Catching Up

[Guest guest]

> Geez ...I never thought of you as a person " full of shit "

>

> Hope your trotting to the pot soon.

>

> Jo

~~~~~~~~~~~~```

LOL, good one Jo....

But for real hope had a great day on the pot...lol

pat

[Guest guest]

Vicki,

Thanks for the well wishes. Nope. I am not a revision, and I am 2 years, 8

months out. I have definitely not had a problem with being plugged like this

before! Dr. K suggested that with the stress of the move and the actual moving

that I may have let myself get dehydrated and that could be a factor. Of

course, with abdominal surgeries you always have the chance of scar tissue

adhesions forming, so that is what they are on the lookout for. I had hernia

surgery

in April, so that is a fairly recent abdominal surgery. It looks like things

are starting to move (they better!) so I am on the positive side.

Thanks,

in Vancover

[Guest guest]

Welcome back, ! Your humor adds a lot of spice and telling it like it

is to our forum. Stay with us, will ya? Or, do you like us telling you how

much you're missed, haha??

M., R ear N24C with L ear GN ReSound Canta 7 3D HA

CI " birthday " was 05/07/03, a lucky day

[Guest guest]

welcome back -- You know that you , Gimmie and your sense of humor are

always welcome!!! Of course we missed you.

--

Snoopy

left implant 3G 7/19/02

right implant 3G 5/15/03

Bilateral and loving it!!

[Guest guest]

Well Hello !!! It sure is nice to see a post from you

today, . You have really been missed. I'm sorry

you had a lousy summer but it was like a nice breath

of sunshine to see your message and I hope this is the

first of many to come.

Moving back to the coast? I must have missed

something. I do have to say that I miss living on the

coast so I understand why anyone would move back.

I'm glad you got a map and love the 3G. It is pretty

awesome - isn't it? With your vision issues, are you

finding the new map is helpful? Have you done any

more research into the bilateral aspect?

Hey - keep in touch - would you please?

Alice

--- <rlclark77@...> wrote:

> Yo,

> Well it was a lousy summer but I finally got a

> map (Wednesday)

> that I think is going to work. Still love the 3G.

[Guest guest]

Well, now, here I be once again. The summer is like a bad dream,

soon forgotten. Things went downhill back in May when I requested a

new 3G because it was making ticking sounds and I told the audie it

started with the cold weather, but he didn't buy it. Well, it wasn't

right and it got to where it didn't need cold weather. So we got a

new 3G, mapped it and as soon as I got unhooked from the computer, I

told him this one has to go as well. 3G #3 is working good. But we

had spent a lot of time on #1 doing tests (which were not at all

pleasant) back in May and June and it was not til last week that I

finally got a map I can lvie with. Still getting used to it.

Anyways, I miss the coast and am going to move back soon as I find

something. Been in Portland 4 years and have had enough. We want to

kick up the sand on the beach again. LOL

Going bilateral. Well, I can't do it unless I can get 100% of the

costs taken care of. But beleive me, I would go for a 2nd one

yesterday if someone told me not to worry about the costs. And

without thinking about it, it would be the N24C of course. I really

think it would make life so much safer for me as my vision continues

to go south. By the way, why does everything go south anyhow?

Silly, I knew you got mad one day and tossed your 3G into the loo

but uhm, wasn't that silly of you? Hehehe. Yuh know what I do?

Everytime I get into the shower, I put my hand on my ear. Making

sure. No not before. After I step in. Its a good reminder huh. At

least you hadn't pressed the lever when yuh dunked the3g. That woulda

been like, water under the bridge. LOL

*---* *---* *---* *---* *---*

I'm not tense, just terribly, terribly alert.

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

(new & updated content on web page)

[Guest guest]

Oh It is good to see that your Humor is still intact. I really missed

your humor. We could have used you this summer !!! Stick around would you

please pretty please this time!!!! :-)

--

Snoopy

left implant 3G 7/19/02

right implant 3G 5/15/03

Bilateral and loving it!!

