Happy Birthday Rainy Sue!!!

[Guest guest]

Happy belated birthday! You got a lot of nice presents!

I hope you have many many more.

a

----- Original Message -----

From: <Rysu19@...>

< egroups>

Sent: Wednesday, November 22, 2000 3:21 AM

Subject: [ ] (Connie Mom read this too) ~ ~ Everyone

> Hi & Everyone,

>

> is right about that! I usually can't stay quiet for long! I have been

> here since January 5, 2000. It was the best thing I did to start my new

> Millennium! I am now working on my 19th year of Rheumatoid Arthritis. I am

> all crippled, crooked and bent. And that's just my head! LOL. No,

seriously,

> I am pretty disabled, but I do my best not to let it get me down. I had a

> moment on Saturday when Mom was here that I got down about how my right

hand

> seems to be getting worse. I worry about my hands and my eyes most of all,

> now, as far as damage. My hands and eyes are what I entertain myself with,

> computer, TV, and reading. Since I am bringing this up, what would you do

if

> suddenly you lost your sight with this crippling disease? How would we

cope??

> I run into things with my eyes wide open, what would I do in the dark? I

know

> I am just hypothesizing, but sometimes I think about it when I am having a

> down day. I just want my hands. I am going to ask my doc about surgery

when I

> seen him next month and see what he says. It is only my right hand that

seems

> to be getting bad.

>

> Anyway, I am here. =) I started coming down with a cold 2 weeks ago and

ended

> up losing my voice and being sick up till now. I still have a little cough

> left, but I am much better. I had to cancel my November 8, Remicade appt.

> Yesterday, Monday, the 20th, was 9 weeks since my last treatment, and the

> pain isn't too bad. I am impressed. My nurse told me to call when I am

better

> to reschedule. I also stopped my Arava during this to let my immune system

> fight this off. Normally, when I get this, which is once a year, I am

sicker

> longer than I was this time. I know that has to do with putting a halt on

the

> Arava as well.

>

> So, what did I do for 2 weeks? I laid out in the living room and watched

> digital cable. Movie after movie, etc. And slept. I didn't do anything I

> didn't have to do. I just wanted to get well fast as possible. I did the

> dishes once so I had clean stuff to make food with to keep my strength up.

> Otherwise, Ryder brought me food or made my meals. =) While laid up, I

tried

> to do a little poetry writing. Not much luck. I think I am in a small

block.

> It happens occasionally. I sure had fun sleeping all day!

>

> Sunday was my 32nd birthday. Ryder got me the scanner I have wanted

forever!

> As soon as I am caught up on some stuff around here, I will be scanning

> everything in sight! I plan to take the instructions to bed with me

tonight

> to learn what I can. My Mom came over and spent the whole day with me

> Saturday and we celebrated my birthday. We made dinner together and

watched

> " Mickey Blue Eyes, " and " Notting Hill. " It was Hugh Grant day on cable! I

> also got a great massage! From Mom and Bob I got a 4 drawer filing

cabinet,

> new pots & pans!, 2 photo albums!, oh oh, and silverware, and Mom got me

this

> very precious adorable crystal clear sleeping kitty candle holder. She is

a

> little beauty I will use for our special candle days. =)

>

> LOL. You know what I did tonight?! I scanned my right hand. I was going to

> try and see how well it turned out and put it up on a web sight to show

you

> all how crippled it is. It scanned pretty well, so I will look at it again

> later, and do a couple more scans. I still need to figure the scanner out

a

> bit.

>

> Night Night.

> ~Rainy Sue

>

>

> In a message dated 11/19/00 7:31:41 AM Pacific Standard Time,

> Matsumura_Clan@... writes:

>

> > The best of luck to you tomorrow, !

> >

> > Rainy Sue is one of our most vocal members, and she has had much

success

> > with Remicade. I haven't seen a post from her for several days now

(which

> is

> > fairly unusual for her - I hope she's OK), but I'm sure she will be

happy

> to

> > tell you what her experience has been.

> >

> > Sorry that you are having such a rough time right now. I hope that the

> whole

> > process goes very smoothly and that you feel noticeable positive

results

> > very, very soon.

> >

> >

>

>

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