Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi I am lucky in a way that I only work part time but I wont give in and have days off, I love being in my work environment and in some ways it helps me and takes my mind off things for a while. My symptoms of low adrenal function at the minute are mainly feeling sick in the mornings, feelings of low blood sugar, shaky and anxious, wobbly. I also feel somewhat detached from things sometimes, as if I am there but not there if you know what I mean, I have suffered with that for a long time, it used to frighten me which made it worse but I try not to let it now. I have only been on 1 NAE a day for 5 days, going to start on 2 tomorrow. Do you find they have helped you? I have been told on here that NAE probably isnt going to be strong enough to help but I am seeing Dr P in a weeks time so will wait to see what he says. I am only taking T4, 150mcgs but this last increase has been hard and I think its because my adrenals cant handle it. From: lizzielassi <lassey@...>Subject: Re: Hellothyroid treatment Date: Wednesday, 9 July, 2008, 2:01 PM Hi I can so relate to what you have just said. I also carry on as ifnothing is wrong, I too work with special needs in school. I hope your adrenal support works for you and you get the old youback. Good luck!Love Lizzie> You see the problem with me is that I carry on as if im not ill, Ihave 2 children, 16 and 14 and a partner to look after. IÂ feel i HAVEto be well for them and hide all signs of feeling ill. I work parttime in a special school and have never had a day off with this, godknows how I havent, some days I really shouldnt have gone in but Idid. I do everything for my kids cos if I dont I feel I am failing asa mother, I would run myself ragged sometimes. Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 MODERATED TO DELETE MESSAGES ALREADY READ. PLEASE LEAVE JUST A PORTION OF THE MESSAGE YOU ARE RESPONDING TO. MANY THANKS . LUV - SHEILA ___________________________ Hello You are far from alone. I was diagnosed a year ago, but looking back I've had this for some years and its not been picked up despite some obvious links. It is very hard to cope and to try and explain to others, that you are far from being yourself, whilst wondering when you will be you again. I have found this more difficult with work as I don't want to admit there that I have problems. Oddly I have an understanding HR, but I still have not actually told my manager or others I report too. To a couple of other work colleagues my problem was more obvious as i had to go on customer site with them for several weeks, so things were harder to hide. Which leads to why do I feel i have to hide it like some dirty little secret when in all truth I'm not well? I really don't know. I have found that I have become more emotional,I am quite low most of the time, tire quickly and still do not have a lot of energy to exercise, and have problems concentrating or forming thoughts occasionally. Also its costing me a small fortune as I'm putting on weight so new clothes. I expect a woman who doesn't want to go clothes shopping must come as quite a surprise to a majority of men! and what an excuse to go shopping. I have certainly found out who my friends are as they have been understanding and not just dropped me, when for long period I'm just not up to doing things. There will, I hope (!) , be light at the end of this for as we learn to cope better and understand the way our bodies are trying to cope with it. as well as telling the Doctors how they should be treating us :)as they don't seem to know what to do. Take care Sanchia I know it's taken years > for me communicate clearly to my husband and son that I'm ill, but > they have really taken it on board now. It can actually be an > opportunity to receive some love! > Meanwhile, here's hoping for your recovery. You deserve it. xJanet > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 To all those you have responded to my 'hello' post. Thanks so much for all your comments and support it really means a lot, its true I dont tell many people about what I have (Hashimotos) as its so hard to explain and a lot of people just think an under active thyroid mean weight gain and tiredness, they really havent got a clue what it involves, When I was first put on thyroxine a nurse at my surgery said ' oh give it 2 weeks and you will be fine!' The pharmasist said 'you will have so much more energy now!' LOL LOL That really says it all! Thanks again to all you kind, caring folk, you make this so much more bearable. From: sanchiab <sanchiab@...