hello

[Guest guest]

yes, sent you an email. will confirm....

At 10:03 AM 3/21/2008, you wrote:

>Hi Diane,

>

>good for you. are you still planning your florida trip in may?

>

>george

>

>

> >

> > i have been travelling a bit -- had a business trip to ny/ct -- my

> > old cronies who hadnt seen me in a while were very surprised! my mom,

> > who hadnt seen me in a while was pleased. size is a major issue with

>her.

> >

> > Diane B

> >

>

>

>

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>

[Guest guest]

I'm 58. I just had both of my knees replaced with great success. I just read

your letter and my heart goes out to you. You have lived any person wrose

nightmare. Good luck to you.

Bev

Hello

Hi;

I wanted to introduce myself. My name is Angel, I am a 53 year old

female and I had my first PKR a year ago this month. It failed due to

the doctor cutting too much from my tibia and I had to have a

revision in May 07, that also failed and I had to have a revision to

a TKR in Oct 07. That was 3 major surgeries in exactly 7 months. My

TKR also failed due to the extensive truama to my knee. I changed OSs

after the first 2 surgeries, and the 2nd OS did a good job with what

he had to work with. He did not take care of pain management after

surgery but he failed to inform me of this and I went 2 weeks without

pain control until I could get into a pain management doctor.

I have extensive nerve damage in my right leg and I am on pain meds

to keep me functioning to this day. I finally went to Baylor College

of Orhtopedic Surgery and have found a wonderful surgeon whom I trust

very much. Although it is too late for my right knee, I have a 75

degree flex, 0 extension, I will be having my left knee replaced

around Oct. of this year.

The first surgeon left my knee is such a mess, I will never be able

to have another revision at all. If this TKR fails, I will be looking

at fusion. I am happy for all of you who have had replacements and

are back to your lives, it can be done, but make sure you have a

surgeon who cares more about his patients than the money he will be

getting from your insurance.

Oh, I did file negligence against him and he settled out of court.

I couldn't get my knee back, but I left a sizable hole in his wallet.

Good luck to you all.

Angel

------------------------------------

[Guest guest]

Thank you Beverly for your rely. I still have days that seem to want

to close in on me, but I refuse to let that os take anything else from

me. I have a wonderful family and my husband has been so good about

being right there for me. At times I do still have anger, but I have a

right to be angry, but I refuse to let anger ruin my life. I went from

working 9 1/2 hours a day to a wheel chair in 11 months, because of

this os, and he is a well known os with a good name. You can never be

too careful. Take care.

Angel

[Guest guest]

Hi Kirsten,

This might sound a bit flip, but not meant that way, have you

thought of asking for the referral to Dr. S for the supposed ME.

My GP was a bit sceptical when I asked for a referral to him, but I added

'I'ts my money' and got the referral.

In the mean time can you ask for an increase of the T4- after all 100mcg is

not a large dose- most folk are on 125 to 150mcg if the TSH isn't too low

this should not be a problem and may help a bit- if it doesn't then you

obviously have a conversion problem and need T3 or better still Armour.

Check with the symptoms list on the site to make sure you don't have adrenal

problems as this can make it harder for the body to utilise thyroid

hormones. Supplementing with zinc and selenium which are both essential to

thyroid conversion can help too as most folk in the UK tend to be low in

these minerals.

If you can't get a referral then Dr Peatfield is the obvious choice.

,........What is frustrating is that I live just up the road from Dr.

Skinner's clinic in Birmingham, but I

cannot get a referral to him, as my doctors refuse to admit that there is a

problem with the

level of T4 or anything, they also think I have ME.

Anyone out there, who can advice me where to go for an other opinion that

does not just

look at blood tests but listen to me and my symptoms. Kirsten

------------------------------------

Messages are not a substitute for professional medical advice. Always

consult with a suitably qualified practitioner before changing

medication.

