Catching Up

[Guest guest]

Hi ,

You say you've tried antihistamines for itching? Have you tried

diphenhydramine?

I used to have a terrible, terrible problem with itching. My wife couldn't

sleep at night because of my scratching all night. I tried all sorts of

things, endlessly, with no results. Went on for months and months with little

sleep and much physical torment.

When I started taking the diphenhydramine, the itchiness improved greatly. I

take a cool shower every morning, don't dry off too much, and then put

non-fragrant lotion on my body. The itching is hell. I'm so glad to be better

in that regard and hope you find relief. I know what you're going through.

Your friend,

Gene

[Guest guest]

Hi ,

You say you've tried antihistamines for itching? Have you tried

diphenhydramine?

I used to have a terrible, terrible problem with itching. My wife couldn't

sleep at night because of my scratching all night. I tried all sorts of

things, endlessly, with no results. Went on for months and months with little

sleep and much physical torment.

When I started taking the diphenhydramine, the itchiness improved greatly. I

take a cool shower every morning, don't dry off too much, and then put

non-fragrant lotion on my body. The itching is hell. I'm so glad to be better

in that regard and hope you find relief. I know what you're going through.

Your friend,

Gene

[Guest guest]

Hi ,

You say you've tried antihistamines for itching? Have you tried

diphenhydramine?

I used to have a terrible, terrible problem with itching. My wife couldn't

sleep at night because of my scratching all night. I tried all sorts of

things, endlessly, with no results. Went on for months and months with little

sleep and much physical torment.

When I started taking the diphenhydramine, the itchiness improved greatly. I

take a cool shower every morning, don't dry off too much, and then put

non-fragrant lotion on my body. The itching is hell. I'm so glad to be better

in that regard and hope you find relief. I know what you're going through.

Your friend,

Gene

[Guest guest]

Hi ,

You say you've tried antihistamines for itching? Have you tried

diphenhydramine?

I used to have a terrible, terrible problem with itching. My wife couldn't

sleep at night because of my scratching all night. I tried all sorts of

things, endlessly, with no results. Went on for months and months with little

sleep and much physical torment.

When I started taking the diphenhydramine, the itchiness improved greatly. I

take a cool shower every morning, don't dry off too much, and then put

non-fragrant lotion on my body. The itching is hell. I'm so glad to be better

in that regard and hope you find relief. I know what you're going through.

Your friend,

Gene

[Guest guest]

, I have had a rash for months I am on treatment (7 months) the

itching drove me crazy. I started using bath oil oat meal soap nothing

with perfume or smell good stuff in it that has worked for me. I still

have a rash but it doesn't itch. Take Care Jessie

EZ-DOES IT

[Guest guest]

, I have had a rash for months I am on treatment (7 months) the

itching drove me crazy. I started using bath oil oat meal soap nothing

with perfume or smell good stuff in it that has worked for me. I still

have a rash but it doesn't itch. Take Care Jessie

EZ-DOES IT

[Guest guest]

, I have had a rash for months I am on treatment (7 months) the

itching drove me crazy. I started using bath oil oat meal soap nothing

with perfume or smell good stuff in it that has worked for me. I still

have a rash but it doesn't itch. Take Care Jessie

EZ-DOES IT

[Guest guest]

, I have had a rash for months I am on treatment (7 months) the

itching drove me crazy. I started using bath oil oat meal soap nothing

with perfume or smell good stuff in it that has worked for me. I still

have a rash but it doesn't itch. Take Care Jessie

EZ-DOES IT

[Guest guest]

Anne....I like when you send pics....I love pics...I

have thousands....my family freaks out on how many I have...i always have

my camera ready...gotta catch all those Kodac moments!! I love web sites

with pic too...how many here have their own web sites?

My friends

pounded it into my head, as to how to use my scanner, not very long ago.

But if you asked them about it lately, they would tell you they created

a monster, because I love to scan things in to show people!!

It actually

worked out pretty good recently because I sent my original oxygen bag back

to the company I bought it from, because it broke at the beginning of April

2000 (ripped and NOT repairable) I sent it back on June 22, 2000 --had

a huge ear infection for 14 weeks, so life and that bag were the least

of my concerns for quite awhile! The company said they never received

it, but I had the receipts and the confirmation number that told me it

arrived 2 days later.

