RE: Do you eat it if it says may contain trace amounts

[Guest guest]

i avoid it.i also avoid ones made on shared equipment, but not as much in the same facility.From: Libby <libbykranz@...> Sent: Tue, August 24, 2010 8:22:34 PMSubject: [ ] Do you eat it if it says may contain trace amounts

I am seeing this on a lot of things and wasnt sure if I really need to stay away from these items..Just looking to get other peoples thoughts..

[Guest guest]

We generally avoid "traces" but will often do shared equip.On Aug 24, 2010, at 8:33 PM, Lombardi wrote:

i avoid it.i also avoid ones made on shared equipment, but not as much in the same facility.From: Libby <libbykranz@...> Sent: Tue, August 24, 2010 8:22:34 PMSubject: [ ] Do you eat it if it says may contain trace amounts

I am seeing this on a lot of things and wasnt sure if I really need to stay away from these items..Just looking to get other peoples thoughts..

Darcyddarcy@...

[Guest guest]

We don't eat either!Sent from my iPhoneK8 On Aug 24, 2010, at 8:54 PM, Darcy <ddarcy@...> wrote:

We generally avoid "traces" but will often do shared equip.On Aug 24, 2010, at 8:33 PM, Lombardi wrote:

i avoid it.i also avoid ones made on shared equipment, but not as much in the same facility.From: Libby <libbykranz@...> Sent: Tue, August 24, 2010 8:22:34 PMSubject: [ ] Do you eat it if it says may contain trace amounts

I am seeing this on a lot of things and wasnt sure if I really need to stay away from these items..Just looking to get other peoples thoughts..

Darcyddarcy@...

[Guest guest]

My CS wife totally avoids it. And, as does, she avoids items produced on shared equipment. HogleFreelance academic librarianInstructor, online researchEmail: jjhogle@...Web: (under de- and re-construction) www.blueroom.comReality ain't what you think it isArt Graphics & Photographs[http://www.blueroom.com/realityaint.htm]From: Kate <kblab@...>" " < >Sent: Tue, August 24, 2010 9:03:14 PMSubject: Re:

[ ] Do you eat it if it says may contain trace amounts

We don't eat either!Sent from my iPhoneK8 On Aug 24, 2010, at 8:54 PM, Darcy <ddarcy@...> wrote:

We generally avoid "traces" but will often do shared equip.On Aug 24, 2010, at 8:33 PM, Lombardi wrote:

i avoid it.i also avoid ones made on shared equipment, but not as much in the same facility.From: Libby <libbykranz@...> Sent: Tue, August 24, 2010 8:22:34 PMSubject: [ ] Do you eat it if it says may contain trace amounts

I am seeing this on a lot of things and wasnt sure if I really need to stay away from these items..Just looking to get other peoples thoughts..

Darcyddarcy@...

[Guest guest]

I avoid buying any product that states it may contain trace amounts of gluten - even if I didn't have an obvious reaction to it, I know that trace amount would still cause damage. I also won't buy it if it says it was made on shared equipment, unless there is also a statement saying that good manufacturing processes are used to avoid cross contamination. Even then, I recognize I am taking a chance. And of course, I can't read the labels of every product used in food I buy in a restaurant... So I try to take as few chances with food I buy in a store as I can.

I was quite surprised by the reaction to the email from Kara, explaining that her products are not for those sensitive to gluten. That is, I was surprised by how many people with celiac were willing to continue to eat her products. I would have hoped that those of us with celiac would agree that we need to demand that companies claiming that their products are gluten free are really doing everything possible, from using the best manufacturing processes to avoid cross contamination to testing the final product, to make sure the product truly is gluten free. I think companies like Flour Chylde and Kara's Cupcakes should label their products as "having no gluten ingredients," with a visible disclaimer explaining that the products probably contain trace amounts of gluten due to cross contamination during the baking process; I appreciate Kara's honesty in her email and would hope her products have this information on them as well (do they?). I find it discouraging that so many of us are willing to accept that these companies are not interested in our health but only their bottom line. Obviously those companies can offer products that don't contain gluten ingredients for those who don't need to avoid gluten for serious health reasons, but it hurts our cause and our need for truly gluten free products if those of us with celiac tell these companies that their products are okay for people with celiac when they are clearly not okay. (And as many pointed out, not having an obvious reaction doesn't mean your body isn't suffering damage...)