[Guest guest]

Hi there Kirsten, welcome to the group, we are not experts but we no the truth when it hits us. you may need to ask for an increase in your meds. i had a friend who like you had her thyroid removed. she was taking 300mg per day of levothyroxine. we are all different so this may be to much for you , but it shows that maybe you need a bit more! ask your doctor for a little bit more,if he refuses then consider buying some privately and trying a small increase. angel.

Sent from .

A Smarter Inbox.

[Guest guest]

HI Kirsten

That is extremely uncaring of both your GP and endocrinologist. If I was in your place, I would write to the doctor in question pointing out to him that even though you are on 100 mcgs L-thyroxine, you feel this is not having the effect on you that it should. You could explain to him that you KNOW there are many sufferers who have a conversion problem and cannot convert the thyroxine (T4) into T3 which is needed in every cell to make your body funciton. Go to our website www.tpa-uk.org.uk and click on "Hypothyroidism" and then on the drop down menu, click on Signs and Symptoms. Compare your list of symptoms against them and also the signs, and write all these down.

There are many reasons why synthetic L-thyroxine doesn't work.

1) You may have low adrenal reserve.

2) Your Ferritin (stored iron) level may be too low.

3) You may have Candida Albicans

4) Your dose of thyroxine may be too low

5) You have only a partial response to the single synthetic thyroxine replacement.

6) Receptor Resistance

7) Food allergies (i.e. gluten)

8) Hormone imbalances

You must NOT accept the refusal of your GP to refer you. Your GP is a GENERAL PRACTITIONER and he should refer you to a SPECIALIST - that is why we have specialists. Tell your GP (in the politest possible way of course) that you feel so poorly you intend to take this matter further and will be contacting your local Primary Care Trust to see if they are able to help you in your predicament. Also, next time you see your GP, take somebody with you as they often treat you differently if somebody else is present.

We have to be assertive in this game. It is OUR body and OUR health that is at stake here - when you walk out of their surgery, they forget all about you and get on with their next patient.

Hope this helps

Luv - Sheila

hello

Hello everybody, I am new to this group. And like many of you, I am looking for some guidance.I had a total thyroidectomy in June last year following a suspicious biopsy. I am on Levothyroxine 100 mcg a day and I feel absolutely awful, basically I can tick nearly every box of symptoms of hypo.My GP and endochrinologist, however, are convinced my symptoms are psyciatric, so will not look into my thyroid state. I was treated with anti depressants, but they made me so much worse, I had to stop.What is frustrating is that I live just up the road from Dr. Skinner's clinic in Birmingham, but I cannot get a referral to him, as my doctors refuse to admit that there is a problem with the level of T4 or anything, they also think I have ME.Anyone out there, who can advice me where to go for an other opinion that does not just look at blood tests but listen to me and my symptoms. Kirsten

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[Guest guest]

-What area are you?

Lynn

-- In Joint Replacement , " Angel " <alytle@...>

wrote:

>

> Thank you Beverly for your rely. I still have days that seem to want

> to close in on me, but I refuse to let that os take anything else

from

> me. I have a wonderful family and my husband has been so good about

> being right there for me. At times I do still have anger, but I have

a

> right to be angry, but I refuse to let anger ruin my life. I went

from

> working 9 1/2 hours a day to a wheel chair in 11 months, because of

> this os, and he is a well known os with a good name. You can never be

> too careful. Take care.

>

> Angel

>

[Guest guest]

Lynne;

I am in the Houston area. So many wonderful doctors here but

private practice OSs don't like to take on another OSs screw up. I

really like the OS at Baylor. He has taken really good care of me. I

just have to learn to live with what I was dealt, and go on with my

life. I will be having my left knee replaced in Oct. By that time my

lright knee will be healed pretty good. What area are you in?

Angel

[Guest guest]

Utah....I'm hoping Dr. ni is as good as he s rumoured to be. I

have a first visit in June as he is booked up for months. I wrote him

a letter with questions and asking if I could make a surgery

appointment so I wont have to wait another 3 months and he wrote back

a long letter answering all the questions and said yes. I was very

impressed.

