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Hi everybody! Just wanted to mention that if you use vitamin C, you should

have your children brush their teeth right afterwards. The acidity can

erode tooth enamel. Sandy

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You could also use ascorbate instead of ascorbic acid.

S.

Sandy Mintz wrote:

> Hi everybody! Just wanted to mention that if you use vitamin C, you should

> have your children brush their teeth right afterwards. The acidity can

> erode tooth enamel. Sandy

>

--

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Everyone has the right to believe and accept what they want,

but reality doesn't discriminate. Reality is not different

for different people. Not once has reality excused anyone

for good intentions ignorance or stubbornness. Reality

shows no mercy, accepts no excuses, and issues no pardons.

Reality does not " turn the other cheek. " This does not mean

that reality is cruel, it just means that reality is.

I would rather have a mind opened by wonder

than one closed by belief.

- Gerry Spence

Doctors give drugs of which they know little,

into bodies, of which they know less,

for diseases of which they know nothing at all.

- Voltaire

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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ester C powder sells really well at the co-op where I work --G

On Thu, 07 Dec 2000 13:44:12 -0500 Shelby <helminger@...> writes:

> You could also use ascorbate instead of ascorbic acid.

> S.

>

> Sandy Mintz wrote:

>

> > Hi everybody! Just wanted to mention that if you use vitamin C,

> you should

> > have your children brush their teeth right afterwards. The

> acidity can

> > erode tooth enamel. Sandy

> >

>

> --

>

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~

>

> Everyone has the right to believe and accept what they want,

> but reality doesn't discriminate. Reality is not different

> for different people. Not once has reality excused anyone

> for good intentions ignorance or stubbornness. Reality

> shows no mercy, accepts no excuses, and issues no pardons.

> Reality does not " turn the other cheek. " This does not mean

> that reality is cruel, it just means that reality is.

>

> I would rather have a mind opened by wonder

> than one closed by belief.

> - Gerry Spence

>

> Doctors give drugs of which they know little,

> into bodies, of which they know less,

> for diseases of which they know nothing at all.

> - Voltaire

>

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~

>

>

>

> -------------------------- eGroups Sponsor

>

>

>

________________________________________________________________

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  • 5 months later...
Guest guest

,

There can be---- I am available every Saturday except the 9th! You're

right ---- the three of us are LONG overdue! When is vacation? Can you do

a week night for the three of us to get together?

for

> ,

> The big one is not til next March but its looming. I had dinner with Maggi

on

> Sunday and we both agree the three of us need a catchup dinner after I get

> back from vacation. Is there a June Georgia support group meeting?

>

>

>

>

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  • 2 years later...
Guest guest

In a message dated 6/1/03 10:42:09 PM, nucleus24@... writes:

> As with anything, how well you will hear and how much you will

> understand with an implant varies from person to person.

>

> ohhhh i so agree .... and no one ... not doctors or audies family nor friends

can tell you exactly what you will hear or when or how much and

learning to hearing with a CI is an ongoing journey a year later i am still

having so many CI moments .... i never imagined i would get this far and so

thankful

for my CI best yet i know i will continue to learn and improve it may

not be

some wow!! major jump in hearing but it's the little things in life that

count

and there are sooooooo many little sounds i now can really hear!!

susan

N24 7/02

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  • 4 months later...

ita,

Thanks for responding to my questions. I am not really trying to lose weight

(although I would like to trade about 10 lbs. of fat for muscle); I was trying

to understand what an " ideal " or reasonable caloric intake should be for a 45

year old man of my size and activity level... I had gleaned a tidbit here and

there from others' conversations in this regard and thought that had

recommended the caloric intake should be the body weight X 8...or 1520 for me.

Perhaps this amount would be specifically for weight loss...I don't know.

I have found food combinations that bring my protein levels up to 190 grams per

day...but I sure have a tough time consuming so much food. I will try to

eliminate my last two vices (Chai tea and chocolate) and see if that makes room

for a little more of the good stuff. Fats are still up there (hovering around

90-100 grams) but they are the angelic fats; carbs are also in that 100 gram

milieu... The percentages look like 42% protein, 42% fat, and 15% carbs (+ 1%

alcohol) in the world of calories.

