For

[Guest guest]

:

I know the place. I have been there and met with the Director and Audiologist Ms

Bell. Please remember me and say hi to her on my behalf when you both meet

next. She is an extremely good audie. I do not know much about the CI physician

since I met with Dr Jed Kwartler there. Anyway UMDNJ CI Center is a well known

center and you are in good hands.

Wish you good luck in your CI journey. I am a candidate too, but am waiting for

my ear infections to heal completely. My physician is Dr Darius Kohan at NYC, I

have seen several Physicians in NJ and finally was referred to Dr Kohan and I

now know that I am in very good and capable hands. My journey for a CI so far

has been a very very long one and am still slowly inching towards it!!.

Ravi

[Guest guest]

Hi :

Thanks for the good wishes. I know why it takes so long for CI surgery there at

UMDNJ, this is due to having just one day in a week (Tuesday) or one day every

other week schedules for CI surgery. Thats why the waiting period is very long.

Imagine the wait it is too unnerving, I had to seek an appointment to see

Bell in Dec of 2003 for an appointment on March 4th 2004. They were understaffed

there and is the only CI audie there in that Center.

Dr Kwartler is still there, as the website information says. Dr Jyung seems to

have recently joined their staff there. He was not there before in March when I

met with and Dr Kwartler. Dr Kwartler also did not accept my Insurance, but

someone in this forum was implanted by him and had a very nasty experience after

the implant. He did narrate to me his problems and does'nt speak highly of Dr

Kwartler.

Anyway good that you are uner Dr Jyung's care. His resume from the website seems

to be good.

All the best with your evaluation process and best wishes to the meet with the

" Shrink " - I mean the Psychologist. Where in NJ are you? I am in Highland Park,

Middlesex County.

Ravi

[Guest guest]

Hi Ravi,

I am so glad you told me about that because I would have gone into New York

instead.

It is far but I would have made the effort.

And yes it is a far wait at that clinic I waited more than a month to see

.

I like Dr. Jyung so far but do not like his assistant who is a doctor there.

I didn't understand the assistants name but that guy really should learn how

to talk to people.

I explained to Dr. Jyung my concerns about healing because I am diabetic and

he was very good to me.

I do hate the waiting part but I think with my insurance they have to get

the okay for it also.

I am not sure but the sooner the better.

I get a lot of anxiety waiting for all of this.

I don't think the shrink should be a big deal for me I have pretty realistic

expectations for the implant.

Or on the other hand maybe my expectations aren 't all that high.

I just expect to be a little disappointed I guess.

It seems that UMDNJ requires this so I have to do it.

A lot of clinics don't require it I guess.

I live in Northern New Jersey near Blairstown which is by the Delaware water

gap.

I am 12 miles from PA. Near Stroudsburg.

I think maybe Newton is a good description of where I am also if that helps.

How did you find your new doctor Ravi?

Where in New York are you going to go?

[Guest guest]

Hi ,

Now it is my turn to wish you a good surgery experience tomorrow... we

all will be thinking of you. You've been wonderful to me as I started

on my journey towards my CI. Remember your advice: sleep sitting up,

take the painkiller no matter what, every 4 or 6 hours (and don't wait

for the pain to come!), stack away easy, comfort food like chocolate

pudding and Jell-O, mashed potatoes, etc.

Looking forward to your next message after you cross over the hurdle.

activated 12/8

[Guest guest]

,

Best of luck on your surgery!! I just got back from having the bandage

taken off and stitches removed. I'm sure you will do great and there

is a whole (hearing) world ahead of you! Just do what said as

far as being comfortable and it will be smooth sailing! Good luck!!!

Tom

Implanted 12/15/04 N24C

Activation 1/12/05

[Guest guest]

,

Your Lear jet is waiting for you to board. LOL!

I wish you could be there too. <smile> I'm getting ready to call it a day

but will post more tomorrow!!

, who is looking forward to the next chapter no matter how long it may

be

Implanted: 12/22/04

Activation date: 1/18/05 (10 hours and counting!)

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

, I will be thinking of you tomorrow. All happy thoughts!!!

Pearson

sville, WA

Re: For

,

Your Lear jet is waiting for you to board. LOL!

I wish you could be there too. <smile> I'm getting ready to call it a day

but will post more tomorrow!!

, who is looking forward to the next chapter no matter how long it may

be

Implanted: 12/22/04

Activation date: 1/18/05 (10 hours and counting!)

Deafblind/Postlingual

BTE hearing aid user 20 years

Severe-profound hearing loss 10 years

[Guest guest]

Thanks . I will sure let you know. I have been researching

prepaid plans for cell phones but am thinking it wont save me anything in

the long run. But it might be a good way to try out different phones.

*---* *---* *---* *---* *---*

Back off!! You're standing in my aura.

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

[Guest guest]

or anyone,

What do you know about track cell phones?

[Guest guest]

,

Track cell phones?

