Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 In a message dated 7/18/00 9:40:21 PM Eastern Daylight Time, berniew1@... writes: << Just a question. If mercury inhibits the enzyme for casein, after chelation does this get better? Wondering if the GFCF diet will eventually not be necessary? Barb Yes, it gets better gradually. When there is little mecury/etc. to bind with the amino acids. Bernie >> For us, GFCF was like the emperor's new clothes, perhaps it works for some. After 3 intensive months, the answer was try 6 months, after 6 months, it was perhaps a year. A family trip off the diet with no regression allowed our daughter to eat with the rest of the family again. I think that the autism community has a lot of baggage to shed if it truly want's to address the damage done by thimerosal. Do not try to rationalize or be politically correct as regards a former theory. #1 get proper nutrition while chelating! Please wake up folks. This is not another drill! Your kids were exposed to toxic levels of a cumulative poison! It doesn't matter what a bunch of government employees with titles are willing to admit to. This is like being genetically predisposed to getting hit by a bus! Make a time line, list the exposure with simultaneous events like medications, test until your doctor's content, convince yourself. If this is not the case for you, you will be in Theresa Binstock's group (a), and it was probably worth trying (if we knew now what will one day be the recorded event statistics). If you are in her group (d), your child will one day say thank you! <<(a) show no improvement;>> <<( show perhaps a little improvement;>> <<© show significant improvement but remain very ASD;>> <<(d) show wonderful, even amazing improvement.>> Does anyone want to create a pool to guess where the percentages will lie? This type of statistics is as dangerous as the ones that got us into this situation. Can anyone attribute the quote, " with numbers all men may contend their charming systems to defend! " There is a real mathematical basis for statistics if you are involved in gaming, or if you can fully define you system, and all of its freedoms. You are not part of a diffraction pattern, unless you allow other people to unnecessarily constrain your abilities and force you to hit a target in linear fashion. I recommend to anyone who would like to think that statistics are enforced by God, that they like Jim on, try to petition the Lord. If you look at the supposed sequence of caseinomorfin and gliadinomorphin with their alternating proline components creating kinks, I think that you will see a porphoryn like pattern, and then you can probably even make calculations finding it a natural nest for metals such as mercury. Here is another one, a few tests seem to have found mercury in lysosomes. Let's consider these to be recycling plants for cellular structures. Perhaps mercury has a natural function the experts aren't aware of? I like to find the expert who will say perhaps, or I really do not know! Then perhaps we can help these kids by treating the patients and not the poison! Question #1 How does the brain work? It's OK if you do not know, try treating for known toxic exposures, and it might just work better! Joe Marciano Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 << For us, GFCF was like the emperor's new clothes, perhaps it works for some. After 3 intensive months, the answer was try 6 months, after 6 months, it was perhaps a year. A family trip off the diet with no regression allowed our daughter to eat with the rest of the family again. I think that the autism community has a lot of baggage to shed if it truly want's to address the damage done by thimerosal. Do not try to rationalize or be politically correct as regards a former theory. >> This is a problem in the alternative medicine community in general. Andy Cutler Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 <<Does anyone want to create a pool to guess where the percentages will lie?>> << <<(a) show no improvement;>> 0.1% <<( show perhaps a little improvement;>> 1% <<© show significant improvement but remain very ASD;>> 10% <<(d) show wonderful, even amazing improvement.>> 88.9% That's my entry. I think some of that 88.9% will need detox for more than just mercury, but that it won't be a burdensome or dramatically difficult problem to do it. What do you guys want to bet? Back rubs? Free copies of the book? Having to cook GFCF for your kids for a week? Andy Cutler Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 Just a question. If mercury inhibits the enzyme for casein, after chelation does this get better? Wondering if the GFCF diet will eventually not be necessary? Barb Yes, it gets better gradually. When there is little mecury/etc. to bind with the amino acids. Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 << What do you guys want to bet? Back rubs? Free copies of the book? Having to cook GFCF for your kids for a week? Andy Cutler >> Well as I already have the book, I'll take the back rub or the cooking :-) Carole, hoping I get neither Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Lucy, Not to but into your email to someone else but I thought that I'd give my suggestion too on what books to read for apraxic kids. I have found any and all of the Dr.Suess books to be a God send. They are repetitive and really easy to read.We started with Left Foot, Right Foot and are now into The Cat In The Hat. He reads it too me with very few mistakes.I find that having him try and sound the words out helps too.Anyway,just a thought I'd throw in my suggestion. Hope it helps.Good Luck! Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 hi. found this book at amozon.com. http://www.amazon.com/exec/obidos/ASIN/0750697830/qid=1014781694/sr=8-3/ref=sr_8\ _3_3/002-4709713-9653606 looks like it might be what youre looking for. there were other books as well. i typed apraxia into the search engine. good luck tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2002 Report Share Posted February 27, 2002 Hi , This is just my opinion, from a mother of a speech delayed child who is in the process of getting her son tested for Apraxia... figure everything is worth a try... My son had a terrible time saying the K sound. A fill in therapist got him to say it by using a hand signal. Take your pointer finger and thumb and put to your adams apple, when making the sound, pull your fingers away. Use this alone and with words, we did lots of car, cat, book, bake, etc. Only put your fingers to your throat at the sound. Do this while practicing as well when you correct his language. My son, , is not capable of repeating certain sounds, like J, F, etc, but using the hand signal with this sound clicked something with him. He can now make the sound, and it's very seldome I have to remind him with the signal. Worth a try, just give it a couple of days of practice before giving up on it. Good luck!!!!! And let me know if it works!!! I love hearing him use it now! Theresa He can't make the j, k, c, ch sounds and I need ideas on how to help > him learn to make those sounds. His slp recently taught him how to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 Deb, I have read both of Senneff's books. They are OK, but I feel they are much more geared to peripheral neuropathy in general - rather than specific to CMT. I feel Paolo's book is by far the best one on CMT and I learned so much about how nerves and muscles work from that one. I wrote a review for that book and would be happy to post it if you or anyone wants to read it. I am trying to find out if the book from the UK is still available and for how much. Will get back to you and all here on that. It is a 'guide' to CMT - easy reading. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 I would very much like to read your review. Thanks! I will see if I can get that book too. -- In , Gretchen Glick <liliwigg@s...> wrote: > Deb, > > I have read both of Senneff's books. They are OK, but I feel they > are much more geared to peripheral neuropathy in general - rather than > specific to CMT. I feel Paolo's book is by far the best one on CMT and I > learned so much about how nerves and muscles work from that one. I wrote > a review for that book and would be happy to post it if you or anyone > wants to read it. I am trying to find out if the book from the UK is > still available and for how much. Will get back to you and all here on > that. It is a 'guide' to CMT - easy reading. > > ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 I would love to read the review also MAry in OK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 Kirsten- I just got these today from Half.com, and I wanted to thank you for the recommendations. " Real Stew " especially appears to be a treasure trove of terrific, traditional ideas. It's amusing to see him suggesting pouring off the fat from some recipes, but like you say, it's very NT-friendly -- and some of the recipes are completely unlike anything I've ever found. Magnificent and highly recommended for any stew-lovers out there. >1. Real Stew by Clifford A. . Chock full of traditional, authentic >recipes >from all sorts of ethnic backgrounds... most of which could be prepared with >NT ingredients. Many recipes call for feet and other things I never heard of >until I read NT. I plan on buying this for myself because so many of the >recipes look great. > >2. A Soothing Broth by Pat Willard. A charmingly written book about dishes >traditionally prepared for invalids. She's not NT, as she warns against the >use of raw meat, dairy, and eggs (as the original recipes called for), but >many >of the recipes can be adapted. A great source of mostly lost folk wisdom. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 > Kirsten- > > I just got these today from Half.com, and I wanted to thank you for the > recommendations. " Real Stew " especially appears to be a treasure trove of > terrific, traditional ideas. It's amusing to see him suggesting pouring > off the fat from some recipes, but like you say, it's very NT-friendly -- > and some of the recipes are completely unlike anything I've ever > found. Magnificent and highly recommended for any stew-lovers out there. -----, you're one step ahead of me! I've been on a book-buying moratorium in order to save money (which is why I was at the library in the first place:-)) so I haven't got my copies yet. Did you find them at a good price at Half.com? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 > I've been on a book-buying moratorium in order to save money (which is why I was at the library in the first place:-)) so I haven't got my copies yet. Did you find them at a good price at Half.com? > > , I also bought the books you recommended -- great books!! Thank you! I got them through Amazon's used books. I got a brand new copy of " Real Stew " for $1.59! It's a $19.00 book. Many people who reviewed the book on Amazon didn't like it because of the uncommon ingredients (like feet -- the author's a big proponent of using feet), so it seems that there's a glut of them available used (or new at a cheap price). I also got a good deal on " Out of the Stockpot " ($3.64) and an o.k. deal on " A Soothing Broth " ($8.00). I wish I'd waited for a cheaper price on " A Soothing Broth. " It is a nice book, but not as useful for me right now as the others. Interesting that the author mentions the tonics originally used raw meat or eggs, but she gives instructions w/them cooked for safety reasons! As you mentioned, the author of " Real Stew " says to use earthenware pots if you can for stews. What are people's opinions of earthenware for cookware. He suggests Sur La Table as a source. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 > I got them through Amazon's used books. > I got a brand new copy of " Real Stew " for $1.59! It's a $19.00 > book. I wanted to add that if you go to Amazon & check on the " used " editions of " Real Stew, " make sure you scroll down because they first list " used " books and then list " new " books. There are a lot of copies available for less than $2.00. Some of the used are more expensive than the new ones. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 To find best price on used or new books use the search engine at www.addall.com. Can save steps by telling you wheather amazon or half has best price on used. Can choose price/quality from there. Next year half is phasing out used books separate from ebay. They'll be part of ebay's buy now or can be auctioned. Wanita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 - >I've been on a book-buying moratorium >in order to save money (which is why I was at the library in the first >place:-)) Books have gotten insanely expensive. I'm doing more and more of my decreasing buying used, because new is just insane nowadays. >Did you find them at a good price at Half.com? I got a " brand new " copy of " Real Stew " for $12, which I consider acceptable, but it's not much less than Amazon charges. However, the book looks fantastic, so I'm happy. I love the historic background he goes into on various dishes and ingredients, and the recipes look superb. Huh, it's now more expensive at Half.com ($15) than it is at Amazon ($13.27). I got " A Soothing Broth " for, I think, $5, which also seems acceptable, though I've read less of it. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 - >I got a brand new copy of " Real Stew " for $1.59! WOW! I got ripped off! Rats! >I also got a good deal on " Out of the Stockpot " ($3.64) Is that a good book? There's no description at all on Amazon. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 > >I also got a good deal on " Out of the Stockpot " ($3.64) > Is that a good book? There's no description at all on Amazon. Hi , I've only glanced through it, but I'm happy I got it! I'll type a few bits from the introduction: " I first became conscious of stock and its value some ten years ago [the book was published in 1971] shortly after we established a home in Saint-t-du-Var, Provence, just outside Nice. My favorite butcher insisted on saluting my purchase with the gift of " un bon os " - a good bone - which usually took the form of a large veal knuckle cracked into several pieces and folded into my package with all the air of conferring the Croix de Guerre (happily, without the customary kiss on both cheeks!). .... This, then, is the fundamental purpose of this volume - to show you how to use simple, nutritious stocks to improve