Lorie

[Guest guest]

Tricia,

Yes, I was pulled off all at once. I was a 10 mg dose a day and

had been doing that for about 3 weeks. I have gotten a bad infection

in my lungs and throat. I am taking an antibiotic " Zithromax " for

the next few days ( was on a five day course ). After that, it is

all up to the new Doc and what she decides to do as far as meds go. I

do have this dream going though, I am hoping that by next Tuesday I

will be all better and in a remission, but I guess my chances of that

is pretty slim at this point...but It doesn't hurt to dream and hold

on to the hope that someday, my day might just come along and go into

remission for however long it might be for.

Thanks for answering...that was quick..I will keep you posted.

Hugs right back at you..((((((Tricia ))))))

Lorie

>

>

> Dear Lorie,

>

> He had you go off all the steroids at once??? I forgot how

> many mgs. were you on??

>

> >

>

[Guest guest]

Dear Lori, keep dreaming because I think our bodies just might

respond to that relaxation and happy thoughts for brighter days.

They will come dear, it sometimes takes a bit but they will. So you

rest, medicate, pamper, read and have nice soft snugglies and

scents. I hope your antibiotics help very soon. With love, Melt

> Tricia,

> Yes, I was pulled off all at once.

[Guest guest]

I too get worried about getting addicted to drugs,the anti depressents really

scare hell out of me.My doctor prescibed one early on when i told her i was

having breathing probs.She said i was anxiety attack which i knew it wasnt.The

reason i wont take these pills is cause i had two very close uncles who were

both on them and they both took there own lives.I had a heat to heart with my

family doctor and since i was already on the sleeping pill geuss thats a anti

depressent as well he said there was no need.I supppose these drugs can really

help some people but i pesonally like to be on as little as possible cut down to

10mgs of pred yesterday still feeling really great still not the old me but

gettin there i hope.As for the slee[ping pill theres no need for it now cause im

tired alot seems like more sleep better i feel.Take care all and to DAN u and

our family have a save trip. d. Re: " Lorie "

Tricia,

Yes, I was pulled off all at once. I was a 10 mg dose a day and

had been doing that for about 3 weeks. I have gotten a bad infection

in my lungs and throat. I am taking an antibiotic " Zithromax " for

the next few days ( was on a five day course ). After that, it is

all up to the new Doc and what she decides to do as far as meds go. I

do have this dream going though, I am hoping that by next Tuesday I

will be all better and in a remission, but I guess my chances of that

is pretty slim at this point...but It doesn't hurt to dream and hold

on to the hope that someday, my day might just come along and go into

remission for however long it might be for.

Thanks for answering...that was quick..I will keep you posted.

Hugs right back at you..((((((Tricia ))))))

Lorie

>

>

> Dear Lorie,

>

> He had you go off all the steroids at once??? I forgot how

> many mgs. were you on??

>

> >

>

[Guest guest]

Hi, Lorie! I don't want to add more confusion, but I too don't understand

why you had to go off the pred just because you are on an antibiotic. I was

on Zithromax while on prednisone. Is this a general practitioner or your

rheumatologist...

On the other hand, I wasn't sure if I should write this at all, because it is

hard enough trying to make sense out of everything going on. Maybe people

like me shouldn't put their two cents in and confuse you more!!! Sorry if I

made it worse!!

[Guest guest]

Hi Lorie,

just checking on you friend. I faired okay during the night, but have been

very sore the last few days. My temp is up a little, but I think the

swelling is the main complaint that I have right now, but it's the weekend,

and it will be nice to rest. My mom and dad left for a month for their

home in Aruba, so there will be no rest at work right now. It will be a

tough month. I am glad to hear that you did make it through the night

friend, and remember, if it gets out of hand like that again and you feel

that you need to go to the ER, than go. Never let it get ahead of you

Lorie. It's just not worth it. Be well friend and have a restful weekend.

Love,Sue #2

-- Re: Really Bad shape tonight-sue2

Good Morning Sue 2,

I made it through the night. My fever finally broke and I sweated pretty

good for awhile, then I didn't feel half bad. I still have the sore mouth

and all, but all in all I did pretty good. I am trying to stay ahead of the

next fever spike by taking a couple of tylenol now. I hope it works. I hope

that you had a restful night. Did yours turn into anything worse over night?

