Guest guest Posted December 14, 2002 Report Share Posted December 14, 2002 Donna, Wow, that's great that Montyman's had a great time being a child there. . that's a great and educational place for the most part. . Wow even on the monorail, and the busses with the waitting for people to get on- - I can see how some people will be grumpy with that but wow if a child can behavie like that it's a great thing. . hope that doesn't sound too kidish. . rebecca rebecca, disney world is Montyman's favorite place on earth! i only wish i could take him every year! it's amazing watching him there, because he acts so normal in so many situations, even on the public transportation over there, i think because there is so much visual activity going on, he forgets to self stem. LOL im glad you got to go. donna, montymans mom -------------------------------------------------- Checkout our homepage for information, bookmarks, and photos of our kids. Share favorite bookmarks, ideas, and other information by including them. Don't forget, messages are a permanent record of the archives for our list. -------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 In a message dated 12/13/2002 12:39:02 PM Pacific Standard Time, bludress@... writes: > ave a problem with vaginal dryness ...does anyone experience the same thing... > .and my face is very dry... Dear , If vaginal estrogen cream doesn't make your thyroid situation worse, that would be the most effective and easiest thing to add. Your GYN person can prescrbe something for you. According to my GYN NP, there is only about 1% of the estrogen that wanders away from the vaginal area. Plus the cream is a very low dose anyway. I've tried both the major drug manufacturers vaginal creams and the bioidentical creams and they both do pretty much the same thing but I feel safer with the bioidentical preparation that my NP orders for me from Women's International Pharmacy. Also, make sure you're getting enough DHA and EFA in the form of fish oil caps. I supplement with flax seed oil but I get my primary EFA dose from fish oil caps. To your best health, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Hello , You are in just the right place! Elaine and I set this group up because we are both Conn's patients and were having a hard time finding anyone else to talk to about our problems. Elaine is in Australia right now so can only look in when she has time. To start with would you like to look at my website? It is: http://mysite.freeserve.com/hyperaldosteronism I had a lot of help with it (thanks to Bruce and Simon) and only felt I could do it because I was so lost and frustrated at the lack of non-medical language information as well as the sites which were full of garbage. I had a tumour on my left gland which was surgically removed at the start of October. There are other people here who are in various stages of diagnosis and treatment and we talk about all sorts of things - not always connected with the Conn's. If you have a problem there is almost always one of us who has had the same thing and can make suggestions about how to cope. Some of what we talk about is very personal but as none of us are likely to meet up in real life that isn't embarrassing and the information you get back is worth a blush or two. I assume it is your blood pressure that goes through the roof when you sit or stand? Are you taking any medication? If you are taking medication what are you taking and what doseage? We have scientists and medical technicians on the list. I am not a medic but I have a wonderful endocrinologist who answers all my questions and I ask him an awful lot of questions - poor man. Sorry to ask so many questions back! Maybe you could give us a short bio - just how old you are and where you live for example - but only if you are comfortable with this. Looking forward to hearing from you. Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 <Peaceforkids2002@...> wrote: FYI........ The Office of Advocacy for Autistic Children 1659 Meyers St. Honolulu, HI 96819 (808)349-6060 In The Matter of: E. Sr., et al Vs. The State of Colorado Departement of Education, Holmes and Owens, Brent Rychner in his position with Holmes and Owens and acting in his sole and individual capacity as a licensed attorney in the state of Colorado, Colorado Springs School District #11, Ron Hage in his position with Colorado Springs School District #11 and in his sole Capacity, and does 1-10 inclusive. Case #: TBD - Multiple Pending Civil Actions Stacie Riley, Re: Kayla Nogle & fax recieved from Representative Rychner From: E. , Pro Per ( As needed W. Fields and Associates (916)646-6100 will litigate or provide representation in the state of Colorado as needed. Although, many actions made, taken, and part of the pending civil action forementioned occured through teleconference to the Plaintiff in the State of Hawaii - for this reason jurisdiction over this case will be within the state of Hawaii as per Motions to follow.) Dear Stacie, Thank you for informing me of the inflamatory fax sent to you by the afore mentioned defendents in the above pending civil action. As Mr. Rychner referred to me as a 'Lay' advocate, we will be asking the court to further define the derogatory nature of his statement. After traveling to almost every state in our country we have yet to