Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 Dear Laurie, Thanks for letting us know about your travel and work abroad always broadens one's horizons. It was interesting to note your comments re your husbands P and you wish to have children, I was on mtx and was warned re the effects on pregnancy and I stopped the mtx and took an alternative treatment- a combo therapy. So speaking from a male point of view ( I think there are many more female subscribers here than male) your husband DOES NOT have to suffer from P just because you both want children and speak to your doctor to find an alternative as with the return of the P this escalates into lower self esteem etc. What worried me is that no one could tell me when it was safe to have children after mtx, is it 3 months, 6 months, as I believe that there is no test to see the levels of mtx in your system and I was not prepared to take the risk, personally or for my partner. We have a wonderful 2 year old now and we live near to the border between France and Italy and all she eats is Pasta!!! Italy is a great country, albeit with many faults but the people are great and the food superb. We are visiting the states In November to see friends in Miami and I have found a great flight on the net, Nice-Milan -Miami with AlItalia and we are looking forward to the food on the plane Take care Gillian, just thought I would slip a message here for you as I have limited time at the moment, how is Hermes and was he on the scene at the medical emergency??talking of hospitals abroad we had an incident here in France where a child went thru a glass window badly cutting his knee open, the English parents wanted to bundle him in the car and take him to hospital, we advised to wait for the ambulance(SAMU) and the 3 scruffiest unshaven men arrived, the parents paniced but the treament was excellent, I followed the ambulance with the parents in a car and was told by the ambulance crew to stay to their bumper so we went on a roller coaster ride, two tones and flashing lights etc. The child was diabetic as well but there went into emergency straight away and was stiched and out within 2 hours after x rays etc. The parents were amazed as in the Uk you would have a long wait, if not left on a trolley and it cost them nothing, god bless the E.U!! Talking of pregnancy our child was conceived during a trip to Ireland whilst we were staying in Crosshaven after a night on the Guinness.. we have advised our friends trying for children to go there and taste a Guinness fresh from the Liffe..... Take care ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2000 Report Share Posted August 16, 2000 Thanks!! The rheumy told us, a safe time to conceive was 3 or 4 months after stopping MTX, the OB said 5-6 months. We had just about reached our " prime " time, but now with this development, I'm really hesitant. I just don't see how we could have another child at this point in time, when we don't know if he will walk comfortably again. I'm even worrying about his going back to work. He's had two half days and then today stayed home. Oh well. One thing at a time. If another child is meant to be, it will happen!! Laurie Moderator note: My RD and OB both recommended we wait 3 months after stopping MTX before trying to conceive. If it makes you feel any better, the drug monograph (I think you can read it at rxlist.com) recommends women stopping MTX wait 1 month, and men stopping MTX wait 3 months, after the final dose before attempting to conceive. I dont' know definitively why the difference exists, but I think it might relate to the fact the men produce sperm on an ongoing basis; since theoretically MTX " messes with " cell division, the risk would be greater that a man's sperm production would be affected by MTX. Since women are born with all the eggs they'll ever have, egg production wouldn't be as affected as sperm production. That's purely conjecture on my part, of course. I'd definitely get comfortable with the timing with your doc. This is not a easy road, from one who is walking it right along with you. Patty PHDRWD@... Re: [ ] Italy >Dear Laurie, >Thanks for letting us know about your travel and work abroad always broadens >one's horizons. It was interesting to note your comments re your husbands P >and you wish to have children, I was on mtx and was warned re the effects on >pregnancy and I stopped the mtx and took an alternative treatment- a combo >therapy. >So speaking from a male point of view ( I think there are many more female >subscribers here than male) your husband DOES NOT have to suffer from P just >because you both want children and speak to your doctor to find an >alternative as with the return of the P this escalates into lower self >esteem etc. What worried me is that no one could tell me when it was safe to >have children after mtx, is it 3 months, 6 months, as I believe that there >is no test to see the levels of mtx in your system and I was