hello

[Guest guest]

Hi sue,

are you takeing Paxil CR or just regualr paxil?

jssue <jssue@...> wrote:

I am currently on Paxil and it works fine for my depression, but

leaves me tired.

I'd heard about Lexapro and I see from some of the messages here that

the Lexapro apparently isn't much better for the tiredness.... does

anyone have opinions on starting the Lexapro versus staying on Paxil?

Also, has anyone noticed noticeable side affects regarding the sex

drive, which Paxil can have a negative effect on.

Has anyone here been on both Paxil and then Lexapro and have an

opinion about the two, which worked better, etc...?

Thanks so much.

Sue

[Guest guest]

Regular Paxil.

And I'll add this question. Has anyone figured out a natural way to

combat the fatigue. I'm currently trying Provigil, under doctor's

care, but it makes me nauseous and headachey, with limited success on

the fatigue.

This can be so maddening, but I know there must be a way around some

of these problems!

> I am currently on Paxil and it works fine for my depression, but

> leaves me tired.

> I'd heard about Lexapro and I see from some of the messages here

that

> the Lexapro apparently isn't much better for the tiredness.... does

> anyone have opinions on starting the Lexapro versus staying on

Paxil?

> Also, has anyone noticed noticeable side affects regarding the sex

> drive, which Paxil can have a negative effect on.

> Has anyone here been on both Paxil and then Lexapro and have an

> opinion about the two, which worked better, etc...?

> Thanks so much.

>

> Sue

>

>

>

>

[Guest guest]

Regular paxil, I replied to this once, but don't see my reply :-(

> I am currently on Paxil and it works fine for my depression, but

> leaves me tired.

> I'd heard about Lexapro and I see from some of the messages here

that

> the Lexapro apparently isn't much better for the tiredness.... does

> anyone have opinions on starting the Lexapro versus staying on

Paxil?

> Also, has anyone noticed noticeable side affects regarding the sex

> drive, which Paxil can have a negative effect on.

> Has anyone here been on both Paxil and then Lexapro and have an

> opinion about the two, which worked better, etc...?

> Thanks so much.

>

> Sue

>

>

>

>

[Guest guest]

I was on Paxil for 2.5 yrs and know all about the tiredness. I was

extremely tired and lazy ALL the time. I couldn't get up in the

morning to get my kids off to school no matter what time of day I

took it.

I've been on Lexapro now for 9 months and while yes, I am tired at

times, it's NOTHING compared to paxil. The side effects on Lex are

very minimal compared to Paxil, I feel.

If and when you decide to come off Paxil, wean off slowly. The

withdrawels can be very extreme.

Good Luck to you!

> I am currently on Paxil and it works fine for my depression, but

> leaves me tired.

> I'd heard about Lexapro and I see from some of the messages here

that

> the Lexapro apparently isn't much better for the tiredness....

does

> anyone have opinions on starting the Lexapro versus staying on

Paxil?

> Also, has anyone noticed noticeable side affects regarding the sex

> drive, which Paxil can have a negative effect on.

> Has anyone here been on both Paxil and then Lexapro and have an

> opinion about the two, which worked better, etc...?

> Thanks so much.

>

> Sue

[Guest guest]

well, Lexapro is ok, Celexa worked great!!!

I heard there is a new Paxil it is a controlled release? I am going to ask my

DR about it.

for me, the thing with paxil was the emotional roller coaster ride...and the

nightmares

jssue <jssue@...> wrote:

Regular paxil, I replied to this once, but don't see my reply :-(

> I am currently on Paxil and it works fine for my depression, but

> leaves me tired.

> I'd heard about Lexapro and I see from some of the messages here

that

> the Lexapro apparently isn't much better for the tiredness.... does

> anyone have opinions on starting the Lexapro versus staying on

Paxil?

> Also, has anyone noticed noticeable side affects regarding the sex

> drive, which Paxil can have a negative effect on.

> Has anyone here been on both Paxil and then Lexapro and have an

> opinion about the two, which worked better, etc...?

> Thanks so much.