define me as a 'lay' anything. This is a formal request for a true and original document - the fax sent by Mr. Rychner. As he is employed by H.R.O., they are also responsible for his actions, as is the party he is representing - District 11, which is part of the CDE and also part of the state. Ron Hage hired Mr. Rychner and refuses to take action in helping us get your IEP handled, which is not a due process and is not 'under question' by the state as to whether or not an advocate can be in an IEP. It's in IDEA so I've read, you may want to read it yourself to get your own opinion. As always, I have never offered 'legal advice', I have only offered personal opinion in discussion as to how administratively the regulations for teaching children with Disabilities has been not met in your opinion, and in reviewing your records...in mine. It does not take an attorney to read a school file... most attorneys would never understand what half of it meant anyway - why they are allowed to participate and clutter up a due process is beyond my ability to assume. As always, I have made no derogatory statements that may be admitted into evidence in any way, shape, or form to H.R.O., Mr. Rychner, or their clients. HOWEVER, Due to Mr. Rychners fax to you of a letter never even sent to me ( I still have not recieved it), and with no knowledge of how many people he faxed it to - we request that you turn it over to us so that it may be used as evidence in action to be taken against the above named Defendents. I will be busy in meetings with the Department of Defense on a Due Process today as the Fed's have no problem with me supporting and helping a parent through it. It's amazing that Colorado and Mr. Rychner seem to be taking the position that they are above the findings and rulings of the Department of Defense..... After all, Don't they carry the nukes ????? What has this country came to ? To the Legislators reading this... once again I request as a citizen of the United States of America that there be a fact finding hearing to be held at the administrative office of district 11 in Colorado Springs at the soonest possible date to hear parent and other testimony and to determine whether or not The Office of Advocacy's allegation that Colorado Springs and the CDE are not providing for children in need, although the great leaders of our country have given the children protection through laws and acts and such. Mr. Rychner.... We'll see you in Court. I hope you have a travel plan. Aloha, E. U.S. Reg. Civil Rights Lobbyist Director, OAAC Director, COPS Lil Mikey's Daddy Peace to the Children .......... there's a copy of the letter that went out to Rychner, CDE, and all named defendents sat night. I'll be extremely busy in phone conferences with the Dept. of Defense on two cases on Monday.... but should be online at times if anyone needs help. Mike ********************************************* The Office Of Advocacy for Autistic Children ********************************************* ----- We Need Your help to keep going ------ --Thank you to all for the continued support-- ********************************************** E. , Reg. U.S. Civil Rights Lobbyist Dir, OAAC Dir, C.O.P.S. The ' Coalition of Parental Support ' Lil Mikey's Daddy ============================ " We Speak for those who can not, we will fight relentlessly for the Civil Rights of all Children....disabled or not .. Globally " ============================ Contact Mike for free online advocacy regarding your IEP, Mediation, or other problems you may be having. If you are in a state that adheres to the allowance for 'Professional Advocacy' in person - we are available Nationally on a case by case basis for Due Process Hearings. Email me anytime at this address, or for free phone advocacy please call OAAC/Mike at (808)349-6060 in Hawaii. W Go Get em! Mike I just recently moved to california from n.c. after learning my daughter has autism its amazing the back woods attitude that still exists today!which im sure you have experienced(probally on a daily baisis) this must change and we must all advocate a uniform national approach (one that works)to help all our children and all who love and care for them.Every day we pray for all who recieve bad or outdated information and for the unecessary suffering that this causes.As we all know the most powerful weapon against money is information and belief(not to mention angry parents)While the politicians are smiling and having a nice back slapping power breakfast i will be preparing my daughter for her aba program this morning.I apoligize for rambling but i know from experience how frustrating it is to speak and not be heard.It is champions like yourself that make the difference for so many! Thanks! Steve ('s Daddy) _________________________________________________________________ Help STOP SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 <Peaceforkids2002@...> wrote: FYI........ The Office of Advocacy for Autistic Children 1659 Meyers St. Honolulu, HI 96819 (808)349-6060 In The Matter of: E. Sr., et al Vs. The State of Colorado Departement of Education, Holmes and Owens, Brent Rychner in his position with Holmes and Owens and acting in his sole and individual capacity as a licensed attorney in the state of Colorado, Colorado Springs School District #11, Ron Hage in his position with Colorado Springs School District #11 and in his sole Capacity, and does 1-10 inclusive. Case #: TBD - Multiple Pending Civil Actions Stacie Riley, Re: Kayla Nogle & fax recieved from Representative Rychner From: E. , Pro Per ( As needed W. Fields and Associates (916)646-6100 will litigate or provide representation in the state of Colorado as needed. Although, many actions made, taken, and part of the pending civil action forementioned occured through teleconference to the Plaintiff in the State of Hawaii - for this reason jurisdiction over this case will be within the state of Hawaii as per Motions to follow.) Dear Stacie, Thank you for informing me of the inflamatory fax sent to you by the afore mentioned defendents in the above pending civil action. As Mr. Rychner referred to me as a 'Lay' advocate, we will be asking the court to further define the derogatory nature of his statement. After traveling to almost every state in our country we have yet to define me as a 'lay' anything. This is a formal request for a true and original document - the fax sent by Mr. Rychner. As he is employed by H.R.O., they are also responsible for his actions, as is the party he is representing - District 11, which is part of the CDE and also part of the state. Ron Hage hired Mr. Rychner and refuses to take action in helping us get your IEP handled, which is not a due process and is not 'under question' by the state as to whether or not an advocate can be in an IEP. It's in IDEA so I've read, you may want to read it yourself to get your own opinion. As always, I have never offered 'legal advice', I have only offered personal opinion in discussion as to how administratively the regulations for teaching children with Disabilities has been not met in your opinion, and in reviewing your records...in mine. It does not take an attorney to read a school file... most attorneys would never understand what half of it meant anyway - why they are allowed to participate and clutter up a due process is beyond my ability to assume. As always, I have made no derogatory statements that may be admitted into evidence in any way, shape, or form to H.R.O., Mr. Rychner, or their clients. HOWEVER, Due to Mr. Rychners fax to you of a letter never even sent to me ( I still have not recieved it), and with no knowledge of how many people he faxed it to - we request that you turn it over to us so that it may be used as evidence in action to be taken against the above named Defendents. I will be busy in meetings with the Department of Defense on a Due Process today as the Fed's have no problem with me supporting and helping a parent through it. It's amazing that Colorado and Mr. Rychner seem to be taking the position that they are above the findings and rulings of the Department of Defense..... After all, Don't they carry the nukes ????? What has this country came to ? To the Legislators reading this... once again I request as a citizen of the United States of America that there be a fact finding hearing to be held at the administrative office of district 11 in Colorado Springs at the soonest possible date to hear parent and other testimony and to determine whether or not The Office of Advocacy's allegation that Colorado Springs and the CDE are not providing for children in need, although the great leaders of our country have given the children protection through laws and acts and such. Mr. Rychner.... We'll see you in Court. I hope you have a travel plan. Aloha, E. U.S. Reg. Civil Rights Lobbyist Director, OAAC Director, COPS Lil Mikey's Daddy Peace to the Children .......... there's a copy of the letter that went out to Rychner, CDE, and all named defendents sat night. I'll be extremely busy in phone conferences with the Dept. of Defense on two cases on Monday.... but should be online at times if anyone needs help. Mike ********************************************* The Office Of Advocacy for Autistic Children ********************************************* ----- We Need Your help to keep going ------ --Thank you to all for the continued support-- ********************************************** E. , Reg. U.S. Civil Rights Lobbyist Dir, OAAC Dir, C.O.P.S. The ' Coalition of Parental Support ' Lil Mikey's Daddy ============================ " We Speak for those who can not, we will fight relentlessly for the Civil Rights of all Children....disabled or not .. Globally " ============================ Contact Mike for free online advocacy regarding your IEP, Mediation, or other problems you may be having. If you are in a state that adheres to the allowance for 'Professional Advocacy' in person - we are available Nationally on a case by case basis for Due Process Hearings. Email me anytime at this address, or for free phone advocacy please call OAAC/Mike at (808)349-6060 in Hawaii. W Maybe you should consider filing suit in siberia colorodo to hawaii seems like a vacation lol _________________________________________________________________ Help STOP SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2002 Report Share Posted December 16, 2002 Helen, Let me tell you first that I love you. Second, My husband is 42 years old and we live in the united states (sterling heights,Michigan). I have been searching for answers and someone who is familiar with this it seems like forever. He was diagnosed