Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 > This was given to me from a chatroom friend. We seem to concur that women > seem to have better results with treatment and fewer sides, but worse hep c > sides than men. Course, we didn't do a scientific study. Just our opinion. > Thot I'd share > Pat > kenandpat@... > oshidori@... > > " The gold in one's heart is more precious than the gold in one's pocket " > Confucius > > Women and Hepatitis C > In the following you can read parts from a correspondence between me and > Emaliss. If you want to discuss this topic please write to: EMALISS or to > Ingo d'Alquen > > I wrote: > During the last two weeks I have an increasing number of visitors on my > homepage- up to 30 readers a day. Do you see a similar growth? (I was > thinking about a growing public interest) There is one other thing very > surprising to me: normally they say that there is one woman in ten computer > users- on my site the proportion is 1: 2 ! Either women take this disease > more serious ( thinking of kids and their responsibility) or they just are > more affected ( infected) than men. Do you have similar 'insights'? > > Emaliss answered: > It's not only my opinion, but also my experience, that women are typically > more symptomatic than men, and sympomatic earlier than men. I talk about > this in my editorial about Chronic Fatigue Syndrom (CFS) and HepC. We know > that hepC can and does trigger hyperactive autoimmune disease like lupus, > rhumatoid arthritis, thyroiditis, autoimmune (lupoid) hepatitis, etc. And > because of the differences in body chemistry, women are affected 8-1 over > men by these diseases. > > I conducted a survey a while back and sent out check lists grading the > severity of symptoms using the CFS symptoms chart (the symptoms are very > similar). I asked people to grade symptoms from 0 (none) to 10 (very severe) > and also asked them to list their last enzyme results. I was astonished at > the results. The majority of men either had none to mild symptoms and their > enzyme levels seemed to correlate with symptoms. They felt more ill when > their enzyme levels were up, but in general few had 'severe' symptoms. But > women's symptoms were extremely high and most had normal or only slightly > elevated enzymes so they didn't correlate at all. > > I can't tell you how impressed I am that you would even consider the idea > that hepC might affect women more severely (in symptoms) than men. > Particularly because you are a man. I don't know what the general opinion is > in your culture about women and disease, but here both men and male > physicians usually assume that women are not as ill as we say we are and are > probably neurotic, depressed, or unhappy with our lives. I've always been > overwhelmed by this arrogance. For most of us women it means not only having > to fight the disease but fight for validation as well, and people don't feel > sorry for someone who they think is 'faking', even doctors. So we're offered > antidepressants and sent into phych wards. > > This particular topic that you've touched on has been my main focus for > many, many years. It's what finally made me decide to fight back against a > cultural and medical society that disregards our delemma and our value. I > just got pissed off and decided that I was going to learn as much as I could > in order to help as many as I could. I've proudly been an irritation to the > medical community for a long time. But I also want to say that I'm not > anti-male (I have a great affection for men) and I'm not anti-male > physician. > We all, no matter what profession we're in, can fall prey to culturally > conditioned vews. But it's most impressive to see someone, who instead of > jumping on the assumption that women are neurotic, wonders if it's possible > that hepC affects women more severely than men. > > > The following is a report from Cece Uneek@... > I just thought I would pass on a little info here regarding the new herbs > that I have been taking since I ran out of Amantadine and haven't gotten a > new doc yet. > The current results of my new herb routine probably won't interest the men > much....but then I guess they have hormones too just not the same > amounts/kinds so who knows. > Since I first got sick with this crappy stuff I have had MAJOR problems with > my periods. In fact one of the signs (to me) that something was seriously > wrong (when I first got ill) was that I missed two periods in a row. > For you guys not too familiar with this stuff....if a woman has ALWAYS been > regular as clock-work and knows that she CAN'T be pregnant and yet something > has gone haywire with her period.....it is cause for MAJOR concern. CANCER > is usually the worry that instantly comes to