Just wishing we had a consensus on this so we could use our clout to demand better labeling laws to protect us...

[Guest guest]

I WHOLEHEARTEDLY agree!!!!!!Well put.From: "TrVerb@..." <TrVerb@...> Sent: Wed, August 25, 2010 10:30:10 AMSubject: Re: [ ] Do you eat it if it says may contain trace amounts

I avoid buying any product that states it may contain trace amounts of gluten - even if I didn't have an obvious reaction to it, I know that trace amount would still cause damage. I also won't buy it if it says it was made on shared equipment, unless there is also a statement saying that good manufacturing processes are used to avoid cross contamination. Even then, I recognize I am taking a chance. And of course, I can't read the labels of every product used in food I buy in a restaurant... So I try to take as few chances with food I buy in a store as I can.

I was quite surprised by the reaction to the email from Kara, explaining that her products are not for those sensitive to gluten. That is, I was surprised by how many people with celiac were willing to continue to eat her products. I would have hoped that those of us with celiac would agree that we need to demand that companies claiming that their products are gluten free are really doing everything possible, from using the best manufacturing processes to avoid cross contamination to testing the final product, to make sure the product truly is gluten free. I think companies like Flour Chylde and Kara's Cupcakes should label their products as "having no gluten ingredients," with a visible disclaimer explaining that the products probably contain trace amounts of gluten due to cross contamination during the baking process; I appreciate Kara's honesty in her email and would hope her products have this information on them as well (do they?). I find it

discouraging that so many of us are willing to accept that these companies are not interested in our health but only their bottom line. Obviously those companies can offer products that don't contain gluten ingredients for those who don't need to avoid gluten for serious health reasons, but it hurts our cause and our need for truly gluten free products if those of us with celiac tell these companies that their products are okay for people with celiac when they are clearly not okay. (And as many pointed out, not having an obvious reaction doesn't mean your body isn't suffering damage...)

Just wishing we had a consensus on this so we could use our clout to demand better labeling laws to protect us...

[Guest guest]

Same here! From: [mailto: ] OnBehalf Of LombardiSent: Wednesday, August 25, 2010 10:39 AM Subject: Re: [ ] Do you eat it if it says may contain traceamounts IWHOLEHEARTEDLY agree!!!!!!Well put. _._,___

[Guest guest]

I agree with you completely. If companies can't  be bothered to make the effort and make their products really gluten free for true celiacs (who don't have a choice of being gluten free) then they do not deserve our business.

On Wed, Aug 25, 2010 at 10:30 AM, <TrVerb@...> wrote:

 

I avoid buying any product that states it may contain trace amounts of gluten - even if I didn't have an obvious reaction to it, I know that trace amount would still cause damage. I also won't buy it if it says it was made on shared equipment, unless there is also a statement saying that good manufacturing processes are used to avoid cross contamination. Even then, I recognize I am taking a chance. And of course, I can't read the labels of every product used in food I buy in a restaurant... So I try to take as few chances with food I buy in a store  as I can.

I was quite surprised by the reaction to the email from Kara, explaining that her products are not for those sensitive to gluten. That is, I was surprised by how many people with celiac were willing to continue to eat her products. I would have hoped that those of us with celiac would agree that we need to demand that companies claiming that their products are gluten free are really doing everything possible, from using the best manufacturing processes to avoid cross contamination to testing the final product, to make sure the product truly is gluten free. I think companies like Flour Chylde and Kara's Cupcakes should label their products as " having no gluten ingredients, " with a visible disclaimer explaining that the products probably contain trace amounts of gluten due to cross contamination during the baking process; I appreciate Kara's honesty in her email and would hope her products have this information on them as well (do they?). I find it discouraging that so many of us are willing to accept that these companies are not interested in our health but only their bottom line. Obviously those companies can offer products that don't contain gluten ingredients for those who don't need to avoid gluten for serious health reasons, but it hurts our cause and our need for truly gluten free products if those of us with celiac tell these companies that their products are okay for people with celiac when they are clearly not okay. (And as many pointed out, not having an obvious reaction doesn't mean your body isn't suffering damage...)