with a right adrenal tumour (2.3 cm) a little over 4 months ago. He has been on a ton of blood pressure medicine and it seemed like nothing was working. He is currently taking spironolactone 50mg 3 times a day, diovan 160mg once aday,norvasc 2.5mg once a day and toperal xl 50mg once a day. He is fine if we keep him laying down but if he sits or stands even on these medicines his blood pressure still rises.Lying down it may be 144/97 where if he stands it immediately goes to 160/106 or sometimes higher, is this normal? I am so sorry to be asking so much of you but until we recieved your email it seemed like we were in the dark, with so many questions to ask. Like, Did you get hot flashes,sweaty hands and feet? Did you ever just lay down and cry real hard because deep down in you knew you just were not going to make it? I don't mean to overwhelm you, I am just worried about my husband. We met 5 years ago and he was hypertension and taking tenoretic only once a day. In 1998, he was seeing another Dr. and she switched him to lotensin only once a day,this also did not hold so again in 1998 he was finally switched to procardia-xl 90mg. He would stay on this until this year in September.In 1999 she also added monopril 20mg once a day. The start of 2002 every thing seemed to be fine except everytime he ate he complained of real bad stomach issues. We would start traveling emergency rooms in February of this year. They finally did upper and lower G.I's and confirmed that he had acid reflux.Then he was still complaining of abdomenal pains and they ran CT scans and MRI's which would confirm a 2.0 cm on the right adrenal gland, however, the Dr. that we were seeing at the time must not have cared to much due to the fact that all he kept saying was " Mark, you will be just fine, It is only anxiety " take this.He proceeded to start putting my husband on all sorts of " head Medicines " ,ie; xanax .5mg 3-4 times a day, valium 30mg 2-3 times a day and then he tried paxil 20 mg once a day. During this whole time, my husband kept telling me that this was not anxiety, something was really wrong with him. In September of this year we personally made 52 trips to the emergency room all to be told that he had anxiety.Finally, the last part of November we switched Dr.'s. What do you know here we are 2 1/2 weeks later. Now we know that there is a right adrenal mass, and that his left adrenal they say is enlarged, we have done two 24 hour urinalysis and at this very minute are waiting to hear back from 2 Dr.'s this evening.I am so sorry to have dumped our whole life in a paragraph to you, but, you are giving us hope that we honestly did not believe was out there. Could you please write me back as soon as possible? If able would you mind as to share all or some of the symptoms you suffered with as well, also, if you had blood pressure heights could you share those as well? I thank you very,very much for taking the time to respond to my email. I guess there is a such thing as a christmas angel, You are ours. Sincerely, Dodge >From: " Helen Pearson " <Helen@...> >Reply-hyperaldosteronism ><hyperaldosteronism >,<ladidoc1@...> >Subject: Re: (unknown) >Date: Mon, 16 Dec 2002 08:04:47 -0000 > >Hello , > >You are in just the right place! Elaine and I set this group up because we >are both Conn's patients and were having a hard time finding anyone else to >talk to about our problems. Elaine is in Australia right now so can only >look in when she has time. > >To start with would you like to look at my website? > >It is: > >http://mysite.freeserve.com/hyperaldosteronism > >I had a lot of help with it (thanks to Bruce and Simon) and only felt I >could do it because I was so lost and frustrated at the lack of non-medical >language information as well as the sites which were full of garbage. > >I had a tumour on my left gland which was surgically removed at the start >of >October. There are other people here who are in various stages of diagnosis >and treatment and we talk about all sorts of things - not always connected >with the Conn's. If you have a problem there is almost always one of us who >has had the same thing and can make suggestions about how to cope. Some of >what we talk about is very personal but as none of us are likely to meet up >in real life that isn't embarrassing and the information you get back is >worth a blush or two. > >I assume it is your blood pressure that goes through the roof when you sit >or stand? Are you taking any medication? If you are taking medication what >are you taking and what doseage? > >We have scientists and medical technicians on the list. I am not a medic >but >I have a wonderful endocrinologist who answers all my questions and I ask >him an awful lot of questions - poor man. > >Sorry to ask so many questions back! Maybe you could give us a short bio - >just how old you are and where you live for example - but only if you are >comfortable with this. > >Looking forward to hearing from you. > >Helen > > _________________________________________________________________ Tired of spam? 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Guest guest Posted December 17, 2002 Report Share Posted December 17, 2002 I have wriiten back to in a private e-mail. Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2002 Report Share Posted December 18, 2002 Hi Sharon, Welcome to the group If you hit 'reply' then the message goes only to the person who sent it. If you want your message to go to the whole group, then change the email address to 'rheumatic '. Chris. >I'm new to this group and have tried to post 2 messages in the last >week by clicking on " reply " after logging in. For some reason >neither message has been posted. Am I doing something wrong? > >Thanks, >Sharon > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2002 Report Share Posted December 24, 2002 Some say it works for them. Others say it doesn't...... Mic > Has anyone ever been prescribed nystatin? Did it work? I'm taking this >anti-fungal four pills at four times a day for six weeks in addition to >the >diet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 Hi Lori, I don't really know what to say other then my 4 yr old has systemic and lower doses of MTX controlled basically everything but his left ankle.At a maxed out dose of 25mg MTX it would control it shortly,until the steroid dose got low enough.We decided since it was just the one joint effected to have it drained and injected.Since starting Enbrel therapy he is picture perfect.My friends little girl has developed a new joint so I don't see why a new joint involvement is non JRA related.I would guess that alot of adult rheumies are used to dealing with RA which is totally differant then JRA.He/She may not have enough experiance with JRA to differentiate the differance in symptoms.Good luck.it must be frustraiting. Hugs from Becki and 4systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi Lori, Your knee sounds like Arthur acting up to me.I don't understand your doctors way of thinking.Your knee sounds just like my sons ankle.In the beginning his was both wrists,both elbows,both knees ,both ankles and his fingers.He was one crooked bent up mess.The MTX took care of everything but his stubborn left ankle.It would be fine as long as the steroids were high enough,but at a certain point it would swell back up.It sounds to me like your knee is what we call a problem joint.It just doesn't respond to DMARD therapy,only the steroids help. Enbrel is newer drug called a biological agent.Instead of simply supressing the entire immune system,it goes after a specific chemical called TNF.Large amounts of TNF are found in the blood of people with RA and JRA,it is one of the leading causes of swelling and pain.The enbrel acts like a sponge and soaks it up before it attaches itself to the joints. Good luck with that stubborn knee! Becki and 4systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi,Lori. JRA comes in three forms - pauci,poly and systemic. Which I am sure you know. Pauci means less than 5 joints affected at onset. So it seems to me, your knee could certainly be from the JRA. My sons jra started in his ankle and it is still the joint which remains swollen to this day, even though other things have bothered him in the past and spondylitis was added to his diagnosis due to all the tendon involvement he developed. Anyway, it could be something in addition to your JRA or it could be the knee is swollen from the JRA. JRA is different from RA according to all that I have read. I'm sure the dr knows his stuff, but jra can really affect only one joint at a time. That is part of what makes it different from RA. Just my two cents on this one, Michele (mom to 15, pauci & spondy) (unknown) Hey all, I Haven't been on here in a while though I read alot of your post to try to keep up to date with the JRA. a few months back I posted that I was a 30 year old adult recently diagnosed with JRA. I have been doing great with meds. till recently I have started haveing swelling in my left knee, makeing it unbarable to walk or to put any presure on my foot. I just returned from my visit with my Rheumatolgist at the University of Virginia and He tells me that the swelling and pain I'm having now is not from the JRA. That something else must be causing it. That if it were From The JRA it would appear in all of my joints not just one Knee. When I First started having symptoms a year ago it started in my Knees then Moved to other joints in months to come.Could this Be a relapse or could this infact be something else? I don't have alot of info on JRA in adults most things I have found has been in Children. If any Of You Might have some helpful info please send it to me. Thanks, Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2002 Report Share Posted December 31, 2002 You can give both at once. You'll just be planting two different seeds in the garden at the same time - each may find different patches of 'dirt' to put roots into. Terri At 01:45 PM 12/31/2002 -0500, you wrote: >Just wondering if anyone can answer this before I run to the grocery >store; can you give 2 different kinds of probiotics at the same time or >do you need to just stick to1 kind at a time? We are giving Ultra Flora >DF (Metagenics) right now but GI doc said she needs Culturelle. Can I >switch or just give both? Thanks so much. Rhonda Livia's mom > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2002 Report Share Posted December 31, 2002 Cheryl, ther is soy wax and Candilila wax (not sure the spelling) also Carnuba wax..... HNY!! Shaye (unknown) Cheryl here, from Batavia. I have a question. In trying to keep my products Vegan,I am looking for a substitute for bees wax. Have any of you tried anything that you like and are happy with the result? Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Thanks so much. I had seen Candilila wax in the past but completely forgot about it. I may look for the soy wax, I didn't know about that one and it sounds cool. Thanks again and Happy New Year! > Cheryl, ther is soy wax and Candilila wax (not sure the spelling) ] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 In a message dated 1/1/03 9:51:34 PM Eastern Standard Time, ingridottis@... writes: What can anyone tell me about Elavil? Someone I care about was just prescribed it for insomnia/depression? I was wondering why not SSRI's. Because it's *very* sedating...it's also prescribed sometimes for chronic pain conditions, it also has a tendancy to make just about everyone that takes it gain a *lot* of weight very fast, and it doesn't come off when you stop the drug. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 In a message dated 1/1/03 9:54:44 PM Eastern Standard Time, Asaara@... writes: it also has a tendancy to make just about everyone that takes it gain a *lot* of weight very fast, and it doesn't come off when you stop the drug. I took it for 12 yrs and lost 110 lbs. I was eating healthy and exercising. Suz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 In a message dated 1/1/03 9:51:34 PM Eastern Standard Time, ingridottis@... writes: What can anyone tell me about Elavil? Someone I care about was just prescribed it for insomnia/depression? I took elavil for 12 yrs. I took it for migraine prevention. It makes you very sleepy which is why it works well for insomnia and it is a tricyclic antidepressant so it kinda kills 2 birds with one stone if you are taking it for insomnia and depression. Suz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 In a message dated 1/1/03 9:57:07 PM Eastern Standard Time, MaxsMomhere@... writes: it also has a tendancy to make just about everyone that takes it gain a *lot* of weight very fast, and it doesn't come off when you stop the drug. I took it for 12 yrs and lost 110 lbs. I was eating healthy and exercising. Suz Yeah, it won't do it to everyone, but most it will. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 can I mix them together? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 So, I guess this is a really long religious spam message? Max Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Hi Lori, After you explained your story better about having childhood pain being dismissed as growing pains,it is very likely that you do have JRA.Many vets on this list were told the exact same thing. In my opinion you need to find another rheumy.If moderate doses of pred is the only thing that controls the symptoms it is time for more DMARD therapy.Board certified rheumatoligists know so much more about traditional DMARDS then they used to and now they have Leuflonimide,Enbrel, Remicade,and Kineret.There are so many more treatment options out there. Many adults stay on low doses of steroids for many years(7.5mg or less)with very few complications.That may be acceptable.The problem with steroids and weight gain is when you are put on higher doses you taper down,only to flare and put back on the higher doses,which in turn means more weight gain.The more stable the dose the more the weight evens out and even losing is possible.It was unfair of the Resident to tell you that you will never lose weight if you stay on the pred.You just can't continue to taper if you are having symptoms,because ultimately you will flare.You really need to find a real rheumy who is more knowledgable with todays treatment options.Another thing,if a doctor takes offence to questions it is time for a new doctor.A good doctor wants to know how his patiants feel and they like imput from them.Good luck on getting your JRA under control!!! Becki and 4systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Apples are high in phenols... as are white grapes Have any no-fenol and melatonin? (unknown) Are apples high fenol? We gave our little one an apple tonight and it's almost 11 now, she's still up. Bouncing in her crib, screaming, a happy scream but screaming and just hyper in general. Not sure if it's the apple, (she's never really had obvious food intolerances except for milk), or if it's cause we're on day 3 of Cultrelle. Any thoughts? forgot to add that she doesn't usually eat apples. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 I think I meant phenol. All that screaming's messed up my spelling ability:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2003 Report Share Posted January 4, 2003 Apples are high in phenol, and also feed yeast. Could be either of these things. Terri At 11:05 PM 1/3/2003 -0500, you wrote: >Are apples high fenol? We gave our little one an apple tonight and it's >almost 11 now, she's still up. Bouncing in her crib, screaming, a happy >scream but screaming and just hyper in general. Not sure if it's the >apple, (she's never really had obvious food intolerances except for >milk), or if it's cause we're on day 3 of Cultrelle. Any thoughts? > >forgot to add that she doesn't usually eat apples. > > > > Quote Link to comment Share on other sites More sharing options...
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