I hope that we both can have a much better day today, in fact I hope that

all

of us have a pain free and beautiful day.

Thanks for listening my friend,

hugs, Lorie in Seattle

[Guest guest]

You're welcome...Thank you for sharing your memories also. It opens the doors

for the rest of us, who never had the opportunity to meet Al, to share in his

life.

thanks,

Lorie In Seattle

[Guest guest]

Dearest Lorie,

thank you friend. Your words are just as beautiful. Yes...I love that Sara

McLaughlin song, and I believe those words are just for Al. I will be

sending that tape to . Al's voice was just beautiful and I was blessed

to have one of his tapes...so in return..I will send this one. It was

such a touching conference when we all met in Vegas. He just touched

everyone's hearts, and is so dedicated to him. I admired the both of

them, and often caught myself staring at them both....admiring the love that

they have for each other. It was something I so desperately missed when my

husband left me. I admired them both. never gave up on him. She

was always by his side, so supportive and loving. I found this a lot at the

Vegas Conference. I watched, Bob & Carole, Louise & Greg, Patty & ,

Tricia and Dennis....I watched these people with love and devotion in their

eyes. All of them...so caring and understanding. It touched my heart and I

think of this often. I truly do. These are precious memories. I am so

thankful that Al is no longer in pain. He suffered so much. He is truly

at rest and peace, and I know that he is up there with all our friends whom

we have lost at this site...holding their hands, embracing them, and they

are all looking down on us with love. They will protect us. Thank you

Lorie. You are a true friend.

Love, Sue #2

-- Re: EVERYONE PLEASE READ-Sue#2 and all

Sue #2,

I feel and share your pain today. I am so sorry that you and the rest of

the family who knew Al, are greiving in such a deep way. I too have shed

tears for Al and for all of you. I have lit a candle for Al today, and will

continue to say prayers for each of you. It is so hard when we lose a friend

and you are right, Al is in the arms of the angels today. I have been

singing

that song all morning " In the Arms of the Angels by Sara Mclaughlin. " We can

take comfort in knowing that he will be taken care of and loved by a much

higher and stronger force, that will take away all his pain.

Please all of you today, take extra good care of yourselves, we all know

what

stress can do to us. Shed those tears and remember all the good things that

your life has brought you and remember to tell those around you how much you

love and care for them today and always.

Thank you all for being such a wonderful family...caring and compassionate

I love each of you as a family member...

Sincerely, Lorie in Seattle

[Guest guest]

Lorie,

I lost your private e-mail address friend and wanted to talk to you again.

How are you, and did you take my advice about the pet loss site? You have

been on my mind all weekend friend. Just know that, and know that I care

and really understand what you are going through with your loss. Wish that

I could still give you a huge hug. I am reaching my arms from Connecticut

all the way to Seattle! Love you friend.

Love, Sue #2

-- OT: More dragon pictures

Good morning everyone,

I just thought that I'd put my 2 cents worth in about dragons, so I

posted 3 pics in a photo file on site. the first one kind of reminds

me of how we have an endless battle with Stills, the circle reminds

me of how that seems to be the game we play with the dragon, he keeps

us running in circles. The one with just the Knight in Armor I

thought would be fun for just the guys in the group and the last one

I thought represented the big burden we carry each day with Stills,

hence the size of the dragon in comparison to the Slayer. Just a

thought, I was just having fun looking at all the dragon pics and

thought that I would share. I hope everyone has a great day. I can

finally say that I am actually feeling a lot better, I think that

maybe I am starting to win this battle after all.

Lorie in Seattle

[Guest guest]

Yeah Lorie,

I have never had any swelling or redness which drives me mad as no

one seems to take you as seriously. Both feet/ankles are equally effected

this morning and I can only hobble with great pain. My other joints are

really hurting also. I kept thinking last night, I am going to wake up and

be swollen all over. No such thing. Sure feels like it should be so I know

what you are talking about.

Luv ya

Hang tight girl

Lynn Renae Dudenhoefer

lynndude@...

-On any path that you may stroll,

-keep your angel in your soul!

