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Hi , I am newly diagnosed-since November 2000. I had an elevated

sed rate-+RF/ -ANA. I see my rheumatoid doc Friday, and he wants to

start me on Plaquenil, too. I just had a total knee replacement due to

what I thought was OA, but turned out to be RA. Now, the arthritis in

the other knee is acting up........hope all turns out well with you.

Sherri

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In a message dated 1/15/2002 7:19:09 AM Pacific Standard Time, sdenicola@... writes:

Hope that helps.

Yes it does. My SED rate was also elevated, but I tested negative for the rheumatic factor. I saw a new doc this morning who is just a doll, but of course she wants the official diagnosis to come from a rheumatologist, who, in fact, wants a written referral from this doctor before they will even schedule the appointment, then they have to liason with my insurance company (a process I am told takes approximately 2 weeks) Then, after all that, the doctor is about a month out. So, I may not have any definitave answers for 6 weeks or more <sigh> Oh well, she gave me some Celebrex, said shes pretty sure this is what I have, wants ot run more tests, but I guess she doesn't want to give the diagnosis without being an expert.

~

Mama to:

Nicolas--4 and

My Spirited 2 year old

Caleb

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Hi ,

Anytime I have bloodwork done I wait about a week then call the dr's office & have them fax me over a copy of it. This way I have it when I go to any other dr. and maybe they wont have to repeat it. I also always keep a copy for myself for my records. If I forget to call then I ask for it at my next appointment. I just started doing this the past 2 years though I wish I would have thought of it long ago. I probably would have saved myself a lot of needle sticks!

Good Luck & God Bless, Barbara

lovemy2boys_2000 <KuzImTheMama@...> wrote: I was just wondering if anyone knew the tests, results etc of any bloodwork they had when they were diagnosed, or if you just got the diagnosis. I don't have any diagnosis for RA, but im thinking that is where we are heading. I have an elevated SED rate, a positive ANA with "speckled and homogenous" pattern and im in miserable pain. Anyway, I see my new doc tomorrow, and hopefully a rheumatologist from there, but I wanted to start getting some input from you guys.Thanks~

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Hello ,

For me, I had an elevated SED rate (normal is 15-20 & mine was 117)

also. I was ( & am) negative for the rheumatoid factor, although the doctors

tell me I could test positive. I have also tested positive for the B27

antigen, a genetic mutation that occurs in most people that have AS

(arthritis of the spine) and Reiter's syndrome. I have been diagnosed with

non-rheumatoid inflammatory arthritis, B27 mediated arthritis & the

beginning stages of osteoporosis.

Hope that helps.

>From: " lovemy2boys_2000 " <KuzImTheMama@...>

>Reply-Rheumatoid Arthritis

>Rheumatoid Arthritis

>Subject: blood tests

>Date: Mon, 14 Jan 2002 18:17:31 -0000

>

>I was just wondering if anyone knew the tests, results etc of any

>bloodwork they had when they were diagnosed, or if you just got the

>diagnosis. I don't have any diagnosis for RA, but im thinking that is

>where we are heading. I have an elevated SED rate, a positive ANA with

> " speckled and homogenous " pattern and im in miserable pain. Anyway, I

>see my new doc tomorrow, and hopefully a rheumatologist from there,

>but I wanted to start getting some input from you guys.

>Thanks

>~

>

>

>

>

>

>

>

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In a message dated 1/21/2002 4:58:18 AM Pacific Standard Time, sedling@... writes:

Hi , I am newly diagnosed-since November 2000. I had an elevated

sed rate-+RF/ -ANA. I see my rheumatoid doc Friday, and he wants to

start me on Plaquenil, too. I just had a total knee replacement due to

what I thought was OA, but turned out to be RA. Now, the arthritis in

the other knee is acting up........hope all turns out well with you.

Thanks Sherri. Best of luck to you. TOday I am just dealing with the incredible swelling in my hands. Waiting to see that darn rheumatologist. Are you going to start the Plenequil?

Y~Y~~Y~Y

 "Friends are angels who lift us to our feet when

       our wings have trouble remembering how to fly."

Mama to:

Nicolas ~ 4

Caleb ~ 2

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Hi ...actually, I see the doc this Friday...got my dates mixed

up....:) Yes, I will have to start something, as the pain and stiffness

in my joints are just getting worse when I don't take the steroids. The

new knee feels GREAT!!!!!!...ow if the other one will just hold out!!!!