>

> Sue

>

>

>

>

[Guest guest]

Hi Tammy, what's your dosage if I may ask.

Crystal

Hi there...

I started off on Paxil, and I was miserable. I was so

tired and the sex was out of the question. I switched

to Lex and I feel great. My sex drive is back, but I

still get tired...I think that comes with all

antidepressants! Good luck!

TAmmy

[Guest guest]

> any one with history on dwarfism

Would it be possible for you to be a little more vague, please?

M.

[Guest guest]

, thank you so much for sharing your story and your information.

Welcome to the group!

You have found a fantastic group of people. I look forward to hearing more

about how things are going for you.

K

Adrienne's Mom

[Guest guest]

Hi ,

Thanks for sharing your story. It's always good to read about how

this has affected others. Misery loves company.

You bring up some really good points about the immune thing. I had

wondered that myself about it being an infectious arthritis versus an

autoimmune disorder. I do believe you're right, the doctors haven't a

clue. I did read that scientists have discovered, that what causes

the chlamydia infection to turn into chronic arthritis is the

antibiotics given to treat the chlamydia.

I got it the bad way, as you did. I was 24.

I developed, cystitis, cervicitis, then PID. I was hospitalized

finally. I developed scar tissue in my reproductive area and was

treated with antibiotics, off and on, for 7 years afterwards. I was

also given 800 mg Motrin to take. I had knee pain a couple of weeks

after the infection to where I couldn't put any weight on the knee,

but there was no swelling, so they sent me on my way.

I'm assuming because of the antibiotics and the motrin, this is the

reason I've never swelled anywhere and this is the reason I still

don't have a diagnosis. Although I know for sure.

Susie

[Guest guest]

Hayley,

It's great to have your contributions.Don't believe everything you read on

the internet. From everything I have read, which starts with my background in

the medical field, this statement can't be accurate " I did read that scientists

have discovered, that what causes the chlamydia infection to turn into chronic

arthritis is the antibiotics given to treat the chlamydia. " According to

the literature the best guess at this time is molecular mimickry, at the cell

level, causes the body to not recognize the invading bacteria as a foreign

substance. This has more to do with antibodies and proteins and fits nicely into

the HLA-B27 equation. However, since a percentage of people with spondy disease

aren't HLA-B27 positive much is still in the discovery stage. Also, many of us

got Reiter's without being on antibiotic and if anything the data suggests

that antibiotics may be usefull. There may be additional genes at play or other

causes. As to a prior posting on Aids and Reiters, there is a much higher

percentage of Reiter's in the Aids community. They do know their is an immune

response problem and it is paradoxical that Reiter's affects those with super

charged immune systems and those with weakened immune systems. The advent and

use

of the TNF's suggest that science and future cures are moving in the right

direction. With the number of people with various autoimmune diseases the

chances

are that a lupus drug, or an AS drug, will end up working for Reiters. I

remain hopefull and so should you.

Dave in NC

[Guest guest]

Hello, you've come to the right place. We have many knowledgeable people in this

forum. Just send your post to and it'll be distributed to

all members of the group. I'm sure there are many that would be happy to talk to

you about AS and the other Spondyloarthropathies.

Thanks.

Rick Hahn

rick@...

http://www.risg.org

----- Original Message -----

From: bayramali ranjgar

I have diagnoised as AS last year.I like to talk

somebody about AS condition.

[Guest guest]

hi Kim and Missy

wow hookups just days away congrats to both of you

Missy have you tried a small extra pillow while sleeping on the implanted

side? sometimes this helps

also for the itch .... try something like bactine or benadryl both

protect against germs and stop the itch it wont effect the magnet or

implant itself

best of luck to both of you and let us know about your hook ups!!

susan

[Guest guest]

Hi

I'm Alwaysringing from Hearing Exchange. I haven't got to do a chat

in a while...this summer has been very busy. I had my surgery June

10th. My hook-up date is July 21!!!! I'm getting excited, are you?

How are things healing for you? Everything here is going pretty

good. I still can't sleep comfortably on my implanted side, but

maybe in time. I still have numbness on the right side of my head

and ear. My tongue is still slightly numb of the right side but is

getting better. The itching from healing is driving me nuts! Keep

in touch and we can compare notes after our hook ups.

