Thanks!

[Guest guest]

, Once I made up my mind that I was going to get the band for my son, I really couldn't wait to get it on him because I was really anxious during the wait time. Once they put it on him, I was relieved that we were going to be making some progress. Also I was relieved because it wasn't nearly as bad as I thought it was going to be. Sybilbasemomi <sfletcherc21@...> wrote: thanks to everyone that responded to "frustrated" the tips def helped. I also joined a tort group, mainly to

look at the photos, that cured me! Darcy certainly has a mild case compared to some of those photos.....I can do this!Anyone else really look forward to the DOC band? I am not looking forward to seeing her in it but i am lookineg forward to results! susan

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.

[Guest guest]

Now that we have decided to band our son, we are relieved that we will be on our way and have the process completed soon. Also, it has been tiring trying to repo him given his size and my desire to have him sleeping during naps and at night. Repoing worked some, but we had to move him alot now that he is too big for any positioners and can roll over them. It was a hard decision and I see both sides of the decision that can be made.

thanks!

thanks to everyone that responded to "frustrated" the tips def helped. I also joined a tort group, mainly to look at the photos, that cured me! Darcy certainly has a mild case compared to some of those photos.....I can do this!Anyone else really look forward to the DOC band? I am not looking forward to seeing her in it but i am lookineg forward to results! susan

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.

[Guest guest]

Good luck and keep us updates as to your sons progress. You sound as if you are in the same situation I was. Repo helped a bit but with tort and being a larger boy my son fought me all the way! I went for the helmet and was done in 8 weeks. We now monitor his sleep closely but he rolls and moves very often which is great. Tammy

From: <melissakyleclark@...>Subject: Re: thanks!Plagiocephaly Date: Tuesday, April 8, 2008, 2:29 PM

Now that we have decided to band our son, we are relieved that we will be on our way and have the process completed soon. Also, it has been tiring trying to repo him given his size and my desire to have him sleeping during naps and at night. Repoing worked some, but we had to move him alot now that he is too big for any positioners and can roll over them. It was a hard decision and I see both sides of the decision that can be made.

thanks!

thanks to everyone that responded to "frustrated" the tips def helped. I also joined a tort group, mainly to look at the photos, that cured me! Darcy certainly has a mild case compared to some of those photos.....I can do this!Anyone else really look forward to the DOC band? I am not looking forward to seeing her in it but i am lookineg forward to results! susan

You rock. That's why Blockbuster' s offering you one month of Blockbuster Total Access, No Cost.

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.

[Guest guest]

Tammy

do you remember what your child's measurements were? They are saying 8 weeks, but I know this depends upon his growth and response. Just curious what your measurements were and what they ended up being. thanks.

thanks!

thanks to everyone that responded to "frustrated" the tips def helped. I also joined a tort group, mainly to look at the photos, that cured me! Darcy certainly has a mild case compared to some of those photos.....I can do this!Anyone else really look forward to the DOC band? I am not looking forward to seeing her in it but i am lookineg forward to results! susan

You rock. That's why Blockbuster' s offering you one month of Blockbuster Total Access, No Cost.

You rock. That's why Blockbuster' s offering you one month of Blockbuster Total Access, No Cost.

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.

[Guest guest]

Okay here goes, just dug up the paperwork from cranial tech. His cranial Valut Asymmetry was 15mm his Mid Face Asymmetry was 7 mm and his Skull Base Asymmetry was 6 mm. He was considered moderate to severe. He has seen almost total correction, he went down to 2mm instead of 15mm. His ears leveled out and the head bossing went away. We did band at 4 months and graduated at 6 months. He did go through great growth and we had to go for adjustments once a week and then once every 12 or so days. He is now 9 1/2 months and sleeping on Target 1 1/2 inch foam over his ultra organic crib mattress ( I went a little nuts). But, the new mattress and the foam seem to be doing the trick too and he is looking great. He is crawling and pulling up so much less time on his head than before. Although I feel he was probably born with

this. He was large and long at birth 8 10 and 22 inches. Hope this helps. Think positive. Good luck. Tammy

From: <melissakyleclark>Subject: Re: thanks!PlagiocephalyDate: Tuesday, April 8, 2008, 2:29 PM

Now that we have decided to band our son, we are relieved that we will be on our way and have the process completed soon. Also, it has been tiring trying to repo him given his size and my desire to have him sleeping during naps and at night. Repoing worked some, but we had to move him alot now that he is too big for any positioners and can roll over them. It was a hard decision and I see both sides of the decision that can be made.

thanks!

thanks to everyone that responded to "frustrated" the tips def helped. I also joined a tort group, mainly to look at the photos, that cured me! Darcy certainly has a mild case compared to some of those photos.....I can do this!Anyone else really look forward to the DOC band? I am not looking forward to seeing her in it but i am lookineg forward to results! susan

You rock. That's why Blockbuster' s offering you one month of Blockbuster Total Access, No Cost.

