Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Gayle, I will be glad to. I did 48 weeks of tx in '05....non responder. I was 61 at the time. I did tx while still traveling and doing my normal business. I lost about 40 lbs and a good pony tail. Got the tail back and about 15 lbs, so far. I was and am still very active in community and veterans affairs and actually increased my workload while on tx and haven't slowed down yet. I found myself doing shots in a hotel room on a Wednesday night and doing a meeting on Thursday. The shots are no big deal when you consider the alternative. They come prepackaged and are sent on a regular basis when you follow the tx team's instructions and do your lab tests. Above all, everyone takes tx differently. Some sides are universal, but one doesn't know how they will be affected by tx until they experience it for themselves. You must come to realize that your tx team knows what they are doing and follow their instructions. I was on tx in the VA system and still go back every 6 months for tests and a checkup. Nothing has changed with my VL, it is still in the millions. Tx will give your liver a rest for a year....just do it. Cost is not a factor if you do explore what the drug companies have or the trials that are available. Most important.........keep a positive attitude!!! Dick At 08:28 AM 8/10/2007, you wrote: Obviously. Perhaps you'll share your experience with Bill and tell him how he SHOULD be doing it. I'm sure he'd appreciate your help. Gayle > > With all due respect Bill......you have a lot to learn. > > Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Gayle, I will be glad to. I did 48 weeks of tx in '05....non responder. I was 61 at the time. I did tx while still traveling and doing my normal business. I lost about 40 lbs and a good pony tail. Got the tail back and about 15 lbs, so far. I was and am still very active in community and veterans affairs and actually increased my workload while on tx and haven't slowed down yet. I found myself doing shots in a hotel room on a Wednesday night and doing a meeting on Thursday. The shots are no big deal when you consider the alternative. They come prepackaged and are sent on a regular basis when you follow the tx team's instructions and do your lab tests. Above all, everyone takes tx differently. Some sides are universal, but one doesn't know how they will be affected by tx until they experience it for themselves. You must come to realize that your tx team knows what they are doing and follow their instructions. I was on tx in the VA system and still go back every 6 months for tests and a checkup. Nothing has changed with my VL, it is still in the millions. Tx will give your liver a rest for a year....just do it. Cost is not a factor if you do explore what the drug companies have or the trials that are available. Most important.........keep a positive attitude!!! Dick At 08:28 AM 8/10/2007, you wrote: Obviously. Perhaps you'll share your experience with Bill and tell him how he SHOULD be doing it. I'm sure he'd appreciate your help. Gayle > > With all due respect Bill......you have a lot to learn. > > Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Gayle, I will be glad to. I did 48 weeks of tx in '05....non responder. I was 61 at the time. I did tx while still traveling and doing my normal business. I lost about 40 lbs and a good pony tail. Got the tail back and about 15 lbs, so far. I was and am still very active in community and veterans affairs and actually increased my workload while on tx and haven't slowed down yet. I found myself doing shots in a hotel room on a Wednesday night and doing a meeting on Thursday. The shots are no big deal when you consider the alternative. They come prepackaged and are sent on a regular basis when you follow the tx team's instructions and do your lab tests. Above all, everyone takes tx differently. Some sides are universal, but one doesn't know how they will be affected by tx until they experience it for themselves. You must come to realize that your tx team knows what they are doing and follow their instructions. I was on tx in the VA system and still go back every 6 months for tests and a checkup. Nothing has changed with my VL, it is still in the millions. Tx will give your liver a rest for a year....just do it. Cost is not a factor if you do explore what the drug companies have or the trials that are available. Most important.........keep a positive attitude!!! Dick At 08:28 AM 8/10/2007, you wrote: Obviously. Perhaps you'll share your experience with Bill and tell him how he SHOULD be doing it. I'm sure he'd appreciate your help. Gayle > > With all due respect Bill......you have a lot to learn. > > Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Thank you Dick. I read that tx can cause temporary hair loss, is that what happened to your tail? " The