>Subject: Re: Hellothyroid treatment Date: Wednesday, 9 July, 2008, 3:34 PM MODERATED TO DELETE MESSAGES ALREADY READ. PLEASE LEAVE JUST A PORTION OF THE MESSAGE YOU ARE RESPONDING TO. MANY THANKS . LUV - SHEILA____________ _________ ______Hello You are far from alone. I was diagnosed a year ago, but looking backTake careSanchiaI know it's taken years> for me communicate clearly to my husband and son that I'm ill, but> they have really taken it on board now. It can actually be an> opportunity to receive some love! > Meanwhile, here's hoping for your recovery. You deserve it. xJanet> Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi I too only works part-time I could not manage a full day. I know what you mean it does take your mind off things sometimes. My adrenal symptoms seemed to be going off before a meal, feeling shaky and tired and irritable, this is okay now, my main problem has been leg cramps which still persist so this must be more thyroid than adrenal I think. Love Lizzie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi Lizzie I dont get any cramps, I do have a bad knee that can be painful somtimes and I get restless legs at night in bed sometimes but no cramps, Do or did you feel 'spacey' with your adrenals at all? The wobbliness can be bad and I sometimes feel as if i could fall over, its a bit like lack of coordination in a way, i used to not want to drive for a long time but I do now but still dont feel right and have to concentrate harder. I crave sweet and salty things! Not at the same time though! Do you know if the NAE brings the cortisol levels up? From: lizzielassi <lassey@...>Subject: Re: Hellothyroid treatment Date: Wednesday, 9 July, 2008, 4:38 PM Hi I too only works part-time I could not manage a full day. I know whatyou mean it does take your mind off things sometimes. My adrenalsymptoms seemed to be going off before a meal, feeling shaky and tiredand irritable, this is okay now, my main problem has been leg crampswhich still persist so this must be more thyroid than adrenal I think.Love Lizzie Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 , I really hope that your health improves really soon. I really relate to what you wrote about a lot of people thinking that an under active thyroid only means weight gain and tiredness. A number of people said that to me as well. It only happened to me the other day. Someone said 'oh but that isn't hard to treat, especially these days'. Hmmm. Little do they know! Other people have been very understanding and have been willing to find out more about the condition, so those people have been wonderful to have around. It is interesting because the person who expected I wouldn't get rid of many of my symptoms with thyroxine was one of my (good) doctors! He was right! At the time (for various reasons), so we had no real choice but to use thyroxine. I was much more optimistic than him and thought the weight would drop off of me and everything would be back to normal quickly and here I am a year and a half later with about 20kg weight gain and with many symptoms still there, but some improvements (mainly since adding a bit of T3 recently). P > To all those you have responded to my 'hello' post. > Thanks so much for all your comments and support it really means a lot, its true I dont tell many people about what I have (Hashimotos) as its so hard to explain and a lot of people just think an under active thyroid mean weight gain and tiredness, they really havent got a clue what it involves, When I was first put on thyroxine a nurse at my surgery said ' oh give it 2 weeks and you will be fine!' The pharmasist said 'you will have so much more energy now!' LOL LOL > That really says it all! > Thanks again to all you kind, caring folk, you make this so much more bearable. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2008 Report Share Posted July 10, 2008  Hi You shouldn't delay getting Nutria Adrenal Extra and when you get on the right amount, you should start to feel much better. Your symptoms could be both adrenal related (with the craving for salt) and systemic candidiasis (with your craving for sugar) and both should be treated asap. Luv - Sheila Hi Lizzie I dont get any cramps, I do have a bad knee that can be painful somtimes and I get restless legs at night in bed sometimes but no cramps, Do or did you feel 'spacey' with your adrenals at all? The wobbliness can be bad and I sometimes feel as if i could fall over, its a bit like lack of coordination in a way, i used to not want to drive for a long time but I do now but still dont feel right and have to concentrate harder. I crave sweet and salty things! Not at the same time though! Do you know if the NAE brings the cortisol levels up? From: lizzielassi <lasseytalktalk (DOT) net>Subject: Re: Hellothyroid treatment Date: Wednesday, 9 July, 2008, 