Just wishing we had a consensus on this so we could use our clout to demand better labeling laws to protect us...

[Guest guest]

What you said.

From: [mailto: ] On Behalf Of Lombardi

Sent: Wednesday, August 25, 2010

10:39 AM

Subject: Re: [ ] Do

you eat it if it says may contain trace amounts

I WHOLEHEARTEDLY agree!!!!!!

Well put.

From:

" TrVerb@... " <TrVerb@...>

Sent: Wed, August 25, 2010

10:30:10 AM

Subject: Re: [ ] Do

you eat it if it says may contain trace amounts

I avoid buying any product that states it may

contain trace amounts of gluten - even if I didn't have an obvious reaction to

it, I know that trace amount would still cause damage. I also won't buy it if

it says it was made on shared equipment, unless there is also a statement

saying that good manufacturing processes are used to avoid cross contamination.

Even then, I recognize I am taking a chance. And of course, I can't read the

labels of every product used in food I buy in a restaurant... So I try to take

as few chances with food I buy in a store as I can.

I was quite surprised by the reaction to

the email from Kara, explaining that her products are not for those sensitive

to gluten. That is, I was surprised by how many people with celiac were willing

to continue to eat her products. I would have hoped that those of us with

celiac would agree that we need to demand that companies claiming that their

products are gluten free are really doing everything possible, from using the

best manufacturing processes to avoid cross contamination to testing the final

product, to make sure the product truly is gluten free. I think companies like

Flour Chylde and Kara's Cupcakes should label their products as " having no

gluten ingredients, " with a visible disclaimer explaining that the

products probably contain trace amounts of gluten due to cross contamination

during the baking process; I appreciate Kara's honesty in her email and would

hope her products have this information on them as well (do they?). I find it

discouraging that so many of us are willing to accept that these companies are

not interested in our health but only their bottom line. Obviously those

companies can offer products that don't contain gluten ingredients for those

who don't need to avoid gluten for serious health reasons, but it hurts our

cause and our need for truly gluten free products if those of us with celiac

tell these companies that their products are okay for people with celiac when

they are clearly not okay. (And as many pointed out, not having an obvious

reaction doesn't mean your body isn't suffering damage...)

Just wishing we had a consensus on this

so we could use our clout to demand better labeling laws to protect us...

[Guest guest]

  I find it discouraging that so many of us are willing to accept that these companies are not interested in our health but only their bottom line. Obviously those companies can offer products that don't contain gluten ingredients for those who don't need to avoid gluten for serious health reasons, but it hurts our cause and our need for truly gluten free products if those of us with celiac tell these companies that their products are okay for people with celiac when they are clearly not okay. (And as many pointed out, not having an obvious reaction doesn't mean your body isn't suffering damage...)

 

Just wishing we had a consensus on this so we could use our clout to demand better labeling laws to protect us...

.... Sad but true, WE DO NOT HAVE CLOUT!  Drug companies don't even feel there is a financial incentive to develop pharmaceuticals to treat Celiacs w/ the consensus 1/133.  The new labeling laws piss me off too, but all we can do is be thankful for Mariposa chocolate brownies and whatever else makes us feel better... and by all means LOBBY!!  and call your senator too! (I mean it!!!  and dont' let the republicans take Congress!)

Naren

On Wed, Aug 25, 2010 at 11:03 PM, Lillyth Denaghy Keogh-Quillan <lillythdenaghykeogh@...> wrote:

 

What you said.