your everyday cooking and to place at your command a battery of pretested, outstanding dishes which you can call on when the daily routine palls or when you feel yourself in the venturesome mood for something different. Finally, this is a kitchen manual by a nonprofessional cook primarily for other nonprofesstional cooks... " One interesting thing is that his " Multi-purpose Stock " includes the following: 1.5 lb beef shin w/bone 2 lb beef marrow bones 2 lb chicken necks w/backs 1 lb veal bones (cracked knuckles, if available) I've heard of " chicken stock " and " beef stock, " but here his multi- purpose stock uses bones from a mix of animals. As I flip through the recipes I see lots of wine, cream and butter listed as ingredients! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2003 Report Share Posted November 22, 2003 --- kili94 <lm324@...> wrote: > > > I got a brand new copy of " Real Stew " for $1.59! > It's a $19.00 > book. Many people who reviewed the book on Amazon > didn't like it > because of the uncommon ingredients (like feet -- > the author's a big > proponent of using feet), I asked my butcher for cows feet for the stock recipe in NT. He said he's unable to supply them because of BSE! A load of old crock I'd say! Anyway, he might be able to get me chicken feet, so fingers crossed... so it seems that there's a > glut of them > available used (or new at a cheap price). I can get it shipped from the US. Has anyone tried the recipes yet? Are the ingredients wildly different from NT recipes? Jo ________________________________________________________________________ Want to chat instantly with your online friends? Get the FREE Messenger http://mail.messenger..co.uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2003 Report Share Posted November 23, 2003 >As you mentioned, the author of " Real Stew " says to use earthenware >pots if you can for stews. What are people's opinions of earthenware >for cookware. He suggests Sur La Table as a source. > > I had one for a long time but had to get rid of it because I'd used it for gluten stuff and couldn't get out the residue (seriously, I'd react to anything cooked in that pot!). They work wonderfully. Easy to clean (albeit fats glom onto the inside and stay there, which is why they are easy to clean). Mine had a cast iron thingie for serving too, so you set it in the cast iron and it looked very decorative, and stayed hot a long time. -- Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2003 Report Share Posted November 23, 2003 >I asked my butcher for cows feet for the stock recipe >in NT. He said he's unable to supply them because of >BSE! A load of old crock I'd say! Anyway, he might >be able to get me chicken feet, so fingers crossed... The butchers really don't want to deal with innards (or feet, I guess). I got some by being there when the cow was butchered. I'd love to hear details of what to do with them. They are HUGE, about 5lbs each. This particular butcher was VERY careful about spreading germs, btw. BSE is a real issue, a lot of farms around here had visitors stomping in bleach water before visiting. -- Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2003 Report Share Posted November 23, 2003 Remember I am new, before you giggle over my question <G>. What is BSE? -----Original Message----- From: Joanne Pollack [mailto:jopollack2001@...] He said he's unable to supply them because of BSE! A load of old crock I'd say! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2003 Report Share Posted November 23, 2003 --- rachel <kibrah@...> wrote: > Remember I am new, before you giggle over my > question <G>. What is BSE? > BSE = Bovine Spongiform Encephalopathy AKA Mad Cow Disease and manifests itself as Creutzfeld Disease (CJD) in humans. Jo ________________________________________________________________________ Want to chat instantly with your online friends? Get the FREE Messenger http://mail.messenger..co.uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2003 Report Share Posted November 23, 2003 > I've heard of " chicken stock " and " beef stock, " but here his multi- > purpose stock uses bones from a mix of animals. Yes, I have done this before myself and ended up with quite a nice stock. Believe it or not, I got the idea from watching Iron Chef, where Chen-san is always mixing different soup stocks. Lynn S. who did the last farmers market of the season yesterday and came home with enough lamb bones and pastured chicken trim to make stock for at least a month... ----- Lynn Siprelle * Writer, Mother, Programmer, Fiber Artisan The New Homemaker: http://www.newhomemaker.com/ Siprelle & Associates: http://www.siprelle.com/ People-Powered ! http://www.deanforamerica.com/ Quote Link to comment Share on other sites More sharing options...
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