If I

hadn't had my scanner, I would never have seen my oxygen bag again... (the

bag cost me $177.00 with tax, and shipping/handling charges in September

1998... same bag we carried on the ambulances, so it should have lasted

MORE than 18 months! Especially at that price!!!

But because

I could prove that I sent it back, they found it. And I got my brand

new bag by UPS yesterday.... it has a lifetime guarantee with the manufacturer.

Now I have 2 oxygen bags! Cool huh!

it's hard to juggle everything and still give lots

of time to my youngest who has spina bifida...she'll be 3 sept 23rd...time

sure flies...My oldest starts high school next month.

What do

the doctors tell you about Spina Bifida? One of my best friends...

Mike had spina bifida... he was 26 yrs. 10 months old exactly when he died.

His parents were told over and over that I would not make it through the

night, to 6 mos., to 5 yrs old, etc., etc. Mike actually died of

Myocarditis (major bacterial infection in the actual heart muscle).. it

was actually a MAJOR malpractice incident. He didn't tell me

about ALL the symptoms he was having, because I would have gone to Florida

and dragged to the ER if he had!!! I talk to him 3 days before he

died. He had called to find out about dehydration due to illness.

The next day I guess he started having severe pain in his left arm, shoulder,

etc.... those red flag symptoms

of it being cardiac. He did go to the doctor and was told that they

thought he had cancer... did blood tests, gave him pain pills and told

him to come back for the results the following Monday (he was seen in the

clinic on Friday.) He died Saturday evening. I got the phone

call, I got to tell his parents, and brothers. I used to tease Mike

that my birthday was on every phone in America, yet no one ever could remember

it. He made it memorable that year, he was buried in Eau (where

I had just moved to) on my 27th birthday!

Do they

still say that Spina Bifida kids won't live to a certain age? My

understanding is that Mike was one of the oldest surviving spina bifida

patients.

I miss

him lots, but you probably figured that out by now. When I got in

engaged, Mike said that he had to approve the guy before I could accept

the ring, or say YES! Then when my engagement was called off....

he jumped for joy. His whole family knew of me as "the girl Mike

was going to marry!"

Sorry,

didn't mean to go all mushy on you!

Love

Always,

Anne

I have

a picture of Mike and I, but I just spent the last hour looking for it,

but can't.... it is really bugging me now. Guess this means I should

clean my house huh?

[Guest guest]

Hi Sheena,

<<Ling...*hugs* to you mum...hope she's keeping up her spirits...now what will they do?>>

Thanks! She is still quite cheerful, but needs to take painkillers for the pain in her leg. Will see the doc next Tue. Will keep you updated!

Hugs, Ling

[Guest guest]

Anne...

Do

they still say that Spina Bifida kids won't live to a certain age?

My understanding is that Mike was one of the oldest surviving spina bifida

patients.

Re;Tessa....she's fine...she just can't walk...other than that she's

great...very smart, no shunt, no meds , strong immunity.....some things

can change with regards to her lesion, arnold chiari malformation (brain

stem is pulled into the spinal area a bit),....we dont worry about things

like that until they actually happen...years ago children used to die younger

because they didnt always close the opening in the back (which can vary

greatly with each child)...when I get time to put it on my site...I scanned

a pic of her back ...you can see it.....

anyhow...kids with sb died usually from complication associated with infection

and hydrocephalus.....my lil angel was lucky and didnt have to get shunted

she was close to it....but made it through....swelling went down...some

die from side effects of medications which affect the heart, kidneys etc..that

still can happen ...but it can happen to anyone else as well.

she has above average intelligence i'm sure...my oldest daughter says

she has 3 languages...her grown up talk, her humorous talk (she keeps us

rolling laughing all the time) and her baby talk....she is a treasure...her

name spelled backwards is asset ...which she is my best asset!

ttfn Sheena;)

p.s. send mikes pic when u find it!