When I was diagnosed, my sed rate was up to 96. (Talk about

inflamation!) Although the rate is now back down, the joints ar still so

sore! How are you feeling? Hope you are better? Take care....sherri

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In a message dated 1/24/2002 5:06:24 PM Pacific Standard Time, sedling@... writes:

the joints ar still so

sore! How are you feeling? Hope you are better? Take care....sherri

I have actually been completely away from the computer for 2 days I had it so bad. I could hardly get out of bed starting Tuesday. I finally called and asked to see the doc for more bloodwork etc I am still waiting for results, she repeated my SED rate etc yesterday. She also gave me an RX for Prednisone, to which I will attribute the relief to <thank goodness>

{{{{{}}}}}}}}

Y~Y~~Y~Y

 "Friends are angels who lift us to our feet when

       our wings have trouble remembering how to fly."

Mama to:

Nicolas ~ 4

Caleb ~ 2

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In a message dated 1/28/2002 4:35:11 AM Pacific Standard Time, sedling@... writes:

Hey ...hope you are feeling better? Yes, Prednisone helps me

tremendously, too!!! Hope you are better...how was the

bloodwork?....sherri

Sorry it has taken so long to get back LOL. My SED rate was up again, but that was the day before I started the prednisone. I am a little concerned that the doc thought it may have just been a fluke thing that I felt better, and didn't attribute it to the meds. She still wants me to see a rheumatologist because she doesn't want to hypothesize. I have been feeling A LOT better since Sunday. Yesterday was a little bad, but I had just overdone myself. So how lnog do I get to feel good before another flare up?

Y~Y~~Y~Y

 "Friends are angels who lift us to our feet when

       our wings have trouble remembering how to fly."

Mama to:

Nicolas ~ 4

Caleb ~ 2

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Hey ....if you find the answer to that question let me

know......I am in the midst of one right now....I am only to be taking

10mg. of Prednisone, but am sooooooo sore that I increased it to 15mg

untilthis settles down. Hope all is well there...sherri

In a message dated 1/28/2002 4:35:11 AM Pacific Standard Time, sedling@... writes:

Hey ...hope you are feeling better? Yes, Prednisone helps me

tremendously, too!!! Hope you are better...how was the

bloodwork?....sherri

Sorry it has taken so long to get back LOL. My SED rate was up again, but that was the day before I started the prednisone. I am a little concerned that the doc thought it may have just been a fluke thing that I felt better, and didn't attribute it to the meds. She still wants me to see a rheumatologist because she doesn't want to hypothesize. I have been feeling A LOT better since Sunday. Yesterday was a little bad, but I had just overdone myself. So how lnog do I get to feel good before another flare up?

Y~Y~~Y~Y

 "Friends are angels who lift us to our feet when

       our wings have trouble remembering how to fly."

Mama to:

Nicolas ~ 4

Caleb ~ 2

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,

I don't know if you've heard of a product called Promotion. It's from

Advocare and it helps your joints. It helps to keep them moving more freely

and keeps them from stiffening up.

Let me know if you'd like to try some. I think they would help your joints.

-- Pam

Independent Advocare Distributor

> From: KuzImTheMama@...

> Reply-Rheumatoid Arthritis

> Date: Fri, 25 Jan 2002 18:45:10 EST

> Rheumatoid Arthritis

> Subject: Re: blood tests

>

> In a message dated 1/24/2002 5:06:24 PM Pacific Standard Time,

> sedling@... writes:

>

>

>> the joints ar still so

>> sore! How are you feeling? Hope you are better? Take care....sherri

>>

>

> I have actually been completely away from the computer for 2 days I had it so

> bad. I could hardly get out of bed starting Tuesday. I finally called and

> asked to see the doc for more bloodwork etc I am still waiting for results,

> she repeated my SED rate etc yesterday. She also gave me an RX for

> Prednisone, to which I will attribute the relief to <thank goodness>

> {{{{{}}}}}}}}

> Y~Y~~Y~Y

>   " Friends are angels who lift us to our feet when

>        our wings have trouble remembering how to fly. "

> Mama to:

> Nicolas ~ 4

> Caleb ~ 2

>

>

>

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Hello, my name is Joyce and I just now joined your group. I was

diagnosed with " rheumatism " in 1977 but it did not become worse until

1991. About three years ago the Dr. did a Rheumatoid Factor on me to

verify what the first Dr said. I read that a person with a SED rate

of 40 had severe Rheumatoid. But I did not read it from a medical

book. Mine was 44 when the blood test was run and would like to know

more about the SED rate. I have never gone to a Rheumatologist as the

closest one is about 45 miles away. I am fortunate that the pain is

mostly in my lower back but it does become very severe. I am 71 yrs

old and it is getting very hard to stand long lengths of time. I have

noticed some of you are taking Steroids. I am taking Naproxen 500 mg.

which is not strong enough. I keep saying I'm going to a Rheumatolo-

gist and I will when I get the nerve to drive in that Dallas, Texas

traffic. Oh,that traffic is bad up there.