You rock. That's why Blockbuster' s offering you one month of Blockbuster Total Access, No Cost.

You rock. That's why Blockbuster' s offering you one month of Blockbuster Total Access, No Cost.

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.

[Guest guest]

,

Glad to hear you don't have to make a commitment unti you have your

consult next week. I think that discussion will help you a lot.

If you haven't already, be sure to write down what is probably a

growing list of questions. If you write them down it will help you

clarify your questions and you will be sure to cover all the important

territory before you leave the office. Also, be sure to ask how you can

ask the questions that will undoubtedly come up for you the minute you

walk out the door. DrGlazer may let you email questions or call in at a

specific time.

Also, be sure to bring someone in to the appointment with you so you

have that extra set of " ears " hearing it all...you will be surprised in

the differences of things that different people will focus on and

remember later on.

Looking forward to hearing all about your meeting!

Take Care, Cam

[Guest guest]

Thanks so much Cam. The last email my son's spanish teacher sent

stated that she is still working on me being " funded " as a chaperone,

so not having a definitive answer yet, I don't want to " rock " the

boat, so to speak. I actually attended a Scoliosis Chapter meeting

last night and was pleasantly surprised on one woman's account of

flying to Arizona for a family reunion and a family wedding at 4 mos.

post-op and she commented that she had her doctor's blessing and no

problems - AND another woman said her doctor refused to let her do

any air travel for one year!! So....it doesn't certainly depend on

the doctor and how well and quickly you begin to heal. Your reminder

to start writing down questions is welcomed - I let that idea slip my

mind. And yes, my best friend from high school is coming with me. I

will fill you in next week after the appointment. Out of curiosity,

when are you coming back to the states? By chance, are there any

planned get-togethers for us New Englanders this summer?

D.

>

> ,

>

> Glad to hear you don't have to make a commitment unti you have your

> consult next week. I think that discussion will help you a lot.

>

> If you haven't already, be sure to write down what is probably a

> growing list of questions. If you write them down it will help you

> clarify your questions and you will be sure to cover all the

important

> territory before you leave the office. Also, be sure to ask how you

can

> ask the questions that will undoubtedly come up for you the minute

you

> walk out the door. DrGlazer may let you email questions or call in

at a

> specific time.

>

> Also, be sure to bring someone in to the appointment with you so

you

> have that extra set of " ears " hearing it all...you will be

surprised in

> the differences of things that different people will focus on and

> remember later on.

>

> Looking forward to hearing all about your meeting!

>

> Take Care, Cam

>

[Guest guest]

,

Tentatively we will travel back to the States the first week of July.

We travel " standby " so I can't be sure of an exact date...and that just

makes it all so much more exciting...NOT!

As far as I know, there are no plans for getting together but perhaps

we can arrange something. I will probably go to Boston for a check up

with DrRand if he isn't seeing patients on Nantucket like he did last

year. It would be fun to have dinner and meet up in person. I will see

what we can put together after I get myself resituated!

Glad to hear that someone is going in to the appointmetn with you. Be

sure to brief you friend about what you want to cover so that she can

help keep you on track.

Take Care, Cam

[Guest guest]

The more the better. However if apraxia is diagnosis there are different

approaches that will work better. Jodi Schechtman SLP

Sent from my Verizon Wireless BlackBerry

[ ] Thanks!

I just wanted to introduce myself and say thanks for all the

wonderful information I am finding here.

I have a 3-year-old son who is significantly speech and language

delayed. I am not sure if he is apraxic, as I am still educating

myself on apraxia after his SLP mentioned they were watching him for

apraxia and mentioned the Omega 3/6 supplements.

He was a 32-week preemie baby with 6 weeks in the NICU, and was a

quiet baby. He started therapy at 1.5 years when he was not babbling

or pointing. He has been in speech therapy for almost 2 years now.