shots are no big deal when you consider the alternative. " I couldn't have said it better myself so no need for a comment from me. Nope, my tx team knows nothing and openly admits it. In fact they assumed I knew how to order the meds and asked me. Hello?? I can't call a pharmaceutical company out of the blue and ask them to mail me drugs, if I could I'd be a wealthy woman today! lol Just kidding, I don't do drugs. I swear on my life as soon as I get my first shipment I'm switching to a different doctor and already have an appointment with one my family physician referred me to. As for cost I don't have to worry. My husband has a good job that comes with excellent insurance coverage and we'll be reimbursed for any out of pocket charges. That's a big plus. I have a question. If you're a non-responder and your VL is that high all the time, what keeps your liver from being damaged? If you don't want to answer that one it's all right, but I had to ask. Thanks again, Gayle > >> > >> With all due respect Bill......you have a lot to learn. > >> > >> Dick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Thank you Dick. I read that tx can cause temporary hair loss, is that what happened to your tail? " The shots are no big deal when you consider the alternative. " I couldn't have said it better myself so no need for a comment from me. Nope, my tx team knows nothing and openly admits it. In fact they assumed I knew how to order the meds and asked me. Hello?? I can't call a pharmaceutical company out of the blue and ask them to mail me drugs, if I could I'd be a wealthy woman today! lol Just kidding, I don't do drugs. I swear on my life as soon as I get my first shipment I'm switching to a different doctor and already have an appointment with one my family physician referred me to. As for cost I don't have to worry. My husband has a good job that comes with excellent insurance coverage and we'll be reimbursed for any out of pocket charges. That's a big plus. I have a question. If you're a non-responder and your VL is that high all the time, what keeps your liver from being damaged? If you don't want to answer that one it's all right, but I had to ask. Thanks again, Gayle > >> > >> With all due respect Bill......you have a lot to learn. > >> > >> Dick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2007 Report Share Posted August 10, 2007 Thank you Dick. I read that tx can cause temporary hair loss, is that what happened to your tail? " The shots are no big deal when you consider the alternative. " I couldn't have said it better myself so no need for a comment from me. Nope, my tx team knows nothing and openly admits it. In fact they assumed I knew how to order the meds and asked me. Hello?? I can't call a pharmaceutical company out of the blue and ask them to mail me drugs, if I could I'd be a wealthy woman today! lol Just kidding, I don't do drugs. I swear on my life as soon as I get my first shipment I'm switching to a different doctor and already have an appointment with one my family physician referred me to. As for cost I don't have to worry. My husband has a good job that comes with excellent insurance coverage and we'll be reimbursed for any out of pocket charges. That's a big plus. I have a question. If you're a non-responder and your VL is that high all the time, what keeps your liver from being damaged? If you don't want to answer that one it's all right, but I had to ask. Thanks again, Gayle > >> > >> With all due respect Bill......you have a lot to learn. > >> > >> Dick > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 I was amazed at how well you did on treatment.Quite a few people do aright during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of Dick SouthernSent: August 10, 2007 10:44 AMTo: HepatitisCSupportGroupForDummies Subject: Re: non responderGayle, I will be glad to.I did 48 weeks of tx in '05....non responder. I was 61 at the time. I did tx while still traveling and doing my normal business. I lost about 40 lbs and a good pony tail. Got the tail back and about 15 lbs, so far. I was and am still very active in community and veterans affairs and actually increased my workload while on tx and haven't slowed down yet. I found myself doing shots in a hotel room on a Wednesday night and doing a meeting on Thursday. The shots are no big deal when you consider the alternative. They come prepackaged and are sent on a regular basis when you follow the tx team's instructions and do your lab tests. Above all, everyone takes tx differently. Some sides are universal, but one doesn't know how they will be affected by tx until they experience it for themselves. You must come to realize that your tx team knows what they are doing and follow their instructions. I was on tx in the VA system and still go back every 6 months for tests and a checkup. Nothing has changed with my VL, it is still in the millions. Tx will give your liver a rest for a year....just do it. Cost is not a factor if you do explore what the drug companies have or the trials that are available. Most important.........keep a positive attitude!!!DickAt 08:28 AM 8/10/2007, you wrote: Obviously.Perhaps you'll share your experience with Bill and tell him how he SHOULD be doing it.I'm sure he'd appreciate your help.Gayle>> With all due respect Bill......you have a lot to learn.> > Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 I was amazed at how well you did on treatment.Quite a few people do aright during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of Dick SouthernSent: August 10, 2007 10:44 AMTo: HepatitisCSupportGroupForDummies Subject: Re: non responderGayle, I will be glad to.I did 48 weeks of tx in '05....non responder. I was 61 at the time. I did tx while still traveling and doing my normal business. I lost about 40 lbs and a good pony tail. Got the tail back and about 15 lbs, so far. I was and am still very active in community and veterans affairs and actually increased my workload while on tx and haven't slowed down yet. I found myself doing shots in a hotel room on a Wednesday night and doing a meeting on Thursday. The shots are no big deal when you consider the alternative. They come prepackaged and are sent on a regular basis when you follow the tx team's instructions and do your lab tests. Above all, everyone takes tx differently. Some sides are universal, but one doesn't know how they will be affected by tx until they experience it for themselves. You must come to realize that your tx team knows what they are doing and follow their instructions. I was on tx in the VA system and still go back every 6 months for tests and a checkup. Nothing has changed with my VL, it is still in the millions. Tx will give your liver a rest for a year....just do it. Cost is not a factor if you do explore what the drug companies have or the trials that are available. Most important.........keep a positive attitude!!!DickAt 08:28 AM 8/10/2007, you wrote: Obviously.Perhaps you'll share your experience with Bill and tell him how he SHOULD be doing it.I'm sure he'd appreciate your help.Gayle>> With all due respect Bill......you have a lot to learn.> > Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2007 Report Share Posted August 11, 2007 I was amazed at how well you did on treatment.Quite a few people do aright during treatment. Gail -----Original Message-----From: HepatitisCSupportGroupForDummies [mailto:HepatitisCSupportGroupForDummies ]On Behalf Of Dick SouthernSent: August 10, 2007 10:44 AMTo: HepatitisCSupportGroupForDummies Subject: Re: non responderGayle, I will be glad to.I did 48 weeks of tx in '05....non responder. I was 61 at the time. I did tx while still traveling and doing my normal business. I lost about 40 lbs and a good pony tail. Got the tail back and about 15 lbs, so far. I was and am still very active in community and veterans affairs and actually increased my workload while on tx and haven't slowed down yet. I found myself doing shots in a hotel room on a Wednesday night and doing a meeting on Thursday. The shots are no big deal when you consider the alternative. They come prepackaged and are sent on a regular basis when you follow the tx team's instructions and do your lab tests. Above all, everyone takes tx differently. Some sides are universal, but one doesn't know how they will be affected by tx until they experience it for themselves. You must come to realize that your tx team knows what they are doing and follow their instructions. I was on tx in the VA system and still go back every 6 months for tests and a checkup. Nothing has changed with my VL, it is still in the millions. Tx will give your liver a rest for a year....just do it. Cost is not a factor if you do explore what the drug companies have or the trials that are available. Most important.........keep a positive attitude!!!DickAt 08:28 AM 8/10/2007, you wrote: Obviously.Perhaps you'll share your experience with Bill and tell him how he SHOULD be doing it.I'm sure he'd appreciate your help.Gayle>> With all due respect Bill......you have a lot to learn.> > Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 First let me say I am SO sorry you are a non responder. Your post caught my eye as I too am a non responder...this was back in 1998 after 5 miserable months on treatment. I am genotype 1A the hardest one to beat.  I am 56 now (13 years later) and I have developed cirrhosis.  I had taken VERY good care of myself during those 13 years.  I was also very surprised because my biopsies I had were all very good.  But I had an abdominal operation and the surgeon SAW my liver was cirrhotic. They say " sorry nothing we can do for you " .  You do know that about 5 years down the road they will have a pill...my hepatologist is up on all the latest developements.  