Exercise is happening more regularly now with fewer extremes; I am trying to

restrict my large boulder moving tendencies and work out more evenly 3 days a

week at the gym + work stuff. It is certainly a commitment to adjust the work

and family schedule to accommodate these workouts, but I think they are doing me

good. Sounds like you are on a roll yourself with rather speedy

weightloss...you'll be at 150 in no time! Keep at it...

I also take supplements which include most of the things my food seems to be

deficient in but, I would rather get these nutirents through my diet if

possible; what is a good source of Calcium and Magnesium for we O's? Thanks

again for the input a...

Adious senora, ...O-nonnie

for

Hi ,

ita, here, I think I've seen you on Nina's nonnie list?

What are your goals with restricting your calorie intake so severely? I'm at

the same weight as you and about 2,300 calories per day is resulting in more

than a pound per week weight loss for me. My exercise is brisk walking 30-60

minutes, 4-5 times per week. I don't worry about the fat intake as a percent at

all. Fat doesn't make O's fat!

I think you are absolutely correct that you can't get enough protein without a

decent amount of fat (over the 30% " recommendation " by some low-fat groups),

and that you can't get the protein you're trying to hit on such a low calorie

diet.

My only suggestions for your daily food consumption is to consume more veggies.

Your sample meal plan only included 2 veggies: spinach & broccoli! Unless

you're eating 5 cups of the two combined you're falling way short of LR4YT

guidelines.

I think the protein goal is reasonable, and I would heartily recommend the

LR4YT portion / frequency guidelines.

I've lost 60 pounds since Oct 1, 2002, using ER4YT, DietPower software, and

exercise as noted above. My goal in DietPower was 1lb a week, slow and steady

and permanent. I started the nonnie variation about 6 weeks ago and I've lost

at least 10lbs and I've quit tracking my calories in the software. Sticking

really close to the nonnie recs is making the weight FALL off! I started at

250lbs, 5'7 " , and we'll see, my tentative goal is 150lbs.

Dr. D'Adamo recommends a calcium supplement for all O's, so that definitely

makes sense that you would need that. I think the O mineral supplement covers

magnesium, too. For vitamin C, I recommend pineapple juice, a bennie for all

Os. Not sure about those other vitamins, probably a good multi vitamin would

get you whole.

ita

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In a message dated 10/16/2003 4:55:36 AM Eastern Daylight Time,

Gaialandscapes@... writes:

> I was trying to understand what an " ideal " or reasonable caloric intake

> should be for a 45 year old man of my size and activity level...

I would simply recommend that you follow the diet and eat until you are full

and not worry about calories. After all, 1 slice of beef is equal to about 10

candy bars calorie-wise. From a calorie standpoint everyone is different and

a person's intake may need to vary depending on what's going on in his/her

life. Once you go toward the high fat high protein BTD and away from the

" balanced " food pyramid, counting calories is not very significant.

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That gives you 2100 calories. (100gr fat/190gr protein/100gr carbs.)

To maintain - 12x your bodyweight.

Re: for

ita,

Thanks for responding to my questions. I am not really trying to lose

weight (although I would like to trade about 10 lbs. of fat for muscle);

I was trying to understand what an " ideal " or reasonable caloric intake

should be for a 45 year old man of my size and activity level... I had

gleaned a tidbit here and there from others' conversations in this

regard and thought that had recommended the caloric intake should

be the body weight X 8...or 1520 for me. Perhaps this amount would be

specifically for weight loss...I don't know.

I have found food combinations that bring my protein levels up to 190

grams per day...but I sure have a tough time consuming so much food. I

will try to eliminate my last two vices (Chai tea and chocolate) and see

if that makes room for a little more of the good stuff. Fats are still

up there (hovering around 90-100 grams) but they are the angelic fats;

carbs are also in that 100 gram milieu... The percentages look like 42%

protein, 42% fat, and 15% carbs (+ 1% alcohol) in the world of calories.