Joyce

> Hey ....if you find the answer to that question let me

> know......I am in the midst of one right now....I am only to be

taking

> 10mg. of Prednisone, but am sooooooo sore that I increased it to

15mg

> untilthis settles down. Hope all is well there...sherri

>

>

> In a message dated 1/28/2002 4:35:11 AM Pacific Standard Time,

> sedling@w... writes:

>

>

> > Hey ...hope you are feeling better? Yes, Prednisone helps

me

> > tremendously, too!!! Hope you are better...how was the

> > bloodwork?....sherri

>

> Sorry it has taken so long to get back LOL. My SED rate was up

again, but

> that was the day before I started the prednisone. I am a little

concerned

> that the doc thought it may have just been a fluke thing that I

felt better,

> and didn't attribute it to the meds. She still wants me to see a

> rheumatologist because she doesn't want to hypothesize. I have been

feeling A

> LOT better since Sunday. Yesterday was a little bad, but I had just

overdone

> myself. So how lnog do I get to feel good before another flare up?

> Y~Y~~Y~Y

>   " Friends are angels who lift us to our feet when

>        our wings have trouble remembering how to fly. "

> Mama to:

> Nicolas ~ 4

> Caleb ~ 2

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Hi Joyce.

Welcome to the group. I hope you can get some answers to your questions.

I have and everyone has been wonderfull.

Good Health.

Debbie. (Australia)

-------Original Message-------

From: Rheumatoid Arthritis

Date: Sunday, 10 February 2002 05:52:44 AM

Rheumatoid Arthritis

Subject: Re: blood tests

Hello, my name is Joyce and I just now joined your group. I was diagnosed with "rheumatism" in 1977 but it did not become worse until 1991. About three years ago the Dr. did a Rheumatoid Factor on me to verify what the first Dr said. I read that a person with a SED rate of 40 had severe Rheumatoid. But I did not read it from a medical book. Mine was 44 when the blood test was run and would like to know more about the SED rate. I have never gone to a Rheumatologist as the closest one is about 45 miles away. I am fortunate that the pain is mostly in my lower back but it does become very severe. I am 71 yrs old and it is getting very hard to stand long lengths of time. I have noticed some of you are taking Steroids. I am taking Naproxen 500 mg. which is not strong enough. I keep saying I'm going to a Rheumatolo-gist and I will when I get the nerve to drive in that Dallas, Texas traffic. Oh,that traffic is bad up there. Joyce> Hey ....if you find the answer to that question let me> know......I am in the midst of one right now....I am only to be taking> 10mg. of Prednisone, but am sooooooo sore that I increased it to 15mg> untilthis settles down. Hope all is well there...sherri> > > In a message dated 1/28/2002 4:35:11 AM Pacific Standard Time, > sedling@w... writes:> > > > Hey ...hope you are feeling better? Yes, Prednisone helps me> > tremendously, too!!! Hope you are better...how was the> > bloodwork?....sherri> > Sorry it has taken so long to get back LOL. My SED rate was up again, but > that was the day before I started the prednisone. I am a little concerned > that the doc thought it may have just been a fluke thing that I felt better, > and didn't attribute it to the meds. She still wants me to see a > rheumatologist because she doesn't want to hypothesize. I have been feeling A > LOT better since Sunday. Yesterday was a little bad, but I had just overdone > myself. So how lnog do I get to feel good before another flare up?> Y~Y~~Y~Y> "Friends are angels who lift us to our feet when> our wings have trouble remembering how to fly."> Mama to:> Nicolas ~ 4> Caleb ~ 2

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Hi Joyce, and welcome to the group!!!!! Everyone here has been so

helpful to me, and I hope that you find the same. The sed rate is

indicative of some inflammatory process. I believe the normal level

should be no higher than 20-ish? When I was diagnosed, my sed rate was

up to 96. The RA Factor was 258. I am on Prednisone 10mg (although I

have been taking 15mg lately.) Personally, I feel very strongly about

going to a specialist for my disease. I wish you the best of luck and

hope you are feeling better soon......sherri

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Hello Joyce,

Welcome to the group. The number of your SED rate does not indicate a

disease, it just indicates that something is wrong in your body. For

example, a high SED rate could mean you have a bad case of sinusitis.

That's how it was first explained to me. The rheumatoid factor can indicate

the severity of your arthritis, but a low number does not mean you don't

have arthritis. When my arthritis started in September 1999, I had a SED

rate of 144 but tested ( & continue to) negative for the rheumatoid factor.

I have non-rheumatoid B27 mediated arthritis. Basically, I have a mutated

B27 gene. This type of arthritis is triggered by an infection (I had pink

eye).