They are working on new things as we speak! I am now stage IV cirrhosis...after that it goes A, B, C.  A: they consider you to be " ok " and I am still A.  I must have ultrasounds and blood work to rule out liver cancer every 6 months and then once a year an endoscopy to rule out esophageal varices.  They also do what is called a MELD score to determine if you are in fact A B or C.  They say I could stay at A for 10 years but of course they have no idea and 3 or more years have already gone by. B: you are put on the transplant list. C: you are quickly running out of time I hope this wasnt TOO MUCH info for you.  Dont drink, eat healthy and keep your stress levels down ( stress and Hep C not a good combo) !  I deeply feel for you I totally understand what you are feeling!!!  Anything I can do or any questions feel free to email me!Sending Hugs! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 First let me say I am SO sorry you are a non responder. Your post caught my eye as I too am a non responder...this was back in 1998 after 5 miserable months on treatment. I am genotype 1A the hardest one to beat.  I am 56 now (13 years later) and I have developed cirrhosis.  I had taken VERY good care of myself during those 13 years.  I was also very surprised because my biopsies I had were all very good.  But I had an abdominal operation and the surgeon SAW my liver was cirrhotic. They say " sorry nothing we can do for you " .  You do know that about 5 years down the road they will have a pill...my hepatologist is up on all the latest developements.  They are working on new things as we speak! I am now stage IV cirrhosis...after that it goes A, B, C.  A: they consider you to be " ok " and I am still A.  I must have ultrasounds and blood work to rule out liver cancer every 6 months and then once a year an endoscopy to rule out esophageal varices.  They also do what is called a MELD score to determine if you are in fact A B or C.  They say I could stay at A for 10 years but of course they have no idea and 3 or more years have already gone by. B: you are put on the transplant list. C: you are quickly running out of time I hope this wasnt TOO MUCH info for you.  Dont drink, eat healthy and keep your stress levels down ( stress and Hep C not a good combo) !  I deeply feel for you I totally understand what you are feeling!!!  Anything I can do or any questions feel free to email me!Sending Hugs! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2011 Report Share Posted August 27, 2011 please stay in touch I dont have to much time left kind of given up ________________________________ From: <shelleyekg@...> Hepatitis C Sent: Thu, August 25, 2011 12:20:05 PM Subject: non responder First let me say I am SO sorry you are a non responder. Your post caught my eye as I too am a non responder...this was back in 1998 after 5 miserable months on treatment. I am genotype 1A the hardest one to beat. I am 56 now (13 years later) and I have developed cirrhosis. I had taken VERY good care of myself during those 13 years. I was also very surprised because my biopsies I had were all very good. But I had an abdominal operation and the surgeon SAW my liver was cirrhotic. They say " sorry nothing we can do for you " . You do know that about 5 years down the road they will have a pill...my hepatologist is up on all the latest developements. They are working on new things as we speak! I am now stage IV cirrhosis...after that it goes A, B, C. A: they consider you to be " ok " and I am still A. I must have ultrasounds and blood work to rule out liver cancer every 6 months and then once a year an endoscopy to rule out esophageal varices. They also do what is called a MELD score to determine if you are in fact A B or C. They say I could stay at A for 10 years but of course they have no idea and 3 or more years have already gone by. B: you are put on the transplant list. C: you are quickly running out of time I hope this wasnt TOO MUCH info for you. Dont drink, eat healthy and keep your stress levels down ( stress and Hep C not a good combo) ! I deeply feel for you I totally understand what you are feeling!!! Anything I can do or any questions feel free to email me!Sending Hugs! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2011 Report Share Posted August 27, 2011 please stay in touch I dont have to much time left kind of given up ________________________________ From: <shelleyekg@...