Request

January 15, 2005

hi vali.....heres one addy

http://www.low dose naltrexone.org/ this one i find very helpful

raelene

-- [low dose naltrexone] request

I'm in Tucson visiting my parents for a few days. I have told my mom about LDN and the fact that I am looking into it and considering starting it. She asked me to send her some web links where she could get information about LDN, too, but I was stupid and left home without the list of web addresses I had made to give her, and I'm drawing a blank at the moment. Could someone please post the addresses for some of the web sites you guys have given me? What I am specifically interested in are web sites where my mom can read information about LDN and how it works, and about Dr. Bihari and why he feels that LDN is worth using for MS patients. Anectdotal stuff is great, too, but my mom is also very interested in why/how this works and in Dr. Bihari's qualifications to be prescribing for MS patients in the fist place. Thanks a lot,Vali

January 15, 2005

http://www.ldninfo.org is the main page

[low dose naltrexone] request

I'm in Tucson visiting my parents for a few days. I have told my mom about LDN and the fact that I am looking into it and considering starting it. She asked me to send her some web links where she could get information about LDN, too, but I was stupid and left home without the list of web addresses I had made to give her, and I'm drawing a blank at the moment. Could someone please post the addresses for some of the web sites you guys have given me? What I am specifically interested in are web sites where my mom can read information about LDN and how it works, and about Dr. Bihari and why he feels that LDN is worth using for MS patients. Anectdotal stuff is great, too, but my mom is also very interested in why/how this works and in Dr. Bihari's qualifications to be prescribing for MS patients in the fist place. Thanks a lot,Vali

January 17, 2005

Marcie,

I'm going to do what I decide to do, regardless of what my

mother or anyone else thinks about it. But it would make me

happier if my mother could research it herself and feel more or

less comfortable with whatever I decide to do. I'm not going to

not do something if she's not comfortable with it or doesn't

" approve, " but I guess I'm always happiest when my mom knows

what's going on and supports me in it. One way or the other, I

had told her that I would send or bring a list of web sites with me,

and I walked out the door without the list. My mom is not a nurse

or a doctor, she's just my mom. :-) )

Vali

--- In low dose naltrexone , marciemjm@a...

wrote:

> Vali,

>

> My friend with 3 Bachelor degrees, 2 Masters and 1 PHD

checked all of this

> stuff out and was very satisfied with what he learned. Maybe

your mother will

> be too. Is she a nurse or something? You're the one with MS,

so do what makes

> you comfortable. You're the one facing life in a wheelchair.

Sometimes the

> 'concern' of loved ones is well intended, just not realistic. I

learned this

> the hard way!

>

> Marcie

>

> In a message dated 1/15/2005 9:55:13 AM Central Standard

Time,

> larrygc@s... writes:

>

> > What I

> > am specifically interested in are web sites where my mom

can read

> > information about LDN and how it works, and about Dr.

Bihari and why

> > he feels that LDN is worth using for MS patients. Anectdotal

stuff

> > is great, too, but my mom is also very interested in why/how

this

> > works and in Dr. Bihari's qualifications to be prescribing for

MS

> > patients in the fist place.

> >

> > Thanks a lot,

> > Vali

January 17, 2005

Vali,

I am glad to hear that you have a Mom that is interested in your well being.

I work with people of all ages with all sorts of disabilities and have for the past 20 years.

I believe that people with involved family members always fare better then those who try to go it alown.

God Bless and good luck! Look at www.ldners.org for a positive look at LDN results.

I will also share my very positive LDN results as will many here.

Have a wonderful day. Joanne L.

-----Original Message-----From: Vali Tamayo [mailto:valip@...]Sent: Sunday, January 16, 2005 7:57 PMlow dose naltrexone Subject: [low dose naltrexone] Re: request Marcie,I'm going to do what I decide to do, regardless of what my mother or anyone else thinks about it. But it would make me happier if my mother could research it herself and feel more or less comfortable with whatever I decide to do. I'm not going to not do something if she's not comfortable with it or doesn't "approve," but I guess I'm always happiest when my mom knows what's going on and supports me in it. One way or the other, I had told her that I would send or bring a list of web sites with me, and I walked out the door without the list. My mom is not a nurse or a doctor, she's just my mom. :-) )Vali> Vali,> > My friend with 3 Bachelor degrees, 2 Masters and 1 PHD checked all of this > stuff out and was very satisfied with what he learned. Maybe your mother will > be too. Is she a nurse or something? You're the one with MS, so do what makes > you comfortable. You're the one facing life in a wheelchair. Sometimes the > 'concern' of loved ones is well intended, just not realistic. I learned this > the hard way!> > Marcie> > > In a message dated 1/15/2005 9:55:13 AM Central Standard Time, > larrygc@s... writes:> > > > What I > > am specifically interested in are web sites where my mom can read > > information about LDN and how it works, and about Dr. Bihari and why > > he feels that LDN is worth using for MS patients. Anectdotal stuff > > is great, too, but my mom is also very interested in why/how this > > works and in Dr. Bihari's qualifications to be prescribing for MS > > patients in the fist place. > > > > Thanks a lot,> > Vali

