Guest guest Posted February 28, 2000 Report Share Posted February 28, 2000 Here, here !!! Well said Hoggans ! It's not that some topics don't need to be discussed but things keep getting taken beyond discussion...and are rehashed over & over again. I've been here for a long time too - when Jess was born this list was a very valuable source of information & support - it probably still is but a timid new parent might have a hard time standing up for themselves and reaching for it. Four years ago...... I thought the " M " word was ok (hadn't ever heard " little people " ) I didn't know dwarfism was a disability or had associated health problems (I never knew/met any little people) My husband & I were alone in a small northern community in Canada with no resources, doctors who had never seen a dwarf before, and a wrong diagnosis to boot. If I could predict it, the next set of emails will say that we should split the list into parent groups, adult groups, and a discussion group so people aren't offended. Not a solution to me - I'd still join all 3 just to be a fly on the wall to hear what concerns dwarfs of all ages have living in an average statured world. Anyway, 'nough said. I just wanted to say I support this list but I give up on the " heated " discussions and hit the delete button alot. There is too much condescension and anger. There used to be alot of sharing of experiences and stories , as well as help....back in the " old days " . Cori The OLD listserv >From: " Hoggan Clan " <banock@...> > >There are a few hundred of us here on the list that have been >here since the beginning, or not much afterwards. >Do any of you remember what the list was like back then? >Questions, answers, support, laughing, crying, and giving so much >to one another. Are these 'your' memories? >Now, in my opinion, I have sadly watched as the list has become >quiet most of the time, and what 'used to be' a VERY strong >support group has dwindled down. >What happened guys? There are a few posts now and again, but >what happened to that old list where people knew they could turn >to and hopefully get answers and support or whatever they needed. >Heck, I even miss Fred's long emails and and his >'attitude' that made him the fun guy he is. >I know several of the families, ourselves included, dont turn to >the list anymore. Some are gone off the list, others hide in the >background, and others are just plain sick and tired of people >writing privately and telling them to stop posting about >something. >WHAT IS THE LIST ALL ABOUT ANYWAY? >I know this family sure needs some support. We have a daughter >that has gone downhill very, very seriously. Another surgery is >in the near future, and we have had to bout a lot of this alone. >Several of our dear friends are here in the background and write >and ask, and we are most greatful for that. >There has to be others with the same feelings as ours. WE NEED >THIS LIST, but as many, we have chosen to do it alone, or with >few friends, because we were sick of the private messages telling >us they are sick of us. >Sorry, but Mandy has quite a few problems, and we need help, but >where do we go? Roaming other listserves who are extremely >supportive, but always suggest to come here? They dont >understand dwarfism, but they do understand the pain, the >anquish, the feeling of loss, the knowledge of 'what might come,' >and the acceptance and support. >Ok, I know I have said more than enough, but believe me, this >list has changed so much, and frankly, we miss you guys! >Our family is in some very serious times right now, and we dont >even know if Mandy will be around for this year's conference. >We are NOT exaggerating, but saying it as it is. >We miss the list guys, we truly miss the old list....... >Debi Hoggan >.................................................. >Take a chance and enjoy >life as it is, because tomorrow >there just might be something >that will take it all away... >............................................... > > >_______________________________________________________ >Site Design, Hosting, and E-Commerce at www.webpipe.net > >------------------------------------------------------------------------ >Shop the web for great deals. Save on Computers, >electronics, Home furnishings and more. >1/1559/4/_/77518/_/951751540/ >------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
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