> Hepatitis C Sent: Thu, August 25, 2011 12:20:05 PM Subject: non responder First let me say I am SO sorry you are a non responder. Your post caught my eye as I too am a non responder...this was back in 1998 after 5 miserable months on treatment. I am genotype 1A the hardest one to beat. I am 56 now (13 years later) and I have developed cirrhosis. I had taken VERY good care of myself during those 13 years. I was also very surprised because my biopsies I had were all very good. But I had an abdominal operation and the surgeon SAW my liver was cirrhotic. They say " sorry nothing we can do for you " . You do know that about 5 years down the road they will have a pill...my hepatologist is up on all the latest developements. They are working on new things as we speak! I am now stage IV cirrhosis...after that it goes A, B, C. A: they consider you to be " ok " and I am still A. I must have ultrasounds and blood work to rule out liver cancer every 6 months and then once a year an endoscopy to rule out esophageal varices. They also do what is called a MELD score to determine if you are in fact A B or C. They say I could stay at A for 10 years but of course they have no idea and 3 or more years have already gone by. B: you are put on the transplant list. C: you are quickly running out of time I hope this wasnt TOO MUCH info for you. Dont drink, eat healthy and keep your stress levels down ( stress and Hep C not a good combo) ! I deeply feel for you I totally understand what you are feeling!!! Anything I can do or any questions feel free to email me!Sending Hugs! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2011 Report Share Posted August 27, 2011 please stay in touch I dont have to much time left kind of given up ________________________________ From: <shelleyekg@...> Hepatitis C Sent: Thu, August 25, 2011 12:20:05 PM Subject: non responder First let me say I am SO sorry you are a non responder. Your post caught my eye as I too am a non responder...this was back in 1998 after 5 miserable months on treatment. I am genotype 1A the hardest one to beat. I am 56 now (13 years later) and I have developed cirrhosis. I had taken VERY good care of myself during those 13 years. I was also very surprised because my biopsies I had were all very good. But I had an abdominal operation and the surgeon SAW my liver was cirrhotic. They say " sorry nothing we can do for you " . You do know that about 5 years down the road they will have a pill...my hepatologist is up on all the latest developements. They are working on new things as we speak! I am now stage IV cirrhosis...after that it goes A, B, C. A: they consider you to be " ok " and I am still A. I must have ultrasounds and blood work to rule out liver cancer every 6 months and then once a year an endoscopy to rule out esophageal varices. They also do what is called a MELD score to determine if you are in fact A B or C. They say I could stay at A for 10 years but of course they have no idea and 3 or more years have already gone by. B: you are put on the transplant list. C: you are quickly running out of time I hope this wasnt TOO MUCH info for you. Dont drink, eat healthy and keep your stress levels down ( stress and Hep C not a good combo) ! I deeply feel for you I totally understand what you are feeling!!! Anything I can do or any questions feel free to email me!Sending Hugs! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2011 Report Share Posted August 27, 2011 please stay in touch I dont have to much time left kind of given up ________________________________ From: <shelleyekg@...> Hepatitis C Sent: Thu, August 25, 2011 12:20:05 PM Subject: non responder First let me say I am SO sorry you are a non responder. Your post caught my eye as I too am a non responder...this was back in 1998 after 5 miserable months on treatment. I am genotype 1A the hardest one to beat. I am 56 now (13 years later) and I have developed cirrhosis. I had taken VERY good care of myself during those 13 years. I was also very surprised because my biopsies I had were all very good. But I had an abdominal operation and the surgeon SAW my liver was cirrhotic. They say " sorry nothing we can do for you " . You do know that about 5 years down the road they will have a pill...my hepatologist is up on all the latest developements. They are working on new things as we speak! I am now stage IV cirrhosis...after that it goes A, B, C. A: they consider you to be " ok " and I am still A. I must have ultrasounds and blood work to rule out liver cancer every 6 months and then once a year an endoscopy to rule out esophageal varices. They also do what is called a MELD score to determine if you are in fact A B or C. They say I could stay at A for 10 years but of course they have no idea and 3 or more years have already gone by. B: you are put on the transplant list. C: you are quickly running out of time I hope this wasnt TOO MUCH info for you. Dont drink, eat healthy and keep your stress levels down ( stress and Hep C not a good combo) ! I deeply feel for you I totally understand what you are feeling!!! Anything I can do or any questions feel free to email me!Sending Hugs! Quote Link to comment Share on other sites More sharing options...
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