grr

[Guest guest]

Hey girl, you do not have good luck!! You're due for a break. I will

certainly be praying that the nurse was mistaken about what she was feeling and

that

it's nothing. Let us know.

Diane (, 5, pauci)

[Guest guest]

Yeah I really liked her it was my first time going to her as a doctor and she

was very on top of things. I'm glad she is checking it out too..Its just..I

wish there wasnt something to check out.. Ya know..

[Guest guest]

Lots of prayers going for you . I am sorry to hear of this latest

testing you need done. But it is important that you get that checked

right away. Glad your dr is on top of such things. Better that than to

blow something off and it ends up being something you need to take care

of. If you were my dd, I would be glad it was being checked out. It will

give you and your mom some peace of mind I am sure. Let us know how it

goes, Michele (16, pauci & spondy)

Grr

I had a regular doctors appointment yesterday. I had to get some of my

camp

forms filled out. I expected it to be just a normal doctors

appointment. I

get excited for normal doctors appointment because there is no bad news

and its

just a check up. Well seems like nothing with me is ever normal. She

thinks

part of the reason I am bruising and having trouble sleeping could be

from a

thyroid problem so we're getting that checked. I wouldn't be shocked my

sister has Hypothyroidism..and my grandma has one of them too. I also

had to get a

pelvic (I think all women on this board will agree that is the most

uncomfortable and sucky thing in the world..and considering I got one

when I was in the

ER in feb I felt it to be uneccessary) Anyway I guess the ER only

checks for

STDS..so she did another to check to cancer or whatever. While she was

feeling around she said my left side felt a little funny. That it

seemed harder

then the other side. I have been having a lot of pain on my right side

though.

She said it could mean that there is a mass growing in my left side

which

would be pushing on my right side causing pain.. Oh great that's what I

want to

hear.. Anyway she wanted me to get a CT scan ASAP. She wanted me to get

it

done on Sunday(the stanford clinics do rush CT's/MRI's on the weekend if

its not

a super emergency) ..but I said no way.. It was mothers day and it was

going

to be all about my mom. So Monday night at 8pm I will be getting a CT

scan to

check for a mass in my pelvis.. Please pray that there is nothing there

and

this is not a thyroid thing..

Lots of Love

(poly JRA and Spondy, 19)

[Guest guest]

I totally understand that. It is hard when it seems like there is always

something. And at your age, you shouldn't need to be " checking " . It does

stink. (((hugs))) Perhaps you can look at it as one more thing to make

you stronger? You are already such a strong young woman for having to

deal with everything else, and being strong does get tiring I know.

Hopefully it is just one of those hormonal things that will turn out to

be nothing. I'll quit sounding like such a mom now. Its just that having

a dd near your age, this is what I would say to her. Michele

Re: Grr

Yeah I really liked her it was my first time going to her as a doctor

and she

was very on top of things. I'm glad she is checking it out too..Its

just..I

wish there wasnt something to check out.. Ya know..

[Guest guest]

,

Many prayers to you that it's nothing,better to be safe then sorry.While my

daughter is just 8 I can't stress enough about the importance of regular sucky

pelvic exams.It is uncomfortable and realy ambarasing but someday you will get

married,defy your docs and have a baby.So many differant people feel you up

you just don't care anymore,lol..It could be slightly worse,men have their

Prostates checked,yuck!!

Again many prayers that it's nothing serious.You have been through way to

much in your young 19 yrs,but it has made you an incredible woman.

Love and Hugs

Becki and 5 systemic

[Guest guest]

...enough is enough huh? Hun I really relate and know your frustrations

must becoming apparent. Whatever you do hang tough and hang tight and know you

will be in my thoughts and prayers and let us all hope it is just one of those

things and all is actually just fine....hugs and smiles...Donna

[Guest guest]

Good luck with your Ct....Hope everything is alright,but please do not put it

off to long......Have a great Mother's Day.............Terri B

Grr

I had a regular doctors appointment yesterday. I had to get some of my camp

forms filled out. I expected it to be just a normal doctors appointment. I

get excited for normal doctors appointment because there is no bad news and

its

just a check up. Well seems like nothing with me is ever normal. She thinks

part of the reason I am bruising and having trouble sleeping could be from a

thyroid problem so we're getting that checked. I wouldn't be shocked my

sister has Hypothyroidism..and my grandma has one of them too. I also had to

get a

pelvic (I think all women on this board will agree that is the most

uncomfortable and sucky thing in the world..and considering I got one when I

was in the

ER in feb I felt it to be uneccessary) Anyway I guess the ER only checks for

STDS..so she did another to check to cancer or whatever. While she was

feeling around she said my left side felt a little funny. That it seemed

harder

then the other side. I have been having a lot of pain on my right side

though.

