Re: intro, new here/SSDI/All

[Guest guest]

I,

Went to SSDI web site and info for disability and also read some

reports on what to do to ensure success.

Several things need to be done 1st, for one I need to have

been with the same doctor a few months at least so they

feel comfortable going to bat with me on disability--and it says

if you're doctor won't help, you're supposed to find one who

will, which would necessitate waiting more time for the

new doc to get to know me. It is so frustrating, I have been

through 6 docs in 18 months because the ones I have

seen have been lazy to the point of endangering my

health & life! I live in Maine, so maybe that's why.

I have only been diagnosed this year with all of these conditions,

and as far as I am concerned they are far from done! I have

FMS/CFS/MPS/HCV/Hypoglycemia/Menopause/Spinal

problems/DDD/etc......... Some kind of immune process as

well--swollen glands and lymph nodes all activated (painful,

swollen, hard), fevers, exhaustion, extreme joint pain and

muscle pain with some swelling, etc. Daily pain levels of

9-10 brought down to a 7 with medication (so far still

incredibly under-treated pain which doesn't help!). I

am almost totally disabled, uncomfortable in ANY

position, even lying down! Makes being a reliable worker

impossible.

Factors that could totally change my eligibility for SSDI:

getting proper pain management could allow me to work again,

hcv treatment could make me feel well enough to work,

finding and treating other Dx's not discovered yet could

make me better. Since all of this is still unknown, I feel

it is unlikely that a doctor would be willing to state that

I am disabled (???).

Is there such a thing as partial disability??? Could not find

info on that. Anyway I do know the sooner one applies the

better. I am tracking my daily symptoms, pain levels and

abilities (how all this affects my daily life) on a pain sheet

I designed (and make available to others) that shows a month

on one sheet. All of this will help if I do apply for SSDI,

but I only started all of this last month, so need to

have a few more months to see if this is indeed going

to be a long term thing, or if proper treatment and Dx

will fix the disability I suffer now.

Knowing all this, should I still apply now?

>From: " alley/ " <alleypat@...>

>Subject: Re: Re: intro, new here

>

>

>.. disability takes time so if you want it go for it as soon as you can.

>good luck!

>alley/

[Guest guest]

I,

Went to SSDI web site and info for disability and also read some

reports on what to do to ensure success.

Several things need to be done 1st, for one I need to have

been with the same doctor a few months at least so they

feel comfortable going to bat with me on disability--and it says

if you're doctor won't help, you're supposed to find one who

will, which would necessitate waiting more time for the

new doc to get to know me. It is so frustrating, I have been

through 6 docs in 18 months because the ones I have

seen have been lazy to the point of endangering my

health & life! I live in Maine, so maybe that's why.

I have only been diagnosed this year with all of these conditions,

and as far as I am concerned they are far from done! I have

FMS/CFS/MPS/HCV/Hypoglycemia/Menopause/Spinal

problems/DDD/etc......... Some kind of immune process as

well--swollen glands and lymph nodes all activated (painful,

swollen, hard), fevers, exhaustion, extreme joint pain and

muscle pain with some swelling, etc. Daily pain levels of

9-10 brought down to a 7 with medication (so far still

incredibly under-treated pain which doesn't help!). I

am almost totally disabled, uncomfortable in ANY

position, even lying down! Makes being a reliable worker

impossible.

Factors that could totally change my eligibility for SSDI:

getting proper pain management could allow me to work again,

hcv treatment could make me feel well enough to work,

finding and treating other Dx's not discovered yet could

make me better. Since all of this is still unknown, I feel

it is unlikely that a doctor would be willing to state that

I am disabled (???).

Is there such a thing as partial disability??? Could not find

info on that. Anyway I do know the sooner one applies the

better. I am tracking my daily symptoms, pain levels and

abilities (how all this affects my daily life) on a pain sheet

I designed (and make available to others) that shows a month

on one sheet. All of this will help if I do apply for SSDI,

but I only started all of this last month, so need to

have a few more months to see if this is indeed going

to be a long term thing, or if proper treatment and Dx

will fix the disability I suffer now.

Knowing all this, should I still apply now?

>From: " alley/ " <alleypat@...>

>Subject: Re: Re: intro, new here

>

>

>.. disability takes time so if you want it go for it as soon as you can.

>good luck!

>alley/