[Guest guest]

Sheena

Thanks for the welcome. No my I/M name toys2poo is not related to the discussion here. I have 2 toy poodles.

Marsha, Buddi (with a heart over the i) & McgiverI/M # toys2pooICQ# 41368971

[Guest guest]

Sheena

Thanks for the welcome. No my I/M name toys2poo is not related to the discussion here. I have 2 toy poodles.

Marsha, Buddi (with a heart over the i) & McgiverI/M # toys2pooICQ# 41368971

[Guest guest]

Hi Group,

I haven't been on in a while......trip away with just my mom and sisters (my

mom decided for her birthday she wanted to take herself and her daughters in

a trip, who are we to argue!).....Happy New Year to those of you who

celebrate. Also:

--Happy Birthday to and , hope it was filled with fun!

--To Diane and , hope you are feeling well and drinking your fluids!

--Good luck Kelli, I hope everything works out for you, sounds like you are

doing all you can to make it right for you and your kids, whatever the

outcome.

--Re. why women cry, I don't agree that it is a weakness. I think it's a

strength to be able to show, share and let emotions go. I tell my husband

that sometimes he looks like he could use a good cry. Maybe he wouldn't need

so many trips to the chiropractor if he let it all go with tears rather than

leaving it to tense up in his back!

--Also, Sheryl, does it get easier as they get older? I think it gets

different. It's easier when they can start feeding themselves, and can get

around, but it gets harder because you have to keep an eye out in a different

way. When the kids get more verbal and can ask questions, it's easier

because they can talk about stuff rather than cry but harder because you have

to answer the questions. So it's all different. I agree with (oops, I

forgot who, sorry), whomever said that when some of the kids could walk and

one couldn't it was hard, still shlepping a stroller, etc. (In my case, Eli

didn't walk full time until he was well beyond 3 years old and he weighed 40

pounds or so! Wanna feel my muscles?!)

Anyway, like I said, it gets different. And every stage has good stuff

combined with challenges -- for the typical kids in the mix, and the kids

with differences.

For our group, Eli is doing very well. He has been horseback riding every

Friday with Pegasus Therapeutic Riding, and it's wonderful - for both of us!

My other kids are doing well too. I just started working part time, as if I

had nothing better to do! So life is hectic. Hope you are all enjoying the

fall. Uh oh, gotta start thinking about Halloween. I remember my first

Halloween after the twins were born, they were about 5 weeks old, I went as a

zombie -- no costume or make-up needed!!

Love Debbi, mom to Logan (6) Eli (DS) and Milo (just turned 4)

[Guest guest]

Hi Granny and everyone..thought I'd write a catch up note of my own...Granny

you made me laugh with your " sitting around sulking " comment...isn't it the

truth that some weeks are like that. Congratulations with setting limits

with brother. I'm sorry that he disappointed I am glad you said

he needed to stay elsewhere. My Miss Meghan is 4.4 now and totally into

herself...she's potty trained pretty much and tries to copy everything her

6y.o. (nda) sister does....she's vocalizing alot...some words are clear and

she resorts to sign if we are truly being dense and either not getting or

saying no to what she wants. My current dilemna is...she goes to special ed

preschool half day...actually the class she's in is for speech

delayed......and I just don't think she's getting enough stimulation in terms

of pre-K learning......I have to meet with her teacher when she goes back

and am considering some sort of change..as in maybe just putting her into a

regular pre-school setting part-time.....not such a bad dilemna, just what is

occupying me at this time! Happy New Year to Everyone! I enjoy your

stories...

[Guest guest]

>........In addition to the traditional black-eyed peas with hog jowls, and

> cabbage, we had

> duck à la'orange, rice dressing, giblet gravy and blackberry cobbler. We

had

> a lovely party just the three of us.

>

> Happy New Year!

>

> granny

> ---

> " For unto us a child is born, unto us a son is given:

> and the government shall be upon his shoulder:

> and his name shall be called Wonderful, Counselor,

> The mighty God, The everlasting Father,

> The Prince of Peace. " -- The Prophet Isaiah

> http://home.earthlink.net/~bspyle

Now your dinner sounds wonderful! We went out with some friends for dinner

last night and the chef at this particular place (which they tell me is the

second best restaurant in FL but I have my own opinion lol) he feels

EVERYTHING needs some kind of sauce. LOL oh well we did have a great time. I

think this was the first time we have gone out with grown-ups in ages.

