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Hi All,

I have just received the following post from a very concerned mother of a

young fellow with achondroplasia. He is in the 7th grade and is currently

having to use a wheelchair for mobility. He is recovering from very extensive

surgery.

He has an IEP on file. Please respond directly to his mother with your

comments. I know you will help this fine family out.

Here is the note from Ke1co2@...

My son, who has finally been able to go back to school, was supposed to have

an aide to help him get from class to class and to help him in the restroom.

His aide pushes him from class to class but, she refuses to go in the

restroom with him. The school is telling me they have no one to do this, and

because she is a female she is not allowed in the bathroom with him.

Unbelievable! I feel that they are being discriminating against him. A

teacher called me to let me know that he doesn't like what he is seeing and

the kind of treatment my son is getting at school. They told all his

teachers that if my son were to sneeze to write him up. In other words they

don't want him there, they want to kick him out. They are afraid of a

liability. I don't think they are going to write him up now, since I know

their plan. This person that called me does not want his name brought up but

he is looking out for my son. It is such an unfair world! They want him to

go to a physically impaired program at another school 45 minutes away. I

will not go for that. He is very happy there and I will fight for our

rights. If you get a chance write me back and tell me what you think about

this.

Thank you, one and all and please respond to Ke1co2@...

Beth Tatman

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The parents must have 'combacks' for everything the school 'can't' do. They

must try to always be prepared. About the bathroom -- they can let him use

the teachers' or nurses bathroom that is not for one sex. Maybe the mom

could go along one day to 'observe' and help them solve the problems (in

their minds!). It's so unfortunate when the school just doesn't want to

cooperate. They have so much control, it's scarry. They may need to repeat

to the school that 'such and such' is a " reasonable accommodation " , and

that's all they are asking.

Just my thoughts! Schools can make things so difficult!

Lenette

----------

>From: Btatman@...

>dwarfismonelist

>Subject: Re: School Situation

>Date: Sat, Oct 2, 1999, 8:41 PM

>

> From: Btatman@...

>

> Hi All,

>

> I have just received the following post from a very concerned mother of a

> young fellow with achondroplasia. He is in the 7th grade and is currently

> having to use a wheelchair for mobility. He is recovering from very extensive

> surgery.

>

> He has an IEP on file. Please respond directly to his mother with your

> comments. I know you will help this fine family out.

>

> Here is the note from Ke1co2@...

> My son, who has finally been able to go back to school, was supposed to have

> an aide to help him get from class to class and to help him in the restroom.

> His aide pushes him from class to class but, she refuses to go in the

> restroom with him. The school is telling me they have no one to do this, and

> because she is a female she is not allowed in the bathroom with him.

> Unbelievable! I feel that they are being discriminating against him. A

> teacher called me to let me know that he doesn't like what he is seeing and

> the kind of treatment my son is getting at school. They told all his

> teachers that if my son were to sneeze to write him up. In other words they

> don't want him there, they want to kick him out. They are afraid of a

> liability. I don't think they are going to write him up now, since I know

> their plan. This person that called me does not want his name brought up but

> he is looking out for my son. It is such an unfair world! They want him to

> go to a physically impaired program at another school 45 minutes away. I

> will not go for that. He is very happy there and I will fight for our

> rights. If you get a chance write me back and tell me what you think about

> this.

>

> Thank you, one and all and please respond to Ke1co2@...

>

> Beth Tatman

>

> >

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I have taken the liberty to forward this post to my husband who serves on our

schoolboard and to our school superintendant (a lawyer) that they may give an

administrative view....Also told them this better not happen to one of our

kids which we face the real possibility of in the hopefully near future.

Apryl

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Schools can make things more difficult than they really are, I agree Lenette.

It seems

they do not want to put forth extra effort to accommodate every student if

they aren't

" normal " in their eyes.

Back in 1976, when I was to take Drivers Ed " Behind the Wheel " , I was getting

overlooked just because the school didn't have the pedals to attach to the

car so as I can

have my designated hours of driving as the other students were getting. My

parents (who

also are LP), had to get pushy with the staff in order for me to learn. My

mother insisted they teach me just like the other kids. So, in order for the

school to not have any more flim-flam excuses, my parents let them use my

dads extra pedals. It wasn't my parents

responsibility to supply them, but in order for me to drive, they did.

Dawn

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Oh my goodness, this story sounded as if I was reading Mandy's past school

history word for word from elementary school!

Our family owns a company that is similar to a clearing house to help people

with similar problems, or places to contact when they need info with a

disability issue.

The ADA is involved here, but there are also some issues that are a little

touchy. " Personal care " issues are a sticky item with the ADA. I would

reccommend that they ask for a MALE aide for the potty issue only. That way

it would be comfortable for all involved, and he will receive the help he

needs. We have been through all of this, and we understand the feelings

this family must be going through.