Exercise is happening more regularly now with fewer extremes; I am

trying to restrict my large boulder moving tendencies and work out more

evenly 3 days a week at the gym + work stuff. It is certainly a

commitment to adjust the work and family schedule to accommodate these

workouts, but I think they are doing me good. Sounds like you are on a

roll yourself with rather speedy weightloss...you'll be at 150 in no

time! Keep at it...

I also take supplements which include most of the things my food seems

to be deficient in but, I would rather get these nutirents through my

diet if possible; what is a good source of Calcium and Magnesium for we

O's? Thanks again for the input a...

Adious senora, ...O-nonnie

for

Hi ,

ita, here, I think I've seen you on Nina's nonnie list?

What are your goals with restricting your calorie intake so severely?

I'm at

the same weight as you and about 2,300 calories per day is resulting in

more

than a pound per week weight loss for me. My exercise is brisk walking

30-60

minutes, 4-5 times per week. I don't worry about the fat intake as a

percent at

all. Fat doesn't make O's fat!

I think you are absolutely correct that you can't get enough protein

without a

decent amount of fat (over the 30% " recommendation " by some low-fat

groups),

and that you can't get the protein you're trying to hit on such a low

calorie

diet.

My only suggestions for your daily food consumption is to consume more

veggies.

Your sample meal plan only included 2 veggies: spinach & broccoli!

Unless

you're eating 5 cups of the two combined you're falling way short of

LR4YT

guidelines.

I think the protein goal is reasonable, and I would heartily recommend

the

LR4YT portion / frequency guidelines.

I've lost 60 pounds since Oct 1, 2002, using ER4YT, DietPower software,

and

exercise as noted above. My goal in DietPower was 1lb a week, slow and

steady

and permanent. I started the nonnie variation about 6 weeks ago and I've

lost

at least 10lbs and I've quit tracking my calories in the software.

Sticking

really close to the nonnie recs is making the weight FALL off! I started

at

250lbs, 5'7 " , and we'll see, my tentative goal is 150lbs.

Dr. D'Adamo recommends a calcium supplement for all O's, so that

definitely

makes sense that you would need that. I think the O mineral supplement

covers

magnesium, too. For vitamin C, I recommend pineapple juice, a bennie for

all

Os. Not sure about those other vitamins, probably a good multi vitamin

would

get you whole.

ita

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...thanks for the tip!

So 12x my body weight (190) puts my caloric intake around 2280...I suppose that

is somewhat affected by my activity level and how many calories I burn? I have

been a little surprised and suspicious that this computer program says that I've

been burning over 3000 calories relative to the activities I enter daily. Does

this seem likely on a moderately active day without exercise (in the gym)?

I'm really not obsessive with this calorie thing...just trying to get a feel of

what is really needed. I have always been wingin it before and think I may have

been pretty far off in some respects (certainly protein levels). Your advice is

appreciated...

, O-nonnie

RE: for

That gives you 2100 calories. (100gr fat/190gr protein/100gr carbs.)

To maintain - 12x your bodyweight.

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How is that figured? 3000 calories?

http://www.foodforyourblood.com

Re: for

...thanks for the tip!

So 12x my body weight (190) puts my caloric intake around 2280...I

suppose that is somewhat affected by my activity level and how many

calories I burn? I have been a little surprised and suspicious that this

computer program says that I've been burning over 3000 calories relative

to the activities I enter daily. Does this seem likely on a moderately

active day without exercise (in the gym)?

I'm really not obsessive with this calorie thing...just trying to get a

feel of what is really needed. I have always been wingin it before and

think I may have been pretty far off in some respects (certainly protein

levels). Your advice is appreciated...

, O-nonnie

RE: for

That gives you 2100 calories. (100gr fat/190gr protein/100gr carbs.)

To maintain - 12x your bodyweight.

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  • 3 months later...

In a message dated 1/24/2004 6:38:00 AM Pacific Standard Time,

geodv1@... writes:

I got the Clarion but am beginning to think I should have gotten the

Cochlear Corp. I am being told by many members that I should get more

mappings.

