Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Edie, I forgot to say something important. By the time some people get 'ill', meaning exhibiting symptoms of the disease (symptoms recognizable by the doctor) the disease may be very advanced. Many people feel just fine all the way until they are diagnosed with end-stage liver disease. Why do you think this disease is known as the 'Silent Killer'? Claudine > >From: " Gil & Edie " <erodrig1@...> > >The last few days, it has felt as if my liver " aches " . Has anyone ever > >felt > >this? It sorta feels like it did, but to a lesser degree, before I had >my > >gall bladder out. It is kinda annoying, but not too bad. Pain is > >constant, > >it does not come and go. > >Anyone experience this? I am not on med's. Doctor won't do a liver >biopsy > >or genome type test on me until I go in a study or get ill. So far, my > >LFT's > >have been normal. > >Edie > > >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Edie, I forgot to say something important. By the time some people get 'ill', meaning exhibiting symptoms of the disease (symptoms recognizable by the doctor) the disease may be very advanced. Many people feel just fine all the way until they are diagnosed with end-stage liver disease. Why do you think this disease is known as the 'Silent Killer'? Claudine > >From: " Gil & Edie " <erodrig1@...> > >The last few days, it has felt as if my liver " aches " . Has anyone ever > >felt > >this? It sorta feels like it did, but to a lesser degree, before I had >my > >gall bladder out. It is kinda annoying, but not too bad. Pain is > >constant, > >it does not come and go. > >Anyone experience this? I am not on med's. Doctor won't do a liver >biopsy > >or genome type test on me until I go in a study or get ill. So far, my > >LFT's > >have been normal. > >Edie > > >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Edie, I forgot to say something important. By the time some people get 'ill', meaning exhibiting symptoms of the disease (symptoms recognizable by the doctor) the disease may be very advanced. Many people feel just fine all the way until they are diagnosed with end-stage liver disease. Why do you think this disease is known as the 'Silent Killer'? Claudine > >From: " Gil & Edie " <erodrig1@...> > >The last few days, it has felt as if my liver " aches " . Has anyone ever > >felt > >this? It sorta feels like it did, but to a lesser degree, before I had >my > >gall bladder out. It is kinda annoying, but not too bad. Pain is > >constant, > >it does not come and go. > >Anyone experience this? I am not on med's. Doctor won't do a liver >biopsy > >or genome type test on me until I go in a study or get ill. So far, my > >LFT's > >have been normal. > >Edie > > >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Edie, I forgot to say something important. By the time some people get 'ill', meaning exhibiting symptoms of the disease (symptoms recognizable by the doctor) the disease may be very advanced. Many people feel just fine all the way until they are diagnosed with end-stage liver disease. Why do you think this disease is known as the 'Silent Killer'? Claudine > >From: " Gil & Edie " <erodrig1@...> > >The last few days, it has felt as if my liver " aches " . Has anyone ever > >felt > >this? It sorta feels like it did, but to a lesser degree, before I had >my > >gall bladder out. It is kinda annoying, but not too bad. Pain is > >constant, > >it does not come and go. > >Anyone experience this? I am not on med's. Doctor won't do a liver >biopsy > >or genome type test on me until I go in a study or get ill. So far, my > >LFT's > >have been normal. > >Edie > > >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Edie I don't understand why you can't get a biopsy? Is it just no money/insurance? My lft's have been normal over 9 years also. But sometimes my liver aches too. Good luck alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 Edie I don't understand why you can't get a biopsy? Is it just no money/insurance? My lft's have been normal over 9 years also. But sometimes my liver aches too. Good luck alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 ---------- >From: " Gil & Edie " <erodrig1@...> The last few days, it has felt as if my liver " aches " . Has anyone ever felt > this? > > Edie > > Yes, I have right abdominal pain. It is not steady, it comes & goes. Supposed to be a fairly common symptom of HCV. It went away with treatment, but came back when I relapsed. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2000 Report Share Posted May 24, 2000 ---------- >From: " Gil & Edie " <erodrig1@...