January 17, 2005

Joanne,

I know that there are people whose families are not particularly

concerned about or interested in their health issues and other

things that go on in their lives. I even know a few people who

have families like that. Personally, however, I can not even begin

to imagine what it must be like to have grown up with a family

like that or lived with that type of family situation.

I agree with you that people with involved/interested family

memers tend to fare better with whatever type of treatment. I think

that must have to do with the fact that our emotional health is so

tied in with our physical health. It would seem to me that a

person who has at least one concerned family member is

probably more emotionally stable as he goes through treatment

for whatever condition. I have seen people in the hospital who

are very, very sick but end up doing okay because (at least in my

opinion) their families are right there with them every step of the

way. I have also seen people whose illnesses are not as

serious, but when their families to not visit them or support them

they do not do very well at all.

Anyway all of that being said, I always share everything about my

health with my mom, who then shares it with my dad. My mom

doesn't always agree with everything I do, but she does always

support me and that is very important to me.

Vali

> Vali,

> I am glad to hear that you have a Mom that is interested in your

well being.

> I work with people of all ages with all sorts of disabilities and

have for

> the past 20 years.

> I believe that people with involved family members always fare

better then

> those who try to go it alown.

> God Bless and good luck! Look at www.ldners.org for a

positive look at LDN

> results.

> I will also share my very positive LDN results as will many

here.

> Have a wonderful day. Joanne L.

November 3, 2005

Dear ,

I have already and will continue to pray for a good report from the

biopsy and for Ethan to feel better. Hope you can have a good night

and get some good rest too,

-Thirza, Mom to Tristan 11, DS, dx pre-b ALL 3-2-98, POG 9605,

Abigail 4 and Ella 1

April 3, 2008

Ganapathi~This flush you can google from the website

www.huldaclark.com. You can also google liver/gallbladder flush and

get many different ones. The best and most popular one in my opinion

is from Hulda with epsom salts, olive oil and grapefruit

juice.

Good luck!

herbladie

>

> I am Ganapathi Raman, Doing PhD in physics in malai

university under the guidance of Dr. R.Selvaraju, Reader in Physics,

malai university. my area of research is dissolution of human

gallstone. will you please send details about what are the juice will

prevent the gallstone and what are the herbal is used. will you

please help me.

>

> by

>

> R.Ganapathi Raman

> PhD Research Scholar

> Department of Physics

> malai university

> Chidambaram

> 608 002

> india

>

______________________________________________________________________

______________

> You rock. That's why Blockbuster's offering you one month of

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>

May 4, 2009

Hi Ethel, It is so good of you to do this update. So many newbies have

questions about A/P, this so called controversial approach to these diseases.

Some doctors with high esteem still consider the infectious origin of connective

tissue disorders to be experimental and we who have the diseases and been or are

on antibiotic therapy can attest that it does work. The ingredient that we

impatient, patients must add is patience. It is a long slow process, but

definitely worth it as so far there are no other known or proven options.