-- Re: Hey all, Lynn

Lynn, I am so sorry to hear about your foot. I can sympathize with that,

since I too just realized that warm weather causes me to have extreme foot

pain

also. Usually when it gets above 90 degrees or below 40 degrees, that is the

first thing to act up, my feet and hands. There usually no visible swelling

or

even redness, they look normal, they hurt like heck though. Mystery pain. I

have been labeled the Mystery Pain Patient by my docs, and you know I can

see

why. They just don't understand the Stills disease process and how it has a

mind of its own and does what it wants when it wants. Its hard to tell a

doctor

you pain level is a 10 when there is no visible broken bones or blood. I

hope

you have a good doc.

I hope that you get back up on your feet soon and hope the pain calms down.

You're in my thoughts and prayers.

Lorie in Seattle

ps. thanks for the great card !

[Guest guest]

Lori,

My daughter in Bellevue has been taking the grandchildren to the malls to

play because of the heat. She had been taking them out side in the evening,

when it cooled down, but my grandson (almost 5) became allergic to

mosquitoes.!!

Anyway it's good to hear that you are feeling so much better.

My husband and I may go to Bellevue at the beginning of Sept and then drive

to San Diego to see his mother and then to Las Vegas and back to SD. We are

still mulling it over. I want to do it, but I'm not sure my body does!!!.

We have to make a decision soon, as we are leaving a week from tomorrow for

Ireland with his chorus. We need to make plane reservations before we go

Ann K

On LI NY

Lorie

> Lorie,

> Glad you are feeling well enough to work, that is super!!

> Hugs

>

>

> Lynn Dudenhoefer

> LDudette@...

> -On any path that you may stroll,

> -keep your angel in your soul!

>

>

>

>

[Guest guest]

Happy birthday dear Lorie..I hope you have some fun and that your sugar and the stills stuff all go bye bye fast!! Big hugs!1 Liz NJ

[Guest guest]

Hi Dixie

The reason I responded was that earlier yesterday you posted-

>>Keep in mind that med el and nucleus always come out

with products that can be upgraded later, so you aren't in a bind and

stuck with something that is obsolete in a few years.<<

If you need access to some of the strategies, yes you are in a bind! I

had a choice of the N22 or the Clarion. The N24 trials started 4 months

later at my center. Would I have been upset? Probably. Hopefully I would

have heard well with Speak but who knows? There was no other choice. I

would have had one program on my processor as my only choice for the

past 8 years. I'm just pointing out that there *have* also been upgrades

for the Clarion. So rather than make it a " brand war " I wanted clarify.

I've had access to 4 processors since I was implanted (and have three).

>>I meant that implant companies are still working on making

older products better for their customers.<<

And all three implant companies do exactly that - *whenever possible*

based on the internal electronic limitations of the device.

Everyone has to choose based on the current device. But no company will

" forget " its older users. And no company will ever be able to make

everything backward compatible. If there is untapped electronic

capability it will be easier however.

Best of luck on your hookup-

Lorie

Clarion 1.2 5/96

[Guest guest]

Hi Alice

>>I do have a mix on my 3G and I think that helps but I don't think you

can compare the telecoil on the hearing aid to this. I don't use the

telecoil for the phone. I think there are a lot of 3G users who would

just rather put the phone up to their ear. <<

So do the Clarion users but it's easier to hold it up flat against your

ear, rather than angled when you use a standard BTE microphone. If

someone wants to use the Auria with a loop, they can use the telecoil.

>>It would be fun to try the T-mic to see what it's like. I'm sure it's

nice too. Let's face it - the CI is a wonderful device. I get a great

deal of pleasure from reading everyone's accounts of their lives since

being implanted. We are all very fortunate to have learned about the

devices and have been able to enjoy them. Are you able to use the

T-mic with an earlier model AB processor? That is really nice if you

can enjoy it too.<<

I wouldn't comment on it if I didn't use it I have had a T-mic for

quite a while, I guess two years, and use it all the time. In a very

noisy situation, I use 100% t-mic and the background noise is

effectively blocked when I use the phone. It works great with cell

phones when you are on the street or in an airport.