Warmly,

The Hoggan Clan

~~~~~~~~~~~~~~~~~~~~~~~~~~

" Did I say I sent hugs today?

If not... HUGGIES TO YOU ! "

~~~~~~~~~~~~~~~~~~~~~~~~~~

Re: School Situation

> From: Btatman@...

>

> Hi All,

>

> I have just received the following post from a very concerned mother of a

> young fellow with achondroplasia. He is in the 7th grade and is currently

> having to use a wheelchair for mobility. He is recovering from very

extensive

> surgery.

>

> He has an IEP on file. Please respond directly to his mother with your

> comments. I know you will help this fine family out.

>

> Here is the note from Ke1co2@...

> My son, who has finally been able to go back to school, was supposed to

have

> an aide to help him get from class to class and to help him in the

restroom.

> His aide pushes him from class to class but, she refuses to go in the

> restroom with him. The school is telling me they have no one to do this,

and

> because she is a female she is not allowed in the bathroom with him.

> Unbelievable! I feel that they are being discriminating against him. A

> teacher called me to let me know that he doesn't like what he is seeing

and

> the kind of treatment my son is getting at school. They told all his

> teachers that if my son were to sneeze to write him up. In other words

they

> don't want him there, they want to kick him out. They are afraid of a

> liability. I don't think they are going to write him up now, since I know

> their plan. This person that called me does not want his name brought up

but

> he is looking out for my son. It is such an unfair world! They want him

to

> go to a physically impaired program at another school 45 minutes away. I

> will not go for that. He is very happy there and I will fight for our

> rights. If you get a chance write me back and tell me what you think

about

> this.

>

> Thank you, one and all and please respond to Ke1co2@...

>

> Beth Tatman

>

> >

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Beth,

My son has scheduled bathroom time. The aide comes to his room, and SHE

helps him in the bathroom. However, he is only five.

Lenette had the perfect solution. If the student has enough bladder

control, he could go to the nurses station for scheduled bathroom breaks.

The nurse or aid in the clinic can not refuse him help. Every one knows

nurses take care of male patients.

If this family is in Florida there is a wonderful organization they should

contact Florida Network on Disabilities. This organization is made up of

parents who are very familiar with the education laws, and know how to make

the schools comply. Your friend is right, the school wants to get rid of

her son, so they don't have to be bothered with him. They may think they

are avoiding liability, but they are actually creating it by not honoring

his IEP. That is against federal law. FND can tell you how to contact

Tallahassee, and have an advocate appointed to them. The family has the

right to set up another IEP meeting, and have the Tallahassee representative

present. You will be surprised how fast blatantly illegal behavior

disappears when you have a witness with you.

Contact: fndsally@...

Good luck,

Marie

At 08:41 PM 10/2/99 EDT, you wrote:

>From: Btatman@...

>

>Hi All,

>

>I have just received the following post from a very concerned mother of a

>young fellow with achondroplasia. He is in the 7th grade and is currently

>having to use a wheelchair for mobility. He is recovering from very extensive

>surgery.

>

>He has an IEP on file. Please respond directly to his mother with your

>comments. I know you will help this fine family out.

>

>Here is the note from Ke1co2@...

>My son, who has finally been able to go back to school, was supposed to have

>an aide to help him get from class to class and to help him in the restroom.

>His aide pushes him from class to class but, she refuses to go in the

>restroom with him. The school is telling me they have no one to do this, and

>because she is a female she is not allowed in the bathroom with him.

>Unbelievable! I feel that they are being discriminating against him. A

>teacher called me to let me know that he doesn't like what he is seeing and

>the kind of treatment my son is getting at school. They told all his

>teachers that if my son were to sneeze to write him up. In other words they

>don't want him there, they want to kick him out. They are afraid of a

>liability. I don't think they are going to write him up now, since I know

>their plan. This person that called me does not want his name brought up but

>he is looking out for my son. It is such an unfair world! They want him to

>go to a physically impaired program at another school 45 minutes away. I

>will not go for that. He is very happy there and I will fight for our

>rights. If you get a chance write me back and tell me what you think about

>this.

>

>Thank you, one and all and please respond to Ke1co2@...

>

>Beth Tatman

>

>>

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  • 3 weeks later...

Hi,

I have been out of state for several weeks, but wanted to thank each of you

for your input regarding the school situation. You will never know how

helpful you were to his family.

So once again, thank you one and all.

Beth Tatman

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  • 7 years later...