Don't beat yourself. All 3 brands works equally well. It is just a matter

of having regular mapping, you say Balimore? Can you take bus or train?

Lee

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I got the Clarion but am beginning to think I should have gotten the

Cochlear Corp. I am being told by many members that I should get more

mappings. Unfortunately, I am unable to drive and must have some one to

drive me to Baltimore which is about 35 miles away. I am a military retiree

but Walter Army Hospital who does Implants said I was not qualified! I

wonder if there is someplace closer that could do the mapping. I live in

Northern Virginia in Falls Church. Thanks so much for your info.

Re: !!

>

> Hi, Muriel, Good to hear from you. Will you be going to the SHHH

> convention in Omaha? I hope to go! I got my CI about five months ago

> and

> have had only one mapping but will get another in March. I haven't posted

> because my CI is not spectacular but better than my old aids although I

> still use a CI in the other ear. May be I would do better if I didn't

> use.

> Still have trouble in noisy environment. Seems even worse than using two

> hearing Aids.

>

>

>

> ________________________________________________________________

> The best thing to hit the internet in years - Juno SpeedBand!

> Surf the web up to FIVE TIMES FASTER!

> Only $14.95/ month - visit www.juno.com to sign up today!

>

>

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Hi ,

I am in agreement with the rest of the group regarding the need for you to have

more frequent mappings. I'm not in your area but did go to the Advanced Bionics

website and pulled up these clinics which should offer someone who can map your

implant. They are in Virginia so I'm hoping there is one that can help you. I

do have to say that 35 miles isn't really that far to go for mappings for many

people though. This is because mapping an implant requires specialized training

and very specific and expensive equipment.

Do any of these centers help?

Virginia

Medical College of Virginia

Department of Audiology

403 North 11th Street

3rd Floor, Room 304

Richmond, VA 23298-0150

804-828-0431

804-828-5779 - fax

Suzanne Hasenstab, Ph.D.

Kastetter, CCC-A

Aristides Sismanis, M.D.

White, CCC-A

--------------------------------------------------------------------------

University of Virginia Medical Center

Division of Otolaryngology

Head & Neck Surgery

Jefferson Park Avenue

Charlottsville, VA 22908

434-924-2040

434-982-3965 - fax

Hashisaki, M.D.

804-924-2040

804-982-3965 - fax

Ruth, Ph.D.

Blincoe, M.Ed.

804-982-0129

804-924-0419 - fax

Anne DeMichele, M.Ed.

Margaret McBride, M.Ed.

--------------------------------------------------------------------------

The Mason Clinic

Dept. of Audiology

Ground Floor, Primary Care Ctr.

UVA Health Systems

Charlottesville, VA 22908

Mason, M.D.

From: DeVilbiss

I got the Clarion but am beginning to think I should have gotten the

Cochlear Corp. I am being told by many members that I should get more

mappings. Unfortunately, I am unable to drive and must have some one to

drive me to Baltimore which is about 35 miles away. I am a military retiree

but Walter Army Hospital who does Implants said I was not qualified! I

wonder if there is someplace closer that could do the mapping. I live in

Northern Virginia in Falls Church. Thanks so much for your info.

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Thanks Alice, All have been very helpful. I think I am going to try Walter

Army hospital since they do do CI surgery. They are not too far away.

I think I have a contact there.Unfortunately all those you went to so much

trouble to get for me are even further away but the Army Hospital is not too

far. Thanks all who have given me help!

Re: For

> Hi ,

>

> I am in agreement with the rest of the group regarding the need for you to

have more frequent mappings. I'm not in your area but did go to the

Advanced Bionics website and pulled up these clinics which should offer

someone who can map your implant. They are in Virginia so I'm hoping there

is one that can help you. I do have to say that 35 miles isn't really that

far to go for mappings for many people though. This is because mapping an

implant requires specialized training and very specific and expensive

equipment.

>

> Do any of these centers help?

>

> Virginia

>

> Medical College of Virginia

> Department of Audiology

> 403 North 11th Street

> 3rd Floor, Room 304

> Richmond, VA 23298-0150

> 804-828-0431

> 804-828-5779 - fax

>

> Suzanne Hasenstab, Ph.D.

