For

[Guest guest]

Funny you should mention seating...We always sit in front or in back during religious services and as often as possible elsewhere...Noah enjoys picking lint and things off the back of people's clothing...Sometimes very funny, sometimes not....

I think the more we take our kids somewhere the easier it becomes. They get familiar and others typically get more comfortable and accepting. It is a strong argument for sucking it up and taking our kids out often enough to breed that familiarity multiple places.

Ellen

Ellen Garber Bronfeldegskb@...

Re: For

Ellen,

I've been thinking about your original post since yesterday. I am in a different situation than most of the rest of you who responded because I am a member of staff that leads worship--the choir director--and have served churches for 25+ years. Russ has literally grown up in the church as has his brothers--my "baby" took his first steps in the choir loft!

That being said, my kids have been held up by the the congregations--much like PKs ("preachers kids")--and cannot get away with anything. Except for . He is doted on and given breaks his brothers never were. The last church I served before my present one also had a young man with autism (HF) in the congregation--he was my best "ringer" in my hand bell choir. Because I cannot sit with Russ and he is too old for the religious ed class pew(when he was younger, I served a church that had all the kids sit together for most of the service and then leave before the sermon), my other sons and hubby (when I twist their arms and threaten enough!) take him to services. Sadly, it's usually only Christmas Eve and Easter now, but it's something. We have found sitting either in the front pew or the very back pew or the balcony makes a difference and he does well in any of those places but not in a middle pew. He has ushered--much like suggested--handing out service bulletins and like Noah, has done custodial work, so he's comfortable in the sanctuary. Perhaps, choosing a different pew will help. We think Russ needs to see an "escape route" for him to be comfortable.

I do write a holiday letter which I send out with our Christmas cards and fill family in about everyone. I hear you about the NT kids--had to "explain" this year why Greg is leaving his PhD program--LOL! Grandma was not amused. Russ stuffed all the cards, sealed them and stamped them this year, as well as hubby's business holiday cards--a total of 500 cards!

Marie>> Thanks for your response to my question about Synagogue, . I > think most of the congregants are pretty accustomed to Noah. A few > newer members are surprised sometimes by his occasional noises or > activities but no one seems offended and no one is disrespectful.> I like the idea of giving Noah special jobs. We have done that at > times, and in fact, Noah's day time job is at the Syngagogue, so he > has a repetoire of jobs he does there on a regular basis.> Longer services are more of a problem. Most Friday evenings are 45 > minutes which is typically successful for him.> I am not sure there are any good answers to problems with Dad out in > public and especially in Synagogue. But, I will think about using > your strategy of giving them something to do together. > I have been thinking about various responses I have noticed about > how unaccepting family members are of our children with > disabilities. Do you think something like an annual newsletter to > families might be useful? I was thinking about something that > highlights both of my children's various successes and > challenges...sometimes the neurotypical child has just as many > challenges and not always as many successes!> Ellen>

[Guest guest]

There is one young man in the parish where I work who has some behaviors

that might make some people uncomfortable. He also joyfully lets out an

" amen " in responce to the priest..this is an unscripted responce, so some

people may not like it. The priest is great with the young man. We have

advised the mom anbd dad to find a place where the son is comfortable and

sit there every week. That way people will either choose to sit near himm,

or find another location. Happily, the young man has a huge spiritual

circle and has become one of the more high profile people in the church.

Both the mom and dad have become involved in parish life, and I think that

also helps.

FYI, I am the inclusion co-ordinator for the parish, and with the great

support of the preist and staff, we havge done some awsome things with a

large population of kids with dis in R.E., choir, etc.Making our loved ones

with dis cofortable is number one, and then giving the rest of the

congregation the opportunity to get comfortable with our people will be the

next job. You are right Ellen, sometimes we have to suck it up, go out

there with a bigt smile (little stick) ...and then they will " build it " .

Cindi

[Guest guest]

Cindi, your congregation is so lucky to have you.

You and Marie have paved the way in your church communities for inclusion and acceptance. I think this is possible almost anywhere.

Ellen

Ellen Garber Bronfeldegskb@...

