Gluten Question

[Guest guest]

Deb, What does it mean that you "had a very high number when it came to the Gluten Sensitivity" ? That sounds like you had a blood test, which, coupled with the genetic test result, would suggest strongly that you do have celiac disease. While I agree with that if you feel better on a GF diet, that's reason enough to stick with it, I think the problem with not having a definitive diagnosis and (at this point) no obvious symptoms is that it is so easy to start cheating a little or not being vigilant about explaining cross contamination issues at a restaurant or a friend's house, etc. Though it sounds to me like your second GI called it right, if you are not convinced and start cheating, you may be doing great damage to your body without knowing it.

While not having obvious symptoms doesn't mean anything -- it is not in any way an indication that you don't have celiac disease -- if you do go back to eating gluten, you will be able to retake the TTG test and then, if that test is positive, have the biopsy for a definitive diagnosis. Or you may start eating gluten and become symptomatic - then you'll have to decide whether to keep eating enough gluten to take the tests or to accept that you have to maintain a strict gf diet forever...

Best wishes,

Tristan

-----Original Message-----

From: Darcy <ddarcy@...>

Sent: Thu, Jun 3, 2010 9:55 pm

Subject: RE: [ ] Gluten Question

It’s really frustrating to hear that doctors are

recommending going gluten-free without even doing the blood test. Yet they did

the genetic test! How odd. Anyway, no, once you are on the diet, you

cannot detect celiac disease.

Based on what you say, it sounds like you may have gluten

sensitivity. The genetic test only means that it’s possible for you to have

celiac, not that you do. About 35-40% of the population has one of those genes,

while only 1% have celiac. That’s why the genetic test is not used to

diagnose celiac. A biopsy is the gold standard, which follows a positive serum

result. Both would be negative after being on a GF diet for several months or

so.

I’m sorry! But if you do feel better on a GF diet, and you’re

able to maintain it, then you might as well continue it. Feeling better

is what’s important, not labeling your condition, right?

Best wishes,

From:

[mailto: ] On Behalf Of Deb Matsuoka

Sent: Thursday, June 03, 2010 7:16 PM

Subject: Re: [ ] Gluten Question

Pam,

thanks for the response.

I

have not been diagnosed with a biopsy or blood test. I went gluten free

based on a doctors recommendation, I had all the symptoms. After a few

weeks I felt great, tons of energy, no more GI issues and was starting to feel

"normal". I finally got in with my GI doc and it was too late

to take the blood or biopsy tests. I then took the EnteroLab tests and it

came back that I had one of the gene's for Celiac and that I had a very high

number when it came to the Gluten Sensitivity. Based on that my GI doc

felt very convinced I had Celiac.. now I am starting to question if he is right

or not.

I

have been feeling great since I went Gluten Free but I am just wondering if I

have Celiac, Gluten Sensitivity or is this all in my head?

Any

suggestions would be great, are there any tests I can do now that I wouldn't

have to go back on gluten for?

Deb

-----

Original Message -----

From: Pam Newbury

Sent: Thursday, June 03,

2010 4:38 PM

Subject: [ ]

Gluten Question

This is not unusual. My husband

had a very similar experience. Even right after his diagnosis, whenever

he had accidental gluten he did not experience any outward, obvious

reaction. For a years he doubted his diagnosis in spite of classic villi

damage on his initial biopsy. When the blood tests were developed (about

4 years after his diagnosis), he decided to do a gluten challenge. After

a 2-week gluten challenge he showed no antibodies and had no symptoms, so he

went on a longer gluten challenge. It was 6 months before he felt

symptoms (on about 1 pastry a day of gluten) and at 9 months (he is a stubborn

guy) he took the blood tests again and had positive antibodies.

Remember that you have been healing for

2 years and your gut is getting back to normal. Everybody’s

response to gluten is different, and that response can change over time

depending in part on diet, stress, and overall health. As others have

mentioned, if you were diagnosed by biopsy and/or blood tests and responded

well to the GF diet, a one-time accidental gluten challenge is not an indicator

of the reliability of your diagnosis and I would not suggest a longer gluten

challenge or retest. If there was doubt about the initial diagnosis

or if you are self-diagnosed, that is a different story with a more complicated

response (let us know if that is your situation and you need suggestions based

on that).

