Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 Hi you all, my name is Judi Wetzell and I've been around LPA now for about 12 years. I had never participated until I got into college. I loved going to conventions, meeting people, dancing with guys that I could actually look into their eyes and the sports outlet, DAAA. I met one of my very best friends at a conference, Sharon , from Alaska. I'm 38 and have a Metabolic birth defect called " Cystinosis " , it rates high in the Rare Diseases catagory. I am the oldest female alive with type I Cystinosis. I had a kidney transplant on January 5th, 1970 from my mother. It was the only way to save my life. I had an additional one put into me in July 1981, also a living donor, my sister . I guess I finally realize that I came to the conferences for companionship and friends too. Recently that void has been filled very well by my now fiance, Gerry. Basically I lack an amino acid, that helps support the lysosome transport system, thus my body from birth was unable to get amino acids, vitamins, etc to the nucleus of my cell structure, destroying the kidneys. I am a professional actress and a research associate, I love what I do. Gerry is an electrical/computer engineer. We play bridge and I love belonging to the Daughters of the American Revolution, it's a fun, philanthropic group Judi Wetzell (soon to be Mrs. Gerald on August 12, 2000) Quote Link to comment Share on other sites More sharing options...
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