Re: Re: For

There is one young man in the parish where I work who has some behaviors that might make some people uncomfortable. He also joyfully lets out an "amen" in responce to the priest..this is an unscripted responce, so some people may not like it. The priest is great with the young man. We have advised the mom anbd dad to find a place where the son is comfortable and sit there every week. That way people will either choose to sit near himm, or find another location. Happily, the young man has a huge spiritual circle and has become one of the more high profile people in the church. Both the mom and dad have become involved in parish life, and I think that also helps.FYI, I am the inclusion co-ordinator for the parish, and with the great support of the preist and staff, we havge done some awsome things with a large population of kids with dis in R.E., choir, etc.Making our loved ones with dis cofortable is number one, and then giving the rest of the congregation the opportunity to get comfortable with our people will be the next job. You are right Ellen, sometimes we have to suck it up, go out there with a bigt smile (little stick) ...and then they will "build it". Cindi

[Guest guest]

Regarding this statement:

Of particular import with regard to thyroid/iodine issues,

is the fact that all the recipes are gluten-free.

What is the connection with gluten and thyroid/iodine?

Thanks

Donna

[Guest guest]

Not so much iodine; that just naturally leads to discussion

of thyroid issues. However, there are several studies showing

connections between gluten sensitivities or celiac disease with

thyroid disorders.

For example,

Prevalence of thyroid disorders in untreated adult celiac

disease patients and effect of gluten withdrawal: an Italian

multicenter study

http://calorierestriction.org/pmid/?n=11280546

Autoimmune thyroid diseases and coeliac disease

http://calorierestriction.org/pmid/?n=9872614

Prevalence of coeliac disease in patients with thyroid autoimmunity

http://calorierestriction.org/pmid/?n=10461017

By the way, on the topic of my cookbook from which your question

arises, I just got word yesterday of endorsement by the Physicians

Committee for Responsible Medicine (PCRM). I am very excited by

this news! For what was said and to join in the celebration, see:

http://www.zenpawn.com/vegblog/2007/07/06/pcrm-endorsement

Hope this helps,

-

>

> Regarding this statement:

>

> Of particular import with regard to thyroid/iodine issues,

> is the fact that all the recipes are gluten-free.

>

> What is the connection with gluten and thyroid/iodine?

> Thanks

> Donna

>

[Guest guest]

- I will add your cook book when my website person gets back from her travels. Seems she has left NYC for Minnesota but in the meantime is going to Australia. I don't know how to access my website and make changes so I'll have to wait until she is back working. Thanks so much for offering to be a part of it. Sincerely, n

www.marianhaileymoss.comwww.nyveggies.com

gluten-free> > > Some of you may know me from the early days of this group. > I'm still here. Never left, just went into lurk mode. > > With kind permission from Zoe and her opinion that it would> indeed interest the members, I am happy to announce that I've> realized a long-held dream to publish a cookbook, entitled> Vegan Done Light. > > Of particular import with regard to thyroid/iodine issues,> is the fact that all the recipes are gluten-free. They are> also low-fat and low-cal. Please check it out, including> pics and what people are saying at:> > http://www.zenpawn.com/vegblog/store.html> > Thanks and enjoy!> ->

[Guest guest]

- where in Los Gatos are you? I was there for three years there taking care of my folks who were very sick and eventually passed away. They lived on the corner 1776 Rinconada Drive - (I think that was the numbers) Had such lovely neighbors in ann and Bill Hicks and my mom's social life consisted of Connie Vydra her hairdresser who about 15 years ago became a born again Christian and new all the gossip in the neighborhood. I'm in NYC where I've been except for that 3 year hiatus since 1964. My dad belonged to the Rinconda gold club because of his work and we'd go there for Sunday dinners. Best wishes, n

www.marianhaileymoss.comwww.nyveggies.com

Re: Dr. Bruce West info????