He has receptively caught up but is still significantly delayed

expressively. I am excited to say that in the past two months he has

many new words although very few are clear to others and a lot I

cannot figure out. (I can kick butt in a game of charades now!) He

has seen many specialists, as I am desperate to get him caught up.

We have ruled out hearing loss and auditory neuropathy. They are not

concerned about autism. One mentioned a low IQ; the other thought

that was ridiculous. He is behind with some things compared to

others his age, but I have a hard time separating out the speech and

language delay. Lastly, he has had some dysphagia problems, but he

seems to finally be outgrowing that.

Does anyone have suggestions on a good resource for pre-school

learning materials? He is in a great day care that is curriculum

based, but I want to work with him more at home.

How much Speech language therapy do your kiddos get? He is receiving

therapy 2x a week for a 1/2 hour.

Thanks again for all the information. I cannot express how great it

feels to have found a group of people who understand what this is

like.

[Guest guest]

Jodi,

Can you elaborate? As an SLP what reccomendations do you have for me

to be doing at home with him? Of course we read a ton and label

everything. Do you have any good resources for games or activities

to help out?

Amy

>

> The more the better. However if apraxia is diagnosis there are

different approaches that will work better. Jodi Schechtman SLP

> Sent from my Verizon Wireless BlackBerry

>

> [ ] Thanks!

>

>

> I just wanted to introduce myself and say thanks for all the

> wonderful information I am finding here.

> I have a 3-year-old son who is significantly speech and language

> delayed. I am not sure if he is apraxic, as I am still educating

> myself on apraxia after his SLP mentioned they were watching him

for

> apraxia and mentioned the Omega 3/6 supplements.

> He was a 32-week preemie baby with 6 weeks in the NICU, and was a

> quiet baby. He started therapy at 1.5 years when he was not

babbling

> or pointing. He has been in speech therapy for almost 2 years now.

> He has receptively caught up but is still significantly delayed

> expressively. I am excited to say that in the past two months he

has

> many new words although very few are clear to others and a lot I

> cannot figure out. (I can kick butt in a game of charades now!) He

> has seen many specialists, as I am desperate to get him caught up.

> We have ruled out hearing loss and auditory neuropathy. They are

not

> concerned about autism. One mentioned a low IQ; the other thought

> that was ridiculous. He is behind with some things compared to

> others his age, but I have a hard time separating out the speech

and

> language delay. Lastly, he has had some dysphagia problems, but he

> seems to finally be outgrowing that.

> Does anyone have suggestions on a good resource for pre-school

> learning materials? He is in a great day care that is curriculum

> based, but I want to work with him more at home.

> How much Speech language therapy do your kiddos get? He is

receiving

> therapy 2x a week for a 1/2 hour.

> Thanks again for all the information. I cannot express how great

it

> feels to have found a group of people who understand what this is

> like.

>

[Guest guest]

Using a therapist trained in prompt technique melodic intonation therapy and

several other techniques can assist with increasing intelligibility. Consistency

with frequency and duration is essential. Carryover of skills learned during the

session can be extermly effective . Repetition repetition

Hope I helped Jodi

Sent from my Verizon Wireless BlackBerry

[ ] Thanks!

>

>

> I just wanted to introduce myself and say thanks for all the

> wonderful information I am finding here.

> I have a 3-year-old son who is significantly speech and language

> delayed. I am not sure if he is apraxic, as I am still educating

> myself on apraxia after his SLP mentioned they were watching him

for

> apraxia and mentioned the Omega 3/6 supplements.

> He was a 32-week preemie baby with 6 weeks in the NICU, and was a

> quiet baby. He started therapy at 1.5 years when he was not

babbling

> or pointing. He has been in speech therapy for almost 2 years now.

> He has receptively caught up but is still significantly delayed

> expressively. I am excited to say that in the past two months he

has

> many new words although very few are clear to others and a lot I

> cannot figure out. (I can kick butt in a game of charades now!) He

> has seen many specialists, as I am desperate to get him caught up.

> We have ruled out hearing loss and auditory neuropathy. They are

not

> concerned about autism. One mentioned a low IQ; the other thought

> that was ridiculous. He is behind with some things compared to

> others his age, but I have a hard time separating out the speech

and

> language delay. Lastly, he has had some dysphagia problems, but he

> seems to finally be outgrowing that.

> Does anyone have suggestions on a good resource for pre-school

> learning materials? He is in a great day care that is curriculum

> based, but I want to work with him more at home.

> How much Speech language therapy do your kiddos get? He is

receiving

> therapy 2x a week for a 1/2 hour.