Pam Newbury

From:

[mailto: ] On

Behalf Of Deb Matsuoka

Sent: Tuesday, June 01, 2010 9:04 PM

Subject: [ ] Gluten Question

I have been diagnosed with Celiac and been gluten free

for the last 2 years, tonight I ate some french fries and found out after

eating them that they were seasoned with flour prior to frying. So far I

feel fine, could I have been misdiagnosed or do others not have symptoms after

having gluten by accident?

Any suggestions/ideas would be great.

[Guest guest]

Having an "official" diagnosis may make it easier for your daughter to stick with the diet and to have friends' suport during teen years, college years.

H.

-----Original Message-----

From: Ahroon Yoch <ahroonyoch@...>

< >

Sent: Thu, Jun 3, 2010 11:19 pm

Subject: Re: [ ] Gluten Question

I agree. If you feel better on the diet, why does it matter if you have an official diagnosis? If it's working, stick with it. If I knew then, what I knew now, I would not have put my daughter through the biopsy and repeated blood tests.

I felt compelled because the doctors pushed it, and we were frightened because she was so sick.

I suppose now that we know, we might be more vigilient about gluten and cross contamination. Otherwise I don't see how have the official diagnosis has made a difference. In fact I wonder if it will cause problems for her later in life as she tries to get health insurance. Hopefully by then our healthcare system will be reformed so that individuals with pre-existing conditions won't be penalized.

That is my 2 cents.

Sent from my iPhone

On Jun 3, 2010, at 9:55 PM, "

Darcy" <ddarcystanfordalumni (DOT) org> wrote:

It’s really frustrating to hear that doctors are

recommending going gluten-free without even doing the blood test. Yet they did

the genetic test! How odd. Anyway, no, once you are on the diet, you

cannot detect celiac disease.

Based on what you say, it sounds like you may have gluten

sensitivity. The genetic test only means that it’s possible for you to have

celiac, not that you do. About 35-40% of the population has one of those genes,

while only 1% have celiac. That’s why the genetic test is not used to

diagnose celiac. A biopsy is the gold standard, which follows a positive serum

result. Both would be negative after being on a GF diet for several months or

so.

I’m sorry! But if you do feel better on a GF diet, and you’re

able to maintain it, then you might as well continue it. Feeling better

is what’s important, not labeling your condition, right?

Best wishes,

From:

[mailto: ] On Behalf Of Deb Matsuoka

Sent: Thursday, June 03, 2010 7:16 PM

Subject: Re: [ ] Gluten Question

Pam,

thanks for the response.

I

have not been diagnosed with a biopsy or blood test. I went gluten free

based on a doctors recommendation, I had all the symptoms. After a few

weeks I felt great, tons of energy, no more GI issues and was starting to feel

"normal". I finally got in with my GI doc and it was too late

to take the blood or biopsy tests. I then took the EnteroLab tests and it

came back that I had one of the gene's for Celiac and that I had a very high

number when it came to the Gluten Sensitivity. Based on that my GI doc

felt very convinced I had Celiac.. now I am starting to question if he is right

or not.

I

have been feeling great since I went Gluten Free but I am just wondering if I

have Celiac, Gluten Sensitivity or is this all in my head?

Any

suggestions would be great, are there any tests I can do now that I wouldn't

have to go back on gluten for?

Deb

-----

Original Message -----

From: Pam Newbury

Sent: Thursday, June 03,

2010 4:38 PM

Subject: [ ]

Gluten Question

This is not unusual. My husband

had a very similar experience. Even right after his diagnosis, whenever

he had accidental gluten he did not experience any outward, obvious

reaction. For a years he doubted his diagnosis in spite of classic villi

damage on his initial biopsy. When the blood tests were developed (about

4 years after his diagnosis), he decided to do a gluten challenge. After

a 2-week gluten challenge he showed no antibodies and had no symptoms, so he

went on a longer gluten challenge. It was 6 months before he felt

symptoms (on about 1 pastry a day of gluten) and at 9 months (he is a stubborn

guy) he took the blood tests again and had positive antibodies.

Remember that you have been healing for

2 years and your gut is getting back to normal. Everybody’s

response to gluten is different, and that response can change over time

depending in part on diet, stress, and overall health. As others have

mentioned, if you were diagnosed by biopsy and/or blood tests and responded

well to the GF diet, a one-time accidental gluten challenge is not an indicator

of the reliability of your diagnosis and I would not suggest a longer gluten

challenge or retest. If there was doubt about the initial diagnosis

or if you are self-diagnosed, that is a different story with a more complicated

response (let us know if that is your situation and you need suggestions based

on that).