Is he an iodine expert? I'd be interested too since I'm near enough (Los Gatos).On Jul 28, 2007, at 6:08 PM, Starshar wrote:> Dr Bruce West (Health Alert)> 100 Rd #110> Monterey, CA 93940> 821-372-2603>>>>>> Does anyone know if Dr. Bruce West is still practicing and/or what his>> contact info is?>>>> Thanks,>>>> Ruthie>>>> Send Message: iodine >> Iodine

[Guest guest]

Hello,

I'm new to the group but wanted to introduce myself.

My name is Debby and I'm from San (not too far

from *waving*). I've been lurking and

reading and am totally overwhelmed by some of this

information.

I've lost 143 pounds doing an anti-candida diet, and

have about 57 to go. I'm learning more about iodine

in the hopes that in addition to the diet and exercise

I do that have gotten me this far, that perhaps a bit

of iodine might help me get the rest of the way.

I did have thyroid issues but according to test

results they have improved to normal levels with the

diet and exercise I do, but I still struggle a lot

with slow weight loss, while most people on the same

diet as me just have the weight fly off.

I'm sure this has been answered before, and I

apologize for asking, but is there a sort Iodine for

Dummies book or web page I can read, that just gives

the basic information?

Oh, and in case anyone is interested in learning more

about the diet that I do that has reversed so many

health issues and helped me lose weight, the

information is on my newsgroup:

curingcandida/

I'm hoping that iodine helps me a bit more with the

extra help I seem to be need, since I seem to be very

insulin resistant.

Luv,

Debby

San , CA

380/237/180

> Re: Dr. Bruce West info????

>

>

> Is he an iodine expert? I'd be interested too

> since I'm near enough

> (Los Gatos).

-------------

The chief cause of failure and unhappiness is trading what you want most for

what you want now. -- Zig Ziglar

New group! Curing Candida:

curingcandida/

My son Hunter Hudson (10/11/04) http://debbypadilla.0catch.com/hunter/

[Guest guest]

Hi Debbie,

I love it when there are people on the group who are nearby.

Here are the tapes that convinced me that iodine was essential.

http://curezone.com/ig/f.asp?f=1723 This is main url for 4 audio mp3s

http://curezone.com/ig/i.asp?i=21728 Dr Blaylock

http://curezone.com/ig/i.asp?i=21730 Dr Flechas one hour

http://curezone.com/ig/i.asp?i=21726 Dr Flechas two hours

http://curezone.com/ig/i.asp?i=21729 Dr two hours

On Jul 30, 2007, at 12:16 PM, Debby Padilla-Hudson wrote:

> I'm new to the group but wanted to introduce myself.

> My name is Debby and I'm from San (not too far

> from *waving*). I've been lurking and

> reading and am totally overwhelmed by some of this

> information.

Parashis

artpages@...

zine:

artpagesonline.com

portfolio:

http://www.artpagesonline.com/EPportfolio/000portfolio.html

[Guest guest]

I want to thank you all for your honest responses. I don't know why my

audiologist said that, but I am glad that I have you guys. Thanks! Happy

hearing, everyone!

Muriel Bartholomew <muriel7520@...> wrote:

On Oct 5, 2007, at 9:24 AM, wrote:

> Does the internal part of the cochlear implant last a long time? Does

> it ever break down?

,

I was implanted with the Nucleus-22 implant on December 9, 1987 and am

still hearing with it.

I've upgraded processors as the upgrades became available, and am

presently using the 3G.

....muriel in fort worth

[Guest guest]

This is the iodine group. There were some *assertions* that this occurred but there was no data sent to support this.

Re: I'm new here an need advice

Barbara,

First congregations on FIVE years awesome job Barbara

First you need to do the protocol at Breastcancerchoices.org

Iodine index

http://www.breastcancerchoices.org/iodineindex.html

Bromide Detox in Iodine Users

http://www.breastcancerchoices.org/bromidedetoxsymptomsandstrategies.html

Bromide Dominance Theory

http://www.breastcancerchoices.org/bromidedominancetheory.html

You are the only one that can be your guide to how much and how often

you take iodine. Many of us started out at 50mgs. If you do the salt

pushes and use the companion supplements detoxifying is a lot easier.

Make sure you are drinking 1/2 your weight in ounces of water a day.