My story began back in 1986 while living in Hawaii. It started with some low

back pain upon arising every morning and then going thru the day getting

increasingly tired. Unable to keep my eyes open all day and yet unable to fall

asleep at night. Before long, I started running low grade fevers and one day it

went up to 103 degrees. I also noticed my urine turning brown. I went to the

doctor and was labeled an alchoholic with an enlarged fatty liver. Mind you, I

have never been a drinker of any kind, social or otherwise, I landed in the

hospital ER where I was then diagnosed with mononucleosis. Disgusted, we came

back to the Mainland USA where my husband got his old job back as I was unable

to work. Was then tested and came back positive with CMV (Cytomaegalo Virus) &

EBV (Epstein Barr Virus) I was given a short course of antiviral medication

called Acyclovir. This helped a bit, but then came down with Pleuresy and was

not tested for

any lung or other infections. Spent at least a year trying to function. Then

I was told I might have CFID, although it wasn't called that then. Some docs

said there was no such disease as Yuppie Flu, etc. These are some of the names

they gave this phantom condition. And that was the end of that. Through the

next ten years, my health continued to deteriorate. To shorten the story, I got

diabetes,coronary artery disease, hypertension, irregular heartbeats, spinal

chord anomolies, irregular gait and the uncontrolled urge to sleep and not be

able to. I was sent to therapy and when that failed, they said I should go to

the mental health center. Then I suddenly started to lose weight, 40 lbs in all

and my muscles hurt so badly, I couldn't roll over in bed. My skin became tight

& shiny, joints became enlarged, there were noticeable facial changes and an MRI

& CT-scans showed I had developed pulmonary fibrosis. All told I had four heart

surgeries. This finally led to a diagnosis.of SystemicScleroderma. At this

point, I was told that I was terminal. They said there is no cure but they

could offer me comfort with steroids, chemo and some new drugs like

methotrexate, remicade & humira which tamps down the Immune System. This was my

Christmas 2005. My husband and I were devastated. My first cousin had died

from the effects of the same steroids they had given him for Lupus. Thank God, a

woman led me to the Roadback.org site who led me to Dr. Trentham in January,

2007. He put me on Minocin and my recovery is a matter of history. It took 18

months to go into remission. If you have never taken steroids it goes faster.

Taking steroids in the past will prolong the time. But as long as you are

breathing, it is never too late to start. I went on vacation for several

months in 2007. Went snorkeling, kayaking, mountain climbing, hiking, swimming

and did lots of

walking. Upon my return I started a new protocol calle MP. Like everything

else, some say it is controversial. To me it is just an extension of the

Antibiotic therapy which adds more antibiotics. I urge all you newbies to read

Dr. Brown's books , (The New Arthritis Breakthrough) along with the ones his

friend, Henry Scammell wrote specifically for (Scleroderma, The Proven Therapy

that can save your life), if that is your disease! The important thing to know

is not to let your guard down. The bacteria/viruses that attack the immune

system, know no rest. They can re-attack with a vengence! They are slow

growing and slow dying. They have no cell walls and can morph into shapes like

(L's) to enter your immune cells and kill them. When enough of your immune

cells are down, they can not do the work they were designed to do. That is to

fight off these organisms and keep you healthy. This is a one-step forward, two

steps backward

fight. We must continue to protect ourselves and get tested, most likely for

the rest of our lives. The good news is that we can LIVE with these diseases

and continue to fight off the invaders. We can live fruitful lives and function.

Just stay one step ahead of them. I am resigned to the fact that I may have to

take antibiotics off and on for the rest of my life. I have been given a second

chance at life. I consider myself fortunate. Thank you, Dolores P. Rosner

From: Ethel Snooks <emsnooks@...>

Subject: rheumatic Request

rheumatic

Date: Sunday, May 3, 2009, 4:30 PM

As of this morning, there are 2,039 people subscribed to this www.rheumatic. org

support group which has been active since 1996. About 80 or so of you have

already shared your stories that have been such a help and encouragement to

those seeking an effective therapy for their inflammatory rheumatic disease, but

there are many others out there that need to do so. (The stories have also been

of great encouragement to people already on the therapy as they travel down the

often long road to recovery.)

These diseases affect each of us differently depending upon a number of things,

so our road to recovery is more often than not an individual matter. Your

stories illustrate that fact so well.

But there is another purpose for these stories. Thanks to the years of

persistent endeavors of one of Dr. Brown's grateful patients, the NIH conducted

the MIRA study verifying the effectiveness of antibiotics in treating rheumatoid

arthritis. Other studies followed. There was also a small clinical trial done by

Dr. Trentham using minocycline for scleroderma, but published scientific studies

using AP in treating some of the other rheumatic diseases have not been done.

The powers that be have no interest in funding them.

However, sufficient anecdotal evidence has its place and it cannot be ignored.

Here is a quote from Dr. Brown, the rheumatologist who, along with Dr. Homer

Swift (then the world's leading research scientist on rheumatic fever)

discovered these diseases had an infectious etiology. (This discovery was

published in Science magazine March of 1939.)

" Not all of the information that has developed from fifty years of research and

practice with connective tissue disorders is of a kind that lends itself to

statistical summary. In fact, I often feel that the source that has weighed most

heavily over the long term, in helping me to understand what is involved in

these diseases and in recognizing their patterns, is the kind of data that

scientists characterize as anecdotal. In time, as it repeats itself over and

over again, anecdotal data becomes progressively more substantive and

meaningful. Perhaps more than any other aspects of learning, it has provided the

deepest insights into the process by which connective tissue disease happens to

people. "

We've come a long way since Dr. Brown died, and it's been a source of great

satisfaction these last 19+ years to be part of the process in making this

therapy known and 'watching' so many of you recover, but we still have a long

ways to go. Both www.rheumatic. org and www.roadback. org are volunteer driven.