> Kastetter, CCC-A

> Aristides Sismanis, M.D.

> White, CCC-A

>

>

> --------------------------------------------------------------------------

>

> University of Virginia Medical Center

> Division of Otolaryngology

> Head & Neck Surgery

> Jefferson Park Avenue

> Charlottsville, VA 22908

> 434-924-2040

> 434-982-3965 - fax

>

>

> Hashisaki, M.D.

> 804-924-2040

> 804-982-3965 - fax

> Ruth, Ph.D.

> Blincoe, M.Ed.

> 804-982-0129

> 804-924-0419 - fax

> Anne DeMichele, M.Ed.

> Margaret McBride, M.Ed.

>

>

> --------------------------------------------------------------------------

>

> The Mason Clinic

> Dept. of Audiology

> Ground Floor, Primary Care Ctr.

> UVA Health Systems

> Charlottesville, VA 22908

>

> Mason, M.D.

>

>

> From: DeVilbiss

>

>

> I got the Clarion but am beginning to think I should have gotten the

> Cochlear Corp. I am being told by many members that I should get more

> mappings. Unfortunately, I am unable to drive and must have some one to

> drive me to Baltimore which is about 35 miles away. I am a military

retiree

> but Walter Army Hospital who does Implants said I was not

qualified! I

> wonder if there is someplace closer that could do the mapping. I live

in

> Northern Virginia in Falls Church. Thanks so much for your info.

>

>

>

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It is not just a matter of taking a train or bus, you have to have an

appointment. Taking a train or bus means getting to the Metro to get me to

the train station, and when I get to Baltimore I must take a cab, or bus to

get to the hospital, very expensive even if I could get the appointment.I am

going to try to get to Walter and see if I can get an Audiologist who

!can map my CI. Once again thanks to all!

.

Re: For

> In a message dated 1/24/2004 6:38:00 AM Pacific Standard Time,

> geodv1@... writes:

> I got the Clarion but am beginning to think I should have gotten the

> Cochlear Corp. I am being told by many members that I should get more

> mappings.

>

> Don't beat yourself. All 3 brands works equally well. It is just a

matter

> of having regular mapping, you say Balimore? Can you take bus or train?

>

> Lee

>

>

>

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  • 1 month later...
Guest guest

i'm sorry you had to read about the negative setback we had today.

please dont be discouraged, but do use it as a lesson to make sure

you actually get whatever approval you need.

i'm sorry to say that i havent updated my journal since last week, so

the last entry is prior to our bad news this weekend. i will update

it tomorrow after i speak with the ci company and his doctors office

again.

good luck to you,

and please take care,

m

http://www.livejournal.com/users/cherrys_shorty/

> , I noticed you offered to let anyone read your CI

journal.......I am interested. Thank you

>

>

> waiting for assessment in Canada

>

>

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  • 3 months later...
Guest guest

,

Thanks for this info! I didn't know there were centers on LI. I

will be living on campus at Hofstra; others here recommended the

centers in Manhattan, and since I only have to go twice a year now,

it might be fun to make a day of it!

> ,

>

> I am from Long Island but go into NYC for my mappings.

>

> I don't know if you know that there are 2 implant centers on LI.

I am not

> recommending them as I really know nothing much about them and they

are both

> fairly small. The one at Long Island Jewish Medical Center has

recently broken

> ground for a CI Center but has been working out of the Speech and

Hearing

> Center for a while. That is probably no more than a 20 minute drive

from

> Hofstra. Where will you be living? The second center in in Suffolk

County at the

> State University Medical Center at Stony Brook. I do know one

person who lives

> in Suffolk who goes there.

>

>

>

>

>

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  • 1 month later...

,

All I can hope for is for Gimlet to lick 'em to death. And she

will. Problem is, its not the audie or surgeon, its the invisible

people behind the paperwork, at the Medicare office in North Dakota,

that we must do battle with. LOL My team here will do what I want.