I would also strongly recommend seeing a rheumatologist. He/she would

know more about the potential of your RA as well as new medicines and drug

interactions. I currently live in Culpeper, VA and see a rheumatologist

every 2 months in Washington, DC (2 hours away). I don't have a GP because

I have not found one I like. My rheumy is compassionate and understands

that if, for example, I get a slight cold that I zap it right away. I can't

take some of my meds if I have an active infection.

As for meds, I currently take: Azulfidine EN, Prednisone, Folic Acid,

Methotrexate, Remicade, and Motrin. I used to take Naproxen but my body

became immune so I was switched to generic Motrin 2400 mg/day.

I hope this helps!

Take care,

Culpeper, VA (although NYC native)

>From: " nikki_kristy " <crispier@...>

>Reply-Rheumatoid Arthritis

>Rheumatoid Arthritis

>Subject: Re: blood tests

>Date: Sat, 09 Feb 2002 01:22:03 -0000

>

>Hello, my name is Joyce and I just now joined your group. I was

>diagnosed with " rheumatism " in 1977 but it did not become worse until

>1991. About three years ago the Dr. did a Rheumatoid Factor on me to

>verify what the first Dr said. I read that a person with a SED rate

>of 40 had severe Rheumatoid. But I did not read it from a medical

>book. Mine was 44 when the blood test was run and would like to know

>more about the SED rate. I have never gone to a Rheumatologist as the

>closest one is about 45 miles away. I am fortunate that the pain is

>mostly in my lower back but it does become very severe. I am 71 yrs

>old and it is getting very hard to stand long lengths of time. I have

>noticed some of you are taking Steroids. I am taking Naproxen 500 mg.

>which is not strong enough. I keep saying I'm going to a Rheumatolo-

>gist and I will when I get the nerve to drive in that Dallas, Texas

>traffic. Oh,that traffic is bad up there.

>

>Joyce

>

>

>

> > Hey ....if you find the answer to that question let me

> > know......I am in the midst of one right now....I am only to be

>taking

> > 10mg. of Prednisone, but am sooooooo sore that I increased it to

>15mg

> > untilthis settles down. Hope all is well there...sherri

> >

> >

> > In a message dated 1/28/2002 4:35:11 AM Pacific Standard Time,

> > sedling@w... writes:

> >

> >

> > > Hey ...hope you are feeling better? Yes, Prednisone helps

>me

> > > tremendously, too!!! Hope you are better...how was the

> > > bloodwork?....sherri

> >

> > Sorry it has taken so long to get back LOL. My SED rate was up

>again, but

> > that was the day before I started the prednisone. I am a little

>concerned

> > that the doc thought it may have just been a fluke thing that I

>felt better,

> > and didn't attribute it to the meds. She still wants me to see a

> > rheumatologist because she doesn't want to hypothesize. I have been

>feeling A

> > LOT better since Sunday. Yesterday was a little bad, but I had just

>overdone

> > myself. So how lnog do I get to feel good before another flare up?

> > Y~Y~~Y~Y

> >   " Friends are angels who lift us to our feet when

> >        our wings have trouble remembering how to fly. "

> > Mama to:

> > Nicolas ~ 4

> > Caleb ~ 2

>

>

>

>

>

>

>

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Hi ,

Thank you for the explanation of the SED rate. I never understood it. The

rheumatoid factor

turned out positive. I plan to find a rheumatologist soon hopefully.

Joyce

----- Original Message -----

From: DeNicola <sdenicola@...>

<Rheumatoid Arthritis >

Sent: Wednesday, February 13, 2002 12:42 PM

Subject: Re: Re: blood tests

> Hello Joyce,

> Welcome to the group. The number of your SED rate does not indicate

a

> disease, it just indicates that something is wrong in your body. For

> example, a high SED rate could mean you have a bad case of sinusitis.

> That's how it was first explained to me. The rheumatoid factor can

indicate

> the severity of your arthritis, but a low number does not mean you don't

> have arthritis. When my arthritis started in September 1999, I had a SED

> rate of 144 but tested ( & continue to) negative for the rheumatoid factor.

> I have non-rheumatoid B27 mediated arthritis. Basically, I have a mutated

> B27 gene. This type of arthritis is triggered by an infection (I had pink

> eye).

> I would also strongly recommend seeing a rheumatologist. He/she

would

> know more about the potential of your RA as well as new medicines and drug

> interactions. I currently live in Culpeper, VA and see a rheumatologist

> every 2 months in Washington, DC (2 hours away). I don't have a GP

because

> I have not found one I like. My rheumy is compassionate and understands

> that if, for example, I get a slight cold that I zap it right away. I

can't

> take some of my meds if I have an active infection.

> As for meds, I currently take: Azulfidine EN, Prednisone, Folic Acid,

> Methotrexate, Remicade, and Motrin. I used to take Naproxen but my body

> became immune so I was switched to generic Motrin 2400 mg/day.