There is no funding for promoting this therapy so collecting sufficient

anecdotal evidence is important and we're far from achieving that goal.

Would you please consider writing your story for us. If you don't wish to

receive emails from people wanting to question you further, then we can just use

your initials and the city, state or country of origin. And for you whose

stories already appear on www.rheumatic. org, we would appreciate your taking

the time to update them.

Thank you.

Ethel

May 5, 2009

Hi Ethel,

I would like to share my story soon...need to think it through and get it

together. How do I do it? I guess I mean where do I email it?

thanks

Judy

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May 5, 2009

You've come a long way, Dolores. Thanks for sharing the journey with us.

will post your story on the www.rheumatic.org website soon. May we

use your email address or would you prefer not to be contacted by people

seeking information?

Now how about others of you on this list sharing your stories?

Ethel

rheumatic Request

rheumatic

Date: Sunday, May 3, 2009, 4:30 PM

As of this morning, there are 2,039 people subscribed to this www.rheumatic.

org support group which has been active since 1996. About 80 or so of you

have already shared your stories that have been such a help and

encouragement to those seeking an effective therapy for their inflammatory

rheumatic disease, but there are many others out there that need to do so.

(The stories have also been of great encouragement to people already on the

therapy as they travel down the often long road to recovery.)

These diseases affect each of us differently depending upon a number of

things, so our road to recovery is more often than not an individual matter.

Your stories illustrate that fact so well.

But there is another purpose for these stories. Thanks to the years of

persistent endeavors of one of Dr. Brown's grateful patients, the NIH

conducted the MIRA study verifying the effectiveness of antibiotics in

treating rheumatoid arthritis. Other studies followed. There was also a

small clinical trial done by Dr. Trentham using minocycline for scleroderma,

but published scientific studies using AP in treating some of the other

rheumatic diseases have not been done. The powers that be have no interest

in funding them.

However, sufficient anecdotal evidence has its place and it cannot be

ignored. Here is a quote from Dr. Brown, the rheumatologist who, along with

Dr. Homer Swift (then the world's leading research scientist on rheumatic

fever) discovered these diseases had an infectious etiology. (This discovery

was published in Science magazine March of 1939.)

" Not all of the information that has developed from fifty years of research

and practice with connective tissue disorders is of a kind that lends itself

to statistical summary. In fact, I often feel that the source that has

weighed most heavily over the long term, in helping me to understand what is

involved in these diseases and in recognizing their patterns, is the kind of

data that scientists characterize as anecdotal. In time, as it repeats

itself over and over again, anecdotal data becomes progressively more

substantive and meaningful. Perhaps more than any other aspects of learning,

it has provided the deepest insights into the process by which connective

tissue disease happens to people. "

We've come a long way since Dr. Brown died, and it's been a source of great

satisfaction these last 19+ years to be part of the process in making this

therapy known and 'watching' so many of you recover, but we still have a

long ways to go. Both www.rheumatic. org and www.roadback. org are volunteer

driven. There is no funding for promoting this therapy so collecting

sufficient anecdotal evidence is important and we're far from achieving that

goal.

Would you please consider writing your story for us. If you don't wish to

receive emails from people wanting to question you further, then we can just

use your initials and the city, state or country of origin. And for you

whose stories already appear on www.rheumatic. org, we would appreciate your

taking the time to update them.

Thank you.

Ethel

May 5, 2009

Hi Judy,

I suggest you read some of the stories on www.rheumatic.org to give you an

idea of what others have included in their story. Just tell it like it

happened. When you finish it, you can either send it to or me.

Ethel

Re: rheumatic Request

> Hi Ethel,

> I would like to share my story soon...need to think it through and get it

> together. How do I do it? I guess I mean where do I email it?

> thanks

> Judy

>

May 6, 2009

Either way is fine with me. I would like you to put the story into the archives

and still be open to any newbie or confused oldbie who wants to contact me. I

am still learning while reading the posts. We can all gain information from

each other because all people are different and respond differently to meds and

protocols. Yet, we all need to pass on the concept of A/P and the Infectious

Theory of Dr. Brown. Thank you, Dolores & Mike

From: Ethel Snooks <emsnooksbellsouth (DOT) net>

Subject: rheumatic Request

rheumatic@grou ps.com