Lorie

Clarion 1.2 5/96

NYC

[Guest guest]

Hi Lorie,

I just put the phone to my ear like I did when I had hearing and not

at an angle. The mic is positioned well enough and is strong

enough to allow me to hear the conversation.

For noisy situations, I have a sensitivity map and I just turn the

dial down which takes away the background noise. Tonight, I took my

daughter and her family out to dinner for her birthday and we went

to a very busy and noisy buffet. I did well with all the tables

full around me and music playing thru the speaker overhead because I

just turned down the sens down. I'm a little stubborn and should

probably not be using the CI because of the surgical error but I

love sound too much (or maybe I'm too nosey <grin>).

It sounds like both options are a hit. There certainly have been

some smart minds that have gone into developing what we have today.

Wouldn't it be wonderful if we could try on each other's processors?

I'll be counting on you to keep me up to date.

Alice

> Hi Alice

>

> >>I do have a mix on my 3G and I think that helps but I don't

think you

> can compare the telecoil on the hearing aid to this. I don't use

the

> telecoil for the phone. I think there are a lot of 3G users who

would

> just rather put the phone up to their ear. <<

>

> So do the Clarion users but it's easier to hold it up flat against

your

> ear, rather than angled when you use a standard BTE microphone. If

> someone wants to use the Auria with a loop, they can use the

telecoil.

>

In a very noisy situation, I use 100% t-mic and the background

noise is effectively blocked when I use the phone. It works great

with cell phones when you are on the street or in an airport.

>

> Lorie

[Guest guest]

Hi -

>>It was not a criticism of Bionics products, just the fact that I met a

family with 4 users. How often do you see that? And the fact that 3

of

them were implanted by my implant surgeon was nice to know.<<

if the two youngest children get 4 hours then they need serious

reprogramming. Maybe the father was responding about his wife's battery

life. If you weren't being critical, you wouldn't have mentioned battery

life. If you didn't want to be critical, then just know that that was

how it was taken by many users on the list (both Nucleus and Clarion

users who replied to me off the list).

I haven't seen them in a long time. We went to the Statue of Liberty and

Ellis Island together (my only visits as a native New Yorker!)

Lorie

Clarion 1.2 5/96

NYC

[Guest guest]

Hmmmm, we can take anything posted on any mailing list in any way we see

it. So it might be a good time to remind all that we should not jump to

conclusions especially when we dont have the benefit if visual clues of body

language, voice inflections, and the like. 'K? There is nothing wrong with

making observations. Lets take a chill pill and enjoy the summer.

(the beach bums who got it made, living right by the beach!)

*---* *---* *---* *---* *---*

Give your child mental blocks for Christmas.

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

[Guest guest]

Hi -

>>Lets take a chill pill and enjoy the summer.<<

I think this shouldn't have " Lorie " in the subject :-) I am fine, just

tired of seeing the " bashing " on this list.

Lorie

Clarion 1.2 5/96

NYC

[Guest guest]

Hi, Lorie!

Nice to " see " you!

The kids don't seem to have equipment problems too much. Remember, I

only substitute so I'm not seeing it all. The IU does have 2 full time

audiologists who go around and troubleshoot. They redo earmolds, replace

disposable

batteries, check that the device is working, notify the ci centers if they need

more help. Many of the parents have no clue how to care for or order parts,

so oftentimes the IU audi is doing that for them. Most of the kids have AB

rechargeable. Many have switched over the last few yeats to the BTE. A few

years ago they all had the responsibility (as young as kindergarten) of changing

their battery thingy at lunchtime. Now I believe most of them can go the

whole schoolday with just a fresh battery in the morning that they come in with.

I don't believe we have the recharging things in school for the CI's but they

do have the FM things and recharge them every night. Sorry not to be too

detailed, I just don't know enough about it. (except that there are always

batteries in the teachers desk).

) Jackie

[Guest guest]

No problem, Jackie! I'm just surprised at all the equipment problems!