>

> I hope this helps!

>

> Take care,

>

> Culpeper, VA (although NYC native)

>

>

> >From: " nikki_kristy " <crispier@...>

> >Reply-Rheumatoid Arthritis

> >Rheumatoid Arthritis

> >Subject: Re: blood tests

> >Date: Sat, 09 Feb 2002 01:22:03 -0000

> >

> >Hello, my name is Joyce and I just now joined your group. I was

> >diagnosed with " rheumatism " in 1977 but it did not become worse until

> >1991. About three years ago the Dr. did a Rheumatoid Factor on me to

> >verify what the first Dr said. I read that a person with a SED rate

> >of 40 had severe Rheumatoid. But I did not read it from a medical

> >book. Mine was 44 when the blood test was run and would like to know

> >more about the SED rate. I have never gone to a Rheumatologist as the

> >closest one is about 45 miles away. I am fortunate that the pain is

> >mostly in my lower back but it does become very severe. I am 71 yrs

> >old and it is getting very hard to stand long lengths of time. I have

> >noticed some of you are taking Steroids. I am taking Naproxen 500 mg.

> >which is not strong enough. I keep saying I'm going to a Rheumatolo-

> >gist and I will when I get the nerve to drive in that Dallas, Texas

> >traffic. Oh,that traffic is bad up there.

> >

> >Joyce

> >

> >

> >

> > > Hey ....if you find the answer to that question let me

> > > know......I am in the midst of one right now....I am only to be

> >taking

> > > 10mg. of Prednisone, but am sooooooo sore that I increased it to

> >15mg

> > > untilthis settles down. Hope all is well there...sherri

> > >

> > >

> > > In a message dated 1/28/2002 4:35:11 AM Pacific Standard Time,

> > > sedling@w... writes:

> > >

> > >

> > > > Hey ...hope you are feeling better? Yes, Prednisone helps

> >me

> > > > tremendously, too!!! Hope you are better...how was the

> > > > bloodwork?....sherri

> > >

> > > Sorry it has taken so long to get back LOL. My SED rate was up

> >again, but

> > > that was the day before I started the prednisone. I am a little

> >concerned

> > > that the doc thought it may have just been a fluke thing that I

> >felt better,

> > > and didn't attribute it to the meds. She still wants me to see a

> > > rheumatologist because she doesn't want to hypothesize. I have been

> >feeling A

> > > LOT better since Sunday. Yesterday was a little bad, but I had just

> >overdone

> > > myself. So how lnog do I get to feel good before another flare up?

> > > Y~Y~~Y~Y

> > > " Friends are angels who lift us to our feet when

> > > our wings have trouble remembering how to fly. "

> > > Mama to:

> > > Nicolas ~ 4

> > > Caleb ~ 2

> >

> >

> >

> >

> >

> >

> >

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  • 1 year later...

Sally,, I was looking over my mail and came across this that Mira

wrote. Please pay special attention to the last paragraph. Do you

think the Ldn is pushing the heavy metals from our body and returning

our systems. I feel like i did before I went off Avonex. Does anyone

know.. Thanks Thelma

I have been lerking reading your posts and have really learned alot

from all of you. Thank you. But need to tell you a tip for the ones

who can't find relief and need more help. I see heavy metals has come

in to the topic and I pray you will take this advice as a tip to help

yourselves. Forgive me if I sound too (?). I am not very good with

expressing words. I just needed to say a few things in case it helps

you in any way.

I hope you all know most MS pretty much, is connected to Mercury as

well as other metals. And there are many at times in us. Pls. read

this incase it helps if your interested.

When we push DMPS- or EDTA, each one pushes the heaviest metals in its

own category first. And getting little mercury with DMPS going out in

urine does not mean there isn't any or that much. My blood had so

much! It means at times that there was another metals there heavier

being pushed before it (your doctor needs to think which at times it

may be not tested for). Mine was Uranium(nuclear plant). Same applies

to EDTA, but that pushes another group of metals (eg. Cadmium / lead).

I can help anyone who needs to know about the subject been doing it for

years. My case is different. But the important thing to know and many

of the doctors don't is the heaviest metals does get pushed out first.

So not having enough mercury in the push in our urine doesn't mean its

not there, it means maybe more. Maybe needing EDTA to find out which

too at times. Same applies to EDTA with another group of metals. Each

metals mimics a complete different disease and at times diseases. But

we can test for most in our blood now, and that may help, though

pushing helps get some we may miss in our blood.

Once the heaviest metals does get pushed out, the reading of the other

metals may come lower or incorrect at times, but that is not saying

they are that low, but because that is what is being pushed first the

heaviest in a bigger amounts.

The doctors test you according to your symptoms and choose which group

of push they are going to use for the test.