4:38 PM Hi I too only works part-time I could not manage a full day. I know whatyou mean it does take your mind off things sometimes. My adrenalsymptoms seemed to be going off before a meal, feeling shaky and tiredand irritable, this is okay now, my main problem has been leg crampswhich still persist so this must be more thyroid than adrenal I think.Love Lizzie Not happy with your email address? Get the one you really want - millions of new email addresses available now at No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.7/1542 - Release Date: 09/07/2008 06:50 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008 Hi Ginny, We are virtual neighbours in internet terms if you live in HW! I'm just down the M/A40 a little bit. You poor thing, you've clearly been unwell for such a long time. My son was 23 yesterday, and as I read your post it struck me that you'd been unwell for most of that time! I too have symptoms of chronic fatigue, as you will read many members here do, with varying levels of diagnosed or undiagnosed thyroid issues.In my own case I'm eventually getting to see a specialist next Tuesday, one recommended by this site. I've only been a member here a few weeks, and can tell you you've come to a good place. My knowledge and understanding about my own health has improved no end. There are many helpful and supportive members. As I'm still very much a learner here, I don't consider myself as one of the knowledgeable folk as yet, but there are some very informative files and links to be getting on with reading on tpa. The most revealing for me were those to do with adrenal function, which gives a wider picture and seems to affect many of us. Based on what I have read since joining here, your thyroid function may well have played a part in your health over all that time, but in an undiagnosed way. Have you found the book a good read? Best wishes, J x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2008 Report Share Posted July 11, 2008  HI Ginny and welcome to our forum, where I hope you get all the help and support you need. Many people who have previously been given a diagnosis of ME have found they were really suffering all the symptoms of hypothyroidism, and once they started on the right form of thyroid hormone replacement (usually T3 alone) their symptoms gradually disappear. However, we need to know a few things about you first. Do you have any thyroid function tests - and if so, please can you post them here together with the reference range for each test. Unfortunately levothyroxine (T4) is an inactive hormone, and it has to convert to the active hormone triiodothyronine (T3). T3 is the thyroid hormone that has to get into every cell in your body (and brain) to make them function, and without T3, you can be very unwell - and probably not even here ( For most people, they are able to convert the T4 through the liver to T3, but for a large minority, they cannot - and I am one who cannot convert and I use Armour Thyroid, USP. Armour contains ALL the hormones a normal body needs. However, your GP is incorrect. The Medicines and Health Care Regulatory Agency have sent me a letter (which I sent to ALL NHS endocrinologists 4 years ago, telling them that they CAN prescribe Armour Thyroid for their patients who do not do well on T4 only. However, a doctor has to be completely responsible for prescribing this medication as it remains unlicensed in the UK. It remains unlicensed because it has NEVER required a license (doctors believe it is because it has had potency problems in the past, or some have been told that the T4 and T3 were not stabilised in each batch - but this information is absolutely wrong). Armour has never required a license because it was grandfathered in as a very old, safe and effective therapy. It has been used safely and effectively for over 100 years. Nowadays, new drugs must go through the new licensing procedure and if an older drug starts to show problems, that too has to go through the new drugs licensing procedure, but as Armour has never had a problem in any way, it remains unlicensed. The British Thyroid Association and the British Thyroid Foundation have written two statements which they have put on their respective websites. One is a statement about Armour thyroid and the other is a statement about synthetic T4/T3 combination therapy. Both are misleading for doctors and patients and in parts, are actually incorrect. I have recently written a response to both these organisations asking them to correct their information, but to date, they have not even acknowledged receipt. You can copy these responses from our website www.tpa-uk.org.uk - go to the Home Page and scroll down the right hand column under