Great to see how well you are doing :-)

Lorie

[Guest guest]

hi m ,sorry for your problems and positive on this insanely used test...there is a lot of expertise on your problem here...if you can try to get your specific number,any meds you are taking ike psych drugs or tylenol,previous doc(hydrocodone/tylenol abuse can injure the liver upregulating EtG),exposure you might be able to think of, ...welcome aboard...we will help you figure this out and move through this...we are here to help you...you are not alone...regards, maliaalbin <maliaalbin@...> wrote: I am a nurse in Texas. I turned myself in for falsification of a RX. I had 16 years of sobriety prior to this. After my admission, I attempted to report myself to TPAPN. I was terminated from my job with US ONCOLOGY. TPAPN would not allow me to self refer. USONCOLOGY had to refer me. I sought counseling on my own and immediately began attending meetings. My second UA was positive for ETG. I did not have anything to drink. I have sought legal counsel and am persueing discontinueing my TPAPN status and just letting the issue go to the board. My attorney is aware of the inaccuracy of the test. I am currently working at a job for half of what I us to make without any benefits. I am surviving one day at a time. I do not know how other Our profession is extremely insentitive to our needs.

[Guest guest]

My new 3 year probation started last Thursday, the same day that my license was taken off "disciplinary suspension" and I was given permission by Maximus to return to work. I'm currently looking for employment. If you have any specific ideas about "recovery advocates", please let me know. I will gladly send information or make contacts. When I contacted the Calif. legislative committee that oversees licensing boards, they advised me to take the issue to my own specific board and put it on the agenda of a board meeting. I tried this and got absolutely nowhere. I also contacted my own professional association and my letters went unanswered. Even their special interest group on addiction didn't contact me. When they hit me up for membership renewal, I told them why I was not renewing. Unfortunately, my views are pretty tainted. Seems to me, most people in the field of recovery

only want to help you when you are writing them a check. They don't seem to take kindly to people like me who won't claim my part in the EtG fiasco and just hush up about it, admitting my powerlessness and praying for acceptance. That just doesn't work for me. As for Dr. Sucher, he's an old schoolmate of my primary MD, who contacted him for info about the test about 9 months ago. He certainly didn't validate any of my claims, leading my doc to believe that my levels were basically unachievable unless I drank -- another addict in recovery who turns his back on advocacy. nilesclay <nilesclay@...> wrote: Hi Lorie, I can't seem to remember, but are you currently working in your licensed position? You were on probation? I am wondering if this group has contacted any recovery advocates to help speak out about this? There are plenty of people from California on this board, what about appearing before the dept of consumer affairs in regard to this test? I have not been real active in discussion here lately, but I guess the feathers have been ruffled again. I have a friend that was down to 31 days of probation, and they notified her of yet another positive test, and are revoking probation and she has to appear at a hearing. She did contact Dr Sucher, and he had some good things to say, including Skipper tried the

purell hand test, and he had levels of 300! Seems like there should be some more pressure we could apply somehow? I know there are many nurses in my group that would speak up. __________________________________________________

[Guest guest]

So Lorie do you understand my negativity abou informing/educating the nurse manager. Really it was nothing personal.

Good thoughts and hopes,

Cchris

Re: Lorie

My new 3 year probation started last Thursday, the same day that my license was taken off "disciplinary suspension" and I was given permission by Maximus to return to work. I'm currently looking for employment.

If you have any specific ideas about "recovery advocates", please let me know. I will gladly send information or make contacts. When I contacted the Calif. legislative committee that oversees licensing boards, they advised me to take the issue to my own specific board and put it on the agenda of a board meeting. I tried this and got absolutely nowhere. I also contacted my own professional association and my letters went unanswered. Even their special interest group on addiction didn't contact me. When they hit me up for membership renewal, I told them why I was not renewing.

Unfortunately, my views are pretty tainted. Seems to me, most people in the field of recovery only want to help you when you are writing them a check. They don't seem to take kindly to people like me who won't claim my part in the EtG fiasco and just hush up about it, admitting my powerlessness and praying for acceptance. That just doesn't work for me.

As for Dr. Sucher, he's an old schoolmate of my primary MD, who contacted him for info about the test about 9 months ago. He certainly didn't validate any of my claims, leading my doc to believe that my levels were basically unachievable unless I drank -- another addict in recovery who turns his back on advocacy.

nilesclay <nilesclay > wrote:

Hi Lorie,

I can't seem to remember, but are you currently working in your

licensed position? You were on probation?