Pam Newbury

From:

[mailto: ] On

Behalf Of Deb Matsuoka

Sent: Tuesday, June 01, 2010 9:04 PM

Subject: [ ] Gluten Question

I have been diagnosed with Celiac and been gluten free

for the last 2 years, tonight I ate some french fries and found out after

eating them that they were seasoned with flour prior to frying. So far I

feel fine, could I have been misdiagnosed or do others not have symptoms after

having gluten by accident?

Any suggestions/ideas would be great.

[Guest guest]

Sadly, at this point in time, blood tests and biopsy must be

done while on a gluten containing diet. The only test that does not depend

on eating gluten is the genetic test, which you have had, which can rule out

celiac disease but not confirm it.

Here are some things to consider when deciding what to do next.

Keep in mind that I am not a doctor and this is not medical advice, just some information

to reflect on when deciding how to go forward.

First, how important is a firm diagnosis to you? If you

have questions about the diagnosis, will that make it harder for you to stick

to the diet? Will those nagging doubts bother you constantly?

For some people it is enough to know that eating gluten makes

them sick and they don’t need a diagnosis. Others find the diet and

costs so onerous they want absolute confirmation before making the commitment

to a gluten-free diet for life. What is not good is to go back and forth.

Your choice here is to either commit to the GF diet for life without looking

back or do a gluten challenge (see warnings below) and confirm the diagnosis.

The tests you had were not enough to give you a definite diagnosis,

yet nothing so far has ruled out celiac disease or gluten sensitivity. If

you want to get a firm diagnosis, you will need to eat gluten again until you

are having symptoms (this is often referred to as a “gluten challenge”).

There are risks involved with a gluten challenge, among them the chance of

developing an associated autoimmune disease (there are around 80 of these

including Hashimoto’s thyroid disease, arthritis, and Sjogren’s syndrome).

Some people find it harder to recover after a gluten challenge than from the initial

celiac disease (this isn’t something I’ve seen research on, just an

observation). Also, the discomfort of the symptoms themselves is another

concern.

Not everyone has problems with a gluten challenge, but you

should know the possible repercussions. If you do decide to do a gluten

challenge, I suggest easing into it and backing off when symptoms become clear,

then holding that level of gluten until tests are complete. The people I

have heard of who had the most problems forced themselves (on doctor’s

orders) to eat a certain amount of gluten each day even though it

made them very sick. Even after a gluten challenge, no one knows exactly

how long it will take a particular individual to develop gut damage that will

show up on a biopsy, so if you do the biopsy too soon the results may still be

inconclusive. If you feel that positive antibodies on a blood test would

be enough to convince you, that makes it a bit easier as repeated blood tests

are less invasive than repeated biopsies.

So, here you are: you can’t turn the clock back to before

you were gluten-free and get tested (notice I’m trying not to get angry

that a doctor told you to stop eating gluten before being tested), but you have

doubts about the diagnosis. What you do next depends a lot on how

strongly you feel about the need for a diagnosis weighed against the potential

problems of doing a gluten challenge.

You wondered if this was “all in your head”.

You have two pieces of information that suggest it is not: the symptoms you had

that resolved on a gluten-free diet and the genetic test that put you in the

category of possible celiacs/gluten-sensitives (I’m not counting the EnteroLab

test for gluten sensitivity because I am not familiar with it). You have

one experience (eating the flour-coated fries) that makes you doubt the celiac

label; however, you also know that no reaction from one exposure to gluten

after 2 years of healing is not unheard of.

You also wondered if you were celiac or just gluten-sensitive.

That one is trickier. I think you could argue that the difference between

the two makes no difference. But for some it might. I don’t

yet understand enough about the difference between the two to give much advice

here, and I think medical research hasn’t yet fully revealed if those are

two different paths or one path with two different levels. Either way,

for now the GF diet is the answer for both.

So you need to decide what is the right path for you: if your

doubts keep troubling you and make it harder to stay gluten-free, maybe getting

a diagnosis is worth the risks involved in a gluten challenge. If the

doubts are fleeting and on reflection you realize that you don’t want to

take a chance on getting sick or developing and autoimmune disease by doing the

gluten challenge, you may conclude that the certainty of a diagnosis is not

necessary. I’ve boiled this down here to keep it simple; there

are many other factors involved in this decision that you may want to consider

as well. I would encourage you to be as informed as possible about your

options and carefully consider the pros and cons of both choices.