In MS most look for Mercury and use DMPS. But for example in

Parkinsons its Aluminum too and that requires EDTA.

If anyone needs help finding out anything on this subject pls. don't

hesitate to ask and I can try and guide you as to which metals gives

which symptom as much as I can with my years of being treated and

meeting others with so many different diseases. Most everyone since I

started (10yr ago) has been long gone and happy in their new life.

Usualy it takes the doctors few months only or a year to remove the

metals and become symptom free after pushing. (mine took longer cause

I never got to finish before going back to the source of poision, back

home and it was too many!)

During a push the metal moves more than usual in your body when its

heading out, so your symptoms return or at times are more for few

days/weeks depending on the each case individualy.

I hope I am able to help any of you, from my journey.

Good luck to you all

Mira

On Saturday, Aug 9, 2003, at 07:03 US/Central, wrote:

> Hi Phil--

>

> Mercury will be found in the blood only if you have been recently

> exposed to it. That's because mercury is quickly absorbed out of the

> blood and into body tissues. So, even though your blood results are

> normal, that tells you nothing about your body burden of mercury (and

> other heavy metals).

>

> I am curious to know what bacteria, fungi and viruses your doctor is

> testing for. A number of cancers are associated with Epstein Barr

> virus. Are you being tested for that one? (My tumor tissue tested

> positive for EBV.)

> Regards,

> S.

> (dx: nodal marginal zone B-cell lymphoma)

>

>>

>> Date: Wed, 6 Aug 2003 14:08:37 -0400 (EDT)

>> From: " G. Harding " <philh@...>

>> Subject: Re: PROPER DOCTORS NAME

>>

>> I am about to undergo a series of blood tests for bacteria, fungi, and

>> viruses. I already went thru a mercury (heavy metal) test and it

>> showed

>> normal levels. I will let you know the results and how-to if you are

>> interested in these.

>>

>> Phil Harding

>

>

>

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OMG THELMA, I AM 62YRS OLD , AND IF I PUSHED EVERYTHING OUT OF MY POOR BODY, THAT SHOULDN'T

BE THERE, I PROBABLY WOULDN'T HAVE ANYTHING LEFT. IT'S LIKE BUBBLE GUM AND BAILING WIRE BY

NOW, HOLDING ME TOGETHER....LOL

I DO BELIEVE THAT THERE ARE MANY FACTORS THAT GO INTO THE CAUSE OF MS.......BUT, LIKE DR. BAHARI,

BELIEVE THAT WE ALL HAVE THE PREDISPOSITION FOR CERTAIN DESEASES, AND THAT STRESS IS THE CAUSE

FOR THE ONSET OF SAID DESEASE....BE IT MS, CANCER....ETC. WHEN YOU ARE UNDERGOING A STRESSFUL

TIME IN YOUR LIFE, YOUR ENDORPHINE LEVEL DROPS TO NIL, AND THEN YOUR IMMUNE SYSTEM GETS

THROWN OUT OF WHACK.....AND ON COMES MS...ETC. THEN DEPRESSION SETS IN, MAKING IT EVEN WORSE.

I FIRMLY BELIEVE THAT RAISING OUR ENDORPHINE LEVEL IS THE ANSWER RIGHT NOW....AND RIGHT NOW

LDN IS ALL WE HAVE, ALONG WITH COMPLIMENTARY SUPPLEMENTS AND GOOD NUTRICIAN (WHATEVER

THAT IS...LOL)

OUR ENVIRONMENT IS NOT A HAPPY PLACE TO BE THESE DAYS AND I AM SURE OUR BODIES ARE FILLED WITH

ALL KINDS OF NASTY THINGS, AND THERE IS LITTLE WE CAN DO ABOUT IT, EXCEPT DRIVE OURSELVES NUTS.

DO YOU THINK MIRA IS BETTER OFF FOR HAVING DONE ALL THESE STUDIES AND DETOXIFICATIONS....NO !.....

SHE IS STILL A MIGHTY SICK PERSON AND NONE OF IT HAS MADE HER BETTER.....BUT THE STRESS OF IT ALL

COULD MAKE YOU WORSE.

SORRY TO RATTLE ON...THANK YOU FOR YOUR KIND THOUGHTS, AND I SEND THEM RIGHT BACK TO YOU......

WITH LOVE.

SALLY

----- Original Message -----

From: Fred Hinman

Sally ; low dose naltrexone

Sent: Saturday, September 06, 2003 3:59 PM

Subject: Fwd: Re: [low dose naltrexone] Re: blood tests

Sally,, I was looking over my mail and came across this that Mirawrote. Please pay special attention to the last paragraph. Do youthink the Ldn is pushing the heavy metals from our body and returningour systems. I feel like i did before I went off Avonex. Does anyoneknow.. Thanks Thelma

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(LDN is not a detoxifier.)