*---* *---* *---* *---* *---*

Better to understand a little than to misunderstand a lot.

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

[Guest guest]

,

These are cell phones you can buy at Wal-Mart or wherever. I am just wanting

a cell phone )per police officer recommendation) for emergencies when Telly

and I run into problems walking. Have you heard of these?

[Guest guest]

,

Ok, went to WalMart's site. TracFone, T Mobile, and Virgin Mobile are

three choices. Keep in mind, you have to buy minutes every so often or you

lose the unused minutes. When you buy more, the unused minutes roll over.

In other words, you cant buy a prepaid card and expect it to be good for

more than 30 or 60 days without buying more.

When you go to Wally Mort, check the phones they offer. I like flip

phones and I like phones that have nice raised buttons, which many dont

have. You wont find a bare bones phone either, they all are going to have

much more than you want. So focus on what is important. Is it tactile? Is

it t coil compatible? See if they will let you try them in the store first.

Let me know what you come up with.

*---* *---* *---* *---* *---*

As far as we know, our computer has never had an undetected error.

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

[Guest guest]

,

A colleague has a track cell phone, and gets a year's service at one time

with 10 minutes monthly. How can it be 30 to 60 days at a time?

[Guest guest]

,

Well, shall we call that an exception? LOL Its called TracFone. One

word. They offer I think it was 3 different phones.

*---* *---* *---* *---* *---*

I installed a skylight in my apartment... The people who live above me are

furious!

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

[Guest guest]

,

By the way, if you plan to carry the phone with you on trips, be aware

that with prepaid planbs, you may not always be in covered territory.

*---* *---* *---* *---* *---*

If man evolved from monkeys and apes, why do we still have monkeys and apes?

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

[Guest guest]

,

After a dog with an aggressive bark went after Telly last Spring, a police

officer advised me to get a cell phone for emergencies, and that is

basically what I want it for, plus if we get lost while walking, or need to

call a cab, or a neighbor for help, so perhaps may need more minutes.

Otherwise I have no need for cell phone. We have MidWest Wireless here. Any

suggestions as to the way to go? Your feedback would be appreciated.

[Guest guest]

,

Best bet is go to Wally World and check out the plans. And the phones.

The 3 prepaid companies Wally has use existing networks. Just remember that

if you dont use the minutes, you lose them. TracFone offers an annual card,

not sure of T Mobile or Virgin Mobile.

*---* *---* *---* *---* *---*

I took an IQ test, and the results were negative.

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

[Guest guest]

With any cell phone that has a charged battery you can make a 911 call and you

don't have to pay any company for service. Many fire depatment collect peoples

old cell phones and give them to senior citizen and others that need them for

911 emergency calls only. If you have any questions, e-mail me.

Carson

Re: for

,

After a dog with an aggressive bark went after Telly last Spring, a police

officer advised me to get a cell phone for emergencies, and that is

basically what I want it for, plus if we get lost while walking, or need to

call a cab, or a neighbor for help, so perhaps may need more minutes.

Otherwise I have no need for cell phone. We have MidWest Wireless here. Any

suggestions as to the way to go? Your feedback would be appreciated.

[Guest guest]

Carson,

That is a great tip. Since I dont yet use a cell phone, it slipped my

mind.

*---* *---* *---* *---* *---*

Things are more like they are today than they ever were before.

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

[Guest guest]

Computers might be one of those muggle things that won't work at Hogwarts.

I bet Dudley Dursley has a computer.

-- Nan

In a message dated 9/5/2005 2:45:09 PM Mountain Standard Time,

spottedlee@... writes:

You know ,, I read in editorial in my newspaper recently,,, of ALL

students at Hogwarts School of Wizards and Witchcraft, all highly

intellect,,

anyone noticed any computer or email?

Lee

Implanted with N22 in 12/88, activated 1/29

Legally blind most of my life

Totally deaf for part of my life

Nan Rosen

_www.rosetwig.com_ (http://www.rosetwig.com/)

[Guest guest]

Lee,

No email, they use OwlMail. I wonder how the owls know where to deliver

the mail?

*---* *---* *---* *---* *---*

Do you love me because I am beautiful or I am I beautiful because you love

me?

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

And who thinks Dudley has the brains to even turn on a computer. LOLOL

*---* *---* *---* *---* *---*

I saw a subliminal advertising executive, but only for a second.

& Gimlet (Guide Dawggie)

Newport, Oregon

N24C 3G 8/2000 Hookup

rclark0276@...

http://webpages.charter.net/dog_guide/ NEW Home Page!

[Guest guest]

Hi ,

Sorry it has taken me so long to respond to your post. I had a few

bad days after taking a long car ride and then we had house guests

for a few days.

I think I put my foot in my mouth when I recommended that your

partner come home from the hosptial with potent medication. From

what you say, she's already on a super-duper potent med and wants to

get off of it.

