Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 Welcome, ! I thought raw milk ( " green top " ) was widely available in the UK...please let us know the situation. Best, ----- Original Message ----- From: Sent: Friday, June 07, 2002 1:11 PM Subject: intro... Hello, I've been semi-lurking for a while now and thought I'd introduce myself. I have *finally* managed to get hold of 'Nourishing Traditions' after getting by just from westonaprice.com and I am absoultely dumbfounded. I cannot believe the nutritional importance contained there in. I already feel like an evangelist that no-one will listen to ;-) My family and friends must be sick to death, because it is all I have talked about since buying the book less than 2 weeks ago! I feel like my eyes have been opened (and I'm only up to sauces!). We are (30), Jonny(almost 30), Astrid(4) and Madeline(14months). My interest in nutrition was awakened as a result of Astrid's illness. She has seizures that are intractable to medication and developmental delays and in a quest to help her through other means I came across westonaprice (thanks to <waving>!). I have come accross lots of stuff about giving enzymes etc. but now I see how to get them from food. I have suspected that she was casien intolerant too and after an elimination diet her seizures certainly improved but I really do not want to keep her off dairy so I'm learning about culturing. I'm having real trouble locating raw milk here in England - if there are any brits here could you please give me a shout? A quick question about sourdough. Is it still necessary to soak the flour or does the starter remove all the phytates? Thanks, it's great to be here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2002 Report Share Posted June 7, 2002 wrote: > She has > seizures that are intractable to medication and developmental delays and in > a quest to help her through other means I came across westonaprice (thanks > to <waving>!). I have come accross lots of stuff about giving > enzymes etc. but now I see how to get them from food. I have suspected that > she was casien intolerant too and after an elimination diet her seizures > certainly improved but I really do not want to keep her off dairy so I'm > learning about culturing. I've read that ketogenic diets have been used for epilepsy with good results. Maybe it would work for child's seizures too? Roman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 Hi , I live in London. The only raw milk product I've been able to get so far is cheese but a really great selection. still working on milk and yoghurt. The big supermarkets carry things like organic Roquefort made from unpasteurised ewes' milk, some unpasteurised Brie, Emmental etc. there are other specialised organic supermarkets and shops here. Some of them do mail order. You, and other interested Brits, can e-mail me off list for more details. Check out http://www.cnwc-goats.co.uk/ . they're in Wales and do mail order. they sell unpasteurised goats milk etc. also check http://www.graigfarm.co.uk/Default.htm. Dedy ----- Original Message ----- From: " " <mystical1972@...> < > Sent: Friday, June 07, 2002 6:11 PM Subject: intro... > Hello, > > I've been semi-lurking for a while now and thought I'd introduce myself. I > have *finally* managed to get hold of 'Nourishing Traditions' after getting > by just from westonaprice.com and I am absoultely dumbfounded. I cannot > believe the nutritional importance contained there in. I already feel like > an evangelist that no-one will listen to ;-) My family and friends must be > sick to death, because it is all I have talked about since buying the book > less than 2 weeks ago! I feel like my eyes have been opened (and I'm only > up to sauces!). > > We are (30), Jonny(almost 30), Astrid(4) and Madeline(14months). My > interest in nutrition was awakened as a result of Astrid's illness. She has > seizures that are intractable to medication and developmental delays and in > a quest to help her through other means I came across westonaprice (thanks > to <waving>!). I have come accross lots of stuff about giving > enzymes etc. but now I see how to get them from food. I have suspected that > she was casien intolerant too and after an elimination diet her seizures > certainly improved but I really do not want to keep her off dairy so I'm > learning about culturing. I'm having real trouble locating raw milk here in > England - if there are any brits here could you please give me a shout? > > A quick question about sourdough. Is it still necessary to soak the flour > or does the starter remove all the phytates? > > Thanks, it's great to be here. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2002 Report Share Posted June 8, 2002 Hi Roman We have considered the diet and are in talks with dd's neurologist about it ;-) At 21:42 6/7/2002, you wrote: > wrote: > > > She has > > seizures that are intractable to medication and developmental delays and in > > a quest to help her through other means I came across westonaprice (thanks > > to <waving>!). I have come accross lots of stuff about giving > > enzymes etc. but now I see how to get them from food. I have suspected that > > she was casien intolerant too and after an elimination diet her seizures > > certainly improved but I really do not want to keep her off dairy so I'm > > learning about culturing. > >I've read that ketogenic diets have been used for epilepsy with good results. >Maybe it would work for child's seizures too? > >Roman > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2005 Report Share Posted March 29, 2005 > When she asked why he did not like purple, he said something like > this, " Well, let me tell you a story. A story. It begins two years > ago. I liked purple and pink. Then yellow came. Then red, green, > and six months ago brown took over. Two percent of my brain is with > purple. Most of my brain is with brown. " She said based on that > kind of speech that he might have signs of schizophrenia. **I am thinking more that he has the signs of AS. Sounds like what my son would say. Basically, stilted thoughts, and half conversations, assuming that you are in his head and knows what you are thinking. Have you heard this? It is a boy who has AS. How does your son talk? http://www.pediatricneurology.com/aspergers_sound.htm Does this profressional have experience with autism? It seems to me what you are describing is VERY common. Tina livin' in Alphabet Soup with: , 6, AS/HFA , anxiety Jordan 10, GAD, BP, OCD Jasmine as NT as it gets, for now dw to Jon- AS but fixated on computers= $$ " The three most important voices: the voice of your heart, the voice of your gut and the voice of your child. " -Heidi Lissauer -adult with autism who has autistic children, as well Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Tina, When my son was given his formal diagnosis they wrote that they felt should get become more verbal they believed he would be rediagnosed as an Aspi. I have since read that Aspi kids do not have a language delay, which my son had. I dunno. Those kids at the site you provided DO sound like Ethan. When Ethan is left alone, he for the most part is not 'disorganized'. He gets funny when people ask him emotional questions or why questions. Thanks, > > **I am thinking more that he has the signs of AS. Sounds like what my > son would say. Basically, stilted thoughts, and half conversations, > assuming that you are in his head and knows what you are thinking. > Have you heard this? It is a boy who has AS. How does your son talk? > > http://www.pediatricneurology.com/aspergers_sound.htm > > Does this profressional have experience with autism? It seems to me > what you are describing is VERY common. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Thanks so much, Roxanna! I WILL stick around, and as far as the therapist, I think I'll give her the boot. My DH is pursuing ST through our insurance. I am not betting they cover this, though. > Whether you put him in public school or not - that is your choice. But I don't think you are putting him in a bubble except that he does sound like he needs to continue with ST and more structured play times. If your school has a good program, then you could go visit it and see what you think. One thing we are putting together here is a summer social skill group run by a ST. These kinds of things are probably more helpful in improving social skills, IMO. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Yeah, Ethan seemed to skip from trains to the calendar to Rescue Heroes, to Harry Potter, to chess, and now to sports (9 months and counting). The good news with this latter one is that he is learning how to compute simple averages right now. And I can save up all his pretend games where he keeps score and then tallies it all up (homeschooling). >Sasha has always fixated on bugs, especially on spiders. Now, joy of > joy, he fixates on people -- although with meds, thankfully not as > intensively as he did before. I though we had a little stalker on our > hands! Eeee! Now he is fixated on Harry Potter and the Incredibles. For a > while there, and this was pretty creepy, he was fixated on vampires and > into this metamorphosis thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Hi (bird It was very helpful reading how Ethan's future might progress. We have gotten so little feedback in that arena. We also have people who overlook him as slow. My second son was reading and writing at 3 and 4 letter words at age 2.5. My second kid is also the drama person so MUST have all attention on himself. If anybody pays attention to my first, then he will butt in until he draws it upon himself. Did you have to do any meds? He is on a special diet and has been since he was three years old, but that is our only current intervention. LJL > Hi , > > Welcome! I wanted to reply because my son had the speech problem your son > is having. When he was 6 his speech was much like your speaking of. He is > now 10, and he is homeschooled also. The color story you described sounds > much like an AS story to me. My child would say something like that. Also, > when my son gets excited or anxious he stutters. This happens alot when > he's trying to tell you something, or when he meets new people. It's almost > like his brain is going faster than his mouth wants to keep up with. An > unfortunate side effect for him is that people think he's " slow " because he > stutters, but he's actually very bright. > > I have found that my child has grown out of a lot of this behavior that > you're describing. I remember the time frame of 2-8 years for him being the > most difficult. My son used to be obsessive about the color red. > Everything had to be red. Red is still his favorite color, but the > obsession with it waned as new obsessions (cars, Harry Potter, etc) came > into play. The scenario you have described sounds alot like Asperger > Syndrome to me. Not all AS children fall into the classic " symptoms " that > some doctors still use to diagnose with. Don't hesitate to get a 2nd > opinion. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Thank you! > , he sounds like a normal autistic child to me. What > you describe is similar to other accounts I've read about > austistic children (and adults.) I think you would get more > useful help for him from a good speech therpaist than from > that psycholigist, frankly! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 There are good days and bad days. I know his capabilities, so I don't let him get away with the kind of manipulation he can pull with others. An example being time. He knows the clock. If anybody asks him questions, though, he feigns ignorance then pounds his head on the table as if he 'should have known the right answer'. Yet, he can sit there and tell you in one hour and 17 minutes Cyberchase is on.... > , after the day I had today, I envy you the success you are having > with your sons learning at home. Man, I'm not so sure about this school > stuff. It's really tough, and my boy is having a very hard time socially > right now. His friends are dropping like flies. Homeschooling is looking > pretty good to me right now. I have noticed that the kids my son went 1/2 of the way through Kindergarten with are lightyears ahead of him. They seem so much more worldly and into things that are 'older'. Sometimes I'd like to find some gentle kids for him to play with. >I'd say the most effective med, the one that straightens > his speech out the most, is Risperdal, which is an antipsychotic > medication. Has your son's doctor mentioned anything about wanting to try > your son on a med and see what happens? She did not. I am not adverse to it, but my husband is very much against it. In the end, I usually win all medical decisions because I have more time to research it than he does. And as long as I can spout things out of my mouth that are above his head, he tends to go along with it, LOL. (LJL) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 It must be something that is going on with him. He wrote on his magnadoodle two days ago that purple and yellow equal zero (or something like that). Why on Earth two colors equal zero is beyond me. > There is also something called synesthesia (sp?) where some people hear > color or see sound as color flashes. I don't know much about it but have > seen it referred to in a couple of articles read many years ago. > > Kathy J. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 On Mar 29, 2005, at 6:09 PM, LJL wrote: > I have since read that Aspi kids do not have a language > delay, which my son had. I dunno. > > Those kids at the site you provided DO sound like Ethan. When Ethan is > left alone, he for the most part is not 'disorganized'. He gets funny > when people ask him emotional questions or why questions. > > Thanks, > > **, what kind of delay did he have? My son didn't really start speaking until past 2, and he is diagnosed as HFA...high fuctioning autism. There are mixed reviews on that, some think it is the same as Asperger's, while others insist they are different. Personally, I don't care, my son does act like other AS kids that I know, that is where he fits. Tony Attwood has said that the difference between AS and HFA is how they are spelled. But not everyone believes that. Still, HFA is very close to AS and much of what you do to treat would be the same. I personally don't see enough differences to really warrant the different terms, but some do. HFA is still in its infancy at this point, the entire diagnoses isn't fleshed out. Our therapist even told us that it was subjective. Another therapist might diagnose AS, instead. What is High Functioning Autism and Asperger's Syndrome? http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=255 & a=3337 Treating Children with high functioning autism http://ctct.essortment.com/highfunctioning_repx.htm Oh, and gets goofy if you ask him about feelings, or emotional things. He will tell you he just doesn't want to talk about it, or you are giving him a headache, or it's just too hard to think about. If you continue, he gets disorganized. Tina livin' in Alphabet Soup with: , 6, AS/HFA , anxiety Jordan 10, GAD, BP, OCD Jasmine as NT as it gets, for now dw to Jon- AS but fixated on computers= $$ " The three most important voices: the voice of your heart, the voice of your gut and the voice of your child. " -Heidi Lissauer -adult with autism who has autistic children, as well Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 On Mar 29, 2005, at 6:31 PM, LJL wrote: > It must be something that is going