I've been orally detoxing mercury for seven months after having my

amalgam fillings removed and a heavy metals test showed I was high in

mercury. Given that mercury toxicity symptoms and MS symptoms are a

lot alike, I figured I should cover all the bases. Even if there's no

symptomatic improvement after the detox, I'll at least know I've

improved my general health by getting it out of me.

We need to do everything we can for good health while we're battling

this disease, so sorry, Sally, saying that " I AM SURE OUR BODIES ARE

FILLED WITH ALL KINDS OF NASTY THINGS, AND THERE IS LITTLE WE CAN DO

ABOUT IT, EXCEPT DRIVE OURSELVES NUTS " isn't true. We CAN do

something about it, and not doing so is abdicating responsibility to

ourselves. We can't give up, and WE have to do it because no one else

is going to do it for us. That said (and I'm not trying to make you

feel badly--this a pep talk), I'm aware that each of us does what

we're capable of.

The bottom line for me is that I want to do everything I can so that

if I DO deteriorate, I'll at least know that I tried.

Love, and keep the faith,

Martha

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Sorry Martha and Thelma,

I didn't mean for anyone to take that as advice....just was

venting a little....been through the mill here lately. I was

thinking (mercury not included) that we ingest all this crud from

the environment....then spend thousands getting detoxed....then go

out into the same invironment to soak it all up again. Just being

synical(spelling). I actually looked into getting the amalgam

fillings out....just too expensive, at the time....but I'm with you,

I think everyone should do all they can to help themselves stay

healthier.

As far as LDN not being a detoxifier....it actually could be, in a

way....it raises our endorphin level amd that regulates our immune

systems.....and maybe, just maybe, it attacks those foreign rascals

instead of our mylin??? We can only hope!

Love, Sally

<mburtonakod@e...> wrote:

> (LDN is not a detoxifier.)

>

> I've been orally detoxing mercury for seven months after having my

> amalgam fillings removed and a heavy metals test showed I was high

in

> mercury.

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Sally, even if you can't afford to get your fillings replaced, you can

still detox by eating sea vegetables (seaweed). Every little bit

helps. They're good food, 25 percent higher in minerals than land

vegetables; some are high in protein, and they all " push " heavy

metals. Arame is the best one to start with. It doesn't taste strong,

only needs a five-minute soak in water, and can be used in salads and

sandwiches. Just a thought.

You feeling any better today? We're all thinking about you. Keep smiling.

Martha

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Hi Martha.

Below is what I just wrote to over in Spotlight_ldn group,

and I thought it might tell you and all the others what might be

wrong with me....Thanks for caring.

Love, Sally

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Thanks Bren, I appreciate your response....you mentioned cranberry

capsules, and I ordered those too, I usually drink cranberry juice,

but someone mentioned, probably you(ms fog) that the capsules are

better, and I'm getting sick of drinking that stuff anyway...lol.

And Kiki, I think(more fog), the possibility that, because I am

having an attack like symptoms, I may have a UTI. That one hit me.

I haven't had one in a long time, but I remember feeling exactly as

I do now, when I had one. So, to the doc's Monday...I'll let you

all know, if that's my problem......It would sure be better than the

LDN not working...lol.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> You feeling any better today? We're all thinking about you. Keep

smiling.

>

> Martha

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I agree with you Martha, we have to do everything that we can to stay ahead

of this disease. By doing everything that I can, I am keeping my spirits

high.

Marie

----- Original Message -----

From: " mertburton " <mburtonakod@...>

<low dose naltrexone >

Sent: Saturday, September 06, 2003 8:02 PM

Subject: Fw: Re: [low dose naltrexone] Re: blood tests

> (LDN is not a detoxifier.)

>

> I've been orally detoxing mercury for seven months after having my

> amalgam fillings removed and a heavy metals test showed I was high in

> mercury. Given that mercury toxicity symptoms and MS symptoms are a

> lot alike, I figured I should cover all the bases. Even if there's no

> symptomatic improvement after the detox, I'll at least know I've

> improved my general health by getting it out of me.

>

> We need to do everything we can for good health while we're battling

> this disease, so sorry, Sally, saying that " I AM SURE OUR BODIES ARE

> FILLED WITH ALL KINDS OF NASTY THINGS, AND THERE IS LITTLE WE CAN DO

> ABOUT IT, EXCEPT DRIVE OURSELVES NUTS " isn't true. We CAN do

> something about it, and not doing so is abdicating responsibility to

> ourselves. We can't give up, and WE have to do it because no one else

> is going to do it for us. That said (and I'm not trying to make you

> feel badly--this a pep talk), I'm aware that each of us does what

> we're capable of.