So sorry to hear about brother some people never grasp the concept of

being considerate.

Don't feel too bad about your fridge I have been there :-) we used a bungee

cord to keep the door shut lol also came at a time when was opening

the fridge and removing all condiments to the floor lol and not just the

containers they were THE contents of the jars.

I think he saw it as finger painting on the floor lol

Anyway I do hope things start looking up for you and the year 2001 is a

great year!

Tina Berger

[Guest guest]

In a message dated 1/1/2001 12:32:38 PM Eastern Standard Time,

tberger@... writes:

<<

Don't feel too bad about your fridge I have been there :-) we used a bungee

cord to keep the door shut lol also came at a time when was opening

the fridge and removing all condiments to the floor lol and not just the

containers they were THE contents of the jars.

I think he saw it as finger painting on the floor lol

>>

OMG....at what age did outgrow this? We have to push the freezer door

up to get it to close. The seal is not that great right now for the

refrigerator compartment. I'm worried about my new refrigerator (will come

with new house)..I spent mega bucks to get the stainless steel one. I wish

they all came with factory made locks. doesn't take stuff out like

he use to..he likes to see the light reflections when he opens and shuts and

opens and shuts the door..LOL!!! I also have a brand new refrigerator in

storage (bought a few years ago)..I'm tempted to use that until gets

out of that stage. Geesh granny..if you lived here, you could borrow the one

I have in storage.

ps Shame on brother..glad he handled it well.

[Guest guest]

Janet and Steve,

Trey is going through a rough time. Not all kids with ds are as

fortunate as your neice and my son at birth. But I will tell you one thing I

noticed, these babies with DS are tough little cookies. The kids seem to

bounce back quickly after heart surgery, too. Trey and his parents have a

few rough months in front of them...then life will get easier. The medical

problems are not indicative of functioning level, either. I see older kids

with DS who faced similiar problems when they were babies..you should see

these kids now!!

Somehow, I think I missed your first post here. Welcome to the

Upsndowns group...I look forward to hearing more about Trey in the future

Upsndowns Owner

Honorary Cyber Godmother to many!!

[Guest guest]

Hey Sheena babe,

This is what I'm doing! ROTFL!!!

How are you? How did your little one go with the wheel chair?

Update us when you get a moment hon.

*gentle hugs*

Aisha - Super Spamer!!

[Guest guest]

In a message dated 8/3/01 11:15:23 PM Central Daylight Time, healthyu2000@... writes:

MRI'S>.....that is awful...no wonder i'm paranoid about them and for

good reason now..Tessa had one...i was so stressed about it...it was

supposed to be a 4 hr ordeal..turned out to be over 8 ..it took 3 hours

to sedate her ..and even at that she wasnt quite out

Sheena, that is so sad that it took that long! I am so sorry..... You hang in there young lady. Please give Tessa my love. I should introduce Tessa to my niece , you know the one that was downhill sking...

Chelle

[Guest guest]

Oh Goody!!! I like Pics!!! I'm so glad she is having fun with her new braces!!! How long will you have to wait for the new walker??? How old is Tessa??? I don't remember (

Glad you had fun shopping!!! Or rather the children did!!!

Dog chocolates. yuck!!! I'd read labels too!!! )

That's a shame it took so long to do her's!!! Thats un called for (

We have a Friend that had to go to the hospital to have an MRI done! He's a Big fellow! and when he seen the tube he said, no way was he going to fit in there!!! They assured him that he would and continued...Again our friend said There is no way he would fit in there!!! But they continued!!! Sure enough, He got wedged in there Four broken ribs, torn muscles and dislocated shoulder and a very hard time breathing and it took them two hours to get him out. !!! That was a nightmare also!!!