TPA-UK news until you see the TPA-UK Response to the BTA on Armour and T4/T3 combination therapy. Print these out and take to your GP - especially the one about Armour. Hopefully, he will read it and understand that natural thyroid extract is the best medication for sufferers of hypothyroidism. Natural thyroid extract was the ONLY medication from 1894 until the middle of the 1970's for ALL sufferers of hypothyroidism, and then it fell out of favour when the synthetic T4 was manufactured and everybody was told it was now the "gold standard". Dr G appears to know a little more than most doctors about the cause of ME and that T3 will no doubt help you. Let us know how you go on, and I sincerely hope this will work for you. However, having the cortisol NHS blood test I fear will probably show your cortisol levels to be absolutely normal. This will be done at only one time during the day, whereas your cortisol and dHEA levels vary throughout the day. The NHS only recognise the cortisol test if it shows you have 's disease. However, you can get a full 24 hour salivary test from NPTech Services. Go to the FILES in this forum (you can get there from the Home Page of this forum and then click on FILES in the menu and scroll down until you see NPTech Services. It is an expensive test unfortunately, but tells you exactly where your cortisol and dHEA are at four specific times during the day and then you will know whether your adrenals need boosting or not. Luv - Sheila Hi to the Group, I am just starting on my quest for better health and thought this was a good place to start! I was diagnosed with ME[Chronic Fatigue]about 21 years ago,then about 4 years ago with Hypothyroidism[Hashimoto`s].It has taken me forever to get the doctor to put me up to 150mc T4 and I still feel unwell.I am seriously wondering if it has been my thyroid all along.I have just got hold of an American book called Stop The Thyroid Madness,it basically advocates natural thyroid treatment ie Armour.I have tried to get prescribed this but NHS doctor said he could not use Green Prescription. Has anyone else had similar experiences?and if so any advice?My new Consultant is a Dr Gallen at High Wycombe Hospital and he has agreed to try me on dose of synthetic T3,plus Adrenal blood test that I have to go back for. Any advice/info would be very welcome. Best wishes, Ginny Not happy with your email address? Get the one you really want - millions of new email addresses available now at No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.7/1544 - Release Date: 10/07/2008 07:37 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2008 Report Share Posted July 12, 2008 Hi , I think that at 14 and 16 your children should be becoming independent- ie doing more for themselves and you partner too- Mum is not a slave and a family should work together when one member is not well. I’d sit everybody down and have a gentle talk with them about taking some of the burden from you. Subject: Re: Re: Hello You see the problem with me is that I carry on as if im not ill, I have 2 children, 16 and 14 and a p Only when all the jobs are done, all the work over for the day do I then sit down, like now and have some 'me' time. > Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2008 Report Share Posted August 1, 2008 Hello Charlotte and welcome to the group. If you have any questions or worries, ask away. There are plenty of people here with the Freedom. Is there any reason why you have to wait 5 weeks before activation, or is that just the way they do things " over there " ? I was born in England, but live in Australia now. I also have a sister named Charlotte :-) Ted F. > > My name is Charlotte, I am from England. > > I was born Profoundly deaf and had been brought up oral. I can speak > well for a profoundly deaf person. > > I have just been implanted 2 and half weeks ago (16/7/08) with Freedom. > > On the 20th of August, I will be switched on. > > Kind regards > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Hi Ted, Thank you for your message. I was pretty much disappointed when they booked me at 5th week. It's summer holidays at the moment and my Centre is part of Universty so i guess most of the staff is on leave. I think 3-4 weeks is the norm depending on the surgeon/person and their wound site. How long did you wait? Which part of lovely austraila are you living? I have been to Sydney but did not stay long enough to explore austraila. Charlotte Re: Hello Hello Charlotte and welcome to the group. If you have any questions or worries, ask away. There are plenty of people here with the Freedom. Is there any reason why you have to wait 5 weeks before activation, or is that just the way they do things " over there " ? I was born in England, but live in Australia now. I also have a sister named Charlotte :-) Ted F. > > My name is Charlotte, I am from England. > > I was born Profoundly deaf and had been brought up oral. I can speak > well for a profoundly deaf person. > > I have just been implanted 2 and half weeks ago (16/7/08) with Freedom. > > On the 20th of August, I will be switched on. > > Kind regards > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2008 Report Share Posted August 2, 2008 Hello Charlotte I only had to wait for 3 weeks, before I was activated. Mind you, it was a looooong 3 weeks. I'm on the Gold Coast in Queensland, just a bit South of Brisbane. Not far from Surfers Paradise. One of my sons lives in Sydney, the other one lives a bit further south. Ted F. > > > > My name is Charlotte, I am from England. > > > > I was born Profoundly deaf and had been brought up oral. I can speak > > well for a profoundly deaf person. > > > > I have just been implanted 2 and half weeks ago (16/7/08) with Freedom. > > > > On the 20th of August, I will be switched on. > > > > Kind regards > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 HI If you are low in iron, ferrittin, then the thyroid hormone is not absorbed properly which might be why they doubled your dose, the 2 are connected. Look in the files on the TPA website its tells you a lot. What dose are you on now? Thyroxine is T4 the inactive hormone which has to convert in the body to the active T3, if this doesnt happen then you do not regain your health as T3 is needed in every cell of the body including the brain, some people do not convert although many docs do not accept this and think everyone can convert. I always get my results and write them down, as I have educated myself about what they mean, you seem the sort of patient all docs like! They just give you the pills, do the tests and say your normal and leave you to it, believe me its not that simple and we have to take things in our own hands and sometimes self medicate, scarey, but so true From: thebretts2003 <dave@...>Subject: Hellothyroid treatment Date: Monday, 4 August, 2008, 5:48 PM Hello I am Dave and was diagnosed with hypothyroidism some 10 years orso ago. I understand the problems it can cause but what I don'tunderstand is why the body converts T4 to T3 (or vice versa). I havenever been told my thyroid level during my yearly checkup only thatthey 'require no further action'. Also A couple of years ago they suddenly doubled my dosage ofthyroxine and put me on iron tablets saying I was anemic - are the twoconnected? I somehow doubt it as 'from what I understand' anemia ismostly caused by blood loss? Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 Hi Dave - and welcome to our forum. I hope you get all the help and support you need from this forum. Ask as many questions as you need, and hopefully, somebody will be along to try to give you an answer, or at least, send you to a place where you can find an answer. Thyroxin (T4) is largely an inactive hormone. It has to convert to the active hormone triiodothyronine (T3). T3 is the hormone that has to get into every cell in your body (and in your brain) to make them function. Without T3, we is dead ducks! Most people do absolutely find taking L-thyroxine only because they have no problem in converting this, but for others, there can be many reasons why they are unable to convert. This means they suffer many symptoms, and their body is physically unable to function as it should, and they need either synthetic combination of T4 and T3 or they need natural thyroid extract (Armour) which contains all the thyroid hormones a body needs. You should go to your GP and tell them you would like a copy of your thyroid function tests. These are yours by law, they cannot stop you having these. You need the result numbers of your TSH, Free T4, Free T3 and check to see whether you have had any to see whether you have antibodies to your thyroid. For all these, you also require the reference range for each one. You need to check to see if you have antibodies to your thyroid because if this is positive, it means this is the cause of your hypothyroidism. The antibodies see your thyroid gland as the enemy and set about its destruction. The more it becomes destroyed, the less thyroid hormone it is able to excrete. Many hypothyroid sufferers do suffer with a low ferritin level (stored iron). This is not anaemia, but if it is very low and left untreated, the body calls on this stored iron and that eventually would make you anaemic. You need to ask your doctor to check your ferritin level and see whether this has been affected. If this is the case, you need to take large doses of some