mind. I however related it to > what I thought at the time was toxic chemical poisoning. > ANYWAY.......through the last 6 years of this ordeal with the HepC, my > periods have been ALL messed up (or missing entirely) along with the > accompanying weight fluctuations etc. For the last two weeks I have been > taking new herbs to try to keep the hep under control until I can get back > on my Amantadine schedule. > Low and behold....for the first time since February of 1996 ---- I started > my period. I won't know if the herbs are directly responsible or whether > this will continue at this point. > When all this started, I was only 38 and toooo young for the change to be > happening. > Now at 44 (when it is fairly normal for the change to start) it will be much > harder to decifer what is REALLY going on. > BUT....I am choosing at this particular point in time to attribute this > occurance to a balancing of the hormones and stuff due to the herbs. It will > be interesting to see if it does anything regarding the weight gain and > fluid build up as well. So here is what I am taking --- if anyone sees > anything that SHOULDN'T be taken for the liver just holler real loud OK?? I > am not taking anywhere near what they recommend even for " dietary " purposes > ...... just in case there is something that doesn't sit well to begin with. > If all goes well, then I may slowly up the dosage one complex at a time and > see what happens. For now though I am taking: > Astragalus/Schisandra Complex with added Licorice Root, > Shu Di Huong Root 35 drops in wate > Twice daily Milk Thistle/Dandelion Complex with added Red Root, > Oregon Grape Root 35 drops in water > Twice daily St. 's Wort (hypericin) 35 drops in water > Twice daily Lymph Cleanse (a Homeopathic Remedy) 0.6ml twice daily under the > tongue > I threw in the Lymph Cleanse because I firmly believe that the lymph glands > get clogged up whenever you get sick, and I also think the lymph gland > clogging may play a major role in chronic disease and immune system diseases > that go along with it. My lymph glands have been swollen and sore since this > all began. It was in fact the very first thing they checked at the Chronic > Fatigue Clinic. I still find it strange that none of the doctors ever do > anything about it though. > > Hepatitis http://www.hepatitis-c.de/allhep.htm > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 > This was given to me from a chatroom friend. We seem to concur that women > seem to have better results with treatment and fewer sides, but worse hep c > sides than men. Course, we didn't do a scientific study. Just our opinion. > Thot I'd share > Pat > kenandpat@... > oshidori@... > > " The gold in one's heart is more precious than the gold in one's pocket " > Confucius > > Women and Hepatitis C > In the following you can read parts from a correspondence between me and > Emaliss. If you want to discuss this topic please write to: EMALISS or to > Ingo d'Alquen > > I wrote: > During the last two weeks I have an increasing number of visitors on my > homepage- up to 30 readers a day. Do you see a similar growth? (I was > thinking about a growing public interest) There is one other thing very > surprising to me: normally they say that there is one woman in ten computer > users- on my site the proportion is 1: 2 ! Either women take this disease > more serious ( thinking of kids and their responsibility) or they just are > more affected ( infected) than men. Do you have similar 'insights'? > > Emaliss answered: > It's not only my opinion, but also my experience, that women are typically > more symptomatic than men, and sympomatic earlier than men. I talk about > this in my editorial about Chronic Fatigue Syndrom (CFS) and HepC. We know > that hepC can and does trigger hyperactive autoimmune disease like lupus, > rhumatoid arthritis, thyroiditis, autoimmune (lupoid) hepatitis, etc. And > because of the differences in body chemistry, women are affected 8-1 over > men by these diseases. > > I conducted a survey a while back and sent out check lists grading the > severity of symptoms using the CFS symptoms chart (the symptoms are very > similar). I asked people to grade symptoms from 0 (none) to 10 (very severe) > and also asked them to list their last enzyme results. I was astonished at > the results. The majority of men either had none to mild symptoms and their > enzyme levels seemed to correlate with symptoms. They felt more ill when > their enzyme levels were up, but in general few had 'severe' symptoms. But > women's symptoms were extremely high and most had normal or only slightly > elevated enzymes so they didn't correlate at all. > > I can't tell you how impressed I am that you would even consider the idea > that hepC might