Nery's is ill with broncitis and something else ( Hopefully she is resting... Hope she does check in soon!!! She was in bad shape (

{{{ Glad Your Back Hugs }}}

Helen

Helen...Re:away< How does she like her new brace??? How was the shopping trip???Mothers never get away on their own!!! You know that ){{{ Safe TripHugs }}}>.....Toronto was greaty...tessa loves her brace..i'll post picssoon as i develop some..she was very happy to play at her play kitchentoday ...after over 4 months of not being able to stand at it toplay....we celebrated with smarties*smile*...she's picking up how towork the rgo brace well..she needs a front facing walker...we just havea rear one for now...hopefully tues..i can arrange the proper one....weare now anxiously awaiting her wheelchair....due any time!!!...thenit'll be safety rule time...because i know she's going to takeoff....FREEDOM!!!Shopping..I bought some chocolate covered coffeee beans...mmmmmmm....ourkids were the power shoppers...buying school clothes, etc...Anne...<Sheena TRue true true from a chocolate addict know to have eatentwo 13ozHershey Kisses pkgs in a week!>

......yummy were they cold? i love coldchocolate....lol...a memory flash..one time as a young teenager i wasbabysitting at a house that always had chocolate in the fridge..so ofcourse i always tested the brands out.....one time i didnt read thelabel and just started eating some chocy..it was alil weird so i readthe label.....argh.....ewwwww ....it was dog chocy for theirdog...needless to say ..i read labels well now!!lolMRI'S>.....that is awful...no wonder i'm paranoid about them and forgood reason now..Tessa had one...i was so stressed about it...it wassupposed to be a 4 hr ordeal..turned out to be over 8 ..it took 3 hoursto sedate her ..and even at that she wasnt quite outNerys...are you still here girl?ttfn....more to come....Sheena:)

Þ

Always put yourself in others' shoes. If you feel that it hurts you, it probably hurts the other person, too.

[Guest guest]

You are one Busy lady!!! Yes, it will be great to see them more often!!! Their lawyer said they were doing very bad in this situation and needed more contact with us, so she ordered it and the judge agreed ) The baby crys and screams constantly and it has been six weeks already...The other two cry behind closed doors as they are told they are not to cry ( They are so confused ( And i'm not allowed to tell them anything, but he does, his version of everything and he has the court and lawyers mad about that...

My Dad had a pink and gray one, it was beautiful!!! That would have been hard to sell for me !

My neck is getting the worse. At times I can barely turn my head and hold it up. It helps at times if I use my hand to help turn and hold up the weight of my head. The pain is getting much worse ( But I will continue on ) I have three babies depending on me and one lovely Husband, so I have too!!!

Hope your conference goes ok...You better take a little time for you too!!! Keep in touch as best as ya can, even if to say, I'm still here!!! Take Care...

{{{ Many Special Hugs }}}

Helen

Helen...that is great they added more time and phone calls with the girls .....it's slow process....play their (lawyers) game and before long you'll have them back!!! Happy Anniversary...belated....Sorry that, I haven't been online much . We have a big event coming up....We havea Doctor from SANOVIV coming to do health presentations on toxic vs nontoxic therapies, combining conventional and alternative therapies,understanding the whole physiological aspects of whole bodywellness,etc....So between my daughter getting settled into school,having 2 birthday parties for her, ....promoting this event, doing myhealth consultations and running my household......my computer time hasbeen limited. I may have to go on read only with this list for a bit.The fall is the best time for my business therefore, I have to be goodat organizing my time right now.Helen...you mentioned wishing you had a 57 chevy a couple weeks ago...Ihad one for about 10 years ...I just sold it 2 summers ago...I loved itbut since Tessa requires a seat belt...it doesnt have any ...I soldit...we mainly just used it to go for sunday ice cream drives....withthe kids....I put it in a couple shows..it was fun!!! Mine was turquoiseand white....4 door.On the arthritis question...Ling answered it fine....apparently thereare many forms of arthritis...this one person that I know says she has over 15 forms of arthritis...Degenerative....means it will get worse as time goes on unless you are able to counter the damage....and slow it down.

5

[Guest guest]

Hi Sheena,

> Ling...great info on diabetes! Medscape is a good

> resource for info.They

> are up with all the latest research. How are you?