[Guest guest]

,

It's really good to hear from you again. I know you have been busy taking care

of other things so knowing you are back is a special treat today. Your story

and the story of your other family members is extremely interesting and very

promising for others in the group who are at the point of considering the

implant or awaiting surgery.

Thanks for stopping in and saying hi. You sure have been missed.

Alice

Hey everyone,

I know I've been in hibernation here for awhile and I'll never catch

up on all the individual posts that I have been reading, so this is

a general message to all.

[Guest guest]

,

I agree with everything that you said in your encouraging letter to all of

the people who have had or are contemplating surgery.

I would just like to add a comment that one of my surgeons told me quite a

few years back. He told me to remember that surgery is a " major insult to the

body " and that it would even be appropriate to change " insult " to " assault " .

He wanted me to understand that my body, apart from my mind, had its own

way of recovering from extensive surgery. We can't always be in charge 100%.

So, we do have to be kind to ourselves during recuperation and give

ourselves the time to recover -- both body and mind.

Just my two cents' worth. I'm not a doctor, have no medical training, but

have had too many surgeries to count.

Sincerely,

Carole M. (the elder) and getting older

[Guest guest]

Great letter! I was so pleased to hear what excellent preparation you

have managed to muster (or, better yet, have had offered to you by

your medical center/doctor) as you head into the hip surgery.

I hope the following comment will be more helpful than discouraging

to everyone at this group who is dealing with spinal revision surgery

of some kind. Everyone is different, of course, but I have had some

severe depression that started maybe two months or more AFTER the

fourth of the spinal operations I underwent this year. I was feeling

kind of worried about myself, wondering why the sudden and

unexpectedly profound blues, when one doctor who has known me for

some years now reminded me that this same " syndrome " afflicted me

after my two-part revision several years ago. (I remember , in

particular -- and other Feisties as well -- writing me some very

consoling and encouraging emails at that time.)

I believe I also got hit by an inexplicable and frightening " delayed

depression " several months after my Harrington rod surgery in 1986.

Eventually, for me, the post-fusion despair and associated symptoms

do pass away, more or less as mysteriously as they arrived (and with

or without some pharmacologic help, e.g., from Prozac).

This is my own idiosyncratic pattern and may not necessarily occur

the same way for anyone else. I guess my larger point, though, is

that it's important to go easy on ourselves and be as gentle as

possible with whatever emotions we may experience following this very

major surgery -- for the first post-op year, and maybe even longer.

As overwhelmed as you may feel at any particular time, you are a very

resilient organism. (All of us Feisties are. We almost have to be.)

Eventually you will realize that you really are, in every

sense, " strong at the broken places. " Take whatever time you need to

get better. Try not to be too globally discouraged, or descend into

any catastrophic conclusions about yourself or your condition, should

you find yourself feeling unusually rotten at any particular point in

this long and arduous healing process.

Best,

> Hi All,

>

> It has been a while since I've posted. A couple of family

> crises and a new laptop computer have slowed me down. I'll be back

> at least for a little while.

>

> I will be having hip replacement surgery next week, Sept. 8.

> I'm amazed at how much support and information I've received

> regarding the hip surgery. I've attended a joint class, had

visits

> from a PT and OT, have support equipment and gadets in place for

post

> op recovery. This is in contrast to absolutely nothing I received

> prior to my revision three years ago.

>

> Ann and , just hang in there. I remember the crying

> spells I had a few weeks after my revision. It is such a

tremendous

> shock to the body. It will get better; just takes time. I was

> feeling much better by eight weeks post op.

>

> Since I have a new laptop I hope to keep in touch on a regular

> basis post op. I'm trying to keep a positive attitide. After all,

> I'm not sick, just getting a new joint.