affect women more severely (in symptoms) than men. > Particularly because you are a man. I don't know what the general opinion is > in your culture about women and disease, but here both men and male > physicians usually assume that women are not as ill as we say we are and are > probably neurotic, depressed, or unhappy with our lives. I've always been > overwhelmed by this arrogance. For most of us women it means not only having > to fight the disease but fight for validation as well, and people don't feel > sorry for someone who they think is 'faking', even doctors. So we're offered > antidepressants and sent into phych wards. > > This particular topic that you've touched on has been my main focus for > many, many years. It's what finally made me decide to fight back against a > cultural and medical society that disregards our delemma and our value. I > just got pissed off and decided that I was going to learn as much as I could > in order to help as many as I could. I've proudly been an irritation to the > medical community for a long time. But I also want to say that I'm not > anti-male (I have a great affection for men) and I'm not anti-male > physician. > We all, no matter what profession we're in, can fall prey to culturally > conditioned vews. But it's most impressive to see someone, who instead of > jumping on the assumption that women are neurotic, wonders if it's possible > that hepC affects women more severely than men. > > > The following is a report from Cece Uneek@... > I just thought I would pass on a little info here regarding the new herbs > that I have been taking since I ran out of Amantadine and haven't gotten a > new doc yet. > The current results of my new herb routine probably won't interest the men > much....but then I guess they have hormones too just not the same > amounts/kinds so who knows. > Since I first got sick with this crappy stuff I have had MAJOR problems with > my periods. In fact one of the signs (to me) that something was seriously > wrong (when I first got ill) was that I missed two periods in a row. > For you guys not too familiar with this stuff....if a woman has ALWAYS been > regular as clock-work and knows that she CAN'T be pregnant and yet something > has gone haywire with her period.....it is cause for MAJOR concern. CANCER > is usually the worry that instantly comes to mind. I however related it to > what I thought at the time was toxic chemical poisoning. > ANYWAY.......through the last 6 years of this ordeal with the HepC, my > periods have been ALL messed up (or missing entirely) along with the > accompanying weight fluctuations etc. For the last two weeks I have been > taking new herbs to try to keep the hep under control until I can get back > on my Amantadine schedule. > Low and behold....for the first time since February of 1996 ---- I started > my period. I won't know if the herbs are directly responsible or whether > this will continue at this point. > When all this started, I was only 38 and toooo young for the change to be > happening. > Now at 44 (when it is fairly normal for the change to start) it will be much > harder to decifer what is REALLY going on. > BUT....I am choosing at this particular point in time to attribute this > occurance to a balancing of the hormones and stuff due to the herbs. It will > be interesting to see if it does anything regarding the weight gain and > fluid build up as well. So here is what I am taking --- if anyone sees > anything that SHOULDN'T be taken for the liver just holler real loud OK?? I > am not taking anywhere near what they recommend even for " dietary " purposes > ...... just in case there is something that doesn't sit well to begin with. > If all goes well, then I may slowly up the dosage one complex at a time and > see what happens. For now though I am taking: > Astragalus/Schisandra Complex with added Licorice Root, > Shu Di Huong Root 35 drops in wate > Twice daily Milk Thistle/Dandelion Complex with added Red Root, > Oregon Grape Root 35 drops in water > Twice daily St. 's Wort (hypericin) 35 drops in water > Twice daily Lymph Cleanse (a Homeopathic Remedy) 0.6ml twice daily under the > tongue > I threw in the Lymph Cleanse because I firmly believe that the lymph glands > get clogged up whenever you get sick, and I also think the lymph gland > clogging may play a major role in chronic disease and immune system diseases > that go along with it. My lymph glands have been swollen and sore since this > all began. It was in fact the very first thing they checked at the Chronic > Fatigue Clinic. I still find it strange that none of the doctors ever do > anything about it though. > > Hepatitis http://www.hepatitis-c.de/allhep.htm > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 > This