Guest guest Posted June 5, 2010 Report Share Posted June 5, 2010 This post is not for the squeamish and I apologize in advance for it's content. For the last two years (100% GF, no CC) I have experienced the following with my bowel movements (BM): I'll have light BMs for about a week, formed, and for the most part " normal " . As the week progresses my gut starts to expand closer towards my belly button and eventually it looks like the classic Celiac tummy or that I'm pregnant. Once the sixth or seventh day rolls around I get sharp pains in my intestines and even though I'll have somewhat of a BM every day during the week, it starts to feel like something is stuck up higher in my intestinal tract. Finally, there's so much pressure and pain that for about thirty minutes on the sixth or seventh day I'll be having a BM every five minutes. My entire intestinal tract has a sick feeling to it and when I am in mid BM my entire upper body (including brain) starts going through bouts of numbness and tingling. I will literally have issues thinking and looking upwards (feels like someone has dimmed the lights). In some ways it feels like an out of body experience. Finally most of the BM will have come out and I'll be able to rest for about 45 minutes to an hour till the sick feeling comes back and the rest of the BM comes out. The last part always comes out semi-oily and rancid in odor. Once that comes out, then I feel 100% again. I'm in between gut doctors right now and am curious to know if anyone has dealt with this or is still dealing with this? Any recommendations of what this may be due to? Just to reiterate, I'm 100% GF compliant. My follow-up blood test for Celiac came back negative and according to my follow-up endoscopy and biopsy my villi look healed and there is no evidence of CD. I also had a colonoscopy which didn't show any abnormalities. The only thing I have not done yet which was suggested by my last gastro doc was to have a capsule endoscopy. I am currently seeing an endocrinologist for an enlarged pituitary gland/pituitary tumor (not sure if it's a tumor now). He seems knowledgeable in Celiac and I'm wondering if I should mention any of my BM process with him? I know this is beyond icky and I'm sorry. Just not sure who else to turn to. Thank you everyone. ~ C Quote Link to comment Share on other sites More sharing options...
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