopping.......God, I hate it when I > have > to read the fine print....... > > So other than this stuff I am fine.......havent had much pain > lately(amazing > how when you are on 2000mg of ABs a day ...kinda cuts right thru it...)and > > got the yeasties back though......so sign me...with a tail > again.......JUdy > in AZ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2001 Report Share Posted October 19, 2001 Judy, After reading your story, I can surely Identify. I've had the drains, mesh in and out, IV antibiotics, packing the wound etc. Only I didn't get any nice children from my original incision only lots of pain and agony from a drunk driver who got off free. Next, Nov 5, is the plastic surgery/ reconstruction. Last ditch effort-hey I look at least 6 months pregnant and haven't gained an ounce! Backaches too. An each time I need to do the yucky- Go-lightly stuff to clear my bowels because of adhesions needing removal! Now I'm worried about my knee because I'll need to stay immobile for a few days! Temple 3 Fox Haven Way Chelmsford, MA 01824 dat2352@... http://www.homestead.com/kuddlekrittersfarm/index.html http://www.homestead.com/kuddlekrittersdairygoats/index.html http://www.homestead.com/kuddlekraft/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2001 Report Share Posted October 20, 2001 a, I just wanted to say thank you...I went to health store and got some probiotics.....the clerk told me to get the kind that dissolve in the intestine and to take 2 a day at times spaced out from ABs ..so I started last night ...and I think they are helping.......and I continue to drink lots of cranberry juice and water trying to keep myself flushed out.....THanks again .........Judy in az Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 wow, we got pelted with hail about 1:15am!! we still have a little " crushed ice " on the steps. my toes are going to be cold tomorrow!!! trying to figure out what to wear for my surgery. the last foot i wore shorts!!! guess that won't work. i am a little nervous that my family is not around. my parents back in florida, my sister just left st louis and going to join her hubby in boston this week, my niece is going to louisville. it's me, my mother in law and my son who'd rather go to school. i told my son to check with his grandma to see that she feels comfortable taking me by herself. than add snow to this?!?!? oh well, the hospital is about 3 miles away. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 thanks and i knew that. but it is nice to hear!!! kathy in il brrrr Quote Link to comment Share on other sites More sharing options...
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