I think Dr. Rand's advice for her to stay on her current med when

she goes home to recuperate makes sense. That doesn't seem like it

would be a good time to take that med away. On the other hand, maybe

he'll add an additional med if she is experiencing intolerable pain.

The good news, I think, is that once your partner is working with

Dr. Rand, she will be able to work with his team, including pain

specialists, who could gradually change her medication regimen. And

ultimately - some months after surgery - hopefully her pain will

have subsided and she won't need strong meds.

It makes sense to me that your partner is in a bad mood - she's

scared and hurting. This is a time when people do go 'inside'

themselves to try to get a handle on their fears and other feelings.

She may seem anti-social, but it's probably temporary and a response

to the anxiety of the surgery. At least that's my guess. I know I

did something similar - I refused to talk with the people in my life

who were being negative about my upcoming surgery - I had my husband

talk to them instead. I felt I had to keep thinking positive and I

couldn't risk hearing anything that might cause me to doubt my

decision to have the surgery.

I hope some of this has been helpful. Please keep us informed of

your and your partner's efforts to cope through this terrible ordeal.

Best Wishes,

Andy

>

> and Andy,

>

> Thanks so much for the help and information. I am so glad to hear

> that my feelings are normal. You may actually have spoken with my

> partner, she is " misgrrl " on here.

>

> It has been really hard because she was always a very social and

> supportive person to everyone around here and lately she has

become

> very anti-social. She is very angry and upset at what this is

doing

> to her and doesnt want to be around anyone anymore except me or

our

> roommate. It has been a very hard time as she has steadily

declined.

>

> When we first moved up here from Florida she was not on the state

> funded system yet and her medicare did not cover her meds, so the

> doctors put her on methadone to control the pain, that is when she

> began to decline soooo much. It was really hard and horrible to

see.

> When we talked to Rand he stated that he was going to have her

leave

> the hospital on what she is currently taking and that does NOT

help

> her at all and she fears a lot that she is going to be in a lot of

> pain and no one is going to help her with that.

>

> She is having a lot of fears about the surgery and I am not sure I

> know how to answer all of them and sometimes it seems that Dr Rand

> can be VERY vague about things.

>

[Guest guest]

Hi ! Welcome to our forum! I hope we can be of help and

support to you. Please feel free to talk about your own experiences

and to ask any questions you might have about flatback syndrome,

scoliosis, revision surgery, and all things related!

Andy

Concord MA

>

>

> Hi there. I'm quite excited to have found and joined this forum.

>

>

>

[Guest guest]

Ellen,

I've been thinking about your original post since yesterday. I am in a different situation than most of the rest of you who responded because I am a member of staff that leads worship--the choir director--and have served churches for 25+ years. Russ has literally grown up in the church as has his brothers--my "baby" took his first steps in the choir loft!

That being said, my kids have been held up by the the congregations--much like PKs ("preachers kids")--and cannot get away with anything. Except for . He is doted on and given breaks his brothers never were. The last church I served before my present one also had a young man with autism (HF) in the congregation--he was my best "ringer" in my hand bell choir. Because I cannot sit with Russ and he is too old for the religious ed class pew(when he was younger, I served a church that had all the kids sit together for most of the service and then leave before the sermon), my other sons and hubby (when I twist their arms and threaten enough!) take him to services. Sadly, it's usually only Christmas Eve and Easter now, but it's something. We have found sitting either in the front pew or the very back pew or the balcony makes a difference and he does well in any of those places but not in a middle pew. He has ushered--much like suggested--handing out service bulletins and like Noah, has done custodial work, so he's comfortable in the sanctuary. Perhaps, choosing a different pew will help. We think Russ needs to see an "escape route" for him to be comfortable.

I do write a holiday letter which I send out with our Christmas cards and fill family in about everyone. I hear you about the NT kids--had to "explain" this year why Greg is leaving his PhD program--LOL! Grandma was not amused. Russ stuffed all the cards, sealed them and stamped them this year, as well as hubby's business holiday cards--a total of 500 cards!

Marie>> Thanks for your response to my question about Synagogue, . I > think most of the congregants are pretty accustomed to Noah. A few > newer members are surprised sometimes by his occasional noises or > activities but no one seems offended and no one is disrespectful.> I like the idea of giving Noah special jobs. We have done that at > times, and in fact, Noah's day time job is at the Syngagogue, so he > has a repetoire of jobs he does there on a regular basis.> Longer services are more of a problem. Most Friday evenings are 45 > minutes which is typically successful for him.> I am not sure there are any good answers to problems with Dad out in > public and especially in Synagogue. But, I will think about using > your strategy of giving them something to do together. > I have been thinking about various responses I have noticed about > how unaccepting family members are of our children with > disabilities. Do you think something like an annual newsletter to > families might be useful? I was thinking about something that > highlights both of my children's various successes and > challenges...sometimes the neurotypical child has just as many > challenges and not always as many successes!> Ellen>