> Thanks again for all the information. I cannot express how great

it

> feels to have found a group of people who understand what this is

> like.

>

[Guest guest]

,

I'm not sure what the nerve study would show.

That's great that you will be seeing Dr. Birnbaum. s Hopkins also

has a vasculitis center:

http://vasculitis.med.jhu.edu/

You should be in excellent hands there.

As for your neighbor, maybe you could make some copies of any reports

you get from s Hopkins and give them to him.

Not an MD

On Tue, Jul 22, 2008 at 10:40 PM, G <lisagnc@...> wrote:

> Thanks and everyone who contacted me about ra and neuropathy. I got in

> with a new rheumatologist today. He evidently really really dislikes my old

> rheumatologist, but I do also. He thinks I have vasculitus. So something

> should show up in the nerve study / emg done? (BTW is the nerve conduction

> test supposed to hurt? It hurt some places, but I did not feel it in

> others?) He also says I will probably need a nerve biopsy. He also told me

> that my nerve damage is probably permanent, so we need to stop future

> problems. I am on a lovely dose of 60 mg prednisone daily tapering weekly

> by 10 mg unless I get worse. I was totally shocked when I left his office.

> I guess I still want to be in denial about all of this. That tomorrow I

> will wake up and this will be gone.

>

> I have been in touch with a dr birnbaum at s Hopkins. He is a

> rheumatologist / neurologist. You can read all about him and his clinic at

> http://www.sjogrensworld.org/forums/ . Look in the cns discuss group. Dr

> Birnbaum is seeing rheumatic patients with neurological complications. He

> contacted me today, and I have an appointment next week!!!! I hope and pray

> that I can get some real answers. Not more of the blame the last stupid dr

> I saw or well, it's just postpartum and we just don't know.

>

> My neighbor is a really sweet man. He is a family doc. He thinks most of

> this is stress. <big sigh> Does he really know how much stress that adds?

> I just can't believe the really stupid comments I get, even from drs.

>

> Friday I get a lumbar puncture. This is my final test to prove it is not

> MS. I am looking forward to having that done, as in already done! It will

> be great to here it really really is not ms.

>

> Thanks for letting me vent!

>

> G

[Guest guest]

Some folks are much more sensitive to one type of drug than other

folks. You may have a particular sensitivity to pred.

Not all doctors have the ability to test IgE level accurately on

anyone currently taking Xolair or who has taken Xolair in the past

six months. It depends on whether your doc's lab has bought the

fairly new IgE test that Genentech manufactures. The IgE tests that

have normally been used cannot distinguish between free floating and

bound IgE and are therefore useless to determining IgE in Xolair

patients. You'll have to ask your doc that qustion.

Remember that normally Xolair takes 4-6 months to take effect. It

can be longer for some, shorter for others.

Good luck,

Addy

>

> Ok thanks for all of the responses but a stupid question. Even on

a

> very low dose of Pred? I was taking 1/2 a pill in the morning and

a

> whole one at night. I believe they were 10mg. The Pred makes me

> really sick to my stomach, even if I eat with it. If I eat with it

I

> throw up, if I do not eat I just wish I could throw up! I HATE the

> stuff; I can not image having to take it daily or even a higher

> does. But this last course did not do a darn thing for the major

> breathing issues, but tomorrow is my next shot so I am hoping the

dr

> will do something else, my back and chest hurt from coughing so

> much. As far as the calcuim I can not take most as I am allergic

to

> Dairy products. I have been eating lots of banana's. Did you

all

> know that Advair is made with a dairy base? We found out that was

> why I was so darn sick a year ago. Been off it since Jan and doing

> lots better.

>

> I do have another question, how long are you on Xolair before they

do

> another IgE level? Last Dec it was 115, in Aug it was 191 that is

> when we start Xolair.

>

> Thanks for all of the support!

>

> God Bless,

> Dana

>

[Guest guest]

With an IgE of 115/191 you had to take Pred. for your asthma? What

are your allergies. The reason why I ask is I went from 250 to 355

in less than a year, had horrible atopy with that increase (mostly

skin), but my asthma didn't really worsen. I have been rather

fortunate to have fairly high IgE, but it never really manifested in

daily allergies.

BTW, calcium supplements should not affect you because you are

allergic to dairy. A milk allergy is to the protein in milk, and

most calcium supplements do not contain mil protein.