Take Care,

Missy

-- In , " EGraber "

<kimberlyegraber@y...> wrote:

> Hello Everyone!

>

> Figured I'd see what goes on here.

>

> Some of you on hearingexhange.com know me as IslandBreeze. Anything

> interesting in here? I like what I have found so far.

>

> I have a N24C with hook up date July 21, 2003. My surgery was on

June

> 17 right here in Miami, Florida.

>

> Have a great weekend.

>

> /Islandbreeze

[Guest guest]

Hey Kim!

Good to have you here on ciHear.

There's always something going on here and lots of good information.

Sometimes it's a little slow on weekends especially during the

summer, but hang around and you'll meet some great people here.

wishing you the best with your upcoming activation.. I'll be looking

forward to hearing how it goes.

Niterz for now.

Hugs,

Silly in MI

In , " EGraber " <kimberlyegraber@y...>

wrote:

> Hello Everyone!

>

> Figured I'd see what goes on here.

>

> Some of you on hearingexhange.com know me as IslandBreeze. Anything

> interesting in here? I like what I have found so far.

>

> I have a N24C with hook up date July 21, 2003. My surgery was on

June

> 17 right here in Miami, Florida.

>

> Have a great weekend.

>

> /Islandbreeze

[Guest guest]

Thanks ken I appreciate the advice.. all set!

> Welcome to our misery.

>

> You should go to the group website and browse through the

stuff in

> " Links " , and " Files " . Also, add your info to the " contact " table

in

> " Database " . It seems we can add you to the list of Samterites for

whom

> surgery is a very short-lived solution.

>

> I haven't gurgled nasal water, but my congestion did lead to a kind

of sleep

> apnea.

> Now that I'm more or less cleared up, sleeping is great.

>

> regards,

> Ken West

>

> > From: " Sue Tufts " <runaroundsuuue@a...>

> > Reply-samters

> > Date: Mon, 14 Jul 2003 17:44:18 -0000

> > samters

> > Subject: Hello

> >

> > I'm glad that I found this newsgroup. I am currently going in

for my

> > third sinus surgery (since 1999). I have samter's, sinusitis,

and I

> > also beleive I have fungal sinusitis as well. My new ENT was able

to

> > point out some possible areas on my CAT scans. I am hopeful she

will

> > help me " get back to normal " ...

> >

> > I just wanted to see how everyone deals with these syndromes? I

am a

> > high school teacher and only 28. I have had these problems for

the

> > past 5-6 years. It was the aspirin sensitivity that started

first.

> > I just get really frustrated and depressed at times. Especially

when

> > I feel I can't perform at my best. I always try to smile but I

don't

> > like always feeling sick. I've totaled approx. 320 days of

> > antibiotics in the past year and a half...

> >

> > How do all of you cope with this? I imagine this is a good place

to

> > start. Thank god I have a really supportive boyfriend who has

helped

> > me through my constant headaches and other symmptoms...

> >

> > One more question... does anyone else here ever get so congested

that

> > they are " gurgling water " in their nose at night?? My

boyfriend

> > says that I sometimes do. No wonder why I don't sleep well

sometimes.

> >

> > Anyways, thanks for listening!

> >

> > Good health to you all!

> >

> > sue

[Guest guest]

Hi ,

Welcome to the group. It is disconcerting to be diagnosed with cholesteatoma, but just to ease your mind, it is a treatable condition. First, it is NOT a tumor... a lot of people refer to it as a tumor, but that is incorrect. C-toma is not living tissue, it is more of a cyst of dead cells. I am curious that your doctor has said that it has gotten smaller. Is it a polyp or a c-toma that you refer to when you say this?

You should insist that your doctor send you to an ear specialist ASAP, preferably to an Otologist. They are the most qualified to diagnose and treat c-toma. I understand that finances can create a very real barrier to rapid treatment, but the earlier it is treated, the better the outcome. Do not delay longer than necessary! That is really important. The cost of delayed treatment can be much higher. More importantly, it is really risky to your health to wait for the c-toma to do it's dirty work.