was given to me from a chatroom friend. We seem to concur that women > seem to have better results with treatment and fewer sides, but worse hep c > sides than men. Course, we didn't do a scientific study. Just our opinion. > Thot I'd share > Pat > kenandpat@... > oshidori@... > > " The gold in one's heart is more precious than the gold in one's pocket " > Confucius > > Women and Hepatitis C > In the following you can read parts from a correspondence between me and > Emaliss. If you want to discuss this topic please write to: EMALISS or to > Ingo d'Alquen > > I wrote: > During the last two weeks I have an increasing number of visitors on my > homepage- up to 30 readers a day. Do you see a similar growth? (I was > thinking about a growing public interest) There is one other thing very > surprising to me: normally they say that there is one woman in ten computer > users- on my site the proportion is 1: 2 ! Either women take this disease > more serious ( thinking of kids and their responsibility) or they just are > more affected ( infected) than men. Do you have similar 'insights'? > > Emaliss answered: > It's not only my opinion, but also my experience, that women are typically > more symptomatic than men, and sympomatic earlier than men. I talk about > this in my editorial about Chronic Fatigue Syndrom (CFS) and HepC. We know > that hepC can and does trigger hyperactive autoimmune disease like lupus, > rhumatoid arthritis, thyroiditis, autoimmune (lupoid) hepatitis, etc. And > because of the differences in body chemistry, women are affected 8-1 over > men by these diseases. > > I conducted a survey a while back and sent out check lists grading the > severity of symptoms using the CFS symptoms chart (the symptoms are very > similar). I asked people to grade symptoms from 0 (none) to 10 (very severe) > and also asked them to list their last enzyme results. I was astonished at > the results. The majority of men either had none to mild symptoms and their > enzyme levels seemed to correlate with symptoms. They felt more ill when > their enzyme levels were up, but in general few had 'severe' symptoms. But > women's symptoms were extremely high and most had normal or only slightly > elevated enzymes so they didn't correlate at all. > > I can't tell you how impressed I am that you would even consider the idea > that hepC might affect women more severely (in symptoms) than men. > Particularly because you are a man. I don't know what the general opinion is > in your culture about women and disease, but here both men and male > physicians usually assume that women are not as ill as we say we are and are > probably neurotic, depressed, or unhappy with our lives. I've always been > overwhelmed by this arrogance. For most of us women it means not only having > to fight the disease but fight for validation as well, and people don't feel > sorry for someone who they think is 'faking', even doctors. So we're offered > antidepressants and sent into phych wards. > > This particular topic that you've touched on has been my main focus for > many, many years. It's what finally made me decide to fight back against a > cultural and medical society that disregards our delemma and our value. I > just got pissed off and decided that I was going to learn as much as I could > in order to help as many as I could. I've proudly been an irritation to the > medical community for a long time. But I also want to say that I'm not > anti-male (I have a great affection for men) and I'm not anti-male > physician. > We all, no matter what profession we're in, can fall prey to culturally > conditioned vews. But it's most impressive to see someone, who instead of > jumping on the assumption that women are neurotic, wonders if it's possible > that hepC affects women more severely than men. > > > The following is a report from Cece Uneek@... > I just thought I would pass on a little info here regarding the new herbs > that I have been taking since I ran out of Amantadine and haven't gotten a > new doc yet. > The current results of my new herb routine probably won't interest the men > much....but then I guess they have hormones too just not the same > amounts/kinds so who knows. > Since I first got sick with this crappy stuff I have had MAJOR problems with > my periods. In fact one of the signs (to me) that something was seriously > wrong (when I first got ill) was that I missed two periods in a row. > For you guys not too familiar with this stuff....if a woman has ALWAYS been > regular as clock-work and knows that she CAN'T be pregnant and yet something > has gone haywire with her period.....it is cause for MAJOR concern. CANCER > is usually the worry that instantly comes to mind. I however related it to > what I thought at the time was