>

> Take care everyone. Barbara

[Guest guest]

>From: Congdon-Barnello <Luvourlives@...>

>Reply-Autism and Aspergers Treatment

>Autism and Aspergers Treatment

>Subject: Re: Catching up

>Date: Sun, 26 Sep 2004 07:11:25 -0700 (PDT)

>

>, Who pays for the hospital stay if you cannot get a referral from

>your medical doctor or therapist? Does it make a bit of difference to the

>case worker that his own doctor refuses to support the elimination of

>medication?

If I cannot get a referral at all - it would fall upon his dad's insurance

which is Blue Cross/Blue Shield HMO - so I am sure that it would require a

referral as well. If that didn't pay - then me. Of course - that is where

the courts come in. They tell you that if you are unwilling (don't want to)

or unable (can' t afford to) then the court will do the referral and take

care of the cost. Unfortunately - this means that they will also be able to

determine for how long the child is to stay at the facility. In my job (I

work as secretary at a child placement agency - alternative school and day

treatment program) have seen a child go for a ten-day or two week evaluation

that was court ordered and not return for four or five months! I would

rather do anything that have the courts do the referral.

>His father and step mother seem like they are not handling this well at

>all. Of course that doesn't suprise me too much given what you have told us

>about your ex, but it seems very irresponsible to just stop a medication

>cold turkey and without medical direction. After all, that was the purpose

>of the inpatient treatment wasn't it? So that he could undergo the

>elimination with supervision?

That was the idea.

>You must be so relieved to have your leg healing so you can get around a

>bit better! Good luck with the therapy!

I am relieved. I hate having to depend on anyone other than myself to get

things done. I am VERY independent. Being laid up has been the pits!!

>

Thanks for replying

Hugs

Steph

>

>

[Guest guest]

Hi Barbara,

Welcome back and I'm so glad to hear your hip replacement was a

success.

Sorry about the depression, though, but it's good that it was

recognized and treated appropriately. Take it easy, and best wishes

for your continued recovery,

loriann

>

>

> Hi All,

>

> It's been two months since I've posted and I'm in the process

of

> reading all the posts. In the mean time I thought I would write a

> little of what I've been doing.

>

> I had a hip replacement on Sept. 8. All went well and the

> surgery was a piece of cake compared to the spinal revision. The

> deep joint pain is gone and now I'm doing some more intensive PT to

> stretch and strengthen the leg muscles. I'm walking without a cane

> and taking NO pain meds.

>

> The bad news is that about three weeks post-op I went into a

> deep clinical depression. The same thing happened after my

revision

> in 2001 but I didn't think it would happen this time. The docs

think

> that having surgery somehow triggers the depression. I was in the

> psych unit at a university hospital for a week and it was quite an

> experience. They changed my meds and it was just a safe place to

> be. Since it was a teaching hospital there was always someone to

> talk to, student nurses, med students, residents, etc. I'm doing

ok

> now but still have to take it easy emotionally and physcally.

>

> I've been reading some of the posts and will respond to

> individuals after I finish reading all that has been going on.

It's

> good to be back on the board and best of luck to all who are going

to

> be having surgery soon.

>

> Take care. Barbara

[Guest guest]

lesdeb18,

Don't worry...I'm not discouraged at all by your post! <smile> In fact, I'm

very encouraged by it especially because I wasn't born deaf. (For those who

may not know, I had normal hearing until age 3, a moderately-severe hearing

loss from age 15-24 and severe-profound loss from age 25-present (I'm 34).)

My audiologist told me that I should do well with my CI because of the

auditory memory I still have. She also told me that since I've had

severe-profound HL for under 12 years that this will also play in my favor.

I'm so excited for you and how well your activation went!! Congratulations!!

I'm amazed at how quickly you are going through your programs/mappings --

that's great!!