not prepared to >take the risk, personally or for my partner. >We have a wonderful 2 year old now and we live near to the border between >France and Italy and all she eats is Pasta!!! Italy is a great country, >albeit with many faults but the people are great and the food superb. We are >visiting the states In November to see friends in Miami and I have found a >great flight on the net, Nice-Milan -Miami with AlItalia and we are looking >forward to the food on the plane >Take care > >Gillian, >just thought I would slip a message here for you as I have limited time at >the moment, how is Hermes and was he on the scene at the medical >emergency??talking of hospitals abroad we had an incident here in France >where a child went thru a glass window badly cutting his knee open, the >English parents wanted to bundle him in the car and take him to hospital, we >advised to wait for the ambulance(SAMU) and the 3 scruffiest unshaven men >arrived, the parents paniced but the treament was excellent, I followed the >ambulance with the parents in a car and was told by the ambulance crew to >stay to their bumper so we went on a roller coaster ride, two tones and >flashing lights etc. The child was diabetic as well but there went into >emergency straight away and was stiched and out within 2 hours after x rays >etc. The parents were amazed as in the Uk you would have a long wait, if not >left on a trolley >and it cost them nothing, god bless the E.U!! >Talking of pregnancy our child was conceived during a trip to Ireland whilst >we were staying in Crosshaven after a night on the Guinness.. we have >advised our friends trying for children to go there and taste a Guinness >fresh from the Liffe..... >Take care > >________________________________________________________________________ >Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com > > > > > >Please visit our new web page at: >http://www.wpunj.edu/icip/pa > >We are currently discussing new chat times. moderates a chat on arthritis at >www.about.com on Thursday evenings, so check that >out in the meantime! E mail at RA@... for details. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2003 Report Share Posted May 11, 2003 The pope Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 Thank you. I meant if there are some doctors using this method, to correspond. It's for a friend and his relatives don't speak english. Re: Italy > The pope > Liz > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 Dr Panfili is the Pope's doctor and he does Dr 's programme. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2003 Report Share Posted May 12, 2003 Thank you. Could you tell me how to contact him? My friend had and is going to have again chemiotherapy, could he start the treatment? Re: Italy > Dr Panfili is the Pope's doctor and he does Dr 's programme. > > Liz > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2003 Report Share Posted May 13, 2003 I heard about Dr Panfili from the Icelandic site www.drhuldaclark.org I think, but they have taken the mention of him off now. Usually the local library carries a register of doctors in the country. Or the phone book or local post office in Rome.No-one in Italy on Dr 's list Maybe they are Catholic in Iceland and had inside knowledge. Ask your local Cardinal. If your friend is having chemo, try to get Sam's formula as a buffer see www.cat007.com as the case histories show little bad effects of chemo if the high doses of echinacea and multi minerals and vitamins are taken as well. The supplier in Europe is www.oradix.com I think. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 HI, Does anyone have recommendations for restaurants in Milan, Rome and the Amalfi coast? Also any suggestion on how to ask for gluten free food in Italian? Thanks so much for your help, Angelika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 It's far easier to eat GF in restaurants in Italy than in San Francisco, in my experience. Snacks, lunch-on-the-run -- that's a bit difficult, when others are grabbing panini and pizza. There is an Italian celiacs association that you could track down on-line. I no longer have the address. Here are a couple of versions of requests; I've lost the adaptations I made to them. You can buy pre-made cards (from Triumph?). I printed up a few versions of requests I found on-line in two or three sizes of fonts, and had several of them laminated so I'd always have one with me, even if it had to go in my pocket. Actually, the statement, "non-glutine" was always adequate. I recall that I showed different versions to a waiter who spoke English well and who was not at all in a hurry. I asked him which version was easiest for the kitchen to understand, and I used that one from then on. I'm sorry I don't remember how it read. Enjoy your trip! ____________________________________________________________________________________________ Sono affetta da CELIACHIA (COELIAC) cioe' sono intollerante