If you weigh 150 Pounds that means you need to drink 75 ounces of water

a day. Some of us use AVC (apple cider vinegar) in our water to help

with digestion of the iodine others take it in orange juice this is again

a choice.

If you have Hashi's you many want to take more it seem with Hashi's

smaller amounts tend not to work as well.

1 ounce of lugol's has around 600 drops

How much Iodine is there in 1 drop of Lugol's (2% and 5%) solution?

vertical drop of 5% Lugols = 6.5mg Iodine

Note: this is one drop, not a dropperful.You would have to take 2 1/2 vertical drops of the 2% solution to make 6.5mg.5 vertical drops of the 2% should equal one tablet of Iodoral

From: bannh1102

A friend from another board referred me here. My order of Lugol's

Solution 2% came today an I wanted to be sure how to use it. I felt

so bad today, bone tired that I went ahead an took 3 drops. I

planned to take more but it was late in the day.

I mixed it with water, I hope thats right.

It kinda of scared me. I got really hot an my heart started

fluttering but it didn't last but a few minutes.

Now I feeling better than I have all day.

I think I'm suppose to start off slow an build up, is that right?

I'm not sure about doesages but I think I should build up to about 10

drops a day for a while. How slow should I build up?

A little background so you'll know why I'm trying this.

I'm having some problems with my thyroid, weight gain, fatique, dry

skin, etc. The test shows something is high, the doctor says that

means low. They ran a T7 today I think. I was also tested for lupus

because a antinuclear antibody was found in my last blood work. I am

a breast cancer surviver, so far, its been 5 years.

Thanks,

Barbara

[Guest guest]

So is it okay to add the Lugol's to orange juice? It was posted here

not too long ago that orange juice changed the composition of the

Lugol's since it turned clear and disappeared in the juice. That is

how I was taking mine until I read that. Now I add it to milk.

Dianne

>

> This is the iodine group. There were some *assertions* that

this occurred but there was no data sent to support this.

>

>

> Re: I'm new here an need advice

>

>

>Some of us use AVC (apple cider vinegar) in our water to help

>with digestion of the iodine others take it in orange juice this is

again a choice.

>

>

[Guest guest]

That's how I have heard that people take Lugol's. In OJ.

Re: for

> So is it okay to add the Lugol's to orange juice? It was posted here

> not too long ago that orange juice changed the composition of the

> Lugol's since it turned clear and disappeared in the juice. That is

> how I was taking mine until I read that. Now I add it to milk.

>

> Dianne

[Guest guest]

Yeah, it was discussed here, and it's a common scienceexperiment. If you mix Vit C and *iodine* (the brown stuff)it turns to *iodide* (the clear stuff). You can try it in a glassand " C " for your self :-) That said, I don't think it's a problem myself ... your body usesiodide, I think. Iodine kills germs better. Anyway, you haveVit C in your bloodstream too, or should, so it's going to turn to iodide sooner or later anyway, I would think.

-- On Dec 11, 2007 4:55 AM, n Hailey-Moss <marianhm@...> wrote:

Wasn't there a couple of e-mails saying that the chemical structure of iodine is changed if we take it with Vit C? Or was that in the iodine group? As ever, n

www.marianhaileymoss.comwww.nyveggies.com

--

[Guest guest]

Jan

Thank you so much for shedding some light on some of the different reasons

why I need to pursue a psychiatrist I have not been feeling positive about

that road but after reading your post, I know that is an avenue that must be

pursued. I guess when I was relaying all the behaviors and thoughts in his

head to the neurologist, that is why she recommend pursuing that avenue.

Thanks

to you I really believe it now. I think at the time I just thought she was

passing us on and I just wanted someone to give me an answer right then. Not

having to wait till Feb (earliest appt.) to see the psychiatrist (Jane

Feldman out of Highland Park Hospital). You recommended 'someone good with

experience in autism' do you recommend someone?