As my activation date gets closer, I have a mixture of emotions (excitement,

happiness, fear) and alot of questions going through my head ( " What is my CI

doesn't work when activated? " " Will be able to tolerate the sounds I hear

through my CI? " " What happens if I'm in public and can't hear? How do I

communicate without lipreading? " ), but your post makes me feel *so* much

better about what is to come! I consider myself fortunate to have this list

and others to prepare me. Not everyone is so lucky and are severely

disappointed with what they hear (or don't hear) with their CI because no

one warned them about the difference between hearing with a HA vs. a CI.

Thank you for sharing your experience -- here's wishing you continued

success!! <smile>

Implanted: 12/22/04

Activation date: 1/18/05 (8 days and counting!)

Deafblind/Postlingual

BTE hearing aid user 19 years

Severe-profound hearing loss 9 1/2 years

[Guest guest]

ie--

Two notes:

First of all, I'm very interested in what your experience was exactly

with Churg-Strauss. A few weeks ago I had a horrible experience with

a rash that manifested itself mostly on my hands and feet.... I also

had horrible digestive problems, a fever, and pain in my arms that

was so bad I could barely move them. At the time I was taking

Singulair (I have since stopped because I believe it was the cause of

the problem) and found the following article:

http://www.fda.gov/medwatch/SAFETY/1998/singul.htm

Second, to respond to your request for more personal experiences with

aspirin desens... I went through it about 4 months ago after what was

my 5th sinus surgery. Since then, I have been doing WONDERFULLY. I

never have to use my Albuterol. I have decreased from the Advair 500

to the 100. My ENT says that my sinuses look " pristine " and " the

best he's ever seen for someone with Samters " . I highly recommend

doing the desens. I didn't have to go to Scripps to do it... I found

an allergist in Dallas that trained at Scripps and was able to go

there for the procedure.

Good luck!

Kate

>

> Since signing on last week, I have been reading the archives. So

far, I am only up to mid

> 2002. Amazing to watch the new medicines and treatment modialities

come out and be

> introduced to the group. Learning a bunch about Lori, Evie, Karl

and a few others.

>

> Almost pointless to say, my progression was the same as all of

yours. Sinus issues as a

> kid, asthma as a teenager (with lots of hospital visits). Had a

brilliant doctor in the 90's in

> Westchester, NY - when i was in school. He came up with Sampters.

>

> Living life was a struggle until Singulair / Advair / Zertec-D

combo which makes me mildly

> symptomatic (there is always a little wheeze). i could live like

this, but always had to worry

> about the sudden onset attacks (from out of nowhere) and generaly

didn't allow myself to

> get too far from an inhaler or a hospital.

>

> Until finding you and this list last week I always considered

Sampter's as a more of a

> description of a set of symptoms than as a specific disease. My

research this week has led

> me to recognize it as a discernable disease present in a definable

subset of Asthmatics.

> Does anyone know the precentage? Given the number of names, the

apparent inability of

> most physicians to diagnose, and the lack (absent this group) of

any cohesive storehouse

> of information it seems to me that this condition might be a whle

lot more prevalent than

> we might at first imagine.

>

> FWIW, scientifically, the whole Lukotrimine Chain thing is just

amazing - the way it

> bundles all the symptomology into a nice neat ball and explains the

ASA sensitivity.

>

> Has anyone had any experience with Chureg Strauss? Last year, I

had a bout of something

> very painful in my digestive tract. Not sure if the doctor ever

even checked eosinophilia

> levels. Going to have to go back an see what they missed that time!

>

> I am seriously considering ASA Desen and thought I would ask for an

update from the

> people that have gone through the process.

>

> I spoke with the folks at Scripps and i can go out there (just a

long way to travel for an

> asthma attack) I have calls into the local Cleveland Clinic to see

if they do it here. I still

> may head out to Cali. To paraphrase what someone else wrote -

better to go to the

> specalty mechanic that works on Ferraris, then to trust your

Ferrari to the guy on the

> corner that " specializes " in changin the oil on domestic cars. I

felt that way when I went to

> Dr. Kennedy at Penn State for my most recent Polypectomy.