toxic chemical poisoning. > ANYWAY.......through the last 6 years of this ordeal with the HepC, my > periods have been ALL messed up (or missing entirely) along with the > accompanying weight fluctuations etc. For the last two weeks I have been > taking new herbs to try to keep the hep under control until I can get back > on my Amantadine schedule. > Low and behold....for the first time since February of 1996 ---- I started > my period. I won't know if the herbs are directly responsible or whether > this will continue at this point. > When all this started, I was only 38 and toooo young for the change to be > happening. > Now at 44 (when it is fairly normal for the change to start) it will be much > harder to decifer what is REALLY going on. > BUT....I am choosing at this particular point in time to attribute this > occurance to a balancing of the hormones and stuff due to the herbs. It will > be interesting to see if it does anything regarding the weight gain and > fluid build up as well. So here is what I am taking --- if anyone sees > anything that SHOULDN'T be taken for the liver just holler real loud OK?? I > am not taking anywhere near what they recommend even for " dietary " purposes > ...... just in case there is something that doesn't sit well to begin with. > If all goes well, then I may slowly up the dosage one complex at a time and > see what happens. For now though I am taking: > Astragalus/Schisandra Complex with added Licorice Root, > Shu Di Huong Root 35 drops in wate > Twice daily Milk Thistle/Dandelion Complex with added Red Root, > Oregon Grape Root 35 drops in water > Twice daily St. 's Wort (hypericin) 35 drops in water > Twice daily Lymph Cleanse (a Homeopathic Remedy) 0.6ml twice daily under the > tongue > I threw in the Lymph Cleanse because I firmly believe that the lymph glands > get clogged up whenever you get sick, and I also think the lymph gland > clogging may play a major role in chronic disease and immune system diseases > that go along with it. My lymph glands have been swollen and sore since this > all began. It was in fact the very first thing they checked at the Chronic > Fatigue Clinic. I still find it strange that none of the doctors ever do > anything about it though. > > Hepatitis http://www.hepatitis-c.de/allhep.htm > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 > This was given to me from a chatroom friend. We seem to concur that women > seem to have better results with treatment and fewer sides, but worse hep c > sides than men. Course, we didn't do a scientific study. Just our opinion. > Thot I'd share > Pat > kenandpat@... > oshidori@... > > " The gold in one's heart is more precious than the gold in one's pocket " > Confucius > > Women and Hepatitis C > In the following you can read parts from a correspondence between me and > Emaliss. If you want to discuss this topic please write to: EMALISS or to > Ingo d'Alquen > > I wrote: > During the last two weeks I have an increasing number of visitors on my > homepage- up to 30 readers a day. Do you see a similar growth? (I was > thinking about a growing public interest) There is one other thing very > surprising to me: normally they say that there is one woman in ten computer > users- on my site the proportion is 1: 2 ! Either women take this disease > more serious ( thinking of kids and their responsibility) or they just are > more affected ( infected) than men. Do you have similar 'insights'? > > Emaliss answered: > It's not only my opinion, but also my experience, that women are typically > more symptomatic than men, and sympomatic earlier than men. I talk about > this in my editorial about Chronic Fatigue Syndrom (CFS) and HepC. We know > that hepC can and does trigger hyperactive autoimmune disease like lupus, > rhumatoid arthritis, thyroiditis, autoimmune (lupoid) hepatitis, etc. And > because of the differences in body chemistry, women are affected 8-1 over > men by these diseases. > > I conducted a survey a while back and sent out check lists grading the > severity of symptoms using the CFS symptoms chart (the symptoms are very > similar). I asked people to grade symptoms from 0 (none) to 10 (very severe) > and also asked them to list their last enzyme results. I was astonished at > the results. The majority of men either had none to mild symptoms and their > enzyme levels seemed to correlate with symptoms. They felt more ill when > their enzyme levels were up, but in general few had 'severe' symptoms. But > women's symptoms were extremely high and most had normal or only slightly > elevated enzymes so they didn't correlate at all. > > I can't tell you how impressed I am that you would even consider the idea > that hepC might affect women more severely (in symptoms) than men. > Particularly