Feel free to ask as many questions as you need to; this list is a great

resource for suggestions and information.

From:

[mailto: ] On Behalf Of Deb Matsuoka

Sent: Thursday, June 03, 2010 7:16 PM

Subject: Re: [ ] Gluten Question

Pam, thanks for the response.

I have not been diagnosed with a biopsy or

blood test. I went gluten free based on a doctors recommendation, I had

all the symptoms. After a few weeks I felt great, tons of energy, no more

GI issues and was starting to feel " normal " . I finally got in

with my GI doc and it was too late to take the blood or biopsy tests. I

then took the EnteroLab tests and it came back that I had one of the gene's for

Celiac and that I had a very high number when it came to the Gluten

Sensitivity. Based on that my GI doc felt very convinced I had Celiac..

now I am starting to question if he is right or not.

I have been feeling great since I went Gluten

Free but I am just wondering if I have Celiac, Gluten Sensitivity or is this

all in my head?

Any suggestions would be great, are there any

tests I can do now that I wouldn't have to go back on gluten for?

Deb

[Guest guest]

Pam

Thank you so much for the wonderful information. I am concerned about doing a Gluten Challenge since auto immune diseases run in our family and my mom as 5 different auto immune diseases and I would hate to trigger one.

Do you know of a good doctor for me to talk with in the Santa Cruz area or in SJ. I live in SC but work in the Mountain View/San area.

Any suggestions would be great.

Deb

From: Pam Newbury <pknewbury@...>Subject: [ ] Gluten Question Date: Sunday, June 6, 2010, 2:33 PM

Sadly, at this point in time, blood tests and biopsy must be done while on a gluten containing diet. The only test that does not depend on eating gluten is the genetic test, which you have had, which can rule out celiac disease but not confirm it.

Here are some things to consider when deciding what to do next. Keep in mind that I am not a doctor and this is not medical advice, just some information to reflect on when deciding how to go forward.

First, how important is a firm diagnosis to you? If you have questions about the diagnosis, will that make it harder for you to stick to the diet? Will those nagging doubts bother you constantly?

For some people it is enough to know that eating gluten makes them sick and they don’t need a diagnosis. Others find the diet and costs so onerous they want absolute confirmation before making the commitment to a gluten-free diet for life. What is not good is to go back and forth. Your choice here is to either commit to the GF diet for life without looking back or do a gluten challenge (see warnings below) and confirm the diagnosis.

The tests you had were not enough to give you a definite diagnosis, yet nothing so far has ruled out celiac disease or gluten sensitivity. If you want to get a firm diagnosis, you will need to eat gluten again until you are having symptoms (this is often referred to as a “gluten challengeâ€). There are risks involved with a gluten challenge, among them the chance of developing an associated autoimmune disease (there are around 80 of these including Hashimoto’s thyroid disease, arthritis, and Sjogren’s syndrome). Some people find it harder to recover after a gluten challenge than from the initial celiac disease (this isn’t something I’ve seen research on, just an observation) . Also, the discomfort of the symptoms themselves is another concern.

Not everyone has problems with a gluten challenge, but you should know the possible repercussions. If you do decide to do a gluten challenge, I suggest easing into it and backing off when symptoms become clear, then holding that level of gluten until tests are complete. The people I have heard of who had the most problems forced themselves (on doctor’s orders) to eat a certain amount of gluten each day even though it made them very sick. Even after a gluten challenge, no one knows exactly how long it will take a particular individual to develop gut damage that will show up on a biopsy, so if you do the biopsy too soon the results may still be inconclusive. If you feel that positive antibodies on a blood test would be enough to convince you, that makes it a bit easier as repeated blood tests are less invasive than repeated biopsies.

So, here you are: you can’t turn the clock back to before you were gluten-free and get tested (notice I’m trying not to get angry that a doctor told you to stop eating gluten before being tested), but you have doubts about the diagnosis. What you do next depends a lot on how strongly you feel about the need for a diagnosis weighed against the potential problems of doing a gluten challenge.

You wondered if this was “all in your headâ€. You have two pieces of information that suggest it is not: the symptoms you had that resolved on a gluten-free diet and the genetic test that put you in the category of possible celiacs/gluten- sensitives (I’m not counting the EnteroLab test for gluten sensitivity because I am not familiar with it). You have one experience (eating the flour-coated fries) that makes you doubt the celiac label; however, you also know that no reaction from one exposure to gluten after 2 years of healing is not unheard of.