>

> Back to the archives.

>

> ie

>

[Guest guest]

ie --I had to carry an Abuterol inhaler in my pocket (and keep a nebulizer at home and in the car) till a few years ago, when my pulmonologist came up with Zyflo, Singular, Zyrtec and Nasonex. I may have used the inhaled just a couple of times in the last 3 years or so. I decided to drop Zyflo over a year ago, without any visible impact. So, my asthma is under control, but not my polyps.--Tibor Saidel <scott_saidel@...> wrote: Since signing on last week, I have been reading the archives. So far, I am only up to mid 2002. Amazing to watch the

new medicines and treatment modialities come out and be introduced to the group. Learning a bunch about Lori, Evie, Karl and a few others. Almost pointless to say, my progression was the same as all of yours. Sinus issues as a kid, asthma as a teenager (with lots of hospital visits). Had a brilliant doctor in the 90's in Westchester, NY - when i was in school. He came up with Sampters. Living life was a struggle until Singulair / Advair / Zertec-D combo which makes me mildly symptomatic (there is always a little wheeze). i could live like this, but always had to worry about the sudden onset attacks (from out of nowhere) and generaly didn't allow myself to get too far from an inhaler or a hospital. Until finding you and this list last week I always considered Sampter's as a more of a description of a set of symptoms than as a specific disease. My research this week has led me to recognize it as a

discernable disease present in a definable subset of Asthmatics. Does anyone know the precentage? Given the number of names, the apparent inability of most physicians to diagnose, and the lack (absent this group) of any cohesive storehouse of information it seems to me that this condition might be a whle lot more prevalent than we might at first imagine. FWIW, scientifically, the whole Lukotrimine Chain thing is just amazing - the way it bundles all the symptomology into a nice neat ball and explains the ASA sensitivity. Has anyone had any experience with Chureg Strauss? Last year, I had a bout of something very painful in my digestive tract. Not sure if the doctor ever even checked eosinophilia levels. Going to have to go back an see what they missed that time! I am seriously considering ASA Desen and thought I would ask for an update from the people that have gone through the process. I

spoke with the folks at Scripps and i can go out there (just a long way to travel for an asthma attack) I have calls into the local Cleveland Clinic to see if they do it here. I still may head out to Cali. To paraphrase what someone else wrote - better to go to the specalty mechanic that works on Ferraris, then to trust your Ferrari to the guy on the corner that "specializes" in changin the oil on domestic cars. I felt that way when I went to Dr. Kennedy at Penn State for my most recent Polypectomy. Back to the archives. ie

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

, thanks for sharing your history. Always interesting to hear how the course has been for other people.

Someone asked recently about this and just to clarify again -- Samter's is definitely spelled without the "P." It was named by a guy named Max Samter, who wrote lots of papers on it in the 60s, although actually as somebody recently pointed out it's better known in many parts of the world by Widal syndrome and was named by a guy called M. Fernand Widal and also described by others much earlier than Samter.

http://www.whonamedit.com/synd.cfm/2240.html

I would love to know who you saw in Westchester since that's where I live. I did see Dr. Bosso for a while, and he is in Rockland County. Do you remember the name of the doctor?

If you can afford to go to Scripps I highly recommend the whole experience and making a vacation out of it if you can. That's what I did both times and it was so worth it. I would go there again in a flash. It's just one of the most gorgeous places on earth to me, and you can get discounts at local hotels since you are a patient at Scripps. Just a very healing place in general.

Lori

[Guest guest]

I did desens about a year and a half ago and have had tremendous results. I would do it again.