al glutine e devo seguire una dieta assolutamente priva di glutine e di tutti i suoi derivati. Quindi qualsiasi cibo contenente farina di grano, orzo, segale e avena puo' causarmi gravi malori. Posso mangiare cibi contenente riso granturco, patate, qualiasi verdura e frutta, uova, formaggio, latte, carne e pesce purche' questi non siano stati preparati con aggiuna di farina, pane grattugiato o salsa legata con farina o pastella fatta con farina. Grazie! Sono allergica al glutine. Non posso mangiare cibi preparati con grano, segale, orzo, avena e tutti i loro derivati: dunque tutto ciò che contiene farina, pane, pasta, semolino, o che contiene "aromi naturali". Sono permessi mais e amido di mais, riso, patate e fecola di patate, legumi, carne, frutta e verdure, purché siano preparati senza usare derivati dei cereali proibiti. Grazie! -----Original Message----- From: Angelika Kasten <akasten1@...> < > Sent: Sun, Aug 1, 2010 4:18 pm Subject: [ ] Italy HI, Does anyone have recommendations for restaurants in Milan, Rome and the Amalfi coast? Also any suggestion on how to ask for gluten free food in Italian? Thanks so much for your help, Angelika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 Get Gluten Free Restaurant Cards from celiactravel.com. Information about gluten in food should be very clear, so I wouldn't try just to memorize something.HI, Does anyone have recommendations for restaurants in Milan, Rome and the Amalfi coast? Also any suggestion on how to ask for gluten free food in Italian? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 Hi Angelika, Check out this website for information on eating gluten free in Italy: http://www.celiachia.it/afcristoratori/892424en.asp Apparently you can call from anywhere in the country, give your location, and the operator will tell you, in English or Italian, where the nearest gluten free restaurants are. Also, the website has a link to a map of the country listing hundreds of gluten free restaurants. One of the links on the website shows you a sticker that is in the window of pizzerias in Italy (and also Germany) that serve gf pizza. " Bisogno mangiare cibo senza glutino, per favore " means " I need to eat food without gluten, please, " or you could just say " senza glutino? " (without gluten?). " Sono celiaca " means " I am a celiac. " Since gluten free food is covered by health insurance in Italy, people purchase gluten free food at " farmacias " (pharmacies). I'm not sure if it's also available at regular supermarkets or not, but farmacias are easy to find. I spoke with Dr. Alessio Fassano at the Stanford Celiac Conference about the availability of gf food in Italy; he said my family and I are going to love it because it's so much better, and so much more widely available, than here. ________________________________________ From: [ ] On Behalf Of Angelika Kasten [akasten1@...] Sent: Sunday, August 01, 2010 4:17 PM Subject: [ ] Italy HI, Does anyone have recommendations for restaurants in Milan, Rome and the Amalfi coast? Also any suggestion on how to ask for gluten free food in Italian? Thanks so much for your help, Angelika Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 What a cool service. I hope it doesn't just cover more expensive venues. HogleFreelance academic librarianInstructor, online researchEmail: jjhogle@...Web: (under de- and re-construction) www.blueroom.comReality ain't what you think it isArt Graphics & Photographs[http://www.blueroom.com/realityaint.htm]From: "Palmer, " <palmer@...>" " < >Sent: Mon, August 2, 2010 10:13:34 AMSubject: RE: [ ] Italy Hi Angelika,Check out this website for information on eating gluten free in Italy:http://www.celiachia.it/afcristoratori/892424en.aspApparently you can call from anywhere in the country, give your location, and the operator will tell you, in English or Italian, where the nearest gluten free restaurants are. Also, the website has a link to a map of the country listing hundreds of gluten free restaurants. One of the links on the website shows you a sticker that is in the window of pizzerias in Italy (and also Germany) that serve gf pizza."Bisogno mangiare cibo senza glutino, per favore" means "I need to eat food without gluten, please," or you could just say "senza glutino?" (without gluten?). "Sono celiaca" means "I am a celiac."Since gluten free food is covered by health insurance in Italy, people purchase gluten free food at "farmacias" (pharmacies). I'm not sure if it's also available at regular supermarkets or not, but farmacias are easy to find.I spoke with Dr. Alessio Fassano at the Stanford Celiac Conference about the availability of gf food in Italy; he said my family and I are going to love it because it's so much better, and so much more widely available, than here.