because you are a man. I don't know what the general opinion is > in your culture about women and disease, but here both men and male > physicians usually assume that women are not as ill as we say we are and are > probably neurotic, depressed, or unhappy with our lives. I've always been > overwhelmed by this arrogance. For most of us women it means not only having > to fight the disease but fight for validation as well, and people don't feel > sorry for someone who they think is 'faking', even doctors. So we're offered > antidepressants and sent into phych wards. > > This particular topic that you've touched on has been my main focus for > many, many years. It's what finally made me decide to fight back against a > cultural and medical society that disregards our delemma and our value. I > just got pissed off and decided that I was going to learn as much as I could > in order to help as many as I could. I've proudly been an irritation to the > medical community for a long time. But I also want to say that I'm not > anti-male (I have a great affection for men) and I'm not anti-male > physician. > We all, no matter what profession we're in, can fall prey to culturally > conditioned vews. But it's most impressive to see someone, who instead of > jumping on the assumption that women are neurotic, wonders if it's possible > that hepC affects women more severely than men. > > > The following is a report from Cece Uneek@... > I just thought I would pass on a little info here regarding the new herbs > that I have been taking since I ran out of Amantadine and haven't gotten a > new doc yet. > The current results of my new herb routine probably won't interest the men > much....but then I guess they have hormones too just not the same > amounts/kinds so who knows. > Since I first got sick with this crappy stuff I have had MAJOR problems with > my periods. In fact one of the signs (to me) that something was seriously > wrong (when I first got ill) was that I missed two periods in a row. > For you guys not too familiar with this stuff....if a woman has ALWAYS been > regular as clock-work and knows that she CAN'T be pregnant and yet something > has gone haywire with her period.....it is cause for MAJOR concern. CANCER > is usually the worry that instantly comes to mind. I however related it to > what I thought at the time was toxic chemical poisoning. > ANYWAY.......through the last 6 years of this ordeal with the HepC, my > periods have been ALL messed up (or missing entirely) along with the > accompanying weight fluctuations etc. For the last two weeks I have been > taking new herbs to try to keep the hep under control until I can get back > on my Amantadine schedule. > Low and behold....for the first time since February of 1996 ---- I started > my period. I won't know if the herbs are directly responsible or whether > this will continue at this point. > When all this started, I was only 38 and toooo young for the change to be > happening. > Now at 44 (when it is fairly normal for the change to start) it will be much > harder to decifer what is REALLY going on. > BUT....I am choosing at this particular point in time to attribute this > occurance to a balancing of the hormones and stuff due to the herbs. It will > be interesting to see if it does anything regarding the weight gain and > fluid build up as well. So here is what I am taking --- if anyone sees > anything that SHOULDN'T be taken for the liver just holler real loud OK?? I > am not taking anywhere near what they recommend even for " dietary " purposes > ...... just in case there is something that doesn't sit well to begin with. > If all goes well, then I may slowly up the dosage one complex at a time and > see what happens. For now though I am taking: > Astragalus/Schisandra Complex with added Licorice Root, > Shu Di Huong Root 35 drops in wate > Twice daily Milk Thistle/Dandelion Complex with added Red Root, > Oregon Grape Root 35 drops in water > Twice daily St. 's Wort (hypericin) 35 drops in water > Twice daily Lymph Cleanse (a Homeopathic Remedy) 0.6ml twice daily under the > tongue > I threw in the Lymph Cleanse because I firmly believe that the lymph glands > get clogged up whenever you get sick, and I also think the lymph gland > clogging may play a major role in chronic disease and immune system diseases > that go along with it. My lymph glands have been swollen and sore since this > all began. It was in fact the very first thing they checked at the Chronic > Fatigue Clinic. I still find it strange that none of the doctors ever do > anything about it though. > > Hepatitis http://www.hepatitis-c.de/allhep.htm > > Quote Link to comment Share on other sites More sharing options...
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