Marcus

[Guest guest]

Hi , Do you realise how envious I am, listening to you making arrangements with ? (lol) Jo says that she is in a position to book a hotel for us and apparently actually knows of one which would be suitable. Wow, this is frightening. It seems like it might just come true. Anybody else out there for a tentative, non-committed sign-up? Love from Ann xxmichelle <michelle.mcnair@...> wrote: phew - you know I still read everyday but sometimes it's just so hard to keep up.I hope I don't miss anyone. - Happy Birthday! Please make sure to get whatever you need to have done done - I am still salivating over a good Greek diner breakfast on LI with you and Manny. I'm thinking the morning of Sat. Sept. 2nd will be the best. As soon as I confirm my travel plans, I'll know more. The wedding is the 2nd but not until the evening so we should be good.You need to decide what is the best diner in your area and that's where we'll meet. You have to be able to eat though, otherwise it won't be the same.Along the lines of meeting... Ann, I am totally willing to go to Ohio

in '08. Whomever is traveling there and lives there needs to find us a good hotel where we can get a group rate and a restaurant that will cater to our varying swallowing abilities.As far as the questions of follow up -I am 17 years post-op - open myotomy with nissen wrap and my rule of thumb has been to have follow up every 3 years or so. My insurance company now requires me to see my GI every year to renew my protonix and then I have a barium swallow and endoscopy every 2-3 years. Especially after so long - my personal thought is to play on the conservative side. I've never had a 24hr. ph test, the menometries were bad enough. I'd be interested to get one of those new ones where they place the little monitor in your E. That would actually be kind of cool.Good luck on everyones' surgeries, doctors appointments and just life in general.Happy Swallowing!- in Va.3D1MNf2D 17y(3

dilations then 1 myotomy with Nissen fundo then 2 dilations - 17 years post - op)

All New – Tired of Vi@gr@! come-ons? Let our SpamGuard protect you.

[Guest guest]

The Macy's story was too funny Anne! Don't be embarrassed, be proud! Get busy exercising! Jen - me too!Anne Langston <annemargo@...> wrote: Good morning everybody! I've been having so-so weeks lately, which is why I haven't posted. Now that we're back on standard time, I think I'll be able to get up and exercise more consistently. At least I'm shooting for that. Funny thing happened Saturday--I'm going on a cruise the week of Thanksgiving and wanted to pick up a dress to wear on formal night. So a friend of mine and I went to the mall. She wanted to show me the great sale the Macy's had on special occasion dresses, so we go and I pick out some things to try on, all extra large because they looked like they were running small. (I'm a size 12 normally) I'm trying on these dresses, and they're all too small and not cut right, and I'm mentally beating myself up for not eating right, not exercising more consistently, etc. Then the last dress (most expensive, natch) fits and looks great, even hides the

scar on my chest. I go to pay for it, and that's when I find out that I've been shopping in the junior dept.! I knew the dresses were _next_ to the jr dept, but for some reason I didn't catch on that they were jr size too! I spent the rest of our shopping trip alternating between being embarrassed about my mistake and being proud that at 48 I can even wear a junior. Not that the dress looks like it's for jrs; it's more of a cocktail dress than anything else. Anyway, this week I'm going to alternate Cathe's Body Fusion with Crunch Cardio Dance party, see how that works for me. I usually do a whole bunch of different DVDs, I'd like to see what happens when I just stick to two for a week. Anne

[Guest guest]

Wow Anne,

That's great news, you're doing something right! I'm glad you figured out what was wrong. Congratulations by the way on your up coming cruise.

Have fun!

Kerry

Good morning everybody! I've been having so-so weeks lately, which is why I haven't posted. Now that we're back on standard time, I think I'll be able to get up and exercise more consistently. At least I'm shooting for that.

Funny thing happened Saturday--I'm going on a cruise the week of Thanksgiving and wanted to pick up a dress to wear on formal night. So a friend of mine and I went to the mall. She wanted to show me the great sale the Macy's had on special occasion dresses, so we go and I pick out some things to try on, all extra large because they looked like they were running small. (I'm a size 12 normally) I'm trying on these dresses, and they're all too small and not cut right, and I'm mentally beating myself up for not eating right, not exercising more consistently, etc. Then the last dress (most expensive, natch) fits and looks great, even hides the scar on my chest. I go to pay for it, and that's when I find out that I've been shopping in the junior dept.! I knew the dresses were _next_ to the jr dept, but for some reason I didn't catch on that they were jr size too! I spent the rest of our shopping trip alternating between being embarrassed about my mistake and being proud that at 48 I can even wear a junior. Not that the dress looks like it's for jrs; it's more of a cocktail dress than anything else.

