Re: Update on Bradley

[Guest guest]

marie,

sounds like you had a rough evening, but thank goodness Bradley did not aspirate

any water.  Sadly, nothing moves quickly at the ER but it's good they are

treating him for infection and hopefully he will be feeling his energetic self

again in a couple days.  It is difficult sometimes to have a change in meds

routine, but hopefully the Humira works well for Bradley's uveitis. I hope your

foot heals quickly - I'm sure it is easier caring for two boys without crutches!

(, 18, poly)

(also in Sunny So Cal)

From: marie <kemie@...>

Subject: Update on Bradley, sorry it's kind of long

Date: Friday, August 8, 2008, 9:55 AM

Well, the week has been kind of a rough one here at the Seifert

household! It started off with my youngest having to go to the doctor

for fevers that he has been having for a week straight! The doctor

couldn't find anything wrong with him so if he had continued to have

fevers by today, I would have had to take him in to get some blood

work done but thank goodness, the fevers have stopped!

Wednesday, Bradley went swimming with a girlfriend of mine (I am on

crutches due to some pulled tendons in my right foot, but that is

another story entirely!) and he went under for about 5 or 6 seconds

off the bottom step, she grabbed him and he came up coughing and

vomited and decided he had enough and wanted to come home. Well, when

he got home, he was disoriented and said he wanted to take a nap! For

Bradley, for him to want to lay down is a BIG indicator that something

is wrong, he just doesn't like to lay down for the life of him. He

slept for about 2 hours, woke up, didn't want to eat at all but wanted

to lay down again! He was also running a fever again, he's been

running fevers for a week now, not high ones but fevers none the less

so his Rheumy gave us a Rx for Zithromax. So anyways, later on that

night my hubby came home and noticed that Bradley was really lethargic

and warm so he decided that we should go to the ER since he could have

aspirated some water. Long story short, they did a chest xray,

everything was fine but they did some blood work and showed that his

WBC count was really high so obviously he has an infection somewhere.

They gave him some Abx in his IV and after that, we were able to go

home...6 hours after we checked in!!! It was so ridiculous how long we

were there but at least we know that he is ok for the most part, minus

the infection. So that was our night/day for wednesday and thursday.

We also went to the Rheumy on Tuesday and his joints look good but we

will be starting Humira next week to try to help his Uveitis since the

drops and MTX alone aren't doing enough. We also have to go back next

week to the Rheumy to see an Orthotist to see about getting Bradley

some extra support in his shoes. I am nervous about starting the

Humira but I know he needs it for his eyes so that right there is

enough reason for me. The nurse gave us a program where Humira will

actually pay for his Rx for the first 6 months so that is SO nice

since our medical bills for him are adding up.

Hope you all have a fantastic day and weekend and know that you have

lots of prayers coming at you from Sunny Southern California!

Blessing,

marie

Mommy to Bradley (Pauci JRA and Uveitis) Charlie and

[Guest guest]

Friday, September 3, 2010 8:29 AM, EDT

Dear friends and prayer warriors of Bradley, It is with a sad heart that I tell you, at 8am on his 18th birthday, Bradley heard the words from heaven Well done, my good and faithful servant.We appreciate your prayer right now as our battle of missing Bradly has just begun.Vicky for

2 4:7 I have fought the good fight, I have finished the course, I have kept the faith.

“How people treat you is their karma; how you react is yours" -Wayne Dyer From: Carol L <carolleo864@...>Subject: [] Update on Bradley Date: Friday, September 3, 2010, 8:43 AM

Bradley has passed on....R.I.P. Bradley Brock!! You are pain free and celebrating your birthday as an angel. My prayers are with the Brock family. “How people treat you is their karma; how you react is yours" -Wayne Dyer

[Guest guest]

Dear Carol:

While I am truly grateful that Bradley is no longer in pain and made it to his

18th birthday...My heart is filled with such great compassion for his family and

his friends. I ask the Creator for Comfort, Aid and Healing for each and every

one whom he called his Loved Ones.

Truly...this day I send many blessings to all of you

in Love,

Lynn Manyfires

[Guest guest]

I am so sorry to hear this is happening to you and your family. We travel 307

miles to Cincinnati Childrens on Monday to take our 12 1/2 yr old off of

Enbrel.He has been in a medicated remission for years but this is the real

deal.You wonder, can he make it a month,6 months ,a year. Puberty has hit and

this is the best time but it is ALL still a guessing game and a cat and mouse

chase kind of thing.I will be praying you get the eyes under control ASAP.

Becki and 12 sojra aka The Barefoot TN Flash

Again our prayers are with you!

________________________________

From: marie <doulakarenmarie@...>

Sent: Fri, February 11, 2011 9:34:22 AM

Subject: Update on Bradley

Hey all,

So I know I have not posted on here in a while (more than I care to admit!) but

I do read every single post that you write and know that I am praying for each

and every one of you and your kids.

Bradley had been pulled off his Humira back in September of 2010 and we were SO

excited! Some of you may not know but Bradley was diagnosed with Pauci in 2008

and only his left knee was affected. He has had NO problem with his joints but

unfortunately his Uveitis has been a bit harder to control. Well, he was doing

really well and his eyes had been quiet for a long time so like I said, in

September, his Opthomologist (sorry can't ever spell that right! hahah) pulled

him off the Humira. Of course we were seeing him every 4 weeks or so but we were

doing really well and hoping that this was the start of the beginning of the end

for him.

Well, we went back to the Optho at the beginning of this month and Bradley is

flared really badly in both eyes. So we went back on eye drops every 2 hours

and have now gradually gone down to every 4 hours. He was also put back on Mtx

and will be going back on Humira as well. It's just such a bummer because he was

doing so well and we were just so praying that he was growing out of it, I guess

kind of a naive thought.

Anyways, just wanted to update you all and ask for your continued prayers right

now. We have weekly appointments with the Optho so I'll let you all know what's

going on.

Thanks everyone for listening, it is so awesome to know that you are here and

willing to just lend an ear.

Sincerely,

Karemarie- Mommy to Bradley, 6 (Pauci and Uveitis)