Lynn

>

>

>

> Lynne;

> I am in the Houston area. So many wonderful doctors here but

> private practice OSs don't like to take on another OSs screw up. I

> really like the OS at Baylor. He has taken really good care of me.

I

> just have to learn to live with what I was dealt, and go on with my

> life. I will be having my left knee replaced in Oct. By that time

my

> lright knee will be healed pretty good. What area are you in?

>

> Angel

>

[Guest guest]

Hi - your message came as an attachment so Im wondering if some members didnt recieve it? Could you repost as a 'normal' message, and Im sure you will get some responses!

thanks,

Gill

I posted a question yesteday and have not had any responses.....

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[Guest guest]

I did post a normal message yesterday ....no response so I sent it as an attachment again this morning...too much to write again......I wonder what happened to my original message???GILL <gilljohnthurgo@...> wrote: Hi - your message came as an attachment so Im wondering if some members didnt recieve it? Could you repost as a 'normal' message, and Im sure you will get some responses! thanks, Gill I posted a question yesteday and have not had any responses..... Internal Virus Database is out-of-date.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.6/1192 - Release Date: 21/12/07 13:17

[Guest guest]

Hi Tammy, I had two hip surgeries about 2 years ago.

If I remember correctly, I had restrictions for about 3 months. I

used a grabber/reacher quite a bit. I only wore shoes with no laces

or else tied the laces down low so my foot slid into my shoe. I

don't think you need elastic laces.

I had a rule that I was to extend my operated leg when going from

sitting to standing. When I first got home from surgery I stood up

without extending that leg and I felt something go horribly wrong. I

ended up with a severe muscle strain that is still sort of with me.

So my advice is follow the restrictions they give you, get a grabber

and raised toilet seat (Home Depot), use slip on shoes, and it will

all be over before you know it.

Hollie

> Hello everyone. I'm a new member. And a new hip recipient. I had

a total hip replacement done on May 28th of this year. It's only

been a month, and I'm already walking with a cane. I was in the

hospital for a week, doing PT and OT. Then I went to Rehab for some

INTENSE PT and OT, then a program of in home therapy. Now, I'm doing

the exercises, and the walking on my own.

>

> I'm also visually impaired, so learning to do things " the 'hip'

way " has required some additional adaptations. For instance, I

use the reacher as a " locater " of sorts. It helps me locate an item

I've dropped so I can pick it up.

>

> For those of you who've had hip replacements, how long did you have

to observe the Hip Precautions? Having my shoes tied tight enough

for comfort, yet loose enough for me to slip into, is a bit of a

magic trick. Any suggestions? I know there are elastic shoelaces,

but where can you get them from? Is there a place I can order them

from? Being blind, I can't drive, so getting them from the rehab

center's gift shop is not an option.

>

> Well, I'll stop there. I'm hoping this message actually posts to

the list. I'm looking forward to talking with other joint

replacement patients.

>

> Take good care, all!

>

>

> Tammy Klaus

> tammy.kl@...

>

>

>

[Guest guest]

A lot of this fear and worry could be from your very low cortisol levels throughout the day , in fact I am pretty sure this is the case.

The 'lens' through which you are viewing your situation and the world is one of fear and anxiety because of the state of your physiology. So if you try to bear that in mind it might help you for now. Pretty soon things will improve, yes I would think you can dare hope!

Mo

After being ill for nearly 2 years and my life seems as if its been on hold and I have stopped doing things I used to do, does anyone feel scared when they get a little bit of hope that they could feel well?Its as if I am meant to be like this and not be well and it frightens me that I might soon be out of this hell hole of a prison and feel normal again, I desperatlty want that but its like 'too good to be true' and I should continue to suffer. I feel held back all the time and find myself wishing I could be like other people seem to be, anyone understand what I mean.Also can too much T4 cause a heart attack? I am now worrying about that!