You also wondered if you were celiac or just gluten-sensitive. That one is trickier. I think you could argue that the difference between the two makes no difference. But for some it might. I don’t yet understand enough about the difference between the two to give much advice here, and I think medical research hasn’t yet fully revealed if those are two different paths or one path with two different levels. Either way, for now the GF diet is the answer for both.

So you need to decide what is the right path for you: if your doubts keep troubling you and make it harder to stay gluten-free, maybe getting a diagnosis is worth the risks involved in a gluten challenge. If the doubts are fleeting and on reflection you realize that you don’t want to take a chance on getting sick or developing and autoimmune disease by doing the gluten challenge, you may conclude that the certainty of a diagnosis is not necessary. I’ve boiled this down here to keep it simple; there are many other factors involved in this decision that you may want to consider as well. I would encourage you to be as informed as possible about your options and carefully consider the pros and cons of both choices. Feel free to ask as many questions as you need to; this list is a great resource for suggestions and information.

From: [mailto:celiacbayar eagroups (DOT) com] On Behalf Of Deb MatsuokaSent: Thursday, June 03, 2010 7:16 PM Subject: Re: [ ] Gluten Question

Pam, thanks for the response.

I have not been diagnosed with a biopsy or blood test. I went gluten free based on a doctors recommendation, I had all the symptoms. After a few weeks I felt great, tons of energy, no more GI issues and was starting to feel "normal". I finally got in with my GI doc and it was too late to take the blood or biopsy tests. I then took the EnteroLab tests and it came back that I had one of the gene's for Celiac and that I had a very high number when it came to the Gluten Sensitivity. Based on that my GI doc felt very convinced I had Celiac.. now I am starting to question if he is right or not.

I have been feeling great since I went Gluten Free but I am just wondering if I have Celiac, Gluten Sensitivity or is this all in my head?

Any suggestions would be great, are there any tests I can do now that I wouldn't have to go back on gluten for?

Deb

[Guest guest]

One of the best ways to find out if gluten is a problem, is to go gluten free for a month to 6 weeks. do you feel better? do this especially during the months you do not feel well. Yes, you will have to reorganize the way you eat, but this is a sure fire way of knowing. The usual blood tests often give false negatives. If you are negative on the genetic testing you can rule out gluten sensitivity. And here too they are learning more genes may be involved than they originally thought.

[Guest guest]

Coach'ee, that is such a simple step to take, great idea. Myself on the third day, I knew I was on the high road, and the remainder was a downhill pull.

I am zooming after getting off gluten and most carbs, the mind foggy is gone, energy is up fifty percent, I go and go, and my emotional state is riding on high. I read the small intestines is where serotonin is made. If undigested food comes in there and the immune system raises havoc and inflames them, good feelings go south.

Ivory soap enemias are great for improving mood, but it takes three quarts. I suppose I was only flushing out the undigested food.

Anywho I am consuming not more than sixty percent of the food I once ate, have lost all cravings, feel great, put me in coach.

stay vertical, david in lubbock

PS: I take 3 capsules of Betaine HCL, that is a high dose I am thinking, two caps of enzymes, and Kefir for a probiotic, with each meal. LDN and ALA and I have leukemia, but don't tell anyone, they would never believe it. I thought perhaps Kefir and all the acid might not dance well together, but they seem to get on well.

I suppose it is human nature, but I find myself driving very causiously, hoping for no accidents which could end this wonderbar trip. Oh well, whatever will be, will be.

[low dose naltrexone] Re: Gluten question

One of the best ways to find out if gluten is a problem, is to go gluten free for a month to 6 weeks. do you feel better? do this especially during the months you do not feel well. Yes, you will have to reorganize the way you eat, but this is a sure fire way of knowing. The usual blood tests often give false negatives. If you are negative on the genetic testing you can rule out gluten sensitivity. And here too they are learning more genes may be involved than they originally thought.

