Guest guest Posted August 20, 2002 Report Share Posted August 20, 2002 A small group of us here in the UK have started an informal UK NT discussion group on . We are much smaller than this list but hopefully we'll grow as others here in the UK discover NT and the issues we're all interested in. If anyone here would like to join us you'd be very welcome. ntuk/ thanks Den Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 Thanks for the info didn’t realise facebook had a group will go and have a look Shellie UK From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of ZK Sent: 18 June 2009 21:24 Plagiocephaly Subject: Re: UK group I was wondering how difficult it is to start a support group. Maybe it is worth starting a new UK group, if the old one isn't open for new members, it seems there would be a few interested people. A while back I also came across an UK plagio group on facebook http://www.facebook.com/group.php?gid=29769266984 Zhyldyz From: pamclayton15 <green.pamela@...> Plagiocephaly Sent: Thursday, June 18, 2009 5:47:16 AM Subject: UK group Hi, Ive been using this group on and off for a while, to get answers and tips about tort and helmeting , for my granddaughter , and its been invaluable. Hope its acceptable and not rude if I ask on here a question about a UK support group The Plagiocephaly Care UK group. Is anyone on here a member, and if so , how did you manage to join? Both my daughter and I have written emails to owner/ admin as suggested, with no reply. As we are in the UK, a group with more local knowledge would be quite useful I think. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 Hi, my name is and I'm from Northamptonshire in the UK. I have found that everyone has been very negative towards our decision to treat our daughters plagio. Through osteopathy we managed to get it from 18mm to 14mm but she still has a very asymetrical face and ears. People are so opposed to what has been a difficult decision and have even said we will be taking away her individual characteristics! Health visitors and GPs all have had the same " it'll sort itself out/round out " opinion. My daughter is 5 1/2 months and will be going to have her band fitted at Ahead4 babies in two weeks time. I would love to hear from anyone else in the same situation. > > > >> > >> > >> I was wondering how difficult it is to start a support group. > >> Maybe it is worth starting a new UK group, if the old one isn't open for new > >> members, it seems there would be a few interested people. A while back I > >> also came across an UK plagio group on facebook > >> http://www.facebook.com/group.php?gid=29769266984 > >> > >> Zhyldyz > >> > >> ------------------------------ > >> *From:* pamclayton15 <green.pamela@...> > >> *To:* Plagiocephaly > >> *Sent:* Thursday, June 18, 2009 5:47:16 AM > >> *Subject:* UK group > >> > >> Hi, Ive been using this group on and off for a while, to get answers and > >> tips about tort and helmeting , for my granddaughter , and its been > >> invaluable. Hope its acceptable and not rude if I ask on here a question > >> about a UK support group The Plagiocephaly Care UK group. Is anyone on here > >> a member, and if so , how did you manage to join? Both my daughter and I > >> have written emails to owner/ admin as suggested, with no reply. As we are > >> in the UK, a group with more local knowledge would be quite useful I think. > >> Thanks. > >> > >> > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2009 Report Share Posted June 20, 2009 I have just ordered some vinyls from bling your band (an american website) I thought these were preferable as they are harder wearing than stickers, no risk of chipping like paint and they can be removed if necessary (they are like the bedroom wallstickers) we asked the lady to do a pink dinosaur " plagiosaurus " design and she has custom designed us some stickers. > > > > > > > Thanks for the info didn't realise facebook had a group will go and have > > a look > > > > > > > > Shellie UK > > > > > > > > *From:* Plagiocephaly [mailto: > > Plagiocephaly ] *On Behalf Of *ZK > > *Sent:* 18 June 2009 21:24 > > *To:* Plagiocephaly > > *Subject:* Re: UK group > > > > > > > > > > > > > > I was wondering how difficult it is to start a support group. > > Maybe it is worth starting a new UK group, if the old one isn't open for new > > members, it seems there would be a few interested people. A while back I > > also came across an UK plagio group on facebook > > http://www.facebook.com/group.php?gid=29769266984 > > > > > > > > Zhyldyz > > > > > > ------------------------------ > > > > *From:* pamclayton15 <green.pamela@...> > > *To:* Plagiocephaly > > *Sent:* Thursday, June 18, 2009 5:47:16 AM > > *Subject:* UK group > > > > Hi, Ive been using this group on and off for a while, to get answers and > > tips about tort and helmeting , for my granddaughter , and its been > > invaluable. Hope its acceptable and not rude if I ask on here a question > > about a UK support group The Plagiocephaly Care UK group. Is anyone on here > > a member, and if so , how did you manage to join? Both my daughter and I > > have written emails to owner/ admin as suggested, with no reply. As we are > > in the UK, a group with more local knowledge would be quite useful I think. > > Thanks. > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.