Lynn

-- Hello

Hi,

My name is And was diagnosed with cholesteatoma in January of

this year. I am 28 years old and have three children and a wonderful

husband. I was doing some research about these tumors when I ran

across this group. I have a lot of questions that I would love to

find answers to. Basically this is how it all began though. I had

an ear infection about 3 years ago, the pain stopped after a few days

so I never went to the dr. A year later I was noticing that my

hearing was going downhill quickly in my right ear. I thought I had

wax build up. I tryed to clean it out with the suction kits. I

began to have sever pain in my ear. I then went to the dr. and he

told me it was just an infection and treated it, so I thought. Well

another year went by and I was nearly deaf in my right ear. I went

back to the dr. (ofcourse I still had an infection). Finally in

January 2003 he told me that I had a tumor in my ear. Due to

insurance problems my family physician began to treat the infection

with about three months of antibiotics. Around march I was feeling a

little better but still noticed the numbness below my ear. The

doctor was saying that the tumor was shrinking. I have yet to have a

CT scan to see how much damage was done to any bone surfaces and I am

experiancing a lot of trouble with my ear again. This doctor doesn't

want to send me to an ear specialist. I am wondering if there was

any way for him to see the full effects of the tumor of if he was

just noticing the pollips decreasing in size. If anyone out there

has also experianced a situation similar to this I would greatly

appriciate any input that can be given. Sorry this went on and on.

Thanks again,

fellow cholesteatoma suffer,

[Guest guest]

At 03:44 PM 7/23/2003 +0000, wrote:

>Hi,

>

>My name is And was diagnosed with cholesteatoma in January of

>this year. I am 28 years old and have three children and a wonderful

>husband. I was doing some research about these tumors when I ran

>across this group. I have a lot of questions that I would love to

>find answers to. Basically this is how it all began though. I had

>an ear infection about 3 years ago, the pain stopped after a few days

>so I never went to the dr. A year later I was noticing that my

>hearing was going downhill quickly in my right ear. I thought I had

>wax build up. I tryed to clean it out with the suction kits. I

>began to have sever pain in my ear. I then went to the dr. and he

>told me it was just an infection and treated it, so I thought. Well

>another year went by and I was nearly deaf in my right ear. I went

>back to the dr. (ofcourse I still had an infection). Finally in

>January 2003 he told me that I had a tumor in my ear. Due to

>insurance problems my family physician began to treat the infection

>with about three months of antibiotics. Around march I was feeling a

>little better but still noticed the numbness below my ear. The

>doctor was saying that the tumor was shrinking. I have yet to have a

>CT scan to see how much damage was done to any bone surfaces and I am

>experiancing a lot of trouble with my ear again. This doctor doesn't

>want to send me to an ear specialist. I am wondering if there was

>any way for him to see the full effects of the tumor of if he was

>just noticing the pollips decreasing in size. If anyone out there

>has also experianced a situation similar to this I would greatly

>appriciate any input that can be given. Sorry this went on and on.

There is no reason to apologize. This is the place to ask and you are

giving us the sort of information you need to get good advice.

I am neither an expert nor a physician, but I would urge you to see an

otologist or otolaryngologist promptly. " Just an infection " is one thing if

it succumbs quickly and completely to treatment or time, but yours has not.

If it is no more than an infection, it needs serious attention. If ti is

more, it may mean surgery. The alternatives are loss of hearing in that ear

and worse.

The CT scan is by far the best way that the doctor can get information

about what is inside the ear until/unless he cuts into it. Perhaps it is

oversimplifying to say that it is the only way he/she can determine that

surgery is *not* needed.

Mike

mrichter@...

http://www.mrichter.com/

[Guest guest]

Jarom,

Hey, I know you already guy, because you was on Nucleus forum, and also,

everybody I have to tell this: Jarom is really a great-mind alike translator

for many different languages: English, ASL, French, Spanish and much more....

:-) Glad you did joined this group!