[Guest guest]

hi mike, could be sad [seasonal affected disorder] that can hit you especially in the winter thrugh lack of sunlight

never heard of gluten linked to fatique

do you take vit d ?

regards/peter/london/ms primary progressive

Doctors have said I don't have a gluten (celiac) issue but all the comments on this board make me wonder.My question is I've had a chronic fatigue issue off and on for years. Why would I have a fatigue slump, feel perfectly normal for years, then suddenly have a seven-month relapse if this was gluten related?I felt 100 percent normal from 2005 through the summer of 2010 but have been in a fatigue slump the past seven months after dealing with a similar issue for six months at a time in 2002, 2003 and 2004. Each spring it would improve then return in the late summer.If gluten truly is an issue for me, why wouldn't it be a constant problem instead of an off and on deal?

[Guest guest]

Fatigue is very much a symptom of gluten intolerance or celiac disease:

CONCLUSIONS: Fatigue is a major concern in untreated celiac disease patients, which impacts their quality of life.

Fatigue as a determinant of health in patients with celiac disease.

http://www.ncbi.nlm.nih.gov/pubmed/19935081

PMID: 19935081 July 2010

For more, go to the Gluten File:

http://sites.google.com/site/jccglutenfree/

Nola Chris

Re: [low dose naltrexone] Gluten question

hi mike, could be sad [seasonal affected disorder] that can hit you especially in the winter thrugh lack of sunlight

never heard of gluten linked to fatique

do you take vit d ?

regards/peter/london/ms primary progressive

Doctors have said I don't have a gluten (celiac) issue but all the comments on this board make me wonder.

My question is I've had a chronic fatigue issue off and on for years. Why would I have a fatigue slump, feel perfectly normal for years, then suddenly have a seven-month relapse if this was gluten related?

I felt 100 percent normal from 2005 through the summer of 2010 but have been in a fatigue slump the past seven months after dealing with a similar issue for six months at a time in 2002, 2003 and 2004. Each spring it would improve then return in the late summer.

If gluten truly is an issue for me, why wouldn't it be a constant problem instead of an off and on deal?

[Guest guest]



Will someone give us an AMEN, gluten intolerance has kicked my butt for fifty years, thank goodness for betaine hcl, enzymes, kefir. and I can eat tator bread, but oatmeal bread puts me down, go figure.

If I drank a beer, at bread, the most challenging things I could get done was take a nap and nurse my brain fogg and tired self, I absolutely feel like I have lived underground in a cave and now found sunlight for the first time. put me in coach I'm ready to rock.

Whow, I was using HGH, wellbutrim, two serotonin enhancers, effexor and stablon, lodine, celebrex and an anti narcoleptic drug, levodopa, 5htp, to keep going. It took me thirty minutes to pill up each morning.

I sincerely urge anyone, who may think they have a gluten problem, do as kcoach suggested, get off for a week or two. Whow, it only took me three days and I knew I was on the high road. Betaine, enzymes and kefir allows me to get all those wonderful vitamins, energies and goodies out of my food.

stay vertical, david lubbock tx.

Re: [low dose naltrexone] Gluten question

hi mike, could be sad [seasonal affected disorder] that can hit you especially in the winter thrugh lack of sunlight

never heard of gluten linked to fatique

do you take vit d ?

regards/peter/london/ms primary progressive

Doctors have said I don't have a gluten (celiac) issue but all the comments on this board make me wonder.My question is I've had a chronic fatigue issue off and on for years. Why would I have a fatigue slump, feel perfectly normal for years, then suddenly have a seven-month relapse if this was gluten related?I felt 100 percent normal from 2005 through the summer of 2010 but have been in a fatigue slump the past seven months after dealing with a similar issue for six months at a time in 2002, 2003 and 2004. Each spring it would improve then return in the late summer.If gluten truly is an issue for me, why wouldn't it be a constant problem instead of an off and on deal?

[Guest guest]

If gluten truly is an issue for me, why wouldn't it be a constant problem instead of an off and on deal?Have you ever talked with someone who has allergies? Their allergies are never the same each day....sometimes they are debilitating....sometimes they aren't. By the way, that goes for seasonal allergies, too.

Also worth noting, people can eat a certain food or be exposed to something for years, one day you wake up, and you can be highly allergic or sensitive to it.

People with chronic illness are showing higher rates of Gluten Intolerance or Celiac disease. People who suffer from persistent borreliosis, or Borreliosis Complex (Lyme and associated diseases) have a very high rate.

Go to www.ask.com and research immunology.