form of elemental iron such as 200 mgs Ferrous Sulphate 3 times daily, or some other form of replacement iron. NEVER TAKE IRON ANYWHERE NEAR YOUR THYROXINE. You must take iron at least 3 to 4 hours away from your thyroid hormone replacement, and the same rule applies to to calcium too. I would definitely get the results of your thyroid function test just before the doubled your dose, as this would indicate they thought there was a problem at that time. How much Thyroxine are you taking right now and are you taking other supplements? Luv - Sheila Also A couple of years ago they suddenly doubled my dosage ofthyroxine and put me on iron tablets saying I was anemic - are the twoconnected? I somehow doubt it as 'from what I understand' anemia ismostly caused by blood loss?No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.12/1590 - Release Date: 04/08/2008 08:09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2008 Report Share Posted August 5, 2008 MODERATED TO REMOVE MESSAGES ALREADY READ. PLEASE WILL YOU CHECK YOU HAVE DONE THIS BEFORE CLICKING SEND - AND JUST LEAVE A PORTION OF THE MESSAGE YOU ARE RESPONDING TO. LUV - SHEILA ___________________________ Thank you Sheila for your easy to understand reply! I am due to visit the doctors for a diabetic check up this month so I will ask for a copy of the results then. I now know that the T3 is the active hormone. I'm still baffled to why the body actually make T4 if its not much use - why not make more T3? When I get my readings would it be OK to put them here to get your response? > > Hi Dave - and welcome to our forum. I hope you get all the help and support you need from this forum. Ask as many questions as you need, and hopefully, somebody will be along to try to give you an answer, or at least, send you to a place where you can find an answer. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2008 Report Share Posted August 6, 2008 Hi Dave, the hypothyroidism is autoimmune , that is some thing is attacking the gland.this is why it can not produce the hormones your body needs. if you look up hashimoto`s disease or autoimmune this will tell you some people with autoimmune will have anemiabut not all . I have hashimoto`s (hypothyroidism) but don`t have anemia. some one better informed about the anemia will be able to explain it better than me. hope you get all the info you need. angel. Not happy with your email address? Get the one you really want - millions of new email addresses available now at Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 Thanks Judith - its not an easy disease is it? > > Hi Dave, the hypothyroidism is autoimmune , that is some thing is attacking the gland. > this is why it can not produce the hormones your body needs. if you look up hashimoto`s > disease or autoimmune this will tell you some people with autoimmune will have anemia > but not all . I have hashimoto`s (hypothyroidism) but don`t have anemia. some one better > informed about the anemia will be able to explain it better than me. hope you get all the info you need. angel. > > > > > __________________________________________________________ > Not happy with your email address?. > Get the one you really want - millions of new email addresses available now at http://uk.docs./ymail/new.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Hi , The more hydrocortisone is needed to sustain the thyroid treatment, the more likely a) that the adrenals are in bad shape or, the pituitary is in bad shape (but, perhaps the hypothalamic TRH isn't working right) If the pituitary is remediable with low hydrocortisone supplementation and is self righting .....it appears that maybe six months might see it restored ....in which case the hydrocortisone (cortisol) could be gently reduced, avoiding any worsening of symptoms. See the reference (#19012 )to Lymphocytic Hypophysitis (LH) as an example. At low doses, the risks of prolonged hydrocortisone treatment are fewer the less you need, so it's worth finding the lowest dose that is consistent with minimising symptoms. Once this lowest dose is established, it may be worthwile to remain on it, since re-establishing a higher cortisol output will take time ....it may be the price that we are all paying for the flaring of an epidemic of autoimmune disease and possibly caused by the prolific use of mercury in amalgams (vaccines etc).... I came across information some time back, that it is the local arsenic level that the adrenals respond to when 'gestational' set points are established. It seems that we have arbitrarily altered that feature of our inborn package of environmental tolerances/capacities. Arsenic, selenium and mercury (and cadmium) can all be excreted using the methylating