Hang in there and keep up with the IEP in meetings. You have to be involved in every aspect of his schooling. I do not believe private school is better. In a private school he teacher are not required to have a BS degree. Most teacher are not as qualified as the ones in a public school. My son was in private school and I pulled him out to be in a public school. He is doing much better. He still has issues at times but the teachers seem to have a better understanding of his aspergers. I talk to my sons teacher everyday to see what is going on and I also talk to my son to make sure he is OK. I hope this helps. Try to find a babysitter and get a break. We all need these once in a while.Barry Hitchcock <debhitchcock@...> wrote: Hi everyone, I haven’t posted in awhile and I am at my wits end. I have a 9yr old with mild AS and High IQ. I also have a 3yr old that drives me just nuts she’s very strong willed (not on the spectrum) and time out is taking it’s toll on me. When my 9yr old comes home from school this just adds to the madness. Dad works 2 jobs and can’t be bothered lately he’s stressed, and that itself pisses me off. Anyway, it’s just me OH and not

to mention a 20yr old in the mix (my step son, living here now from Australia) currently I’m running him around trying to get his Drivers license and now an eye test. Outside the daily madness I have my son 9yrs, having issues at school. What used to be a straight A student is slipping away quickly (it’s not all about being on “A” honor roll for those of you who are thinking that’s not the important thing). I don’t know what else to do. My son is in Public school in a “better” one than the last one we fought. This past week I couldn’t get off my mind if he needed home schooling or not. Bullying issues going on, him not completing his work, grades failing

and dropping suddenly-furthermore he doesn’t care, which is acceptable but I still need him to pass this grade. I can’t imagine going through this again. You need to understand my son had progressed quite nicely with his aspergers and we took the summer off from docs with their blessings. Now, I just don’t know if it’s the school or a combination of the three his aspergers, himself and the school. I hear constantly “take him out of public school”. The fact is I can’t do it. I get too stressed and simply can’t deal with it. I don’t have the energy my health is Not good, my three year old in the mix just sends me in to a tizzy. I’m not always like this but I just

don’t know what else to do. During our “time off” we had no need to see any doctors, now I have taken it upon myself to take him (9yr old) to his behavioral specialist just because I thought it was a “good time” everything was going well, no extra stresses. Once we arrived there I have opened up a can of worms, the bullying is much worse that I suspected. I volunteered for a “gifted” class party. I found my son sitting all alone that bothered me. I called an IEP meeting this meeting they practically didn’t want to talk about social issues. At the second IEP (various reasons for this one) one issue was about a letter that was supposedly written to the teacher from my son. It read, “I hate you” basically with my son’s name signed to it. I confronted my son, did a little test made him write some of the words on it to see if the spelling matched. I knew and believed he didn’t do this but I had to “prove” it to others. I know he likes his teacher, he’s male and they get along. I did prove it and the assistant principle wanted it “dropped”. They did suspend (in house suspension) a few boys before all this. They even called me to let me know if my son came home and said he was in the office but it wasn’t his fault and that they were on top of this and those boys in his class would be in suspension, that’s it’s taken care

of. Anyway…during the meeting they finally mentioned a “social class” which I didn’t put much into it, thinking yeah that’s good but will it be beneficial? This is why we are working with an outside source (our behaviourlist) and it all ties in together. I also had issues about not knowing what homework needed completing-lack of communication which I thought we addressed at the last meeting, I sent an email to all three principals, all teachers involved. I got action. Now they are to use a “check off” list and our specialist will add social questions on there for the teacher to check off. He is also studying my son to find out exactly where the problems are and how to

help by passing this along to the social class the school plans to give him. We had a meeting last night with the specialist and I told him what was on my mind. Home school, private isn’t an option for us either or public school where he is and has problems with. All he said was that my son can learn to adapt. Just wanted everyone’s opinions. I have been out of touch with aspergers for awhile now and I am wondering if I am missing anything else that I can get him help for. I don’t know if it’s “enough” for him of what

we have done so far, which isn’t much. Behaviorial specialist, speech in school where they have also tested his IQ, writing and I can’t really remember everything else that they did. I know the last school attended they got a second opionion on his dx which proved to them that he indeed have Aspergers. Now our doctor awhile back has added he is mildly aspergers due to his progress. We still have fixation problems, computer obsessions and will poop his pants when he is interested in something he is doing that keeps him from going to potty. I have a sheet to fill out each time he does this, we make him clean himself and his mess, underpants etc. I think the message the doctor is trying to send- it takes longer to go clean myself up and I miss more computer time. I also am outraged at my husband currently. He thinks IM getting obsessed with autism again and I guess I do go over board with things. I just can’t help but feel as if I need to do something or if I am doing enough. Home school is not the question anymore. Please help. Deb’s in Bama --No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.17.37/682 - Release Date: 2/12/2007 1:23 PM --No virus found in this outgoing message.Checked by AVG Free Edition.Version: 7.5.441 / Virus Database: 268.17.37/682 - Release

Date: 2/12/2007 1:23 PM Ally

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