She said it could mean that there is a mass growing in my left side which

would be pushing on my right side causing pain.. Oh great that's what I want

to

hear.. Anyway she wanted me to get a CT scan ASAP. She wanted me to get it

done on Sunday(the stanford clinics do rush CT's/MRI's on the weekend if its

not

a super emergency) ..but I said no way.. It was mothers day and it was going

to be all about my mom. So Monday night at 8pm I will be getting a CT scan to

check for a mass in my pelvis.. Please pray that there is nothing there and

this is not a thyroid thing..

Lots of Love

(poly JRA and Spondy, 19)

[Guest guest]

Hi ,

I'm sorry to hear that you're having to go through all this--it's so

frustrating to go in for a regular appointment and find something else to

have to deal with. I will keep you in my thoughts. On the pelvic exam, (I

had a very similar situation where the pain was on the opposite side than

the one with the mass) it could be ovarian cysts--I went through a sonogram

and a CT a few years ago and found out I had some very large ovarian cysts

on my left side--these are generally not a problem unless they get too

big--mine had started to rupture so they put me on birth control and that

cleared them up. I hope that this resolves for you very soon and that all

is ok! Just wanted to let you know that although it can be scary when they

want you to get something checked out, it's not always anything too bad.

Best wishes for good test results!

Sara (26, poly since 5)

>From: bncknwurnumber@...

>Reply-

>

>Subject: Grr

>Date: Thu, 6 May 2004 15:01:39 EDT

>

>I had a regular doctors appointment yesterday. I had to get some of my

>camp

>forms filled out. I expected it to be just a normal doctors appointment.

>I

>get excited for normal doctors appointment because there is no bad news and

>its

>just a check up. Well seems like nothing with me is ever normal. She

>thinks

>part of the reason I am bruising and having trouble sleeping could be from

>a

>thyroid problem so we're getting that checked. I wouldn't be shocked my

>sister has Hypothyroidism..and my grandma has one of them too. I also had

>to get a

>pelvic (I think all women on this board will agree that is the most

>uncomfortable and sucky thing in the world..and considering I got one when

>I was in the

>ER in feb I felt it to be uneccessary) Anyway I guess the ER only checks

>for

>STDS..so she did another to check to cancer or whatever. While she was

>feeling around she said my left side felt a little funny. That it seemed

>harder

>then the other side. I have been having a lot of pain on my right side

>though.

> She said it could mean that there is a mass growing in my left side which

>would be pushing on my right side causing pain.. Oh great that's what I

>want to

>hear.. Anyway she wanted me to get a CT scan ASAP. She wanted me to get it

>done on Sunday(the stanford clinics do rush CT's/MRI's on the weekend if

>its not

>a super emergency) ..but I said no way.. It was mothers day and it was

>going

>to be all about my mom. So Monday night at 8pm I will be getting a CT scan

>to

>check for a mass in my pelvis.. Please pray that there is nothing there and

>this is not a thyroid thing..

>

>Lots of Love

> (poly JRA and Spondy, 19)

>

>

>

[Guest guest]

I can relate. I have a long-time friend who has told me many times since my diagnosis (two years ago), "it's a good thing this happened to you, and not me, because not being able to eat whatever I want at restaurants would ruin my life". Last month, I finally declined an invitation to dinner with her, and told her that I needed to stay home in the interests of my health. She replied that she hopes I get the help/counseling I need to "find peace within myself". I'm actually feeling very peaceful knowing I won't be dining with her again anytime soon, and I'm very thankful to have this place to share stories and know that I'm not alone.