process that uses up folate/methyl group processing capacity. Those with 'exposure' to pernicious anemia (pre-disposed or induced) may be at greater risk with thyroid diseases, arising from the autoimmune process. Associations between folate and vit B12 status and the progress of thyroid diseases ~ indicate that one should look carefully at any recent blood tests to see if the results for both folate and vit B12 are within what are/were supposed to be the 'normal ranges'...they may be 'wrong'/irrelevant for the reason that (like thyroid disease) it's the tissue levels that matter, not the blood levels. Selenium reacts with some forms of mercury and stabilises it (Hg) in situ, where the ratio of the two is about 1:1 as would be expected if these elements react together. It's a little more difficult to forecast how the many similar heavy metals react with either selenium or sulphur. Also, you may need to find the minimum dose of selenium that keeps your mercury 'in place'. The only answer I can give (at present) to your direct question is:- tapering the dose is probably 'more effective' than 'stopping' the hydrocortisone (or other low dose steroid). best wishes Bob > > Does anyone know how long someone should stay on HC once treatment has > commenced and is it safe in long term use? When treatment is stopped > will previous symptoms return ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Hi My DW has been taking both low dose hydrocortisone and L-thyroxine for about 17-18yrs...may have slightly overdosed on hydrocortisone, in favour of keeping the 'feel good factor'. A doctor might need to know if hydrocortisone was being used, to adjust the starting dose. best wishes Bob > Can anyone please confirm that thyroxine and cortisone are ok to take > together? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Thanks Bob Thats what I thought but needed the reasurrance! I am due to start back on my thyroxine on Sat after a 19 day break!!! And will have been on cortisone for 10 days then, but am starting back on half my old dose of T4 From: bob.m9uk <Bob.m9uk@...>Subject: Re: Hellothyroid treatment Date: Tuesday, 26 August, 2008, 8:28 PM Hi My DW has been taking both low dose hydrocortisone and L-thyroxine best wishesBob> Can anyone please confirm that thyroxine and cortisone are ok to take > together?Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 Hi I think it is probably because as thyroid hormone levels increase this increases the rate at which cortisone is cleared from the body. (Which is why low adrenal reserve tends to show itself as our thyroid hormones increase). This warning is more likely to be for people who are settled on cortisone for whatever reason and then begin to take thyroxine, as their dose may need to be adjusted up. HTH Leah x > > Can anyone please confirm that thyroxine and cortisone are ok to take > together? > I have read on the patient information leaflet that comes with > thyroxine that you should notify your doctor if taking other meds and > cortisone is one of the listed meds, anyone reasure me? It may just > mean that other meds need to be used at lower doses > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Yes, it is OK to take your L-thyroxine and HC together. However, this should only be done after you stop taking any form of thyroid hormone supplement if your adrenals are compromised. You start taking HC in low doses as you have been recommended to do so by Dr P, and gradually build this up and after a week (preferably 2) you can start to introduce your thyroid hormone supplement again. Usually, it is recommended you start at a lower dose of what you were taking before, because once adrenals have been boosted, your thyroxine is better able to be properly absorbed. You may find you do not need as much as you were taking before. It is a fact that the Patient Information Leaflet that comes in the boxes of L-thyroxine do mention that you should not start levothyroxine if you have low adrenal reserve, and that this condition should first be treated with steroids before starting T4. Doctors are not taught this though, and this clack of education can cause many patients to suffer unnecessarily. I showed my leaflet to my endocrinologist and he laughed, telling me this meant 's disease ONLY. I said if it had meant 's - it would have said 's. We can't win ( Luv - Sheila Can anyone please confirm that thyroxine and cortisone are ok to take together?I have read on the patient information leaflet that comes with thyroxine that you should notify your doctor if taking other meds and cortisone is one of the listed meds, anyone reasure me? It may just mean that other meds need to be used at lower doses No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.9/1635 - Release Date: 26/08/2008 07:29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 I totally agree Sheila, If I had treated my adrenals before I started thyroxine 2 yrs ago I feel I would have been spared a lot of un needed and unpleasant suffering and to say it only applies to addisons disease is totally silly! I am starting the T4 after 10 days on HC but at half my last dose which will be 75mcg From: sheilaturner <sheilaturner@...