> How's school going?

> Have you ever tried reiki? they do not touch

> you...maybe that might work

> for you...I did it once found it interesting....it

> helped me a bit for

> pain..the lady thought it would help for a few

> months....but my life was

> pretty stressful then..it lasted 3-4 weeks...then I

> went back to my

> chiropractor...I try to get massages as often as

> possible they really

> help me.

School's fine, enjoying myself teaching the children!

What's reiki, by the way?

> ttfn..a friend just called..she had a triple by pass

> surgery (surprise)

> last week..i'm so surprized...shocked...

Sorry to hear about your friend's surgery. Hope she is

feeling better!

Ling

____________________________________________________________

[Guest guest]

Thank you Sheena!

catching up

Welcome !!!

Happy Birthday Jenn! !! Hope you both get your cake and get to

eat it too!!!!

--

Sheena

~~~~ *** ~~~ *** ~~~ *** ~~~~

The Being Sick Community

Memorial Page

http://www.dreamwater.net/lovingmemory/

Message Archives and Digest Attachment Pictures:-

/messages

Chat:-

Scheduled Daily Chats at # on IRC DALnet.

/files/chat.htm

Bookmarks:-

Add a website URL you have found useful.

/links

Personal Complaints or problems:-

Please contact a moderator

email: -owner

Subscription Details:-

1) Individual email - means that every email sent to the list you receive.

2) Daily Digest - sends you 25 messages in one single email for you to

browse. This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into eGroups at your

convenience and receive no email.

To modify your subscription settings please visit:-

/join

To subscribe or unsubscribe please email:-

-subscribe

-unsubscribe

~~~~ *** ~~~ *** ~~~ *** ~~~~

" Hold on to what is good, even if it's a handful of earth. Hold on to what

you believe, even if it's a tree that stands by itself. Hold on to what you

must do even, if it's a long way from here. Hold on to your life, even if

it's easier to let go. " - Pueblo Prayer

~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Hello Everyone,

It's here from Canada. I've finally caught up reading my

e-mails. We've had terrible computer virus problems, but have installed

Norton's latest Anti-virus program & hope that will take care of things.

Yesterday I decided not to send out Christmas cards - It's just too late.

Besides you are the ones I really consider my friends - so many of my actual

friends & family just have no idea what my life is like - you are the ones I

truly realte to.

Marisa - I read your report from getting Brook officially dx'd & I was

amazed to learn about the myoclonic seizures being a major factor in the

autism dx. had myoclonic seizures from age 9 mos. - 2 yrs. She's

been seizure-free since then. We have had a psychologist rule out autism

saying that Steph is just too low-functioning to qualify. We will be seeing

a developmental ped. to get a 2nd opinion & I will be sure to mention the

seizure part of her med. history.

Irma - So sorry to hear about your MIL. We missed you & are glad to have

you back with us.

- Thanks for the lovely offer to send Christmas cards. I didn't

respond as I'm in Canada. I hope everything is O.K. now with JJ & the blood

incident. Many prayers for your son, Chris. I admire you & your family

sooooooo much! What a cook you are!

CK - Thanks for the updates on Ian. I hope you all have a wonderful holiday

together. You are another family I have great admiration for. I'm sorry I

won't get a Christmas postcard out to Ian - maybe during the holidays or in

the New Year.

Leah - I know you have been having difficult personal times recently. I

wish you tons of luck & moral support as you start your new life with your

children.

Now for my news: is going to require hip surgery. We see the

specialist in Jan. I've already e-mailed Terry privately & she's been very

helpful so far. I'll keep everyone posted as things develop. At least it's

not life-threatening as the leukemia was!

I wish everyone a wonderful happy holiday season. May we all concentrate on

the things that really matter - family, friends & lots of love & kindness

for all we come in contact with. I've been struggling with depression

trying to be everything to everyone. It feels good to put my thoughts in

words & now I'll try to live up to them!

Joan - Thanks so much for starting this list & giving me a place to go for

love & support when needed.

Love & {{{{{{{hugs}}}}}}}}} to Everyone,