I am wondering if this group has contacted any recovery advocates to

help speak out about this? There are plenty of people from California

on this board, what about appearing before the dept of consumer affairs

in regard to this test?

I have not been real active in discussion here lately, but I guess the

feathers have been ruffled again. I have a friend that was down to

31 days of probation, and they notified her of yet another positive

test, and are revoking probation and she has to appear at a hearing.

She did contact Dr Sucher, and he had some good things to say,

including Skipper tried the purell hand test, and he had levels of

300! Seems like there should be some more pressure we could apply

somehow? I know there are many nurses in my group that would speak

up.

__________________________________________________

[Guest guest]

Hi Lorie.

I am so sorry to hear all of this, but very glad you have your

license back again and can look for work. The whole thing is so out

of control, there are no words for it. Some days I get so worked up

that I want to really be a professionals advocate and work at getting

to the center, and other days I think things will never change, just

pray that I don't have another " positive " . I have to tell you, i

admire your courage and stamina through the fight. Now, what happens

if you test positive again for EtG? Hang in there, I am rooting for

you!

> Hi Lorie,

> I can't seem to remember, but are you currently working in your

> licensed position? You were on probation?

>

> I am wondering if this group has contacted any recovery advocates

to

> help speak out about this? There are plenty of people from

California

> on this board, what about appearing before the dept of consumer

affairs

> in regard to this test?

>

> I have not been real active in discussion here lately, but I guess

the

> feathers have been ruffled again. I have a friend that was down to

> 31 days of probation, and they notified her of yet another positive

> test, and are revoking probation and she has to appear at a

hearing.

> She did contact Dr Sucher, and he had some good things to say,

> including Skipper tried the purell hand test, and he had levels of

> 300! Seems like there should be some more pressure we could apply

> somehow? I know there are many nurses in my group that would speak

> up.

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Of course, I completely understand, Chris. It was the rational and

practical side of me suggesting somebody just explain the facts,

assuming the person is willing to listen and respond in an educated and

non-judgmental manner. I should have thought about that a little longer

before I opened my trap. Unfortunately, I sometimes respond before

realizing that the person already knows what my wise ass practical

advice will be and probably is looking for a little compassion and room

to vent more than anything else.

> Hi Lorie,

> I can't seem to remember, but are you currently working in your

> licensed position? You were on probation?

>

> I am wondering if this group has contacted any recovery advocates to

> help speak out about this? There are plenty of people from California

> on this board, what about appearing before the dept of consumer

affairs

> in regard to this test?

>

> I have not been real active in discussion here lately, but I guess the

> feathers have been ruffled again. I have a friend that was down to

> 31 days of probation, and they notified her of yet another positive

> test, and are revoking probation and she has to appear at a hearing.

> She did contact Dr Sucher, and he had some good things to say,

> including Skipper tried the purell hand test, and he had levels of

> 300! Seems like there should be some more pressure we could apply

> somehow? I know there are many nurses in my group that would speak

> up.

>

>

>

>

> __________________________________________________

>

[Guest guest]

Now, what happens if you test positive again for EtG?

That's the biggest fear of my life right now! Of course, nobody will say what will happen at this point. I'm hoping that my obsession with reading labels and being a raving idiot about anything that comes into contact with my body will be enough to prevent it. In addition, I hope that the daily observed Antabuse will advocate my abstinence should another positive occur.

> > Hi Lorie, > > I can't seem to remember, but are you currently working in your > > licensed position? You were on probation? > > > > I am wondering if this group has contacted any recovery advocates > to > > help speak out about this? There are plenty of people from > California > > on this board, what about appearing before the dept of consumer > affairs > > in regard to this test? > > > > I have not been real active in discussion here lately, but I guess > the > > feathers have been ruffled again. I have a friend that was down to > > 31 days of probation, and they notified her of yet another positive > > test, and are revoking probation and she has to appear at a > hearing. > > She did contact Dr Sucher, and he had some good things to say, > > including Skipper tried the purell hand test, and he had levels of > > 300! Seems like there should be some more pressure we could apply > > somehow? I know there are many nurses in my group that would speak > > up. > > > > > > > > > > > > __________________________________________________> >