 

From: [mailto: ] On Behalf Of Lombardi

Sent: Wednesday, August 25, 2010

10:39 AM

Subject: Re: [ ] Do

you eat it if it says may contain trace amounts

 

 

I WHOLEHEARTEDLY agree!!!!!!

Well put.

 

From:

" TrVerb@... " <TrVerb@...>

Sent: Wed, August 25, 2010

10:30:10 AM

Subject: Re: [ ] Do

you eat it if it says may contain trace amounts

 

I avoid buying any product that states it may

contain trace amounts of gluten - even if I didn't have an obvious reaction to

it, I know that trace amount would still cause damage. I also won't buy it if

it says it was made on shared equipment, unless there is also a statement

saying that good manufacturing processes are used to avoid cross contamination.

Even then, I recognize I am taking a chance. And of course, I can't read the

labels of every product used in food I buy in a restaurant... So I try to take

as few chances with food I buy in a store  as I can.

 

I was quite surprised by the reaction to

the email from Kara, explaining that her products are not for those sensitive

to gluten. That is, I was surprised by how many people with celiac were willing

to continue to eat her products. I would have hoped that those of us with

celiac would agree that we need to demand that companies claiming that their

products are gluten free are really doing everything possible, from using the

best manufacturing processes to avoid cross contamination to testing the final

product, to make sure the product truly is gluten free. I think companies like

Flour Chylde and Kara's Cupcakes should label their products as " having no

gluten ingredients, " with a visible disclaimer explaining that the

products probably contain trace amounts of gluten due to cross contamination

during the baking process; I appreciate Kara's honesty in her email and would

hope her products have this information on them as well (do they?). I find it

discouraging that so many of us are willing to accept that these companies are

not interested in our health but only their bottom line. Obviously those

companies can offer products that don't contain gluten ingredients for those

who don't need to avoid gluten for serious health reasons, but it hurts our

cause and our need for truly gluten free products if those of us with celiac

tell these companies that their products are okay for people with celiac when

they are clearly not okay. (And as many pointed out, not having an obvious

reaction doesn't mean your body isn't suffering damage...)

 

Just wishing we had a consensus on this

so we could use our clout to demand better labeling laws to protect us...

 

 

[Guest guest]

I also agree. I'm super sensitive, probably like a canary in a coal mine, and what I really need is for "gluten-free" to mean "no possible chance of any contammination by gluten at any level". I've found that the most dangerous thing for me is a product that says it's gluten-free when it really isn't. I never knowingly eat gluten, so it's extra frustrating to get tricked into eating it. This goes for restaurants as well - they can be very dangerous - especially when they say things like "Oh yeah, no problem, we do that all the time... of course we can do gluten-free, it's really easy! Don't you worry!" That should be the signal to run... On an interesting note, I have had far more problems here in

SF than I did in Boston or Washington DC. I think it's because restaurants are more likely to try to be gluten-free here but not really understand the extent to which they need to go. The "Oh, no problem.." line is one I heard more here than anywhere else. It means they don't really understand what celiac or cross-contammination is. And every time I've heard it I've gotten sick - I should really have learned more quickly!

As for whether I will eat certain things from stores: I have learned from experience to focus on non-processed foods that I can control, or foods specially prepared in gluten-free facilities. (Mariposa and Glutino are great!). I will not eat anything saying "no gluten ingredients", I will not eat anything (especially from Trader Joe's) that says "made on equipment shared with wheat", I will occasionally eat things made in the same facility as wheat, if I trust the brand or if they say they use GMP to keep things clean and separate, and if I have had it before with no problems. All this is from experience, not from any theoretical basis. The brands I trust are also from experience - which have gotten me sick before and which have been safe.

Oh, for a life of care-free eating!