From: Cory <cory66katt@...>Subject: [ ] grr Date: Monday, November 8, 2010, 12:40 AM

I went away with some friends for the wknd and this one girl kept asking me things like "so when did you become a vegan?" and "is there anything here that’s vegan you can eat"? In her defense, one of the other guys with us WAS a vegan, but my god, how hard is it to keep track of the difference! Its not like she was asking him about being gluten free, in fact she kept asking us both about being vegan! Just wanted to rant :-p

[Guest guest]

Your story reminds me of my father-in-law who keeps saying people are better off without sugar anyways; that being glucose intolerant is probably for the best.  My husband keeps correcting him that it is gluten, not glucose, but I have decided to just ignore it.  Fortunately it is only once a week or so and he doesn't keep getting in my face with stupid questions about it.  But I feel your pain.  It is very frustrating when people don't seem to really listen or care.  I am very grateful for this wonderful support group and stories like yours make me feel less alone.

Thank youMichieGF Chef

[Guest guest]

,

I'm really happy for you that you were able to finally move past this "friendship". I have had similar experiences, and it was very liberating to finally move on, and realize who my true friends are. We have to stand up for ourselves and our health.

Best,

Cory,

We've all been there. Feel your pain!

From: <julie_seekinginfo@...> Sent: Sun, November 7, 2010 7:48:16 PMSubject: Re: [ ] grr

I can relate. I have a long-time friend who has told me many times since my diagnosis (two years ago), "it's a good thing this happened to you, and not me, because not being able to eat whatever I want at restaurants would ruin my life". Last month, I finally declined an invitation to dinner with her, and told her that I needed to stay home in the interests of my health. She replied that she hopes I get the help/counseling I need to "find peace within myself". I'm actually feeling very peaceful knowing I won't be dining with her again anytime soon, and I'm very thankful to have this place to share stories and know that I'm not alone.

From: Cory <cory66katt@...>Subject: [ ] grr Date: Monday, November 8, 2010, 12:40 AM

I went away with some friends for the wknd and this one girl kept asking me things like "so when did you become a vegan?" and "is there anything here that’s vegan you can eat"? In her defense, one of the other guys with us WAS a vegan, but my god, how hard is it to keep track of the difference! Its not like she was asking him about being gluten free, in fact she kept asking us both about being vegan! Just wanted to rant :-p

[Guest guest]

Oh, those fathers-in-law! Mine thinks I "caught" celiac because I don't eat red meat...

Sent from my tin can and string. Please excuse mumbling and static.

-----Original Message-----

From: Michie Page <gfchef@...>

Sent: Sun, Nov 7, 2010 8:16 pm

Subject: [ ] grr

Your story reminds me of my father-in-law who keeps saying people are better off without sugar anyways; that being glucose intolerant is probably for the best. My husband keeps correcting him that it is gluten, not glucose, but I have decided to just ignore it. Fortunately it is only once a week or so and he doesn't keep getting in my face with stupid questions about it. But I feel your pain. It is very frustrating when people don't seem to really listen or care. I am very grateful for this wonderful support group and stories like yours make me feel less alone.

Thank you

Michie

GF Chef

[Guest guest]

LOL on the Father in law, sometimes when people start talking about me being vegan or something like that (also "wheat" is frequently misheard as "meat") I just go and order bacon or something, rather than argue with them, the funny thing is I think I was actually eating bacon the last time she asked me about being a "vegan!" The symptom questions can be a pain too, on the one hand its nice that they are taking an interest and wanting to be informed, on the other hand, I really don't want to talk about my gastrointestinal issues! Its also funny because it almost always comes up when we're eating (as thats when the no gluten thing is noticed), I've just taken to saying "trust me, you don't want to hear about my symptoms while we're eating!" and then maybe giving them some literature later if they are really interested.

[Guest guest]

"Tummy problems" is often enough to get people to stop asking.MarciFrom: Cory <cory66katt@...> Sent: Tue, November 9, 2010 10:05:46 AMSubject: [ ] Re: grr

LOL on the Father in law, sometimes when people start talking about me being vegan or something like that (also "wheat" is frequently misheard as "meat") I just go and order bacon or something, rather than argue with them, the funny thing is I think I was actually eating bacon the last time she asked me about being a "vegan!" The symptom questions can be a pain too, on the one hand its nice that they are taking an interest and wanting to be informed, on the other hand, I really don't want to talk about my gastrointestinal issues! Its also funny because it almost always comes up when we're eating (as thats when the no gluten thing is noticed), I've just taken to saying "trust me, you don't want to hear about my symptoms while we're eating!" and then maybe giving them some literature later if they are really interested.