*---* *---* *---* *---* *---*

" At first there was nothing. Then God said 'Let there be light!' Then

there was still nothing. But you could see it. "

& Gimlet (Guide Dawggie)

Portland, Oregon

N24C 3G 8/2000 Hookup

rlclark77@...

http://home.comcast.net/~rlclark77/

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  • 1 month later...

Alice,

Thanks for your message! I have you and this group to thank for giving me

the courage to go through this journey. I don't know how many times I was

ready to give up but this group was here to encourage me along and to answer

my questions. I really appreciate that and look forward to sharing a few CI

moments of my own!!

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Thank you so much!! Very helpful advise.

> Hi ,

> The BWP for the Nucleus implant holds 4 programs. And you can

adjust

> BOTH volume and sensitivity on all 4 programs. The 3G BTE holds 2

> program and you can have the set to adjust EITHER volume or

sensitivity.

> Not both. Some people find a program they like and get one for

volume

> and one for sensitivity. So that's the big difference.

> I dislike cords running down my neck, I hated that the cord was

long

> enough to wear the processor on my slacks, but NOT long enough to

keep

> the processor on my belt when I had to lower my slacks to go to the

> bathroom. Some people put their processors in their bra, and then

reach

> in to change it, which gathers some weird looks. So, my suggestion

is

> try on a sample of the BWP, and wear it for a day or 2 and see what

it

> feels like to you. Because the BTE 3G is going to feel like a

hearing

> aid (except that it doesn't go into your ear).

> Many people start with the body worn, and that was required at

one

> time. Once they go to the 3G, the body worn sits on a shelf. A

very

> expensive paper weight. If I had a choice now, I'd get 2 of the

3Gs. Or

> maybe just one and keep the certificate and get another one later.

>

>

> Nucleus Volunteer

>

> From: " tanners " <dao_goddess@y...>

> Subject: advice on Nucleus 3G bte and body worn processors

>

> Hello!! I joined a few months ago and have been reading ever since.

I

> finally got my surgery date scheduled for October 20th, yay.

Because

> I originally picked Clarion and now it's been recalled, I'm

switching

> to Nucleus in order to not delay my surgery. My audie gave me a

> choice of ordering 1 body-worn Sprint and 1 3G bte OR two 3G

bte's.

> I am not really sure if there's a difference in sound quality

between

> the body-worn processor and the bte and so I thought I'd see if

there

> are some people here who might have some advice. What are

advantages

> of having a body-worn processor, if any? Thanks so much in advance!!

>

> Irvin

>

> ________________________________________________________________

> Get your name as your email address.

> Includes spam protection, 1GB storage, no ads and more

> Only $1.99/ month - visit http://www.mysite.com/name today!

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Jeff,

You brought up alot of great points! I'm pleased to say that thanks to

J., I was notified that Cochlear does have materials in Braille for

the deafblind. Advanced Bionics and Med-El do as well. Since my CI center

only provided Braille materials from Advanced Bionics and Med-EL, I was

unaware of the fact the Cochlear also provided them.

In terms of educating the public about CIs and the deafblind, I plan to do

my part in this regard. In fact, this past summer I was invited to speak at

the American Council of the Blind's (ACB) national convention. Because of my

CI surgery, I had to cancel. The person who asked me to speak was thrilled

to hear about my CI and asked if I would consider speaking next year to talk

about my experiences as a deafblind CI recipient. I'm also a member of ACB's

Sight and Sound Impaired (SASI) Committee. We are only in our first year of

existence but we hope to make some positive changes by the time next year's

convention begins.

I'm glad to see that you're so active within the deafblind community. Keep

it up! We need more people like you!

I wish all the best to your friend with her second CI! <smile>

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  • 1 month later...

Hi Ravi,

yes. is the head audie there and she gave me my approval to the next

step. I know Jed Kwartler and I am not sure if he working there still but I know

he won't take my insurance.

I am glad that the place is a good one.

I just went through he cat scan yesterday and next week I have the psych

exam in .

After that I go back to Newark to see the surgeon again

I think they will try to get me in sometime in January I hope.

Keep me posted on what is going on with your surgery.

I really wish you well.

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