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[Guest guest]

Thanks

That bought tears to my eyes, yes I think you are right, my health and how I feel is permenalty on my mind from waking to sleeping, it must take its toll on the mind let alone the body, who said life would be easy? I am always looking for a cure/solution.

Thanks Mo

From: moosborne@... <moosborne@...>Subject: Re: Hellothyroid treatment Date: Tuesday, 8 July, 2008, 5:29 PM

A lot of this fear and worry could be from your very low cortisol levels throughout the day , in fact I am pretty sure this is the case.

The 'lens' through which you are viewing your situation and the world is one of fear and anxiety because of the state of your physiology. So if you try to bear that in mind it might help you for now. Pretty soon things will improve, yes I would think you can dare hope!

Mo

After being ill for nearly 2 years and my life seems as if its been on hold and I have stopped doing things I used to do, does anyone feel scared when they get a little bit of hope that they could feel well?Its as if I am meant to be like this and not be well and it frightens me that I might soon be out of this hell hole of a prison and feel normal again, I desperatlty want that but its like 'too good to be true' and I should continue to suffer. I feel held back all the time and find myself wishing I could be like other people seem to be, anyone understand what I mean.Also can too much T4 cause a heart attack? I am now worrying about that!

____________ _________ _________ _________ _________ ____

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[Guest guest]

From my perspective ,

I completely agree with Mo, anxiety is part of the package it seems.

I have suffered raised levels of anxiety myself, particularly at

night. You just have to keep reminding yourself if poss that you've

gotten into a habit of these thought processes due to being unwell

which affects the way we view and approach situations. Two years is a

long time, you maybe can't remember feeling and thinking differently

by now.

I did find some things worsened anxiety, and aggravated the symtpoms,

one of which was certainly that evening glass or two of wine used to

wind down, In fact, I am unable to tolerate any alcohol now, and have

had to reduce caffeine too, although I can't give up a cuppa! But I

don't do coffee, fizzies etc either. I know everybody has different

intolerances, but those two are pretty common. Worth a try?

Another thing possibly to realise is when tiredness is setting in at

an earlier stage of the day, and give up then, instead of what us

ladies typically do and soldier on! I was actually beginning to run

down much earlier in the day than I believed, so by reducing what I

did, I reduced anxiety and sleep better as a result. Basically I've

dropped my expectations on myself until I get things sorted!

We must believe we can feel better!

x

>

>

> A lot of this fear and worry could be from your very low cortisol

levels throughout the day , in fact I am pretty sure this is the

case.

>

[Guest guest]

and the darkest hour is just before dawn , it is true!

Mo

Thanks

I am always looking for a cure/solution.

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[Guest guest]

You see the problem with me is that I carry on as if im not ill, I have 2 children, 16 and 14 and a partner to look after. I feel i HAVE to be well for them and hide all signs of feeling ill. I work part time in a special school and have never had a day off with this, god knows how I havent, some days I really shouldnt have gone in but I did. I do everything for my kids cos if I dont I feel I am failing as a mother, I would run myself ragged sometimes.

Only when all the jobs are done, all the work over for the day do I then sit down, like now and have some 'me' time.

All the above sounds mad I know but I cant help it, ,,,,,,, I cant give up coffee!!!!!!!!!

From: bty4852661 <marylinda@...>Subject: Re: Hellothyroid treatment Date: Tuesday, 8 July, 2008, 6:58 PM

From my perspective , I completely agree with Mo, anxiety is part of the package it seems. I have suffered raised levels of anxiety myself, particularly at night. You just have to keep reminding yourself if poss that you've gotten into a habit of these thought processes due to being unwell which affects the way we view and approach situations. Two years is a long time, you maybe can't remember feeling and thinking differently by now. x>> > A lot of this fear and worry could be from your very low cortisol levels throughout the day , in fact I am pretty sure this is the case.>

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[Guest guest]

Ah you sound like me, addicted to helping. Seriously!

We CAN help it, we just need to turn some of the helping instinct inwards towards ourselves girl...