Anyway, this week I'm going to alternate Cathe's Body Fusion with Crunch Cardio Dance party, see how that works for me. I usually do a whole bunch of different DVDs, I'd like to see what happens when I just stick to two for a week.

Anne

[Guest guest]

You don't have to apologise Susie, you are free to post as much or as

little as you like.

I'm with Ntl btw, I think they have been taken over by Virgin haven't

they?

>

> Hello All, i'm sorry didn't post at around evening yesterday. The

internet

> went off and it couldn't come back on till 2 hrs later so i

couldn't go thru

> post then. Its done that because ntl is making some changes and its

gonna

> switch to virgin on ntl and if u wondered where i was on YM

yesterday so

> sorry couldn't make it to the chats yesterday.

>

> Anyway that is all 4 now. Susie

>

>

> --

> My private email address: susie4uk2006@...

>

>

> My group email: susannah2005uk@...

>

> My Website at: http://susie4uk2005.tripod.com/

>

[Guest guest]

You don't have to apologise Susie, you are free to post as much or as

little as you like.

I'm with Ntl btw, I think they have been taken over by Virgin haven't

they?

>

> Hello All, i'm sorry didn't post at around evening yesterday. The

internet

> went off and it couldn't come back on till 2 hrs later so i

couldn't go thru

> post then. Its done that because ntl is making some changes and its

gonna

> switch to virgin on ntl and if u wondered where i was on YM

yesterday so

> sorry couldn't make it to the chats yesterday.

>

> Anyway that is all 4 now. Susie

>

>

> --

> My private email address: susie4uk2006@...

>

>

> My group email: susannah2005uk@...

>

> My Website at: http://susie4uk2005.tripod.com/

>

[Guest guest]

Yeah thats what i heard and thats why i got disconnected last night. Susie

You don't have to apologise Susie, you are free to post as much or as little as you like.I'm with Ntl btw, I think they have been taken over by Virgin haven't they?

>> Hello All, i'm sorry didn't post at around evening yesterday. The internet> went off and it couldn't come back on till 2 hrs later so i couldn't go thru> post then. Its done that because ntl is making some changes and its gonna> switch to virgin on ntl and if u wondered where i was on YM yesterday so> sorry couldn't make it to the chats yesterday.> > Anyway that is all 4 now. Susie> >

> -- > My private email address: susie4uk2006@...> > > My group email: susannah2005uk@...> > My Website at:

http://susie4uk2005.tripod.com/> -- My private email address: susie4uk2006@...My group email: susannah2005uk@...My Website at:

http://susie4uk2005.tripod.com/

[Guest guest]

Yeah thats what i heard and thats why i got disconnected last night. Susie

You don't have to apologise Susie, you are free to post as much or as little as you like.I'm with Ntl btw, I think they have been taken over by Virgin haven't they?

>> Hello All, i'm sorry didn't post at around evening yesterday. The internet> went off and it couldn't come back on till 2 hrs later so i couldn't go thru> post then. Its done that because ntl is making some changes and its gonna> switch to virgin on ntl and if u wondered where i was on YM yesterday so> sorry couldn't make it to the chats yesterday.> > Anyway that is all 4 now. Susie> >

> -- > My private email address: susie4uk2006@...> > > My group email: susannah2005uk@...> > My Website at:

http://susie4uk2005.tripod.com/> -- My private email address: susie4uk2006@...My group email: susannah2005uk@...My Website at:

http://susie4uk2005.tripod.com/

[Guest guest]

First, thanks to all for the Happy Birthday messages. I took to

Walmart where he could choose ANYTHING he wanted. He opted for a small fan

on clearance ($5.00) and a new Harry Potter DVD. That's all he wanted - no

matter how I tempted him to get something else.