[Guest guest]

hey.. that is very cool .. i took 2 years spanish in freshman and sophmore year

but im starting to forget some but i still have my notebook (somewhere) haha..

but we r the same in a way jarom .. i got implanted with the same kind 2 weeks

after i turned 18 in oct and used it since nov so it will be 2 years nov 26th im

19 going on 20 and live in ohio.. where r u from ???

Jess

n24c 10-26-01

nuked 11-26-01

deaf2003@... wrote:

Jarom,

Hey, I know you already guy, because you was on Nucleus forum, and also,

everybody I have to tell this: Jarom is really a great-mind alike translator

for many different languages: English, ASL, French, Spanish and much more....

:-) Glad you did joined this group!

[Guest guest]

it has been done

--

Snoopy

congential rubella-prelingual

hearing aids since 3

left implant 3G 7/19/02

right implant 3G 5/15/03

Bilateral and loving it!!

> Good morning,

>

> I want to change my email address to ajstone02@....

>

> This address is my work email.

>

> So could u change it?

>

> I love to hear story from the group.

>

> Stone

>

>

>

>

>

[Guest guest]

Hi:

Welcome. I've been on the diet for 4 months about, after experiencing many

years of stomach and gastric disorders. In 4 months, 17 years of problems

are gone.

Dr. D'Adamo's book was simply a huge life change for this O.

I'm a realtive newbie to the list as well, about a few weeks.

Everyone is very knowledgable here and very helpful and I've learned a

great deal as well.

>I am new, just joined tonight. Just finished reading the BLOOD TYPE

>Book and I was just blown away by the information in it..

>Just wanted to say HELLO, and I am looking forward to LEARNING SO MUCH

>MORE here..

>

>

>

>

[Guest guest]

In a message dated 9/8/2003 9:08:27 PM Eastern Daylight Time,

radiclpraz@... writes:

>

> I am new, just joined tonight.

So, you lose any weight yet?

Max

[Guest guest]

Hey . My name is and I am 21. I had my first tubes put in when I lived in Maine too. I was 9 at the time...and they didn't help me at all. I have had 1 cholesteatoma removed from each of my ears...the biggest being in my left ear...came very close to my skull...Very traumatic for me. I have permanent damage to my equilibrium...it dissolved all of the bones in my left ear and my hearing is very poor. I came from the dr on Thursday and he told me that I need to have reconstruction surgery done in that ear..due to the whole mastoid cavity being completely infected...and then once that heals, I am to have the right ear done. I have a perforated ear drum, too much infected scar tissue and a hole in my ear drum caused by the T-tube that has suddenly removed itself from my ear...very disturbing. These 2 surgeries will be 9 and 10 for me. They have almost become routine..although the fear I have never gotten used

to. It still scares me to death. But we do what we have to do to be well. And hearing is a necessity, and I have gone so long without the ability to hear in my left ear...finally being able to hear as a normal person...(words would be inserted here if there were any to describe the feeling I am going to have).

Take care,

Valley <skyrocker67@...> wrote:

Well Hello There My name is Valley I am 37 and have had one cholesteatoma in my right ear removed and we have just discoverd the beginings of the second one in the left ear hopefully this will be removed shortly, these are the end resulting from many ear infections that were started back in 1973/4 I was one of the first Kids in the state of maine to have tubes put in to increase hearing these were later removed by the surgen i hope that this latest battle will be the end of it

[Guest guest]

Dear ,

Has anyone ever suggested that the tubes put in your head as a child are responsible for the cholesteatoma's you have today. Just curious, I had the same thing done in 1978, followed by a CWD in 1984. Good Luck.

[Guest guest]

That wouldn't surprise me at all. I strongly suspected that the tube work done by our first doctor and her subsequent lack of treatment for ear wax problems was the reason the ear drum failed to heal. And a hole in the ear drum as well as a foreign object (tube)...well, maybe that is the reason for this cholesteotoma.

Steve, Dad of (8)

Austin MN

Re: Hello

Dear , Has anyone ever suggested that the tubes put in your head as a child are responsible for the cholesteatoma's you have today. Just curious, I had the same thing done in 1978, followed by a CWD in 1984. Good Luck.