I am still working on it but it certainly is perfectly possible.

Mo

You see the problem with me is that I carry on as if im not ill, I have 2 children, 16 and 14 and a partner to look after. I feel i HAVE to be well for them and hide all signs of feeling ill. I work part time in a special school and have never had a day off with this, god knows how I havent, some days I really shouldnt have gone in but I did. I do everything for my kids cos if I dont I feel I am failing as a mother, I would run myself ragged sometimes.

Only when all the jobs are done, all the work over for the day do I then sit down, like now and have some 'me' time.

All the above sounds mad I know but I cant help it, ,,,,,,, I cant give up coffee!!!!!!!!!

From: bty4852661 <marylindabtinternet>Subject: Re: Hellothyroid treatment Date: Tuesday, 8 July, 2008, 6:58 PM

From my perspective , I completely agree with Mo, anxiety is part of the package it seems. I have suffered raised levels of anxiety myself, particularly at night. You just have to keep reminding yourself if poss that you've gotten into a habit of these thought processes due to being unwell which affects the way we view and approach situations. Two years is a long time, you maybe can't remember feeling and thinking differently by now. x>> > A lot of this fear and worry could be from your very low cortisol levels throughout the day , in fact I am pretty sure this is the case.>

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[Guest guest]

Dear ,

Like you, I tried to keep up with everything - I worked full-time,

looked after a teenager, tried to keep everything in order. I think

that because I didn't stop, my body made me stop. I got to the

point where I had to cease working because of hypothyroidism. I

spent most of my time in bed with joint pain, brain fog and

incredible fatigue (+ many other symptoms).

, it is really important to look after yourself and slow down

now or else your thyroid may make you slow down and you won't have a

choice. I got to the point where I couldn't do housework because it

was too exhausting. Even getting up for a shower was too

exhausting. I wasn't depressed, just suffering the physical effects

of having an autoimmune thyroid disease and hypothyroidism. The

symptoms have only started to ease up in the last month or so.

I was formally diagnosed in early 2007, however I was hypothyroid

(without knowing it) prior to that time. I constantly pushed myself

and then my body made me stop rather abruptly in early 2007. Now I

HAVE to look after myself. Caring for myself is no longer

negotiable. My health depends on it. My family and friends know

that I cannot always do what I would like to do, and now they accept

that I am not the 'go at a million miles an hour and do 20 things at

once' person that I used to be. They also accept that I can't

always help them with some things as I am simply unable to.

P

> You see the problem with me is that I carry on as if im not ill, I

have 2 children, 16 and 14 and a partner to look after. I feel i

HAVE to be well for them and hide all signs of feeling ill. I work

part time in a special school and have never had a day off .......I

do everything for my kids cos if I dont I feel I am failing as a

mother, I would run myself ragged sometimes...... Only when all the

jobs are done, all the work over for the day do I then sit down,

like now and have some 'me' time.

[Guest guest]

MODERATED TO REMOVE MESSAGES ALREADY READ. PLEASE CHECK YOU HAVE DELETED WHAT

HAS BEEN READ BEFORE CLICKING 'SEND' - LUV - SHEILA

___________________________

I love the term 'addicted to helping' that's kind of where I was

going when I talked about 'soldiering on', but Mo captured it much

better! It's developmentally a very girl thing, we begin by wanting

to please as tiny children, go on to raise a family etc, and then the

approach becomes who we are, as much as how we are.

When I said I'd lowered expectations on myself, this included having

to say 'no, I'm sorry I just can't at the moment, I'm not feeling

well', which took a lot of learning, but is definitely possible. The

surprising thing is that the family and husband are coping fine!!!!!!

Until I did, they didn't really realise how rough I was feeling,

because I was just carrying on.

I also hold down a very demanding job, and I've had to do the same

there too,(special ed too ) in fact somedays, I haven't been

able to get in at all. As Mo said, I've had to learn to help me.

