Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 -----Original Message-----From: Demastus@... [mailto:Demastus@...]Sent: Thursday, July 20, 2000 1:40 AMHepCegroupsCc: MaggieM741@...Subject: [HepC] Re: HelpIn a message dated 07/20/2000 2:00:46 AM Central Daylight Time, nativelaw@... writes:<< Maggie,Educate yourself, join a good support group, research the latest on the web, and then go into your doctor's office loaded for bear. It's not that they are trying to drop the ball on you,it's just that they REALLY don't know, and hate like hell to tell us that they don't know what to do next. I write a weekly column on www.themestream.com called "Living with Hepatitis C,"and I also post other helpful info there too. If you're interested check it out, or any of the following websites:HePC Connection; National Institiute of Health; HepNet, HepCure; HepCare, http://www.bugbear.net/justice/index.html; National Hepatitis C Coalition; http://home.texoma.net/~moreland/ andthe Hepatitis C Information Network, just to name a few. I was also one that the doctor told to stop taking the therapy, but it was making me sicker than the HCV, and also drove my whitecount, platelet levels, other clotting factors to dangerously low levels. I don't know what your symptomology is, but for the past two years, I have been controlling mine with diet,exercise, rest, and a positive Never give up, never give in attitude. I hope that this has helped you some. Take care.Best wishesLloydene HillDemastus@... wrote:> In a message dated 07/19/2000 8:45:56 PM Central Daylight Time,> MaggieM741@... writes:>> << How do I proceed? I've been in the standard combo therapy for 6 months. I> got a call from the nurse at my Doctor's Office Monday telling me that the> Doctor said to stop taking the drugs because they weren't working, based on> my test results. Then she said that I could call in Fall & see if there were> any clinical studies that I can participate in.> I feel like I'm being written off.> What should I do? Is this standard practice? Do they give up monitoring> you? Should I just go back to my GP? I am at a loss as to how to proceed. Am> I wrong in being disappointed in my Doctor?> Thanks for any answers that you can provide.>> MaggieM741@... >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 -----Original Message-----From: Demastus@... [mailto:Demastus@...]Sent: Thursday, July 20, 2000 1:40 AMHepCegroupsCc: MaggieM741@...Subject: [HepC] Re: HelpIn a message dated 07/20/2000 2:00:46 AM Central Daylight Time, nativelaw@... writes:<< Maggie,Educate yourself, join a good support group, research the latest on the web, and then go into your doctor's office loaded for bear. It's not that they are trying to drop the ball on you,it's just that they REALLY don't know, and hate like hell to tell us that they don't know what to do next. I write a weekly column on www.themestream.com called "Living with Hepatitis C,"and I also post other helpful info there too. If you're interested check it out, or any of the following websites:HePC Connection; National Institiute of Health; HepNet, HepCure; HepCare, http://www.bugbear.net/justice/index.html; National Hepatitis C Coalition; http://home.texoma.net/~moreland/ andthe Hepatitis C Information Network, just to name a few. I was also one that the doctor told to stop taking the therapy, but it was making me sicker than the HCV, and also drove my whitecount, platelet levels, other clotting factors to dangerously low levels. I don't know what your symptomology is, but for the past two years, I have been controlling mine with diet,exercise, rest, and a positive Never give up, never give in attitude. I hope that this has helped you some. Take care.Best wishesLloydene HillDemastus@... wrote:> In a message dated 07/19/2000 8:45:56 PM Central Daylight Time,> MaggieM741@... writes:>> << How do I proceed? I've been in the standard combo therapy for 6 months. I> got a call from the nurse at my Doctor's Office Monday telling me that the> Doctor said to stop taking the drugs because they weren't working, based on> my test results. Then she said that I could call in Fall & see if there were> any clinical studies that I can participate in.> I feel like I'm being written off.> What should I do? Is this standard practice? Do they give up monitoring> you? Should I just go back to my GP? I am at a loss as to how to proceed. Am> I wrong in being disappointed in my Doctor?> Thanks for any answers that you can provide.