I guess you look until you find someone that is the right fit. We are

currently trying to clear out what might be some medical issues as well. He

has

been sick on and off since November and is again on antibiotics for a sinus

infection waiting on results of a strep test. Even on the antibiotics for 4

1/2 days he is still sleeping ALOT, dark circles around his eyes and very

disagreeable at times. He spends a lot of time resting and actually that is

when

he is that boy I love. Because he's quiet and polite, not whining, stamping

around the house yelling or putting things in his mouth that don't belong

there and such. Ah, well again I just wanted to say thanks.

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

Ellen, Can you be a bit more specific regarding what you are taking? I'd like to speak with my acupuncturist who does herbs too.Thanks,jason From: Ellen <rhudy@...> Sent: Fri, February 26, 2010 11:42:21 AMSubject: For

You mean the dosage of the formula? I boil water, and pour about

1/2 cup over the granular herbs, and stir to make sure the herbs are thoroughly

dissolved (the herbs work synergistically) , drink it twice a day after

dinner, so there's no stomach issues (may or may not happen). You

can either wait for it to cool off, or just add a little more cold water,

and drink. It can taste a bit yucky, but the taste also depends on

which herbs are in your particular formula. It's not too bad.

You get used to it. Or just take the capsules. Although I personally

believe that your body assimilates it better from the tea.

Ellen

Kusin wrote:

Ellen,

Thanks for this. Besides the

formula, what is the dosage you were taking?

Best,

[Guest guest]

Right on!

I

believe the point that the doctors were making is that if treatment is

indicated you should not push it off because you are afraid of chemo. The

issue of when to be treated was addressed, among others, by my rather blunt

e-mail yesterday. There are no rules. The docs were merely addressing the

fear of chemo as being unwarranted, if treatment is indicated. In

a message dated 7/12/2010 3:19:24 P.M. Eastern Daylight Time, Rekarp@...

writes:

[Guest guest]

another rational fear, I think, is that chemosurviving

cells (cells left behind after tx) are more aggressive

and these cells will develop refractory disease...

karla

>

> > I believe the point that the doctors were making is that if treatment

> > is indicated you should not push it off because you are afraid of

> > chemo. The issue of when to be treated was addressed, among others, by

> > my rather blunt e-mail yesterday. There are no rules. The docs were

> > merely addressing the fear of chemo as being unwarranted, if treatment

> > is indicated. In a message dated 7/12/2010 3:19:24 P.M. Eastern

> > Daylight Time, Rekarp@... writes:

>

[Guest guest]

I wasn't " afraid " of chemo, but I didn't start my tx when " treatment was

indicated " because there was no data and the experts agreed that most likely I

would get the same length remission whether I started " now " or if delayed ..

That, of course, assumes that by delaying I did not make myself so sick that I

could not finish the treatment.

I figured, why start it " now " when the end result is that like Ellen said, it

will just make you refractory and have more agressive disease sooner!

I delayed my tx 1-2 years until my WBC was well over 500, my spleen felt very

uncomfortable, huge nodes, hgb/plt dropping, etc...

I did FCR and got a full molecular PCR- remission .. I believe if I had started

earlier, then I would have likewise come out of remission earlier .. at least

that is what MDA says because a molecular remission is a molecular remission,

doesn't matter if I got it 2 years earlier or later .. Yet, MDA still says that

I should not have waited so long because it does no good to feel so lousy, and

risk not being able to finish chemo later... I don't really agree, for my

personal self, knowing my personal situation.

As such, I believe I have likely saved myself a couple of years from when I

would have needed a transplant by doing it later, or saved a couple years of my

life .. I certainly am very glad I did not have to get a transplant 2 years

earlier .. ... At the very least, if I had gotten a longer remission by starting

earlier, I would have been in the same place.

> >

> > > I believe the point that the doctors were making is that if treatment

> > > is indicated you should not push it off because you are afraid of

> > > chemo. The issue of when to be treated was addressed, among others, by

> > > my rather blunt e-mail yesterday. There are no rules. The docs were

> > > merely addressing the fear of chemo as being unwarranted, if treatment

> > > is indicated. In a message dated 7/12/2010 3:19:24 P.M. Eastern

> > > Daylight Time, Rekarp@ writes:

> >

>

[Guest guest]

Wow, Karla - these cells " will " develop refractory disease - always? for

everyone?