>Subject: Re: Hellothyroid treatment Date: Wednesday, 27 August, 2008, 12:18 PM Yes, it is OK to take your L-thyroxine and HC together. However, this should only be done after you stop taking any form of thyroid hormone supplement if your adrenals are compromised. You start taking HC in low doses as you have been recommended to do so by Dr P, and gradually build this up and after a week (preferably 2) you can start to introduce your thyroid hormone supplement again. Luv - Sheila Can anyone please confirm that thyroxine and cortisone are ok to take together?I have read on the patient information leaflet that comes with thyroxine that you should notify your doctor if taking other meds and cortisone is one of the listed meds, anyone reasure me? It may just mean that other meds need to be used at lower doses No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.6.9/1635 - Release Date: 26/08/2008 07:29 Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2008 Report Share Posted August 27, 2008 Welcome Virginia. Your story is not uncommon. I see a few things so let me bullet point them for you. 1) Kelp is not a good source of clean iodine. It has been show to be high in arsenic and other toxic halides so you may be doing more harm than good. 2) Iodoral & Lugols liquid are not sold at drug stores (well Lugols and be acquired at the pharmacy in rare cases). Iodoral can only be purchase online or through a medical professional. Our resources for it are www.breastcancerchoices.org (12.5 mg tablets) or www.illnessisoptional.com (12.5 and 50 mg tablets). You can read more about this product on www.optimox.com which is the research doctor's (Dr. Abraham) website. 3) I personally would not bother telling my Kaiser doctor about taking iodine. Many will belittle you and tell you that it is not necessary that it is in the food and you get enough from salt. Blah, blah, blah. You don't but they haven't taken the time to learn. 4) Levothyroxin is a T4 hormone only drug. Your body requires the full spectrum of hormones (T1, T2, T3 and T4 plus calcitonen) to function correctly. Buy supplying one hormone and expecting the body to come up with what it needs you are short circuiting the system. Drugs like Armour, Nature-throid and compounded T3/T4 drugs are better choices and most feel better when on them. Check out www.stopthethyroidmadness.com for more info on natural thyroid hormone replacement (this is rx by the way). I spent 6 years on Synthroid and felt like I was dying. I got on Armour 2 1/2 years ago and feel fabulous. I take 100 mgs of Iodoral as well. What you need is a good holistic doctor. Because you mentioned Kaiser I am guessing you are on the west coast. If you want to share where you live we may be able to suggest a good doc to help you. Hello > Hello, > > I have been reading all the information on this board for months now, > but I have > never written before, so I am, what you might consider, new to everyone. > I am really > interested in getting started on a regimen of iodine. Right now, I am > using some liquid kelp > that I got at my health food store. It says use 3-4 drops, but I am > using 7 drops. I have a feeling > that I am not anywhere near what I should be doing. I think I am just > trying to use it up > so I can actually start the Lugols or Ioridol. I have called around to > Rite-Aid and Long's Drugs > in my town, but they don't carry any Iodine supplements at all. The > Long's woman told me to > make sure and let my Kaiser Dr. now what I am doing. Should I? > Do you know any drug co.s that might carry this? > Also, I am so greatful for your group and the knowledge I have read > here. And congratulation > on 2000 members. It just shows that there are so many more members than > meets the eye. > By the way, my problem is a low thyroid and I am on Levothroxin... > Please help me to feel better. I know life has got to be better. Does > depression get better with > Iodine therapy? > > Virginia in California > > ===================== > Posted through Grouply, the better way > to access your like this one. > http://www.grouply.com/?code=post > > > > type_D > > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
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