Best regards-

TorreyPresidentNational Tick-Borne Disease Advocates

[Guest guest]

I’ve just been reading the book “The GenoType Diet†or “How to change your Genetic Destiny†by Dr D’Adamo and it says that if you have lines cutting across the loops, whirls and arches of your fingerprints, it is a sign that you are gluten intolerant. People with Celiac Disease have these. And I have these. I’ve also got a lot of fatigue and just had lab work done this week to test for food allergies.

I have been trying to go gluten free for the past few months but haven’t been as strict as I should. He also says that it may take 2-3 years after going totally gluten free before these lines start to go away.

Judy HTo Health Through KnowledgeStarted taking Low Dose Naltrexone on January 20, 2009 for Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOSLDNforFibro/

Re: Gluten question

Posted by: "smalk50@..." smalk50@... smalk50

Sat Mar 12, 2011 5:40 pm (PST)

Fatigue is very much a symptom of gluten intolerance or celiac disease: CONCLUSIONS: Fatigue is a major concern in untreated celiac disease patients, which impacts their quality of life. Fatigue as a determinant of health in patients with celiac disease. http://www.ncbi.nlm.nih.gov/pubmed/19935081 PMID: 19935081 July 2010 For more, go to the Gluten File: http://sites.google.com/site/jccglutenfree/ Nola Chris

[Guest guest]

From: Jan C <lemonsilly09@...>smalk50@...Sent: Sun, March 13, 2011 8:34:24 AMSubject: Re: [low dose naltrexone] Gluten question

I have celiac and can personally attest to fatigue being a factor going all the way back to childhood. There have been times, even years, when it was not as bad,when my life seemed almost normal. And there have also been times when I can hardly get out of bed. Stress plays a major role, as does diet.From: "smalk50@..." <smalk50@...>peter.nicholls@...;

mikebaldwin@...; low dose naltrexone Sent: Sat, March 12, 2011 5:44:52 PMSubject: Re: [low dose naltrexone] Gluten question

Fatigue is very much a symptom of gluten intolerance or celiac disease:

CONCLUSIONS: Fatigue is a major concern in untreated celiac disease patients, which impacts their quality of life.

Fatigue as a determinant of health in patients with celiac disease.

http://www.ncbi.nlm.nih.gov/pubmed/19935081

PMID: 19935081 July 2010

For more, go to the Gluten File:

http://sites.google.com/site/jccglutenfree/

Nola Chris

Re: [low dose naltrexone] Gluten question

hi mike, could be sad [seasonal affected disorder] that can hit you especially in the winter thrugh lack of sunlight

never heard of gluten linked to fatique

do you take vit d ?

regards/peter/london/ms primary progressive

Doctors have said I don't have a gluten (celiac) issue but all the comments on this board make me wonder.

My question is I've had a chronic fatigue issue off and on for years. Why would I have a fatigue slump, feel perfectly normal for years, then suddenly have a seven-month relapse if this was gluten related?

I felt 100 percent normal from 2005 through the summer of 2010 but have been in a fatigue slump the past seven months after dealing with a similar issue for six months at a time in 2002, 2003 and 2004. Each spring it would improve then return in the late summer.

If gluten truly is an issue for me, why wouldn't it be a constant problem instead of an off and on deal?

[Guest guest]

LT, great post, helps me understand. I had those same questions. thanks

david lubbock tx

[low dose naltrexone] Re: Gluten question

If gluten truly is an issue for me, why wouldn't it be a constant problem instead of an off and on deal?Have you ever talked with someone who has allergies? Their allergies are never the same each day....sometimes they are debilitating....sometimes they aren't. By the way, that goes for seasonal allergies, too.

Also worth noting, people can eat a certain food or be exposed to something for years, one day you wake up, and you can be highly allergic or sensitive to it.

People with chronic illness are showing higher rates of Gluten Intolerance or Celiac disease. People who suffer from persistent borreliosis, or Borreliosis Complex (Lyme and associated diseases) have a very high rate.

Go to www.ask.com and research immunology.

Best regards-

TorreyPresidentNational Tick-Borne Disease Advocates

[Guest guest]



Whow, Judy, please let us know how affective your tests results are for you, I believe my dock would order them if I insisted,

david lubbock tx

[low dose naltrexone] Re: Gluten question

I’ve just been reading the book “The GenoType Diet†or “How to change your Genetic Destiny†by Dr D’Adamo and it says that if you have lines cutting across the loops, whirls and arches of your fingerprints, it is a sign that you are gluten intolerant. People with Celiac Disease have these. And I have these. I’ve also got a lot of fatigue and just had lab work done this week to test for food allergies.