I always have to ask: how do you weigh those potential risks against NOT

treating at all?

> >

> > > I believe the point that the doctors were making is that if treatment

> > > is indicated you should not push it off because you are afraid of

> > > chemo. The issue of when to be treated was addressed, among others, by

> > > my rather blunt e-mail yesterday. There are no rules. The docs were

> > > merely addressing the fear of chemo as being unwarranted, if treatment

> > > is indicated. In a message dated 7/12/2010 3:19:24 P.M. Eastern

> > > Daylight Time, Rekarp@ writes:

> >

>

[Guest guest]

This is a fact, not a fear.

Ellen

minolfa wrote:

> another rational fear, I think, is that chemosurviving

> cells (cells left behind after tx) are more aggressive

> and these cells will develop refractory disease...

> karla

>

>

> ?

> ? ? I believe the point that the doctors were making is that if treatment

> ? ? is indicated you should not push it off because you are afraid of

> ? ? chemo. The issue of when to be treated was addressed, among others, by

> ? ? my rather blunt e-mail yesterday. There are no rules. The docs were

> ? ? merely addressing the fear of chemo as being unwarranted, if treatment

> ? ? is indicated. In a message dated 7/12/2010 3:19:24 P.M. Eastern

> ? ? Daylight Time, Rekarp@... writes:

> ?

[Guest guest]

i do not " weigh " anything...because i do not know the " data " about treated

patients having longer overall survival....

is there a study comparing chemo-treated patients and patients on best

supportive care?

if data are available, this is the food for thoughts...

also, if " refractory and resistant " disease exists in real world,

i would ask about its causes...

karla

> > >

> > > > I believe the point that the doctors were making is that if treatment

> > > > is indicated you should not push it off because you are afraid of

> > > > chemo. The issue of when to be treated was addressed, among others, by

> > > > my rather blunt e-mail yesterday. There are no rules. The docs were

> > > > merely addressing the fear of chemo as being unwarranted, if treatment

> > > > is indicated. In a message dated 7/12/2010 3:19:24 P.M. Eastern

> > > > Daylight Time, Rekarp@ writes:

> > >

> >

>

[Guest guest]

Karla - I thought it was you who said that refractory cells become resistant to

treatment - I was only questioning whether this was universally true. If you

believe this, why do you wonder " if " refractory disease exists? yikes! I'm

confused by these alarming statements. Maybe it's email confusion...

> > > >

> > > > > I believe the point that the doctors were making is that if treatment

> > > > > is indicated you should not push it off because you are afraid of

> > > > > chemo. The issue of when to be treated was addressed, among others, by

> > > > > my rather blunt e-mail yesterday. There are no rules. The docs were

> > > > > merely addressing the fear of chemo as being unwarranted, if treatment

> > > > > is indicated. In a message dated 7/12/2010 3:19:24 P.M. Eastern

> > > > > Daylight Time, Rekarp@ writes:

> > > >

> > >

> >

>

[Guest guest]

Thanks Barb.  Banks

From: kjc <k_j_cotten@...>

Subject: questions

" TotalJointReplacement " <Joint Replacement >

Date: Monday, September 6, 2010, 7:41 AM

I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM,

but it is available at the hospital. Do I demand it? My doctor is board

certified and actually use to teach at Syracuse medical school. I've heard

he does 100s of these a year. He says that studies show that patients that

do/do not use the machine have the same results in 6 months.

in TX

[Guest guest]

Thank you so much, Gayle!!!!  Banks

From: kjc <k_j_cotten@...>

Subject: questions

" TotalJointReplacement " <Joint Replacement >

Date: Monday, September 6, 2010, 7:41 AM

I'm having TKR on 9/16. I just found out that my doctor doesn't use the CPM,

but it is available at the hospital. Do I demand it? My doctor is board

certified and actually use to teach at Syracuse medical school. I've heard

he does 100s of these a year. He says that studies show that patients that

do/do not use the machine have the same results in 6 months.

in TX