Enjoy Wednesday,take it easy won't you.

M

x

>

> Ah you sound like me, addicted to helping. Seriously!

..

[Guest guest]



Hi

Yes, I think that all of us who have been left without a diagnosis and therefore no treatment for what turned out to be hypothyroidism and possibly low adrenal reserve - amongst other associated conditions have felt scared - many, like you, are feeling scared now because you can see no way of ever getting your life back. I think Mo has the answer - it is your physiology that is causing you to feel frightened and once that has been straightened out, you are going to feel such a difference, both psychologically and physically.

For people suffering hypothyroidism, and they are not being diagnosed or treated - THAT can cause heart problems - and too much thyroid hormone replacement can also cause heart problems. However, having said that, very few people actually take too much T4 because when they do, they start to feel adverse effects and you would automatically cut back - or your GP would see the signs and cut back. You can get problems with taking too much of most drugs - so don't be worrying about this.

luv - Sheila

Re: Hello

After being ill for nearly 2 years and my life seems as if its been on hold and I have stopped doing things I used to do, does anyone feel scared when they get a little bit of hope that they could feel well?Its as if I am meant to be like this and not be well and it frightens me that I might soon be out of this hell hole of a prison and feel normal again, I desperatlty want that but its like 'too good to be true' and I should continue to suffer. I feel held back all the time and find myself wishing I could be like other people seem to be, anyone understand what I mean.Also can too much T4 cause a heart attack? I am now worrying about that!

____________________________________________________

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[Guest guest]

I feel held back all the time and find myself wishing I could be like other people seem to be, anyone understand what I mean. Yes I know what you mean, although I have had Cognitive Therepy and it seemed to work well at the time, its as if I forget how to use the 'tools' they gave me to think positively. I often feel that I am not good enough and I cut myself off from most people so that they dont hurt me. Kind regards, Suzanne

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[Guest guest]

Dear ,

I can completely relate to what you describe below too. Sometimes I

find it almost unbearable to let myself hope, and have got into the

emotional habit of assuming I'm just going to go on being ill. Because

the disappointment would be too much if yet another thing didn't work.

I've also only recently clocked that I have actually been feeling

" guilty " for being ill - like I should have been able to sort it out,

and it's my fault - how crazy is that! As you described in your other

post, I have also habitually put others first, pushed and pushed

myself. I've now got to the point where finally my body won't oblige.

I've had to come clean with friends, family and colleagues. And to my

great surprise, people have responded with kindness and understanding,

and the world has not stopped turning. I think one of the best things

you can do for your recovery, (alongside getting good medical help,

which you are now on the brink of!) is having as much love and

compassion for yourself as you can muster. Which includes being honest

with others about the fact that you are actually ill. Do you know

about the Stop the Thyroid Madness book, by Janie...um.. can't

remember surname. You can find out about it on the Stop the Thyroid

Madness website (a google should turn that up). It's very readable,

and might be a good thing to show your family. I know it's taken years

for me communicate clearly to my husband and son that I'm ill, but

they have really taken it on board now. It can actually be an

opportunity to receive some love!

Meanwhile, here's hoping for your recovery. You deserve it. xJanet

> After being ill for nearly 2 years and my life seems as if its been

on hold and I have stopped doing things I used to do, does anyone feel

> scared when they get a little bit of hope that they could feel well?

> Its as if I am meant to be like this and not be well and it frightens

> me that I might soon be out of this hell hole of a prison and feel

> normal again, I desperatlty want that but its like 'too good to be

> true' and I should continue to suffer. I feel held back all the time

> and find myself wishing I could be like other people seem to be,

anyone understand what I mean.

>

>

>

>

> ____________ _________ _________ _________ _________ ____

> Don't fall prey to online nasties - http://www.tiscali. co.uk/security

> ____________ _________ _________ _________ _________ ____

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________________

> Not happy with your email address?.