>

> Ok thanks for all of the responses but a stupid question. Even on

a

> very low dose of Pred? I was taking 1/2 a pill in the morning and

a

> whole one at night. I believe they were 10mg. The Pred makes me

> really sick to my stomach, even if I eat with it. If I eat with

it I

> throw up, if I do not eat I just wish I could throw up! I HATE

the

> stuff; I can not image having to take it daily or even a higher

> does. But this last course did not do a darn thing for the major

> breathing issues, but tomorrow is my next shot so I am hoping the

dr

> will do something else, my back and chest hurt from coughing so

> much. As far as the calcuim I can not take most as I am allergic

to

> Dairy products. I have been eating lots of banana's. Did you

all

> know that Advair is made with a dairy base? We found out that was

> why I was so darn sick a year ago. Been off it since Jan and doing

> lots better.

>

> I do have another question, how long are you on Xolair before they

do

> another IgE level? Last Dec it was 115, in Aug it was 191 that is

> when we start Xolair.

>

> Thanks for all of the support!

>

> God Bless,

> Dana

>

[Guest guest]

Dear friends,

Thank you so much for your kind responses to me.I am really confused not because

of different views that members are expressing,I am not sure about my son's real

problems, that's why I am suspicious about the toxicity if he has in his thin

body.

We've been continuing the gut treatments for years! Yes, I know he had twice

gastrointestinal problems and hospitalised twice and lost weight and had the

wonderful blasto hominis...but surely he should have a better condition with the

support of probiotics and all the supplements which he takes daily.His body

weight stuck again and Dr recommended MCT oil,I don't know what it is,I will see

when I receive it ,but it was given for the weight gain.

Because his general health is not improving despite the intervention, that's why

I feel that perhaps I ignored the possibility of toxic element in his body.I

ignored because the tests in the past didn't show any significant overload of

mercury or other metals.They told me that his body is managing to get rid of the

metals but his health doesn't prove this statements.That's why I am once again

looking at the chelation.ALA was given by the dose which I mentioned ,he was on

for a few months, I wasn't clear enough to use this, so I wasn't given him

regularly then he had the first grand mal seizure.I think the combination of,ALA

high glutamic acid -pea protein powder played a role of triggering seizures..I

was suspicious and stopped immediately after the first seizure.

He never had amalgam fillings ,I didn't want him to have .In the last two dental

operation, I accepted teeth extraction.

I discussed all these possibilities with his doctor yesterday and I agreed to

check his gut condition again, carrying on supporting him with the supplements

and adding an antiviral and evaluate his progress ,if he is fine in two months

time focus on the chelation,perhaps start with the hair test,I will read the

files here.Chelation is a very complicated intervention,it frightens me.Having

said that carrying the metals in the body is bad in a long term.So, I will focus

on and learn more.Thank you so much for your kind responses and your concerns.I

am sure I will learn a lot on this platform.I am glad to be here..

All the best,

Nevin

[Guest guest]

Hello Angie,

When my kids were 8 and 10 we pulled out the cookbooks and went through them to

see what looked yummy. From that, we made a meal plan we could enjoy.

Lots of recipes can be changed over to this diet. For instance pulled pork on

omlettes instead of tortillas.

Here is the recipe link for Bee's site. Recipes & Cooking:

http://www.healingnaturallybybee.com/recipes/index.php

Bee also has a support group for exchanging Recipes and discussing cooking.

Recipes_For_Candida_Healing/

Maybe some other moms will pipe in and give more suggestions.

Nan B.

group moderator

> " aberch75 " wrote:

> Hello all,

<snip>

I do still need a little help with getting the rest of my family on board, they

understand why we're making these changes but at 10, 11, & 12 (no, that's not a

typo, that's their ages for now!) they want frozen pizza and boxed cereal. I

showed them how Chicken Nuggets were made on a TV program so that took care of

that, but there's so much junk out there, any tidbits of advise would be much

appreciated.

>

> Thanks again, Angie

>

[Guest guest]

I wanted to thank everyone who came to the open house yesterday. I really appreciate the support of our new location in . I will be taking pie orders for Thanksgiving until 5:00pm on 11/19.

Dana

Dana Hoppe, Owner

Gluten Free Gourmet, LLC

408-887-6141

www.gluten-free-gourmet.com

http://www.facebook.com/pages/Saratoga-CA/Gluten-Free-Gourmet-LLC/238175996382?ref=mf

http://blog.gluten-free-gourmet.com/