________________________________________From: [ ] On Behalf Of Angelika Kasten [akasten1@...]Sent: Sunday, August 01, 2010 4:17 PM Subject: [ ] ItalyHI,Does anyone have recommendations for restaurants in Milan, Rome andthe Amalfi coast? Also any suggestion on how to ask for gluten freefood in Italian?Thanks so much for your help,Angelika------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 Apparently the caller has three options: expensive restaurants, trattorias, or pizzerias. Agreed--how cool. --lp palmer@... ________________________________________ From: [ ] On Behalf Of j. hogle [jjhogle@...] Sent: Monday, August 02, 2010 11:09 AM Subject: Re: [ ] Italy What a cool service. I hope it doesn't just cover more expensive venues. Hogle Freelance academic librarian Instructor, online research Email: jjhogle@... Web: (under de- and re-construction) www.blueroom.com<http://www.blueroom.com> <http://www.blueroom.com/realityaint.htm> Reality ain't what you think it is<http://www.blueroom.com/realityaint.htm> Art Graphics & Photographs [http://www.blueroom.com/realityaint.htm] ________________________________ From: " Palmer, " <palmer@...> " " < > Sent: Mon, August 2, 2010 10:13:34 AM Subject: RE: [ ] Italy Hi Angelika, Check out this website for information on eating gluten free in Italy: http://www.celiachia.it/afcristoratori/892424en.asp Apparently you can call from anywhere in the country, give your location, and the operator will tell you, in English or Italian, where the nearest gluten free restaurants are. Also, the website has a link to a map of the country listing hundreds of gluten free restaurants. One of the links on the website shows you a sticker that is in the window of pizzerias in Italy (and also Germany) that serve gf pizza. " Bisogno mangiare cibo senza glutino, per favore " means " I need to eat food without gluten, please, " or you could just say " senza glutino? " (without gluten?). " Sono celiaca " means " I am a celiac. " Since gluten free food is covered by health insurance in Italy, people purchase gluten free food at " farmacias " (pharmacies). I'm not sure if it's also available at regular supermarkets or not, but farmacias are easy to find. I spoke with Dr. Alessio Fassano at the Stanford Celiac Conference about the availability of gf food in Italy; he said my family and I are going to love it because it's so much better, and so much more widely available, than here. ________________________________________ From: <mailto: > [ <mailto: >] On Behalf Of Angelika Kasten [akasten1@...<mailto:akasten1@...>] Sent: Sunday, August 01, 2010 4:17 PM <mailto: > Subject: [ ] Italy HI, Does anyone have recommendations for restaurants in Milan, Rome and the Amalfi coast? Also any suggestion on how to ask for gluten free food in Italian? Thanks so much for your help, Angelika ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2010 Report Share Posted August 29, 2010 Hi , I actually asked them that question today, if they know what her mercury level is. They have not had any testing of that sort. I can suggest that to them tonight when I email them. Would they just ask the Dr to do the hair test to check her level of mercury? If the Dr in Italy cant do that, can I have them send me a sample and have it tested here? I also had them ask their Dr. if it would be wise to alter her diet to be a gluten and dairy free. Do you think that is something they should ask about as well? From: Shepard Salzer <_Shepard@...> Subject: [ ] Italy autism treatment Date: Sunday, August 29, 2010, 7:32 PM  Hi Antonella, Can they order a DDI hair elements test? Do you know what toxic metal exposures she has had. Might make more sense to get a mercury toxic diagnosis (if that's the case) than a autism dx or proceed as if until they find out otherwise... S S Hi, My cousins live in Italy and have a 7year little girl. All these years the doctors have not diagnosed why she is not speaking. They have told them that it might be a genetic disease from a long lost family member. Chiara has all the symptons of Autism, but the Doctors have convinced them that she is not autistic. I want them to come to Los Angeles to have her tested and start getting proper care. I guess what I am asking is if anyone has any advise for us on how to get her proper help. Thanks, Antonella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Depends on what region in Italy they reside... gluten free foods are quite common in Italy; at least options to purchase in stores. Desserts are another story! Are all children screened for celiac disease in Italy? I think the rate is 1 in 250 over there. There is an organization called AIC over in Italy (celiac gov't org, I think) that might be able to help with ideas on diet. The casein would be up to them. Pam > > They may want to run a trial,, but that could be challenging in Italy. I'm GF and my husband and I are vegan. A couple years ago we considered visiting Italy for vacation and decided diet would be too difficult without a kitchen. > S S > Quote Link to comment Share on other sites More sharing options...
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