>

> The bottom line for me is that I want to do everything I can so that

> if I DO deteriorate, I'll at least know that I tried.

>

> Love, and keep the faith,

> Martha

>

>

>

>

>

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THANK YOU SO MUCH MICHAEL, FOR YOUR SUPPORT......IF YOU HAVE ANYTHING FURTHER TO SAY ....SAY IT TO THE GROUP. I HAVE BLOCKED YOU FROM MY PERSONAL E-MAIL ACCT.

IS THIS JEFF IN DISGUISE...LOL

----- Original Message ----- From:

sally chrisman

Sent: Sunday, September 07, 2003 8:07 PM

Subject: Re: Re: [low dose naltrexone] Re: blood tests

STOP TAKING EVERY NEW THING THAT COMES AROUND. AS YOU POINT OUT, ALL YOU DO IS MAKE YOURSELF MORE ILL.. .......... AND MORE STRESSED OUT, WHICH DOESN'T DO ANY OF US ANY GOOD

----- Original Message ----- From:

Sally

Sent: Sunday, September 07, 2003 8:09 PM

Subject: Re: Re: [low dose naltrexone] Re: blood tests

SALLY, YOU MEAN WELL, BUT YOU TALK TOO MUCH. ENOUGH ALREADY. TRY DOINGSOMETHING BESIDES PLAYING WITH YOUR COMPUTER.

----- Original Message ----- From:

Sally

Sent: Sunday, September 07, 2003 8:09 PM

Subject: Re: [low dose naltrexone] - AN EXERPT FROM DR. BREWER'S NEWSLETTER

THERE YOU GO AGAIN.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Sally" <salpal@...><low dose naltrexone >Sent: Saturday, September 06, 2003 6:53 PMSubject: [low dose naltrexone] - AN EXERPT FROM DR. BREWER'S NEWSLETTER> DL-Phenylalanine: The amino acid DL-phenylalanine has been reported> to slow down the breakdown of endorphins and other painkillers.> Daytime usage of this amino acid (taken on an empty stomach) may> help to sustain the benefit of nighttime usage of naltrexone by> maintaining high levels of endorphins.>

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Sally, Certainly does sound like Jeff in disguise. Not a nice person at all. Just ignore him. He's not worth you even worrying about him. Keep hanging on in there, and don't ever give up on looking into supplements and nutrients that may help our body fight this devil. I have just recently started on some products from Healthy Living. Essential Seven being one of them. I had them sent over here from your America. I am sure it was you (MS memory !!) that told me about them. I have only been taking them for a few days and this morning had the best morning for a long time. Am definately feeling a little better.

Thanks Sally. From in Australia.

From: sally chrisman

low dose naltrexone

Sent: Monday, September 08, 2003 4:43 PM

Subject: Fw: Re: [low dose naltrexone] Re: blood tests

THANK YOU SO MUCH MICHAEL, FOR YOUR SUPPORT......IF YOU HAVE ANYTHING FURTHER TO SAY ....SAY IT TO THE GROUP. I HAVE BLOCKED YOU FROM MY PERSONAL E-MAIL ACCT.

IS THIS JEFF IN DISGUISE...LOL

----- Original Message ----- From:

sally chrisman

Sent: Sunday, September 07, 2003 8:07 PM

Subject: Re: Re: [low dose naltrexone] Re: blood tests

STOP TAKING EVERY NEW THING THAT COMES AROUND. AS YOU POINT OUT, ALL YOU DO IS MAKE YOURSELF MORE ILL.. .......... AND MORE STRESSED OUT, WHICH DOESN'T DO ANY OF US ANY GOOD

----- Original Message ----- From:

Sally

Sent: Sunday, September 07, 2003 8:09 PM

Subject: Re: Re: [low dose naltrexone] Re: blood tests

SALLY, YOU MEAN WELL, BUT YOU TALK TOO MUCH. ENOUGH ALREADY. TRY DOINGSOMETHING BESIDES PLAYING WITH YOUR COMPUTER.

----- Original Message ----- From:

Sally

Sent: Sunday, September 07, 2003 8:09 PM

Subject: Re: [low dose naltrexone] - AN EXERPT FROM DR. BREWER'S NEWSLETTER

THERE YOU GO AGAIN.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

"Sally" <salpal@...><low dose naltrexone >Sent: Saturday, September 06, 2003 6:53 PMSubject: [low dose naltrexone] - AN EXERPT FROM DR. BREWER'S NEWSLETTER> DL-Phenylalanine: The amino acid DL-phenylalanine has been reported> to slow down the breakdown of endorphins and other painkillers.> Daytime usage of this amino acid (taken on an empty stomach) may> help to sustain the benefit of nighttime usage of naltrexone by> maintaining high levels of endorphins.>

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