Reggie - his birthdays are a reminder of the special people in my life as I

travel this journey. I cherish you for reaching out to me way back when- I

will never forget your patience with me. Most people probably don't realize

that we met without the internet, lol!! Cari Mancari, too. My kindred WV

spirits are amazing women and hold a special place in my heart;)

I have to remind myself where is developmentally. As for girls, he

is a bit interested in them, but not to where it is a problem. He has two

girlfriends at school - and then Tyneikqa I can't wait to see what

the next few years brings to us.

I'm so blessed to have witness many children and adults with DS transition

into adulthood and grow through the ages. It's been a real gift to have this

list - especially the members who make it for what it is.

When are you coming over this way again???? We;ll have to get together. I

didn't hear about Ella until just now! 's or 's? Our 8 month old

granddaughter is here with us now and boy the house sure shows it! Tim and

I watched her yesterday and she kept us busy, busy, busy!

ps - big congrats on the shaving!!! I'll have to remember to try, back off

and retry again later. Hey, that may work for more than just shaving..lol!

.. Catching Up

> Hello from an oldie!!? First I want to say " Happy Birthday! " to !!?

> , it sure doesn't seem like that long ago when we first talked on the

> phone!!? I'm sure he enjoyed his meal!!

>

> I want to assure you parents of younger kids that what I read earlier is

> true.....our kids reach maturity at a later time than other kids.? For

> example:? my son is now 22 1/2....when he was 20, we saw the emotional

> behavior of 14-15 year olds (lots of rebellion, hardheadedness, 'I don't

> want to be seen with Mom' kind of stuff.)? .?? Now, he's more like a 16-17

> year old in some ways (about girls!!) and even more mature when it comes

> to being thoughtful to others.?

>

> learned to read when he was a senior in high school..........for

> some reason, he was not developmentally ready untill then to read (and the

> school had long since quit trying).? We took him to Sylvan Learning Center

> for 3 1/2 years.........he went from a kindergarten level of reading to

> 4th grade level!!!!!? He reads every thing now, mostly his Bible.? For a

> job application, he said, " Tell them I can READ!! " ? So be

> patient.....don't give up on reading.? Math is still the pits, but I can't

> afford Sylvan again!!

>

> Our biggest accomplishment these days is his learning to shave........with

> a regular razor!!? He decided that his electric razor didn't give him a

> close enough shave.? After a week at camp this summer without shaving ONE

> time, I had to sit him down in the bathroom with the shaving cream and a

> towel around his shoulders and slowly shave him clean!!? After that, He

> kept asking me to shave him, so I finally told him one day I'd do it if he

> would put on the shaving cream.....(sensory issues with his hands...I

> didn't think he'd do it!).......I was surprised to return to the bathroom

> to see his big smile surrounded by white foam!!? The next time, I told him

> to put on the shaving cream, do what he could do and I'd help with the

> rest.? I also told him never to pull the razor sideways, that it would cut

> him bad.?? Yesterday, before church, I walked into the bathroom at his

> call.....there he stood, my kid with shaving cream on his face, his mouth

> held just so, wearing his

> boxer shorts & tee-shirt (just like my Dad did, just like 's father

> did) and carefully shaving his chin!!? I took a picture, !!? It was

> one of those moments.....22 years ago, I NEVER thought he'd be able to

> shave himself.....much less with a regular Gillette!!? A few tears

> escaped...........

>

> I don't post often......mostly lurk and read!? Just wanted to tell

> everyone to hang in there!!

>

> Reggie ( 22-DS)?? (30) (25) and 2 of the most beautiful

> grandchildren in the world!!? Davy (2) and Ella (7 months)

> ________________________________________________________________________

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>

>

>