Best,

From: "TrVerb@..." <TrVerb@...> Sent: Wed, August 25, 2010 10:30:10 AMSubject: Re: [ ] Do you eat it if it says may contain trace amounts

I avoid buying any product that states it may contain trace amounts of gluten - even if I didn't have an obvious reaction to it, I know that trace amount would still cause damage. I also won't buy it if it says it was made on shared equipment, unless there is also a statement saying that good manufacturing processes are used to avoid cross contamination. Even then, I recognize I am taking a chance. And of course, I can't read the labels of every product used in food I buy in a restaurant... So I try to take as few chances with food I buy in a store as I can.

I was quite surprised by the reaction to the email from Kara, explaining that her products are not for those sensitive to gluten. That is, I was surprised by how many people with celiac were willing to continue to eat her products. I would have hoped that those of us with celiac would agree that we need to demand that companies claiming that their products are gluten free are really doing everything possible, from using the best manufacturing processes to avoid cross contamination to testing the final product, to make sure the product truly is gluten free. I think companies like Flour Chylde and Kara's Cupcakes should label their products as "having no gluten ingredients," with a visible disclaimer explaining that the products probably contain trace amounts of gluten due to cross contamination during the baking process; I appreciate

Kara's honesty in her email and would hope her products have this information on them as well (do they?). I find it discouraging that so many of us are willing to accept that these companies are not interested in our health but only their bottom line. Obviously those companies can offer products that don't contain gluten ingredients for those who don't need to avoid gluten for serious health reasons, but it hurts our cause and our need for truly gluten free products if those of us with celiac tell these companies that their products are okay for people with celiac when they are clearly not okay. (And as many pointed out, not having an obvious reaction doesn't mean your body isn't suffering damage...)

Just wishing we had a consensus on this so we could use our clout to demand better labeling laws to protect us...

[Guest guest]

The worst situation I've run into was in an excellent, health-conscious Chinese restaurant in San Francisco. I ate there often, before and soon after CD diagnosis, as it was near my house and a family favorite. I carefully ordered dishes in which I was assured by servers that the ingredients were GF and the wok was washed beforehand. What the servers didn't realize was that all dishes and all sets of ingredients were prepped with non-GF soy sauce before the restaurant opened for the evening! The servers weren't on hand during prep time and didn't know. The cooks weren't asked. One of my servers was a pediatric nutrition student with CD in her family, and she thought the dishes were CD safe. Finally a server who was also a nurse figured it out.

In a Vancouver seafood restaurant, the server and chef clearly knew a lot about CD. They warned me not to order anything cooked in their woks. They said that gluten from soy sauce, etc. could never be completely cleaned from a seasoned wok. Makes sense. I wonder if PF Changs isolates its GF and non-GF woks?

H.

-----Original Message-----

From: <kristin_boston@...>

< >

Sent: Thu, Aug 26, 2010 11:17 am

Subject: Re: [ ] Do you eat it if it says may contain trace amounts

<<what I really need is for "gluten-free" to mean "no possible chance of any contammination by gluten at any level". >

Best,

[Guest guest]

Please keep your politics out of these discussions.

Re: Do you eat it if it says may contain trace amounts

Posted by: " Naren Wadhwani "

narenw@...

Thu Aug 26, 2010 12:56 am (PDT)

I find it discouraging that so many of us are willing to accept that these

companies are not interested in our health but only their bottom line.

Obviously those companies can offer products that don't contain gluten

ingredients for those who don't need to avoid gluten for serious health

reasons, but it hurts our cause and our need for truly gluten free products

if those of us with celiac tell these companies that their products are okay

for people with celiac when they are clearly not okay. (And as many pointed

out, not having an obvious reaction doesn't mean your body isn't suffering

damage...)

Just wishing we had a consensus on this so we could use our clout to demand

better labeling laws to protect us...

.... Sad but true, WE DO NOT HAVE CLOUT! Drug companies don't even feel

there is a financial incentive to develop pharmaceuticals to treat Celiacs

w/ the consensus 1/133. The new labeling laws piss me off too, but all we

can do is be thankful for Mariposa chocolate brownies and whatever else

makes us feel better... and by all means LOBBY!! and call your senator too!

(I mean it!!! and dont' let the republicans take Congress!)

Naren