I have been trying to go gluten free for the past few months but haven’t been as strict as I should. He also says that it may take 2-3 years after going totally gluten free before these lines start to go away.

Judy HTo Health Through KnowledgeStarted taking Low Dose Naltrexone on January 20, 2009 for Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOSLDNforFibro/

Re: Gluten question

Posted by: "smalk50@..." smalk50@... smalk50

Sat Mar 12, 2011 5:40 pm (PST)

Fatigue is very much a symptom of gluten intolerance or celiac disease: CONCLUSIONS: Fatigue is a major concern in untreated celiac disease patients, which impacts their quality of life. Fatigue as a determinant of health in patients with celiac disease. http://www.ncbi.nlm.nih.gov/pubmed/19935081 PMID: 19935081 July 2010 For more, go to the Gluten File: http://sites.google.com/site/jccglutenfree/ Nola Chris

[Guest guest]

His earlier book, "Eat Right for Your Blood Type" says that those of us that have blood type A should be vegetarians and there's NO way I'd become a vegetarian. I did go gluten-free for three wks and didn't notice any difference other than craving the foods that have gluten, but three wks may not be long enough. Since I have "low-grade Hashimotos," I'm going to discuss this with my doctor on Wed.

Annette

[Guest guest]

craving the foods that have gluten,means that

you get morphines kind of stuff from gluten.

Those morphines like stuff si ton the same receptors as the

ldn.

Without stopping gluten and probably soy and milk ,the ldn

willnot work for you.

Much more info in the ldn for autists group

I am using the Free version of SPAMfighter.SPAMfighter has removed 2349 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

I tested positive for gluten antibodies and gene and dairy also. I went

traditional gluten free(wheat, barley, rye)and nothing no help at all. I have

now gone GRAIN FREE. I mean everything. NO rice, oats, corn, even quinoa and

buckwheat because most are contaminated. I have been very serious to make sure

it is in nothing. Also I am vegan so I don't eat meat but many who have this do

but ONLY organic free range or wild. All other animals eat the grains one is

allergic to. This is the best group online for information.

http://www.glutenfreesociety.org/

I am feeling much improved.

I also have LYME disease, hashimotos and cancer 08 and MCS.

Blessings,

PAMI

[Guest guest]

I, too am a Type A and don’t think I could ever be a Vegan, but according to his GenoType book Type A’s can fit into 2 groups. While Beef and Pork are Avoids, most people can still have eggs, most fish and some poultry and some even Lamb, goat or veal. Also, while he does allow grains such as wheat, he recommends substituting whole grains and especially using Spelt instead of the ‘newer’ Durham and Semolina types. Also in the Eat Right For Your Type Blood Type Encyclopedia it says about Fibromyalgia (my main problem): “Blood group O is highly susceptible to fibromyalgia, especially with consumption of wheat. Wheat germ lectins exacerbate the tendency for hyper-immunity, which is a characteristic of autoimmune diseases.†He then recommends that people with autoimmune diseases, especially those with joint inflammation, avoid all grains but especially wheat.

Judy HTo Health Through KnowledgeStarted taking Low Dose Naltrexone on January 20, 2009 for Fibromyalgia, Restless Legs Syndrome, Hashimotos Thyroid and PCOSLDNforFibro/

Re: Gluten question

Posted by: "Nplus9010@..." Nplus9010@...

Sun Mar 13, 2011 9:03 pm (PDT)

His earlier book, "Eat Right for Your Blood Type" says that those of us that have blood type A should be vegetarians and there's NO way I'd become a vegetarian. I did go gluten-free for three wks and didn't notice any difference other than craving the foods that have gluten, but three wks may not be long enough. Since I have "low-grade Hashimotos," I'm going to discuss this with my doctor on Wed.Annette

[Guest guest]

So he has revised his recommendations regarding proteins/meats. In the old book, he was really big on Type A's using soy. I absolutely hate soy and since I'm hypothryroid, soy and cuciferous vegetables are not recommended because they lower the effectiveness of thyroid medications.

Annette

[Guest guest]

The whole premise for D'Adamo blood type approach is flawed. He gets the history of blood types all wrong. The reason the diet helps so many is because most of the suggestions include eliminating grains.

Here is one review.

http://slowburnfitness.com/all-mammals-eat-a-high-fat-diet/

===

Posted through Grouply

Create your own group!

www.grouply.com