> Get the one you really want - millions of new email addresses

available now at http://uk.docs./ymail/new.html

>

[Guest guest]

I've also only recently clocked that I have actually been feeling"guilty" for being ill - like I should have been able to sort it out,and it's my fault - how crazy is that! I can so relate to this! I have also habitually put others first, pushed and pushedmyself. I've now got to the point where finally my body won't oblige.I've had to come clean with friends, family and colleagues. And to mygreat surprise, people have responded with kindness and understanding, Unfortunately, quite a few people around me cannot relate to this and are not so understanding so they are now not in my life so much. I seem to have attracted 'needy' people now they don't want or need me so there are not many people in my life now. Thankfully I have a lovely husband who understands.

Suzanne janetstansfeld <janet@...> wrote: Dear , I can completely relate to what you describe below too. Sometimes Ifind it almost unbearable to let myself hope, and have got into theemotional habit of assuming I'm just going to go on being ill. Becausethe disappointment would be too much if yet another thing didn't work.I've also only recently clocked that I have actually been feeling"guilty" for being ill - like I should have

been able to sort it out,and it's my fault - how crazy is that! As you described in your otherpost, I have also habitually put others first, pushed and pushedmyself. I've now got to the point where finally my body won't oblige.I've had to come clean with friends, family and colleagues. And to mygreat surprise, people have responded with kindness and understanding,and the world has not stopped turning. I think one of the best thingsyou can do for your recovery, (alongside getting good medical help,which you are now on the brink of!) is having as much love andcompassion for yourself as you can muster. Which includes being honestwith others about the fact that you are actually ill. Do you knowabout the Stop the Thyroid Madness book, by Janie...um.. can'tremember surname. You can find out about it on the Stop the ThyroidMadness website (a google should turn that up). It's very readable,and might be a good thing to show

your family. I know it's taken yearsfor me communicate clearly to my husband and son that I'm ill, butthey have really taken it on board now. It can actually be anopportunity to receive some love! Meanwhile, here's hoping for your recovery. You deserve it. xJanet> After being ill for nearly 2 years and my life seems as if its beenon hold and I have stopped doing things I used to do, does anyone feel > scared when they get a little bit of hope that they could feel well?> Its as if I am meant to be like this and not be well and it frightens > me that I might soon be out of this hell hole of a prison and feel > normal again, I desperatlty want that but its like 'too good to be > true' and I should continue to suffer. I feel held back all the time > and find myself wishing I could be like other people seem to be,anyone understand what I mean.> > > > >

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Hi

I can so relate to what you have just said. I also carry on as if

nothing is wrong, I too work with special needs in school. It is

stress on a morning getting everyone up and off to school 3 kids 14,

12 and 7 and rushing to school myself to work. I turn up, put the face

on and only my closest friend knows there is anything wrong with me.

However some days I know I should have stayed at home especially when

the leg cramps kick in and I feel tired and achy. the thing is we do

just keep going. I don't want my family to see me as being ill so I

just carry on. But inside I feel down because of the illness not

because i am depressed. It just feel like a battle all the time to get

well. Can I ask what your symptoms are re needing the adrenal support.

I am now on 125 T4 and 20 T3 bloods are looking normal albeit T3

slightly high so why don't I feel like the bloods look. I have been

taking 4 NAE since February so I thought I had covered that issue and

I am on Ferrous sulphate for a low ferritin which has now just reached

67. But something just isn't right and I feel that I may have to try

Armour if I haven't improved by October when I next see endo I will

ask him. If he says no I will have to go it alone.

I hope your adrenal support works for you and you get the old you

back. Good luck!

Love Lizzie

> You see the problem with me is that I carry on as if im not ill, I

have 2 children, 16 and 14 and a partner to look after. IÂ feel i HAVE

to be well for them and hide all signs of feeling ill. I work part

time in a special school and have never had a day off with this, god

knows how I havent, some days I really shouldnt have gone in but I

did. I do everything for my kids cos if I dont I feel I am failing as

a mother, I would run myself ragged sometimes.