>> MaggieM741@... >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 -----Original Message-----From: Demastus@... [mailto:Demastus@...]Sent: Thursday, July 20, 2000 1:40 AMHepCegroupsCc: MaggieM741@...Subject: [HepC] Re: HelpIn a message dated 07/20/2000 2:00:46 AM Central Daylight Time, nativelaw@... writes:<< Maggie,Educate yourself, join a good support group, research the latest on the web, and then go into your doctor's office loaded for bear. It's not that they are trying to drop the ball on you,it's just that they REALLY don't know, and hate like hell to tell us that they don't know what to do next. I write a weekly column on www.themestream.com called "Living with Hepatitis C,"and I also post other helpful info there too. If you're interested check it out, or any of the following websites:HePC Connection; National Institiute of Health; HepNet, HepCure; HepCare, http://www.bugbear.net/justice/index.html; National Hepatitis C Coalition; http://home.texoma.net/~moreland/ andthe Hepatitis C Information Network, just to name a few. I was also one that the doctor told to stop taking the therapy, but it was making me sicker than the HCV, and also drove my whitecount, platelet levels, other clotting factors to dangerously low levels. I don't know what your symptomology is, but for the past two years, I have been controlling mine with diet,exercise, rest, and a positive Never give up, never give in attitude. I hope that this has helped you some. Take care.Best wishesLloydene HillDemastus@... wrote:> In a message dated 07/19/2000 8:45:56 PM Central Daylight Time,> MaggieM741@... writes:>> << How do I proceed? I've been in the standard combo therapy for 6 months. I> got a call from the nurse at my Doctor's Office Monday telling me that the> Doctor said to stop taking the drugs because they weren't working, based on> my test results. Then she said that I could call in Fall & see if there were> any clinical studies that I can participate in.> I feel like I'm being written off.> What should I do? Is this standard practice? Do they give up monitoring> you? Should I just go back to my GP? I am at a loss as to how to proceed. Am> I wrong in being disappointed in my Doctor?> Thanks for any answers that you can provide.>> MaggieM741@... >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2000 Report Share Posted July 23, 2000 -----Original Message-----From: Demastus@... [mailto:Demastus@...]Sent: Thursday, July 20, 2000 1:40 AMHepCegroupsCc: MaggieM741@...Subject: [HepC] Re: HelpIn a message dated 07/20/2000 2:00:46 AM Central Daylight Time, nativelaw@... writes:<< Maggie,Educate yourself, join a good support group, research the latest on the web, and then go into your doctor's office loaded for bear. It's not that they are trying to drop the ball on you,it's just that they REALLY don't know, and hate like hell to tell us that they don't know what to do next. I write a weekly column on www.themestream.com called "Living with Hepatitis C,"and I also post other helpful info there too. If you're interested check it out, or any of the following websites:HePC Connection; National Institiute of Health; HepNet, HepCure; HepCare, http://www.bugbear.net/justice/index.html; National Hepatitis C Coalition; http://home.texoma.net/~moreland/ andthe Hepatitis C Information Network, just to name a few. I was also one that the doctor told to stop taking the therapy, but it was making me sicker than the HCV, and also drove my whitecount, platelet levels, other clotting factors to dangerously low levels. I don't know what your symptomology is, but for the past two years, I have been controlling mine with diet,exercise, rest, and a positive Never give up, never give in attitude. I hope that this has helped you some. Take care.Best wishesLloydene HillDemastus@... wrote:> In a message dated 07/19/2000 8:45:56 PM Central Daylight Time,> MaggieM741@... writes:>> << How do I proceed? I've been in the standard combo therapy for 6 months. I> got a call from the nurse at my Doctor's Office Monday telling me that the> Doctor said to stop taking the drugs because they weren't working, based on> my test results. Then she said that I could call in Fall & see if there were> any clinical studies that I can participate in.> I feel like I'm being written off.> What should I do? Is this standard practice? Do they give up monitoring> you? Should I just go back to my GP? I am at a loss as to how to proceed. Am> I wrong in being disappointed in my Doctor?> Thanks for any answers that you can provide.>> MaggieM741@... >> >> Quote Link to comment Share on other sites More sharing options...
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