on with him. He wrote on his > magnadoodle two days ago that purple and yellow equal zero (or > something like that). Why on Earth two colors equal zero is beyond me. > > > **Because that's how he sees it. Ask him if he sees numbers in color. Then, read about synesthesia. Fascinating. My dh does this, somewhat. Fascinating. It does say that most who have it are neurologically normal, but my dh has Asperger's and is still affected by it. http://faculty.washington.edu/chudler/syne.html Tina livin' in Alphabet Soup with: , 6, AS/HFA , anxiety Jordan 10, GAD, BP, OCD Jasmine as NT as it gets, for now dw to Jon- AS but fixated on computers= $$ " The three most important voices: the voice of your heart, the voice of your gut and the voice of your child. " -Heidi Lissauer -adult with autism who has autistic children, as well Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 I would agree with this assessment. My son is similar to other autistic children we meet, except he has bipolar symptoms, IMO. The only difference that I can see between him and kids with HFA is that he didn't have a language delay as a toddler. Now that he is seven, I don't see a difference, except for personality and interests. T. At 09:29 AM 3/30/2005 -0800, you wrote: >On Mar 29, 2005, at 6:09 PM, LJL wrote: > > > I have since read that Aspi kids do not have a language > > delay, which my son had. I dunno. > > > > Those kids at the site you provided DO sound like Ethan. When Ethan is > > left alone, he for the most part is not 'disorganized'. He gets funny > > when people ask him emotional questions or why questions. > > > > Thanks, > > > > > >**, what kind of delay did he have? My son didn't really start >speaking until past 2, and he is diagnosed as HFA...high fuctioning >autism. There are mixed reviews on that, some think it is the same as >Asperger's, while others insist they are different. Personally, I >don't care, my son does act like other AS kids that I know, that is >where he fits. Tony Attwood has said that the difference between AS >and HFA is how they are spelled. But not everyone believes that. >Still, HFA is very close to AS and much of what you do to treat would >be the same. I personally don't see enough differences to really >warrant the different terms, but some do. HFA is still in its infancy >at this point, the entire diagnoses isn't fleshed out. Our therapist >even told us that it was subjective. Another therapist might diagnose >AS, instead. > >What is High Functioning Autism and Asperger's Syndrome? >http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=255 & a=3337 > >Treating Children with high functioning autism >http://ctct.essortment.com/highfunctioning_repx.htm > >Oh, and gets goofy if you ask him about feelings, or emotional >things. He will tell you he just doesn't want to talk about it, or you >are giving him a headache, or it's just too hard to think about. If >you continue, he gets disorganized. > > > >Tina >livin' in Alphabet Soup with: >, 6, AS/HFA , anxiety >Jordan 10, GAD, BP, OCD >Jasmine as NT as it gets, for now >dw to Jon- AS but fixated on computers= $$ > > " The three most important voices: the voice of your heart, the voice of >your gut and the voice of your child. " -Heidi Lissauer -adult with >autism who has autistic children, as well > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Okay, I have to be honest. This subject fascinates me, because when I was a kid I also saw numbers as colors. I'm serious about this. One was white Two was yellow Three was green Four was blue Five was red Seven was purple Nine was brown Ten was black I thought this was so bizarre myself that I didn't tell anyone about it. But, yes, I could literally see the numbers as colors. And I have always had a natural aptitude for math and science, except that I much prefer to write and create things with my hands. I have some spectrumy behaviors and married a guy who is a good candidate for mild AS. Weird, huh? I can't explain this. I have not noticed this with Sasha, who has many other quirks. T. At 09:34 AM 3/30/2005 -0800, you wrote: >On Mar 29, 2005, at 6:31 PM, LJL wrote: > > > It must be something that is going on with him. He wrote on his > > magnadoodle two days ago that purple and yellow equal zero (or > > something like that). Why on Earth two colors equal zero is beyond me. > > > > > > > >**Because that's how he sees it. Ask him if he sees numbers in color. > Then, read about synesthesia. Fascinating. My dh does this, >somewhat. Fascinating. It does say that most who have it are >neurologically normal, but my dh has Asperger's and is still affected >by it. > >http://faculty.washington.edu/chudler/syne.html > > > >Tina >livin' in Alphabet Soup with: >, 6, AS/HFA , anxiety >Jordan 10, GAD, BP, OCD >Jasmine as NT as it gets, for now >dw to Jon- AS but fixated on computers= $$ > > " The three most important voices: the voice of your heart, the voice of >your gut and the voice of your child. " -Heidi Lissauer -adult with >autism who has autistic children, as well > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2005 Report Share Posted March 31, 2005 Ethan said 'Mama' for the first time around his second birthday (had maybe 5 words other than that which were the beginning syllables to words like 'wa' for water. He had been in ST at home (once a week for an hour) since 21 mos when he said 'Mama'. When he was three and a half and entered preschool he had 3-5 word sentences - typical of autism with reversal of pronouns and no understanding of gender. He developed the last of his letter sounds at five ('s' and 'f') and also accomplished gender pronouns at the same time. I know there is a fierce debate about HFA and AS. I met a mom who told me her son was HFA, and he was not even talking yet at age 4 so I felt like I was not in the right 'group'. > > > I have since read that Aspi kids do not have a language > > delay, which my son had. I dunno. > > > > Those kids at the site you provided DO sound like Ethan. When Ethan is > > left alone, he for the most part is not 'disorganized'. He gets funny > > when people ask him emotional questions or why questions. > > > > Thanks, > > > > > > **, what kind of delay did he have? My son didn't really start > speaking until past 2, and he is diagnosed as HFA...high fuctioning > autism. There are mixed reviews on that, some think it is the same as > Asperger's, while others insist they are different. Personally, I > don't care, my son does act like other AS kids that I know, that is > where he fits. Tony Attwood has said that the difference between AS > and HFA is how they are spelled. But not everyone believes that. > Still, HFA is very close to AS and much of what you do to treat would > be the same. I personally don't see enough differences to really > warrant the different terms, but some do. HFA is still in its infancy > at this point, the entire diagnoses isn't fleshed out. Our therapist > even told us that it was subjective. Another therapist might diagnose > AS, instead. > > What is High Functioning Autism and Asperger's Syndrome? > http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=255 & a=3337 > > Treating Children with high functioning autism > http://ctct.essortment.com/highfunctioning_repx.htm > > Oh, and gets goofy if you ask him about feelings, or emotional > things. He will tell you he just doesn't want to talk about it, or you > are giving him a headache, or it's just too hard to think about. If > you continue, he gets disorganized. > > > > Tina > livin' in Alphabet Soup with: > , 6, AS/HFA , anxiety > Jordan 10, GAD, BP, OCD > Jasmine as NT as it gets, for now > dw to Jon- AS but fixated on computers= $$ > > " The three most important voices: the voice of your heart, the voice of > your gut and the voice of your child. " -Heidi Lissauer -adult with > autism who has autistic children, as well > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2005 Report Share Posted April 1, 2005 Hi . I have two boys on the autism spectrum. They both went through laundry lists of " interests " . Now at 14 and 8, they are both mainly interested in sports. Just wanted to say HI! Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2005 Report Share Posted April 1, 2005 Fascinating! Thanks for the link. I don't see colors outside my body. It's interesting that both my sister and I have a propensity to think of numbers as colors, so the genetics are interesting. Wonder if my father and/or mother does this. I will have to ask them. My brother and I have a lot of interesting little quirks in common with one another. We are both writers. Our father is a physicist, also very creative, with his own unique way of seeing things. Curiously, my sister and I have the same phobia. Can't explain that one. Despite very little fear when we were little, about the time we each turned ten, we developed a pathological fear of opening our eyes under water. This makes looking at the pretty fishes fairly challenging (scuba gear), as I may start hyperventilating. I try to ignore it and just be as normal as possible, but the physical responses can be crippling. I'm not at all afraid of heights, but for some reason, the idea of staring into a vast underwater space gives me the heebie jeebies. Ah, the mysteries of the brain ... T. At 09:34 AM 3/30/2005 -0800, you wrote: >On Mar 29, 2005, at 6:31 PM, LJL wrote: > > > It must be something that is going on with him. He wrote on his > > magnadoodle two days ago that purple and yellow equal zero (or > > something like that). Why on Earth two colors equal zero is beyond me. > > > > > > > >**Because that's how he sees it. Ask him if he sees numbers in color. > Then, read about synesthesia. Fascinating. My dh does this, >somewhat. Fascinating. It does say that most who have it are >neurologically normal, but my dh has Asperger's and is still affected >by it. > >http://faculty.washington.edu/chudler/syne.html > > > >Tina >livin' in Alphabet Soup with: >, 6, AS/HFA , anxiety >Jordan 10, GAD, BP, OCD >Jasmine as NT as it gets, for now >dw to Jon- AS but fixated on computers= $$ > > " The three most important voices: the voice of your heart, the voice of >your gut and the voice of your child. " -Heidi Lissauer -adult with >autism who has autistic children, as well Quote Link to comment Share on other sites More sharing options...
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