> The last few days, it has felt as if my liver " aches " . Has anyone ever felt > this? > > Edie > > Yes, I have right abdominal pain. It is not steady, it comes & goes. Supposed to be a fairly common symptom of HCV. It went away with treatment, but came back when I relapsed. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 erodrig1@... writes: << Anyone experience this? I am not on med's. Doctor won't do a liver biopsy or genome type test on me until I go in a study or get ill. So far, my LFT's have been normal. Edie >> Yes, Edie, I experienced that, in fact my pain got so bad that my doctor used botox in the bile muscle to relieve the ache. It has helped me for over 2 months now. I just hope it continues to give me relief! Depending on who you talk to, some say the pain is all in the mind (which we know is WRONG) then some say it's the blood vessels working harder to reroute themselves around the fiberous cells in the liver. Then there is the cirrhosis factor, which some say is your liver is working harder, it isn't as efficient and therefore " hurts " because of the restrictions placed it, etc. I got to tell you right off the bat, that the poor advice your doctor is giving you is exactly what my FORMER doctors told me. I wished I had gotten a better doctor back then, I could have a different outcome today. RUN... DON'T WALK to another Doctor!! Search for a hepatoligist if you can. At the very least look for a GI who treats other Hepatitis C patients. I just went to a Hepatitis C seminar in Tucson Arizona last weekend. The doctors there were surgeons and physicians who treat thousands of Hepatitis C patients. They tell all their patients, colleagues, medical professionals and anybody else who is interested in listening that it is CRITICAL to evaluate a patient by several factors ... here is the list... ALL HEPATITIS C PATIENTS MUST GET THE FOLLOWING A VIRAL LOAD COUNT A FULL LIVER FUNCTION PANEL GENOTYPE DETERMINATION A LIVER BIOPSY Find a doctor who will listen to your questions ... there are a few good ones out there ... just keep looking until you find one! I did! Sharon Nicholson Hepatitis Education & Patient Coalition (H. E. P. C.) Executive Director <A HREF= " http://www.suite101.com/welcome.cfm/hepatitis_abc " >Hepatitis A, B, C's - editor Suite101.com</A> http://www.suite101.com/welcome.cfm/hepatitis_abc Join our e-group mailing list online! <A HREF= " /group/ArizonaHepatitis C " >eGroups : ArizonaHepatitis C</A> /group/ArizonaHepatitis C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 erodrig1@... writes: << Anyone experience this? I am not on med's. Doctor won't do a liver biopsy or genome type test on me until I go in a study or get ill. So far, my LFT's have been normal. Edie >> Yes, Edie, I experienced that, in fact my pain got so bad that my doctor used botox in the bile muscle to relieve the ache. It has helped me for over 2 months now. I just hope it continues to give me relief! Depending on who you talk to, some say the pain is all in the mind (which we know is WRONG) then some say it's the blood vessels working harder to reroute themselves around the fiberous cells in the liver. Then there is the cirrhosis factor, which some say is your liver is working harder, it isn't as efficient and therefore " hurts " because of the restrictions placed it, etc. I got to tell you right off the bat, that the poor advice your doctor is giving you is exactly what my FORMER doctors told me. I wished I had gotten a better doctor back then, I could have a different outcome today. RUN... DON'T WALK to another Doctor!! Search for a hepatoligist if you can. At the very least look for a GI who treats other Hepatitis C patients. I just went to a Hepatitis C seminar in Tucson Arizona last weekend. The doctors there were surgeons and physicians who treat thousands of Hepatitis C patients. They tell all their patients, colleagues, medical professionals and anybody else who is interested in listening that it is CRITICAL to evaluate a patient by several factors ... here is the list... ALL HEPATITIS C PATIENTS MUST GET THE FOLLOWING A VIRAL LOAD COUNT A FULL LIVER FUNCTION PANEL GENOTYPE DETERMINATION A LIVER BIOPSY Find a doctor who will listen to your questions ... there are a few good ones out there ... just keep looking until you find one! I did! Sharon Nicholson Hepatitis Education & Patient Coalition (H. E. P. C.) Executive Director <A HREF= " http://www.suite101.com/welcome.cfm/hepatitis_abc " >Hepatitis A, B, C's - editor Suite101.com</A> http://www.suite101.com/welcome.cfm/hepatitis_abc Join our e-group mailing list online! <A HREF= " /group/ArizonaHepatitis C " >eGroups : ArizonaHepatitis C</A> /group/ArizonaHepatitis C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 erodrig1@... writes: << Anyone experience this? I am not on med's. Doctor won't do a liver biopsy or genome type test on me until I go in a study or get ill. So far, my LFT's have been normal. Edie >> Yes, Edie, I experienced that, in fact my pain got so bad that my doctor used botox in the bile muscle to relieve the ache. It has helped me for over 2 months now. I just hope it continues to give me relief! Depending on who you talk to, some say the pain is all in the mind (which we know is WRONG) then some say it's the blood vessels working harder to reroute themselves around the fiberous cells in the liver. Then there is the cirrhosis factor, which some say is your liver is working harder, it isn't as efficient and therefore " hurts " because of the restrictions placed it, etc. I got to tell you right off the bat, that the poor advice your doctor is giving you is exactly what my FORMER doctors told me. I wished I had gotten a better doctor back then, I could have a different outcome today. RUN... DON'T WALK to another Doctor!! Search for a hepatoligist if you can. At the very least look for a GI who treats other Hepatitis C patients. I just went to a Hepatitis C seminar in Tucson Arizona last weekend. The doctors there were surgeons and physicians who treat thousands of Hepatitis C patients. They tell all their patients, colleagues, medical professionals and anybody else who is interested in listening that it is CRITICAL to evaluate a patient by several factors ... here is the list... ALL HEPATITIS C PATIENTS MUST GET THE FOLLOWING A VIRAL LOAD COUNT A FULL LIVER FUNCTION PANEL GENOTYPE DETERMINATION A LIVER BIOPSY Find a doctor who will listen to your questions ... there are a few good ones out there ... just keep looking until you find one! I did! Sharon Nicholson Hepatitis Education & Patient Coalition (H. E. P. C.) Executive Director <A HREF= " http://www.suite101.com/welcome.cfm/hepatitis_abc " >Hepatitis A, B, C's - editor Suite101.com</A> http://www.suite101.com/welcome.cfm/hepatitis_abc Join our e-group mailing list online! <A HREF= " /group/ArizonaHepatitis C " >eGroups : ArizonaHepatitis C</A> /group/ArizonaHepatitis C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2000 Report Share Posted May 25, 2000 erodrig1@... writes: << Anyone experience this? I am not on med's. Doctor won't do a liver biopsy or genome type test on me until I go in a study or get ill. So far, my LFT's have been normal. Edie >> Yes, Edie, I experienced that, in fact my pain got so bad that my doctor used botox in the bile muscle to relieve the ache. It has helped me for over 2 months now. I just hope it continues to give me relief! Depending on who you talk to, some say the pain is all in the mind (which we know is WRONG) then some say it's the blood vessels working harder to reroute themselves around the fiberous cells in the liver. Then there is the cirrhosis factor, which some say is your liver is working harder, it isn't as efficient and therefore " hurts " because of the restrictions placed it, etc. I got to tell you right off the bat, that the poor advice your doctor is giving you is exactly what my FORMER doctors told me. I wished I had gotten a better doctor back then, I could have a different outcome today. RUN... DON'T WALK to another Doctor!! Search for a hepatoligist if you can. At the very least look for a GI who treats other Hepatitis C patients. I just went to a Hepatitis C seminar in Tucson Arizona last weekend. The doctors there were surgeons and physicians who treat thousands of Hepatitis C patients. They tell all their patients, colleagues, medical professionals and anybody else who is interested in listening that it is CRITICAL to evaluate a patient by several factors ... here is the list... ALL HEPATITIS C PATIENTS MUST GET THE FOLLOWING A VIRAL LOAD COUNT A FULL LIVER FUNCTION PANEL GENOTYPE DETERMINATION A LIVER BIOPSY Find a doctor who will listen to your questions ... there are a few good ones out there ... just keep looking until you find one! I did! Sharon Nicholson Hepatitis Education & Patient Coalition (H. E. P. C.) Executive Director <A HREF= " http://www.suite101.com/welcome.cfm/hepatitis_abc " >Hepatitis A, B, C's - editor Suite101.com</A> http://www.suite101.com/welcome.cfm/hepatitis_abc Join our e-group mailing list online! <A HREF= " /group/ArizonaHepatitis C " >eGroups : ArizonaHepatitis C</A> /group/ArizonaHepatitis C Quote Link to comment Share on other sites More sharing options...
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